2024 Sydney Chocolate Ball - Zaharrah Priestley and her parents, Dimity and Mark

Zaharrah Priestley and her parents, Dimity and Mark, shared an inspiring and heartfelt story at the 2024 Sydney Chocolate Ball, captivating the audience with their passion and determination. Living with Facioscapulohumeral Muscular Dystrophy (FSHD), Zaharrah and her father, Mark, highlighted the challenges they face while emphasizing the importance of community support and research.
The FSHD Global Research Foundation is working tirelessly to raise funds to bring clinical trials to Australia, aiming to fast-track treatments and ultimately find a cure for FSHD. Their efforts are not just about Priestley family but about helping thousands of others affected by this condition. Together, they hope to create a brighter future for those living with FSHD, filled with hope and progress.