A CRISIS OF MEMBERSHIP for people with disabilities

Myalgic Encephalomyelitis (ME) is one of the most disabling conditions on earth. It affects 1/250 humans. Most ME patients are women (75%).
The term CFS / Chronic Fatigue Syndrome is unhelpful, and I generally refer to this condition as ME.
I am sadly aware that many patients with Long Covid are joining the ME community.
MEpedia entry on ME - me-pedia.org/wiki/Myalgic_enc...
MEpedia entry on cognitive dysfunction in ME - me-pedia.org/wiki/Cognitive_d...
My Twitter: where you can find my Twitter diary on living with Myalgic Encephalomyelitis is up to 150 episodes - / vladvexler
Insta - / vladvexler

[@SlpBeauty333]

Ugh, I feel this in my bones. I just got done fighting with my job about a medical accommodation because I'm immune compromised and surprise! You don't have to have the booster for COVID to come to campus. They're trying to force the students to come back to campus. Also, there is no mask mandate. Is anyone surprised that a lot of faculty have had COVID? So I'm teaching from home again and I'm so sick of this level of isolation and the toxic manipulation at work. I hope everyone is doing ok today. Love from NYC ❤️

[@roddrysdale3317]

Vlad, there is a gruff saying in Australia. “ fuck you Jack I’m ok” well I feel that as a society we are at this point. Everyone wants to get back to their normal without considering vulnerable others. As a double lung transplant patient I see this behaviour everyday. The politicians no longer want to make easy decisions around isolation or masks…. As a vulnerable group we need to run the gauntlet…. It’s a fine line between risk and living a best life. Ps. Love your main channel. Good work.

[@darlingstuff1560]

those vulnerable others....had their chance at health....and cannot be held as a stick over the healthy population......throw of a dice gave us our lot......those with integrity live it without emotionally blackmailing a single other .....without cowering or cowardice 'in case' someone is affected. they are not. there is an ENORMOUS bollus of fakery and financial/power interest behind this media driven whipping the public to obey and self imprison. I have never worn a mask, distanced or stayed indoors more than 10 days the whole time.....by choice.

[@gaoshikui88]

I had fleeting thoughts about dread of the reopening for the reasons you mentioned. Thanks for elaborating

[@SarahCoxWrites]

I have been terrified of things opening up. Despite all the non-mask wearing, knowing that it will draw stares and condemnation, I am still wearing my mask. I HAVE to do that to help myself feel safe. But it is not easy especially as the "let it rip" part of society has seeming increased so much. I am caught between needing to protect myself (I am homebound and partly bedbound ME/CFS) and not wanting to attract the ire of society at large.

[@PandemoniumMeltDown]

It's a known fact that not everybody can be included in the "herd innoculation/immunity" concept for specific health concerns, making the concept imcompatible. Yet there is still major issues on the diagnostic side of the medical professionals. The discrimination aspect must be resolved with education and sensibilisation. Then you get what you feel it is that you need and deserve. The space to be you, with all it means to be you, and the ressources to help you and people around you to support you in this life. Men tend to be selfish, leaders tend to be men, this also needs to change, more and more. (I know selfish women, of course) I can't remember one bad selfless leader, unless they're imcompetent... People tend to take health for granted until it's lost. Some just spend their life being a bigot, which should be a disqualifying factor when it comes to leaders (not bosses, whom are bigots by nature and seem to be beyond any help). Masses are special animals, yet are often a reflection of their leaders methods. I prefer to act upon the leaders and make sure they understand completely, that they foward the message properly and that it's processed with the seriousness and respect it deserves. I wish you all the best. 😘

[@darlingstuff1560]

hahah....my immune system is FAR superior to any paper/cloth mask. if your mask can allow cigerette smoke through....it is a fantasy security. so-called viruses are many times more microscopic than smoke atoms. And why does any adult need a security diaper on their face? ridiculous look. head up, spine straight....and go out into life as God made you. soon you will embarce the life we are meant to lead...free of globalist emotional tyranny. or....wilt at home and play victim without her mommy holding her hand and spoon feeding her.....

[@ash0787]

still covid free here as far as I can tell despite going out hundreds of times, maybe its luck, I don't know, I do avoid large crowds of people and dense urban environments as a general rule, theres worse things that can happen in those situations than catching this new virus.

[@thereal8ball975]

Nah bro. We going back to normal.