A bad day with fibromyalgia- What does a flare up feel like?

Hey guys! i was hesitant to upload this video but i think it could be beneficial to do so. It is a hard day where pain level is high, today I've had brain fog and have been really slow, overall very fatigued as well.
Its emotional to go through this, knowing you have little to no control on how you will be feeling tomorrow. Nevertheless, I do know I am not alone in all of this and I know that these bad days DO pass and that tomorrow or the day after it will be better.
Some of the things I do to better my symptoms on days like these:
- Drink plenty of water or if im nauseous then I make sure to eat plenty of soup/tea etc... anything to keep myself sufficiently hydrated.
- Drink my supplements
- Eat light (by this i mean eating clean and only things I know that will not upset my symptoms further- veggies/fruits/lean meats/)
- To make the pain level lower I take warm baths (15 minutes) of epsom salt... its important to note that this makes your muscles relax and should not be done for more than 15 min or else it will be very hard to move after because your muscles will be way too relaxed) - if you don't have a tub in your home then take a bucket with warm water and epsom salt and put your feet in it (its not the same but it does help).
- Doing things at my own pace and being okay with it. (its hard and frustrating I just give in to the pace I can handle on the day I am in and get done as much as I possibly can without overdoing it).
- Drinking activated charcoal (helps with detox and overall intestinal health).
- Understanding that this is only one bad day and that it will get better tomorrow.
- Going to bed early and trying to have a good night sleep (I drink a NATURAL sleeping pill called Super sleep which helps aid with better quality of sleep).
If you have any questions, don't hesitate to ask and i'll get back to you as soon as I can :)
Love,
Liddy

[@gloriaterry333]

When I was diagnosed, I literally told my doctor that I felt like an 80 year old woman. I also used to be very active and people annoy me when they tell me to exercise

[@LiddyAlvarez]

Gloria Terry uhhhh!!! That is the worst! Its so frustrating when people say things as if its so simple. “Just sleep and you’ll feel better” (well we cant because our bodies dont allow us to.) “Just exercise and you’ll feel better” (i have trouble even getting up... imagine trying to do full exercise routine) “Just eat better and you’ll feel better” Its so simple for some people to just assume that this has a simple fix and that we are failing to try in their standards. Very frustrating and extremely ignorant comments

[@kimberlybrown3692]

I felt this in my soul. I was just diagnosed yesterday and my fam said I need to just come out my room and go exercise and I will be fine. Im like how everything hurts I just want them to leave me alone

[@pinkandpink4577]

I've not been diagnosed but I'm pretty sure I have it from doing research (but could possibly be pre-menopausal, which I am taking supplements for). I started saying I feel like and old, decrepit woman about a year ago. I'm not very young, 43 and I'm not old either. I'm trying to avoid pain meds and have found acupuncture can help. But, when I am in pain, it's exhausting, like I've run a marathon. My husband is trying his best to help and he tells me to exercise, but how can I do it when getting dressed is a challenge in itself? It's frustrating and I know I need an actual diagnosis but it's scary to realize something like this. I've always been very healthy up to this point. Ugh.

[@kishanelson26]

It really does help once you get started! I felt a lot better

[@ambycakes]

I exercise and I feel excruciating pain because of it. It's insane how people don't understand that!

[@jenn_jean_kent_artist]

I get it. I totally get it. I was diagnosed with Fibro 2004 and people do not get it. The good days are hard and the hard days are unbearable. Hang in there, sweet girl.

[@78twood]

Jennifer Kent kzbin.info/www/bejne/p3iWfoqKh9KDf5o

[@avalonmist254]

Yes everyday is hard

[@margoaminikus684]

My Sister & I are in SO Much Pain !!! Help Us Please!!!🤟

[@margoaminikus684]

I've had it for 39yrs I Hate Spring!!!🌌

[@bettyansani7512]

79 in 1 month..5out of 6 days wanting to stay under covers with heating pads on legs and back...neuropathy for lots of years..just had back mri today and epidural soon to relieve back issues 🙃

[@breannaparson2380]

Hey I'm 37 I've suffered from fibromyalgia since I was 28. The best way I can explain how I feel daily, it's like having the the body aches an pain from having the flu when you don't want to move . Like every ounce of energy and like you've over used or pulled every single muscle in your body. But every day 24/7..I cannot stand for long periods of time also if I'm grocery shopping I cannot walk the store ...on my good days I can stay awake, do about 30 minutes of house work...this disease is like being trapped inside yourself. You have zero control . It's like your life is being sucked out of you..that's the best way I can explain it.

[@LiddyAlvarez]

Renee Rock wow, i can totally relate... its such a frustrating illness. I truly hope you can find some relief ❤️ keep fighting my fellow fibro warrior, you are strong. 💪🏻

[@dee4realsmith884]

You totally explained it

[@AlamKhan-nx9rn]

Do you have pain in your chest

[@Luv2782]

Yep you said it perfectly. I’m around the same age as well. Am just now being diagnosed, but I think I’ve had it much longer. Haven’t been able to work in a long time. I have more bad days than good. But gotta keep going! Thanks for sharing.

[@karagraham9764]

Good description! I have tried using a massager on my trigger points and reference spots. It’s teaching my muscles to relax again, originating from brain space and body feedback from the body. Worth a try! I spent hours doing it but the relief and muscle reset is worth it

[@AndreaJSeverson]

The invisible aspect of fibro, and the lack of awareness/understanding from people who don't have it, is honestly the hardest part of dealing with this condition. I've learned to handle the pain and fatigue and brain fog, but having to constantly explain how I feel and why I feel bad just makes it so frustrating. Thanks for sharing this. :) xx

[@LiddyAlvarez]

JeSuisJusteMoi i completely agree with you, the lack of understanding of this illness is one of the hardest aspects of it. Im glad that sharing has made a positive impact♥️ thanks for taking the time to comment :)

[@HeyJudie]

Agreed. Yesterday I was having difficulties opening the door to the DMV and had to push the button. I got weird looks and people were frustrated that I was blocking the doorway. It was so shitty to be in so much pain that it disabled me, but no one can see it and nobody offers help or understanding. Even my friends and family don't understand. My parents don't think Fibromyalgia is real, and they're upset that I'm on medication for it. Last night I fell down the stairs a little cause I exerted my muscles so much that they were weak and my legs gave out.

[@imonlysayin]

@@HeyJudie I get off balance, and my kids will see me start to lean before i realise and they will gently push me back to centre. I have fallen on shelves in the shops, bumped into parked cars while walking, almost fallen on top of little ones at the shops and bump into things that have nearly left me knocked clean out. When i take the migraine medication i dont leave the house or drive..as it disrupts the signal to the brain to kill the pain, and i look like im drunk sometimes from no balance. But this has happened after 27 years of cfs/fibro. I understand completely what your saying. I called the Ambulance once due to a severe migraine, and i got judged coz i couldnt take the complete tablet for it, coz my brain wouldnt function well enough to allow me to understand that i needed more medication, I couldnt see properly, i was vomiting, and in immense pain...i was writhing in pain squeezing my head, and the Ambo complained that i should know its not going to work if i only take half, which nomally works....I told him he wasnt helping me, as i felt quite vulnerable and afraid. I told him i cant walk properly, coz my muscles had shut down, and he just said yes you can...they basically carried my by my forearms to the Ambulance and i shook all the way, trembling trying to walk. My husband couldnt believe what he was seeing and hearing. It was like i should be an actress and win an award, coz he just didnt believe me. You have to take the moral highground to survive.

[@mcren6781]

Its bullshit that we still live in a world that has no sympathy for auto-immune diseases.

[@leela1970]

I understand completely ... I live the same thing every day

[@94blessed]

This condition will put our life on hold I cry a lot as well I am 66 years old and I was walking 🚶 2miles everyday now I cannot walk to miles anymore and I live to walk 😥😥😥heartfelt for all of us 🥰

[@ElleMaree731]

Thank you so much for this video. I feel so alone because of lack of understanding with this disease. I’m so tired of hearing you don’t look sick😫

[@LiddyAlvarez]

Le-Teisha Robinson i totally understand. The “you dont look sick” phrase is sickening. Im sorry you are going this tough illness as well. Wishing you many great days you strong beautiful soul❤️

[@CaroleMinxBlanton]

Omg yes! You don't look sick. I hate that one. I've been dx'd with fibro and CFS since 2000. I'm on Lyrica, which i don't recommend. It's harder than opiates to get off. This yr has been aweful. Limited Energy is understated. When it's a good day i try to walk or stretch. If it's a bad day. I'm giving in to it. Try and rest. The simple things area a pain. Ppl don't get this. I wish they could find a cure for this. I was 36 when i was dx'd with it. I worked in ICU, i was busy, had a life, two teens to take care of. Now, 20 yrs later... I'm going to try more natural things for sleep and pain. I'm tired of being tied down and in a cage. I was in great shape before I got this. I just want a life back. It's everything I have to do what i must. I've got to move. And where in moving, it's helps up there. Less humidity and higher in altitude help. Try and study for your Extra License I'm Ham Radio with this stuff. I hope you get better. Be blessed and thanks!!!

