A young man's Lyme disease progresses quickly

In July of 2018, Samuel, age 37, died from complications of Lyme disease. He developed Lyme carditis associated with B. burgdorferi infection, transmitted by a tick bite. Sudden cardiac death can occur in a small subset of patients with Lyme carditis. In this video, Samuel's family and physicians share his story in the hopes of raising awareness of symptoms.
This video is linked to a case published in the Canadian Medical Association Journal. Full article: www.cmaj.ca/lookup/doi/10.1503/cmaj.191194
Tick photo: CDC/ Michael L. Levin, PhD; Jim Gathany

[@akhousesolutionsltd9433]

Samuel was my boss as a truck driver TMR trucking company. He was very good boss I remember him hard working man 💪 R.I.P Samuel

[@lightemup1023]

@Maciej WrOtEk wtf is wrong with u

[@OneandOnlyC]

Would you happen to remember the date of his passing? I’m asking because of the striking similarities to my case which also occurred in July of 2018.

[@The_Only_Tracy]

Lyme disease isn’t talked about enough. Not all people get a rash either.

[@The_Only_Tracy]

@Ivan Poohbear that’s very interesting.

[@karenclausen6724]

I now have a new pacemaker fm Lymes disease 9 yrs ago, no rash at all, no classic signs except extreme fatigue, sleeping 12-14 hrs a day.. Lymes is well known in SE Minnesota and WI.

[@The_Only_Tracy]

@@karenclausen6724 I found a tick on my groin that was there for a bit after some outdoor adventure. I have been very fatigued no matter how much I sleep just never feel rested. Can you ask to be tested?

[@UnforSeen]

I never got 1

[@MzDaUgly]

@@karenclausen6724 how about in California near Palm Springs area? I hardly ever go out but I been having highkey tachycardia, upon standing, whenever I eat. I always feel fatigued bad. Idk if it could be due to Lyme, or my HH that I have. Or literally heart failure I’m 21 years old. I’m always out of breathe too super bad even laying down:(

[@johnquinn456]

No warning No heads up Most of us already have it

[@pameladezolt1578]

Thank you for sharing your story. My son Thomas also 37 years old just passed away in March 2022 from Lyme Disease. What a horrible painful sad way to die so young.

[@whatsmname7271]

I'm so sorry

[@elizabethburleson7155]

I have Lyme Disease and Ozone Therapy helps enormously.

[@creativeminds2359]

I am so sorry for your loss. 💚 I pray everyday I am going to make it .I have Borrelia afzelii and it crossed the blood barrier. One of my Co infections is RMSF. I have never traveled outside of the United States. I fight to save my quality of life and to educate other's on the dangers of Tick borne diseases and Lyme disease.

[@lightemup1023]

Heavy dose salt

[@OneandOnlyC]

Samuels case was eerily similar to mine. From the symptoms, the heart block, the tachycardia, down to the month and year of his tragic death. In the middle of the night shortly after my admittance to ICU (in July of 2018), my heart went into vtach. So very sorry for their loss. Thank you for helping to spread awareness.

[@karenclausen6724]

I just had a dual chamber pacemaker inserted, due to Lymes 9 yrs ago. Fm second degree heart block to third degree heart block. Tethered for life to a monitor but alive and going boondocking in my camper van in 2 months. I have the app.

[@thesevidz9792]

@@karenclausen6724 Lyme. There is no Lymes, Connecticut. Please do better

[@tonakkie635]

Great and important message👍. Keep up the good work, and let the (medical) world know that lyme is terrible and very dangerous, thanks a lot. Ton

[@tonakkie635]

@Ivan Poohbear , thanks for the information. I have now for over 12 years lyme disease. So the borrelia is also intra cellulair and probably hides itself in biofilm in my body. Do you know if garlic also kills borrelia biofilm? Thanks, Ton

[@alfredaedwards7492]

It was a huge loss. He was such a promising young man. I wish Manitobans will not take tick bites for granted anymore. The times are changing and very fast too.

[@hammerfoot4273]

My wife has been experiencing heart related issues for years. We have been diagnosed with Lyme for about 10 years now. Her heart issues have slowly been progressing and we've been trying to get it looked at. However our doctors where we live at suck and don't believe in Lyme. She had to find this out on her own, go figure. Thank you for posting this and we are so sorry for your loss.

