5 Diseases Associated With the Epstein-Barr Virus

[@dianebosleytaylor9451]

I am 74 today had mono at age 17. When I recovered my energy seemed back to normal. HOWEVER, after decades I was diagnosed with multiple sclerosis. FATIGUE has plagued me all my life and now that I am elderly has gotten worse. I’m tired all the time every day.

[@LGW654]

I had Epstein-Barr virus in 1998. I was very fatigued and rundown in 2007. I came down with multiple sclerosis at the age of 54.

[@manny8193]

Hello, how do you feel now? I've talked to a few people and they tell me that the supplement cat's claw can help us with multiple sclerosis

[@annieuk4164]

My daughter had epstein Barr virus years ago then 4 years ago diagnosed with chronic fatigue syndrome/m.e. definitely linked aswell.

[@maribelluevano7654]

I was diagnosed with multiple sclerosis 😢 it sucks especially when your extremely tired 😴

[@carolinethedragonslayer]

There is another rare cancer associated with EBV, I have it, Large Granular Lymphatic Leukaemia or LGLL. My DNA was changed because I also had Parvovirus and Cytomegalovirus these three together made me very ill for most of my life. LGLL can only be detected by a flow cytometry test and was first diagnosed in America in 2008. Mine was diagnosed in 2013. It usually is detected in the late 50’s or early 60’s age group. Leukaemia Care and BloodWise are familiar with this condition.

[@Nuverselive]

Did u use blood wise to get a diagnosis? I’m having many symptoms unexplained by a few doctors I’ve seen. I survived over 50 staph infections in my blood usually after surgery in the hospital. They tell me my blood cultures are okay but I done feel well! Any tips are appreciated!

[@carolinethedragonslayer]

The condition can only be determined by a flow-cytometry test. Apparently this is expensive and I had to wait 3 months for my specialist to find another possible patient before he would send my blood off for testing. I contacted Leukaemia Care who gave me a list of specialists in LGLL in the UK, and I contacted Prof. Moss in Birmingham, UK. I see him every year now. I was extremely insistent that EVERY test was done as I knew that I was suffering from something, doctors just treat the symptoms not find the cause, unfortunately. I wish you luck in your health quest.

[@truthylucy7068]

Part 1) I contracted mono when I was 19. I woke up one morning with golf ball size lymph nodes upon my neck. I'm want to mention something as I believe it's responsible for directly affecting my system. Starting with activating EB, then diagnosed with hyperthyroidism @ 22. Which actually went away after taking ptu for a few months. Then, it returned when I was 35 diagnosed w/goiter. 2 doses later of radioactive iodine. Now hypo & on meds for life. I have SLE, Sjogrens & Rheumatoid arthritis. I have something else going on effecting the dermis of my skin. Its the strangest thing I've ever experienced. In 2012, I noticed an indentation on the right side of my leg below the knee area. A round concave dent. It was small & not visible so I kind of forgot about it. FF to 2015, I found out I had SLE. I didn't really give it much thought or connect the two until I started getting more indentations. They're symmetrical. Basically they're round starting out they burrow in depth & are the size of a quarter /50 cent piece. Then continue to indentation vertically. Example: They're on the inside of my legs both sides deep hole & extends down the inside of my legs. As well as between the inside of my legs through the back side of my rear end. Needless to say it's disfiguring! I don't know if it's fat wasting as it doesn't break the skin. I will continue my phone is acting up..

[@lisayates2490]

Ive had ebv diagnos after feeling bumps on my neck 5 years later now i wear a necklace of swollen lymphnodes ive lost 60 pounds n half my hair n i feel horrible daily im in so much pain all over my body.

[@ael6707]

I hope you speak to your doctor 60lb is a lot there has to be another issue that can be addressed that can give u a better quality of life

[@marylee2732]

I have liver cirrhosis hepatitis & PBC, I learned about serrapeptase enzyme and it works well for pain, by removing all the mucus /inflammation, parasites, then I stopped because of finances and now I am back on again, I hope it works just as well the first time. I like Dr Mercola’s brand Physicians Best didn’t seem like the best.

[@truthylucy7068]

Part 2) I have dents on every part of my body. My face especially neck & chin is just disappearing. I feel like something is eating away at the fat below my skin. I can tell when it's happening especially on my hands. A part of my finger or hand will really start to itch. It's progressing & I'm guessing it's Lupus related but I don't know. I've seen one Rheumatologist. He told me I needed a second opinion! I said a second opinion I haven't even gotten a first opinion! Told me to go to LA. My primary sent me to the dermatologist. I requested a body scan as I wanted her to see what I'm dealing with. She wouldn't do it! I showed her my leg with the huge dent. She told me I needed to get blood work from my primary! She was the one who referred me to dermatology! I waited 3 months to get that appointment & she couldn't get me out of there fast enough. I was in the with her 5 min tops. I left there in tears. I have yet to see a physican that I can show how this is effecting every part of my body. We have only a hand full of Rheumatologists that I can see. Scheduled an appt 3 months ahead to get in. They cancelled a week before. This happened twice with this office. I've become so discouraged. This wasn't supposed to be a sob story. I needed to vent. I said in the beginning what I feel had a lot to do with my EB & autoimmune problems. Breast implants! I got them @ 18. I have never felt the same since. This was back in 1983. Had them redone since. Worst thing I could have ever done was put those inside my body! Imo they're a foreign object of synthetic material. It only makes sense your immune system would go haywire! I have the ones that are silicone with the foam covering on the outside. ( The worst ones you could possibly get) Thousands of women have suffered from immune problems after getting implants. Left many debilitated. I only found out that they have a shelf life about 5 years ago! So they need to be replaced every 10-15 years! Had I known this I NEVER would've gotten them. Mine are waaaay past expiration. They need to be removed & out of my body! I can't afford to just go & get this done, unfortunately. Thank you, for letting me vent & tell my story. I appreciate your channel, very informative. 😊

[@Qand_J]

try protocols by medical medium

[@LaFanfanTulipe]

I believe you can send your blood to a lab without going through the doctor, mainly if you don't have an insurance. This will eliminate the doctor's fees.

[@truthylucy7068]

@@Qand_J Thank you!

[@truthylucy7068]

@@LaFanfanTulipe Thank you, very much. This is good to know!! 🤗

[@danilondon835]

​​@@LaFanfanTulipe some labs accept you do private tests without doctors form. I do this always before go consultatio to avoid wait one or more weeks and pay doctors return fees. Only if is a different and specific tests the doctor can ask me to do if need some more. Where you've? My lab is in London.

[@tumbleweeduk7479]

My EBV was caused by vaccination, like mist most modern illnesses.

[@fifthwallradio5477]

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