2023 Sydney Chocolate Ball - Zaharrah's Story

Zaharrah Priestley and her father, Mark live with Facioscapulohumeral Muscular Dystrophy (FSHD). At the 2023 Sydney Chocolate Ball, the room was capivated by their family story.
FSHD Global Research Foundation is raising funds to bring Clinical Trials to Australia and help Zaharrah's family and thousands like them by fast tracking treatments and an ultimate cure for FSHD.