A Patient Advocate's Perspective on Education & Research

Sabrina, a lived-experience advocate, spoke at the BHC Reflections of ME/CFS, FM, and Long COVID Awareness event on May 9th, 2023.
BIO
Sabrina has worked within the private, public and not-for-profit sectors for over 20 years. Her work in politics, education and community development helped shape her perspective and fine-tune her approach to meaningful
engagement and positive systems change.
From 2018-2021, she served as a Research Ambassador for the Institute of Musculoskeletal Health and Arthritis (IMHA) at the Canadian Institutes of Health Research (CIHR) and she just completed her term as a Community Advisory Committee member for the NIH-funded Collaborative Research Centers Network, where she worked closely with our BHC team.
She currently serves as a member of the ICanCME Steering Committee, as the Chair of the ICanCME Trainee Development and Medical Education Working Group, as an active partner in research, and as a passionate patient advocate for ALL post-infectious illnesses, especially Long COVID and Myalgic Encephalomyelitis (ME).
Sabrina uses her knowledge, skills, expertise and personal experience as an individual living with myalgic encephalomyelitis and several common comorbidities, in the fight to have ALL post-infectious illnesses understood, cared for, researched, and removed from the shadows once and for all.
Find Sabrina on:
Twitter @Sabrina_Poirier
Instagram sabrina.poirier.7
Find BHC on:
Twitter: @BatemanHorne
Instagram: bateman_horne_center
Facebook: batemanhornecenter

[@invis-unicorn]

Beautifully said, Sabrina. Captures my feelings perfectly! Thank you & thank you to BHC

[@CarrieAnnaMcGinn]

Beautifully said, Sabrina! Thank you for your continued advocacy. 💙🙏 Thank you to the Bateman Horne Center as well for the education and care you offer for ME. 💙🙏

[@juliemarcoux4051]

We are very lucky to have Sabrina Poirier using her powerful voice and precious energy to share her lived experience, educate and raise awareness. It's a very moving speech too...Thanks to Bateman Center for all the amazing work and for organizing this event!

[@plantagominor722]

Thank you Bateman Horne Center, and thanks Sabrina for showing up on a crash day, I hope you got good rest after! You made me cry twice, solidarity to all who find their way here.

[@eileenm1402]

Sabrina, well said! Thank you! 👏🏻👏🏻👏🏻💕

[@andeebee2530]

Thank you from Australia for your advocacy 💕

[@jefferysmith3542]

Sabrina , thank you for your relentless efforts to make sure the next generation does not suffer as all of us before have. I know the personal cost of this is so high. And I am so grateful for all you do and have done for us Sabrina. Love and respect.

[@claraangulo1880]

Thanks so much Sabrina, for being the voice of so many who will never get the opportunity to see compassionate doctors. ❤️❤️❤️🙏

[@EC-yd9yv]

What video is she speaking of...?? Thxx

[@nathaliemeesters2029]

Fijn dat er nog over gesproken wordt.ik ben al meer dan 20jaar ziek ME Fibromjalgie pds migraine te trage schildklier.. en nog steeds zoekende. En vraag ik om onderzoeken maar nog steeds hoor ik hetzelfde als 20jaar geleden. Dus ze zijn niks verder. Mijn leven is altijd aanpassen geweest tot op de dag vandaag heb ik niet het leven wat ik altijd voor ogen heb gehad. Leef als een 80jarige zeg ik altijd. Financieel wordt je niet gesteund. Je moet alles zelf doen.pas zei hier een huisarts tegen mij .als het iets ernstigs was geweest was het allang ontdekt. Dat was heel pijn lijk dat ze dat zei. En ik dacht hoe ontwetend zijn de dokters hier nog hoe invaliderend deze ziekte is.😢