My Fibromyalgia Story

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Love,
Liddy :)

[@CharletteG]

Omg she described all my symptoms 😱 I stopped talking about it because my family thinks I'm crazy because everything is so random

[@LiddyAlvarez]

christine polanco i understand how hard it is girl! I'm so sorry you have to go through this :( if there is anything i can help you with just let me know. You're not alone❤️

[@moggy992]

Christine P. This is my symptoms too today I am in agony with my back /ribs shoulders too but I do get the purple hands too. The tinnitus comes and goes. It's due to psychological trauma which I've had so many of. Xx

[@LiddyAlvarez]

Helen Morgan so sorry you have to go through this. I hope you find some relief♥️ sending love!

[@Treasuer244]

This is very frustrating, because my husband says "It's all in your head"!!??

[@kjaxn-bn4d715]

People just don't understand because we don't look sick..

[@Thechildofthemoon1]

To other fibro-patients, Tummeric really helps me with pain reduction and genzing with fatigue

[@LiddyAlvarez]

Love agree 1,000%

[@debbiepeter112]

@@chockpea I was told to take it as well. You can buy it from Holland and Barrett. I take one in am and one in PM. Too early to tell if it works

[@Aries-Athena]

I have too many GI issues, so tumeric is just one of the many things that causes me heartburn. :(

[@nishanabul1427]

How do you take turmeric ?

[@julz9378]

Love also sleep test... I found out I had my sleep apnea got on the CPAP machine I got off all my meds but I was on muscle relaxer and Savella and I don’t need medication anymore just to see that miracle for me everybody needs to try to get some sleep test

[@wupeide]

I just want to pray for everyone in these comments. I may have fibromyalgia, but my pain hasn't been too bad, just annoying and scary. May the Lord Jesus Christ help all those who suffering here. I know he loves us and can heal all of us. I pray that in his name he will touch many here in his mercy... manifest his Love and glorify his name.

[@LiddyAlvarez]

wupeide thank you so much for writing this. God bless you too and hopefully you dont have fibro but if you do you know there is a community of people who are here to support you. Sending you love ❤️

[@BarefootInAK]

wupeide thank you ....

[@LadySax45]

wupeide I pray that you found out that you don’t have fibromyalgia because it is very painful. I pray that you have found answers. Be blessed and a blessing 💞🙏🏽

[@arwenbrimhall3737]

Thank you. I feel like no one understands and I don’t know how to cope.

[@LadySax45]

Arwen Brimhall I do understand what you are going through. And I pray that tomorrow is a better day. Be blessed and a blessing. Soft hugs 🤗

[@millicentevans9232]

My fibromyalgia story and i hear other suffers of this crule illness the first thing when you get diagnosed is be strong and cry if you feel to but hold on to god because it can make you get very deppressed and i avoid anyone who will make me feel uncomfortable everyone experience with fibromyalgia is different and my heart goes out to all the suffers arround the globe keep yourself in a small circle keep yourself with love ones who care about your wellbeing the important thing to know is no one can ever imagine the amount of pain and discomfort you feel on a daily basis the fatigued the deppression the insomnia and many people like myself have other illnesses not just fibromyalgia and it makes you housebound for some people its so hard to live with sufferers just make room for it in their bodies and fight on with life

[@LiddyAlvarez]

Millicent Evans couldnt agree more with you. God is actually the one that gives me the strength to keep going.. this is so hard to fight alone. Many blessings to you! Wishing you all the very best

[@clairemehay-hayes7838]

Yes its a daily battle, but living in Spain really helps

[@millicentevans9232]

@@clairemehay-hayes7838 hi hun yes i understand what your saying i do.notice that heat helps me and i have long warm.showers my body burns and if i.over do its so bad for me. I know what so many people are fighting with and its not easy. I have to depend on ME i make all my decisions. My body is weak but i hsve a strong brain and i will continue to fight on with life. There is no other way hun. But dont give up and happy for you to live in Spain thats a nice country been there once with my family. I enjoyed the sunshine it was lovely.peace be with you and thank you for your kind words hun xx❤🙏

[@shaunnemour1016]

This helped me so much to know I'm not alone in this. People think I'm crazy, and being a man I'm more frowned upon and mocked like I'm soft for feeling this pain. So thank you again and big love and appreciation from Australia

[@LiddyAlvarez]

Official Shaun Williams im so happy this video could be of some help to you. Hoping you find ways to cope with your pain and get the support from your loved ones.

[@daynes13]

I started bawling my eyes out watching this video. You just took all the thoughts, worries and pain in my brain and put them in spoken words. I feel like i’m watching myself in this video. Thank you for bringing awareness to fibromyalgia. I felt like I was crazy and it was all in my head, and people thought I was over exaggerating. But this is a real diagnosis, and we will get through this 💕💕

[@LiddyAlvarez]

Your comment brought tears to my eyes. I am so happy to know that this video had a positive impact in you and that you feel less alone because of it. You are not alone, and you are not exaggerating.. this illness is very much real and it is incredibly hard to deal with but through this illness I have met wonderful people such as yourself with kind hearts and so so strong. Wishing you all the very best fellow fibro warrior

[@daynes13]

Liddy Alvarez What a coincidence, I went to the doctors today about my fibromyalgia and mention LDN to her and she looked at me as if i was on crack. She had no idea what it was and then looked it up and said it’s for drug users to get off drugs. Are you still on LDN and how did you get a hold of it? I feel like i’m getting know where with my doctor :(

[@LiddyAlvarez]

Hii :) yes! i am still on LDN. You wont be able to get that from a regular doctor. I recommend you call a compound pharmacy near you (it has to be a compound pharmacy not a regular pharmacy) and ask which doctors give prescription for LDN. Regularly, the doctors who prescribe it are functional doctors. I advice you to look into that. Call before hand so you make sure that they do prescribe it. You do not need a bunch of tests done before you start taking that, its important to know that because some doctors make you spend unnecessary money on tests that are not needed... LDN can be taken by completely healthy people so you shouldnt have to take many tests to prove anything in order to be able to be prescribed it. If there is anything else I can do, dont hesitate to write. I will leave my email here just in case (it is a bit easier to get notifications when you write to me directly) - [e-mail]

[@shaneluke346]

@@LiddyAlvarez I have NO APPITE and feel like I am eating for the sake of it my TASTE for things have gone and sometimes loss of smell and I am also PUTTING ON WEIGHT and at the moment , also am a wheelchair user , could ALL THIS be connected to FYBROMYALGA ?

[@LiddyAlvarez]

Shane Luke i have had all those symptoms because of fibromyalgia so technically it could be due to that. I dont know why your doctor refused you to go to a rheumatologist since this is the specialist who usually diagnoses and treats fibromyalgia patients.

[@tamoe56]

Great description. I’m a fibromyalgia warrior and the worse thing you can do is feel sorry for yourself. Stop being a victim accept your illness and get on with it. I’ve reluctantly been hospitalised the past 4 months 8 times. Don’t let it beat you. I have severe symptoms and trigenimal neuralgia as well. I’ve learnt to love my illness. Don’t take their poison. Look for alternatives as she said. Good luck✌🏽

[@anumhussain2889]

Thank you for the video! I really wish we all had more awareness of chronic disorders such as fibromyalgia - would have have saved me years of relief from pain, exhaustion, depression, guilt and self hate for feeling "weak" and "useless"

[@LiddyAlvarez]

Anum Hussain agree 100% with you. That feeling of feeling useless is really overwhelming sometimes:(

[@elliottkoschak6492]

I'm 13 and I have almost all of the symptoms and my parents dont really care. I know an adult with fibromyalgia and I talked to her and she said I need to see a doctor, but I dont know how to talk to my mom. My mom never believes me when I tell her I hurt, it's sad but it will get better I hope. Thank you.