[@sumayakeraan2742]

Omw. Its like I'm listening to myself, exactly what I go through everyday. I'm a sufferer of both RA and Fibromyalgia. I truly feel for her. I've been in and out of hospital for ten years since diagnosis and yes, I'm still struggling. Some days are better than others but everyday is a battle. I have started a Fibromyalgia Awareness Program with the help of The Arthritis Foundation of SA. I attend support groups and workshops so to have a better understanding about Fibromyalgia. It is indeed a misunderstood disease. Only ppl with fibromyalgia understands what that pain is. Thx for the upload

[@LiddyAlvarez]

sumaya keraan so glad that this video was of some help, even if its just being able to relate. I totally understand the pain, know you are not alone❤️

[@bantu2819]

Hi Sumaya. Are you South African? I’m South African 25 years old I’ve just been diagnosed with fibromyalgia after suffering for 10 years. I don’t know many people either this illness where I’m from. I’d be interested in reaching out if there was a community of people who deal with this syndrome

[@sumayakeraan2742]

@@bantu2819. Yes I'm actually having an outing for the seniors on 14/3 to Urban Park. Will have a talk on osteoarthritis as well as fibromyalgia. Are u on whatsapp

[@chewygal69]

I also have fibromyalgia and it is so difficult to explain what it is like to other people.

[@LiddyAlvarez]

Michelle Smith i agree with you 100%.. its very hard to explain to someone who does not have it, specially when you are young and people just assume that it has to be in your head

[@imonlysayin]

Please try b3 and resveratrol together,,,,,,blessed be sister.

[@angiedasner]

I always tell people it's like you are getting a bad flu, your entire body aches and it's hard to move. But then they say well you don't look sick. So frustrating.

[@rhondabeckman9380]

Tell them to Google it ! That's what I do !😊

[@mollypolly909]

U think they makinv it up

[@selen6215]

I have fibro too and it comforts me to know that I am not alone so thank you for this video💙

[@LiddyAlvarez]

selen so glad it helped in some way❤️ sending you love my fellow fibro warrior❤️

[@MsAmo626]

I have not yet been diagnosed but all my test are normal, MRI normal, CT scan normal. Everything normal. Today is bad day for me and watching your video made me feel less alone. No one understands and I feel like such a burden. I try to complain as little as possible and isolate myself. On my good days (meaning not as much pain, because I always have pain) I'm happy. These bad days get me so down. I'm so sick and tired or being sick and tired. I hope I can find answers and relief soon. Watching you struggle to remember what you were going to say next was like watching myself in a mirror.

[@LiddyAlvarez]

MsAmo626 hii! I am so sorry that you have yet to be diagnosed. Usually all those tests you mentioned come back negative and normal. To get diagnosed you must go to a rheumatologist that specializes in autoimmune diseases and you must get an autoimmune blood panel done to verify that you dont have another autoimmune disease since fibromyalgia is usually symptom to other autoimmune diseases or shares a lot of similar symptoms (such as lupus which shares a lot of similar symptoms). I will leave you my email just in case you have any questions i can help with [e-mail] And my instagram is: @liddy_alvarez On my instagram i post regularly about positivity, tips and other relevant information if you are interested. Sending you lots of love through this hard time and know you are most definitely not alone.

[@Koselill]

I agree. I've struggled for years and always told by my mom to suppress it and that I was lazy and overreacting. It's only gotten worse since I was young and all my doctors have been dismissive.

[@LiddyAlvarez]

Koselill so sorry you are going through this still. Its emotionally very devastating not to be heard or understood. I truly hope you find a doctor that listens and that you can get the proper treatment you deserve❤️

[@imonlysayin]

I have it, cfs was first...28 yrs later, my hair is gone and im still in pain with no energy and now i cant find the words that fit the pictures in my brain..having a shower, im over....doing dishes, immense pain, im done...hanging clothes on the line,,,no way hosay.....on a really good day maybe...but then those clothes will stay on the line for days. Watching a complete movie, cant do it. Being upright for more than 6 hours, im in immense pain. Go camping, never will be able to do it again, as the temperature must be regulated or i have a coughing fit and pain sets in. I never know when my body is tender to touch until it happens and then i yell in pain. When the eyes go blurry i walk around looking like im heavily stoned. and they will just leak tears. My house is mainly dark to avoid migraines from light sources. I constantly wear sunglasses, at present i have about 15 pairs, and constantly hide under wide brim hats to shade from light. Noise hurts my ears, physically hurts...and i never know if i am strong enough from day to day to even carry a plate with dinner on it. Other days i can cut down a tree. But then just a simple walk will put me in bed for days. I constantly need heat for pain. I sleep on an electric blanket 24/7, 365,...yup no camping for me anymore,,,,hotels with air con and king size beds with light switch dimmers and remotes for everything...even remote curtains with controls....yep i make what i can work for me, cause im really glad i have what i do have to use, and when i get the opportunity to bask in pain free days, i make the most. So i dont have hair, i rock a bald head and i love it...im glad i can see, im glad i can hear, im glad i can still walk and talk. The game aint over yet! Its actually turned me into a person that i like, spiritually. It has taught me a lot about me and the world. It has opened my eyes just when i thought i could see no end to the illness. The Ilness does not define me, it has expanded me. It made me look deeply at myself. Im still a work in progress. I have changed for the better. Even when im in tears from the pain and cant remember what i was saying or doing,,,, I can honestly say it has changed me into a person who actually likes herself. Warts and all. Fibro and all. Goodluck on your journey and may you receive many blessings from the universe. Blessed Be Sister.

[@LiddyAlvarez]

imonlysayin thank you so much for taking the time to write your story and i am glad to know that you have found the good within the illness in finding yourself and becoming a better person. I truly hope i can become a better person too with time and grow despite of all the uncomfortable symptoms this illness brings. You are an inspiration and i wish you nothing but the best. Blessings my fellow warrior♥️♥️

[@karagraham9764]

I started doing trauma recovery work and it has really helped. Definitely look into it. Turns out there is a link between fibro and trauma

[@casskicker6824]

I can't go camping anymore either and I used to go every year. This sucks!

[@joshwhitney7463]

You need thyroid hormone t3 irregardless of what doctors say. Fibromyalgia can easily be caused bye thyroid hormone resistance. Especially because your hair loss that's 100 % thyroid issue.

[@MissChrissyM1]

imonlysayin hi. Are you male or female ? Can you call me ? I hv same symptoms.

[@smdavis3388]

Great video!! I was diagnosed 13 yrs ago!. Also playing into the Fatigue is how emotionally and physically draining it is to be in constant pain. As a result of the limitations from pain and Fatigue it causes me to go into depression from feeling inadequate. This then causes my anxiety to skyrocket in becoming overwhelmed in what needs to be done compared to what I am able to do which then brings on the fear of failure in my job, being a mom, a wife..etc. I care for the mental impacts through therapy and meds but something for those trying to learn about Fibro to keep in mind.

[@LiddyAlvarez]

SM Davis im glad you liked it ❤️❤️ nice to meet you fellow fibro warrior♥️😍

[@ja398]

hi Liddy, thank you for explaining so well exactly what this illness feels like. You really made me want to comment which is so dreadful for me to ever think of doing. im much older than you however when this thing hit me I was also in the best shape of my life. I worked a very stressful job (that I loved); had a very active social life, cooked dinner for my adult sons, then went dancing (Salsa very hard Salsa) for 3-4 hours straight 3 to 4 days per week. Then Fibromyalgia hit me like being hit by a truck. Everything stopped for me. I am someone else now. Even when I have a good day, and I do grocery shopping for example, that's all I could do and I have to lie down. I had to take an early retirement because working was impossible, in the end the only thing left is depression. Thank you dear, I feel you.

[@LiddyAlvarez]

Jeanne Alvarez thank you for taking the time to write❤️ I absolutely can relate to your story... its so similar to mine in so many ways. This illness really makes you stop in your tracks and you don’t have a choice. I’m so sorry you have to endure the hard symptoms that come with this disease, just know you are not alone through it and we are here to support one another. This illness is so misunderstood and looked down upon because we do not look sick and thats enough for the judgement to start. Wishing you health and happiness my fellow fibro warrior. Lots of love ❤️

[@missmindyourbusiness3975]

I have a husband who I suspect is going through this. I feel so sad cause I can’t help. I suspect that if indeed it is fibro then he’ll eventually have to give up his high stress high paying job 😔 that will just crush him. He says all he wants is to feel better. 😔

[@pamelasmith2625]

Hi Ja, I too was diagnosed 25 years ago. It took me 10 years of real hell before I got a diagnose. My own doctor sent me to see a psychiatrist as he said I was too obsessed with my health. Every day is a constant struggle. Nights are an absolute nightmare of trying to find a comfortable way to sleep. From bed to chair to couch. The constant exhaustion is just so hard to explain to anyone who hasn’t experienced it. My friends say, Oh, I feel tired as well. This is not like being tired, this exhaustion consumes your whole body. Now, in my mid seventies, it is effecting my legs and making it difficult to walk. That used to be my favorite exercise. I try to swim lengths if the pool 3 - 4 times a week. The water gives me a little relief and a short break from the pain as it is very gentle on my body. It is so difficult as you can’t look forward to anything, or plan get always. I try to surround myself with nice things that make me happy and sooth me and stay around from negative people. Love and hugs to you and everyone else out there with this horrendous illness. ❤️❤️❤️Pam

[@susanfalcon8221]

I get it, I haven't been diagnosed but I'm sitting here in my car in front of Marshalls I've been sitting here for about 10 minutes trying to get up the energy to get out of the car and go in and return some items when I just want to get back into bed and go to sleep everything hurts today.

