Addison's Disease - Rebuilding Life - Education, Medication and Gratitude

[@dramy78]

Thank for sharing your story, and touching on the grief of old self as well. I’m 4 months into my diagnosis and still up and down and this gives me hope. 🙏

[@chronicallyfit_withjill]

You can do it...one day at a time!! Her story is very inspirational!

[@shimelle3634]

Thanks for the Prednisone info. Are you finding more Addisons since Covid?

[@chronicallyfit_withjill]

Hey there...I am not aware of any stats since covid but I heard it is a possibiility.

[@johnwestervelt1525]

Thank you. I really paid attention to your experience of your hospital ED crisis - not being able to raise your arms and the speech vs thought disconnect, etc. Been there - mental confusion and speech abnormalities are a part of my AI package. In fact, a few years ago I experienced a "small stroke," essentially a 20 minute tia. Now I wonder if I wasn't just having an adrenal crisis. In fact, when the emt's hit me with sodium and my wife hit me with a handful of hydro, I got better pretty quickly. I never thought of that experience in that light. Thanks and so glad you're getting better.

[@chronicallyfit_withjill]

Thank you for the comment...be well friend!

[@David-ft6kn]

I love watching your videos ❤

[@chronicallyfit_withjill]

Im glad you enjoy them ❤️ i hope they are helpful ❤️

[@SheilaMore-l4v]

I am scared I have got Addison’s found out when I went in the hospital for five months ago, but my doctor is not gave me no medication and I’m always tired and drained and my life is not normal and I get brain attacks every month attacking my brain it’s very scary, I’m supposed to go back to see this primary doctor and I’m going to tell her that I’m not doing that great. I hope I can get some help.

[@chronicallyfit_withjill]

Oh no friend...please get help and listen to your inner voice...fight for answers...please update us.

[@SheilaMore-l4v]

@@chronicallyfit_withjill this is really scary. I got to get some blood work done. They want to check my cortisol. This is my return visit to them. I’ve been through nothing but nightmare for six months now I’m afraid I hope that if I end up on the medication I’m scared to even take it because I don’t know what they’re gonna do but anyway thanks for the video. Just been praying that I can get the right treatment the right help

[@SheilaMore-l4v]

I got another question to ask you do you take any vitamins or anything like that around your medication or do you take it? Take any kind of vitamins like I take vitamin D3 K2 and magnesium and other stuff do you take anything like that at all? And do you take it away from your medication? I need to know just in case I get on medication.

[@chronicallyfit_withjill]

@@SheilaMore-l4v Hi there best thing to do is to talk to your doctor and pharmacist about your specific medications and how they may possibly interact with any supplements you want to take...but yes I do take supplements and for me most are fine taken with my other meds

[@chronicallyfit_withjill]

@@SheilaMore-l4v I hope you find answers quickly...trust your instincts and fight for answers.

[@margotgaudet7594]

I’m in awww of her drive!! Loved listening to her! It’s been 13 years and I’m just finding this drive to learn more and figure out how to live a better life! ❤️ keep up the great work, both of you!

[@chronicallyfit_withjill]

You too friend...you are amazing!! Keep fighting!! Mauve is amazing inspiration with her new dx of Addison's Disease

[@laurabryce858]

Amazing podcast … this is almost like a carbon copy of my pre diagnosis symptoms! Thanks for sharing your stories with us x

[@chronicallyfit_withjill]

Thank you for the comment...MAUVE is an amazing lady so glad she came into my life!

[@teresajordan2295]

So scared 😢don’t know how to live with this

[@chronicallyfit_withjill]

One day at time...I recommend learning as much as you can...find people living with this that are positive examples....I am 13 years into this and you can do this!!!

[@teresajordan2295]

Good video so is anxiety a symptom of low cortisol

[@chronicallyfit_withjill]

For me yes and the more i talk to others it is very common ❤️❤️

[@dramy78]

For me it’s a unique mix of anxiety, doom and ADHD all mixed in.

[@elizzywray3111]

How do I know i have the right endocrinologist

[@chronicallyfit_withjill]

hmmmmm...good question...I would go by if they listen to how you feel and actually try to give you quality of life base on your symptoms and feedback.

[@elizzywray3111]

Is our endocrinologist learning from us because when I got diagnosed in hospital I was handed a load of papers to told to read them and follow the rules and sick days I hadn't got any idea what he was on about so I gave them to my daughter and asked her she then talked to the doctor and explained that I can read but don't understand what I am reading it I have always had to listen to what the person saying and try to make best of it I have no consatrion and I have always been very forgetful but got worse I thought I was in early stages of dementia is this possible that I have always been something to do Addison

[@elizzywray3111]

@@chronicallyfit_withjill Jill I am not sure if I told you anything about myself I'm Elizabeth and I am 65 years old I live in Londonderry Northern Ireland iwas only dignos with Addison deseas 2year ago coming August

[@elizzywray3111]

@@chronicallyfit_withjill iam finding it hard to find someone anyone who has this to talk to so I can learn from it ikeep trying to live a normal life as possible I keep searching for groups or people who have the deseas so I can get what my does and don't are all about I have low blood pressure all my life and nothing was ever envesigated iwas dignos with low thyroid when I was 30 and then Addison deseas 2years ago I was always hiperactive until then now I if I try to just hover or even walk around I am very breathless and wanting to sleep yet when I go to bed I can't sleep other time's I find that hours have passed and don't know if ifeel asleep or just passed out while sitting on the chair I do have a binio tumor in my putinay gland my meds are fludrocortisone 100and hydrocortisone 10 I was on 150 fludrocortisone and 50 hydrocortisone levothyroxine 75 since be cut back on meds my sorisas have came back with revenge and I can't seem to get them settled not even with the steroid cream p.s PLEASE EXCUSE MY SPELLING

[@chronicallyfit_withjill]

@@elizzywray3111 nice to meet you friend...LOVE we can connect this way