For Those Recently Diagnosed With Parkinson's ❤️

[@alittlebitshaky]

For those just diagnosed my advice would be: A) stop and breathe…Parkinson’s isn’t going to race away out of control if you take your time, so stop and breathe. B) once you’ve got your head around the diagnosis a bit….move, exercise and don’t stop. Everything with Parkinson’s is better if you exercise….truly everything….EVERYTHING. Your tremors, your rigidity, your depression, your apathy, it will all improve…so get moving! C) breathe a bit more, listen to Jen’s stories, write your own stories, learn more about Parkinson’s…. D) live your best life That’s my wisdom after living with PD for 12 years ❤️ As always, Jen, love your work and you are definitely rockin the eyewear!

[@ParkinsonsWigglesProject]

Beautiful and wise words! Add sand mandalas and watching the sunset and or sunrise ❤ Thank you so much for sharing your wisdom!!

[@alittlebitshaky]

I like to think of it as a collective wisdom. Shaped by listening and sharing. So I thank you for contributing to this wisdom.

[@barbaradiemer9614]

My husband was newly diagnosed with PD last week. This is so helpful and comforting. Thank you.

[@alittlebitshaky]

@@barbaradiemer9614 💜 I hope he’s doing ok.

[@loristilley8966]

❤

[@Fricnfrac1999]

My husband was diagnosed with Parkinson's in 2021 at 50 years old. I make it my lifes mission to scour the internet every single day to learn new things, tips, tricks, anything I can get my hands on. I've learned so much in the last 3 years. There's so much more out there that Western medicine doctors don't tell you because they of course foo foo anything that hasn't been "scientifically studied". If it's worked for other Parkinson's patients then that's all the hope that i need. A functional doctor in Florida really is helping us too. I just wanted to say that I just came across your channel and I'm excited to dig into other episodes! Thank you!

[@ParkinsonsWigglesProject]

@@Fricnfrac1999 Your husband is lucky to have you looking out for him! 🩷 I am grateful everyday to my husband and friends … Thank you for your comment!

[@lynnpoag8173]

Oh wow. I’m in Palm Coast, FL, just south of Jacksonville Where in FL is the functional medicine dr? My husband was diagnosed about a year and a half ago at age 52. He’s held off taking the meds as long as possible, but just started C/L half a pill 3 times a day just to get his body used to it. He’s tremor dominant. He’s been checked for heavy metals and gut health, although they both came back good, he is missing some gut bacteria diversity. He’s had gut issues his entire life and I wonder if that’s what got him here in the first place.

[@Fricnfrac1999]

@lynnpoag8173 hello. His name is Dr Tanio at Rezilier Health in Hollywood FL. He is expensive and doesn't file insurance but I have filed claims on behalf of my husband and they have paid it. I highly recommend him. He digs deep into the problem and wants to come up with solutions and get to the root of the cause. He doesn't just throw meds at you like the doctor at the hospitals around here. He's got some high credentials as well and also works with John Hopkins for instance on breakthrough technology/meds/etc. Our last visit he referred us for a new clinical trial. Look him up if you have time! Best of luck to your husband and you... A caregivers job is tough! 🙃

[@richardbiemann4562]

i'm 66, a fairly recent widower with Crohn's disease and no family nearby. I was diagnosed with PD two days ago. Your channel is the first one i found. I'll be back. Thank you

[@ParkinsonsWigglesProject]

Thank you for your comment and watching! I do hope I provided some helpful information....and if you have no family nearby you can find a PD family in a support group online or Rock Steady Boxing if there's one nearby 🥰

[@xjet]