[@LiddyAlvarez]

Susan Falcon oh Susan im so sorry you are going through this. Reading on what you were doing in the car makes me think of all the times i have been in your same spot. Its frustrating, sometimes i cry because i feel like i just have no control on my body. Its such a vulnerable place to be and its hard for people who dont have it to understand the effort it takes sometimes to do very little simple tasks. Im hoping you are having a better day today. Sending you so much love and wishing you many great days to come💕 you are so so strong, thank you for sharing your experience with me

[@caragunnels726]

I feel like the oldest 34 year old ever and i hate it 👎I have like every symptom there is to have. No escaping it😣

[@LiddyAlvarez]

Cara Gunnels i completely understand what you mean. Im 26 and i feel like im in the body of an 80 year old. Its ridiculous

[@LiddyAlvarez]

Toccoah Lynn i do! Restless leg syndrome and lots of swelling. I upload updates of my symptoms on my instagram if you wanna see pictures of the swelling (thats the one i uploaded most recently). My username is liddy_alvarez ❤️

[@karagraham9764]

I have always felt like my body is older then it is, but am glad there is an actual reason. 👍

[@LiddyAlvarez]

California Cobra totally get that :(

[@frankiekendall3420]

I'm 19 and in the process of getting diagnosed. Some days I feel about 104 and some days it is bearable and I feel like I could conquer the world.

[@debcarrothers2923]

Hi Liddy thank you for this video. I sympathize and empathize with you being a fellow fibromyalgia sufferer myself. I was diagnosed 18 years ago and my life has never been the same. My flareups lately have been frequent and through the roof. God if only they could find a cure. The way I can describe my pain when it's at it's worse is excruciating. My pain of course is everywhere but I find the worst pain that affects the most is in my upper back, shoulders and neck. The way I would describe it is...it feels like your muscles are tight like a band being stretched to its limit and that it's going to be ripped off your bones. My flare ups are now lasting weeks at a time. If I wake up and my pain level is at a 5...I feel like I'm having a good day. After having this for 18 years the pain is really starting to wear me down and the only thing that keeps me going is that...maybe tomorrow will be better. And yes it's not only the pain but the depression and the brain fog the lack of energy and sleep and everything else that goes along with fibromyalgia that sucks. I'm trying to get through this but I really have to be honest to people that don't understand this disease...it's like a living hell. I have to talk myself out of driving to the nearest bridge and jumping, but there may come a day that I talk myself into doing it. There I said it...its true people that's just how bad this condition is. Almost every person with it has thought the same thing...but are afraid to admit it. God bless everyone with this and try to stay strong.

[@LiddyAlvarez]

Deb Carrothers wow thank you for sharing your story with me. Im so sorry you are having such a rough time with pain, i totally understand how hard it is. Sending you love and wishing you better days ❤️ keep fighting💪🏻💪🏻💪🏻

[@Aruphonse5girl]

You did a great job explaining what it is like. As you were tearing up, i was too, because i am dealing with the exact same thing and I'm only 24. It started when I was 21 out the blue with extreme pain and I still feel like I should be 21. its been very bad the last few years and my doctors don't want to help me. It was so bad I had to quite classes my senior year of college. I had jobs lined up and everything and Fibro just came into my life and killed that. Im an extremely ambitious person and not being able to do everything i use to or being able to do just little things kills me. THank you for sharing this video and I will definetly share this on my social media because people need to know and understand.

[@LiddyAlvarez]

DuckPrincess513 im so sorry you have to go through this too, i totally understand the frustration you have with wanting to achieve things and not being able to. Thank you for your support❤️ Sending you love and wishing you many pain free days. You are a warrior and so so strong

[@somcana]

I can even recognize the sighing

[@eliseives345]

Right! My mum lives with me now because my dad passed and she'll know I'm having a bad day without me saying or showing anything but because I'm sighing WAY more than normal and WAY now deeply ... Then she'll talk to me, realise I'm in a fog, and know.

[@juliepalubicki9141]

Thanks for sharing I have it too

[@annarehbinder7540]

my husband has learned to recognize my breathing how bad it is

[@marcopaonessa8193]

Thank you for sharing this. I thought I was alone with my pain that nobody understood even the doctors. I’m with you. Acupunture,chiropractor,breathing meditation helped me in somehow to release the muscle pain and headaches.Tomorrow it will be better. A big hug Marco

[@LiddyAlvarez]

Marco Paonessa you are definitely not alone my friend. Sending you love and support through this difficult and often misunderstood illness.

[@meiliszetzki6057]

Yes not even doctor can diagnose, I went to all the specialist and they found nothing, finnally went to Orthopady and doing Ostheopathy treatment for my muscle tense, then finally the doctor gave me transfer letter with thys symptomp to Rheumatology to have check. Anyway lab/ Radiology cannot prove anything because this is invisible and I am suffering, When the pain comes up and also short breathe and it make me anxiety more and more and more and become like depression, i am scare if its cant cure 😢 I used an active person but now I cant even cheers up anymore and nothing is interesting for me since I have this symptomp.

[@paultierney6742]

Thank you from a guy suffering daily in England, Paul x " In the midst of winter, I found there was, within me, an invincible summer." Albert Camus

[@LiddyAlvarez]

Paul Tierney wishing you have many days of feeling better with no flare up in sight my dear fibro warrior! Thank you for taking the time to write, I truly know how hard this illness can be.

[@baddiekekelogan1040]

I am 34 and just got diagnosed with Fibro.. I have been in pain literally for 2 whole weeks with no relief.. I can barely take a walk outside to the mailbox.. My body hurts all over and my skin is so tender I cant even recieve hugs from my children.. I cry nonstop because the pain is unbearable... I feel for everyone going through the struggles of this..

[@LiddyAlvarez]

Dats Her Logan this message made my heart sink. Im so sorry you are in so much pain. I just made a video where i talk about natural ways i use to deal with pain and lower its intensity. I hope you can watch it and that it gives you at least something you can do to make your pain more bearable. My heart is with you, you are not alone. Remember you are strong. Sending you love my fellow fibro warrior ❤️

[@lorischneider7100]

I feel terrible for you and your pain. I know your comment is 5 years old, but I have had it for many years. I hope you have found relief in the last 5 years.💜

[@loisoleary5217]

Hi Liddy, I wish I was close enough to give you a hug. I'm old enough to be your grandmother, and I have had fibro for 22 years. When I have a flare it feels like I'm getting the flu. My muscles ache so much all over, but without the fever and nausea. I was watching you on the video, and I am sitting here in pain and very fatigued. I got up at 6am to get my granddaughter off to school. It's 10:30am and I'm about to go back to bed. People who do not have fibro do not understand how different the inside is from the outside. Some days are better than others but I have a 5-7 pain level at all times on the good days. On a bad day I am 9-10+. You get used to it after you live with it so long. This winter, Jan. 2019, has been harder on me than usual. My pain level is up more than down. A warm shower and some soothing music helps for a couple hours, if lucky. I Pray that they can find something that cures this or makes it more tolerable. Some medications used for nerve pain doesn't seem to help me. Well hang in there. I will be looking for more videos from you on how you feel on the tube.

[@LiddyAlvarez]

Lois OLeary thank you sweet Lois for taking the time to write. I’m so sorry you have to go through this difficult illness as well❤️ but you are a warrior to have had the strength to deal with everything for so many years. I truly get your pain and wish you nothing but health and love. Only we can understand the pain we go through every single day.

[@karagraham9764]

Lois OLeary Do look into trauma recovery work. It has helped me enormously

[@karagraham9764]

I learned recently that muscle knots secrete toxins trapped in there and the toxins create the fatigue. Does that make sense?

[@annarehbinder7540]

@@karagraham9764 it’s actually brain inflammation

[@karagraham9764]

@@annarehbinder7540 Brain inflammation is likely part of it but most people with it have some kind of extreme trauma experience. Abuse, bad car accident, surgery at a young age, a very bad fall involving concrete as a child that causes rewiring of the nervous system along with scar tissue that keeps the trigger points stuck. That being said, I am using a massager on my trigger points and the referred points and it’s causing major changes as scar tissue gets broken up. Worth a try. Might involve hours of use to retrain muscles to relax

[@sheilameador2755]

Crying watching you because I feel your pain literally I have fibromyalgia too...today is a bad day but tomorrow will be better....I like that...u posted this on my birthday so I'm gonna take that as a sign I should subscribe 💗💗💗💗 keep your head up...soft hugs

[@LiddyAlvarez]

Sheila Meador you are so sweet! Literally teared up by reading your message. I totally can relate.. and i get emotional knowing someone else is going through this. Soft hugs my fellow fibro warrior! Wishing you so so many pain free days ahead... welcome to my small youtube family❤️❤️❤️

[@karinafinearty9769]

I can so relate. I feel like others think that we exaggerate our symptoms. Thanks for your support to us and for getting some awareness out there. I hope you are having more good days now. Thank you Liddy. 🙏 🌺 🌸 🌹

[@LiddyAlvarez]

Karina Finearty you are so so right.. so many people just dont get it to be honest. Its hard to understand how a 27 year old woman cant get out of bed (whatever the reason might be), people cant wrap their head around that. Im glad the videos help in some way💕 that makes me happy. Hoping you are having more good days too💕💕💕 Sending you so much love❤️

[@RosalindPeters]

Thank you for being brave and putting this in its entirety online. I was looking for videos because I’m in a very bad flare today and desperately looking for help and comfort. Thank you for reminding me we are not alone. May you be happy, may you be peaceful, may you be at ease, and AWAP soon xxx

[@LiddyAlvarez]

Rosalind Pearl so happy to hear that the video could create a positive impact in you. You are most definitely not alone♥️ remember you are strong and it will pass. Tomorrow will be better♥️ sending you gentle hugs!

