Adalimumab treatment six-month check in (November 2024)

[@MightyRedChick07]

Thanks for sharing your journey Emily. I've had palindromic RA for quite a few yrs now, but it appears to have progressed to active inflammation, with persistent symptoms. RA consultant has advised that I start new Biological drugs, and mentioned Adalimumab. During my research, I'm delighted to have come across your channel. Sorry to hear that after 6 mths it's not working for you, but hopefully you'll soon find one that does. Unfortunately, finding the right method/drug for treatment can be very time consuming and frustrating, especially when in pain and also the other side effects that come with it. As I said to the RA nurse, it's difficult for friends and family to understand what you're going through. Because you haven't got your arm in plaster, a big bandage wrapped around your head or using a walking stick (I'm sure you get my drift) people can't see anything wrong with you, only that you look tired and not your normal self !! 🤷‍♀️ Keep being positive and ill look forward to your next installment. Kind regards 🙏

[@clairehowland1228]

Thank you for your update, it’s really interesting to hear how you have been getting on but sorry the Adalimibab hasn’t worked well enough for you. I am due to start Adalimumab (for Axial Spa) in the New Year following the appointment with my consultant this week so have my 🤞. I am currently on Prednisolone and they also gave me a Methylprednisolone injection to help control symptoms in the mean time. I then hope to be able to reduce the Prednisolone to a level where the side effects are reduced. Thank you for sharing your story as it has really helped me.

[@aslightlyatypicalpresentation]

Hi Claire, thanks so much for your kind message and for sharing your experience. It makes my day to hear the videos could help in some way! I really hope you have a good result with adalimumab - I know it's usually the first choice for Axial Spa and AS so have fingers firmly crossed for you 🤞🏻

[@RaePat80]

I am also sorry this bio med was not helpful in managing symptoms. I have been following your story for a while because it was helping me manage through my AS, same medication journey exactly and timing, up to this point. I am taking hadlima and it worked for me alongside lifestyle. Your journey was RA so was suprised it might be something else. Like RA, AS has a wonderful community of support - the reddit channel for the most part is warm and filled with many resources. The good news, there are several alternate treatments that have worked well for others to tame the condition. I hope you get to the root of it to allow you to pair with the right treatment to get relief. My dx was a result of positive hlab27, sacroilitis present from pelvic mri, and dactalytis in toe, elevated crp at 8 (in addition to SI, back and neck pain). Wishing you well on your health journey and thank you for sharing your experiences.

[@aslightlyatypicalpresentation]

Thank you for your lovely message, and for sharing your diagnosis journey with AS - it is so helpful to understand a little more about the process. How interesting that we've been prescribed exactly the same medication so far! I will check out the resources you suggest too. My rheumatologist told me at our very first appointment that it was "a slightly atypical presentation" of RA so I guess there was always a chance there was a bit more going on! Hopefully the follow up tests will clarify things. Thank you for sharing this journey with me ♡

[@RaePat80]

It is because my rheum gave me a diagnosis originally of RA, despite negative ra factor and anti-cpp. My first symptom was pain in my pinky toe which showed damage from arthritis. My SI, back and neck pain then developed three months later. So started on methotrexate and next sulfasalazine. Methotrexate only made things worse, I became ill overall. Sulfasalazine was great, kept all peripheral symptoms at bay, but did nothing for my SI and back. Hadlima took 12 weeks, but feel fortunate it was effective and now in remission. My rheum was surprised because he said AS presents so differently in women and plus my onset was age 44. To your point, because I am female, mid-age ish, and the disease started in my peripheral joints, I guess it may be an atypical presentation. I am subscribed and will check back for an update. Take good care.

[@aslightlyatypicalpresentation]

Thank you, you too. I'm really glad you're getting good results with the Hadlima. Very interesting what you say about AS not being so much on the consultant's radar for female patients - mine said something very similar last week! It might not turn out to be that in my case of course, but there is definitely axial involvement of some kind... Will keep sharing the updates as things progress!

[@NickTub3]

Hi, thanks for the update. Sorry adalimumab hasn’t quite helped as much as you hoped. It’s good you’re going back on your previous medication. This will be my first biologic, just weighing up if it’s worth starting over Christmas or straight after! Fingers crossed it does something. It’s good they are doing further tests for you. I have AS and it can be difficult to diagnose but hopefully you will have some results soon! Take care and good luck!

[@aslightlyatypicalpresentation]

Thank you so much for your kind message, I appreciate it! I really hope you get a good result with adalimumab, I've read it's often the first choice for AS. Hopefully the tests will clarify things for me one way or the other, it sounds like diagnosis with AS can be quite a process as well. Was the HLA B27 part of it for you? Wishing you all the best, whenever you decide to start the adalimumab 🌼

[@divinesparkle7788]

Thank you for update 💜it means a lot to me 😁I have methotrexate injections but maybe I Will need biologicals later and I am terryfied for side effects so this video helps.

[@aslightlyatypicalpresentation]

Thank you for watching! I'm so glad if the video could help in any way, and really appreciate your message ♡

[@NickTub3]

@@aslightlyatypicalpresentation thanks, I actually started today. Was no where near as scary as I thought. Yes I am HLA B27 positive, it can be one of the markers but usually it tends to be a clinical diagnosis with other attributes and some get it without thst .Hopefully adalimumab does something. I have had a very dry mouth today though which is unusual for me so I think you could be right with that one! Hopefully it won’t last. Thanks

[@aslightlyatypicalpresentation]

Oh I'm so glad you had a good start with it - hardest one done! Interesting that you got the dry mouth too. I hope that settles down for you though in time. Thanks for responding about the HLA B27, that is interesting. I'll have to see what the tests show and if any further investigation seems warranted. Crossing fingers you get a good result with the adalimumab 🤞🏻