Christmas message for people with ME

Whats is ME? me-pedia.org/wiki/Myalgic_enc...
Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter
Vlad's main channel - / vladvexler
Vlad's Chat channel - / @vladvexlerchat
Vlad's philosophy channel - www.youtube.com/@VladVexlerPh...

[@VladVexlerME]

Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis Vlad's ME diary on Twitter - search the hashtag VladsMEdiary on Twitter Vlad's main channel - kzbin.infovideos Vlad's Chat channel - kzbin.info/door/n7XHZiW6EUgSuxItybLLMgvideos Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos

[@jemimairving8472]

Vlad, I like your analogy and was considering how to extend it. Is it possible that the ocean itself is invisible, not merely us whe we are in it? I am thinking that when we emerge, perhaps we are carrying a seashell - you know how sometimes a shell makes a sound like the sea when you put it to your ear? - we know we have it with us, but, being part of the sea, it remains invisible to others.

[@andyknights6552]

Thank you for your beautiful explanation of how difficult this time of year is for fellow ME warriors ❤ much love hope for a special moment to all who are unfortunately suffering in silence xx from fellow ME survivor of 15 yrs patricia knights ❤

[@christopher9727]

... Only Jesus Christ blood can cleanse us of are sins come to Jesus Christ today Romans 6:23 For the wages of sin is death, but the free gift of God is eternal life in Christ Jesus our Lord. Come to Jesus Christ today Jesus Christ is only way to heaven Repent and follow him today seek his heart Jesus Christ can fill the emptiness he can fill the void. The Holy Spirit can lead you guide and confort you through it all Heaven and hell is real cone to the loving savior today Today is the day of salvation tomorrow might be to late come to the loving savior today John 3:16-21 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. 17 For God sent not his Son into the world to condemn the world; but that the world through him might be saved. 18 He that believeth on him is not condemned: but he that believeth not is condemned already, because he hath not believed in the name of the only begotten Son of God. 19 And this is the condemnation, that light is come into the world, and men loved darkness rather than light, because their deeds were evil. 20 For every one that doeth evil hateth the light, neither cometh to the light, lest his deeds should be reproved. 21 But he that doeth truth cometh to the light, that his deeds may be made manifest, that they are wrought in God. Mark 1.15 15 And saying, The time is fulfilled, and the kingdom of God is at hand: repent ye, and believe the gospel. 2 Peter 3:9 The Lord is not slack concerning his promise, as some men count slackness; but is longsuffering to us-ward, not willing that any should perish, but that all should come to repentance. Hebrews 11:6 6 But without faith it is impossible to please him: for he that cometh to God must believe that he is, and that he is a rewarder of them that diligently seek him. Jesus

[@steveolotu52]

We're all different with symptoms and causes of ME/CFS. But I just got miracle-cured within 3 days using Nattokinase (4000 FU). I'm literally doing sports now - a few days ago, whilst resting in bed, I needed to breath with my mouth, as I couldn't get enough air with my nose and sitting upright caused almost instant vertigo. Maybe you're lucky and have my specific case, too. Costs 5€ and has few side effects (but, of course, please check and consider them before taking it!!!).

[@charlesm9190]

Vlad have you resigned, with the conversational treatment, to live with this condition, or you're open to the fact that there's a way out of this condition through means that are not yet known to you but yet exist and available to others?

[@MyLifeInDebt]

I’ve had “long covid” that the doctors say will “just take time to get better” and its been years now and I am still tired all the time, and still can’t smell - one day of too much activity makes me tired for several days. I pray for the people who have it worse than me. Thinking of all of you and praying for a cure

[@blarblablarblar]

Damn. Sorry to hear that, hope things turn out better someday!

[@sumiland6445]

I recovered from covid 3 years ago and haven't had it again. I hope you do eventuly recover fully. In the meantime, love who are, be comfortable with what you can do, don't dwell on what you can't. If other people don't understand,, try not to feel it as a judgment. We're hard enough on ourselves, we don't need to add to it 😄 i hope you have a blessed holiday. 🤗

[@philippajoy4300]

I was made redundant because of ME. in 2003. There is always someone worse. Let's your suffering engender the kind of humanity Vlad shows, and may you recover fully in the fullness of time. X

[@djopdam199]

Just want to give everyone a BIG hug... Life isn't fair but still very beautiful and special. Thanks Vlad for being an inspirational beacon.