[@elissetteg58]

My daily motto regardless of how I wake up feeling is : “Thank you Lord for another day 🙏” “This can I can only do what I can with what I have” 😊 don’t overdue it when you have a good day ❤️🙏

[@LiddyAlvarez]

Eye On The Sky so so true! I like your daily motto❤️

[@MissChrissyM1]

Eye On The Sky is God still real ? I’ve veered off track

[@EllieAMorgan]

I was diagnosed with fibromyalgia 8 weeks ago, I have had the symptoms and they have gradually got worse over the last year or so. Today has been a really bad day for me and I’ve hardly gotten out of bed. I came across this video and it’s honestly helped me so much!! Seeing that’s there’s others who feel the same, just knowing I’m not alone has boosted my mood slightly. Thank you

[@LiddyAlvarez]

ItsEllieHere you are so sweet, im so happy that this video could help in some way❤️ I’m sorry to hear you are feeling in a lot of pain and are having such a tough time. Just know you are definitely not alone through any of this. Sending you love and all of the well wishes possible❤️❤️❤️

[@leighmartin5293]

Sending much solace and love to you today and I continue to pray for the end of all suffering. 🙏🕉️

[@LiddyAlvarez]

Leigh Martin thank you Leigh!! May all that love and blessings you wish on me and others gets multiplied in your own life. Best wishes my kind friend!

[@imaniantoinette2015]

Sucks to know so many ppl suffer from this, but it's refreshing to have someone explain what those with fibro go thru. This video was more encouraging than you can imagine. Thank you for being open. This is literally how I've been feeling for the past 1.5 months. Slowly getting my energy back, but it's like this flare just wont end! Again, thank you for sharing and I'm glad I found your channel.

[@LiddyAlvarez]

imaniantoinette2015 wow thank you so much for taking the time to write❤️ i truly hope you start feeling better and i wish for you many many more good days! Sending you love my fellow fibro warrior

[@brooke5020]

I completely understand. I'm in the process of finally getting diagnosed. I'm currently putting my hair in a ponytail and had to stop because my arm started to hurt that bad. And today is a good day.

[@LiddyAlvarez]

brooke wilson totally can relate to that.. so many times i’ve had to take naps even after little tasks. Sending you love my fellow fibro warrior.❤️

[@arefashionista]

Can you hold your phone? It’s so painful 😢

[@catherinerainville4232]

Thank you for sharing this. My daughter was diagnosed last year... she is only 15! She says that she feels like she is trapped in an old mans body. She just had a flare this week and was on the couch all day and had to miss school. So much pain and fatigue. We are just praying that a cure is found or that God heals her. She feels very much alone in her daily struggles with the constant pain and classmates not understanding or even believing in fibromyalgia. I am going to show this to her so she will know that she isn’t alone.

[@LiddyAlvarez]

catherine rainville im so sorry that your daughter has to go through this at such a young age. Im happy that this video can help her feel less alone through this process though❤️ she is definitely not alone through this and if there is anything i can help with dont hesitate to write to me. Im so glad she has you to support her, not everyone is as lucky to have their mother understand and support them through this illness. I have my mom who understands and supports me through it and its the only person i truly need to push me to go on . Sending your family so much love. ❤️

[@alliem1517]

Thank you for this! It truly helps just hearing someone else speak my thoughts; especially about fatigue and the muscle pain and weakness. I’m a University student so I also relate to missing school. My Fibro has definitely impacted my academic performance. Keep fighting, we are strong.

[@LiddyAlvarez]

So so nice knowing that we are not alone through it all❤️ wishing you the best in school and with your symptoms! You keep fighting too, we DEFINITELY are strong❤️❤️❤️

[@melaniefeeney8743]

Thank you so much for filming this. It's such a difficult illness and sometimes I feel so alone. We need to know we are not alone and that we can only go as fast as the slowest parts of us can go.

[@LiddyAlvarez]

Melanie Feeney so glad that the video served you well❤️❤️ thats exactly why i made it so that others dealing with this dont feel so alone. Sending you love and hang in there fellow fibro warrior, you got this!

[@elizabethostenberg6007]

Yes, I have found I can only do mild to moderate exercise. The more muscle mass, the more pain. I have had to find a happy medium. Too much exercise can trigger a flare up, too much emotional stress can trigger a flare up. Thank you so much for sharing.

[@LiddyAlvarez]

Elizabeth Ostenberg definitely can relate, specially now that i work out often.

[@CGH250]

Libby - I’m so sorry. I also have fbmy and I completely understand what you’re going through. I always tell people it feels like the horrible aches and pains and fatigue of the flu but it’s 24/7. I always go back to bed by afternoon for a few hours. I was diagnosed after age 40 and it’s been so tough. I can’t imagine being so young and going through it. Sending good thoughts and prayers your way. 🙏🥰👍

[@LiddyAlvarez]

Cheryl Hester thank you so much for your kind words❤️❤️ so sorry you have to go through this as well! Hoping you have better days. God bless❤️

[@marykrema427]

Thank you so much Libby for this. I know it took a lot out of you. I have had fibro for half my life. I'm 75. No one in my family understands but reading this and the comments of others has helped immensely. ❤

[@ro4944]

I absolutely understand how you feel. I to suffer from Fibromyalgia in combination with rheumatoid arthritis. I'm in pain every day. The LDN has helped, but I still have my days. Just don't let it hold you back. I'm a mom to a beautiful three year old, a full time student, and a teacher. I have to work to make a living and a baby to take care of. I just tell it, today I'm taking control of my body. Force my self up, short of breath and all and move forward. I'll pay for it.... But the smile on my son's face and his laughter is worth every ache. I refuse to let my life pass me by in a bed or wake up one day and my baby boy be a man and I missed it. We are fighters. You are stronger than you know. Praying helps me I will pray for you. Oxoxox

[@LiddyAlvarez]

Rosselyn Foster you are so incredibly strong and are so right to live the life YOU want and not the life your body would want you to live. Its so hard sometimes to get through the bad days, LDN has definitely helped but the bad days are still hard to deal with.. i just tell myself to take one day at a time and keep going. You are not alone♥️ so happy to have you as part of my small youtube family ♥️♥️ sending you love!

[@ina1815]

So there’s meds that actually help with the pain?

[@jessixioma1]

What is LDN

[@hadleymosby3078]

thank you so much for making this video. i’m 18 with suspected fibromyalgia and this helps a lot. no one my age understands what exactly I am going through. going to high school right now has become extremely difficult. thanks again for sharing your story and experiences.

[@LiddyAlvarez]

Hadley Mosby you’re welcome♥️♥️♥️ this is why i do these videos and knowing that it was of some help really pushes me to keep posting. I wish you all the very best and i know how hard this illness can get so know you are not alone and there are many people in the world dealing with the same things we are. Keep strong my fellow fibro warrior♥️

[@debbiewoodard6258]

Thank you for sharing your personal story with the rest of us. It is important to show the world the tragic face of this illness. Those of us who have fibromyalgia, understand what you are going through. Keep up the good fight.

[@LiddyAlvarez]

debbie woodard ❤️

[@ms.bornagain57]

I have fms was diagnosed over 14 years ago but suffered many years before that. I have almost every comorbidity that comes with it. I just want to pray for everyone here who suffers from this disease , I pray for miracles to occur in eveybody, complete healing by the hand of Jesus. Amen

[@CJ-sl8lq]

Thank You so much. You may never know just how important this video is to me and the lady I shared it with but OMG Thank You again. I need to learn so much more about this illness. Watching you was like seeing myself when those around me said I was just depressed and feeling sorry for myself...Oh Dear I am a bit overwelmed. God Bless You Liddy Alvarez

[@LiddyAlvarez]

CJ Starling you are so so sweet! Im so incredibly happy this video had such an impact.. its more than i could have ever imagined. This is why i make videos in the first place. So so happy to meet another fellow fibro warrior, always remember you are never alone! They judge us because they do not understand, which is why i want to build a community of people that understand and know what it is like. Sending you love and wishing you many many great days ahead❤️❤️❤️ its okay to feel overwhelmed but never let anyone say you are feeling sorry for yourself. We do the best we can and thats enough ❤️❤️

[@sixtysix2632]

Hi Liddy, I wish you good health. May God make it easy for you and all who are suffering from fibromyalgia Aameen..... I do understand what your going through. I myself have it too. And yeah, people don't seem to understand. I noticed the short memory loss. I get it too. The worse part is when waking up in the morning and your head feels extremely heavy. Then you know how your day will be. Thanks for sharing your day with us. All the best to you.

[@LiddyAlvarez]

Sixty Six thank you for your well wishes❤️ wishing you nothing but the same! So sorry you have to go through this illness as well but know you are not alone and you are definitely strong enough to get through those bad days, just know that a better day is coming soon. Wishing you health and plenty of amazing pain free days. All the best to you too!