[@LiddyAlvarez]

Super Tuber its a hard position to be in but can you get this adult to talk to your mom? Because this adult can explain that you are experiencing symptoms similar to hers and maybe she can even recommend the specialist to take you to so they can properly diagnose you. I totally understand being a teenager and feeling like you are not heard or believed. If there is anything you need to know besides this or just someone to talk to don’t hesitate to write. I will leave you my email here just in case: [e-mail] Remember you are not alone through this. Sending you love and wishing you all the best❤️

[@reneerenee6737]

Maybe you could bring it up at your next pediatrician visit.

[@florence1395]

Super Tuber As hard as it seems, you must talk to someone who will listen, school nurse, teacher? Rheumatologist & neurologist are your way of validation, then you will learn how to live with it, please take this advice from a very very long time sufferer, best of luck x 💜 x

[@jessicalilley7387]

This is so sad. Just keep trying I know it's hard and you feel like giving up but you are the only person who can fight for your health. Have her watch a video on it, or just keep bothering her. Tell her you've been doing some research and you think you know what's going on. Even when you go to your apt. Tell the doctor what you think it is it will save you months of them trying to figure it out. Another sad note is not many doctors belive that fibermialchia is real but you are headed in the right direction you already know what's wrong. If its possible try get some vitamins. I know heat helps me so I have some heating pads to help with the pain. Diet these are all things that can help in the mean time I know it's hard. But you got this. It's hard but you will get threw this.

[@msohaibasghar1351]

Steve Smith i have to talk to u

[@ninaboston4714]

Liddy thank you for sharing your story. I am now realizing stomach problems are a big part of fibro.

[@LiddyAlvarez]

Nina Boston your welcome❤ and yess! Gastrointestinal issues are a very important part to fibro. I truly believe that fibro is caused by something going wrong in the gut. Hopefully we can get some concrete answers in the near future. Meanwhile, we just have to experiment, find things that work for us and share to help one another. Sending you some love! Xoxo Liddy

[@Sadies-girl-Cin]

@@LiddyAlvarez hi Liddy,I know this is a year ago,but hoping you still c your messages,I have fibro,stomach issues,depression,I shattered my tib/fib in 7 places snow skiing and got sick not long after,could the meds b the problem with my stomach,I'm so sick and tired of being sick and tired and also my mom recently passed away unexpectedly,It added worse pain,I feel like giving up sometimes.

[@lindatannock]

@@Sadies-girl-Cin it's possible that your meds are causing problems, but fibro really can give you a lot of stomach issues. Sometimes food makes me feel sick (food I had no issues with before!), and I have days where I barely eat, and days when I'm hungry all day. It's weird! I have IBS and my stomach gets really bloated. Talk to your doc if you're worried about your meds though. (Edit) stress can make your symptoms worse, and I'm so sorry for the loss of your mom. The upset of that will give you more pain and issues for a while. Don't give up! You can get through this. Things will get better. I understand dealing with fibro while grieving is awful. Have you seen a bereavement counselor? Maybe try mindfulness. It doesn't work for everyone, but it's worth a go. I use the Headspace app, but there are videos on YT you can try for free. Headspace really suits me as it has night time meditation to help you sleep, bereavement, stress, and a multitude of topics you can follow, to help de-stress. 5-HTP might be a supplement you could try, as it aids in boosting seratonin levels. It helps me a lot. Fibro is trial and error, until you find what works for you personally. I wish you all the best.💖💖

[@rebeccagreen9240]

@@LiddyAlvarez my stomach probs are getting worse so my Dr put me on medication for stomach ulcer

[@LiddyAlvarez]

Rebecca Green are you taking probiotics? You can also look into taking digestive enzymes before each meal to help your stomach process the foods you eat. If there is anything else i can help you with you can direct message me through my instagram page. Im always available to chat. Instagram: liddy_alvarez Email: myfibrostory7 Love, Liddy

[@lynnetteyoung6007]

Thank you so much for sharing. It mirrors my life completely. G.P.'s admit they don't know enough about this condition even in 2019!!!

[@LiddyAlvarez]

Lynnette Young so true... there are still so many questions about our condition and its so frustrating at times. Truly annoying that there isnt more progress by now about our condition.

[@twisalex]

Thanks for sharing your story, I stopped acknowledging Fibromyalgia bc it was so hard to find support. I went every route from Western medicine, holistic muscle testing and psychiatry. The muscle testing showed black mold, metals and I was lacking so many needed vitamins. I was given 65 daily to take . Lexapro blocks pain but stopped after 7 years. It's an SSI but I couldn't replace it. I started acupuncture, exercise and working full time but limited activities weekends. It's as if it got better over time. I was in an abusive relationship that ended right when fibro started. I met a doctor that was a survivor of narcissist abuse and was trying to get narcissistic abuse syndrome in DSM5 bc symptoms match fibromyalgia. Inability to think clearly , make decisions and the physical symptoms as well. Since then, I have had trapped emotions removed from someone certified. It changed my life and I live a more natural lifestyle, I am more spiritual and believe in things I never thought I would apply over the traditional practices most in my family follow. We all share similar stories. Thanks for your share, it's amazing to hear everything about what you went through.

[@Alexis18679]

Fibromyalgia, brain fog, IBS, excruciating pain... Doctors think I'm mental... Healthcare thinks I'm trying to cheat welfare... People I talked to is like "What fibro u talking about? Aren't u having a conversation with me right now? What brain fog, pain? I don't see any of that in you."... Treated as laziness... I wonder, how many fibro victims took their own lives, cos I'm thinking about this every single day

[@LiddyAlvarez]

CY - oh noo. Yes we all can relate with what you are feeling 1,000% and there are many fibromyalgia patients who have taken their own lives but thats not the right way to go about it. I know what you are feeling and the dark place this illness can take you but please hang in there. There are so many things you can do to have a better quality of life and you are definitely not alone through this. I will leave you my email just in case you wanna talk or vent or whatever but know you are not alone through this, I know how hard it can be and how frustrating it all is. Life is worth living so lets figure something out to give you a better quality of life. Here is my email: [e-mail] You are not alone.

[@janakujawa1629]

I am so sorry you are feeling no one supports you. It is a big problem in the medical community. You have to keep pushing so you can find relief. I tried natural remedies for 3 years and it didn't help. I finally got on narcotic pain relief. I take hydrocodone 7.5 mg three times a day and less if I'm feeling better. I also use a muscle relaxer three times a day, flexeril 10 mg. ( I started out with 5 mg a day and a lower dose of hydrocodone, 5 mg) and Xanax to calm my nervous system. I keep a log of when I take my meds due to brain fog. It keeps me organized. I also have other health issues which I'm not sure are related. I have collagenous colitis, congestive heart failure ( which is under control). I inherited a clotting disorder from my mom, factor v Leiden, mild copd ( my parents smoked in the house when I was growing up and I smoked when I was young for 6 yrs. The worst part is the fatigue, me/cfs. I am presently being worked up for an in er ear problem which has caused a lot of dizziness. The one problem is not blaming every health issue on the fibro. I really wish there were some support groups around. I'm a nurse so that has helped me a lot but I still have to be persistent with my doctors. I have been on disability since 2009. I went straight to an attorney for disability. It took about 2 years and they took care of everything. I have worked 30 years as a nurse but fibro has been a huge learning curve. It is also very important to get a good pain management doctor. Mine does trigger point injections and it helped a lot with my headaches. I hope this helps you. I live in Florida near Daytona Beach. I'm 67 years old. My husband is very supportive but it took a while for him to understand what the fibro was doing to my body. God bless you and I hope this helps you.🙂🙃🤗❤💚 I

[@KidCity1985]

How are you doing?

[@Vixen4762]

I was even referred to psychiatrist and being labelled as lazy for the frequent sick leave away frm work..the struggle to get up in the morning and sm even think that I fake my pain/forgetfullnes

[@akat3628]

I'm sorry you're going through this. I believe you.

