3 Questions Answered about Raynaud's Syndrome

[@robin6564]

Thank you for this video. I have had Raynaud’s for 50 years. It does not matter if it is summer or winter. Picking up anything cold triggers the white/blue finger tips. The warming can actually be so painful I cry. It is awful. You are the only one who ever explained it perfectly. My doctor just brushed me off like it is no big deal. Raynaud’s is awful if you have it like me. I do not drink cold anything. Thank you. Just found your channel..I also have arthritis.

[@raymondrobbins9495]

Same boat alot of people do not understand the PAIN!!!! when we warm up. I Cry and stomp my feet as i warm my fingers mine has gotten so bad i got a Digital Ulcer on my middle finger and since i have had horrible circulation it has taken 2.5 months to to start to heal.

[@TunesAndToys]

have you had any fingers amputated? or ulcers?

[@raymondrobbins9495]

@@TunesAndToys If you are asking me i have my first digital ulcer healing now it started back in october and is still healing because of the lack of blood flow. as i change my diet to more nitrate rich foods along with medication and also adding cinnamon to my diet as a vasodilator its a slow process.

[@TunesAndToys]

@@raymondrobbins9495 mind if i ask what medication helps this?

[@raymondrobbins9495]

@@TunesAndToys I will tell you what the specialist puts me on after i find out. I have a Dr app at 1040 My gen Dr Put me on Norvasc and i am changing my diet to include more nitrate rich food as in beets and arugala i also use Nitro Paste and started adding cinnamon to my oatmeal cinnamon is a vasodilator. I will tell you more later ok if he changes my medicine.

[@micheleerwin2848]

I am an almost 66 year old women. I was diagnosed with raynauds about a year ago. My mom had raynauds and scleraderma, in addition to a lot of other medical issues. She died in 1976 when she was 47. I remember her hands being ice cold and blue. They didn't have a lot of drugs back then, so my mom took aspirin and drank a lot of alcohol to deal with the pain. I'm working on learning more about this disease. I live in an area where we get snow and it gets into the 20's. I tolerate it pretty well, and it mostly affects my feet, which are freezing cold and numb as I write this. Thank you for this video.

[@aprilvannewkirk8761]

I got some Ugg moccasins and they are helpful in keeping my feet warm.

[@SprintTri57]

I had Raynauds for five years. I started getting it in my feet 7 years ago at age 50. It got worse every year. I started getting chilblains that made it extremely painful to walk. I had three well recommended podiatrists examine and confirm what I had and also said it won’t go away, but will likely get worse every year. I am a very fit athletic male. I did a lot of research and and had a discussion with another podiatrist regarding supplements that might help. He mentioned a couple supplements: B1 and Flush Free Niacin. I have not had any issues the last two years even in the coldest environments after I started taking these together Dec 2021 and almost immediately noticed improvement. I have had a couple smaller incidents like riding my bike in 35 degree weather and forgot shoe covers which gave me my white very cold feet when I was done. But within a couple hours my feet were normal again. Also, snow sports really bothered me. But now I just get minor degrees of Raynauds symptoms but it improves quickly once I am inside. So overall I would say I am 90% “cured” for now. As always, check with your doctor when introducing new supplements to your body!

[@christhompson7558]

Along with wearing gloves, in the colder months I put Hot Hands in my coat pockets. They work great for warming cold hands.

[@ConnectedRheumatology]

That's a great idea!

[@nitab5734]

May I ask what are hot hands?

[@titus310always3]

Remember the muffs?

[@RPRosen-ki2fk]

@@nitab5734 Hot hands are small packets, that when activated have a chemical reaction that generates heat for several hours. They're often sold with camping gear and are found seasonally for winter in drug stores and supermarkets.

[@laniejones8747]

Not just wearing gloves, but putting them on while your hands are warm. Once my hands are cold adding gloves doesn’t help.

[@joost1183]

Try heated gloves. They dont have to be thick so you dont lose dexterity. Invest in proper oens

[@sunkissG]

I’ve had Raynauds since I was little. Extremely painful when cold and warming up. Fingers and toes go claw-like and white. Didn’t have a name for it until recently. I don’t have any autoimmune disease but I do have a metabolic disorder called Mitochondrial Myopathy.

[@titus310always3]

REMEMBER the old windmill exercise? Winding up your arms and swing.