Five years on from my PD diagnosis I'm doing great. Having the right outlook is super-important. We can't cure PD but we can sure put up a fight. After my diagnosis I lost 10Kg, started lifting weights, added creatine monohydrate as a supplement to my diet and now walk 5-10 miles a day (when weather allows). The things that worked best for me were exercise (use it or lose it), a high protein diet and trying out as many things in respect to diet as possible. Science says that exercise works because the endorphines released during exercise actually stimulate the production of dopamine. Likewise, coffee (counter intuitively) can be useful because caffeine also stimulates dopamine production. The creatine boosts energy levels and at least one study indicates an improvement in the symptoms of PD. I have probably read thousands of studies and medical papers on PD and joined many of the dots myself so that I'm really happy with my current situation. Although my first symptoms were a tremor, that hasn't actually gotten much worse and the most annoying aspects now are sleep disorder (my wife has the bruises to prove it) and dyskinesia that sometimes affects my hands and feet for 20 minutes at a time. My doctor has prescribed Cinemet CD/LD but I rarely take it because 95 percent of the time I don't need it. I realise that at some stage I will have to fall back to medication but in the meantime I've discovered that there's a *lot* you can do outside of taking pills. At this stage (in the second year of my eighth decade on the planet) I intend to live forever or die trying!

[@ParkinsonsWigglesProject]

Always love to hear people living life to the max despite Parkinson's!! Thank you for sharing 🥰

[@kendc4725]

Well done! As someone who is still fairly new to this whole thing, the diagnosis shock and immediate confusion are still raw. Many of us step out of the doctor’s office armed only with a prescription, a follow up appointment (“see you in 3 months, stop at the window on your way out”) and some brochures with pictures of a few happy Parkies doing their exercises. Thank goodness for you and others who help connect the community through social media!

[@rogerokelley]

Well said, God bless you and prayers. 🙏🏻

[@ParkinsonsWigglesProject]

Thank you Ken!! ❤️ My experience was pretty much the same as yours, some papers, a prescription, and follow up appt. The shock is real, and the person in our group the other night cried, and you could see them holding back the flood of feelings.....it brought me back big time. Not like messages don't but to see it in someone's eyes got to me.

[@JohnMcCreery]

I am a late-onset PWP, diagnosed in June 2023, 80 next August. But I agree with everything that Jennifer says here. One important difference may be that at my age, ending well is a bigger concern than living well for what could be decades more. In my case, daily exercise, healthy diet, carbo/levodopa (now paired with Comtan), and the PD community have made life a lot more interesting than thinking from the symptoms that I would soon shuffle off this mortal coil.

[@rogerokelley]

Oh it’s so good to see you Jennifer. “love the glasses”. You are so true. I’m blessed to finally find the right doctor. Last week I was able to get to Sonoma, CA. for Nascar Race. I finally got to WALK across Golden Gate Bridge “Bucket List” I used my Rollator walker and I was slower than others but I DID IT 🎉🎉. So excited.

[@ParkinsonsWigglesProject]

Wow Roger!! That's wonderful and you were in my neck of the woods...I had some friends go to that race. It was hot then so you must have gotten some good bridge weather, or I hope you did because it can get cold up there 🥰

[@rogerokelley]

Yes it was a bit chilly. Also, Sonoma has some wonderful wine. 🍷 Your neck of the woods? Wow! What a small world.

[@tomrio9914]

Love, love, love your timely video. Just last night this was part of the discussion with an online group. Then this morning I was overwhelmed and stressed while writing a silly email. It’s often a roller coaster ride and even if you don’t like it get used to it. Never give up, fight back! 😊

[@ParkinsonsWigglesProject]

Thank you for watching and commenting!! No letting silly emails get the best of ya! ❤️

[@KieranKealy]

I find your video gives me hope.

[@crystalvalles3782]

I started having internal tremors in my arms legs and neck and only when I do certain movements. Other than that I'm very happy person. I don't have any other symptoms. The neurologist said I don't have Parkinson's. But she didn't understand why I had tremors so she sent me to a movement disorder doctor. The movement disorder doctor did some more testing. And she said that I did have Parkinson's. I don't even know what to think. I'm definitely in a dark spot in my life. All I can think of is that my life is over. It took two years to get answers now I'm 41. My future looks so Gray. But thank you for your video.