[@hoonage5]

Had a heart murmur/ mitral valve prolapse, tachycardia myocarditis pleurisy and lots of other problems as a kid. All of those things stopped 15 years later after getting on IV antibiotics. Couldn't believe it. Now over 30 years later I still suffer but at least I'm not having these infections anymore

[@Ida-Adriana]

@@hoonage5 where did you get IV antibiotics?

[@Ida-Adriana]

Why don’t you get antibiotics online and treat her with high dose long term?

[@Desaree1]

I'm in the same boat got endocarditis now in chf and lyme is just progressing to where I have hair that's alive biofilm on my scalp and all over my body. I so scared I'm 50 and was perfectly healthy until 4 yrs ago. I'm dying malnutrition no energy and have no idea what to do. I was beautiful now I can hardly look in a mirror.

[@kategosnell8210]

@@Desaree1 you probably have pots and gastroparesis ( dysautonomia ) from the lyme. Eat little and often, Avoud starch. Take probiotics. Ppi if stomach acid. Vitamin d. Coenzyme Q10. Anything with japanese knotweed and reservatrol. Detox in epsom salt baths/ sauna. Lots and lots water +

[@ladyjane9980]

Not just deer ticks, MOST ticks carry lyme.

[@karenclausen6724]

I am so sorry for your loss. A lot of medical professionals do not look at the person, only classic signs of a disease. Each person's body reacts differently, may have 1,2,3 or none of the symptoms. 33% of people do not get the rash, or find the tick bite. That's HUGE, MISSED opportunities.

[@ThatsAPaddlin88]

I was just released from hospital for Lyme carditis.. I was in third degree heart block for 3 days. I’m feeling better now but still have odd palpitations. RIP Samuel

[@ThatsAPaddlin88]

@@user-hq5ps7dx7d well with a heart block the ECG doesn’t lie, but I could only imagine how being treated that way would feel when you’re in misery. Leading up to the heart block I was in rough shape, couldn’t stay awake without 5 red bulls a day, stiff as a board in the morning, muscle and joint pain galore. I went to my doctor and told him I felt like an old man and I’m only 35. In Ontario Lyme disease is very common so they test regularly. The cardiologist I had Dr Baranchuk basically wrote the book on Lyme carditis. I was very fortunate with the help I received and the expertise from these professionals. From what I heard most people aren’t this lucky. I am Lyme free today because of 3 weeks of doxycycline. Good luck to everyone out there, it’s really tough to go through

[@4kidsliz]

My son, a 21 yo division 1 runner, got lyme carditis and was in ICU for a week with a temporary pacemaker. Most never see ticks. I thank God that I paid attention when my son said his chest "felt sore".

[@carriefrn]

I really appreciate the family and medical professionals talking about Samuel Doctors who are willing to talk about a case that had this tragic outcome helps other patients who may have lyme by educating other doctors about the possibility and severity of lyme.

[@cindyhaas3781]

I live in Texas and have had weird symptoms fit at least 2+ yrs and I went to at least 7 Drs and 2 being Infectious Disease Drs and was diagnosed with nothing, only one Dr even did a blood test but never but for normal lab panel we all get, Non of them even touched me, within 10 mins of an office visit I was being belittled and yes even snickered at by who I have been taught to trust a Medical Dr, they said it was Delusional and guess what I have chronic Lyme disease. So I had to travel and found a very knowledgeable Dr and am taking a truckload of meds. Who knows how long I had it but suddenly I went downhill medically fast and 2 yrs wasted Tks to closed minded Drs! Am I upset with them being so closed minded yes but I am tkful for answers. I pray ppl don’t stop looking for answers. I plan to send everyone that I saw for answers this that blew me off a letter and I’ll be nice but really medical Drs!?!?! Wake up and ur best diagnostic tool is your pt, I learned in my medical field for 3 1/2 DECADES that you don’t belittle a pt and you don’t call them delusional, ever! Life is not a cookie cutter of certain diseases symptoms, wake up please wake up. Ppl don’t stop till you get answers. So many many ppl have been treated the way I was not a few but 10’s of thousands +++++++++++ say this. I’m praying for everyone that are searching for answers and haven’t discovered them. RIP Samuel. God bless your family.