[@barbsaenz8882]

@@titus310always3 I do an underhand softball pitch! That direction works better for me, but OUCH!

[@thereallydia]

You are one of the best doctors on this platform! 👁👄👁

[@derekdiamond1977]

I have raynaud's too, for about 15 years, I just read read Vitamin B1 has helped some people so I will try that. Good luck everybody!

[@RighteousDay]

Magnesium too, I've read. Cold water exposure, too. Research these if you're lead to 💫👍 Godbless

[@KatNicholson]

I’ve seen some folks have success improving raynauds symptoms using cold water therapy… it seems counter-intuitive but they’re essentially re-training the automatic cold response to not be triggered so easily… this feels more hopeful/practical for me than simply just the usual advice of “keep warm” & “wear gloves” which is not always possible/practical. I will be experimenting for sure… interested if anyone else out there has tried similar?

[@crochetlover1880]

Hello Kat, can you please elaborate on how it is done? I have a severe case in my feet and when the warming happens, it becomes too painful to take. I usually then soak it cold water and I find it helps ease the pain.

[@joost1183]

@@crochetlover1880 primary raynauds can be 'treated' or experimented with by using cold water 0-10c I believe for hands and feet first for a few weeks daily for 2-3 mins to see if symptoms improve. Make sure the rest of your body is properly heated whilst doing so to also not trigger a regular response from elsewhere in the body.

[@M0nst4r]

Trust, I’m going to try cold water therapy and much more.

[@Butterfly54684]

When I had an Endoscopy a while ago the Doctor suddenly shouted "Stop everyone by rights this patient should be in the morgue", well I had asked for blankets and I was frozen. Long story short here in the U.K it`s impossible to see a G.P face to face and harder still to talk to them over the phone, I was feeling very unwell with my diverticular problem and knew without a temperature I would get no help. I`ll to this add the fact I was frozen so took temp and it was 34.4 borderline hypothermia. I just bundle myself up and got into bed with heat pads to get warm. Suffice to say I have been started on Viagra as it opens the capillaries and other drugs have not helped me. I`m secondary as I have Sjogrens and maybe also lupus. Thanks for your very interesting chat.

[@ConnectedRheumatology]

Oh my goodness what a story! Hope you have success with Viagra!

[@Appaddict01]

At least you’re honest about the UK healthcare system. All you usually get is cult like praise online.

[@JillJones-c9m]

I started off with just freezing vold hands. For the last 3 weeks they are very red and sore. When the doctor saw them he said I have Raynauds disease He gave me medication.but the are still very red. I did have one day when just one finger was pure white.

[@pennysue3327]

I just had this happen for the first time. Age 53, take bp meds for hypertension and history of migraines. My feet developed sores on my toes, and they were ice cold for 1 week. I had DVT tests done and I had no circulation in my feet. Diagnsis- Renauds..

[@beago0810]

I have primary Raynaud's that is triggered only by stress. I have made many life changes. When it comes on, I know I'm in a bad situation, namely, the people, places or things triggers it so i must avoid and always remove myself from further contact or involvement.

[@KukLuv]

I've had Ranauds for years. In my quest to find pain relief I have discovered that you can buy gloves especially for Raynauds and I must admit what a difference they make. I got them online best £18 I've ever spent 🏴󠁧󠁢󠁳󠁣󠁴󠁿🥃

[@mariavillanueva2043]

Please what exactly the name of the gloves?

[@jm6628]

Great video! Would it be possible to do a video on HLA-B27 and/or Ankylosing Spondylitis? Thanks again!

[@ConnectedRheumatology]

Great suggestion!

[@me-lg1yw]

No mention of white, purple and red toes.

[@patriotliberty3070]

It's so debilitating and painful I'm having very dark thoughts💦😪. I can't physically handle the cold, rainy, snowy grey weather. I'm in so much pain. The only time I don't physically or emotionally hurt, is when I'm in the sun & heat. Mentally & physically I feel happy and alive & and pain-free in warm sunny weather. For someone like me, with it being as severe as it is, would you encourage that person to move to a warmer climate? That's the only time I'm not in pain when I'm in 90 plus degree weather. It's pure heaven. Is this a normal reaction for severe raynaud syndrome where people do better in warmer climates with a higher quality of life? It hurts to be alive😪😪💦💦💔💔

[@sylviadelvallegarcia5231]

So appreciate you and your videos. You have such a friendly, warm, down-to-earth presence. I was diagnosed with Chillblains. Is it similar to Raynaud's Syndrome? If so, how? Thanks.