[@ParkinsonsWigglesProject]

Hi Crystal~I totally understand how you are feeling. No one wants to hear they have Parkinson's and it's even more impossible to believe when you are so young. I was 38 when I was diagnosed and like you went into a dark place. Dopamine is a mood regulator and with PD you have less dopamine than a person who doesn't have PD, and depression is VERY common because of this and the fear and sadness that comes with a diagnosis. But there are ways you can work on feeling better. Be kind to yourself, and know that you still have life to live. One of the best things I did for myself was find a cognitive behavioral therapist to help me process my diagnosis and she made the world of a difference for me!! Thank you for you message and reach out anytime ❤

[@SDWP]

Great advice, as always! 🙂

[@ParkinsonsWigglesProject]

Thank you!! 🥰

[@doriscorr334]

Thanks for you video. You are so positiv. And it is tru there are fantastic people in the Parkinson community. No Guinness this time. You are good on your diet. Your glasses suits you well.

[@ParkinsonsWigglesProject]

Thank you so much Doris!! Guinness came later 🙃 and I am loving my new glasses too ❤️

[@MToalPhoto]

Great advice. Love your videos.

[@ParkinsonsWigglesProject]

Thank you Mark! I love your photos 🥰

[@NK-wd2cw]

Thanks for the video. It means a lot to me as I have just been diagnosed. I needed something to digest and think that I will still have life, which your video did! Thanks a million!

[@ParkinsonsWigglesProject]

You're welcome 🥰 Thank you for your comment, and I know how you feel ❤️

[@davidhughes5998]

As usual very helpful, good to talk and learn about parksons

[@ParkinsonsWigglesProject]

Thank you David! 🥰

[@JeremyMcdonald]

Great advice! I love your glasses too!

[@ParkinsonsWigglesProject]

Thank you!! 🥰

[@James-ws6du]

Was told I have cervical stenosis which might cause some of my Parkinson's symptoms to be worse. thank you very much for your videos they help.

[@ParkinsonsWigglesProject]

Thank you for your comment and watching! 🥰

[@johnbutters3312]

Hi Jennifer, That's timely and clear info to help us 6:35 remember that conditions are different for newly diagnosed people. Compared with those of us who have been with Parkinsons for many years. cheers John

[@ParkinsonsWigglesProject]

Thank you John! ❤️

[@joannefranklin3202]

Hi, I love your series. I have an intentional tremor right hand and I was diagnosed on August 26, 2024. I take Carbidopa /Levodopa 25/100 3xDaily and Rasagiline 1mg. You have been a godsend and I appreciate you. How do you deal with muscle stiffness?

[@ParkinsonsWigglesProject]

I am happy you found my videos and hearing that they are helpful means a lot ❤️ For when I feel stiff I stretch and do it throughout the day. I also am lucky to have a plug and play hot tub (I bought in 2015 for $2,000, such a steal) which I try to soak in every morning. Every time I get a professional massage I feel amazing and wonder why I don't budget one at least once a month. Exercise and managing stress is also really important for tension....you will find what works for you but it takes time ❤️

[@SF-cg6kn]

Fabulous advice, you've covered pretty much everything. Particularly important is a support group, ideally local but online is also good - It's very important to know that you're not alone. P.s love the new specs! 🤓👍

[@ParkinsonsWigglesProject]

You're not alone is so important for people to know! Thank you ❤

[@thomasmurillo6947]

Hello. I think you're awesome. I was diagnosed 5 years ago . I'm 48 now . I love your channel ❤

[@ParkinsonsWigglesProject]

Thank you so much Thomas!! 🥰

[@Positivevibes8300]

My husband was diagnosed with PD 3 years ago after his keno therapy sessions. He started taking levodopa/carbidopa and he was very active and doing fine but this year he went through a lot back pain sciatica nerve and Sesamoiditis so he couldn’t be active as he was then his PD symptoms get worse. Weight loss sleeping disorders depressed. It’s a nightmare😢. But we still have hope.

[@ParkinsonsWigglesProject]

Oh no, so sorry to hear 😔 Back pain is the worst! And that it takes away your husbands ability to be physically active and leads to other issues is a nightmare. Always be hopeful while working toward his healing and feeling better ❤️

[@Positivevibes8300]

@@ParkinsonsWigglesProject Thank you so much. let's hope the miracle cure arrives.

[@annb5610]

Great video thank you!