[@lilywhytewallis6897]

Gentle hugs to you... I am a 33yr Fibro Survivor.... (I am now 64yrs old... so it has been a very long haul for me!).... Just hang in there... do what you feel is right... exercise is for the fit and the healthy.... you do not have to be what others want you to be...

[@LiddyAlvarez]

Lilywhyte Wallis gentle hugs❤️❤️❤️ i absolutely agree :) living my life at my own pace, slow but steady wins the race. Sending you love fellow fibro warrior!

[@lauramccurtain1657]

I think when people say get up go for a walk, do some exercise, I have neuropathy, Fibromyalgia, lots of disc issues in my back, brain surgery, blah blah blah, everyone has their own suitcases, but the healthy do not understand why I can not get off the couch. So we do not discuss anything anymore. It does not exist for them. I still hurt. Inside and out.

[@lilywhytewallis6897]

@@lauramccurtain1657 - take heart! Live by your own standards. Gentle hugs!

[@Pedro8k]

Feels like the extreme pain and fatigue of walking 10k or in a gym for two hours crossed with having the flu that is the best way I can describe a flare but everyone is different and varies person to person

[@LiddyAlvarez]

Peter Walker agree!

[@ellydi13]

Thank you so much for making this video. I recently was told by my doctor that I likely have chronic fatigue and some friends and family suggested that I look into fibromyalgia as well and I'm glad I did. Everything you said makes so much sense to me and makes me feel so validated in what I have been feeling. I appreciate this so much

[@LiddyAlvarez]

Lydia Williams hii❤️ thank you so much for taking the time to write! It gives me so much purpose knowing that this video was of some help to you. I am wishing you many great days pain free. I am making a commitment to post videos at least weekly but striving for everyday at least for a couple months. I just posted two new videos: one about diet and the other about pain management. If you have any particular suggestion as to what you would want to see for my next videos don’t hesitate to write to me about it. Here is my email ([e-mail]) Or you can also private message me through my instagram (liddy_alvarez) if you want to have a conversation about anything in particular. Love, Liddy

[@internationalmatt1]

Watching this video helped me because I have fatigue to the point that it is interfering with my work helping refugees. Just today I missed church because even after sleeping 10 hours last night, I was to wiped out to go anywhere. I hope I can try LDN. I will see my GP again Friday.

[@LiddyAlvarez]

internationalmatt1 so glad the video helped in some way. I totally get that horrible fatigue and sleeping but not resting wipe out feeling. Hope you can try LDN. I replied to you in another comment you left about where to get LDN and who prescribes it :) hope it helps

[@shirleysinger839]

Thank you for sharing. I was DXed 31 years ago, it really robs you of energy and deals out so many limitations!! Blessings to you!!

[@LiddyAlvarez]

Shirley Singer it truly does rob you of all your energy... its very frustrating at times. Blessings to you too❤️ hoping you have many many good days

[@attentivechair3248]

Thank you so much, I saw myself in you 100% and it made me cry to hear someone understands

[@LiddyAlvarez]

Active Nihilist sending you so much love💕

[@karinaalmuls59]

I have fibromyalgia, rheumatoid arthritis and dermatomyocitis. I end up paying for every outing with a flare, even though I'm in a wheelchair. It's frustrating. I used to be very active, now a 5 yard hobble makes me feel as if I've just done a 5 mile run. Luckily, at 64, my family is grown and they help me a lot.

[@thankfultolive2819]

Thank you for being so brave. I have a cycling with Fibromyalgia channel and I don't usually blog when I'm having a bad day. I need to be brave like you and share that side of my life as well. I hope you are feeling better. Hugs

[@LiddyAlvarez]

Thankful to Live! Thank you for taking the time to write❤️ honestly it was hard to decide whether or not to put this out there but i am glad it did some good :) i have my ups and downs like we all do but i am better thank you♥️♥️ hoping you are well too. Lots of love and hang in there, you’re a warrior💪🏻

[@user-fx3ms7iv6y]

Omg i’m crying during this video.. this is SO relatable for me.. im 20 year old and i have had symptoms for 10+ years and this diagnose since about 3 years.. i know it’s hard...😰❤️

[@LiddyAlvarez]

//## this is why i do what i do❤️ thank you so much for taking the time to write. Im so sorry you have to go through this very difficult illness but i am happy to know that this video could be of some sort of help by making you feel less alone in such a misunderstood illness. Wishing you all the very best my dear, remember you are incredibly strong and you are not alone through this.❤️❤️❤️ sending you love

[@user-fx3ms7iv6y]

Liddy Alvarez That’s so freaking sweeeet!! Thank you a lot, I appreciate it💕 I literally felt like I was the one talking in your video, like it was my story, i feel like everyone’s fibro is so different but you have almost identical symptoms to me! Every detail you said, i could relate to it, how it feels and how long a flare up is... thank you só much ❤️ it’s not nice to know that you have this awful illness but it is kind of good to know that i’m not alone 💕 keep doing what you are doing, you are so strong! ❤️

[@LiddyAlvarez]

//## ❤️remember you are so very strong as well! I fully understand how you feel and how difficult things can be at times but sticking together is all we need to do, only we understand what we go through. Never stop believing in your strength and your potential, you will always surprise yourself on how much you can handle. Sending you love and wishing you nothing but the best❤️

[@user-fx3ms7iv6y]

Liddy Alvarez thank you so much!! Do you have instagram? 💕

[@LiddyAlvarez]

//## yess my instagram is myfibrostory7

[@tangylsims]

Thank you Liddy for sharing this...helps me out a lot...I like the explanation about the GYM...I usually ask people if they have had the flu and remember the body aches...that is how I feel...I am 45 and feel like a 60yrold...Still have so much life to live...I pray God to heal us both...There is nothing too hard for Him, amen! Anyways, just really wanted you to know that this video is like looking at and hearing myself try to explain what a bad day is like....God Bless you!

[@LiddyAlvarez]

Tangy Sims God bless you beautiful soul! Thank you for your prayers, God definitely is the one pulling us through this one. Im glad the video helped even if it is in a small way, thats its intended purpose so we dont feel so alone through this illness. I am sending you so so many good vibes and love. God bless you❤️

[@shugabahfilawegenoni3996]

Thank you for sharing and giving people as myself insight of how you are managing the mysterious fibromyalgia. You are a courageous woman.

[@LiddyAlvarez]

Jeannine Marie you are so so sweet, your comment made me tear up. I’m so glad you this video is helping in some way❤️ wishing you nothing but the best and hoping you are having pain free days. Thank you for taking the time to write, it just gives me so much purpose. Thank you❤️

[@gloriaterry333]

Thank you, you are inspiring me to do my own story. It’s amazing how you can describe the same exact thing that I feel.

[@LiddyAlvarez]

Gloria Terry so glad you feel empowered to share your own journey, its truly important to raise awareness. Sending you love and wishing you great pain free days. ❤️

[@anastasiapaggett3848]

I no how you feel my pain wake me up at 2:00am every day. I hope you feel better. That great to no. I making jewelry to help and I keeps a heat by my legs. Take your time I’m here to listen YES

[@ScumbagsUnlimited]

Bingo! You've nailed it. As a now single dad because my ex wife couldn't handle my ABI and fibromyalgia from a motorcycle accident, I wouldn't wish this on anyone, the pain, brain fade, quality of life etc. Good on you for having the guts to make this video, you are braver than me. My wish for you is that you have more good days than bad, my thoughts are with you.

[@LiddyAlvarez]

ScumbagsUnlimited thank you so much for your good wishes. Im so sorry that your ex could not handle the illness but just know that you are better off without the stress of someone who isnt supportive of this illness, which we have no control over. I’ve heard of other couples who stay together and its a lot more painful because since they dont understand it they put blame on you, criticize and overall emotionally its not healthy. I truly hope for you all the best in the world and that you have many great days and little bad days ahead. Glad this video was of some help, even if just to help you feel less alone through this illness. Write to me anytime, glad to help in any way i can.

[@ScumbagsUnlimited]

@@LiddyAlvarez Thank you :-)

[@laragecanecorsos]

I’m so sorry she didn’t understand your condition. I am struggling with being with my fiancée x 6 years and he fussed at me yesterday for not doing enough with him. He does not truly understand my symptoms and pain.

[@LadyCaspar]

My heart goes out to all of you who are suffering. I have my fibro under control most days but I remember when I couldn’t get off my couch for 3 years and thought my life was over. I don’t wish it on anyone. Don’t lose hope for yourselves. I love you all!

[@kimhensley4583]

How did you get your fibro under control if you don't mind me asking? I've had it for 15 years and it's progressing and my Rheumatologist says I have extremely Severe Fibromyalgia to the point where it's deep in my joints and muscle tissue throughout my whole body. My hands, knees, wrists, back, neck, spine, ankles, shoulders, arms, elbows, are the worst and the migraines😢. The specialists from neurologist and Rheumatologist are doing everything they can from wrist and knee braces, shots for pain and PT (that didn't work at all). What did you do?

[@yyb7027]

I understand I’ve been dealing with this since 2004... much love to you ❤️

[@LiddyAlvarez]

YVONNE BRUCE so sorry you’ve been dealing with this for so long. Sending you love too❤️ wishing you better days

[@yyb7027]

Thank you huge flare today so I appreciate you ❤️

[@LiddyAlvarez]

YVONNE BRUCE so sorry to hear that! Hang in there and i truly wish you have a better day tomorrow❤️

[@meredith3997]

Thank you so much for sharing, Liddy. I was recently diagnosed with fibromyalgia and I am so thankful to have a word for what I have been experiencing. I am thankful that I can now find people like YOU who can help me feel not alone in this.