[@ConnectedRheumatology]

That's a great topic for a video! I'll add it to the list. - the short answer is: they may appear similar on the surface as both can occur on the hands/feet when exposed to cold - but what is happening on the inside is different. Raynaud's is from vascular constriction and Chilblains is from vascular inflammation. Great Q!

[@sylviadelvallegarcia5231]

@@ConnectedRheumatology Thanks for the response. Much appreciated.

[@wendysudbury9341]

Actually, I think your original pronunciation (ray-noh) is more accurate, given that it is named after a Frenchman, but thanks for the video.

[@trishalee3198]

Good information that I greatly appreciate. I will be talking to my new medical provider about this. It has just come up at the end of 2022 in the winter moving here and this year in the winter when I wash things out in cold water. Now, I will keep gloves handy everywhere. Also, I will no longer worry about the gas bill going up because I will be using more warm water.

[@janclebro6997]

I've had it for thirty or forty years, and I guess it's secondary to my autoimmune problems (AS, SS and fibro). I'm on a very strict clean diet which massively benefits my quality of life, and my Raynaud’s has definitely improved substantially in recent years. (As Raynaud was a Frenchman, and I'm an English gal, I'm happy to stick with the Raynowz pronunciation 😊)

[@jackalopejane2021]

Thnx for doing this video. My doctor just told me in the most recent appt that I have Raynauds. She suggested a particular brand of at-home gloves to wear. They have helped immeasurably. Living in Wyoming has been challenging to stay warm with my poor circulation…

[@rachellehicks8546]

What gloves are those?

[@raymondrobbins9495]

I just want to tell you i was a IV drug user for years and i thought my condition was because of that. Turns out its not I have Rheumatoid Arthritis and have had Raynaud's for years not knowing this was the condition. I was fortunate to have my Podiatrist give me Nitro Paste as part of a treatment for my toes. I work outside as a window cleaner in Michigan so i am outside when it is cold. I have to ware heated Gloves and Toe Warmers as part of my uniform. It is very very painful when you have a episode and the warming dose indeed hurt more then the cold. I was prescribed Norvasc to get the ball rolling and will see the Rheumatologist next friday. Point being i have secondary as RA is my primary condition.

[@lacy9984]

I have this in my hands and feet. Even with socks and shoes my feet will be freezing. I used to love to swim and now I just can't. I don't smoke. I've had this for years but didn't notice till it started effecting my hands. I have a very physical Job. I don't know if it's part of the problem but my doctor wasn't concerned. Gave me blood pressure meds ( I have low pressure) and told me to come back if I developed sores..... It feels hopeless and uncomfortable.

[@joclothier5536]

In the U.K. Raynauds is pronounced Ray knowds, not Ray nards. Greetings from Wolverhampton in The West Midlands, England.xx P.S. Ray nards is connected to Foxes. !!!

[@TheBeautyMage]

Surprisingly, I have flare up even in the summer when it’s hot.

[@4SunnyinMiami2]

I've had this for several years now and when working in cold weather ( I live in Miami, Florida) go figure, is when I realized my index fingers would go totally numb and painful. Now that I no longer work out doors ,I'm getting the numbness and white index fingers inside in my 74°degree air-conditioned home. So today I mentioned this to my doctor and to my surprise they put me down in the records as having Reynauds. I thought they must have confused me with someone's records but once I looked it up in my phone on the way home I realized why they did this. Either way they are going to run a thyroid panel and nuclear antibody test. I have had goiter and partial thyroidectomy so will see after the tests.

[@321watch]

I fast everyday for 19 hours. When I have my lunch at 2:15 in the afternoon after eating I always get a raynauds attack. It only occurs in winter when the building is cold. I assume blood is rushing to help digest the food causing the attack. If I eat a little before my main meal, maybe an hour ahead, with this possibly help ease the symptoms.

[@coriewalston2991]

Oddly enough mine happens mostly in my toes and the balls of my feet when exposed to temperature changes. Wearing thick socks with tennis shoes and walking in the freezer section of the grocery store and I feel the middle three toes go complete numb. But my hands, in stress I’ve seen them go blue. Don’t know if I missed the white or not. Maybe mine is not Raynauds but something else?

