1000’s of broken bones could not stop 100’s of dreams | Special Pride Global

A girl with thousand dreams and thousand broken bones.
A girl, “Sabal Parveen”, who is just 20 years old from Bihar, India suffers from a rare genetic disorder named as “Ontogenesis Imperfecta” or “Brittle Bone Disease”. This disorder is a rare one which means one child in a hundred million is born with this disease. It results in the bones break or fracture easily, body deformity, problems related to respiratory system are observed at early age and in some cases before birth.
Sabal was born normal but after 20 days from her birth, her bones started breaking and at the age of 20th, her bones are being fractured for more than 1,000+ times. Her mother, Ghazala Parveen, a housewife, says that doctors confirmed about her weak bones and extremely thin skin body after couple of weeks. She was injected with heavy doses of calcium on a regular basis along with other medicines. By the time she was 3 months old, she already fractured her bones 3 times. Her father, Shaheen Anwar, took her to a doctor who is in London currently and came to know about the disease. They came to know about the conditions in which her bones can break like from the sound of a thunderstorm, if someone shouts or utensil falls or even from the sound of a train. She is the eldest child of her family from six girls and her mother use to nurse her.
Sabal is a real life fighter who refuses to be treated as a patient. She hates being dependent on her mother. She quoted, “I don’t want to call myself disabled because I have the will to be better, my brain is still functioning irrespective of my body movement. I take happiness from little things in life. I rely on small things to keep me entertained.”
Thank you for watching the video.
Please like share and Subscribe to Sabal's story.
Visit now: www.specialpride.com