[@ParkinsonsWigglesProject]

Glad you liked it! Thank you 🥰

[@joselugo1619]

I was just diagnosed a month ago, guess I’m still in denial, but when my body aches and I’m just not feeling the way I used to. It’s just surreal

[@ParkinsonsWigglesProject]

I was in denial too....kept telling myself coffee drinkers, smokers, women, and people under 40 are rarely diagnosed....but it doesn't mean never. For me medication was enough to get me feeling like myself again, and I hope you find your way to feeling like you again soon!! ❤

[@jnm.624]

Stay active!! Live your life to the fullest! Enjoy the journey; become an adrenaline junkie ...

[@ParkinsonsWigglesProject]

@@jnm.624 Yes! Yes! Yes! The poker table is where I get my adrenaline fix❤

[@joselugo1619]

@@ParkinsonsWigglesProject I have no doubt that I’ll start feeling like my better self again. I’m not the type of person that is still, don’t know how to stay still I’m always keeping busy and thank you for the videos you share…..helps more than you know ❤️

[@joselugo1619]

@@jnm.624 I’m definitely staying active and keeping enjoying my life to the fullest. Thank you for your support and kind words ❤️

[@emmadwyer3851]

I was missed diagnosed for two years with essential tremors. Finally found a neurologist who did the testing and said I had Parkinson’s.

[@ParkinsonsWigglesProject]

Two years is a long time! But I am glad someone got it right ❤

[@samanthamoss9072]

I was diagnosed in Feb I'm not on meds yet but doing a lot more excercise it's working for me I just have tremor in thumb at moment

[@ParkinsonsWigglesProject]

I stated taking meds in June of 2014....six months after my diagnosis. I know people who waited longer but as a restaurant owner I need to be able to move 24/7. Thank you for sharing 🥰

[@crystalvalles3782]

I'm 41 years of age and the 23 of December 2024 just got diagnosed with Parkinson's. I'm very depressed right now and scared.

[@ParkinsonsWigglesProject]

There are great resources and wonderful people out there who can help! Know that you are not alone and that we are here for you. The bright side of a Parkinson's is the community! There are some young onset support groups....Davis Phinney Foundation and PMD Alliance. There are great podcasts out there...open.spotify.com/episode/5K7fiqkuTNYMlDXkecK9Hl?si=bcce650a2a3c4ba6

[@ParkinsonsWigglesProject]

Pretty Dope Women open.spotify.com/show/4aqEhD8ESQXtVRQlpfWXCo?si=03b6fc18a3c9404a

[@tekhelet777]

I'm 49 and have had symptoms for around four years. I'm just getting started in the tests. Do you think the stress from owning your own business contributed? I own my own business and I feel like I have been too overwhelmed for too long and it damaged my brain.

[@ParkinsonsWigglesProject]

Yes! Yes! Yes! I totally do and am in the process of writing a book about my thoughts. Chronic inflammation is now linked to PD because it's so terrible for the brain, causing neurodegeneration. Stress is a major source of inflammation. I think it's a cocktail of all the bad things we come across in life but the stress was 24/7 for me. I relocated, and bootstrapped my business. I believe it was what got me to the tipping point. www.everydayhealth.com/wellness/united-states-of-stress/link-between-stress-inflammation/

[@KdqKdq-ss9uq]

You're amazing,pretty like my story just i don't have enough courage to join a support group. I feel like afraid to see / to hear people's stories.

[@ParkinsonsWigglesProject]

Finding the right support group is important. Ideally this would mean the people in your group are close in age and in stage of the disease. If you are newly diagnosed it wouldn't make sense to be in a group comprised of people in the advanced stages. At the same time my group is mixed but the one thing we all share in common in that we were all diagnosed before the age of 50. There are couple of people who've been diagnosed for over 20 years, and are not as bad off as many would imagine or fear. The one thing I look for in a support group aside from support and wisdom is optimism. We are honest about our struggles, listen and learn from each other. We also laugh 🥰

[@KdqKdq-ss9uq]