[@christinahamill6617]

Great video. Thank you!

[@ashsea9940]

My feet are worse than my hands. Thank you for the videos!

[@ashishumrani]

I too suffer from feet discoloration. It actually started a couple of years back. Of course Hypothyroidism is also there in my case. So its secondary. However the feet problem was so worse that I could not run a single mile. And running is my way to get out of day to day stress. A hint came to me from a hiker friend of mine. He told that he too suffered from this and he found a good solution himself. He uses two socs, one above other and then wear shoe. This year thus far I have not suffered as badly as last year. Thanks to my friend.

[@Eliaalonsodiaz]

Did you work at USC Dr Ortiz? If you did, I was your patient ! I loved you and wondered where you went!!

[@elektra016]

I love you videos they help me to understand my overlap síndrome. Sometimes my hands just get so red and hot that I have to putting on something cold. And the same wen they’re cold I have to wrapped to warmer up.

[@kathyeast812]

You could have a rare condition called erythromalagia. There are several Facebook groups that address this condition. Unfortunately, not a lot of Drs. know about it.

[@Mekhinya]

Enjoying your videos, Dr. Ortiz. I was told I have Raynaud's by a podiatrist while he was examining my feet (for another issue). I was also diagnosed with it in my hands by another doctor. I've been told that all Raynaud's patients fingers do not change colors. I have brown skin, but I don't know if color changes happen at all in brown skinned patients. I have noticed when I have a Raynaud's flare-up, my fingers will become ashy-like. It looks kind of odd because it's just that top part of my hand! I'm wondering if that's my 'version' of color changes.. What do you think about this?

[@titus310always3]

Look at your palms......the ashy color is a clue.

[@titus310always3]

@Taiwo Omotosho NAC requires water to keep from dehydrating.

[@TexasRose684]

Do not wear nail polish for a diagnosed of Raynauds, just incase the Doctor wants to scope your nail beds.

[@Appaddict01]

I have a family member that fingers that get white and numb. But, they do not transition to the other two colors.

[@TheBeautyMage]

Mine goes straight to blue... numbness happens in the feet. Ears, nose, and lips also have this. I have a blood disorder.

[@caydancebloom]

you said supplements haven't been found to be helpful... but what about herbs and foods that help with vasodilation? It's frustrating that our healthcare system just focuses on medication made in a lab rather than ask ... what plants are the medications based on!?

[@netty062]

And what about removing coffee, as it is a blood vessel constrictor? I've drank coffee for 40 years and recently given it up to see if I can help my newly developed Raynaud's in my feet only.

[@cbryce9243]

I have Raynaud's and Erythromelalgia. If your feet go from very hot to very cold, look it up.

[@danielkelly5474]

I wonder how you tell the difference between Lupus and Fibromyalgia?

[@ConnectedRheumatology]

With a thorough physical exam, extensive history and the right blood testing. Sometimes it's easy and clear and sometimes it's not. Sometimes they travel together, which can make things even more interesting!

[@leannecomerford8261]

Living in Northern Ont, my raynauds is agony. Both in my house and outside. Have electric had warmers, use microwave hot packs, and wrar gloves all the time. Unfortunately I also get awful pain in my hands that wakes me at night. At times nothing will stop the pain, and I shove my hands into ice water to numb them. Not great for the raynauds...

[@lindakoldenhof3010]

I have Raynaulds since my puberty. I'm 37 now. It started with only my hands. Later my feet aswell. Now my feet are so bad that my whole lower legs are turning blue when I 'm cold. And when I take a shower to warm up my body they will be really red. My mum had Lupus. But I've had test done but negative for Lupus. I do have other problems such as joint pain, migraines and I'm tired most of the time. I have redness in my face, but my doctor thinks is just Rosacea. Could it be someting else than Lupus?

