LETS TALK ABOUT POTS! | Postural Orthostatic Tachycardia Syndrome | What is Dysautonomia??

[@Aimee_Esther]

*JOIN THE COMMUNITY: aimeeesther.podia.com/community

[@ChibiChoChan]

I just wanted to say thank you so so much for posting your videos about POTS. I never would have known about it and researched about it if I hadn't found your videos. I absolutely think that this is what I've been struggling with and I am planning on talking to my doctor about it at my next appointment.

[@Aimee_Esther]

Yay! This is why I create videos here to spread awareness!! :) Keep me updated!!

[@debbyhathcock4556]

Thank you so much for sharing. I don't know that I have p o t s but I do know I have chronic illness and it helps a great deal just to hear somebody else share their journey honestly...

[@nicolewaters2581]

Great information! Thank you!

[@jessicalingo4346]

Ive had pots symptoms since 2010. Unfortunately due to lufe circumstances i havent been able to get correctly diagnosed. Since 2018 i had it worse and in 2019 i was diagnosed with psychogenic non epileptic seizures. I woyld stand up or get really high hr and get so bad that i would start to decline. It would be brain fog then fatigue with lightheadedness then my body would shut down. I couldnt speak or move when i was in these catatonic state. About a year ago i saw a service animal video with infor about pots and it caught my attention. Im now trying to get on the path to diagnosis. I just got some compression socks that have made things a lot better with my fatigue (my most cripling symptom) and this is the first day that ive had enough energy to actually do things in quite some time. I did do a pmttt for some friends and it jumped at least 30bpm. Im waiting for the cardiologist appointment. Im curios about what it feels like when a pots person faints or psudo faints (my term for the presyncope) i think ive been having those episides without realizing it

[@DiariesofaDisabledmom]

For some reason they didn’t have me do the tilt table test but I’m glad they didn’t cuz it terrifies me lol

[@SusieW-ku4ub]

Aimee, I have Fibromyalgia & CFS, and I think I have POTS too. Your videos are really helpful. I’m going to see my doctor next month to talk to him about POTS. Thank you!

[@Aimee_Esther]

Good luck! Keep me updated! :)

[@0xEmmy]

14:40 as someone on the milder end (and undiagnosed), I'd say that the issue is less dizziness (though that does happen) and more just exhaustion from how much energy it consumes.

[@orangefish0297]

oh, uh. After hearing some of those symptoms, I should probably see my GP.

[@ourfamilydoes9951]

So interesting! I’m kind of wondering if I have it now 🤔 My feet aren’t always freezing and I have a hard time taking a deep breath when standing. I know I have an irregular heartbeat. I keep saying my freezing feet are at least not normal lol. Always have to wear fuzzy socks. Thanks for the insight!

[@Aimee_Esther]

Girl. Yes. Look into it! Its way more common than people think!

[@sweetjessiemarie123]

Hi Aimee, this is so interesting. So much feels like it makes sense now for me but then there's that thing about getting a diagnosis and the fear of it not being my issue. We live rural and all the doctors I've gone to so far, coming in with my long scroll like lists just think I am extra sensitive and am making something out of nothing, or so it feels. Tests come back fine except for celiac and Graves. How do you approach your doctor so that they will listen and what kind of Dr do you actually go to for this?

[@DoorDashers791]

I subscribed

[@amandaneuser5025]

Hi. It took over 6 years to diagnose my Pots. Recently diagnosed 4 weeks ago. Having the Hardest time trying to accept it and my anxiety is so high from it I feel like I just wanna lay around in bed all day and do nothing I don't know how I can convince myself to work out so I can feel better. Are you still doing the life coaching thing? I see that you're about to have a baby soon and I'm not sure if I should sign up

[@Dulcimerist]

Sorry you're experiencing that. It took a while for me to get diagnosed with POTS, and it turned out that my POTS is caused by hypermobile type Ehlers Danlos syndrome. Are your doctors able to find a treatment that works for you? Beta blockers, Clonidine, Guanfacine, Ivabradine, or Mestinon are popular POTS medications. The first three of those are often prescribed off-label to treat anxiety. I'm personally on Mestinon (since it also treats digestive issues) and a small nightly dose of Clonidine.

[@DoorDashers791]

I got diagnosed with pots syndrome 3 weeks ago But my pulse rate is high when standing up. Also blood pressure is high not low. I have multiple sclerosis since 2003

[@DoorDashers791]

I have 2 wheel chairs here

[@katekeisner8784]

Hey girl! I just found your channel and I am loving all your content! I was diagnosed with pots in 3rd grade, I have had so many different symptoms. Lately I have been having a lot of leg pain especially after sitting or standing for to long. I was in the car for 30 mins and my entire right side leg was aching so bad. Do you ever experience leg pain? If so what do you do to help? I’ve tried compression socks a heating bad but it’s a temporary relief. Thank you!

