Adult Primary Immunodeficiency | Tara's Story

After a lifetime of debilitating infections, Tara Sakraida Parker found answers-and treatment-at Johns Hopkins, through immunologist Antoine Azar and the Center for Adult Primary Immunodeficiency Center.
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[@anandaadidevi2339]

Dr. Azar is the best of the best. I saw him for a couple of years when he was at the University of Iowa Hospitals and Clinics. I've had some very strange infections over the years and he's the first doctor who ever tested my immune system and helped me accordingly. My health has been better ever since. He left years ago to go to Johns Hopkins and I still miss him.

[@MrsRight2020]

I got diagnosed 2018 and the shock I had was actually cost of the treatment IVIG. I had to stop with ivig few times because of the insurance games they play. Now im in florida andni changed 3 insurance companies still no one wans to deal with milion dollar patients. Law suits has to go each of them. Shame on you .

[@nicoles6243]

I got financial assistance, cant remember the patient advocates but otherwise id be dead. Check idf and the companies that make ivig bc sometimes its hidden.

[@DestructoPop]

Holy shit. Holy fucking shit. This... This would answer so many questions. About the deaths of my family members. About my own complete immune failure. About why I'm always sick. About how when I do get sick, I stay sick for months and months. Why I've had pneumonia so many times. Why I've had so many fungal skin infections. Everything. How does one get tested for this?!

[@BrittKatSlat]

Blood test

[@jessicah3450]

It's a simple blood test, get your immunoglobulin levels checked.

[@AM-wu7tq]

Did you get an answer? I am in this situation too!!!

[@nicoles6243]

Igg levels 1st. Then if needed for insurance bloodtest of antigens pre & post pneumonovax will prove to insurance. Its a fight but so worth it.

[@francinebarr1204]

Thank You 👍 Sick For Years With This And That!! But Now, I Have A Answer 😍

[@sugabay]

I need to see him asap

[@cch8001]

I have primary immunodeficiency

[@lucreciamullerlewis3199]

Spanish?

[@heatherstub]

subtitles in player.

[@SandraCorchia]

Dr. Stuart Osher in Manhattan diagnosed me within a few months! I was so blessed! ❤

[@matthewmann8969]

More things invented, innovated, fixed, made, and created will block these

[@CharlotteDahlLionheart]

This a very nice video, although I would love to know more. But please remove the loud music. It is very disturbing

[@hamayasin3084]

Johns Hopkins wait I’ll come one day (like a expert physician)

[@kristenniestrom7475]

I pray you’re feeling relieved. I’m just newly diagnosed. I am in the same situation you were/ are.

[@angiepangie5359]

How do I get help ? Please im so ill

[@JohnsHopkinsMedicine]

Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication. If you would like to request an appointment at one of our hospitals, please call 888-872-1408.