[@RetroReminiscing]

Thank you for uploading this video, I live in the UK and was diagnosed with raynauds but over the last year the condition has completley esculated to having half a blue hand especially on my left hand which worries me...then when i get warmer, I get extreme itching and red hands ...Over the last 2 weeks my hands have been so sore and seem swollen with red itchy dots around my joins ... I saw my GP last week, but she just looked at me and said theres not much you can do about it...waer 2 pairs of gloves... Im in extreme pain at night with red itchy hands and my skin is splitting around my knuckles... I dont know what to do because I am worries my GP will just think I am returning moaning about the same problem again... Im at my wits end and the heating up really is sore and very itchy .. I am on a blood thinner and have little sensation in my legs feet and fingers after 6 months in intensive care ... I dont know what to do to help my self anymore apart from anti allergy tablets at night and cream .. If anyone else has any ideas or has the same pain and itchyness when wariming up again, Id love to hear about it ...Thank you for this video and help Sonique

[@krystalalgier8897]

Mine is also more trigged on rainy or snowy days. I also often get post prandial episodes.

[@omanita7289]

Ehler Danlos syndroom and Reynauds 👍

[@omanita7289]

Heds and dysautomia. Secundair Reynauds. Greeting from the Netherlands.

[@sunkissG]

I’ve had this since I was little. My hands and feet get white, clawed and extremely painful. I am 65 now and it’s worse.

[@titus310always3]

When at home I use hunting battery socks. It helps the pain.

[@martinacummins9105]

I discover that i am celiac. I was always frozen cold no matter what i did. Had cravi g for ice cubes. Doesn't make sense. Went to doctor. Got full blood screening and scope done. Both ways found i qas celiac. Change my life greatly. Not as cold as i was but still have purple hands. When i go to my iridh dancing classes hands turn real red. But cold still weather very harsh on my hands.

[@jimlee3744]

Can Reynauds cause a false low blood sugar when the sample is collected by a finger stick.

[@katchevy5367]

Also, lots of patients with UCTD get raynauds. Like me!

[@MultiStats]

I'm a bit new to this. Walking on my cold tile floor can do it to my toes. I need to wear slippers at home. My doctor sent me to see vascular people, which makes sense to me. I'm not sure how rheumatology is involved with this.

[@MsAmira1988]

I'm watching this video from Canada while it's minus 30 out. Even with gloves, it's impossible to keep my hands warm! Great video though :)

[@mgs783]

My GP was incredulous demanding who said I had Raynaud’s…..my GP who relocated did! So, I took pix on my phone of my hands and feet when it occurred (cold or hot environments didn’t matter) since they are date/time stamped pictures to “prove” it! Needless to say my Rheumatologist who was treating Osteo/Inflammatory and later also Rheumatoid Arthritis was gobsmacked by my needing to go to great lengths to prove it. I had Raynaud’s since my early 20’s and by my mid 30’s Rheumatologist was on board with arthritic symptoms. Both are painful, connection questionable given age timing and sequence of emerging. Now dry eyes and mouth prevalent. All related?

[@debfahey]

I have Raynaud's in my feet as well as hands. Once it triggers, I cannot stand anything touching my hands/feet, any touch or pressure is awful!

[@CheetahSnowLeopard]

Great info and you’re so darn cute!

[@linda1541]

I have RA for over 20 years. One year over 10 years ago one winter I had a really bad Raynauds but only one winter. Strange right?

[@sarahfowler9385]

If I get cold feet they just get colder n same with hands my whole body will be freezing until feet and heads warm up but apart from hands being red like you been holding snowballs never gone white or blue so probably not Raynaud's ?

[@jessicabracho8509]

So interesting! Would love to see a similar video on Sjögren’s syndrome.

[@donna25871]

Hope you found the one she did.

[@jillgreenaway9688]

‘ Ray nose ‘ is the correct pronunciation - French . I have never heard it pronounced ‘ Ray now’

[@gamaltaher9714]

Thanks

[@angiepanjie]

Was it a coincidence that when I was given prescription strength evening primrose oil(for pms) in my 20’s, the Raynauds disappeared? My fingers used to go completely white, no pain though. Scared the bejeezus out of me. I read some teenagers and 20 somethings can have it and it goes away. Just curious if it was this or EPO?

[@ralfwashington1502]

What can be said about the risk of adding a CNS stimulant to a patient with moderate Raynaud's syndrome? Ex. Treating ADHD with stimulants that make it happen more frequently. Is that typically not recommended?

[@nicolaw4729]

I'm so sick of being told to wear gloves. I can't wear gloves when cooking and touching cold veg from the fridge or food from the freezer. I live in thick socks but still get attacks in my feet when leaving the car and stepping onto cold concrete. What's the advice for these situations? To not eat? To never leave the house?!

[@annjones7623]

I do better if I keep my core warm. Gloves don’t work if my core is cold.

