Shifter: Living with Lyme Disease

I AM NOT A DOCTOR. IF YOU THINK YOU HAVE LYME OR ANY OTHER ILLNESS CONSULT YOUR MEDICAL PROFESSIONAL.
Okay, let's begin. This is my story, and as I mention, the stories of Lyme I encounter are as individual as your fingerprints. I've known people to get Lyme, get immediate treatment, and overcome, while others have gone in the opposite direction spending years mired in the depths of chronic illness. I am somewhere in the middle. But, I am proof that you can overcome this particularly nasty disease and get on with your life. Stay positive, stay proactive, and think marathon not sprint.
The story of Lyme Disease is rife with secrecy, misinformation, and heaps of denial laced with questionable medical and governmental ethics. Lyme is far more prevalent, far more common, and far more far-reaching than most government agencies will admit. Lyme is global. The tick is a remarkable disease delivery machine. Resilient, relentless, and growing in numbers. Lyme is but one of many nasty little gifts this tiny beast can deliver. For those of you who wish to dismiss, wise up. The web of Lyme grows by the day.
And for those of you who contracted Lyme and got over it, well done, but remember, there are many who don't share your luck or experience. And for those of you who are living with a Lyme patient understand there is no way for you to know just how bad the Lyme experience can be. Stay patient, stay understanding, and be proactive. Good luck.

[@KristySlicker]

I suffer from chronic Lyme, I got sick in 2014 and finally got diagnosed in late 2015. Drs in my area won’t test for confections or anything, I have been through 6 Drs so far. Life has been hell for the past several years, my photography has come to a halt, some days I can barely get out of bed. Glad you are speaking out about it, we need more people spreading awareness.

[@DANIELMILNOR505]

Kristy. That totally sucks but is, as you know. a VERY common experience. The medical world doesn't want to deal with Lyme, so here we are. Pretty much everyone I know now has a Lyme story. Friend of a friend, family member, etc. But yet the CDC keeps pushing the same old tired story lines. "30,000 new cases a year," non-dangerous, easily treatable. It's nonsense.

[@Deb_3]

How are you today ? Have you changed your diet ?

[@dianecarolnordean6676]

I have been hospitalized in institution and written up as psychosis ...still not diagnosised...after being hospitalized numerous times(still not diagnosised)and 20 years later ...I am sick...will I tell a doctor ...no ...because I don't deserve to be institionalized

[@justdawndb]

​@@dianecarolnordean6676 I'm so sorry & YOU ARE NOT THE ONLY ONE... sending wishes for PEACE & HEALING

[@singmysong1167]

​​@@dianecarolnordean6676..like this sympathetic nice man said, friend, you NEED to find, be diagnosed, and begin treatment with a Lyme doctor. Keep searching!.

[@Leonie-by1gz]

I'm Belgian. I was bitten by a tick when I was 12. I'll be 40 soon.. This disease has put me through unbelievable hell. It took my whole life from me. Doctors have been no help whatsoever. I finally got diagnosed with the 3B's in 2018. I'm treating with herbs, I'm much better than in my worst years, but definitely not cured. I cant function normally like others. But I'm no longer in constant pain or psychosis.

[@DANIELMILNOR505]

This is like a secret the medical community doesn't want to hear or deal with or diagnose. But it's becoming SO rampant they are finding it more difficult to cover it up.

[@mews56]

What herbs are you taking ? as have tried traditional herbal medicines

[@Leonie-by1gz]

@mews56 Well, I've changed my focus on parasites instead of lyme, and I've gone to parasite meds ( for cattle, because doctors refuse to acknowledge everyone has parasites and prescribe meds) and I have much bigger hits than with herbs or remaining focused on lyme.. I think, at least in my own case, that lyme is a co-infection of parasites, and not the other way around.. I did have some improvement from the Buhner herbs ( cryptolepis, Japanese knotweed, sida acuta, houttuynia) and parasites herbs ( wormwood, quassia, boldo, cinchona bark etc).. But for parasites, the meds are more powerful.. I found most info on how to use meds for parasites on curezone..

[@lightconnection1]

I'm from Belgium too Leonie wich part are you from?

[@Leonie-by1gz]

@lightconnection1 Nieuwpoort, but I was bitten in the 90's in Durbuy, however, as I stated in last comment, I think I have parasite problem, which I picked up 20 years ago in Turkey or Egypt.

[@Arthuriantimes]

I cured myself of Lyme. I contracted Lyme in 2015 and I wouldn't wish it on my worst enemy. I couldn't walk, couldn't lift my arm, couldn't sleep and I was in severe pain 24 hours a day. Lyme disease is horrendous! After a few weeks in hospital the doctor's told me that they couldn't do anything t help me and sent me home. What saved me was Buhner's protocol in his book 'Healing Lyme' as well as adding a few ideas of my own after devouring books on how the immune system works. When I told the doctors I was going to try and heal myself using herbs and a special diet they laughed. Well what else was I supposed to do? It was a very slow process because first you have to reboot your immune system and second you have to fight the bacteria of which actually hides from your immune system. What is different about the Lyme bacteria to other bacteria is that they feed on magnesium in your body whereas most bacteria eat iron. Without magnesium your muscles just can't work. Most antibiotics are made to protect reduce the ability of bacteria to eat the iron in your body - but not the magnesium - that is why normal antibiotics fail against Lyme (if you wait too long). I won't lie, it was the fight of my life and took about one year and a half to fully recover. Only when all the bacteria was gone could I then begin to build up my muscles again. Just to prove that today I am back to full health I play golf and am an eight handicap. Listen!!! - anyone who has Lyme - don't give up - your immune system can kill it. It takes a special diet, special herbs and sheer will power. If I ever contracted it again however, I don't think I could go through it a second time and would probably just end my life. That's how vicious it is. If anyone who is interested in hearing my full Lyme story - I made a video and posted it on my youtube space. It contains how I contracted the disease, how I defeated it and the consequences it had on my mental health. Take care out there everyone.

[@singmysong1167]

@@Arthuriantimes ...thank you, friend. I'm sure there are many who want their health back and desperate enough to fight the disease! Thank God you are well. But if you get it again, wouldn't you want to immediately get on antibiotics to ward it off as soon as possible?.

[@Arthuriantimes]

@@singmysong1167 lf l got Lyme again it would depend if the doctors found it quick enough. In my case it took several tests because the standard antibody test has only a 12% chance of finding the bacteria. As you surely know, Lyme is notorious for hiding from the immune system. It is a pathpgenic bacteria. So if l was lucky and the blood test came back positive then of course l would take antibiotics. But if, as before, they didnt find the Lyme and it becane ingrained, then l would just end my life. I wouldnt hesitate. I just havent got that will power and strength l had before. However, the fact my own immune system destroyed the Lyme without antibiotics, puts me in a strong position as it would recognise it and take action sooner. Indeed, there are dozens of people with Lyme who are permanently in need of antibiotics and as soon as they stop the symptons come back stronger. As is known, over use of antibiotis reduces the immune system. The chances of me getting Lyme again are very small. No God of love would let his child suffer like that a second time. Nothing would be gained from it. Surviving Lyme transfomed me from an arrogant person to a humble caring person. To suffer again would be pointless. Life just doesnt work that way. Once one has their eyes opened one can see there is meaning behind everyrhing. Take care, give care, and be careful out there.

[@DaveJackalope]

@@singmysong1167 sometimes it’s more dangerous if you do not accept antibiotics. They will lower the bacterial load and prevent a catastrophic event. Mine got so bad because of all the co infections. I don’t even believe that you can have only Lyme nowadays.

[@katieeul1514]

Send your video. Glad you are well.

[@DANIELMILNOR505]

Yep, everyone has to find their protocol. Antibiotics can work if used early and for a long enough period. Getting them can be a hassle. But they eat the bad bacteria and the good, so supplementing, as you mention, is key.

[@odileps]

Thank you for sharing your story. I'm 7 months into it, and it's comforting to hear that my symptoms are real and not "in my head". I like your positive message at the end of the video.

