A CFS Pacing Tip that Helps You Recover!

[@bobbiev7062]

Hey there folks. I just want to pass along some of the joy I feel in my heart, and give others who may be in a dark place some hope today. I've been there. I've been following Raelan's suggestions in her videos and book for 6 months. I had severe CFS for 10+ years. For the first time in all these years I am seeing real change. I just returned from my 35 minute walk and caught myself dancing while doing some light chore. Most importantly, give yourselves lots of love and compassion throughout the process because we are dealing with such a unbelievably different journey. We are all worth it! Raelan, love you to bits!😁 B

[@kathystoner5239]

Thats great! Gives me hope!

[@bobbiev7062]

@@kathystoner5239 This makes me happy.

[@RaelanAgle]

What a wonderful message to take the time to share, Bobbie ❤️ I'm so happy for your progress and grateful for who you are as a person ❤️❤️❤️

[@sarahmaurice3930]

So amazing to read :)

[@cecilialindblad6481]

Thank you so much for telling your story🥰 I’ve had CFS for 8 years and when looking at this now I can take in the words of how to do pacing and thinking of MYSELF first. I’ve tried pacing and for me (and my brain) it has been too challenging and got chaotic. Your story give me hope also❤️❤️

[@janswimwild]

This is great advice. When I was first diagnosed with ME/CFS my then GP told me that I should compare it to bankruptcy. Even on good days you start off in the red, so managing energy use becomes a matter of survival, with self being the first creditor. It took me a very long time to become that organised as a mother of very young children with other demanding major familial issues, in fact a couple of decades!

[@RaelanAgle]

What a great way to explain it! I can't even imagine Jan, what this is like with young children. I guess we just do what we can 💛

[@user-cb8sg9py7r]

Im a mom of small children and im struggling with the same thing I try to give them any energy I have as its all essential!

[@deborahrainey4810]

Just came across this video, 3 yrs after you made it! It is a great video with a great message, I think something we all need to hear always throughout our lives. Thank you

[@jocooper94]

Great video.. just learning that pacing is the answer… I do an activity then rest and this happens throughout the day. I try and space my physical and mental activities out too so that there isn’t a physical activity followed by a physical activity… thank you so much for your videos ❤️

[@RaelanAgle]

This is so smart, Jo!

[@nikowearden252]

so important to remember about the dips, and that it doesn't mean that you failed!

[@RaelanAgle]

Yes!! Sending ❤️❤️❤️ to you, Niko.

[@sumaznkid124]

Always take deep breaths as much as you can 24/7 if possible, it teaches me to do everything in calmly fashion and not get over excited over anything. When I had it bad and I needed to work, I pushed through by doing deep breathing like almost second of my shift and it helped a lot.

[@RaelanAgle]

Amazing sumaznkid, Thanks for sharing this!

[@weylandwong171]

Gosh... thanks for getting us grounded. I had the "pacing" process all wrong as I go about doing all my daily tasks and chores gingerly and not doing a great job if taking care of myself until those instances where I think hmmm.... I better slow down or I'll crash. Doing a quick reset starting now... to truly "Pay Myself First"! Great essential tip! Thank you Raelan!!

[@RaelanAgle]

I suspect most of us approach things this way! It's understandable. Good for you Weyland for shifting your approach ❤️

[@alanpeters3378]

Thanks Raelan , great video on Pacing , it has helped heaps . I like the way you are always mentioning “ and as you improve “ very positive. Also putting your self first a great tip. As a husband, father and grandfather you don’t put yourself first. Thank you ☺️

[@rsalbatros]

Great Video. I feel your love and authenticness. Let's all have tracejectory. I could not spell it either 😂 ❤❤❤

[@yomnayoussef552]

Thanks a lot for sharing. Yesterday was the fifth day for changing my food diet and it was the best day for more than a year of illness and fatigue 🙂

[@RaelanAgle]

That’s amazing, Yomna! I’m so happy for you 😊

[@Iisabellllle]

Could you give some more info please?! Well done! Xx

[@andmk1]

Good video and thanks for producing bite sized videos. Sometimes I see other blogs or videos on CFS/ME and they last far too long for people with limited attention/energy. By the way, I still help others and do small amounts of voluntary work. This is tremendously fulfilling and gives me a purpose in life. So for me it's a balance between me 1st and me 2nd.

[@RaelanAgle]

That makes sense, Andrew! Thanks for sharing 😊

[@Jade-bf5we]

Loved this Raelan. So very true. You can't give to anything if you can't give to yourself first. The same as you can't love others if you don't love yourself. It's all about being holistic and being real. Especially when we are experiencing a dip or a flare up in symptoms. Be kind to yourself. Not beat yourself up by saying. "Looking back I was doing to much, to soon". Like I did last week when I had my recent flare up. I'm finding recently though, that every flare up I have this fear has now presented itself. Such as, I would like to do this one minute of cleaning but if I do it may push me over and send me backwards.