[@Dulcimerist]

Do you happen to have hyperflexible joints as well? That was the case for me, and it turned out that my POTS and pain were caused by hypermobile type Ehlers Danlos syndrome. Have you had your vitamin D level checked lately? That could cause some of that.

[@THESTARRS]

Was you able to feel the sudden change in heart rate when going from laying down to standing?

[@MelodramaMama]

This video makes me wonder if this is what's going on with me. My heart RACES when I stand and I sometimes feels like I'm going to pass out. I also get extremely dizzy when I stand up. Is that a symptom of it? I cant remember if you mentioned that or not. Thanks so much for the information

[@MelodramaMama]

I also ALWAYS have to wear fuzzy socks. Saw a comment below and that's like all i wear almost lol

[@Aimee_Esther]

Yeah getting dizzy when you stand is a symptom! Go to dysautonomiainternational.org/

[@PromyseKidLANDTV]

I was told by a GP that I have pot but I still want to see a cardiologist first because he wants me on medication and honestly I do not want to be on medication. Can you cope without medication

[@Aimee_Esther]

Nope I dont use medications at all and can control my pots great!

[@PromyseKidLANDTV]

Aimee Esther did you use it in the beginning?

[@Dulcimerist]

I've read articles by POTS researchers (Dr. Alan Pocinki from George Washington University is one of them) who mentioned that he has started out patients on medications for POTS, and over time they've been able to reduce and discontinue medications and be fine without medications after that. The key was to stop the sympathetic nervous system's surges and overreactions. He generally used either a beta blocker or Clonidine to accomplish that. However, if you're able to get a handle on your POTS by hydrating, taking in electrolytes, reducing stress in your life, getting enough sleep, using compression calf sleeves, and using additional lifestyle changes to get your POTS under control without medication, that would rock!

[@savandarm]

👍👏👏🙏🌹🌹

[@tiffanygriffin3048]

So you don’t get any blood back to your brain? How are you alive

[@Aimee_Esther]

Clearly it's not that there's no blood in my head, but people with POTS often pass out because their blood doesn't circulate well enough.

[@tammytarry3202]

Hi again…lol

[@icej53]

Is your pots tied to Lyme

[@AbbiWinslow]

I love that you broke it down word by word! You explained it so well!

[@Aimee_Esther]

Thanks girl!

[@DoorDashers791]

Cardiologist put me on a beta blocker..

[@Dulcimerist]

Hoping that it has worked well! That's usually the first choice in treating POTS. Beta blockers didn't work for me. Other POTS medications include Clonidine, Guanfacine, Ivabradine, or Mestinon. Mestinon is also occasionally prescribed to combat fatigue and muscle weakness in people with MS, which I read that you have.

[@DoorDashers791]

I have multiple sclerosis also unbelievable

[@noodlesoopersoop]

Thanks for this video, I’ve been experiencing POTS like symptoms for a while now and after a lot of confusion and frustration I’ve finally found something that seems to fit with what’s going on with me. I’m nervous to look into it because I’m afraid of not being taken seriously, but asking my doctor about POTS if I can work up the courage to do it, seems like it could be a promising next step :)

[@Aimee_Esther]

DO IT!!! The worst thing that can happen is he says he doesnt know what it is, then you just find another doctor 😉. I believe you can find the right doctor to get you the help you need!! Please keep me updated!

[@noodlesoopersoop]

Okay so 8 months later and I didn’t forget this comment, today I actually got my POTS diagnosis! I’ve had a hellish year with new symptoms and new problems around every corner, but at last, my suspicions have been confirmed. I wish I had looked into it with a doctor right after making my past comment, but COVID came in and screwed things up, along with other more pressing health concerns. All of this long winded way to say that I do have POTS, and so many of my symptoms are attributed to it. I can sleep easier knowing I’m not crazy. Thank you so much for your videos and your positivity, they really do help people, and I am a testament to it :)

[@Dulcimerist]

@@noodlesoopersoop Glad you got an answer, and hoping that you can find a good treatment option! I have POTS due to hypermobile type Ehlers Danlos syndrome, and it took a long time to get diagnosed.

[@tammytarry3202]

No one could ever explain to me why I always feel faint when I’m standing

[@tammytarry3202]

I have 9 of the symptoms you described…this is making a lot of sense

[@amberblair8982]

Thank you Aimee, genuinely helpful. :)

[@nicktheveganchick]

I have POTS too. Very informative video! 👍

[@Aimee_Esther]

So sorry youre suffering 😔

[@steviestyles6043]

Hey! Love your videos. Can you make a video for family/friends of people who have POTS? To let them know what it is, what we feel and the patience/understanding they may need to have with us?

[@Aimee_Esther]

Actually YES! I actually have this video on my schedule coming soon. It should be up next month. :)

[@steviestyles6043]

@@Aimee_Esther yay! will def be watching!