[@PMaynard-22]

Its a total mind disease as its all things that just should not be possible yet they are. Constant assault on one's sanity

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊

[@sjackson1739]

This is my 6th year too. I was bed ridden the first 3-4 years. It's a slow recovery. Mine was critical at one point. I ended up in ICU with brain swelling. Lost control of my legs and was in and out of a coma for about a month. It sneaks up on you. I was a mess because I was treated 3 weeks after infection. It left me with neurological problems, balance issues and then some, and killer fatigue that seemed never ending. I have a long horror story. I am finally starting to join the world again. I am starting too look normal again. This happened in Berkeley, CA. I lost a lot because I was incapacitated and could not speak or eat for myself for a long time. The rest is awful... It changed me, my goals, my focus and some really strange but good knowledge has opened up that I wasn't drawn to before. After I got out of the slump, some amazing things are starting to happen in the background. My mind has become open to things like an open vessel like never before. I thought I would never be interested in anything at all. Yet something unusual has happened, I can't put it into words, on the spiritual and knowledge spectrum. I thank our higher power each day as I have opened myself up to letting something guide me. Can't explain it. This year, my sixth year after all the doom and gloom, something different is happening. I believe this thing has happened to us for a reason and I know you understand what I am talking about. Thanks for this video.

[@DANIELMILNOR505]

One of the most troubling things is how it impacts everyone in their own way. I had no classic symptoms really. And if you don't have an arrow sticking from your leg, or a sucking chest wound, people say "Gee, you don't look sick."

[@katierichardson6428]

I was diagnosed in the early 90’s. Went undiagnosed for 4 or 5 years. I had extreme pain all over my body for the first couple of years. I also took a slurry of antibiotics three times a day for three years. In the early 90’s doctors just assumed you were crazy, and practically laughed in your face. I found a wonderful holistic doctor who diagnosed my Lyme. She said I can diagnose you, but I’m not comfortable treating you. I found a good LLMD who put me on a protocol. I still have fatigue, my knees are destroyed. I had babesia and was treated with malaria drugs. I function pretty good now. I’m 79 years old and I do ok. I wonder how well I would be right now if not for Lyme, but I’m grateful that I function as well as I do.

[@rdallas81]

God bless you. I hope you got some relief in finally knowing what's wrong.

[@DANIELMILNOR505]

That is rough. By then the corkscrew has permeated so deep.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it😊

[@jessicaturner2596]

I can relate to your story. I was born with Lyme. It took me 35 years and two tick bites to be diagnosed. Lost my ability to count , ended up in the psych ward. I was fortunate to find a llmd a few months after that. I am doing so much better now. I haven't felt this good in a long time. I hope one day I can share my story but I'm not that brave yet. Thanks for letting me not feel so alone!

[@DANIELMILNOR505]

Hey Jessica, wow. The fact that you pulled yourself out of this is entirely commendable and you should be proud of where you are, regardless of what stage you are at. Happy to hear you are feeling better. Here's to hoping for an upward trend.

[@donaldmaley4539]

I live in New Jersey been bitten 3 times and just diagnosed with Lyme and I'm a mess hait my episodes

[@Shackleton71]

I have met others who were also sent to the psych ward. I have to wonder if they treated kindly people with Lyme but I’m pretty sure that answer is Nah. I’m 9 years in and it’s so long and lonely and takes everything I can muster. Lucky them are with caregivers and I want to send a special shout-out to those caretakers

[@beansrgd]

Ty . Ty. Ty- It is very important you shared this video. Every person has their own version of Lyme. So, no judgement. Sometimes I need to hear a voice from someone who is on the same page. I’ve had Lyme for 20 years : I’m quite familiar with Plum Island: if I go 30 miles cross the Sound; there is the beast . I am at a crossroads: I need to see the next generation of informed drs. But , I know, I will get very emotional if the visit does not go well: it’s extremely hard not to be afraid: I see many videos of others with Lyme : but they have “people “ in their family to help them. I’m by myself . I totally live in life like nothings wrong , but you know as well you mentioned- you are physically crippled and writhing with pain. Every minute of walking and talking and balance is always in the forefront for every physical step . It’s fucking weird living this way . All the activities I loved helped my natural anxiety and moods. I can suck up the pain: it’s the loss of what I just wish I could do!!!! I wish you so much health and strength as you go forward reaching out: Take care and I feel like survivors of some weird shit storm that hasn’t stopped- So, stay well and much appreciated. 👍🏽🦾☮️

[@DANIELMILNOR505]

Man, that is rough. You just have to keep plugging and take care of EVERY SINGLE THING that is under your control. diet, sleep, etc. And keep trying new things. That riddle can be solved. Most docs are useless when it comes to this situation.

[@beansrgd]

@@DANIELMILNOR505 Well what held me for all these years was that I’m an active person and hate wasting time staring at walls: So I’d drag myself out with crutches etc., but my legs have stopped helping me: so., I can’t even walk on the sand at the beach. I mean I can stand there …. But walking on the beautiful sand is brutal. But, I want to tell you: I really appreciated your honesty: and I generally here a woman’s perspective so I really wanted to hear your experience. So glad you have the human support in your life! My partner died 4 years ago from cancer., she was my best friend: So, no one really knew how bad it was , except her. But, you know psychotherapy is routine to keep me talking about life etc. On editing- I love the black and white!! Well done 👍🏽! Be well, 🦾☮️

[@kathysorensen4741]

I a Lymes suffering, sufferer since I was 44 years old. I am now 81 yrs old !!! I hate to bring any one who has this unbearable disease. No one in my family understands me? My husband was my best friend, care giver & everything in between. He passed away & was by safe haven, love of my life. Lymes bosses me around & I hate it ! I'm in horrific physical pain 24-7..... Never took pain meds before. I caved into it if I wanted to live. I was fortunate to have a Lymes specialist where I lived. I was miss diagnosed for years. Finally I asked for a Lymes test with my umfffg number doctor? She told me off because I asked for the test ! I was to go for a cbc test which every doctor does at yr first visit ! She allowed it but said I didn't have it. Two was later I received a call from her? I was gravelly ill with Lymes. She apologized for her bad behavior from my visit 2 weeks prior. I am now still in know better after all these years? Any type of stress puts me to bed. Does anyone out there have a stres free life? 😂😢 God Bless all the Lymeies out there....❤

[@lymehurtz]

​@@kathysorensen4741I pray for you...this disease is horrible. It's indescribable..I've had it since I was 2..and I wasn't dxd til in my early 30's..the pain..the cognitive problems ..as of 3 yrs ago I cannot walk..its taken my life..I die slowly everyday...its a very very " dark" disease...I pray for my whole " lyme family"..we are warriors....you have to be to go thru this ...

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@Spoofsinyourface]

I have literally been saying the same thing to people. I was lucky enough to take a pic of the tick on a pillow, and after the bite on the back of my neck, but didn't go to the doctor till after feeling effects, and after that it's just been trying to get people to believe you for years. Because it is up and down with me. Some days are better than others. I just know I have it, but didn't get a positive test, and have been misdiagnosed for years. The medical industry loves a disease like this. $$$

[@DANIELMILNOR505]

Frustration......

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊

[@kellykilpatrick3000]

Thank you for the inspiration 🙏 I have Morgellons & bartonella & co infections you inspire me cause you speak so well and have cognative abilities to quickly adjust so very inspiring also thanks for all of this but especially how you went from 90 mph to 5mph and how no one understands cause I'm the energy guy among friends 6ft 3in 225 lean and no friend understands why I'm not going about with them like normal and it's frustrating and kinda hurts feelings they don't understand cause I think they don't care and the people that say it's in my head are no longer my friends and I consider them evil. Again thank you for sharing very informative and inspiring

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤

[@valroze1647]

I hot bit by a tick a couple of weeks ago. It was the 3rd or 4th one we found in the house on the dogs. Dogs got treated and I put out nematodes in the yard but didn’t think it was a big deal. Now I’m experiencing cold symptoms and crazy fatigue. I asked for the Lyme disease test and the doctor said no. When he was done explaining why he said no I told him I was going to go ahead and have him test me for Lyme disease anyway. He got pissed off but ordered the test. If I’m paying for it I need him to order it periodt! I don’t think it will come back positive but I’m proud that I was stern enough to advocate for myself. Side note, my dad went to the ER and could barely walk. My mom told them 3 times to test for west Nile and they refused. He was sent home and when he went to follow up with his pcp she requested the test again and it came back positive! Be your own advocate!

[@DANIELMILNOR505]

A lot of people get Lyme off ticks from their pets. Ticks will always move up the food chain.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it😊

[@ViiveKaiRebane]

Thank you for sharing! So many lies out there with doctors trying to make this much smaller problem than it really is... 10+ years since first diagnosis and still having issues with no help from neurologists and infectionists. I think it is vital that we share our stories to get closer to real solutions, so thank you so much for this video and I hope you manage to keep it under control!