[@ble_d4426]

I am in North Carolina. I was fortunate to find Dr. Daniel Cameron who helped start the journey to understanding Lyme disease. Doctors must listen to patients and think about small bugs To Samuel's family, I am so sorry for your loss. I came across this video by accident and I haven't stopped crying. To Lyme suffers, bite back @drdonaldliebell. May the universe heal the world!

[@ookipuki]

I'm so scared... My partner has Chronic Lyme... always fears they are are going to die around age 40. It's so painful..

[@oxarplatt]

I have had Lyme for 16 years, I'm 31 now and Death has become something I think about allot. I try to accept things the best I can, but it still scares the hell out of me some days. he pain and suffering is unbearable.

[@terigarrison]

@Ivan Poohbear thank you thank you thank you I hope everyone reach your post you are saving lives. I am going to start doing this now I will pass the info on thank you bless you

[@Questinia1]

Lyme education needs to be beefed up. It has spread from the east to the west and now is also in Europe as well as many countries in the rest of the world. Everyone has different responses to the infection and so it is up to the patient to be vigilant and urge their doctor to do a Lyme work-up.

[@maybelikealittlebit]

Wish we had a vaccine for it… if it could work… I am in early stages and I’m so uncomfortable not knowing if I have it or not. My body aches and I’m so tired all the time. It sucks. I wouldn’t wish this on anyone.

[@tacocruiser4238]

Samuel was one of the lucky ones. Most people are forced to endure the misery of chronic Lyme disease for decades.

[@MzDaUgly]

Though his death was painful… no one should have to suffer like that.

[@haani6905]

True that n meanwhile the worst part of this disease is people make you think you are worthless. You are struggling hard n they expect you to work like the normal people.

[@PlayaSzn]

Are you serious right now wow your a disgusting human being

[@ronsteskool]

So sad . I am sorry for your loss . Thank You for sharing Samuels struggle with lyme and awareness . You may be saving lives . I have been struggling with lyme 10 years because my doctor was lyme ignorant . Majority of the symptoms and now Hearing loss in 1 ear , unexplained rashes and now heart issues -ventricular premature depolarization .

[@guccipitts]

I'm so sorry for your loss..

[@Star5dg]

May he rest in peace :( Feel for the family

[@nicolajane6264]

There still isn't any help! I am so sick and no one will listen to me.

[@tamiwigginton7137]

Please find a lyme doctor!!!

[@pressinpickle345]

I can't take someone seriously when they say Lyme's.

[@maxpercer7119]

rest in peace, Samuel

[@bethechangeloveothers744]

Thank you so much for sharing your story. This will help raise awareness and to save lives! It is not rare. This is SO sad!! There is complete denial in most hospitals and cardiologists. Almost lost my son due to this! Because he is so young, it was dismissed! Scariest thing in the world! Bartonella, Babesia, Erlichia, and other viral co-infections also can contribute! The CDC tests are NOT accurate! Years of life lost and nearly his life, too! Still not out of the woods and so many people are not knowledgable or supportive! Praying for this family and for all of those suffering. Love to all. May God bless you!

[@lindanorris2455]

SORRY FO RYOUR LOSS. IN THE USA, WE ARE STILL IN DENIAL OF LYME DISEASE. CANNOT GET TREATMENT, ANTIBIOTICES, ANYWHERE!

[@lelamoore7178]

so sorry for your loss

[@lindalane7341]

I have it going on 25 years. And identical Lyme Carditis ignored by all MDs.

[@patti280]

I was bitten a few years ago and saved the tic that was only the size of a sesame seed. I was given antibiotics right away. I developed a bullseye around the bite three weeks later and was given antibiotics again. I made a full recovery.

[@SarahSarah-vo2rk]

How many weeks of antibiotics did you have please, I had a tick bite and rash so the doc has given me 4 weeks antibiotics I am finding them hard on my stomach and frightened of a stomach ulcer but definitely want to avoid the Luke’s disease

[@l.c.345]

If he had carditis caused from a tick it was probably a co-infection called babesia which would require a totally different set of antibiotics for treatment.