[@joannamacedonio9439]

I have just recently started having this in my mouth. When I wake up and get out of bed I tend to shiver and my tongue will turn ghost white almost gray. Has anyone else heard about it happening in the mouth?

[@aprilvannewkirk8761]

Not my moth, but my feet.

[@ليالالربيع-ك6ر]

I started having it after Corona

[@user-yw9ys3dz7x]

same

[@TraceyPoland]

I really like your videos, thank you! Can you do a video on hydroxychoriquin?

[@amypemberton7820]

"Just wear gloves!" is not a solution and seems dismissive... as if hadn't already thought of that! When it flares up, i can't type or do my job. I work in health care and definitely can't wear gloves at work. I think if i wore gloves and had to take them on and off all day, the act of removing the gloves in a cold clinical environment would trigger an attack. :(

[@maureenmackey4879]

My feet peel. My toes turn whit also. Last 2 on feet. And bottom of feet. Thick skin under feet , feels like bunched up socks at my toes. What can I put on my feet to help them with this peeling. It’s not a fungus, it’s part of my Renaud’s and scleroderma. Help pls help

[@shannonbraun5038]

I have recently been diagnosed with SLE lupus and have had two blood tests show positive for centromere antibodies however, my rheumatologist says it must be a false positive due to my ANA being a speckled pattern not centromere pattern. Recently my toes have been going purple and my arms, hands, legs, and feet go tingly and numb. I know that the centromere antibodies can be there for Raynaud's I believe. Is it possible that I have Raynaud's since I have centromere antibodies but do not have a centromere pattern for my ANA? I'm so confused but am always positive for centromere antibodies so I do not believe it's a false positive.

[@ajtlc123]

I have not noticed the white or blue stages. I am a restaurant manager and have to order items from the freezer and the walk in cooler. my hands go bright , dark red and itch beyond belief could this be Raynauds?

[@titus310always3]

It can be. Make sure you wear gloves in the freezer and any amount of time in there put a hot hands pad on the outside of the hand in the glove.

[@RetroReminiscing]

I have raynauds Amy, I have it quite bad andmy hands go crazy with itzyness when they get to the red stage..and very sore and partially swollen looking ...I have started taking anti allery one a day before I go to bed becuse when i get warmer in the night in my quilt, the itchyness wakes me so much.. YOu are the first comment i have seen mentioning the itchy feeling..I was begining to think I was going crazy ha ha Have a lovely evening and i hope your symptoms have got better or better managed at the moment, Sonique 🤗

[@Kassidy-y2c]

Mine happens frequently even when I’m not cold at all… and most times it’s longer than 20 minutes, it’s very painful. I also get pain ear pressure and my rheumatologist told me this too could happen with Raynaud’s. I’m new to all of this and I have several positive autoimmune antibodies and my doctor told me my results were “a head scratcher”, and it takes time for a more definitive diagnosis… in your experience is it common to have Raynaud’s even without being in the cold or winter? Sometimes my whole hand discolors and my fingers joints ache.. I’m taking 60mg of blood pressure medicine twice a day and I’m confused because my blood pressure has never been high, so thank you for explaining that part. I just wish it would stop; I have to deal with this everyday sometimes twice or more a day. It sucks

[@csherrick15]

me too we need a miracle

[@amysantus4463]

Can Raynauds be associated with PsA? (Secondary)

[@adoptada12]

I suspect I have Raynauds. Should I go to my Primary first or go straight to a Rheumatologist?

[@multipointus]

I was able to cure my raynaud through cold showers. 50F or colder every day, after 3 months it was gone.

[@tierneydecaire5338]

Huh?

[@societysista6187]

I’ve done cold therapy for 2.5 years- not helped raynaulds and can actually trigger and make it worse.. just saying to others.

[@LesterJennings-y7j]

What if it happens in the 80ds

[@388mason]

I think this can come about at an early age but manifest differently. In high school, I had an attack on my thyroid (terrible stabbing pains). From there, I had terrible fatigue, muscle aches, joint pain and raised rashes when going in the sun. When I was 35, they saw my thyroid was low and the medication helped. I have had unusual kidney numbers from time to time and then swollen salivary glands for the last ten years. I have dry mouth and dry eyes now with fatigue and brain fog. I guess I should get checked by a Rh doctor. My doctor thinks I might have it.