[@DANIELMILNOR505]

Friends in Maine are pulling ticks off in the middle of winter. And docs are like "Ticks don't operate when temps are under 40 degrees." Lunacy.

[@singmysong1167]

​​@@DANIELMILNOR505....well, did they take the proof of their 'winter tick' with possibly winter 'bullseye ' rash to their 'winter' doctor, I'm wondering?

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@jameshopkins7507]

I live on Long Island (NY). Lyme is prevalent here but underdiagnosed. I myself always suspected I had Lyme although no doctor would diagnose that and finally, I was diagnosed with ME/CFS. I was sick for 10 years (1989-1999). I still have relapses, but I am much better now. Thank you for your very informative presentation. The word needs to get out.

[@DANIELMILNOR505]

Sadly James, very, very, very common in my experience, and part of the issue is that the public doesn't really understand how or why this would happen, so their skepticism makes it even more difficult to mobilize folks.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@susanbarber6955]

Amazing video. You said everything I would say if my brain worked. Thank you so much for putting yourself out there.

[@DANIELMILNOR505]

That cognitive part is the roughest. I did two types of IV. Vitamin C and Glutathione. That was what got me over the cognitive hump. After two years of meds.

[@TraceyPoland]

I was diagnosed with undifferentiated connective tissue disease but now I believe I have chronic Lyme or both. I went to a little fun local outdoor concert in 2015 in Colorado and got diagnosed with the rash several days later and now several years later I’m having severe neurological symptoms and I feel like I’m going to lose my shit 😭 I’ve seen so many different kinds of specialists and I’m so tired physically and mentally. Thanks for sharing your story. ❤️

[@singmysong1167]

Read all the comments, hun! There is hope. There are things people are taking/doing for positive treatment.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤

[@susanbrush758]

No your presentation was NOT "a meandering mess". You were quite well spoken, passionate, easy to follow & inspirational. I just learned I have Chronic Lymes & just began treatment with a lymes literate practioner. 5 ticks in 2017 & soon after came the debilitating chronic fatigue that kept me supine majority of time. I began to question whether I had Alzheimer's . By 2019 new diagnosis of Fibromyalgia, Autoimmune Arthritis, & Shingles, along with Chronic Migraines. Then came diagnosis of Gastroparesis, POTS, MCAS and the list goes on. I am now trying to educate everyone I know & meet so they can protect themselves from this horrendous disease that triggers a multitude of Autoimmune Diseases. I mention how anyone with an autoimmune disease should get tested for lymes as lymes treatment may get the M.S. patient out of the wheelchair they've been in for 15 years. Kris Kristofferson believed he had Alzheimer's for 10 years. Then learned he had lymes...received treatment and no longer an Alzheimer's patient. Millions around the world diagnosed with CFS & Fibromyalgia, R.A., Lupus, on & on it goes. I can hardly believe how this Chronic illness is being gaslighted by the CDC. Even worse in Canada & Australia. Yes I agree it must come down to money. Pharmaceutical Industry would stand to loose billions of revenue if majority of their chronically ill patients were diagnosrd & treated for Lymes. As I write this I still cannot believe how the medical profession has turned their backs on this. You have to pay cash to get treatment. Your insurance means nothing. I encourage everyone to watch 1 or more of the numerous documentary movies on Lymes free on Utube. Our government should be educating the public and children in schools. However it's nary given any attention at all and not even money put forth for randomized placebo controlled clinical studies. Our AMA has gone after Good doctors who have saved 1000s of lives of lymes patients and stripped them of their medical license. This is why doctors freak out if you mention "Lymes". I believe there are only 12 States where physicians feel safe to diagnose & treat Lymes patients due to State Legislation put forward. This disease makes one so unbelievably sick & then to realize they are on their own & lucky if they have even 1 Lyme literate practitioner in their state. Then to realize your insurance will not pay for your treatment. It's unbelievable.

[@MegaMikeArnold]

It's called Lyme disease, not Lyme's.

[@singmysong1167]

Susan, read your informative comment. Thanks for sharing. I was excited when you said there are currently 12 states with lyme-testing doctors, I was beginning to think there were way too fewer places in America where sufferers could travel to get some help! But 12 states! That is more encouraging. Where can others find a Iist of those states, please?.

[@logicrealitytruth]

Very well put, Susan. You are 100% correct! I don’t have the energy anymore to say all that you did, but my story mirrors yours. Thanks for speaking about this. I’m sure there are a lot of people appreciating how well you articulated what we go through and how our government has failed us. The CDC, FDA, NIH, and many other departments that pretend to be there helping us are infact the reason we can’t get help.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊

[@noreenpurple8617]

Wow……GREAT testimony! Thank you so much for sharing. I do want to share, 25+ years ago, top executives in Monsanto came over and filled top executive positions in the CDC in the FDA. That’s why when Covid hit, I had absolutely nothing to do with anything that they put out! I was infected with lime at the very beginning of Covid. And I wasn’t diagnosed until three years later. I didn’t go near the hospitals because, you know. And there was a couple of points where I thought I was going to go home to meet my maker. I am doing everything that you had shared about, what I can control. It radically changed my life for the better. Blessing to you and yours. And thanks again for sharing!🙏👍🏻🙌🏻

[@DANIELMILNOR505]

What's interesting too is how many women reach out here about Lyme. Not sure why the balance is so tipped in the female direction. Sorry to hear about your situation. Frustrating beyond belief. Lyme proves just how lame our system is if you have something that isn't popular, doesn't have a revenue stream, etc.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it😊😊

[@GGG-b2z8l]

I’ve had Fibromyalgia for 11yrs and now I have been diagnosed with a recent Lyme Disease Infection. Only reason I found out is that I wondered if my Fibromyalgia was really that! Now I have both. The symptoms were so similar. Now I don’t know which are which, but I must say my pain and stiffness has increased big time.

[@StormyMonday0896]

Fibromyalgia seems to be a blanket diagnosis for undiagnosed disease

[@DANIELMILNOR505]

Agreed.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊

[@wyndella7212]

Amen brother misdiagnosed for over 18 years. Keep fighting for us.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it….😊

[@Heritageofthehunt]

Hey brother, I’m right there right now. It’s an uphill battle, thanks for sharing the light at the end of the tunnel🤙

[@DANIELMILNOR505]

Keep up the good fight.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@jinw4672]

I caught my Lyme from a business trip in China...I feel you man. I lived with it for over ten years with so many doctors doing tests before finding a doctor that took Lyme as a serious condition for me. My PCP sent me to a phycologist to shrink my Lyme away. I'm still living with it...still suffering...this thing does not go away...people don't know how much we suffer...to the point suicide was even on the table. I agree that Lyme pushed me to do better in life because I know I have a clock over my head and I never know when the timer will go off.

[@DANIELMILNOR505]

Oh man, sorry to hear that. I don't know much about Lyme in China but that is not good. For me the cognitive side was perhaps even worse than the physical, always being a half-second behind and not being clear, year after year. Once I felt the veil come down, via drugs, I knew it wasn't just me or something a shrink could talk out of me.

[@jinw4672]

@@DANIELMILNOR505 agreed. The cognitive side definitely drove me into depression. I work in a high stress corporate job managing multi-billion dollar budgets, my responses during meetings and decision making skills are highly evaluated so having this handicap over me is very difficult. I demand I get the presentations ahead of time so I can get time to prep and take time to think things through, go in with good questions, anticipate answers, responses, etc...it is very painful. When I got my IV done and work life became a breeze, but after three years I'm having relapses...looking like I may need to go to Germany and try the hyperthermia treatment to see if that lasts longer.

[@martiux0916]

@@jinw4672There is always new treatments, we are all in the same boat, I love to find people like this man that is sharing his procces we all should speak about.

[@logicrealitytruth]

Well put. I’m quite sure there are people who have given up. I attempted to 25 years ago, but failed. Lyme is one of the most debilitating diseases one can get. The endless, excruciating pain, extreme exhaustion, cognitive difficulties, permanent damage, medical abuse and neglect, and the lack of compassion or understanding from relatives and friends makes it unbearable. While my research and self treatment has allowed me to keep breathing and has at times lessened the pain, I’m still battling these insidious diseases (Lyme and co-infections) going on 40 years now.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it…

[@dawnsargeant3308]

Thank you. I believe I have Lyme and thought that going to Lyme doc . Was the key. But now I know there's a problem with those doctors as well. Sorry you had to go through this as well.

