Jamie Laing shares his tinnitus story

CREDIT: Junction Eleven Limited & RNID

[@juliewillard1367]

I have suffered for 14 years. It was so scary at first . I just woke up with it one day. My tinnitus has changed over the years and gotten worse with hearing loss. I sleep with white noise on every night. You just have to adjust but not easy.

[@djjudgev]

Jamie your experiences are so valuable. I can relate to everything you say. Thanks for sharing your personal experiences.

[@kevanmccaughan2314]

4 months ago this happened to me, and I thought the same as you, this is going to take over my life. I have had MRIs for head, neck and jaw, all are clear. This is when I realised that I could have this for rest of my life, but I am trying to manage it with lowering my stress levels (where possible), Physiotherapy and prescription drugs to help with sleep. I am constantly searching and researching possible 'cures'. so far nothing has really helped. There is/will light at the end of the tunnel.

[@Arsbornn]

How about now dude? I have t for week and I can't even go to sleep because off the ringing

[@Udayfrrrr]

Any update ​@@Arsbornn

[@onibaba7826]

Susans shore device is coming out this year.

[@IsmailYaman-rh4uz]

​@@onibaba7826 when? Are you sure ?😢

[@onibaba7826]

@@IsmailYaman-rh4uz based on the latest announcements , before the year ends.

[@kevanmccaughan2314]

Anybody out there that has any suggestions for managing their Tinnitus, please share. I do realise that all may not work for everyone, but I will try anything...with in reason

[@oruam474]

As someone who experiences tinnitus firsthand, I can attest that the most effective way to manage it is by shifting focus away from the sound. Personally, I've found that when I don't dwell on the tinnitus and instead engage in activities that occupy my mind, such as listening to music, practicing mindfulness, or pursuing hobbies, the intensity of the sound diminishes significantly. This aligns with scientific evidence showing that the brain has the ability to effectively filter out the tinnitus noise when it's not constantly attended to. By incorporating these strategies into my daily routine, I've been able to improve my quality of life and minimize the impact of tinnitus on my well-being.

[@shaun906]

@@oruam474 sound masking (mines at 8000khz) I get minutes of almost silence and i don't hear it in bed if i leave it running. I think mines linked to ETD eustachian tube dysfunction, as it gets bad in winter or after a cold.

[@untold101]

This is all I can offer for managing tinnitus. Mine started two years ago, out of nowhere, left side of my head. I've had every drug, nasal spray and steroid known to man. My T never stops, is around 13-15Kh, gives me a headache that I've had for two years. I also get clicking and weird noises like air is trying to move but can't. The clicking is not type writer tinnitus, it's something else. My T is around 15k, a cross between a ringing and a hissing, sometimes it pulsates along with the constant noise. It's completely destroyed my life. After lots of reading I thought it might be ETD related, it's not apparently. I've had MRI scans, CT scans, scans with contrast, and full brain scans to check if it is neurological, they've found nothing. ETD symptoms can be part of a acoustic neuroma and that it my guess at the moment. I'm going to suggest this at my next hospital visit to the specialist. They are apparently very difficult to detect as they are so small, a non cancerous tumour that grows on a nerve in the ear. I'm not a doctor or an expert but I need to know what is going on and if their is a better future. I'm currently taking 80 milligrams of Fluoxetine daily. It's supposedly an antidepressant that helps calm nerve endings, not sure it does anything actually. To be able to sleep I take Loprazolam although sleep is not garuanteed. For most of the day and all through the night I wear one of those Bluetooth headbands that joggers wear. I listen to various tinnitus masking sounds around 15kh. It doesn't stop the T but it's a better sound to listen to than what I have to endure. Try the headband (about £10 - £15 online) and find a sound/frequency that helps. There are loads on KZbin, some are 10 hours long. A good site is Dalesnale site. That's all I can offer in terms of managing your T. I know what torture it is and understand your situation. There is not a day that passes where I don't think of suicide. I've had it for two years, how people cope with this for decades is beyond me. That is all I can say. Not sure that is of any help. Good luck my friend. Love and silence to all.

[@Sholto_David]

I support the first reply. Something that helped me enormously was finding a sound that obscured my tinnitus and playing it on speakers at my desk, there are lots of examples on KZbin that may help. It might be useful to find the tone or frequency of your tinnitus, and try to match the type of sound to that. To my pleasant surprise, playing these sorts of white noise tracks is not irritating, and I quickly forget about both the white noise sound AND my tinnitus. This decreases my level of stress because I can concentrate on doing the things I enjoy. When you are less stressed about hearing tinnitus, you will spend less time listening to the noise in your head. This is a positive cycle, when you know that you have the option of masking it, you don't need to feel so worried when you do experience it. I also enjoy taking a bath and reading, the noise of the water obscures the sound. It also helped me to keep some positive thoughts ready, some ideas that I reflect on when it stresses me out: "Tinnitus is not painful", "There is nothing wrong with my hearing", "Tinnitus can reduce intensity, or disappear entirely". When I first heard tinnitus I felt that my life would be ruined, I was feeling far too dramatic, now that I have simple strategies to manage the stress I have returned to doing all the things I like, and although it would be nice to experience "silence" It's not something I miss desperately like I thought I would. This is the sound that helps me on KZbin: kzbin.info/www/bejne/l4nUm6Jpfp5lhMU

[@MatadorShifter]

Listening to your tinnitus makes it louder cause the noise gets marked by the brain as something important. So if you manage to shift your attention away from it it'll be quieter. On top of that, read about bi-sensory stimulation. It's been proven successful for some people

[@sarahobrien9241]

🙇‍♀️

[@skycanecorsa100percentpure5]

suffered for around 10 years 24/7 mines the same I keep thinking il never hear silence again it runs my life or ruining my life going to try acupuncture Friday please god even a little quiter will be a bonus

[@kevanmccaughan2314]

Its probably bit early to tell, but did the acupuncture help? Do they have any success to Tinnitus?

[@skycanecorsa100percentpure5]

@@kevanmccaughan2314 no I had to cancel 2 appointments but hopefully awaiting booking end this week thanks for asking il let u no it’s 10/10 at mo driving me mad 😡

[@SuperCamboRambo]

Any one hear about the Susan shore device?

[@elainerose2136]

I have heard about Susan shore device.Her device treats somatic tinnitus.It’s not available yet.Could treat non somatic have read .I live in England so will be a wait to reach here.Just hope and pray 🙏 I

[@melodyebuskin5490]

@@elainerose2136yes. Waiting for FDA approval here in U.S. Her trials showed 80% reduction f somatic but also maybe f other types.