[@LiddyAlvarez]

I totally understand those labels... i was given them too. It truly makes you doubt how you feel and wether or not your mind is actually playing tricks with you since there are so many doctors that dismiss it. Always know that this is real, the symptoms are there and so many of us are suffering through it at the same time

[@LiddyAlvarez]

Avery H you are so sweet. Thank you so much for supporting one another, it touches my heart knowing that this community is filled with kind people such as yourself. May more people be like you❤️

[@Diana-Artemis09]

Same here. People do and say horrible things about you, but it only reveals their true self. My M.D. thinks that it's just all in my head, but I put his opinions away because science isn't static.

[@shamsasaif1248]

I work in a hospital and my boss still think it is a nerve compression not fibromyalgia..by the way he is a doctor..so i stopped talking about it..

[@halliecorle5725]

I went through the exact same thing. I also had a lot of trouble with the fact that none of my doctors could figure out what was going on even after having multiple tests. Stay strong!

[@LiddyAlvarez]

Thank you Hallie :) Sorry to hear you had to go through this as well but hoping you have found some relief and are doing well. Love, Liddy

[@marissaa8016]

Thank you for your story! Everyone thinks I'm exaggerating or grasping at straws when I tell them I think I have fibromyalgia but the symptoms have gotten worse and I can't take it anymore. Thank you for sharing, hope that medical professionals find out more and we can finally have answers!

[@ruth4thetruth334]

Please hang in there. It took me many years to get a diagnosis too. I'm praying for you. Gentle hugs. 🙂

[@thelivingtree314]

Wow, it's crazy how similar our Fibro journeys are! I started out with some medication but then stuck with holistic treatments as well. It's always so nice to know that you're not going through these things alone and that there is a big community of Fibro Warriors out there too. Thank you for sharing your story!

[@LiddyAlvarez]

The Living Tree nothing to thank me about❤️ its really so rewarding to see people feel less alone through this tough journey. Im glad to know you went the holistic way since thats the less aggressive way to deal with our symptoms and i truly believe the most effective. Thank you so much for taking the time to write❤️ wishing you health and sending you love!

[@miaugaban6801]

Thank you for this vid. I’m a cancer patient and recently diagnosed of fibromyalgia . Sending hugs 🫂

[@dromocure]

Hello I have herbal medicine that will help you get rid of them naturally. Check my video for my information .

[@willhall8816]

I admire and respect every single one of you for continuing to fight through this illness. It effects men as well and I've been diagnosed since 2007. It is the worst illness to go through and to have anyone believe you, but we know it is real. We live it every damn moment of every day. Stay strong brothers and sisters! The pain may break us daily, but may it never break or take our spirits.

[@LiddyAlvarez]

Will Hall thank you for such an uplifting message❤️ keep fighting strong and kind my fellow fibro warrior!

[@Shawn2526]

Are you able to work ?

[@elviatatro6905]

Omg your the first person I found on KZbin that experiences the same symptoms as I do! I feel so relieved because I know I’m not crazy! I’m currently in the process of getting a diagnosis and it’s tough.. thank you for making this video, it was greatly appreciated!

[@LiddyAlvarez]

Elvia Tatro i am so so happy this video made you feel like you are less alone in the world! this is exactly why i made it in the first place! So so happy that you know that you are not crazy, i truly wish you find the person who can give you a diagnosis and start to treat you as soon as possible. Try seeing a homeopathic doctor that specializes in autoimmune diseases or specifically in fibromyalgia if you can... regular GP usually do not have the information to make a diagnosis. If you have any other questions or anything you’d like to talk about i will leave you my email so we can write through there. Email is: [e-mail] Wishing you better days my fellow fibro warrior! Sending you love❤️

[@ShahulHameed-xh1yo]

I hope you will feel better very soon

[@caragunnels726]

I have all of these symptoms as well 😳👎 What a nightmare fibromyalgia is my gosh as I lay here with insane rib and chest pain so frustrating

[@heatherhevey5230]

Thank you for sharing your story. I have had fibromyalgia for 10 yrs+. I also have Adult Onset Stills Disease, which is an auto immune illness. Quite often there is another illness & fibromyalgia follows. I also have Raynaud's disease. I have also found some doctors treat you as though you are over reacting. I am so pleased to learn from you about Ozone IV therapy. God bless you Liddy

[@traceytansley1659]

I wish you well. I discovered my fibromyalgia over the past few months, by hitting on a video and a girl was describing a few of the same symptoms that I've been experiencing. ..Since then, I have watched many videos and learned of many additional symptoms, most of them I have. Costchondritis, tietze, tinnitus, dizziness, extreme fatigue, IBS, digestive issues..indigestion, bee sting pains going off everywhere, headaches on and off, bladder spasms, random deeper pains everywhere, numbness in my upper thighs and buttocks, tingling, sensitive to light touch and noise, freezing cold feet for hours in bed, then waking up too hot. Extremely poor sleep..wake up constantly, uusually can't get back to sleep. Pain inner right knee and slight rash there. Low and mid back pain. Worse allergies and developed asthma. Nausea on and off, low grade fever on and off. Severe anxiety flare ups. Dry hair and falling hair.Dry eyes, corners water often, vision blurry at times. Grinding teeth. Rapid heartbeat in bed. When walking, feel like limbs are really heavy. Shortness of breath on and off, concentration issues, or forgetfullness on and off. Knifing pains and deep aches, like strained muscles.Stiff muscles sometimez trouble swallowing from dry mouth in night. When its flared-up, I notice when I get into bed at night, the tiredness comes on so strong its like having anethestic...then deep sleep for about 1.5 hours, then wide awake for hours after that. Stress makes everything worse, particularly the ringing in my ears gets really loud. Brutal condition because it affects almost every part of you

[@HappyHealthyStrongHQ]

And this is why I became a fibromyalgia health coach. I am an RN and understand the frustration people go through. Find a qualified health coach to help you navigate through all of the medications and supplements and lifestyle changes.

[@Ronnietheboypickering]

Fibromyalgia effects everyone different..it can effect one person completely opposite to the other...

[@LiddyAlvarez]

lewis greenway you are absolutely right!

[@lightningblue4498]

I think I have it because I have all these weird sympthoms that don't make sense and I'm only 14

[@lightningblue4498]

Fatigue, sometimes headache,trouble swallowing, only sometimes pain on body, bloding, constipation, coldness in feet and hand, extreme dry mouth, chest pain, trembling all sorts of problems, hair loss, phlegm I'm throat and blocked nose, anxiety, confsion,

[@lindatannock]

@@lightningblue4498 have you seen your doc? Fibro comes with a lot of pain in areas called trigger points. You can find where they are online. Sometimes young people can get CFS/ME too, which has similar symptoms to fibro with the pain and lots of symptoms, but very extreme fatigue and it makes it more or less impossible to exercise. If you do too much you will "crash" and can be in bed for days or weeks afterwards. There are no tests to tell if you have either illness, instead your doc tests for everything to eliminate them first. Please get help for your anxiety etc too from your doc. Treating that can help your symptoms, as stress makes them worse. Good luck and don't give up until you get help. It can be a long journey, but if you think something is wrong, keep asking your doc for help until you get answers

[@allidoiscry4119]

Yea.. Also some people have a more severe version of it...

[@lorischneider7100]

Thanks for sharing your Fibromyalgia video Liddy. I see it is 7 years old. I am hoping you have more. Hope your pain is not too terrible. 💜

[@dodoboso5697]

Iam 42 years old.. Suffering from 15 years, I found a fibromyalgia sublimental on KZbin, it relives me alot,plz keep in touch, God bless all of us

[@LiddyAlvarez]

dodo boso im glad this video was of some help. Sending you love my fellow fibro warrior friend! Wishing you well!

[@dodoboso5697]

@@LiddyAlvarez You are so friendly & cute, grateful to you very much, plz pray 4 me to be a bit better

[@LiddyAlvarez]

dodo boso i absolutely will❤️ wishing you better days!

[@GraceOma]

I’ve recently been diagnosed after a 10 year fight with doctors, going through so many tests. This video has really helped, made me very emotional knowing people out there understand and know the same things I’m going through.