[@DANIELMILNOR505]

Some are very good. I went through four to find one.

[@leahhuyghe]

Thanks for sharing your story. I'm in my 6th year in the fight. Your story is identical to mine. This is so difficult.

[@DANIELMILNOR505]

Keep going Leah. You will come out.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it….

[@jjohnson1859]

Without a doubt, this is the best video I've seen about Lyme. Very concise. My experience was eerily similar. It took a year for me to be diagnosed.. I went from doctor to doctor(many were complete incompetent bozos) and they did various tests. They couldn't find what was wrong. Finally, I had enough and got an appointment with a Lyme literate doctor in New York(I'm from Canada.) The doctor sent the tests to a lab that specializes in Lyme and sure enough, the results indicated that I had Lyme with two co-infections. It took a long time for me to feel much better and to this day, I still have mini-relapses. I was fortunate to be able to go to a doctor in the US who specializes in Lyme because if I wasn't able to take that step, I don't know what I would have done. But, for anybody reading this comment, there is somewhat of a light at the end of the tunnel. Don't give up and don't take no for an answer. Find a doctor who can do the right testing and who can treat you.

[@rdallas81]

Well said. Thank God you followed your heart for proper diagnosis and care and especially finally knowing what was causing your misery.

[@DANIELMILNOR505]

Yes, very similar to mine. Finding my doc was a tremendous relief. Someone who believed. And had a protocol and a plan. And didn't screw around .

[@DHLExpressDeliveryservic-re9zj]

…I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@TheJanaMitic]

Thank you for sharing your story. It's sad being alone in this, as people around you have no clue what you're going through on a daily basis...which I am experiencing now. There is hope, I'm trying to assure myself, but some days are really hard.

[@DANIELMILNOR505]

Lyme is exploding in the US. The same systems and organizations attempt to downplay it and when you explain the reality to people they just don't believe you.

[@jordaneglis7380]

@@DANIELMILNOR505 meanwhile with Covid lol they are sooo “concerned” and you try to explain and they look at you like your crazy lol 😂

[@singmysong1167]

​​@@jordaneglis7380...I've heard the insurance covers Covid. They have a vaccine, you know.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊❤❤

[@katieeul1514]

I feel you. This changes you. Glad you are better. You say you wouldn't have done some of the protocols you have done. What would you do instead? This has been a long road for you and so many of us.

[@DANIELMILNOR505]

IV antibiotics instead of oral. And the IV's of Vitamin C (Immune drip) and Glutathione were very helpful.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊❤

[@craigskoney1627]

That's quite a story. It sounds incredibly scary. I'm glad you have it under control. I'm also glad I watched. It made me feel much better about my current medical issues. I can't imagine suffering like you have. Thank you for the video.

[@DANIELMILNOR505]

Craig, ya it sucks. Totally sucks but you start to get accustomed to not being 100%. Today on my bike I had ZERO power. ZERO. For no reason. Oh well, I'll motor through it. But, it also makes you appreciate the days when things are right.

[@patvosburgh9387]

My husband and I also got Lyme in 2014. We never got a bullseye rash and we were out of work about a year. We are both Full Time Realtors so it was financially, emotionally and any other way you can think of very challenging. We went through our life savings to save ourselves. Most of what you said sounded exactly like us. We went through our primary care dr who happens to be LLMD here in Largo Florida. We were very lucky to have this in our lives. We went through IV Silver Hydrosol Therapy and then Silver orally for a year and then continued as well. We have been on many supplements and also have epstein-barr and other co-infections. I had to stop driving as I had blackouts like you describe and other issues with brain fog. So many people are misdiagnosed and have other illnesses that do not get diagnosed. We feel very lucky and very fortunate. We feel wonderful and we help so many people by having Lyme. I just got a call on Saturday from a colleague whose daughter was bit by a tick. She is 3 years old and she sent me pictures. She had her on Doxycycline on Sunday. She was able to get the tick and the head out immediately so hopefully she will be well at such a young age. Thanks for the video. It was awesome.

[@DANIELMILNOR505]

Hey Pat, we are now related through the family of Lyme. I was also fortunate having a job and I figure Lyme cost me $40,000 easy. I don't think American's want to look at something like health care and think "It's corrupted." Lyme is evidence it is and each of us has to undertake the voyage almost entirely alone.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤❤😊

[@laurawalker546]

I was sick with it for 5 years, and on 3 types of antibiotics for 2.5 years plus herbs and then herbs only. My digestive system has suffered from the treatment. I will never forget the experience, and it's made me appreciate a lot of things, and it has made me a better person. I did not have the support of and lucky situation that you did but I survived all of it without becoming homeless

[@DANIELMILNOR505]

Mine too. I cut out corn, gluten, alcohol, dairy, etc. And it helped.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊

[@MonicaCarriaga-gi7fv]

2013 chronic Lyme disease. I’ve treated around week 10. You be treated within 4 to 6 weeks. I just had the worst neurological ever looking for permanent disability. Hopefully at this point I don’t wish this on anyone. I literally had to get myself checked to the hospital to get a doctor to help me. I had to go to the ER quite a few times within the last few years. I went through a period where I was having to lay on my stomach and have a seizures, not seizures but tremors. I’ve had two piccs. The oral antibiotics. So I believe on you I’m on year 10.

[@DANIELMILNOR505]

Monica, what is interesting is that when it comes to folks reaching out to me about Lyme, I would say 90% are female. I have no idea what this means, if anything, but it has me wondering. I had severe neuro problems too. These were worse than the physical side.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it…

[@Cali-mam2stroke]

Thanks for sharing everyone needs to know about Lyme it’s a global pandemic and most people don’t understand it. Been fighting my fight for 14 + years your right about it being an island. It’s so annoying that we look normal because people think we’re crazy. Hope you are doing well today

[@DANIELMILNOR505]

COVID was the perfect illustration when it comes to America and disease. We were brought to our knees by a piece of fabric. That's it. That's all it took to crush the American spirit. We were ill prepared, had horrendous leadership and then the public showed their true colors. Not all but half. Lyme is the enemy in plain site. Was having dinner last night with two locals. My wife asked "When you are in the woods do you find ticks?" The guy looked at her like she was crazy. "Ah, yes, there are ticks everywhere," he said. "And," he added. "I've seen moose kill from ticks." "Do you know anyone with Lyme? she asked. He just pointed across the table at his wife.

[@Tinyteacher1111]

1 year late, but perfect illustration. That poor moose! 🫎

[@sirdamianmental]

Ruined my life I'm over 10 years in probably 4 undiagnosed authritus Lyme's carditis and all the rest . I went from unstoppable sporting monster to frail old git in a couple of years. Aged 30 years in 10 brain fudged knackered . Raging insomnia doesn't help .

[@rdallas81]

Sorry. Been there. Still have symptoms.. Learned to live around the symptoms.. Vitamins, no smoking or drinking- It's rough. Life is rough.. We all go through the fire-

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it😊

[@mariaslibeck9984]

THANK YOU! I just watched “I’m not crazy, I’m sick” and I feel as though, as a Lyme patient, you hit the subject better than they did! And I have more hope watching you than the documentary. Thank you. Write a book please!

[@DANIELMILNOR505]

Yes, have hope. You will figure it out.

[@benswanepoel]

Jeez, horrific and inspirational story all rolled up into one. Congratulations for fighting so hard to win back your life. Working as a conservationist in South Africa, i was constantly bitten by ticks in the field, but only developed, what we used to call "tick bite fever" twice, and that was bad enough, but short term with some episodes reoccuring on an annual basis for a few years. Now I have "getting older" disease which sounds a lot like Lyme disease! Keep fighting, never give give up, never give in.

[@DANIELMILNOR505]

Ben, I want to visit S. Africa so bad. A friend here is buying property there, so one day.... We have a multitude of nasty tickborne illnesses here, Lyme is just one. Some are really deadly and there are no cures.

[@elizabethbonnot1394]

My story. Oh my gosh. Been through this for over 30 years. How can someone chat with you. Llmd is insanely expensive. I walked this and still am. Way to bad I have been with Lyme disease for more than 20 years

[@DANIELMILNOR505]

go to shifter.media and send me a note.

