About Vestibular Disorders

[@emmatheresa6948]

One thing I have found helpful is wearing sun glasses while in shops, transport, crowds etc. I have found that reduces a lot of the disoriantation

[@deeluu731]

I have lived with vestibular disease for years due to a mistake not head injury.. I am so glad there is some information getting out, for years there was nothing. It is a disability that is not seen and is very hard to explain and this alone is exhausting let alone trying to live day to day life. I do hope the word and help does get out and hopefully some type of cure. It is a very lonely disease.

[@VestibularVeDA]

Hi Dee Luu, Please contact us if you would like referrals to some support resources or other information.

[@tokyokurt3764]

@@VestibularVeDA I need help

[@VestibularVeDA]

@@tokyokurt3764 Please email us at [e-mail] or call us at 1-800-837-8428. Thank you!

[@xxplo.visualzz]

Hello can I talk more about it with u ?

[@gardensofthegods]

I wish you would talk more about what you experienced so other people can see if they are experiencing the same thing as you .

[@tokyokurt3764]

I have a vestibular disorder, it is hard thing that I have ever went through

[@Justme77400]

I found a specialist in my area on your website and I have an appointment with him on September 2.

[@Justme77400]

Andi Vestibular Disorders Association Thank you!! I’ll do that. I appreciate your reply.

[@gardensofthegods]

Can you please tell us what was the result as it has now been 3 years ago and we would like to know if you have vestibular disorder or what is going on ? Could you please tell us how they are helping you ? I think I have this problem too as I have been losing my balance very easily

[@belminmuhovic2064]

is this something that can be cured. It is devastating

[@deeluu731]

The only thing I've learnt from my experience is physio to help your brain adapt to your situation..there was studies and they were inventing some type of apparatus in Quebec Canada but it was stopped due to lack of funding.Hooefully something will come to fruition.

[@TargetedPerson4815]

I don't know if I have Vestibular Disorder. but I have experienced balance issues similar to vertigo episodes from Havana Syndrome Attacks.

[@TargetedPerson4815]

I want to do the FMRI but if my Percentage of Vestibular Disorder isn't that high is the test worth it?

[@Javggoat]

@@TargetedPerson4815what medication u taking?

[@gardensofthegods]

​@@TargetedPerson4815I never heard of that is that a specific type of MRI ?

[@leslieladyhawke]

Is there a Vestibular specialist in Texas, specifically the Dallas/Ft Worth area?

[@VestibularVeDA]

You can search our online directory for vestibular professionals (vestibular.org/finding-help-support/provider-directory?name=&field_geofield_distance%5Bdistance%5D=3000&field_geofield_distance%5Bunit%5D=3959&field_geofield_distance%5Borigin%5D=dallas%2C+tx) or contact us at [e-mail] to speak with our patient support coordinator.

[@carikshawn6955]

I live in Houston....after 5 LONG years and an angry email to the ENT who only had me get an MRI 3 years ago, I was referred to Dr. Alex Sweeney at Baylor. Contact Baylor an see whom they know in Dallas Ft Worth. I have an appt with Dr. Sweeney Thursday the 20th.

[@LêMếnMóm]

VESTIBULAR BALANCE DISORDER SUPPLEMENT

[@nancypineda5226]

If I called VEDA to ask about my symptoms to see where I can start to looking for a Doctor would they help me ?

[@thedizzinessclass3470]

The VEDA website has an online database where you can find a vestibular physiotherapist and otolaryngologists in your area.

[@randybeeman7823]

If you give them a donation they said they will send info . As I didn't have extra $ basically like the Drs. they as agreed sucks to be me . Today it's 7 yrs 11months 14 days since nerve was burned out in right ear . First TBI on 12/5/71 . Tuff stuff to get through ?

[@BoomerAnn]

This would have more impact without the plea to donate... I understand why you ask, but the placement is all wrong. A few seconds at the end, perhaps...but not a speech lasting nearly a minute.

[@VestibularVeDA]

Hi Ann - thanks for your comment. Today is the first day of Balance Awareness Week, the event for which this video was created, hence the call for action to support the cause. We certainly understand that not everyone is in a position to do this.

[@deeluu731]

What does it matter, the point is to let people know what this disease is!