[@websurfer5772]

Hugs back to you too, dj. 🤗

[@suzannstrohmaier2578]

🤗

[@mangorules3013]

i love "inspirational beacon"

[@christopher9727]

Only Jesus Christ blood can cleanse us of are sins come to Jesus Christ today Romans 6:23 For the wages of sin is death, but the free gift of God is eternal life in Christ Jesus our Lord. Come to Jesus Christ today Jesus Christ is only way to heaven Repent and follow him today seek his heart Jesus Christ can fill the emptiness he can fill the void. The Holy Spirit can lead you guide and confort you through it all Heaven and hell is real cone to the loving savior today Today is the day of salvation tomorrow might be to late come to the loving savior today John 3:16-21 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. 17 For God sent not his Son into the world to condemn the world; but that the world through him might be saved. 18 He that believeth on him is not condemned: but he that believeth not is condemned already, because he hath not believed in the name of the only begotten Son of God. 19 And this is the condemnation, that light is come into the world, and men loved darkness rather than light, because their deeds were evil. 20 For every one that doeth evil hateth the light, neither cometh to the light, lest his deeds should be reproved. 21 But he that doeth truth cometh to the light, that his deeds may be made manifest, that they are wrought in God. Mark 1.15 15 And saying, The time is fulfilled, and the kingdom of God is at hand: repent ye, and believe the gospel. 2 Peter 3:9 The Lord is not slack concerning his promise, as some men count slackness; but is longsuffering to us-ward, not willing that any should perish, but that all should come to repentance. Hebrews 11:6 6 But without faith it is impossible to please him: for he that cometh to God must believe that he is, and that he is a rewarder of them that diligently seek him. Jesus

[@carlonyberg-kf6dc]

Thank you for the most well formulated, explanatory and empathic description of ME I've come across in my 31 years experience of it. /Carlo, Sweden

[@MuirgenRaz]

❤ ..yes, same sentiment here -- in my 25 years. ✨️🕊 USA

[@suspdx]

That was beautiful. I have Lupus, not ME, but any chronic condition has some of these characteristics psychologically. Thank you Vlad.

[@allisonmarlow184]

I can't believe how much you're hitting the nail right on the head. It's sobering, and yet so very true. Thank you for speaking up and for sharing. This is what really separates the men from the boys!!

[@russetmantle1]

I wish you much surprise and exploration this festive season, Vlad. Thank you for being there to guide us through the rigours of 2023.

[@humanitarianH]

Thank you, Vlad. There are so many people who have to manage a chronic illness everyday including me. We see each other and appreciate the effort we all contribute. Love to you and all of us that deal with health conditions. Merry Christmas and a happy new year to you and everyone here 💛

[@websurfer5772]

Happy Holidays to you as well.

[@hannekezijlmans6578]

This year I get to spend Christmas with loved ones who understand to a varying degree that my presence at the table is borrowed time. I call it Cinderella Syndrome, I get to almost convince myself I can function somewhat normally, although my curfew isn't exactly midnight... But to hear you explain it, as you really understand on a deeper level... That really is the sweetest Christmas gift I could wish for. A merry Christmas to you, and a magic 2024. ❤

[@MichaelMoranGearHead]

I don't have ME, but I do have life long severe anxiety in many forms along with it's constant companion depression. Your description is very familiar to me. It is how I experience events of the traditional gathering kind. It is always very painful. I have to force myself to participate, and dress up, and smile. Often I don't participate because I must watch my mental health closely and avoid situations that will be to taxing. Thank you for your description. It was a perfect description of living with an isolating illness. Lots of love and good luck with the holidays! - Michael

[@morebirdsandroses]

You are so right. Doling out the times we can do okay enough for now. All good things to you. 🌹

[@christopher9727]

Jesus Christ saves He had mercy on me he can save all who all seek him today He made away through calvery repent of all sins today Romans 6:23 For the wages of sin is death, but the free gift of God is eternal life in Christ Jesus our Lord. Come to Jesus Christ today Jesus Christ is only way to heaven Repent and follow him today seek his heart Jesus Christ can fill the emptiness he can fill the void Heaven and hell is real cone to the loving savior today Today is the day of salvation tomorrow might be to late come to the loving savior today Holy Spirit can give you peace purpose and joy and his will today John 3:16-21 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. 17 For God sent not his Son into the world to condemn the world; but that the world through him might be saved. 18 He that believeth on him is not condemned: but he that believeth not is condemned already, because he hath not believed in the name of the only begotten Son of God. 19 And this is the condemnation, that light is come into the world, and men loved darkness rather than light, because their deeds were evil. 20 For every one that doeth evil hateth the light, neither cometh to the light, lest his deeds should be reproved. 21 But he that doeth truth cometh to the light, that his deeds may be made manifest, that they are wrought in God. Mark 1.15 15 And saying, The time is fulfilled, and the kingdom of God is at hand: repent ye, and believe the gospel. 2 Peter 3:9 The Lord is not slack concerning his promise, as some men count slackness; but is longsuffering to us-ward, not willing that any should perish, but that all should come to repentance. Hebrews 11:6 6 But without faith it is impossible to please him: for he that cometh to God must believe that he is, and that he is a rewarder of them that diligently seek him. Jesus

