Telling family and friends about your diagnosis can be difficult. Did they deny it, accept it, or feel like they could fix it? Communicate, communicate, communicate!
Пікірлер: 23
@Houston727Gal Жыл бұрын
I'm so happy I found you guys! While technically not Young Onset, I'm 58 and find you to be more relatable than other support groups I've found - which is mostly elderly sufferers. My biggest wish - that there was a gym with this program close to me in Savannah!
@thesecretlifeofparkinsons Жыл бұрын
Do you have anything close to you? I believe I know someone with PD in the Savannah area if you want me to connect you!
@Houston727Gal Жыл бұрын
@@thesecretlifeofparkinsons The closest I’ve found is 2 hours away in Jacksonville, FL. I’d love having a local connection!
@1983mojo1 Жыл бұрын
I think I will show the video to my wife as a lot of your thoughts hit home for me and my PD. Thanks for sharing.
@thesecretlifeofparkinsons Жыл бұрын
I hope that goes well!
@mom83110 ай бұрын
You guys are doing a great job. Thank you.
@thesecretlifeofparkinsons9 ай бұрын
Thanks!
@kissme4492 Жыл бұрын
53 male looks like I am 45 totally fit 6 pack stomach. Down with PD for 3 years now. Lost friends and social life. Pretty much disappeared just like that. Had everything going for me.
@jnm.6244 ай бұрын
Sorry to hear that? Are you being active? They're are more ppl in the world. Keep positive
@Michael-he7xn Жыл бұрын
Good stuff guys.
@thesecretlifeofparkinsons Жыл бұрын
Thanks!
@pattirossiter1065 Жыл бұрын
I, like you Jessica, blame everything on Parkinson’s. Also, yesterday a friend said to me “well, hopefully you found it early.”
@thesecretlifeofparkinsons Жыл бұрын
It's hard not to, right?!
@sandysullivan8707 Жыл бұрын
Your videos are so helpful. Thank you for sharing your insights.
@thesecretlifeofparkinsons Жыл бұрын
You are so welcome!
@shmatalady508210 ай бұрын
Thanks for these videos. I feel so alone with Parkinson’s even though I have a husband and two adults I live with. They don’t want to deal with it. I suffer from dyskinesia every single day. Considering DBS.
@thesecretlifeofparkinsons9 ай бұрын
We have a few podcasts on DBS. Check them out to learn a little more!
@shmatalady50829 ай бұрын
Thank you very much@@thesecretlifeofparkinsons
@Cabmaker2 ай бұрын
I pretty much quit sharing anything about my pd with my non pd friends and some family members because they don’t get it ,and then I won’t get frustrated with them for not understanding.
@julieanna8495Ай бұрын
Ok. I was taking a pill when the Guest said, “I like to pet Kevin.” Then Jessica quickly said, “Kevin is the dog.” 😂😁😆😭. It took all I could do NOT to spit out the water + pill in my mouth.🤣😂😆. Brian starts laughing. 👍🏼. The three of you are delightful. And yes, I have relatives in my life that try to downplay me having Parkinson’s. 😐. As if I CHOSE to have this thing and am somehow craving the spotlight.🙄🥺. But when I walk it becomes obvious that I have it. It’s like you said, all the other symptoms-shoulders and neck aching, feet hurting, etc…-they say it is just old age and they have that too. 🙁. That may be, but they do not have Parkinson’s. It is just different for us. I don’t want to be treated special, just don’t expect me to do things physically like throwing my usual holiday dinners like I used to, by myself. I just physically cannot do those things just to make things seem normal’ again. Heck, I cannot even walk to the table carrying heavy dishes of food like I used to. A cane is now involved. And no, we are not acting.🙁😔😐
@jeancattoi27969 ай бұрын
It is nice to be asked how I feel.
@mom83110 ай бұрын
Can you add family members as guests so we can hear their struggles and perspectives bc Parkinson’s affects everyone that we love.
@thesecretlifeofparkinsons9 ай бұрын
Yes, I'd love to. It would be a difficult conversation and I have to find the right person who is willing to open up knowing that their loved one (the patient) will be listening.