[@rachellydy3367]

Borrelia burgdorferi causes Lyme carditis, not babesia. You are correct that babesia is not treated with the same drugs as Lyme disease. Babesia is treated with anti malarial drugs as it is also known as ‘the North American malaria’.

[@almasmith2733]

Why dont they screen immediately for these possibilities. This is 2022, we have the technologies. Just because a doctor has not experienced or seen this does not mean it does not exsist. People die of LYMES DISEASE .

[@lindaragsdale6958]

Thank you, yeah my rash was dismissed as..too late we can't make a dignosis..move on..next.thanks doc .I have a pic..oh it's been over a week..too late. RIP..sorry for the Young Man loss.

[@charlesfeatherstone6196]

So Sad! Lyme is treatable this could have been avoided. Lyme is found on all continents including Africa ! So sorry for your Loss!

[@dutyofcall7659]

If you recognize it early on and treat it properly which nearly no doctor does. I got 3 weeks of treatment as child and it got chronic despite antibiotics.

[@giuseppeamendolara2367]

@@dutyofcall7659 when did you start the treatment from the moment where you got bitten?

[@dutyofcall7659]

@@giuseppeamendolara2367 Just 1 day after the bite with Amoxicillin after getting a bull's eye rash with fever but it never went away completely.

[@curtjones1306]

Its called lyme disease

[@codybowers8140]

This low-key scares me now i felt like I'm looking at a mirror will I pass away ?

[@wpgspecb]

Heart breaking

[@regkane-Pluvis]

Very, very sad.

[@Auditing.northern.N.Y.]

I'm waiting for results of my test while being treated for Lyme. If I'm positive I could see it being potentially fatal. Been a few days of pure hell.

[@MzDaUgly]

Update?

[@mikeroche8544]

I had a fever and headache several years ago in July when I guess I got the bite EARLY STAGE and went to the ER they didn't identify it. February which is months later, my knee SWELLED up LATE STAGE LYME and again I went to the ER and they had no idea. Sent me to a knee doctor who took some fluid out of my knee that I could barely bend. Days later he says it is Lyme. I took antibiotics for 28 days not the 21 since I read 28 days is better. I lucked out, disease specialist said I am immune to Lyme now. Although I question that.

[@karenlittleton6073]

This post is a specialist who will try help..don't ignore it..I'm in dire situation,walk,talk,heart,breathing,constriction throat.Thats in USA the number.RIP Samuel.God bless entire family.

[@Desaree1]

Witch antibiotics are used in Lyme? Anyone know?? Thank you in advance.

[@SpirituallyGuidedTarot]

Doxycycline

[@tishauri777]

im currently on amoxicillin 500 mg and clarithromycin 500 mg

[@kategosnell8210]

Zithromax, rifadin and lymecycline

[@Desaree1]

@@kategosnell8210 have they helped?

[@kategosnell8210]

@@Desaree1 I am on month 3. Another 2 to go until next appointment. Sub-lyme capsules containing jpnz knotweed and resveratrol, low dose naltrexone titrated from 1 up to a max of 4.5. Professor Lambert from Dublin. He's on you tube. More energy but pots is flaring and arthritis too.

[@peladores72]

I had a sting in 2012 and diagnostics since me in 2015 and now I am in 2022 with irregular palpitations and the tests that I did everything came out normal except for the palpitations that the doctor told me that he does not understand .. I think that my heart is to the limit I even fainted once and I feel terrible and my heart wants to explode sometimes .. I get tremors every time I need help and I live in New Jersey

[@MonicaCarriaga-gi7fv]