[@sueklausshow]

Thank you, Vlad. You put it perfectly, how if we show up we have to lie to ourselves that everything is fine, just to get a moment of normalcy. And then pay the price in more intense symptoms because we tried to have one day. I wish you better health, and sufficient rest to keep going. Have a Happy Holiday season, and know that as you tell us, you are not alone.

[@jadoei13]

Got long covid earlier this year and was initially trying to get better myself. I thought pacing couldn't be complicated. I ended up plateauing after about a month or two. Luckily my GP sent me to an occupational therapist. They gave me the tools to not go over my limit again and as a result I've been slowly improving for the past few months. Still hoping to get back to some form of normality but let's see how next year goes. Thanks for this beautiful description of what it feels like. It's nice to hear from someone who understands what it's like. Have a nice christmas!

[@mjpfl8131]

Vlad, I've passed on your message to friends and family. None are dealing with ME, but most are dealing with something. I appreciate your kindness and compassion so much. Life is uncertain, but love and faith endure. There are times for everyone when love and faith seem like distant memories and it's hard to get through those long days and longer nights. At such times, it helps to feel supported, even from a distance, and to recognize our common humanity. Best wishes for everyone's health!

[@FionaC1]

Thank you Vlad. This is so true, and I wish more people appreciated how life is for this community. I hope you have a peaceful and happy Christmas x

[@ozlemdenli7763]

i hope you have a merry christmas

[@ChiarelOD]

Thank you so much for your words, Vlad. I wish you a merry Christmas with all my heart. I'll be able (I hope) to spend a few hours with my three children and it's magical. I send love to all ME and Long covid sufferers

[@leonalii1533]

Wow... You are such an extraordinary human being to act with so much dignity and love in a situation that we cannot even imagine... Luckily I am not ill, only suffering from a recent loss of an adult child... much love to you❤

[@carolevincent7743]

Both my husband and my adult child died from cancer, and I can relate to what Vlad says. May you experience moments of peace and love.

[@boogiebegs]

wow, oxygen for my soul... thank you Vlad for being a compassionate, wise voice for our community... wishing everyone peace and love this holiday season... ❤

[@deevo9788]

Thank you... Have had CFS/ME for decades... You're words brought a tear to my eye as it is such a rare thing to be understood and have it so well articulated.

[@JochenVogel]

Thank You Vlad. My love and I are planning to visit both our families this Christmas. I'll get a very lazy (probably sick) day in between the two visits and hope for the best. I've learned to manage my limitations a bit, but sometimes I still overestimate my capabilites and pay for that. So I can't blame the people who don't get it. I often don't get it myself. Anyway, merry festivities and a happy new year!

[@jennifer7953]

Thank you Vlad and Merry Christmas. I wish for you to do a small video on why so many people disbelief ME patients even with all the evidence put in front of them and your wisdom on how to handle this. Evidence doesn't seem to change people's minds and I remember you writing something before about how images retreat in to the subconscious mind.

[@philippajoy4300]

Aw, Vlad, over the months your voice has become friendly, a voice of wisdom born of suffering offering realistic hopes not damn fool ones. That's for that Christmas wish xxx

[@begr_wiedererkennungswert]

Hey you, wish you less swimming laps in the poison sea in the next year, but much life, better health for you and people close to you, and very precious bits of this magic. ❄

[@suzannstrohmaier2578]

Thank you so much for such a beautiful message...sending much love to everyone in the beautiful community this holiday season🤗🤗

[@darrenislar1053]

Dammit Vlad, ,you made me cry!! Thank you for understanding what you are going through yoursef

[@jellyfish1969]

We learn about parenting, friendship, work, etc from our culture. From interacting with everybody. Nothing teaches how to navigate chronic illness. There isn't a class on it, it's not part of the culture, we're all pioneers and it's nice to hear from another pioneer. Nicely done.