You're really inspired me. 10 years ago i felt like weakness in my left leg. Since i suffer from sciatica so i thought this might be from my back also. Then i had frozen shoulder on the left side. I went to many neurologists ; i have been told that this is anxiety and so on... with antidepressant pills and psychotherapy so i was missdiagnosed till 2021.(i am 61years old) Still hard to accumulate. Your video is very encouraging and makes me think in a different way. Thank you

[@rogerokelley]

My first neurologist was honest. He told me my issues were out of his league and to get a second opinion. I now have one of the best neurologist in the Southeast.👍 In the past I never knew there were different types of neurologists with different specialties. Sounds like I was uneducated about it but at that time “life was simple” and I didn’t keep up with doctors.

[@ParkinsonsWigglesProject]

I had never heard of a movement disorder when I was diagnosed and only thought about the tremor with Parkinson's, had no idea of it's impacts. You're not alone.....and we can't know everything 🙃

[@katmouse9974]

Can you add the Support Group Link please? I was diagnosed a year ago with Lewy Body but now have been switched to Parkinson's with dementia. I would love to find a Group for Parkinson's. Thanks.

[@ParkinsonsWigglesProject]

Here's a few www.apdaparkinson.org/community/?gad_source=1&gclid=Cj0KCQjwsaqzBhDdARIsAK2gqndbS8NI02A_NQvyaDkMvskhaRTvrDVVBXqEELIMhnmwLFEBS2BitbcaAhZJEALw_wcB

[@ParkinsonsWigglesProject]

twitchywoman.com/events/

[@ParkinsonsWigglesProject]

davisphinneyfoundation.org/connect/

[@erictaylor6947]

I was just diagnosed. i have had issues for about 10 years. i am in major pain everyday. I take tramadol to help with pain. Super stiff and get leg cramps so severe that i cant walk for a few days without limping. and i still am trying to get meds worked out. I tried C/L and it made me feel like a zombie and i feel sleep. . i am now on mirapex and so far ok try to work my way up to doctors prescribed amount. Mirapex helped so much but still makes me tired on top of normal fatigue. I was told that i have Parkinson's plus but cant get a real explanation on what that is? i believe he means i have some atypical Parkinson's symptoms. I have action tremor as well. i am more interested in meds and how they work. I appreciate your videos. did you ever take Mirapex?

[@ParkinsonsWigglesProject]

Sorry to hear about your pain and fatigue! I never tried mirapex because it's an agonist and I felt vulnerable to compulsive behaviors and I had such good results from C/L. But I know people take Mirapex and it helps and it's great that it's helping you. I added Amantadine which is supposed to give a boost in energy and extend C/L. Are your cramps from dystonia? Exercise seems to help with fatigue but I am a prolific power napper...some days are worse than others.

[@erictaylor6947]

@@ParkinsonsWigglesProject wow thanks for the response! Really appreciate it. I have watched so many of your videos and they have been a source of comfort. keep it up. Yes i believe my cramps are from dystonia. They suck. I have never thought about a pill that would help with energy. It is so weird to me to have such fatigue, up to recently i have been 100 mph working and still doing a lot of physical work. now if and when i do it, it can wipe me out for days. Do you experience with your PD, what i experience - some days i am good other days i am tanked and have pain and fatigue like no other. What i am learning with PD is that everyday is different. learning to be thankful for both good and bad days but boy do i cherished the good

[@toniwickard2115]

Thank you! This is so helpful as the significant of someone that has been diagnosed with PD AND essential tremor. May i ask how much sinemet u take a day and how often? Is there a max?