[@PascaleDesrosierHickey]

FLY baby FLY (First Love Yourself) ;) is a spoonie mantra

[@RaelanAgle]

I love this!!

[@jessicam807]

I am always comparing myself to my "old self", this is good advice. Thanks 😢

[@RaelanAgle]

It's understandable, Jessica. I suspect we all do it!

[@verenameyer3167]

Yeah, for me this is also the hardest part. My Old Self was so full of energy and could do so much, so hard sometimes to not want that back and feel a bit moody about having to pace through life now. Thanks for your great insight, it’s motivating to hear that I am not alone in the journey!

[@AshleyOliviaDaCosta]

Yet again. Your timing is impeccable. 😅

[@RaelanAgle]

Haha oh that's great, Ashley!

[@EndersWorlds]

Needed to hear this today, had an unsettled few months with lots of external factors affecting my ability to effectively pace, and I'm just trying to get back into it all now having lost quite a bit of my level of functioning over the last year, need to get strict wiht my recovery, make it my everything again, I know it works because I've had some prgoress in the past, bit these reminders are just getting me back in that head space again!!

[@RaelanAgle]

I’m sorry to hear that things have been challenging lately, Kate. But so happy to hear you have found you focus again!

[@marilynharrison3829]

Do you have a video on just fibromyagia? 😊

[@HealwithLiz]

Amaaaazing. So good. Every second of this video was gold, and I love your analogies and examples. Such important advice for health recovery and to anyone for that matter.

[@RaelanAgle]

Aw thanks so much, Liz!! Glad you enjoyed this.

[@valdoneporcheddu1200]

Bless you Raelan 💕🕊🌿this is exactly what I needed to hear right now to keep going. Sending much love to everybody here 💌

[@RaelanAgle]

I'm so glad this was helpful, Valdone!

[@garysullivan8567]

Thanks for a great video Raelan, taking care of yourself first is what you have to do to help your body heal. I also find that it helps sometimes to give your body a day off for rest when your body warns you that you did too much the day before. You can always go back to what you had planned the next day, that method seems to work for me. I can tell you know CFS well Raelan, what you said makes sense.

[@RaelanAgle]

That is such a great strategy, Gary. Thanks so much for sharing it!

[@jo-annsiebert4860]

This is very powerful,thank you Raelan.

[@myfamily7001]

I do look forward to your videos! You're doing a fab job - thank you for helping us!! With love from the uk 🇬🇧

[@RaelanAgle]

What a nice thing for you to take the time to say, thank you!

[@sarahdean6441]

Thank you, great video, thank you for your sharing compassion and wisdom. ❤

[@theanicca]

This is great advice. Stop apologising though. There are so many apologies and fawning in here. Great to see you can recover even when you do have some of that energy happening, so thank you. And, I'd love to see what you create without the apologies!

[@kathystoner5239]

I love this video so much! My main focus right now is pacing. I have had a dip, but you are right it is good to look at the overall trajectory!

[@RaelanAgle]

Hey Kathy! Sorry to hear about the dip. You are so insightful with your health though and dedicated to recovery, I'm sure your trajectory is amazing ❤️❤️❤️

[@kathystoner5239]

@@RaelanAgle thanks!

[@stacylamotte5517]

Wow! Needed this today! Great encouragement and I appreciate it so much!!! Thank you Raelan!!!

[@RaelanAgle]

💓💓💓

[@kathymc234]

Thanks for the quick tips. They are perfect.

[@RaelanAgle]

Awesome! Glad you like them, Kathy 🌟

[@heidivenli9790]

Love your short videos! 💜 So helpful and inspiring 💫

[@RaelanAgle]

Awesome, great to hear Heidi!

[@paulsenjohannes]

Lol... you are a funny girl. I love your presentation style and courage to do this. Your discipline really impresses me.

[@RaelanAgle]

Aw thanks, Johannes! Making me smile as usual 😁

[@sassyd7286]

So needed here this❤ Exactly what going through right now!! Trying to recover from major, almost year long flare & body shutdown - but any kind of progress (micro right now), is then sabotaged. Focusing on changing the things I may be doing that could be contributing to it, but some things are simply out of my control. Have any suggestions on how can explain to my caregivers - that the up & downs, backwards & forwards being a normal process in recovery? Appreciate any suggestions you can give me.

