Advanced Stage and End of Life Care

Presented by Maya Katz, MD, a neurologist at the UCSF Movement Disorders and Neuromodulation Center, as part of the Lewy Body Dementia Caregiver Webinar Series supported by the UCSF Memory and Aging Center and the Administration for Community Living.

[@tamarahickman6301]

DEPRESSING…STRESSING…EXHAUSTED…BROKE DOWN…BODY OF A CAREGIVER…WE AR3 NOT MACHINES…WE NEED TAKING CAR3 OF ALSO…THANK MY ALMIGHTY FOR MY COUSIN CONNIE BEING IN MY LIFE…SHE HAS NO CLUE HOW HELPFUL SHE HAS BEEN TO ME…THROUGH IT ALL…WELL DONE MOMMY…OUR ANGEL!!!!! OUR QUEEN…WHERE THAT 8 HOUR CARE…!!!?!?!?!

[@lindaneff2558]

One of the better talks on LBD! Well done.

[@staceylowe258]

I'm a physical therapist assistant in a skilled nursing facility working with a resident with LBD and found some good helpful ideas here. Thank you.

[@barbaramiller2279]

It is still true that doctors caring for our loved ones do not provide enough compassion, understanding and information to the families of people with dementia, any dementia. I'm the kind of person that will seek out information for myself rather than continue to be disappointed. That's one of the biggest pieces of advice I can share.

[@erinoshaughnessy6568]

This is such pertinent information and I want to share it with my family because my dad is in the later stages of this disease. I’m a nurse and I’ve studied palliative care and this is a wonderful collection of helpful info. The ‘um’s throughout distracted me… I get it, and I hate to be picky. AITA, yes.

[@257rani]

Thanks for the loving caring message. I am so worried about my caregiver ❤😥🙏

[@tamarahickman6301]

SOME FAMILY UNDERSTAND THE STAGES…SOME IGNORE THE STAGES…SOME PAY NO ATTENTION TO THE STAGES…!!!!

[@shirleymckinley6842]

very informative,..so much what my mom is going thru.

[@SchmeesCrotchFruit]

They think theyre in an airport-- you join the journey..

[@tamarahickman6301]

MOMMY!!!!!!!

[@bakokat6982]

I must comment on your rather “hospital “ ideas that you seem to think will work at home. Dr. You seem to think that anyone can provide care for a loved one at home. Not everyone will be able to physically care for their family member. ie:/ a wife my not be able to even lift their larger husbands legs for range of motion, or turning them in bed, etc. Not to say even take care of their family member’s incontinence, whether urine or fecal. Nor can most retired couples be able to afford having care done by home care agencies. I find your advice to get emotional help from other than the Dr. Caring for the patient. Do you realize how that is very costly,and the difficulty finding time and money to do that while trying to care for their disable family members. Feeding tubes are now bad, in lieu of what starving, feeling hunger, being dehydrated. If you have clean up your family members urine and bowel movement’s, by it’s nature is not a private thing anymore. It is simply what is needed done. I think your presentation is fair enough but truly not terribly practical for most families trying to keep their family member at home. And most families cannot afford the total care costs that are charged in nursing homes.

[@SchmeesCrotchFruit]

JELLO ;)