This hurts really really bad. I almost died the last time I had a really bad lyme flair. Arm my heart was like rolling like imagine if you’re making bread or go inside, you’re squeezing the dough. That’s what my heart felt like or like somebody was putting a rolling pin over my heart, and the whole left side of my body was infected really bad. It is parasitic parasites do grow in your blood cells and then burst when they get large. I did take some parasite cleanse And was able to get a lot of parasites out of my blood. It is the most painful thing and I have been in car accidents. I was with an abusive partner who used to beat me. He was 6 foot five and he would like kick me on the ground in a ball like this is like 10,000 times worse. I am right now the right side of my body is pretty weak. I try to detox just with herbal stuff. Because I like to save my organs for if I have to do like major medical stuff. So I don’t get organ failure. I know organs are hard to come bye they put me on an herbal remedy after I did two pink lines well, technically three. Because they had to pull one of them off because I had blood clots traveling to my heart so they put it in my other arm and it was like pinching a nerve the entire time I was so painful. I really don’t want to crack my chest open so I’m trying not to do intervenous if I can help it. Hydrochloraquine does seem to help in some malaria medicine. But then all of that dead stuff stays inside your body and you can go septic so you have to do these cleanses. I eat raw cacao. It’s like a detox and a drink, apple cider vinegar. And my son refuses to leave my side. I feel bad for him sometimes but he’s like this is just my life like I’ve never known anything different, it doesn’t bother me. If he thinks I’m sick sometimes he’ll sleep on the couch so he can watch me. But you know what I respect that because I’ve always done that for him. And that’s what love is. And he’s not affected by it at all and he has a really great life. His mom is just sleepy like sleeping beauty and I try not to cry in front of him. I wait till he goes to sleep at night and then I’ll cry all night long. Eight on a level of 1 to 10 I wake up with a level four pain every day at minimum, and I usually go to bed at seven, which is an average day . Sometimes I go up to a 12. But I refuse to go to the hospital because they just give me shots of morphine and to be honest with you it only last like an hour and then the pain is back. It’s like that bad. So I just I don’t care about the pain pills cause it like you still feel the pain you’re just too high to care, and I just don’t want to do that , I mean last time I was sure I was dead. But I’m still here. My headaches are just way worse I have four TBI‘s. People were stocking me strangely at that time because of some other stuff I had going on they were shooting air guns at my doors. People really abuse disabled people I don’t know what’s wrong with them

[@julierehoric3856]

Lyme not Lymes

[@danab4337]

@🔧TRACY🔧 Wow That's not very nice. This is an extremely dangerous topic, getting some of these detail correct especially the name of an illness/disease can be very helpful. It didn't seem she was being rude or petty as it wasn't technically a simple grammar issue she was correcting. Believe it or not a lot of us on these forums are very sick and cognitively affected. Maybe you are as well. I sure hope you're healthy and well. An apology may be appropriate since you're so worried about it. Have a blessed day.

[@surgen9499]

Was he vaccinated CV19 bioweapon

[@joanneclark8256]

How does that relate to lyme

[@gram3482]

@@joanneclark8256 See Plum island bio lab off Lyme, Ct about 1975. Same origins by our great gov't.

[@JesusGodHolySpirit3]

Tgat was soo saddddd

[@tedhampe3937]

Tularemia and Lyme as a combo could and would kill people synergistically so please start testing for tularemia also because any biting insects can spread it

[@romascopa8461]

Sounds like babesia most likely

[@thesevidz9792]

anyone else triggered by the moms "Lymes Disease" @ 3:01 ?

[@lelamoore7178]

truth!

[@joanneclark8256]

Ivermectin?

[@thesevidz9792]

wtf, lyme is a bacteria not a parasite

[@bonnieupton4114]

I never had fever either

[@crwonshe]

hospitals are horrible....

[@larrymccallister1433]

I just got a positive test done by a follow up negative i am perplexed,i had a dear fried die from lime.The VA.is sending me to a infectious disease doctor.When i have know idea.

[@JP-xs5lo]

Dude the va will do nothing for me we’re is this va clinic you speak of?

[@davidmcclellan9495]

Government made it i got it im about done im just like him

[@joanneclark8256]

Deer tick write up just resent fought lyme its mice .. Will locate and get back

[@AnotherCoyote]

Does anyone know any sufferers of Lyme or it's co-infections who developed more and more allergies as time went on and if any of them were antihistamine intolerance and intolerance to vitamins and supplements of many types? I have disulfiram, a major treatment for lyme, though I'm afraid to take it, but I may take that and the 6000 dollar intravenous Ceftriaxone treatment (the two together should wipe it out).