[@LiddyAlvarez]

I completely understand. I cry so much when looking at other people talk about the struggles i know so well. I wish no one would have to go through this.

[@millicentevans9232]

Thank you libby just be kind to yourself and keep your mind set free from neggitive vibes u get me what i find has happened to me is that i isolate myself from many people they just was not making me happy i am over it i am free just this invisable illness plus my lower back my joint bone has degenerated and its one of the worse thing showers help me its just so hard i am in my bed i am always in my bed my comfortable chair that massages but on low nothing heavy it makes me hurt more all you say is the truth i feel the same way chronic pain is terrible to live with keep strong you are young and beautiful dont let this illness define you god bless and keep you may he shine his light upon you 🦋

[@LiddyAlvarez]

god bless you too beautiful :)

[@millicentevans9232]

Hi libby thank you i am keeping hold of my faith but thank you for reading my words and i am glad you agree with how i feel stay blessed 🦋

[@kichannn]

Thank you so much for sharing your experience. I also have been diagnosed with Fibromyalgia, also RA and dealing with ADHD, Bipolar disorder, ARFID, skin rushes . I reached your channel as I was needing some motivation to keep going. I also quit gluten, dairy and sugar and try as much as I can to be off all the process food ... I have started two years ago with a lot of effort and even though I can see a lot of improvement... some other things started to appear like lots of back and neck pains, metatarsalgya and plantar fascitis... I realised I do not move while sleeping meaning for example that if I fall asleep on the side I will stay all night long with all the weight on my shoulder (did this happen to you or anyone else???). Anyways, my story... but again thanks, hearing you recovered helps me to keep going :) .

[@franguzman6607]

I completely understand you. I have it since 28 years now im 30. I felt the same symptoms like you.hope that science research bring us sometime in order to manage this condition. Bad bad fybromialgia.

[@pentiuman]

I'm a 55 year old guy w/ it, since before teenage years, and before this condition had a name I believe. Started w/ stomach aches as a child, headaches by age 10. At 19 my symptoms suddenly multiplied from headaches to about a dozen of the common fibro ones! I began going to drs. looking for cause - w/out relief. Wasn't until I was about 30 that a family dr. said it was fibromyalgia - but didn't explain it. Over next 4 years it got worse, when I hurt my back at work. Fully disabled by Jan. 2000 and had to go on Soc. Sec. - but I had worked my butt off whenever I could, saved and am lucky to have a house, Medicare w/ all the meds I want to try. So, I suffer from the pain, especially headaches - both tension and then 2 years ago migraine headaches too (they think). The veins in the right side of my head hurt, on and off! It's unbearable - but trying ice packs, rest, hot showers, good sleep positions, better eating and sleeping habits, drinking water and regular exercise when I can. Going to a neurologist to get a 2nd opinion on the migraine headache diagnosis. It's crazy how some weird symptoms can make me unable to walk or function one day, then it's gone the next, w/ no logic. I feel empathy for everyone involved.

[@traceytansley1659]

Don, look into what is called Cluster headaches. My grandmother had them. They occur only on one side of the head, I believe her forehead and near her temple. When I was a girl, I used to ask her if she was having one of her headaches, she would say "no, why.?" I told her I could see the veins popping to surface on one side of her head, shortly after I asked her, sure enough she would get one of her horrible headaches on this same side..always. she described it as so painful she would have to lay down with her eyes closed and I would put a cool face cloth on her head. The pain was confirmed to be same as a migraine, but on one side only with veins popping, she was eventually diagnosed from a specialist who knew about them, at time not many doctors knew of Cluster headaches. I suggest you look into this.

[@bearfog07]

I Have R.A. and mild fibro, I swear by my turmeric tea with tspn honey, tspn cinnamon, tspn turmeric, add tea bag favour of your choice. I went with green tea, chamomile and a berry tea.

[@LiddyAlvarez]

chrissie hopkins same! Tumeric is amazing❤️

[@donnag7288]

I have fibromyalgia since I was 33. I am now 63 an to make things worst I am also a dentist , bending twisting ! My entire body hurts practically everyday. What helps me are three things. SWIMMING ! Everyday !!! I have gone out in the winter time when temp in my car says -4 degrees Accupuncture also helps. I used to take cymbalta which didn’t help but lyrica did , but then insurance stopped paying so I decided I don’t want it rly on meds. I also stay active and walk and yoga. Fibromyalgia has been like a blessing In Disguise . My faith also helps me. I read scriptures and pray to God with Jesus interceding for me every day. Also keep you weight down. Most fibromyalgics have a hard time processing carbohydrate. There is book call ( what your doctors don’t tell you about fibromyalgia) I hope in three years I can retire from this very demanding profession call dentistry. I also pray that all who suffers from fibromyalgia will be healed and sustained by our savior the Christ.

[@katiehewitt1541]

I find sometimes the meds help and then sometimes they actually hurt my body and stomach it truly varies

[@CupOfTae_SugaKookies_Sprite]

Thank you. I appreciated this video so much. I was diagnosed with juvenile fibromyalgia in my junior year of HS. And it took them years before they even officially diagnosed me. I have flat feet (They suction to my kitchen floor like an octopus, it's kinda funny actually) and slight scoliosis. My body is naturally lopsided and one shoulder falls down further than the other. So doctors had me thinking this was my problem all along. I've also always been a heavy chested girl which obviously didn't help. I got all the way to an H cup until my reduction surgery about 2 years ago. So I'm sure you can imagine teenage life in school was hard. I've always loved to dance but Everytime I did too much that day I would feel the effects and get pain all over my body either that night or the following morning. My legs would fall asleep constantly. I missed a lit of school. Cold weather in the winter time and rainy days were the worst. I hated for people to touch me. Even a gentle tap or a brush from someone would shoot pain through my body. Sometimes I would have to sleep with nothing on because even fabric touching me would bother me. I notice because of pain my body can't do what other people my age can. (I'm only 19) Wether it's walking, swimming, and unfortunately dancing. It's frustrating and upsetting when people say "you're overreacting" or "you're faking it." or "It's not that serious." Because they can't SEE the pain they think that it's not there. I have to be careful with what I eat, what activities I do, etc. Because it all ends up effecting how I feel that day. But it's nice to see you're not alone. And there are people out there that knows the struggle. Lol

[@amyjessica2456]

Thank you for sharing your story with the world Liddy. It helps so much to share what otherwise can make you feel very isolated and depressed! It takes courage to fight these silent painful symptoms, admit something is actually not right and figure out what it is without getting despondent, and then try make others understand what is going on. I am a 33 year old woman trying to get my doctor to diagnose what is almost the exact symptoms you are experiencing. My mother suffered for over ten years with chronic fatigue syndrome and warned me to never push my body too far. Unfortunately, the stresses of life trying to juggle jobs and dancing studies to support myself have lead to increasing range of symptoms: muscle pain, fatigue, sleeplessness, anxiety and depression, noisy painful indigestion, dry sore eyes sensitive to light, muscle spasms, and recently alarming hot prickling and numb sensations in my hands, face and body. I have recently been put on an anti-depressant, which has at least helped me get a mental grip on the situation. I also take Vit B complex, iron, omegas and a digestive enzyme. I react to so many foods besides gluten that my diet is now extremely limited and I still suffer from continuous digestive issues but on a less painful scale. I think it is quite likely I am suffering from this or chronic fatigue. It just started two years ago with a stiff neck, lower back pain in kidney area, and a continuous sore stomach, and sadly it has got worse.I have always battled with the depression though. I'm a little scared what I am in for in the next few years, and am not sure how I am going to be able to continue my studies. But I think a clear diagnosis and getting my family to understand its not me being lazy or crazy would help. At least my mom understands...