[@mariestein4026]

Today I really needed this! Thank you, thank you so much, Raelan, for your work and support on your channel! Greetings! 🇫🇮

[@RaelanAgle]

I appreciate that so much, Marie! Thank you ❤️

[@mariestein4026]

@@RaelanAgle ✨💚✨🍀✨

[@KWilliams22]

Awesome video as always Raelan thank you....I've always struggled with pacing...I recently attended a course on pacing with Pamela Rose...I can vouch that its really comprehensive and its going to help me a lot!! X

[@RaelanAgle]

That’s amazing! Glad it’s been helpful Keren 💛

[@birgitlilliehook5139]

This video was soooo important and good, I really needed to hear exact those words today. Thank you Raelan for the job you do. Every night when I go to bed I check KZbin (in night shift mode of course 😊) to see if there is a new movie from you, they are so helpful ❤️

[@RaelanAgle]

I'm so glad, Birgit! I'm happy this was helpful and thanks for taking the time to leave me such a kind and supportive comment ❤️

[@degeest5571]

I like that, pay yourself first. Thanks

[@RaelanAgle]

❤️❤️❤️

[@joannacorrado]

This is really helpful Raelan. Particularly chimed with the Part about not panicking if there's a blip and to keep focused on the overall trajectory. One thing I've been trying to figure out is how to increase activity whilst still pacing? Any tips on this? It confuses me slightly!

[@RaelanAgle]

Yes that's a challenging one, isn't it Joanna. For me it was about doing it very slowly, and focusing my activity increase around things that were helping me recover (like stretching, building strength, as opposed to cleaning and so forth.)

[@laurenrose5986]

Needed the reminder about the overall trajectory today! Thank you!!

[@RaelanAgle]

💓💓💓

[@planchernewfinish]

the best video on the subject I've ever heard! thank you so much

[@RaelanAgle]

I really appreciate the kind words, Denis! Thank you 💓

[@Jane-pg8jv]

Thank you so much Raelan!!! ❤️ This is so enormous helpful 🙏🙏🙏🙏🙏🙏 P.S. i have more energy since a couple of weeks 🤩, but the chronic pain is still in my feet…and tremors at night? Maybe there are more cfs/me people who have that pain? So maybe maybe a clip🎥 about cfs/me and chronic pain? I can not find so much about it…lots of love from Holland 😘

[@RaelanAgle]

Hey Janna! That's amazing about the energy, I'm so happy for you! That's a good topic idea about the pain, I know many people like yourself unfortunately face this. I'll see what I can do 😊

[@Jane-pg8jv]

@@RaelanAgle you are an angel ❤️

[@alexandraalbertz1442]

Janna, I follow ANS Rewire program for recovery. Dan has a few interesting lessons about pain and how to rewire it.

[@Jane-pg8jv]

@@alexandraalbertz1442 thank you Alexandra ❤️🙏

[@mrsi82]

Such good advice.

[@gracielakaras1462]

@raelanagle dear, I'm in Buenos Aires, Argentina. LC/CFS, 63 year still working in a bank office due to bad local economy. Would you tell me if you have specific videos about how to manage my job situation with this condition? Thank you so much.

[@lynnlasak4089]

Love this!

[@RaelanAgle]

💖💖💖

[@michelew7688]

How do you pace in this way if you have small children and a house to take care of.?

[@RaelanAgle]

Hi Michelle, I can't even begin to imagine who challenging this all is with small children. I guess we do what we can - lower expectations on house work, ask others for help and support, and so on. I haven't gone through this with children, so any tips you have to share I'm sure would be appreciated by others who also have children ❤️

[@anna-marieeasmus7529]

I have had small children with cfs. It is very difficult, but I have learned to prioritize. I would say 1. Pay yourself first 2. Take care of the kids (basics) 3. Dishes and food 4. Laundry as able 5. The rest I would walk through the house every hour. The first hour was opening up windows and curtains. The second was picking up any dishes to take to the kitchen. Third hour was picking up laundry and put in washing mashine to wash. Just organising. I could not clean. I must admit I was probably a mild case. Now I can not do any of those things. Luckily my kids are teenagers now and they do some of the stuff. While you are sick a perfect / clean house is not a priority. My husband helped a lot as well.

[@anna-marieeasmus7529]

Walk throughs probably only take 2-3 minutes at a time. If possible sit on a couch /lie on the bed and read stories to your kids / watch a nice movie with them. Giving them positive mommy time is so important for all.

[@glazieledasilva32]

@@anna-marieeasmus7529 I have 3 kids and I have been in bed for a month now. I don't know how I will figure this out

[@anna-marieeasmus7529]

@@glazieledasilva32 I am so sorry you are going through this. It is a very difficult time, even without kids, but our mommy hearts and the basic needs of our kids just add on to this difficulty. I will pray that God will give you strength and wisdom. Do you have a helpful husband or a parent or sibling or even a friend that will be willing to help with some things like cooking or buying food? If it was not for my husband's help when I had bad relapses, I do not know what I would have done. 💐

[@gailducrest8851]

Now that you are recovered, do you no longer have crashes?

[@olgalevinsky1184]

Love short videos👏

[@RaelanAgle]

❤️❤️❤️

[@dawnriddle-knowlton9932]

This GOLDEN!!

[@Moonstonee212]

1:24

[@MaatsMerkaba]

Fill up your cup first, and only then you have enough to spill over to others.