[@LiddyAlvarez]

Meredith Cogswell so happy you finally have a diagnosis❤️ know you can always count on me and this small community for support through it all. Welcome to my small but very loving fibromyalgia community❤️ sending you tons of love!

[@neebomar]

I know exactly what you are going through. I love you and want you to know you aren't alone. We are fighting this together. Take care of yourself.

[@LiddyAlvarez]

Tenisha Bomar this comment made me feel so loved. Thank you so much Tenisha! I love you too, and you are so so right about what you said: we are fighting this TOGETHER❤️ wishing you nothing but the best you kind soul. Thank you for taking the time to write, you have no idea how much I appreciate it❤️

[@purrsandwhispers4521]

Thank you for making this video!

[@AndrewLitton]

Thank you for sharing Liddy. I do feel less alone now. It helped me

[@LiddyAlvarez]

Andrew Litton this is exactly why I do it♥️ i’m so glad it helped in some way. Wish you the very best fellow fibro warrior!

[@MrShawn2526]

I am so sorry you have to go through the symptoms of that horrible condition, I totally understand you since I also have been suffering from Fibromyalgia for a number of years, in fact I watched your video with tears in my eyes because it was like I was feeling that horrible flare up myself and I saw you in so much pain, discomfort and brain fog and the fatigue we unfortunately have to endure. Thank you so much for having the courage to speak up about it while you were experiencing an actual Fibromyalgia flare up, you are a very brave young girl in doing so, hugs and best wishes to you and your family !

[@LiddyAlvarez]

George Shawn Albanes thank you so much for taking the time to write to me and for your kind words. I was nervous at posting this since there is so much stigma surrounding this illness and people truly dont believe it is real. Sending you love my fellow fibromyalgia warrior, you are so very strong❤️

[@louisamingay430]

Me too x i hate it the fatigue is awful and sometimes feeling like my limbs are heavy i sometimes feel like its robbed me of things, i try and do things but when i cant i rest but i cry alot sometimes, i can relate to the fatigue awful. 😢❤❤

[@lauriestubblefield3253]

God bless you, thank you for sharing :). I’ve had fibro for 6 years, and I wish to God there was a magic phrase we could use that would make others say OH! I GET it now! Not yet, though. A gentle hug to you 🌷💖💖

[@LiddyAlvarez]

Laurie Stubblefield i totally agree! Wish people could get it but its just not likely to happen. A gentle hug to you too💕 wishing you amazing days ahead

[@MsShellybell12]

Thank you for sharing people dont understand and the pain is REAL...Good days very thankful for..😇😇😇😇😇

[@LiddyAlvarez]

MsShellybell12 bad days truly show us the beauty in the good ones. Sending you love!

[@sweett5896]

From a fellow fibro fighter struggling to get through the day, thanks so much for making this video. The invisible part is so hard. We look healthy/fine but arent. So thanks!❤

[@sweett5896]

Also, I didnt know they had programs like that for school, I had to stop going to classes because of my fibro. I hated having to give it all up. I'll have to do some research to see if they offer that in MD. Ty.

[@LiddyAlvarez]

Sweet T no need to thank me♥️ im glad this video served to help in some way. And about school, check because they should have accommodations for diseases such as this one, i hope they do because in my case that has been the only way i’ve been able to continue going to school. Thankfully i will be done in december♥️ wishing you all the very best! Remember you are so very strong 💪🏻

[@sangokipozi4611]

Just hang in there my dear. To morrow is another day. You are not alone in this. We share the same problem so thank you very much for the video.

[@iamredbone4723]

I had FM for 15 yrs now. Its no better. I feel like its getting worse. Im 47. I feel everyone pain. Literally. It sucks but Pray and stay positive. 1 day at a time. Stay Blessed.

[@audyherrera2783]

I also have Fibro and have had it for about three years. Its so hard and i cry sometimes but its ok. thank you for posting this. hope one day ill be brave to post a video one day about my Fibro.

[@LiddyAlvarez]

Audy Herrera so sorry you have to deal with this challenging illness as well. Know that you are incredibly strong and that you can make it through the hard days.

[@AndreasCreations]

thank you for sharing such a point-on view of what Fibro feels like! it is so hard to describe to people. you did a remarkable job. I know exactly how you feel. keep the faith that tomorrow will be better :-)

[@LiddyAlvarez]

Andrea from Andrea's Creations thank you so much for your kind words♥️ i am glad that the video has caused such good reactions. Wishing you nothing but the best♥️♥️♥️♥️

[@LadySax45]

This video is hard to watch but very informative! I have fibromyalgia and arthritis! I understand more than most people because I deal with it. The reason I said it’s hard to watch is because you are so young. I was in my 40’s when I was diagnosed. I am wanting to start a KZbin channel to bring awareness to this awful illness. But your information is a blessing to many I’m sure! Thank you for sharing! Soft hugs 🤗 be blessed and a blessing 💞

[@LiddyAlvarez]

Shirley Saxton thank you for sharing a bit of your story with me! If you are thinking of making a youtube channel that is such a great idea, more people should share their stories to continue bringing awareness to this often misunderstood illness. Keep fighting my fellow fibro warrior! Soft hugs❤️

[@LadySax45]

Liddy Alvarez Thank you for replying! I just have to get some lights and a camera because I didn’t want to use my phone. I don’t really know about how you edit the videos either. I am new to social media. Lol because I’m not a millennial I’m a oldie lol. But all jokes aside this is serious, and it’s a lot of women and some men that deal with this ugly illness. If you have any ideas you can share I would appreciate them.

[@LiddyAlvarez]

Shirley Saxton i actually try not to edit my videos much since it takes a lot of time. I usually write out the things i want to go over and just start talking. In case i do decide to edit then i edit with imovie on my macbook :)

[@WarandFlame]

I go through this and am a mom. Can you imagine not being able to rest. I was a dancer. I cried yesterday about my old life.

[@ashleymorgan9287]

I full heart felt what you said, I also have fibromyalgia and have suffered the symptoms for almost 15 years( I'm 32) The fatigue, the brain fog, muscle cramps, constant popping and cracking in my joints. Does anyone have any good suggestions for pain management?

[@LiddyAlvarez]

Ashley Morgan cbd oil has changed the game for me in terms of pain management simply because its helping me sleep like nothing had been able to do without feeling drugged or dizzy i just relax and im able to fall into sleep. As you know not sleeping worsens pain (at least for me). Other things i do for pain that help pretty much instantly are epsom salt baths, i also take msm supplement that helps a lot with pain naturally and i take multivitamins. Diet does influence pain so you want to stay away from processed foods, dairy, gluten and sugar specially in moments where you are in a lot of pain. There are many other things i do but i cant recall right now, i have a video i made talking further about all the things i do for pain management if you are interested. Sending you love and wishing you well💕

[@Truerealism747]

Do you have heds to

[@sheryleellis3934]

Fm is a lonely illness to have. Thankyou for this video. 🌹 💜

[@LiddyAlvarez]

Sheryle Ellis it is a very lonely illness, which is why i made this video. Im happy it helped even if it is in a small way❤️ sending you love my fellow fibro warrior

[@sbschiemann]

I was just diagnosed and found this video. Seeing you like this is like watching myself in a mirror. I just didn't know how this disease affected me so much until I realized I was in my 30's feeling 90 and unable to do what my peers do. I am in healthcare (I know eye roll!) and my colleagues all feel this disease isn't real. That makes my acceptance of my illness harder when I can't explain to them how I am without their thinking the bias trained into us during school. I accept this is real, hoping the world will soon follow!

[@deaniagarza3931]

Bless your heart .. you give me strength to be able to share what I go through … I’m always so embarrassed to say how I feel to people.. I always feel like I’m so so judged and well I don’t feel so alone.. now. Sending prayers and all my luv to you may God bless you on all you hope to achieve in life. ❤️

[@trickynicky2118]

Thanks for taking the time and energy to do this video. This is exactly how I am feeling today. It feels like my head is in a vice. I also have showers well into the afternoon so I can build up to it. The need to rest after brushing my teeth, it is very hard to understand if you haven't experienced it. The word finding difficulty is hard too. I was super active before this thing hit me 4 months ago after major surgery. I am still waiting for a diagnosis but my symptoms mirror yours so much it's uncanny. I was the girl who never sat down, always busy, walking miles at a time, full of life and energy. Now I am wheelchair bound fortunately able to walk around my home, but only short distances then a rest afterwards. I thought to myself when this happened thank goodness I live in a compact little villa with no stairs. It must be very hard for you having stairs. Sounds silly but I wonder if you could put in a slide at the edge of them for hard days like today. Good Wishes and I hope you feel a bit better later today ☺🌷

[@LiddyAlvarez]

Tricky Nicky hey♥️♥️ i am so sorry you are going through this :( just know you are not alone and you are strong! So happy to have you as part of my small community. Having support from those who understand its so important. Dont hesitate to ask if there is anything you’d like to know or that i can help you with. Sending you gentle hugs♥️

[@mariaelizabeth8369]

Thank you for sharing! I know exactly how you feel! You are amazing for sharing and allowing fellow suffers like myself that we aren’t alone! Sending you love and healing 😘❤️🙏🏽! God Bless

[@LiddyAlvarez]

Maria Elizabeth thank you so much for your kind words and for taking the time to write❤️ knowing we are not alone through this is really reassuring. Sending you love and healing as well❤️❤️❤️

[@georginastone5375]

Hello there, think you were really brave making this video....thank you...I have fibro and ME and have ;had them for nearly 30 years now and i am pretty much done with it....i dont know how to manage anymore..... I wish you well and hope you improve and get your life back....these illnesses are life robbers....only yesterday at the doctors surgery the receptionist said to me, you look well....the invisibility of it...the stigma....i live in the uk and have fought it for so long....im pretty much done now...take care and thanks again...