[@ParkinsonsWigglesProject]

kzbin.info/www/bejne/d32QaWljmb93n5Y

[@ParkinsonsWigglesProject]

Hi Toni! I shared a link to a video I did, my most watched video, where I go deep into my meds and research about amounts. I take 1 25/100 approximately every 1.5 - 2 hours 🥰

[@stacey1994]

I've watched video this a few times. I'm trying to work out though it wrecks me for an hour after. I'm fine during the workout, but I have symptom overload afterwards and have to ensure I have couch time after a workout. 😵‍💫 Also, making small changes to nutrition. I could eat better but small steps and want to get my exercise working first. Just don't want to change everything at the same time. 😎🌴

[@ParkinsonsWigglesProject]

I have heard from others intense workout sessions or physical activity exacerbates their symptoms for a period of time and they will take an extra 1/2 C/L before the activity. My tremor which is not dominant comes out when I push myself. I am with you on the small changes incrementally....We have a lot to get used to 🥰 Thank you for your comment and watching!! ❤️

[@Here---Now2]

💙

[@shauntaylor-lovelightfamily]

My dog and me go big walks, walking is great

[@ParkinsonsWigglesProject]

Walking is the BEST! I love it and so does my dog 🥰

[@shauntaylor-lovelightfamily]

@@ParkinsonsWigglesProject I think my dog is my fitness trainer 🥰

[@AFAblacksheepAFA]

Since you mentioned stanford. Have you heard about the parkinson gloves from Dr. Peter Tass?

[@ParkinsonsWigglesProject]

I have....I think they stopped that research though. Not 100% but I feel like I remember hearing that somewhere. Thank you for the comment!

[@AFAblacksheepAFA]

i wrote a mail to synergic Med, and they said that the Gloves could be available at around 2025

[@emmadwyer3851]

I was referred to Level Eleven Therapy which was fabulous!

[@ParkinsonsWigglesProject]

Yes! I just looked it up.... physical therapy is so helpful and great to have access to ❤

[@tara6047]

I was told after two days of calling the neurologist on my cell standing in the bathroom at work. "Did you want to talk about a plan now or do you want to make an appointment?"

[@ParkinsonsWigglesProject]

A plan for your diagnosis? Have you been diagnosed?

[@stacey1994]

I've heard you say that you responded to C/L right from the start. Did you respond to C/L with the 1st dose? Or did it take several doses before you responded?

[@ParkinsonsWigglesProject]

I remember it working instantly….like the first dat of taking. 95% sure one pill, 99.9% sure day one. I know other people who it took time to work with. So if that’s you don’t give up! ❤️ Also another friend had serious issues with nausea and tried again a year or so later along with the help of a nutritionist and this solved their nausea issues.

[@stacey1994]

@@ParkinsonsWigglesProject of course I've gone to Dr. Google and KZbin, and many things I've seen say C/L may take time to work, weeks or months, but that wasn't what happened. I noticed with the first dose, after 1.5 hours, that I was able to move better and I could turn my neck and my arm swing came back on my right side. I've only been on levodopa for a few days and it relieved symptoms from the 1st dose. I was so relieved that I could move, and then I had a 5 minute meltdown as the meaning of this relief from this medication set in. 🙃 Thank you for sharing your journey it has helped a lot!! This is all new and I'm working through it.🙃 I thought I'd heard you say it worked right away, but I couldn't find that video again. Thx 👍

[@MikeMercury]

bonjour dear your videos always great

[@ParkinsonsWigglesProject]

Bonjour....Thank you so much Mike! 🥰

[@blazinxracer]

What sort of life or long term policies did you get or wish you would have gotten leading up to or shortly after diagnosis?

[@ParkinsonsWigglesProject]

I am self employed and that's a complicated question. Too complicated for a response here but would make a great video topic for me to do at some point. Thank you for your comment! 🥰

[@AndresChannel494]

The levodopa test is how I got my diagnosis. Within 30 mins of taking it,my stiffness tremor and slow movement improved.

[@ParkinsonsWigglesProject]

I remember C/L working almost instantly for me too! Thank you for sharing 🥰

[@lats5326]

do you have side effects with medication

[@ParkinsonsWigglesProject]

I do indeed, but not all the time.

[@Anthony99355]

Senate passed the Parkinson’s Act bill. I have faith that we are close to finding something to stop the progression and one day a cure. Many other god news with research, I read doctors are working on DBS that will improve gait not just tremor. I know I’ve only had PD for two years but I have faith.