[@user-yw9ys3dz7x]

mine are always flush and wrinkled

[@sabrinashultz9123]

I have reynaud's, exertional compartment syndrome, and ankylosing spondylitis. In your opinion, do you think they could all be related?

[@Paarthurnaxdova]

Yes, it’s all about diet. Go carnivore and they all go away

[@ChristopherPesce-uv8ll]

I'll give you a thumbs up

[@daniellerandall6486]

Can I ask you a question please because I feel lost . I have raynards really bad I have loads of other symptoms especially of lupus but all my bloods come back fine however I have a rare blood group that doesn’t contain antibodies would this interfere with blood markers and show them as negative? Please can anybody help cause my daughter has a autoimmune disease yet the doctors have given up with me and told me to live with all my symptoms.

[@briansilva4165]

Even with blood work many doctors still won’t diagnose you until you’re in the ER with something serious. I have almost every lupus symptom including malar rash with Ana 1:640 and positive dsdna and rheumatologist just says it’s nothing and “probably “ just a false positive. Yea like it even says on the test a positive Ana of 1:640 is 97% chance you have some autoimmune disease and a positive dsdna is 99% it is lupus. With all my symptoms and those odds and still they say I’m perfectly healthy. Do these doctors have a quota or something about who they can diagnose or maybe my employer kicks them some extra $$ to not diagnose their employees so they can work them to death and not let them use any benefits… hmmm… seems very fishy. Lol

[@daniellerandall6486]

I asked a doctor “a disease won’t show in bloods like you said when it’s at its peak and you need to be in emergency and he said yes it’s correct . I’m studying preventive health science and myself and my gp have very different opinions, because they don’t take everything into account . Myself for instance has a rare blood group I do fasting I eat plant based But most of my bloods are normal But 2 are always abnormal but they won’t do anything 🤷🏻‍♀️🤷🏻‍♀️🤷🏻‍♀️they won’t do anything until the others follow . But you know your body it lets you know it isn’t well . Clean eating is key vitamins , get rid of toxins . It’s a win win situation, I heal myself now .

[@marypagones6073]

I can totally relate to knowing a great deal about a subject I've read about...but not being able to pronounce the word! I'm currently in the diagnostic phase with a rheumatologist, but he wanted further testing of my nerves because when I run in the winter I do get pins and needles transitioning from outside to inside in the freezing weather. That's not such a big deal, but I do often get very deep cracks on my fingers (to the point of bleeding) in the winter. Could this be a result of Raynaud's? Thank you for so much for these informed, non-sensational videos about autoimmune disease which is so rare on the Internet. Just asking my question in case it might be helpful to others as well.

[@irelatorres7891]

Rubbing rosemary essential oil mixed with a carrier oil on the affected area can help I read somewhere

[@sarahlewandowicz7696]

We pronounce Raynaud's the other way in the UK. Don't worry about it.

[@aprilvannewkirk8761]

Can Raynaud’s affect my feet?

[@joost1183]

Yes, hands, feet, nose, ears. Ankles also

[@kennethjohnson6223]

A friend of mine that I was thinking about dating told me she had Raynaud's syndrome...Dunno If it's primary or secondary haven't asked her? So, is this something that can be passed on to someone else if they become intimate?

[@emmahall9952]

no, it is not contagious

[@mgs783]

Not contagious but can be hereditary. So, if you have kids with this Raynaud’s positive female there is a possibility(not absolute) that your child(ren) could also develop Raynaud’s. Same possible outcome is true if man has it and female doesn’t.

[@joost1183]

@MGS also, your kids can have it whilst in puberty as well. My 3 kids rn all under 3, dont have it (yet).

[@tobyetc]

It IS pronounced ray-nosed. Raynaud is a French name. I've never (in 65 years) heard anyone call it 'ray-nods."

[@anitakirby2964]

Mime turn really white

[@JackieMoss]

It doesn’t matter how you pronounce it

[@wildabrown8194]

What about your feet

[@barbmartinez7180]

I like this video, but I definitely disagree with your pronunciation!!! The guy is French, so it’s more like Rey nose. I’ve had it for over 30 years and I’ve never heard it pronounced the way you do 😊 informative info tho!!!

[@wildabrown8194]

You keep talking about hands nothing about feet

[@dualingramss2356]

Great, I have a woman’s disease.