[@elizabethbonnot1394]

@@DANIELMILNOR505 this is so similar to my life and more. I was sick since I was born into the united state navy. Make that make sense. New London Connecticut. Groton Connecticut. Maybe I sound a bit crazy. Assure you I am not. I have been questioning this my whole life and still as I breathe grandma said where the crows fly. Just a stone throw away from Plum Island. It was all covered up. I have so much to say can’t write it down would like to talk about it.

[@DANIELMILNOR505]

follow that link, go to the menu and then to the contact form

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤❤❤

[@MissyHammock]

BAM! Thank you for getting well enough to have enough energy to relay this brilliant information. 😎💚💪🏼

[@Tinyteacher1111]

The second time I watched this…I have goosebumps! This is THE BEST video I’ve ever seen on what my son and I are going through! PS. My son sees that doctor in MI. Amazing story about how he got into it! I’m not sure I should say his name, because I may have to go for further treatments. PS, If you have mold toxicity, you’re probably going to test positive for Lyme because your immune system is compromised and it allows the Lyme to resurface.

[@DANIELMILNOR505]

I've got a friend here in town who walks with a cane due to Lyme/Mold.

[@Tinyteacher1111]

@@DANIELMILNOR505 I’m not surprised!! BTW, Thank you for responding. I appreciate it. This just confirms my own research on my past mold toxicity and now Lyme, with a PCR of Babesia Mycroti. I lost my teaching career to the physical and mental effects of mold, but realize I had Lyme as well. Breast implants set this off 20 years ago. ❤️

[@JoseyWales-ed]

Man! I was about to say something about plum island at the beginning of this video. It’s a dam shame what has and is going on, on us guinea pigs. Sick, disgusting and evil!😡. Good to hear yer story and glad yer doing better. Good luck

[@logicrealitytruth]

I tried to edit some structural errors in my post, but got error message “404” about a dozen times before I gave up.

[@DHLExpressDeliveryservic-re9zj]

…I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤

[@RoxanaLorenaD]

Thank you for this video! All that you are saying sounds so familiar! I am living in Romania, Europe but things seem much the same regarding Lyme. I have had a very difficult time to get a doctor to believe me that I have Lyme, and this has happened even though I kept the tick that bit me, sent it to the lab and it came back positive with borrelia burgdorferi. I have travelled half the country and abroad in order to get treatment. Since no one wanted to give me treatment I went from doctor to doctor and one particularly vile lady doctor even asked if I am married and have children because she thinks that I don't have this in my life, that I have nothing to keep me busy and I have developed an obsession for borrelia. She did not even pay attention to my tests properly, I had to point out that she had read negative instead of positive but she wanted to send me to the psychotherapist. I am very happy I never listened to these people even though in the moment they made me feel like I am crazy or bitchy or many of them said: "Why are you so scared? Why do you worry so much? You are an anxious person!". I was not scared, I simply asked them questions and expected logical answers that would not contradict each other. I simply wanted them to take a careful look at all the tests I had done and not rush the consultation I was paying for.

[@DANIELMILNOR505]

Really sorry to hear that. This morning alone I've had phone calls, emails and messages from folks with Lyme, here and abroad, who are all in the same situation. It's criminal but part of the process now. My suggestion is to take care of what you can take care of even without a doc's help. Things like diet, IV's of vitamin C and Glutathione, etc. Sleep, water, strict diet. Then find the doctor that believes and find a drug protocol that works.

[@RoxanaLorenaD]

Thanks for answering, Daniel! And thanks again for sharing this video. It's great to get some confirmation that I'm not the only one and not crazy. I'm on antibiotic treatment now, but there are still a lot of difficult choices to make and a good medical professional is hard to find. I'd like to ask you a few questions about your experience with lyme, so I'll drop you an email today. Please write back if and when you have time. Wish you good health and all the best! :)

[@darrenivak4536]

Great show thanks for the info, I hope you are well❤❤, and thank you

[@DANIELMILNOR505]

Anytime, glad you like.

[@doogster07]

Incredibly terrifying story. Thank you for sharing and laying down your knowledge.

[@DANIELMILNOR505]

It's not a good thing to get......in short.

[@deanawells4395]

My son got Lyme disease when we were living in the city not anywhere near the county, the woods. The doctors told me over and over it can’t be Lyme. The rash was not a bullseye it was oblong and not really two rings. We never saw a tic or a bite. I had to demand his pediatrician to test that came up negative the first time (not unusual). I knew my son and he was sick with Lyme. The symptom that made me know was his face dropping on one side. Finally they did the second test for that to come back positive. He got the normal course of antibiotics. The was 7 years old at the time of becoming ill. At 29 years old he still has symptoms. He gets the same treatment of it is anything and everything but Lyme that all long time suffering symptoms receive from medical professionals.

[@DANIELMILNOR505]

@@deanawells4395 They don’t care. It’s that simple. They are being pressured to diagnose specific disease with established protocols. Lyme does not fit that list.

[@SusanKing-v3k]

I first got Lyme and Co Infection I believe in Thailand , Felt mildly feverish then I lost my mind and then every symptom in the book . Back in Australia , lost a Lyme doctor , still no treatment about 25 years. I have self treated and much better than early years !

[@DANIELMILNOR505]

Australia, as a government, really doesn't want to admit it's there.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤❤

[@tanyakruyt5122]

Thank you for your positive energy! You’re inspiring. Also a great communicator.

[@tonyamckimmy693]

Just came across this. I'm 3 yrs into my chronic lyme disease treatment. I love that you shared! I can relate, of course, to it all. 😅 I am doing pretty well and am staying positive! Take care to all!😊

[@DANIELMILNOR505]

Good for you. It can take quite a while but what other choice do we have? Take care.

[@intrinsiclady8663]

In the beginning of your video you spoke about being unwell as a child. How is your mother's health? I passed it to my children and believe that you can be re infected, passed through bodily fluid and let's not forget that none of the bloodbanks are free of it. Look up the video "What we're (or you're) Not Being Told About Lyme Disease" Very Informative

[@DANIELMILNOR505]

she has vascular dementia caused by undiagnosed LYME.

[@singmysong1167]

Oh, no, I forgot about the possibility of bloodbanks passing it on! And here I was only worried about spike proteins and micro clots from the vaxx being shared into purebloods!

[@justdawndb]

When your dr stood up and basically said "you're shit out of luck" i felt that to my very core....😭 Its exhausting & crazy making...lymesince89 😭. Im exhausted! The look of panic on your friends faces...its horrifying Lyme is a shawdow...it will absolutely make you live life to the best of your ability... If you don't have the strength to do that...well to bad .... YOU. HAVE. NO CHOICE! to live pretending it doesn't exist within you is TO LIVE. A LIFE. HALF-ASSED. Its a horrible ending to a mediocre existence!!!!!! So glad you are learning to walk with it & thank you for sharing 💞

[@DANIELMILNOR505]

Yes, it's a shadow. A dark, evil, shadow.

[@StormyMonday0896]

And when my health finally crashed, I was in liver failure. I looked yellow and dying. I live in Florida and they are now telling us you can get lyme from fire ant bytes, of which I have had hundreds. The brain fog and fatigue, pain.

[@DANIELMILNOR505]

Do'n't know about ants, but "You can get Lyme here," saying happens all over the entire world now. Even in New England.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤😊

[@cgmiliani88]

This is very interesting... I’ve never met someone who have had the disease, but here in YT I’ve heard two stories already. I mean, the most important things are: 1. You are sharing your experience with people who might be suffering from the disease, and that alone is great because they do not feel like sitting on an empty island. 2. You made the most out of it and grow as a person. That is very good. I feel very sad to see such a modern country as the US having so many problems regarding health... and also is terrifying to think that the proper information is not being shared with people... ignorance is deadly. I resonate with a lot of things you say, Milnor. Mostly I come here to hear what you have to say about photography, since I find it very very useful and enjoyable, but this I watch because I think that hearing testimonies like these help us being more open to whatever someone might be facing because of some disease, in this case: Lyme. Also, gathering new information is never a bad thing to do.

[@DANIELMILNOR505]

Carlos, I was both proactive and lucky. I had a job that kept me on. And I had insurance through my job but sadly most LLMD's don't take insurance. I had to pay out of pocket for most of my treatments. But, Lyme is famous for coming and going. So I have to keep it in mind, always.