[@LiddyAlvarez]

Amy Jessica no need to thank me❤️ it gives me satisfaction that my story can help others in some way. Im so sorry you are going through this but knowing you have your mom makes it all better. I have many people in my family that doubt my illness but having my mom be there for me and understand is the one thing that keeps me going. Life is harder for us living with this disease and i truly empathize so much with your struggles, since i know how hard simple tasks can get sometimes. Know that you arent alone and that you are incredibly strong. If there is any information i can provide you dont hesitate to ask. Wishing you all the very best and thank you so much for taking the time to write❤️❤️

[@amyjessica2456]

@@LiddyAlvarez Thank you so much

[@akat3628]

I just read that some researchers think they've discovered a lab test that can diagnose Fibromyalgia and they hope it will help people who have struggled with getting a diagnosis and have been treated as if it's in their mind.

[@LiddyAlvarez]

Honestly I am glad that they have this test now but i wish they would spend more resources on finding good alternative treatments to deal with this illness and trying to find the root cause so they can find the cure.

[@dawndewing]

What’s the test?

[@Teddietonbear23]

I have this too, it sucks , God bless you and every one who has this fibromyalgia 💋🙏🏻❤️❤️🙏🏻💋

[@whisperingeagle]

Thanks pain moves around my body like a merry go round

[@GeekyRedBoss]

Me too....

[@balla6010]

Hi this conversation was so well done you made things very clear, with brain fog most times i can not think that clearly thankyou

[@LiddyAlvarez]

Balla60 you are si sweet❤️ im glad the video was clear and you were able to understand everything. Wishing you well you kind soul❤️

[@Sadies-girl-Cin]

Skin sensitivity is a big issue for me,I've had a hip replacement & back surgery,I hurt every single day,now my feet are burning & throbbing @ night.just lost my mom and it threw me into a dark spiral...I pray all the time for relief...just can't lose faith,although I feel like it some days. :^(

[@LiddyAlvarez]

Sweet* Cind i am so so sorry you lost your mother... i cant imagine the pain you are going through. Just remember you are tough and your mom would want you to keep fighting. You’re a fighter and a very strong woman♥️ not everyone can say that they can deal with pain and annoying symptoms every day while continuing on and being a loving individual despite it all. Love is the one thing that keeps us going. I send you so much love through this tough time. Remember you are not alone.💕

[@balla6010]

Sweet cin, you have been through alot hang in there, one day at a time, extremes in emotion can through you right out, be gentle with yourself, look after the basics and through the rest out. There are support groups out there, you are not alone.love and light always, may the gentle hand of god settle lovingly on you heart. namaste

[@Jaworzynka86]

Sounds much more like Enhlers Danlos syndrome than fibro, please check it up

[@dee4844mz]

My feet and hands burn as well. Fifty percent of fibro folks have feet pain. I use a soft ball to use as a roller and cbd balm. Aspercreme with lidocaine and lidocaine patches help.

[@Sadies-girl-Cin]

@@LiddyAlvarez thanku so very much for your kind loving words sweetie blessings 😇😍

[@cherylbryan674]

Thank you so much for your video. I to have fibromyalgia for 10 year now. you have just described every single painful thing that is attached to this horrible illness .just watching you as helped a great deal. And I'm sure you have helped alot more people out there. With or without a diagnosis. Thank you again .from one fibro warrior to another all the very best xxxx

[@LiddyAlvarez]

Cheryl bryan no need to thank me fellow fibro warrior💕 i felt it was my duty to make this video and i hope it continues to spread awareness and help anyone who is feeling alone with this illness. Sending you so much love and wishing you many many great days ahead

[@sharonwalker6039]

I have fibromyalgia all over my body 24.7 it's horrible live with ☹

[@LiddyAlvarez]

Sharon walker so so sorry you have to deal with this debilitating illness as well. Sending you love my fellow fibro warrior! You can do this 💪🏻

[@karendyment8977]

listen to kzbin.info/www/bejne/p3iWfoqKh9KDf5o very good information

[@rebeccagreen9240]

@@LiddyAlvarez I also have the rash and sensitivity and stomach probs and other stuff n like you said ppl thought it was Lupus and I thought I had that but after hearing from you I'm not sure

[@LiddyAlvarez]

Rebecca Green hi! You must get the autoimmune blood test panel to discard other autoimmune diseases first. If you do have lupus, it will show up there. Its the first thing they should discard before proceeding to make any particular diagnosis.

[@rebeccagreen9240]

@@LiddyAlvarez yep that's what my Dr has said

[@marieclark4609]

Yes a lot of the symptoms you have I have I'm going to pray for you because it sounds like you're a lot worse than me because you have rashes and that must be terrible and I've been complaining to doctors for almost a year about my chest pains they've done tests on me and just because they don't see anything they think I'm making it up and tell me why you're not having a heart attack so they brush it off since it's on my right side and I think more doctors new to learn more about the symptoms of fibromyalgia so they can help their patients more better I don't think it's fair to just brush someone off because you don't understand what they're going through and thank you for sharing your story of what you've gone through I think this will help a lot of people I was glad when I came across your Channel I'm not sure how old you are but you look pretty young I'm going to share this with my daughter so hopefully she can understand more how about the symptoms of fibromyalgia I wouldn't wish this on anyone it does make you depressed and like you said even when you try your hardest if some days were it almost makes it impossible to do things

[@linkedinlove106]

You've helped me Liddy, just by being you!

[@LiddyAlvarez]

#LinkedInLove you are so kind and sweet. Thank you❤️

[@WanderingRose11]

This is my life right now 100% my family doesn't understand but hopefully someday that will change. Thank you so much for making this video, I'm sorry that we have this but it made me feel so much better to hear that somebody else is going through exactly what I am. God bless you

[@LiddyAlvarez]

Cara Westphal so sorry your family does not understand :( i know how that feels. Happy to hear this video helped you feel like you are not alone through this because you are not. Hang in there you strong beautiful person♥️ hoping you are doing well

[@ChefHaitistar]

Just been diagnosed. This video explained everything. My husband seems to be annoyed. So I keep it in . I need help so bad. I’m taking some notes. Can I email you also.

[@LiddyAlvarez]

Chef HaitiStar of course! You can email me anytime♥️♥️

[@Sadies-girl-Cin]

People who don't have it definitely don't understand because we look like we're ok.At least that's what I'm getting from my family,it sucks always hurting.good luck

[@kjaxn-bn4d715]

You can email me also. We all need someone to talk to who understands... [e-mail] Stay Strong

[@florence1395]

Sweet* Cin if you have proper diagnosis & your Rheumatologist (extremely important) & neurologist combined with blood test & MRI’s & CT scans then your husband must try to appreciate how poorly you are, good luck & gentle hugs 🤗

[@GeekyRedBoss]

Sorry to hear that. I hope he eventually starts to support you. Try Sea moss/ Ginger/Tumeric Blend. It calms things down. ❤️❤️

[@crystalshellenberger2232]

I cried through this video but thank u so much for making it!! I just recently started going to the dr after noticing drastic changes in my health and weird symptoms that are hard to explain, that ALWAYS come and go!! I love when I have a few good days but it always makes me think I’m either getting better and the pain is over or makes me feel like I’m just being weak and it’s not as bad as I made it seem but when the pain and flare ups return and the bad days start again it makes me feel like I’m going crazy!! The dr is not helping much been about 4 times and have had ct scan and X-ray and simple blood work which came back normal with maybe an elevation in inflammation, I go in 2 weeks to have colonoscopy and endoscopy, I just feel like it’s going to take forever just to get a diagnosis and I give up very easily when I feel I’m getting nowhere and I have nobody to talk to that I feel is gonna believe me and not look at me like I’m going on and on and possibly just making it all up 😭

[@LiddyAlvarez]

Crystal shellenberger totally get you girl, so so sorry you are having such a hard time. Doctors make it so much harder for us, they just dont understand and judge us so harshly

[@crystalshellenberger2232]

Yess!! Currently he is blaming it on stress 😞 since he sees in my chart and can tell that I have anxiety issues their so quick to blame it on mental illnesses as well

[@LiddyAlvarez]

Crystal shellenberger oh i’ve been there... they can be so ignorant and stupid. BROOO we are in pain, cant sleep and have a billion symptoms and you think my depression/anxiety or any other mental disorder is the Cause of that of ALL of my symptoms??? Its so stupid because its so obvious that the mental aspect comes as a result of so many symptoms and lack of good sleep. Its obvious for me now and i dont get how doctors who are supposed to be educated do not see such an obvious thing. It makes me so angry every single time that doctors imply that my symptoms are part of some kind of non existent mental illness... sorry for the rant but it truly makes me mad!