[@CaroAbebe]

Thanks for your metaphors, they do help. Sending lots of love your way, Vlad ❤

[@corinaking2052]

Your ocean analogy is beautiful Vlad. I wish you "Comfort and Joy", this Christmas. These are words that are especially meaningful for anyone suffering with health issues. ❤

[@user-gb7ck9xw8h]

Thank you Vlad. I’m so glad that I stumbled upon you nearly two years ago, and I really appreciate listening to you as I go about my day. I can relate to the chronic illness experience. I’ve had Ulcerative colitis for nearly 30 years, and historically Christmas has not been fun. As I get older , after struggling so often, I have to say that the times when I am well enough are very rich, and I relish the simple everyday pleasures of just being. Thank you for your clarity, your lightness and your Birds Eye view. Wishing you health and happiness this Christmas and every day.

[@morebirdsandroses]

Thank you so much. It is now a reality what I share with others who are "here for as long and as well" as we can be. Moments of magic, of sparkle, of wonder are what I wish for all my fellow in-betweens for now and all next year. ❤❤

[@suzannewman979]

Love you Vlad. So nice to hear from you and your empathy for all. Have a gentle and loving holiday.

[@nejdudinhorunge]

I really miss being able to participate in events with friends and family without having to worry about triggering my severe fatigue. I have MS instead of ME but your words made me feel seen and understood for a moment. thank you ❤

[@morebirdsandroses]

Feeling seen. What a gift. 🌹

[@beckyconstantinides2546]

Dearest Vlad, I have learned so much from your Being this year.thank you. May you have majic and delight.❤

[@carolevincent7743]

Wishing you little, surprising moments of magic, too, Vlad.

[@untransigent8825]

Diagnosed with MS at 35 (now 40) after a lifetime up to that point of health normality. Transitioning from land to sea, in that analogy has brought about a different perspective and cognition of disability that comes suddenly or is a change that is, of course, unprepared for. Love your content, love your perspective and while I commiserate sincerely with your prognosis, I also understand the reality that we're not escaping it. Where just maintaining comfort can be a huge win some days and "good enough" is a freaking brilliant. Mourning loss of ability is still something I've never gotten over, for example. I never would have climbed Everest but knowing that I will never have the opportunity because of a condition beyond my control is the knife in the side that I still grapple with. Now mustering the energy to take a shower and do mundane things is the Everest in daily life. Immensely grateful for your intellect, your perspective and your efforts here. Though you owe an explanation to no one, pulling the curtain back to explain the struggle is strength in and of itself. Thank you, Vlad!

[@websurfer5772]

Vlad, you said everything I need to hear just now. Thank you so much and I hope you have very happy holidays. ❤🦌🎄🎁⛄🎅🤶🧑‍🎄🍄🌟☃💚 (2023)

[@francescamelandri3895]

may you too enjoy all the wonder and magic, dear Vlad

[@Habacook1]

Thanks Vlad for the kind words and spending your energy to say them! It's good to hear them even if you know them. I have an immense amount of respect for the work you do and find every video you make an inspiration to find ways to contribute despite my health. Happy holidays and much love.

[@Barbed-wired]

Beautiful message…I have had ME/CFS for most of my 82 years. Getting worse as time moves on. And I have to have numerous nerve blocks done on 4 areas of my back due to my spondylitis. Perfect symbolizing of ocean and land.

[@DarkestAlice]

Thank you, Vlad! I wish you and all people with any kind of (chronic) illnesses recovery and strength to live through the holiday season. Love to you all 🤗

[@suzannstrohmaier2578]

Warmest wishes for a wonderful holiday season💛💙💛💙

[@GardeningMa]

Coming up on ten years here for hubby. Recently it has hit me a bit harder than usual... We are not dealing with ME but chronic constant high pain, loss of so many abilities etc... All my best wishes for glimmer of joy in this time of the holidays. Please know that you are not alone. 🙏🏻💗🎄🕊️🙏🏻

[@gloriahoulihan8717]

Blessings to you Vlad. May your heart be happy ⛄ 🎄🕊️ ⭐

[@unicornathon]

Vlad I really appreciate your efforts with the subtitles and progress bar - both excellent.

[@davidallison5529]

Much love Vlad. You are appreciated for what you do, one hopes, to make the world a better place for all of us. Merry Christmas to all.

[@ChrisEkstedt]

Thank you for this Vlad. 🌻This Xmas season has been a situation of 'white knuckling' it for me. My family is beginning to understand but not quite there yet. It's at quite a cost that we participate (aftermath crash). I wish the same surprise and magic of life for you too. 💛

[@jameswelsh7789]

Thankyou for reaching across to help the Well understand, somehow we must find the ‘differential’ between well and unwell. One day we must all be unwell.