[@gustavomonasterios6083]

Thanks for talking about this awful disease and giving hope to those people who have it

[@audrachristine5044]

I have suspected Lyme for over 30 years, symptoms started when I was about 12 and I’m now 47. Overtime they morphed into other things, but it mostly started with ridiculous fatigue and a lot of mental health issues as well as getting sick way more often than other kids with high fevers, then came chronic pain, vestibular migraines, which are not a headache. You feel totally disassociated. I get a weird metallic taste in my mouth insane vertigo. My blood pressure goes up and I feel totally disoriented and panicked. There was an entire year that I was totally bedridden, and most of my family thought I was being lazy . There are more but I won’t list them. I have talked about Lyme to every single doctor I’ve seen which have been countless for the last five years after I learned more about it. But other than positive IgM antibodies, the standard testing came back negative. FINALLY went to functional medicine at the Cleveland clinic and they did Igenex testing which found it as well as TBRF. I’m waiting for results on mold, toxin testing, which is a whole another bag of d!cks. This just happened in March 2023 so I don’t know what lies ahead. I feel very hopeful, but it does really surprise me HOW unfamiliar this the doctors I’ve seen are. Some of them I think our legitimately great doctors as far as their intention, I do not think they are owned by Pharma. My primary care doctor has been very supportive. He just hasn’t known what to do and the infectious disease doctor I saw was the same way. But I just can’t believe how they don’t know this information when it’s so readily available now. The infectious disease doctor I saw I had never even heard of Igenex testing. I sent him a podcast interviewing the CEO and although he said it wouldn’t play through the portal email he did look them up and read her bio and what they do there. He Said her bio was very impressive. But said he didn’t understand what was different about it than what he did and he didn’t want me to get ripped off because it was very expensive. Anyways, I need a Community, I need support. I don’t want to join something where all people do is complain about how awful they feel. But I do need understanding, and most likely neural retraining. Thank you for sharing this story I hope someday I can use my journey to help people ! 🙏🙏🙏❤❤❤

[@logicrealitytruth]

Have you looked into Rife therapy or using a function generator? I’m only alive because these things help (along with dietary restrictions, and a host of other self help solutions). It can be expensive to self-treat, but it was more affordable than traveling to and paying out of pocket for a Lyme literate doctor, though that would be where I’d have started if I had had the money. A friend sent me my function generator several years ago. I found out what I had way too late to prevent the extensive damage I live with, but I now at least go into remission from active disease from time to time. 🫠🙏🏽

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@tonicoe2582]

I find this really really helpful, thank you for making it

[@shauncolony5647]

2024! 7mnths in to treatment! Cats claw, monolaurin, Chinese skull cap, Japanese knot weed and some drops! Can't remember the name! 7mnths ago I had to walk up stairs backwards because I couldn't lift my feet! At night I had hours of burning leg pain, keep me up until I sleep from exhaustion! After 1mnth of treatment, burning was gone! 7mnths still no burning! I can walk up stairs front way's now! Some days easy! Most days some struggle! I was told 6 - 12mnths to cure! I feel like about half way! Spesific Natural supplements! Some side affects but not like antibiotics! And I can take them as long as needed! My specialist is a survivor of lyme and has been cured for years! Doctors are liers! Looking for long term patients! Chronic arthritis!!! MS!!! They don't give a shit! All about $$$ Do your own research and know it's curable! Also watch "Beneath our skin" movie on KZbin! Stay strong! You'll be OK!

[@karenlittleton6073]

God bless you Shaun been 7 years here,3B epstein barr,Rocky mtn.spotten fever.Got bite on wait church tick jump from Bush near my house coming downstairs..poison in my arm.been treating at optimize health upstate NY.pls call ask Margaret she Dr.tell her I sent you.keep doing herbs until then me too hard walk,speak,swallow,convulsions,spams,severe nerve pain.Herbs do help got get treated at least few years herbs as borreliosis bores into nerves.

[@DANIELMILNOR505]

Keep it going..

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@aarongaffney6466]

So much of your story is DEAD ON with mine. Got sick on the West Coast, or Japan (Nara likely) what’s the decade of misdiagnosis, gaslighting, people insisting that it’s all in my head and that I’m just fine and making it up, because I was a tri athlete prior to hitting a wall and going to zero. so freaking amazing how prevalent it is, yet the government coverup has alerted a lot of us about the BS going on at high levels- even before the most recent “situation” in Feb 2020….

[@DANIELMILNOR505]

My experience is that Americans, many of them anyway, still believe we are the "good guys," no matter the facts. I get a lot of questions and doubt from folks. "Oh, that would never happen," or worse yet "Oh, that doesn't make sense," because it hasn't happened to them so they just discredit the entire thing. And the people doing the lying love every minute of this.

[@l.tallmadge6536]

❤ Me too. Glad to share this illness with you...glad to be alive...glad to be...❤

[@PatrickSmeaton]

Damn, how horrible! Through all you went through, thank goodness you were able to overcome enough to be persistent. Ticks have really ruined my love of the out-of-doors. I bathe my clothes in Permethrin. I'm in Michigan. Side note: As a lover of hats, my eyes kept going back to the abuse of that hat brim off to your left. At the same time, it could add a lot of character to it.

[@DANIELMILNOR505]

Not my hat......Michigan is bad for Lyme. Know several docs there who have talked to about it at length. Sadly.

[@amandalininger-bortko1616]

You do a great job of telling your story. Just wanted to say that! I have been sick since 2009...finally diagnosed with Chronic Lyme in 2016 through an LLMD, and western blot test (but I had to figure it out through my own research, go figure). I'm finally going through treatment, started last year. Having a very rough time with treatment and the lyme, so getting the tick 2.0 test, so they can find exactly which of the over 350 strains of borrelia that I have and which co infections, so they can better target it. Seeing an LLMD, a Natropath, and a nurse practioner, who all work together. Could not have found a better team of Dr's to treat this. But WOW, this is one long, bumpy road!!! My friends literally thought I was dying too. I get that! But I will fight the fight until that Lyme is gone!

[@DANIELMILNOR505]

I just stayed with friends and they weren't up to speed on Lyme. When I began explaining these things I could tell there was a bit of skepticism about how and why this could be a reality here in the US. I've found if someone has a friend who got over Lyme quickly, then that just erases anything else associated with the disease. When you start explaining about being sick for years they just tune out because it doesn't seem possible. Good luck and stay strong.

[@amandalininger-bortko1616]

@@DANIELMILNOR505 thank you! Yes. I'm lucky to have 2 close friends and a husband who gets it and sees it, so I'm so thankful for that. Everyone else does just tune it out! Just because you don't look sick, doesn't mean you aren't sick. I'm so thankful to be being treated, and also have a regular neurologist who believes in chronic lyme.

[@KittyMeowWow]

I'm in the uk. Knew nothing about Lyme or ticks. I got a bullseye rash and then got sick with flu like symptoms. Went to the doctor and they gave me antibiotics. Doxy made me worse, (I realise now that's normal) but I was about to go abroad, so they switched it to amoxicillin. Anyway, in the end I took around 3.5 weeks worth. That was a year ago but several months later, started getting flare ups of *something,* plus neurological symptoms that gradually got worse, nerve pain, pins and needles etc. Plus some cognitive stuff. I convinced the Dr to give more antibiotics, (doxy this time). I am about to start them - but I am worried that because it's been months now, that perhaps this isn't going to resolve it. I've only been given antibody tests and they were negative but I didn't realise until recently that the bullseye rash is diagnostic on its own. While I've been having weird symptoms on and off for a year, it's been manageable this far and everything I've been hearing is so worrying and scary. I'm waiting to hear back from a lyme literate doctor. It's difficult to know who to trust though.

[@DANIELMILNOR505]

The UK is loaded with ticks. Sadly. Germany is bad too. It's hard to say what the reaction will be. It seems that each of us has our own personal Lyme path. I wish you the best. Let me know if I can help in any way.

[@KittyMeowWow]

@@DANIELMILNOR505 thank you very much. It feels like a lonely road!

[@DANIELMILNOR505]

@@KittyMeowWow I know how you feel. That's why we gotta help each other.

[@karlkrebs]

I do look for photography stuff but I also watch your other videos with great interest. Aso I do not have Lyme Disease I found this video very informative and inspiring. Thanks for sharing and all the best!

[@DANIELMILNOR505]

Karl...keep it that way my friend. It's a bad one and the more alert we are the better off we will be.

[@NicholasRaymondGiasson]

Very good video - did you had any suicidal ideation trought all this mess ??? Or, it never cross your mind ?