[@linnetcullen1053]

Someone was speaking exactly what I feel!!!

[@jinglekringlemiller4058]

I am just finding out that this is what I have. My symptoms have been going on for over two decades and I just didn't know and the doctors kept telling me that I had certain diseases, individually, not putting them together as one syndrome. I get so frustrated with trying to get to the bottom of everything - for a long time I was thinking that I was a hyperchondriac (sp)....... I would have symptoms for 4 years, then I would feel pretty good for two..... then I would flare up for 5 years then good for 1.... My latest flare up has been going on for over 9 years. I have had so many blood tests, and other kinds of tests - - finally I found a symptom list that shows every single symptom that I have - and there are many - Fibromyalgia is a terrible syndrome. It takes away all the joy of life. I am just now finding the right kind of help. Thanks so much for your video. It helps to know that I am not alone in my struggle.

[@Abby-nq7lc]

Thank you so much for sharing your story. I was recently diagnosed and hearing your story was like hearing my own. I plan to share this video with friends and family so that they can better understand it and the treatments for it. I'm happy you have found relief!

[@LiddyAlvarez]

Abby0513 so happy that this video helped in some way❤️ wishing you find relief soon too my dear! Thank you so much for your support in telling others about the video and raising awareness about our illness. Sending you love and wishing you so many better days❤️❤️

[@alaskansourdoughwormsgarde4392]

You are the first person to ever say you had no thirst. I have had fibromyalgia for 23 years. I have told numerous doctors about my lack of thirst and no one could tell me why.i am glad you brought it up. The only thing is eventually I would want to drink an ocean for a day, then it was back to no thirst. Most of us have reactions to medications. The only thing that helps be are narcotics. I have tried everything including many naturopathic things nothing worked.

[@jilligain3409]

Look up FM/a blood test. It's a newer blood test that's being used to diagnose fibro. It detects certain changes in the immune system that are consistent w/ patients who have fibro. They are also trying to get a clinical trial together to test a possible treatment. If you google the FM/a blood test, or do a KZbin search, it should pop up for you

[@clararomano9942]

I have fibromyalgia since I was 45 years old and now I'm 66 I am in pain 24/7 so much in pain sometimes I don't know what to do the whole body hurts so bad I can't do the things I do I used to do the only thing I can do cry all the time it's very very painful and uncomfortable people they don't have it they don't believe they don't have it they think you're crazy that is nothing wrong with you but it is so fibromyalgia is invisible thank you for people to share this your stories and God bless you I me too

[@LiddyAlvarez]

God bless you too darling, its so so true what you say, its painful and very very isolating. Know that you are not alone and you are so very brave and strong💕

[@clararomano9942]

@@LiddyAlvarez thank you for answering back yes is very discomfort and painful I'm frustrated can do much I do a lot of sleeping this is not my life this is somebody told me nothing and my body sometimes I don't even want to be around I cannot do the things I was doing it before this is no life but thank you for responding God bless you thank you so much

[@LiddyAlvarez]

Clara Romano sending you tons and tons of love💕 try searching up cbd oil. It helps a lot with sleep quality and pain without the drugged feeling even natural pills for sleep can give you (melatonin does that to me.. makes me feel drowsy).

[@clararomano9942]

Thank you Liddy appreciate it for you responding back well I'll try to search for that oil thank you for the telling me I hope they will work do you have fibromyalgia this is the first time somebody respond back that was very nice of you thank you God bless you too

[@LiddyAlvarez]

Clara Romano you can always count on me replying back so you can write to me whenever you like. I’ll gladly help with whatever i can. I send you so much love and know you are not alone💕

[@helenhunter4540]

Thank you. This was illuminating. My niece has fibromyalgia and I've wanted to know more about it. It's impressive all the treatments you've tried. I'm glad the LDN has helped you. I'll share that with my niece.👍🙏🍀

[@kathleenmayhorne3183]

I don't personally have this, I do have chronic fatigue,as well as other things, including food intolerances, and a niece with this. My symptoms are not as severe as this, but debilitating anyway. I tell myself, "Do what you can, when you can. When you can't, don't, and don't worry about it." I need the energy I would use up worrying, for other necessary things. I can't make it go away, like my breast cancer, so I just have to deal with it as best as I can. My house is a mess, but worry won't fix it. Small wins are enough.

[@icecreamladydriver1606]

When our daughter was younger and doing very poorly she could not be touched at times. Everyone needs hugs so we invented the air hug. We tried many of the treatments you have tried but most did not help her. LDN seemed to help for a little while.

[@LiddyAlvarez]

icecreamlady driver air hugs are so so much better for us at times. Totally relate

[@CherryBlossom-wd3zk]

Every symptom you described I have it helps just listening to you and knowing I'm not alone or crazy

[@LiddyAlvarez]

Cherry Blossom definitely not alone or crazy! This is very very real. You can count on me girl, sending you love! I will leave you my instagram and email just in case you want to write sometime. You are not alone❤️❤️ Email: [e-mail] Instagram: liddy_alvarez

[@hardikaggarwal2051]

Is anyone having shortness of breath in fibromaylgia

[@jaeshasway]

This is my story. Thank you for sharing. It’s been difficult not knowing what was going on and now that I do, seeing that others are going through it makes me feel less alone.

[@ginanmarcus918]

I was diagnosed last yr with fibromyalgia and chronic fatigue syndrome. My depression is so bad. I can't work. No motivation. No energy. Cognitive problems as well

[@GeekyRedBoss]

Sea Moss/Tumeric. It has calmed things down for me.

[@internationalmatt1]

I was just diagnosed with Fibro 2 weeks ago. This video helped

[@LiddyAlvarez]

internationalmatt1 so happy to hear that it helped in some way. Sending you love❤️

[@internationalmatt1]

@@LiddyAlvarez thank you!!! A bit overwhelming but will keep going

[@LiddyAlvarez]

internationalmatt1 thats the spirit! ✨💪🏻

[@ocelotcat]

Thank you, it helps to hear someone else detail their symptoms. Your symptoms are exactly what I have.

[@hyndirl]

Girl I feel you! This is what happened to me and now that I know what I actually have, I now know that all those doctors visits were not very well diagnosed.

[@alextimesthree3341]

This is my life. The doctors just focus on the fact that I am overweight. It makes me feel confirmed seeing someone who is not overweight describing the exact same thing I am going through.

[@jussmiley1]

Wow. My symptoms to the very T. It's been so hard for me as well to explain how I've been feeling for years. Thank you !!!! and Thank you for the recommendations. Some things that I haven't tried.

[@LiddyAlvarez]

jussmiley1 wow🙈 your comment made my day! You are so so sweet. Im so glad that the video helped and that it gave you useful information. Wishing you many many amazing pain free days💕 bless you, you’re awesome!

[@jussmiley1]

@@LiddyAlvarez

[@allieguest356]

Thank you so much for this video. I was just diagnosed 3 weeks ago with fibromyalgia and I’ve really been struggling with it. So thank you so much for this.

[@LiddyAlvarez]

Allie guest so glad it helped in some way💕💕sending you so much love.

[@karenpiris]

everyone always tells me that it's nothing and I'm not sick or just straight up lying ... even now that I've been diagnosed with Fibromyalgia.

[@LiddyAlvarez]

Killer Vibe sending you love. Fibro is not an easy thing to deal with but remember you are super strong and never alone through it. ❤️

[@karenpiris]

Thank you!