[@bitegoatie]

Thank you. I needed that right now, for many reasons. It is always extremely important to remember the moments of beauty that present themselves even in the hardest lives. Your message did a good job of recalling those, and the joy and hope they can bring. I wish you would have more words for the obstruction of healthcare for this and other complex diseases. On ME and the other autoimmune elements of my own crazy illness set, my situation has again changed for the worse, yet that side of my illnesses gets very little productive attention from physicians, which has a lot to do with both medical education and the minimal progress researchers have made on this range of problems over the decades. This affects everyone with complex, relatively rare diseases. For my part, I do not speak of these issues as often as I would like, even given the limits my health places on me. I often get carried away from discussing rare and difficult diseases by my attention to the widespread war on people in severe pain in the US and elsewhere, because my pain problems are so devastating and our care for people in pain is so abysmal and callous. There are many other, often needless, problems of compassion and decency toward people struggling with illness, injury, and congenital diseases, however, so I am heartened whenever someone speaks up on such subjects in hopes of rousing a bit of reflection. Over time, the cumulative effects of even brief discussions in public about health issues can incline a community to push a subject across the boundary between insufficient attention and just enough attention to support real improvement. It doesn't happen, however, when we suffer in silence - or watch those without the strength to speak without raising our own voices to call attention to their plights. So thank you so much for a beautiful message. Please do say more, when and if it suits you to do so, at such time as you have the wherewithal to follow through.

[@jessicarowley9631]

Dear Vlad, i wish for you the same moments of magic and life. I hope you are turning the corner a bit from your recent bad spell. Sending you love and support.

[@dm4058]

Many blessings to all you dear hearts and to your families and friends❤

[@juneg6630]

What I wish for you in 2024 is that a researcher will have a breakthrough in a genetical study of ME...and the rest to be history. I don t like all this fuss around specific days. I understand you perfectly, stay comfortable alone then miserable at a table. Hugs🤗

[@Hans-WalterThun-np3yz]

I am happy every time I see and hear you. ❤

[@maplehaggis6986]

Thank you. ❤

[@stavokg]

Wishing you a good deal of magic, Vlad. Thank you for the amazing and significant work you create throughout the year, for all of us. You are an inspiration. And, thank you for this heartfelt message. To all those who feel unwell: Have a meaningful holiday and may the new year bring with it, your cure.

[@IndelibleNihilist]

You have a beautiful soul, Vlad. Bless you

[@vhiljamurcrane]

thank you, a little magic to you too

[@steph990]

Ох, Влад. Я желаю вам всего, всего наилучшего и покоя от всего ужасного и больного.

[@theresaanspaugh6788]

Wishing you a Very Merry Christmas.

[@ivangohome]

❤👍

[@GordonOverkill]

Thanks alot for the great and enriching content, Vlad. Life is magical and extraordinary. Wonderful words, which hopefully aply to everybody.

[@alexandrecouture2462]

Thank you and Merry Christmas!

[@theequalisermouse2301]

Thank you for such a beautiful message Vlad.

[@criscruzparra2243]

Thank you Vlad! Lots of love.

[@emmajk7433]

Lovely message! Merry Christmas!

[@skullsaintdead]

That's very thoughtful but its hard to see anything as magical when you're in constant, severe, ever-escalating pain. Can't do Xmas this year because of the pain & the risk of getting sick - viruses drip into my stomach & massively & permanently increase my pain. Please don't go out when you're sick! I'll probably die from this, within a year (doses of opiates increase - the only things that help - along with the pain until the few remaining doctors that still, somehow, want something to do with you, ask you to reduce the dose, which you can't do - you're already housebound & mostly bedbound). Death used to frighten me. It doesn't anymore. It's the absense of pain, which I long for.

[@deborahdobson7676]

Very insightful Vlad, I hope you too have little moments of magic ✨

[@Nasedka-oh7oi]

God bless you Vlad. I am praying for you. Merry Christmas!🎉🎉🎉❤❤❤

[@maria.hartUK]

Thank you Vlad. Sending hugs x

[@SlpBeauty333]

Vlad, that was just the right touch of magic for me today. I really needed that. Thank you. Lots of love from NYC ❤️💛🌻

[@PRAR1966]

🙂❣

[@delphinebez3045]

Merry Christmas my friend...❤

[@danielmadar9938]

😔

[@barbaracarter6840]

Love to you! Wish I could give you a hug in person! Virtual hugs to you! Barb

[@willowithywindle]

~~❊💚❊~~