[@DANIELMILNOR505]

It never did, but I've never had those thoughts outside of Lyme either. I do know, however, that many others do, and I can see why. When you can't escape the physical or mental side, it can get very, very tough.

[@ChrisBancroft-y7y]

Your determination to find a way out is inspirational, I’ve had Lyme and co-infections for I’m guessing at least six years but was recently diagnosed and same as you never found a tick bite or rash. What I find intriguing is that you state you would rewrite the treatment you went through specifically the use of antibiotics. I have not tried them and just started a new treatment that is herbal tinctures based. I would be very interested in hearing what you might do differently in hindsight whether that’s here in this forum or a different avenue. Thank you for sharing your experiences and insights

[@DANIELMILNOR505]

I would go straight to IV antibiotics. Pulse them on and off. Skip the pills. Just not strong enough. And I would start the Vitamin C and Gluathione IV's from day one. Still do diet change as well.

[@BPA77ON]

Yo bro ham - you holdin secrets on dem glasses. Gimme the low down - super cool look. What are they ? I want to get a pair!!!

[@DANIELMILNOR505]

Easy. Oakleys. I have three pairs. Always glued to my melon.

[@Hamsong]

Hi Dan- Sorry to hear. My comment won’t do my thoughts justice, but I appreciate you sharing your story. I’ve had CIU (Chronic Idiopathic Urticaria) for 18 months and taking a variety of toxic medications that are making me less healthy. No one has been able to address my symptoms and my allergist even referred me to the Mayo Clinic, who decided not to help me after I filled out their questionnaire. I’m running out of options. I’m going to experiment with the usual non-dairy/non-gluten diet and hope for some change. Thanks for sharing.

[@DANIELMILNOR505]

Get a Lyme test, just for giggles. It is THE most misdiagnosed disease in the country.

[@lisaireton37]

Thanks for sharing your story. I am glad you are coping, and have found the silver lining in that awful cloud, and have been able to advocate for yourself. When my dad was ill and in and out of hospital for several years before he died (age 91), I learned how important it is to have someone advocate for you if you can't do it yourself. I actually found something useful on the internet, and bless his heart, the doctor at the hospital read it, said he hadn't heard of it before, but said that, yes, this was what my Dad had. (I googled macular degeneration+hallucinations and found Charles Bonnet Syndrome).

[@DANIELMILNOR505]

Lisa, sorry to hear about your dad. You have to advocate. Most medical professionals are following a protocol dictated by the likes of pharma and insurance companies. They simply don't care. If what you have falls into the range of what works for them, sure, they are happy to play along and charge you do death. Lyme is the square peg.

[@saskiak2272]

You left us hanging about the final treatment that worked😢

[@DANIELMILNOR505]

Yes! I'm free and clear now.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it😊

[@sharmanszkody1177]

Thank you for fighting Lyme with everything you have. Thank you for sharing your experiences.

[@phildo87]

This year here in Michigan ticks are really bad. My dog actually contracted a tick borne illness that according to our vet she is only the third case in history and they didn't know it existed in the USA. It was the craziest thing she would act like she had arthritis for a couple days and then seem better. One Sunday last month she spiked a crazy high fever and we rushed her into an emergency vet and they ended up only figuring it out by looking at her blood under microscope and looking through medical journals. They put her on this crazy drug cycle for the whole last month and right now she is doing well but they have no idea if there will be any lasting symptoms. That has really made us extra worried about ticks with all of the other diseases they cause and now there is a new one that they don't even know if people can get and had no idea it was here until our dog went in to the vet a little over a month ago.

[@DANIELMILNOR505]

Spoke to doc in MI who said he wasn't known for treating Lyme but had line out the door. It is the perfect type of terrain, foliage and animal network. I love me some Michigan and have family there. Sorry to hear about dog. Also love me some canines.

[@svetamusic]

Could you please tell what was the desease name your dog had? Thanks 🙏

[@Tinyteacher1111]

@@DANIELMILNOR505 son sees that doctors. Amazing man! Sorry… can’t edit on my phone.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it❤❤❤

[@iamgreyhound]

Woah, this is insane. I have AS, I went to every doctor around and could not get diagnosed, they kept telling me there is no reason for the pain I was in every day, and to shake it off and return to normal life, untill finally after an year I got diagnosed. The pharma industry is beyond evil, Keep looking for ways to heal, maybe Ayurveda or medicinal mushrooms like Reishi. I'm glad you are doing better, this was inspiring.

[@DANIELMILNOR505]

I think it’s a combination of treatment until you unlock your riddle. Immune system is key. Building it up.

[@NoLimitsCommemorativ]

I just tested positive on a western blot test, having Igenex test this week but I do not know how I even got this? My symptoms are horrible eczema and sensitive skin, urticaria, food allergies that came out of nowhere. Don't recall a single tick bite in my life.

[@DANIELMILNOR505]

More than half of all Lyme patients don't recall a tick bite, including me. I never had traditional symptoms either. But remember, these ticks are TINY.

[@capturacion]

Thanks for sharing. Hope you continue to do well and better everyday. Best!

[@DANIELMILNOR505]

Thank you!

[@Veracity24U]

Thank you very much for sharing all you shared here! ✅️🙋‍♀️👋💐

[@debrag.3900]

Thanks so much for your video. It is a very accurate picture of dealing w lyme and co's from my experience, unfortunately. I shared it to my page to help spread awareness.

[@DANIELMILNOR505]

Hey Debra, cases are rampant here in New England. I see people doing things in the woods who don't seem to have any idea ticks even exist.

[@truthtriumphant4015]

I love Bitten...from what I've researched...she is spot on.

[@ellanorevannin4147]

Agreed!

[@logicrealitytruth]

@@ellanorevannin4147Another informative and very interesting read is “Lab 257.” Pamela Weintraub and Stephen Buhner have published excellent books on Lyme and other vector borne diseases as well.

[@justinmatthews2899]

Never had Lyme, but now I'll make sure I never do.

[@DANIELMILNOR505]

That is the best plan and I"m not joking. Prevention, inspection, etc.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@christinebean7932]

Oh WOW this chronic fatigue/ fiber myalgia . When I was 19 I was a live in house keeper for this man . He would bring project for me to do for his friends & family. One of the most terrifying things I've had to do in my life was for an English shepherd 🫨😭 this poor dog probably weighed more than I . He started howling and crying the first night. I get up to comfort him thinking he was lonely. I o sit by him and there is blood all over the concrete patio there were these big fat gray raisin looking bugs falling off this dog and they were full of blood. This poor , dog those were probably ticks ingourged with the dogs blood. So I get flea and tick dip shampoo i spent the 3 day holiday spending all my gas $ and grocery $ on this dog . Oh this creeps me out just thinking about this when the water dried and this dogy fell so fast , hard asleep I thought I'd killed him . There was a huge mass of these little spider crab bugs with red legs climbing up the side of the house just millions an infestation from one dogo. I was young and dumb , I should have called animal control. Well I had a weird raised bump on my leg for many years . I wonder if I got bit by one of those probably a tick . Ok just WOW Thank you for this video , creeped out WOW I'll have to watch this again

[@DANIELMILNOR505]

This reminds me of what is happening in Maine with moose. Terrifying.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it

[@angiemyhre.photography]

I love this. THANKYOU for sharing. I have Migraine disease. I always look fine, people cannot understand how debilitating something can be thats invisible.

[@DANIELMILNOR505]

Angie, very frustrating. "You don't look sick." And you are standing there barely able to converse. Stay with it. I know CBD helped me a lot with inflammation. Getting good CBD, another challenge.

[@angiemyhre.photography]

@@DANIELMILNOR505 I have discovered that im able to learn more about it/ help myself way better myself than going to a neurologist who only wants to medicate. ive looked into CBD I need to look again! diet is huge contributor, thanks for the advice. 👌

[@dmike3507]

I've read Bitten (by Kris Newby). You can also visit her website where she shares some of the documents she discovered through FOIA requests. Amazing book, must read for anyone... with Lyme disease or not.

[@DANIELMILNOR505]

Lab 257 is the prequel in some ways.

[@Huffoto]

I’ve had Alpha Gal for over 20 years. It took me over 6 years to get a diagnosis. This tick sickness makes you allergic to beef and pork. Any mammal that is bitten by the same breed tick I can no longer eat. When the sickness was at its peak I would have full anaphylactic reactions.

[@DANIELMILNOR505]

They claim at least 500,000 Americans alone now have that same issue, which means the number is mostly likely 5x-10x.