[@ParkinsonsWigglesProject]

I have faith too! Your DBS comment is great to hear because I have more gait issues than tremor....and this is one of the main reasons I have felt DBS isn't a good fit for me....yet. Thank you for sharing ❤️

[@Anthony99355]

@@ParkinsonsWigglesProjectI know you mentioned you have more issues with your gait than tremor, so do I. Do you get cramps ever on your calf? I have for a week now horrible cramps on my right glute, and calf. It’s hard to walk sometimes if I don’t sit down after walking 5 mins. Just wondering if you get that as well. Thanks

[@auroramatera7555]

Hi Jennifer, do you struggle with anxiety ? ❤❤

[@ParkinsonsWigglesProject]

Not really. I have had moments when flying....not a fan of airplanes! And a few moments at concerts but I am good I think at catching my thoughts before they go there if that makes sense? ❤️

[@MIKEPURCELL24]

I like the new glasses 🤓

[@ParkinsonsWigglesProject]

Awe thank you!! 🥰❤️

[@robertstilson2901]

MY NEURO OPINES THAT MY NEUROLICAL DISORDERS ARE "PROBABLY PSYCHOSOMATIC". THAT DIAGNOSIS TEARS AT MY SENSE OF SELF. "HOW CAN I BE TOTALLY OBLIVIOUS TO THE WORKINGS OF MY MIND? AM I INSANE? AM I FAKING?" I ASK MYSELF. I WON'T DETAIL THE EXTENT OF MY NEUROLOGICAL PROBLEMS HERE OTHER THAN TO NOTE THAT WITH EACH PASSING DAY MY SYMPTOMS ARE WORSENING: ATAXIA; PROPIOCEPTION, AND TREMORS MAY NOT BE PARKINSON'S BUT THEY SUFFICE UNTIL PARKINSON'S ARRIVES. I VISIT ANOTHER NEURO IN OCTOBER. MAYBE THEN THE ANSWERS WILL COME. IF THE DIAGNOSIS IS 'PSYCHOSOMATIC', I WILL DEFINITELY SEE A SHRINK BECAUSE, CLEARLY, I AM OUT OF TOUCH WITH REALITY.

[@ParkinsonsWigglesProject]

I am all for getting second opinions and therapy. We all have struggles and many of us have been misdiagnosed....it doesn't mean you are out of touch with reality. But in case you are just a little, I've been there, finding a great therapist that you connect with can be life changing! It was for me 🥰

[@Ray-vl2kt]

Has anyone discussed being nauseous taking carbidopa lebadopa? I was given more carbidopa to stop it. It's working so far.

[@ParkinsonsWigglesProject]

Hello! I know someone who really struggled with nausea in the beginning, but they worked it out. Some people are sensitive to it, others aren't, but there are ways to work that out. Thank you for your comment and sharing your story!

[@haninshuaib7289]

For how long you been having Parkinson’s?

[@ParkinsonsWigglesProject]

I was diagnosed in December 2013.

[@rosemaryclarke6250]

That's mad. A neurologist can make an accurate diagnosis and why would you think your life is over. More positive thinking needed here Id say.

[@ParkinsonsWigglesProject]

To criticize a persons feelings in general, but especially regarding how someone feels about getting a Parkinson's diagnosis and the path they take to get diagnosed is something I aim to never do! My channel is all about being positive, being honest, and being myself 🥰

[@christileneabrahams6416]

Can you share your daily menu with us please

[@ParkinsonsWigglesProject]

Hi Christine! I have thought about doing a few videos of my favorite easy get your vegetables recipes. Maybe a menu video would be good?! Would you be interested in that? 🥰

[@terrident4360]

I'm sure this helped a lot of people Jennifer. Thank you. Just seeing someone several years in who is young and vital will help people realize they can still lead a good happy life. Granted there will be more challenges now ,ore than some people face but less than others. And I must saw the parkinsonCX-KD9SDM6XLB46QR5W

[@terrident4360]

Sorry finger typing issue. I must say the parkinson's community is supportive, loving and a great resource

[@ParkinsonsWigglesProject]

Thank you Terri!! ❤️

[@ParkinsonsWigglesProject]

No worries! It's funny my typos drive me crazy and I would have sent a correction too 🥰 Even though I know it's no big deal 🙃