[@JP-xs5lo]

I was on IV doxy Zithromax daptomycin ceftriaxone and added disulfiram I was 100% pretty much but relapsed 24-48 hrs after stoppage maintained on oral plaq ceftin biaxin and the kitchen sink since

[@AnotherCoyote]

@@JP-xs5lo Thanks for letting me know that! That sucks the Disulfiram didn't get them all. since it's the only thing that gets through their protective bio-films. maybe you have to stay on Disulfiram for a longer time? My out of network doctor wants me to pay the 6000 dollars to get intravenous Ceftriaxone (with a catheter installed in my arm for a week with daily injections of ceftriaxone) but I'm still not even sure I have co-infections even though I have all the symptoms...

[@JP-xs5lo]

I paid to get tested through igenex for all tbds I have bartonella h and e. anaplasmosis among many other tests this is the co infections that I know of. Maybe this can help but there are other options.

[@JP-xs5lo]

I paid to get tested through igenex for all tbds I have bartonella h and e. anaplasmosis among many other tests this is the co infections that I know of. Maybe this can help but there are other options.

[@JP-xs5lo]

I paid to get tested through igenex for all tbds I have bartonella h and e. anaplasmosis among many other tests this is the co infections that I know of. Maybe this can help but there are other options.

[@floral35]

not rare at all.

[@lindalane7341]

Lyme Disease not Lymes disease. It is singular not plural. Please learn to pronounce it correctly.

[@thesevidz9792]

It has nothing to do with being singular or plural. Its a proper name, named for Lyme, Connecticut where it was discovered. Learn your history before you criticize others.

[@tamiwigginton7137]

Who cares how to pronounce it... we have bigger things to worry about....Like, Ones life!!!! Good greif!!!

[@lindanorris2455]

I HAVE LYME WITH NOOOOOOOOOOOOOOOOOOOOOOOOOOOO FEEVER! HAVE HAD ARDS, CHILLS WITH NIGHT SWEATS/ PHOTOPHOBIA, SWOLLEN JOINTS, ITCHING SKIN. COULD NOT STAND UP BY MYSELF. STAGGERING, SHAKES LIKE THE DTS'S. WATER HAMMER PULSE, NAUSEA, DEEP NAUSEA, DIZZY, SWEATY, MY HEART BEATING @ DIFFERENT RATES ON EACH SIDE, IN FRONT OF MY DR. HE TOLD ME THAT A HUMAN HEART CANNOT BEAT AT (2) DIFFERENT RATES @ THE SAME TIME! I WAS CRYNG FROM THE PAIN, HE WAS GOING TO ADMIT ME TO THE HOSPITAL AND THEN SUDDENLY MY HEART RATE RETURNED TO NORMAL. UNABLE TO EAT, UNABLE TO SWALLOW, CHOKING ON MY SALIVA. SLEEPING FOR DAYS AND DAYS ON END. WHEN I WAS FIRST SICK, I SLEPT FOR THREE DAYS/ NIGHTS STRAIGHT WITHOUT WAKING UP, @ ALL. i COULD ONLY DRINK WARM WATER, NOTHING ELSE. TEA MADE ME SICK, FOOD MADE ME, NAUSEA. MY SPEEN WAS GIGANTIC. MY LIVER AND ABDOMEN HURT, PAIN LEVEL WAS (9) IN USA. COULD NOT WLAK, STAND OR SIT. RESTLESS, ANGRY, IRRITABLE AND IN SOOOOOOOOOOOOOOOOOO MUCH PAIN! DRS. IN USA COMPLETELY IGNORE ALL OF THIS AND SAY I AM FINE. ONE TOLD ME THAT IWAS MAKING IIT ALL UP!DENTISTS HAVE NO CONCIOUS OF LYME, IN USA. MY GUMS WOULD POUR BLOOD, IN THE BEGINNING OF THE ILLNESS. POUR OUT BLOOD, LIKE A VAMPIRE. MY DENTIST THOUGHT THAT WAS FUNNY! UNTIL IT HAPPENED IN FRONT OF HIM, THEN HE READ UP AND TOOK HIGHER PRECAUTIONS WHEN TREATING ME.