[@DHLExpressDeliveryservic-re9zj]

I'm telling you all about you Dr ubarlo. It was a blessing to come across your KZbin channel. I am finally free from the chronic Lyme disease and have beaten it…

[@samhartfieldlewis5247]

Pausing and Writing notes down as watching this, we moved from UK to Massachusetts Dec 2019 was amazed in the amount of ticks dog got on her from the forest we are in every day, started from February time even with her monthly tablets least they don’t latch on. Made home made spray and we all wear a (tick sonic guard thing) apparently makes them lose there coordinations within six feet of it. Always checking soph (my wife) and the dog also me. Nasty stuff.

[@samhartfieldlewis5247]

Oh yeah also got the grass tick treated too, sort of freaked me out. Around 10 years ago had a tick latch on to the back of my leg, pulled it out and doctors sorted antibiotics. Take care go steady interesting video thanks Sam

[@DANIELMILNOR505]

MA is really bad. I have plenty of friends there with Lyme and many, many others who have had close calls. Dogs are a transfer vehicle to humans, in some cases, meaning the tick will move up the food chain from the dog to the human, so good you are checking.

[@lagazettedesfrancais8155]

Make sure the tick is removed in the proper manner. I had one stuck in my knee without noticing it, brushed it away casually, saw it running away and realised it was a tick. One of its claws remained in the wound, took me months of problems to finally get rid of it.

[@DANIELMILNOR505]

Yes, removal is key. And testing. Many of the labs here are overwhelmed with volume but still worth doing.

[@TasKarp]

You are awesome. Thanks for the inspiration and for sharing.

[@cindyrhead9983]

Thank you for sharing. Your message is encouraging to those of us with chronic conditions. It is possible to have a meaningful life, it just takes more effort! Thank you again, although I am not on your island, I have my own! :) I appreciate all the videos you post, Photography happens to be my new life after my condition derailed my cycling life!

[@DANIELMILNOR505]

Hey Cindy, I think I can see your island from my island! Yes to the effort. Makes you focus.

[@pauldc779]

Fascinating thank you for sharing. Wishing you continued improving health.

[@DANIELMILNOR505]

Thank you, I'll take it!

[@RachelHarder-rp8io]

I had some questions since u know ppl all over w/lyme ?? Some of my signs & symptoms seriously don’t add up w/lyme. i was diagnosed 1.5wks ago. My face changed shape i developed lumps & swelling like I have cancer like growing lumps in my mouth & knots in my bones it’s scary I’m so damn sick my faces changed shape I’m struggling to swallow it’s in all my nerves i swear I’m dying of late stage cancer. I just can’t fathom Lymes causing all the signs & symptoms I have. Even after doing tons of research & reading others stories ab their signs & symptoms.

[@DANIELMILNOR505]

Wow. Very difficult for me to say one way or the other. Lyme mimics something like 150 different symptoms, but there are also the coinfections. Not to mention new strains of this and that popping up all over the place. If you got a real test and came back hot for Lyme you could at least begin treatment. Maybe get a second test. I've not heard the face change but have heard difficulty in swallowing, tremors, mouth issues, etc. Sorry to hear your story.

[@mews56]

Got bitten by tick lyme disease in 1995 the year spring before yellowstone reintroduced the grey wolf. Got MisDiagnosed with epilepsy 1998 .Does it need to be diagnosed and managed as Lyme disease to be able to manage living it ? vs Epilepsy ? As the pain symptoms still linger 37years later

[@DANIELMILNOR505]

that sounds about right. Lyme requires specific treatment, especially when it comes to the co-infections.

[@jpmcgarrell9592]

Thank you for sharing man. Nice shirt by the way.

[@DANIELMILNOR505]

Mr. White

[@ZenoWatson]

Thanks for sharing Dan

[@Super.Quasar]

I have a friend in the US who was diagnosed with LD on return from Cuba. Suffered for 3 years and lost eye focus which was dreadful as a full time photographer. Travelled to every doctor in USA. Somehow, discovered it wasn’t Lyme, black mould had grown to high level behind wood panelling in his house. Got rid of that and recovered. When he was OK his wife left him as his illness had pushed her over the edge. Just saying. :-) Second, I’m waiting for COVID-19 to pass and then I face 6 weeks to 6 months of daily treatment in a Hyperbaric oxygen tent. You made it sound horrible and I’m not looking forward to it now. Thanks. :-)

[@DANIELMILNOR505]

Mold is TRULY horrendous and can cause all kinds of damage. I have a friend who walks with a cain due to mold exposure.

[@jennifervranes283]

Thank you for your heartfelt comments. I was recently diagnosed with Lyme. I am considering a hyperthermia protocol in Germany. Have you heard of Klinik St. George & their treatments?

[@DANIELMILNOR505]

I don't know about them, but that doesn't mean much. New treatments, or those unknown to me, are popping up all the time. A filmmaker from LA is thinking of doing a film about the insanity that is Lyme.

[@jennifervranes283]

@@DANIELMILNOR505 That would be great if a documentary is made. There's such a need for greater understanding on the topic. I've heard from others that have undergone hyperthermia treatments that nothing else compares to how much they help.

[@Cali-mam2stroke]

Also wanted to say I’m from Nor Cal we’re I got Lyme and Drs don’t believe it’s here.

[@DANIELMILNOR505]

NoCal, especially the Sacramento area, is one of the worst places in the US. Even the parks in San Francisco have ticks carrying Lyme. Most doctors are useless.

[@paulmarles]

Thank you for sharing. Your films are very inspiring.

[@florinpopa10]

Impressive testimony, Dan. I like the "no big deal" attitude to it, which creates a contrast with the seriousness of what you're actually saying.

[@DANIELMILNOR505]

Florin, there were times when it was a huge deal but it was somewhat internal because most people are healthy and are doing what they need to do. So you internalize and pretend all is well. After a few years it's a real drag especially when there is SO much bogus info about Lyme.

[@lightconnection1]

you are so right same here in Belgium...

[@Catmom-o9z]

Thank you Daniel. Really appreciate this.

[@Philfalki]

I think even when the bacteria’s are out. The nervoussystem and immunesystem are running over still. So brain retraining could help :)!! I am also rock bottom like I am going to die and now trying it

[@DANIELMILNOR505]

You need to find the ONE thing that begins to tip the scale. Could be drugs, diet, IVs, something.

[@sirenaswint]

I was recently diagnosed with Lyme disease as well after 4 months of going to 8+ physicians. What we’re your coinfections? Also do you think your recovery would’ve been shorter if your doctor treated the coinfections first? Thank you. Your story is very inspirational & is giving me hope that I can get through this.

[@DANIELMILNOR505]

aspire.care/blog/bartonella-babesia-coinfections/. Right here. And yes, it was not until I met my fifth and final LLMD that he said "We gotta kill these coinfections first."

[@mandamoon13]

Thank you for your story I've had it for over 15years its terribly hard. I would love to know more about your treatments I'm on the west coast need some llmd recommendations

[@DANIELMILNOR505]

"My guy," is on the OC at Amen Clinics. www.amenclinics.com/team/mark-filidei-d-o/ He's very involved in the Lyme world and is a no nonsense guy. He was the one that got me on the path to recovery. IV's, meds, a plan to combat the co-infections, etc.

[@scottalanphotography]

Man... I really hate that you've had to go through all of this. But like you said you've turned things into a positive out of it. I really believe things happen to us so that we can help others who are or are going to walk a similar path. On another note. I just received your Panama book in the mail from Blurb. Excited to crack it open and take a look... 🙏✌️

[@DANIELMILNOR505]

Hey Scott, ya it's been a long six years, that is for sure. What Panama book?

[@scottalanphotography]

@@DANIELMILNOR505 I did a search on blub for books you've done. There was a photo book on Panama that came up so I bought it. I'm now guessing that's not your photo book that I bought and waited over a month for as it got lost in the mail. Lol.

[@JessicaWilliams-ii5xe]

Thank you for your time in sharing this.

[@lisasdayoff503]

Could I have gone 35 years without knowing? I think I have it.

[@DANIELMILNOR505]

Yes, that is more common than you know. A friend in Maine, undiagnosed for 30 years. My mother has advanced vascular dementia caused by undiagnosed Lyme.....

[@Tinyteacher1111]

Yes. My doctor said I probably had it as a child and I’m 68. They think Lou Gehrig died if Lyme. It causes ALS, and he was from Lyme, Connecticut!