[@LiddyAlvarez]

Georgina stone i totally get it... that “but you were so well yesterday” or “i saw you earlier this week and you were dancing and laughing” or simply “but you dont look sick” kills me and i know it does the same to all of us with this life robbing illness. Its frustrating but just know you are not alone and you are incredibly strong. Girl, if there is someone who understands what you are feeling right now is me and every other person with fibro does as well. You can do this though, you are stronger than fibro and you are not alone through this. Sending you love through this difficult time and know you can always write to me if you want to vent.

[@georginastone5375]

Thank you Liddy, your reply made me cry.... People who have this illness get it....thank you so much for your kind words....I wish you all the very best.... I am putting in a call to my doc today for ldn....we’ll see how i go....I am so intolerant to all meds, which leaves me with nothing to help with the pain for me... Mine started with a flu vaccine which gave me Guillain Barre syndrome and have been ill ever since and as i was sensitive with the flu jab, so i am with main stream drugs....We’ll see about LDN....A glimmer of hope...thank you...!!! Xxx

[@lucyl.4356]

Hi Liddy. I think you're doing these videos is an amazing thing I know it has opened my eyes. I am so sorry for what you're going through at such a young age. I didn't develop fibromyalgia till my late forties and I have found it so difficult to get through most of my days since. I cannot imagine the horrors that you go through trying to do things with other people your age. I have canceled out on so many plans and the guilt of always cancelling has played havoc on me personally. I am now 70 and I'd like to say that it has gotten better but now arthritis has set in making it even harder to function. I think the worst part of fibromyalgia is that people don't understand what you're going through. The alienation is difficult I have found hobbies that I enjoy and that while I'm doing them I'm not thinking about the pain but I wish I could get into my car and go to the mall and walk around if I try to do that and I make it inside the mall then I will be on a bench and wait on my family to go home. The limitations are exhausting! My heart goes out to you and I wish you the very best. I keep hoping someday there will be a cure. It is so hard to believe that you can go from being perfectly healthy and in one day all of it is completely gone and never to be seen again. I hope that in your lifetime that people will understand or at the very least stop commenting on what they think a fibromyalgia person needs to be doing. Unless they can walk in our shoes for one day they have not a clue I know I would not have understood!

[@LiddyAlvarez]

Lucy L. Hii dear Lucy❤️ thank you so much for taking the time to write to me your story. Im so so sorry that you have had to deal with fibromyalgia for such a long time. I completely understand your struggles and I empathize with all of it... i know how hard it is to be completely healthy one day and the next you cant move or do anything. Its truly difficult and quite hard to process. This is the reason i want to make videos, because i know that when i was first diagnosed i felt completely alone and judged. I just wanted to make something out of a bad situation and this is it! I get to meet wonderful people like yourself and build a small community of love and support. I’m happy to have read your story and to know another fellow fibromyalgia warrior. In retrospect, i must tell you that i dont know of a single person that has fibromyalgia that is not loving and kind.. and that says a lot since we do go through so much but do not put that back on the world in a negative way. Sending you so much love and wishing you many many good days to come. ❤️

[@nataliebarratt2333]

Thank you so much for sharing your story... I have fibro too and hearing you share made me feel less alone and like a ‘chronic excuse maker’... Again, thank you 💜

[@LiddyAlvarez]

Natalie Barratt you are so so sweet❤️ im so happy it helped in some way, thats why i make my videos. Sending you love my fellow fibro warrior friend!

[@nataliebarratt2333]

Liddy Alvarez I’ve actually shared your video with my significant other to help him understand too since I struggle to explain and he struggles to understand. So you’ve made double the impact. Thank you again 💜

[@LiddyAlvarez]

Natalie Barratt thats sooo amazing😍😍😍 so glad it had such a positive impact. I just got married in january and know the importance of your significant other understanding you and supporting you. It truly makes all the difference❤️

[@nataliebarratt2333]

Liddy Alvarez congratulations! I’m so happy for you- so often on the fibro forums I’m on, etc. I hear a lot of negative things regarding partner’s leaving the relationship even after years of marriage because of their partner’s illness... sometimes it really makes me worry. So I’m glad to hear you have a partner who gets it- it really gives me hope. My partner is amazing, but of course he is often confused and finds figuring out how to help/understand difficult, which is of course understandable. So yeah... your vid is super helpful. ❤️

[@LiddyAlvarez]

Natalie Barratt so so glad it helped :) if there is anything i can record that can make it easier for him to understand let me know. I will be making a video on fibromyalgia and relationships so any specific topic you’d like me to go over i would gladly include. Sending you love my fellow fibro warrior!

[@donellemiller6680]

Sorry I only send emotional hugs, physical hugs can be too uncomfortable. I've had fibro since I was a child, back then fibro was not in anyone's vocabulary 1960s. I had a compassionate Dr that attempted to identify what I had and treated me with what was available. However, my family had to move and it took decades before I was diagnosed and treated :-/. I think the years of not being treated and continually pushing myself left me with permanent issues that will never change. There are still Drs that don't acknowledge fibro, and I still run across them. It's so sad, I have had a rough 10 months fighting other health issues, the loss of my mom, as well as fibro. Am just beginning to come out of it, thank god. This time however I'm showing signs of the battle, trying to brighten up the dark circles under my eyes. My face has the signs of exhaustion, and I'm just beginning to see the signs of life with out the burden of depression. Sleep for more than an hour has been my greatest medicine! And natural sleep, no chemicals, pills, or herbs. Am hoping this awesome treatment of sleep will help erase my dark circles. Lol. Hang in there! The world of medicine is awakening to treating fibro and with acknowledgement comes research and in time the cause will be found.!! At least new treatments. Keep sharing your journey, the more you share the more the circle grows :-).Thank you!!!

[@LiddyAlvarez]

Donelle Miller thank you for taking the time to write❤️❤️❤️ you are a fighter and i truly wish you health and better days. I promise to keep sharing my experiences through here, i just wish to make a community of people who are going through this so we can help one another as well as making others more aware of what fibromyalgia is. Sending you love!

[@donellemiller6680]

@@LiddyAlvarez your so very sweet! Your young and will benefit from new advances in a therapy or treatment they come up with for fibro I'm sure! Such a huge advancement is getting it diagnosed! The Drs will tire of a diagnosis with no treatment. Patience and good health! And thank you for talking and sharing your battles we are all fibro warriors.

[@LiddyAlvarez]

Donelle Miller no need to thank me❤️❤️❤️ its such a pleasure meeting such kind hearted individuals who happen to know exactly what we go through every day. Sharing my experiences has brought me closer to this community of people with fibromyalgia and I have to say that every single person i have met is so kind and loving. Sending you love and wishing you health and happiness❤️❤️❤️

[@linkedinlove106]

Hang in there girl...been going thru this for 30+ years. Exactly as you say. Thankfully found a great pain doc who has helped me tremendously.

[@LiddyAlvarez]

#LinkedInLove thank you❤️ i’m so glad to know you have found a doctor that works for you! That is so rare for us fibro sufferers. Truly happy to hear you have relief and have been able to cope. Wishing you all the best my fellow fibro warrior friend. May you continue to have all your pain under control!

[@gailducrest8851]

Dear Liddy, thank you for posting this. Every time I hear someone with fibro voicing my exact experiences I want to show to people I know; I want to say “See? Listen to this? It’s what I’ve been saying.” May I suggest, if you haven’t tuned into Toby Morrison on his CFS Health channel, give it a try. I am old; it is so sad to see someone young, like yourself, being on this awful road. I hope you can find a road to recovery.

[@imonlysayin]

Your healing time has come, lovely one....

[@susannetucker4720]

Thank You so much for this... I felt like I was watching myself. I forget the simplest things sometimes & it’s frustrating. I was recently diagnosed after many months of tests/dr appointments. I can relate on everything. I watched this crying.😔

[@LiddyAlvarez]

Susanne Tucker im so sorry you are going through this, its so so hard. Any time i watch anyone with a chronic illness i cry too.. i totally understand relating to that other person and at the same time wishing that this illness did not exist in its entirety. Sending you love and wishing you have many pain free days❤️

[@orpheasnestos7444]

Listening to you and reading many of the comments I feel a type of vindication because we all have the same symptoms and experiences and there’s a very clear pattern just like in most other illnesses! Fibromyalgia is very very real. I’m typing this in pain…My life is put on pause right now as I’m going through my longest and worst flare up ever. I try to tell myself that it’s ok…while life just goes on around me and I feel I’m just being left behind. It’s shocking…watching the video is like seeing myself on a bad day…and the gym comparison is just how I usually describe it. Big thank you for sharing. All the best to all of you out there.