[@LiddyAlvarez]

Killer Vibe no need to thank me❤️ we’re here to support one another :)

[@amandachristianson5106]

I believe you!..Its hard when people dont understand...Don't let other people tell U how U feel...U know your body...Hang in there...we all are here for one another...😇🙏

[@LiddyAlvarez]

Amanda Christianson ❤️ so so true! Thank you for your kind words

[@marisolmartinez8390]

Omg I'm so happy I came across ur story. I feel like I'm alone on this and everyone thinks I'm just lazy for always having fatigue and pain due to my fibro. I also have mixed connective tissue disorder which is symptoms of rheumatoid arthritis, lupus , raynauds disease..I'm in pain all the time and I work full time and I'm a mom of 3. I feel like I just want to give up nothing all these dr give me is helping me.. 😕

[@millicentevans9232]

Thank you very much for your reply your so kind I love with it everyday and my medication is like a pharmacy lol the tears I use to cry has dried up and I groan now I don't know which is worse but I try to spare my family my pain I just want anyone with it to hold on and fight it god has not forgotten his people he seems slow but trust me he is sure god bless you all and keep spreading the words about fibro I like to hear that it's getting aware more than when I was diagnosed peace be with you all x

[@LiddyAlvarez]

i understand and i know how hard it can be. Just know you are not alone

[@ringerheringa3052]

There is another side effect to LDN: it can make you not being able to fall asleep. It that case it is often advised to take it in the morning. Works less, but doesn't interfere with sleep that way.

[@LiddyAlvarez]

absolutely! honestly I say that LDN has no side effects because it doesn't have the crazy side effects that other medications do (Which i have felt first hand) but you are right, it can mess with sleep. I know of people who take it in the morning because of this despite it not being my personal case. Thank you so much for you input :)

[@susanmurdock9055]

I have this condition I have to say no help for my GP only to say I have it listening to you are great makes me felt better x

[@LiddyAlvarez]

Susan Murdock im so glad this made you feel better❤️❤️ thank you for taking the time to write to me, i truly appreciate it so much. I hope you find a doctor that helps you cope better with this illness. Sending you love you strong and beautiful soul❤️

[@avatara9862]

Thank you very much, for sharing your story I got exact your symptoms of pain so finally yesterday after 3 years suffering ,Romatologyst diagnosed me fibromyalgia. So God bless you now I understand what to do.xx

[@LiddyAlvarez]

Ava Tara so glad you finally got diagnosed❤️❤️ God bless you too and know you can always count on me if you have any questions. Its easier to communicate through private messages on instagram so i will leave that here as well as my email: Instagram: liddy_alvarez Email: [e-mail] Love, Liddy

[@katiehewitt1541]

I’m very thankful you shared this I’m a young woman like yourself and people did not believe me for years people think because we are young we wouldn’t have something like this

[@clairemehay-hayes7838]

I have suffered from Fybromyalgia for a number of years, and for the last 4 years I have lived in Spain, and the Sun really helps with my pains.

[@JonasAnandaKristiansson]

Blessed! I wish we had more sun and warmth, light in Sweden. Be well

[@XOPaulineJo]

girl! thank you for this video. i've had fibro since 2010 and still struggle but it's much better than it used to be. you seem really genuine and sweet! i hope you'll make more videos! it's nice to know i'm not alone

[@LiddyAlvarez]

Sending you love ❤️ will start uploading more consistently soon

[@Stephanie-hv1vn]

what is one thing that you think helped you get better the most?

[@kjaxn-bn4d715]

Thank you for sharing.. I thought I was young 😊 I have every one of those symptoms plus some... although I'm not depressed. I do get seriously overwhelmed. My latest issue is my hands and my feet... they go numb but my hands hurt SOOO BAD sometimes.

[@LiddyAlvarez]

K Jaxn-Bn4d can totally relate! Urghh its such a frustrating illness. Try putting your hands and feet in warm water with epsom salt when you are feeling like that. It truly helps with circulation and pain.

[@fourtails1192]

8 months of pain in my neck muscles,chest ,upper spinal cord,calf cramps,sever tinitus ,a feeling like my nostrils have had something toxic up there🤷...blood tests,x-rays, m.r.i..,specialists, antihistamines, antibiotics,steroids..and no diagnosis. Now I've taken matters in to my own hands..started the paleo diet,meditation,deep tissue massages & also dosing myself with vit d3(5000 daily) vit c, b complex, zinc , tumeric & ginger ..all of this during this crazy covid situation. Still haven't seen any improvement as yet..I'm so convinced that I have Fibromyalgia..Now every time my son comes to see me it's like " what are you feeling today mum?"..he jokes about me falling apart at 55! & thinks it's a combination of me quitting smoking(over night) & my imagination 😒...

[@bennettawhite3634]

(A-MEN, A-MEN) YOU ARE SOOO ****RIGHT IN EVERYTHING YOU ARE SAYING.) I THANK YOU FOR UNDERSTANDING AND SHARING WITH US YOUR STORY.)☺☺☺☺**** YOU ARE JUST WONDERFUL, THIS INFORMATION HAS HELPED ME SO MUCH)

[@LiddyAlvarez]

Bennetta White im so happy this helped in some way, truly makes me happy to know i can help even if its just by providing my experience. Wishing you nothing but the very best my fellow fibro warrior friend!

[@millicentevans9232]

It is very hard to cope each day with fibro I have had it for more than twenty years now and I have to be strong in my faith in god to get on with my life with the help of my family this is the reason I am still here anyone that has fibro listen just hold on don't give up on yourself okay yes it's an invisable illness those around you must try educate themselves you don't need to keep justify why your not out if bed or why you can't do housework just go at your pace and do what you can prayer helps me please I beg you all never give up you will recover god bless you all

[@LiddyAlvarez]

Millicent Evans thank you so much for your kind words❤️ it is very true that it is hard to cope with an illness basically no one understands but its having this small community of people that makes me have hope❤️ im sorry that you also have to go through this fibro journey but know you are not alone! Gentle hugs and all the very best :)

[@lorrainealvarez8088]

No one understands. This has put me in with a very bad depression.

[@Picklescape]

Thanks for this video. I've just been diagnosed after 4 years of struggling, so I'm reading and watching everything I can.

[@kkx23]

Find a fuctional medicine doctor.They will treat you.Most people like us a a thyroid problem. REALLY .yes,I was helped by having a thyroid panel done with a reverse t3 blood test simple.I had trouble converting t3 to t4 caused me horrible symtoms .Pain chronic fatigue and sensitivity to cold.I could not sleep.I just thank God that I found a functional med doc.Look up Mary shomons book Or hypothyroidism type 2.Yoy will learn alot .Good luck to you.

[@Picklescape]

@@kkx23 hi Jeanne, thank you for your message. I'm glad it's helped you to have your thyroid checked and appreciate you taking time to advise me. In my case it's not my thyroid; we've been closely monitoring that since I had a brush with HYPERthyroidism 13 years ago, when my thyroid temporarily became intensely overactive and I couldn't keep weight on. Since then we've kept an eye on it and it's been in a healthy range. Since writing the above comment I've found a good regimen of medication, supplements and exercises that help with my fibro If it weren't for Covid-19, then 2020 would probably have been the best year of my life 😆. Ah well, next year!

[@skyehedrick9099]

I've been dealing fibromyalgia for a few years now. Depression and lack of energy is getting worse. Hear in Canada I cannot find a Dr and walk in clinics dont really have the time to follow up. So one day at a time. Hope I can deal with my life cause I cannot find any help

[@naseerahvj]

Try cbt and breathing if you can get your body out of fight or flight it can help a ton and you can do this yourself at home

[@Shawn2526]

find a Rheumatologist and make an appointment, they are very familiar and knowledgeable about Fibromyalgia, Diagnosis and treatments

[@daniellevictoria8189]

Thank You SO MUCH for this! My mother has Fibro and I am so fearful that the symptoms I am experienceing are signs that I have it as well. especially I am nearing the age she was when she was diagnosed. Im definitely subscribed!