[@cindybrodie9769]

Thank you for this post. I am sixty years old, and was diagnosed with Fibromyalgia about 13 years ago. I appreciate your description of the way the disease affects your daily life, and it really did make me feel less alone and more understood. I hear many testimonies, but I felt yours was spot on, at least for me. I wish you the very best!

[@LiddyAlvarez]

Cindy Brodie you are so so sweet! Thank you for taking the time to reply to my video and let me know that it had a positive impact in you❤️ you do not know how happy it makes me feel that i can help even if its just by making you feel a bit less alone through all of this. Sending you love and wishing you well my fellow fibro warrior❤️❤️

[@ericmartin9569]

Hello, I'm sorry about how you feel. Hope you get better. I'm a 38 year old guy who suspects I might have fibromyalgia. One aunt has it and we talked the other night for hours. She thinks I have it too. I feel so fatigue, in pain, foggy, I can't sleep well, never feel rested, don't know what to eat because my stomach aches, etc. I'm terrified because I don't want to be sick but it is obvious I am. I will see a rheumatologist next week. I'm nervous because I don't know whether she's a good doctor or not. I only have 2 rheumatologist under my insurance. Well see. Thank you for sharing how you feel.

[@LiddyAlvarez]

Eric Martin so sorry you have to go through this. Wishing you get a good rheumatologist that has experience with the illness. If there is anything i can do to help, let me know. Remember you are not alone and you are so so strong!

[@ericmartin9569]

@@LiddyAlvarez ❤ thank you for sharing your story. It inspires all of us. God bless you and your family!

[@LiddyAlvarez]

Eric Martin you are so sweet! Thank you so much for your kind words. God bless you and your family as well♥️

[@ericmartin9569]

@@LiddyAlvarez amen ❤

[@gojamesjg]

@Moomin Most doctors that know anything about these diseases believe there is a strong genetic and heredity component to them.

[@phoenixflier25]

You’re too young to suffer like this😢 I’m 53 and I have it. It’s horrible.

[@LiddyAlvarez]

phoenixflier25 i truly dont wish this on anyone. Im so sorry you are dealing with this too. No one should have to go through this but just know that you are not alone. I’m rooting for you, remember you are incredibly strong. Thank you for taking the time to write to me. It means the world💕

[@Soneelicious]

I think I might have it that or either myofascial pain syndrome and I’m 20

[@hollymoore5402]

So sorry I totally understand all my prayers to you dear🙏I have ME and fibromyalgia since I was 23 yrs old and wheelchair bound also Ulcerative Colitis since 2011 my life is very difficult but we have to be grateful for the little moments and days of slight relief.

[@LiddyAlvarez]

Holly Moore you are amazing. Thank you for looking at the bright side. Yes, it makes us more grateful of any moment of relief and well being, i can totally relate to that. You are such a fighter, my prayers are with you too💕 Sending you so much love, keep that mindset its soo so beautiful 💕

[@wow-dw7gh]

thank you so much for this video, I'm having a flare-up today and there's nowhere else that describes how I feel as you did. I'm only 23, otherwise healthy, but just going to the hospital yestersday to have blood tests taken again to diagnose fibromyalgia/rheumatism, has left my entire body feeling bruised until the next day. I've been trying to get diagnosed for half a year now. At the moment I've been put on gabapentin, but I hope for some more effective treatment soon as my diagnosis is still not complete. I plan to watch all your other videos, thank you! x

[@LiddyAlvarez]

wow thank you so much for taking the time to write. I’m so sorry you are going through this as well, i wish you feel better very very soon. Please keep me updated on your diagnosis, i truly hope you get it very soon. If you need anything or have any particular questions i will leave you my email here as well as my instagram page where you can message me directly. [e-mail] (email) Liddy_alvarez (instagram) Thank you for your support on the videos, i truly hope they are of some help to you or anyone you know who has fibro. Love, Liddy

[@amandachristianson5106]

I just found you on U tube.Thank you for making this Video💙👍.I have been finally diagnosed with Fibro/Cfs...I have had sympoms off and on for some time. And finally I found. Dr. Who was willing to listen and do alot of tests. Its good to put a name to it.But hard to explain to others what is going on in your body. I have days just like on your video where my thought process isnt working and. I feel like I am on skow motion mode.Its embarresing when I mix up words sometimes even pause.Or feel dazed and people think your off...sensations I feel are so confusing...and its somedays effectinf my work...Somedays I need reat ans quiet cuz my body is on sensory overload , pain and discomfort...I pray alot try to listen to things that are up lifting and soothing.Just wish I could handle my bad days at work better...sometimes I just crash and curl up in a ball...I have to figure out how to find another job that I can work with this...I will admit I am scared. ....But I am glad I have found some sites and a support group on line..It feels good to know your not alone in the struggle😌

[@LiddyAlvarez]

Amanda Christianson thank you so much for taking the time to write to me❤️ i am so glad they finally diagnosed you, at least i felt relief when i was diagnosed because before that i truly thought i was going crazy. I totally understand what you’re going through and knowing that putting my experience out there helps us feel less alone really makes everything worth it. Sending you love my fellow fibro warrior❤️

[@amandachristianson5106]

Thank you. fellow Fibro warrior.💪👍

[@94blessed]

My my 😢you sound so much like my life with fibromyalgia/osteoarthritis /everyday is so hard for me I am fighting 😔😔to do my everyday tasks!! Praying for all who are dealing with this terrible condition I have brain fog ! Often and I was ashamed of my illness but now I am opening up because I had to tell my family because they knew I was acting different!!

[@LiddyAlvarez]

Millie Armstrong totally understand❤️ sending you love and wishing you better days❤️❤️❤️

[@janniferlassiter8025]

I totally understand, you’re not alone. 🙏🏽🙏🏽🙏🏽you’ll feel better soon. I was 47 when 49 when I got my diagnosis, now 60 and not used to it yet. Still wanting my old life back. Grateful it’s not worst.

[@LadyZoeBella]

I too suffer with fibromyalgia and you did an amazing job describing what we go through. I understand the effort both physically and mentally that it took to make this video and I thank you so much because I do believe you are helping so many people by not feeling alone and feeling like someone else does understand. Gentle hugs 💕

[@LiddyAlvarez]

NattyNomad it did take quite a lot of energy that day and time to film this but i tired my best to just be myself so that the reality of what we go through could show. Im glad to know this video is bringing awareness and can make others going through this feel less alone❤️ gentle hugs for you too my fellow fibro warrior!

[@makeupbytashaxo]

I was diagnosed a few days ago after three years of unexplainable pain.

[@LiddyAlvarez]

MakeupByTashaXO so glad you finally have a diagnosis, i know that takes a bit of weight off your shoulders.

[@claudiarosser8339]

Thank you! I suffer with fibromyalgia for 30 years. You described it to a t.

[@LiddyAlvarez]

Claudia Rosser i’m so glad i made it justice coming from someone who has had this for so long! Wishing you health and many many great amazing symptom free days my fellow fibro warrior❤️

[@karagraham9764]

Claudia Rosser I have learned that the muscle knots secrete toxins and that creates the fatigue. Make sense?

[@tako1289]

i understand you everything you said!!! the muscle pain and soreness, the low energy drag! it was so bad i though about suicide and not living life, no one would understand! but i said to my self " give up and live my sorry ass life, or fight with everythint i have to beat this body pain, MENTAL pain, emotional PAIN till i die, im not gonna give this bi***(the fibro) the chance of day to see me down" and every day i go and run2 miles and jogg 3, and i listen to sucess stories, about people beating cancer, and other REAL LIFE THREAT diseases and it gives me hope and belief, that i turn into strenght and power to be at my full petential!!! every day!!! im with you i still get flare up when i stress, but that i fight with givin my body more painnin form of exercise,: the thing is YOU have to find your HOPE AND YOUR REASON to fight this demon(fibro) and not fall victim to it ever again, you need to put and end to this bully!!! only you know what it feels like only you can battle it!! well much love ans sucess we got this!!🙏🏽❤

[@LiddyAlvarez]

tako 1289 thank you so so much for taking the time to write❤️ its so so important to keep the word going about this illness... not enough people know of it and there is still so much stigma around it. Wishing you well my fellow fibro warrior💪🏻

[@BarbaraHenry]

Bless your heart beautiful girl. You have described fibro pain and ache so very well; there is no doubt you have it. I am in my sixties and my husband loves to tell I am just getting aging pain. Ha! I had fibro symptoms as a teenager and really tried to ignore them. I just could not understand why exercise was so difficult sometimes. I used to run a lot but some days it was like trying to move through a totally exhausted body. I understand this now but was pretty rough on myself then. My first reaction was anger that I could not do the things I thought I should be able to. Then of course inevitable depression followed. After my mom passed the fibro took on a whole new personna and has been a real b*t** since then. To see you and so many others suffering like this at a young age just breaks my heart because I do understand how it feels and how hard it can be. You are too young to carry this load and I hope they find a cure for you soon. Hugs for your courage, by sharing you make us all braver in the face of pain.

[@LiddyAlvarez]

Barbara Henry your words touch my heart❤️ thank you so much Barbara for your kind words and sharing your story with me. You are so so strong. I hope from the bottom of my heart that we get a cure soon and in the meantime get others to further understand this condition.

[@gwendolynisaacs7628]

Thank you for this I feel no one understands

[@LiddyAlvarez]

Gwendolyn Isaacs no need to thank me :) glad this helps in some way