[@LiddyAlvarez]

Danielle Victoria thank you so much for your support. Hoping you do not have this, but if you do, know that you are not alone. If i can be of any help dont hesitate to write to me. You can direct message me through: Instagram: liddy_alvarez (i share some recipes, tips and im much more active there) Facebook page: my fibromyalgia journey- liddy alvarez Email: [e-mail] Sending you love and thank you again for your love and support❤️

[@millierodriguez600]

thank you, this has being the worse thing that could had happened to me...I hope some day they find what is causing this and maybe find something that help with the symptoms...everything you are talking about I have the fatigue, and being so tire is the worse...

[@LiddyAlvarez]

millie rodriguez so sorry you have to go through this beautiful but just know you are not alone. My life has become a search for answers to find natural things that we can do to make the symptoms better. I hope that maybe some of the things I have tried or will try in the future can be of some help to you. Sending you love my fellow fibro warrior❤ you're strong and not alone!

[@lynnlawrence8993]

Liddy Alvarez 93rd

[@rflsr5276]

millie rodriguez hi have you seen Lyme???

[@millierodriguez600]

RFL SR.. are you asking me if I had the Lyme disease? doctor has done the blood test for lyme but he said I don't have it...thank you.

[@brendaechols5929]

I think I have this. I need to schedule an appointment. Muscle pain, weakness, neck tension, sensitivity, etc. This came from my work environment.

[@ReneeStevens98]

Excellent -- thank you! My rheumatologist really wants me to try LDN but my pain doc is pushing back since hydrocodone helps my pain... and, of course, you can't take any type of opioid while on Naltrexone. Your video has given me new ammo to take to my pain doc so he'll hopefully readjust my meds so I can try it. Ah, the joys of working between 6+ doctors! 😉

[@LiddyAlvarez]

I am so glad that I could help in any way. Let me know if you get LDN and how you feel with it. I really hope it works out for you :) xoxo

[@ReneeStevens98]

Liddy Alvarez Wow - many thanks and will do!!!

[@latoyagladney]

Renee S. dcqq

[@gaillavoie2626]

When i take a shower, it frrls like needles are hitting my body. GRRRR

[@LiddyAlvarez]

Same for me! :/

[@saintejeannedarc9460]

Switch to baths and hopefully that will help.

[@glendamillsfloyd4100]

I was also diagnosed with allergy to hot temps. Washing, washing dishes, food and temp outside

[@mnnomad1870]

I have every symptom mentioned but the complicate sleep disturbance even more my upper back is so sensitive I find it very painful between the shoulder blades to lay downand if I sit up too long I experienced the same problem and it actually hurts to take a shower. Can't find a doctor who will believe in me basically because I'm a guy. I have a bottle Prozac sitting at home I just don't think it's going to help May the best medical science can do is two Tylenol 4 times a day. Soo depressed. Doctor won't even agree to give him an MRI or other scans to totally or basically rule out other problems. Stay strong 💪

[@daviddebilov2301]

Great video. My wife seems to have this. It was really decent of you to share you story.

[@wildone1584]

Hi Liddy, Excellently described, I'm 60yr old male and was diagnosed 6yrs ago, my life stopped in 2015. I too have tried lots of meds but Not the LDN, could you please tell me, are you still on LDN todate. This video I'm watching was made 4yrs ago. Love the advise and will now consult my doctor, regards Ray. UK 🇬🇧

[@daniaalami8099]

Just been diagnosed, I can relate to every thing you said

[@marieclark4609]

Well I've tried many depression pills and none of them work for me at all so I just pray read uplifting things and watch something funny and that helps a lot

[@LiddyAlvarez]

Marie Clark research low dose naltrexone

[@RanaAli-gl3ox]

I have all the symptoms expect I manage to get sleep though it's difficult to wake up after long sleep..

[@cherylkoncewicz1866]

Thank you sooooo much you exactly describe it I finally got my pain mgt dr to get it I felt like like I was on my own ,I am not a hypochondriac. But faults not get them to understand. Thank you!

[@LiddyAlvarez]

Cheryl Koncewicz ❤️ wishing you better days my fellow fibro warrior. Sending you love!

[@manz_5128]

I happen saw ur video.. i am a 34year old guy and i teared watching this because what u re describing is what i been dealing with for years.. no one knew what i am feeling.. can i get ur email for xplaination..i really need help..

[@LiddyAlvarez]

Manz _512 im so happy to know that i can be of some help. Email me at [e-mail] i would love to help!

[@bredacookecooke1313]

Annoying music

[@hildelezaron1423]

Thank you for putting into words those vague disturbing pains

[@mohammadasaad1508]

I have been having Fibromyalgia for 33 years now, can you believe it! It started with the brain fog when i was 13 , I was ranked first at overall evaluations at my school over more than 400 pupils, i had a photographic memory, then when I developed this illness, i started to forget the line that i just have read a minute ago.

[@LiddyAlvarez]

mohammad asaad wow! Incredible story. Wishing you’ve found techniques in this time to help you cope better. Wishing you nothing but the very best❤️

[@hardikaggarwal2051]

Is anyone have shortness of breath in fibromaylgia

[@mohammadasaad1508]

@@hardikaggarwal2051 i do have shortness of breath

[@christinasmith6845]

I have Fibromyalgia, Sjögren’s Syndrome and Rheumatoid Arthritis. I’m in a lot of extreme pain. Then I have a hard time getting up from the couch and getting in and out of the shower. I’ve seen so many specialists, and I have to see more. No one knows what is going on with my legs. And I’m trying to file for disability, because I’m unable to work. My fiancé left me on Christmas Day this past year. I have been feeling alone lately. My Neurologist wants me to get therapy for my legs, and now I feel like disability isn’t going to give me disability because my Neurologist is having me get therapy. And there’s nights where I can’t sleep, or there’s times where I sleep the entire day away. I just don’t know what to do. Any help would be greatly appreciated.

[@LiddyAlvarez]

Christina Smith hi Christina, wow im so sorry to hear you are having such a hard time. I totally understand your frustration and pain. I can give you some natural things you can start doing on your own to see improvement in your condition for sure. Please write to me to my email and I will reply with some tips you can start implementing in your daily life to better your quality of life. Sending you love and know you are not alone. [e-mail]

[@angielordan3821]

Fantastic video, thank you for sharing xxx

[@LiddyAlvarez]

Angie Pangie thank you for your support and feedback❤️❤️ you’re awesome!

[@lisamedeiros7581]

Thank you for telling your story and information. Thank you for all the tips

[@corrinnegarfield2460]

SKIN SENSITIVITY... MYOFASCIAL PAIN SYNDROME..mine is Chronic from September to May.. Do what you can to eat, at least breakfast,, I didn't and got prediabetes,,, bordering type 2.. at 48 years old, I started eating breakfast.. literally a couple teaspoons of oatmeal.. now I'm 55 and am starving when I wake up, diabetes not a problem now.. but I had to take metformin for the first 18 months. FULL thyroid panel.. my thyroid works fine, it's the traffic cop that directs it to where it goes next.. GET THE FICK UP!! no matter how it hurts, weak muscles hurt more.. I get up when I wake up while I'm still in that wake up mode, before the pain inventory floods in.. I'm not HURTING MYSELF moving.. I just make sure not to OVEREXTEND OVER STRETCH.( many of us are double jointed or can over extend, which YOU SHOULD NOT DO. Pt can show you how far is normal range, try to stay in that range.. I take a quarter of 5 mpg Percocet,,, stopped IBS in its track, and gets me the F up.. so I can get my own adrenaline and dopamine by accomplishments of what I get done in a day.. All you describe is what was done for me in the 80s plus intuitive nature of Me, since I was a kid Cranial Sacral,, 18 months before I moved away from her,, she gave me an sports med guy for 9 months snd retrained EVERY MUSCLE IN MY BODY! Been 14 years and I need it again but no one does it here. Cranial Sacral got me standing straight up, shoulders back..