ALL THINGS FIBROMYALGIA | Symptoms | Diagnosis | Treatment | Living with Invisible Chronic Illness

[@Aimee_Esther]

*JOIN THE COMMUNITY: aimeeesther.podia.com/community

[@rwolfcastle]

It took me 15 years to get diagnosed. I went through years of bone scans, blood work, fluid drawn from joints, cortisone injections in my spine, trigger point therapy, physically therapy etc. They literally exhausted every avenue (they really didn't want to diagnose me for some reason) I was told as a teenager I was too young and a male which was unheard of at the time. I have all the tradition symptoms with pain often running through my limbs which often hinders my dexterity and mobility. It also rotates, so one day it's my left arm, neck and back and the next day could be my legs, hips and shoulders or just my whole body. And oh boy the fatigue! I also have tactile Allodyna, so wearing clothing, bed coverings or even light touch can cause immense pain on top of it all. I'm a very stoic person and often hide my pain because I hate to burden others. As a result people often down play my pain. I've really been suffering mentally lately, I don't have pain free days and sometime I get stuck in that self pity mindset, where I would do anything to feel normal. But with a wife and kids that depend on me I keep powering on.

[@michellemcafee9920]

@R Wolfcastle Literally feel Your Pain. There's not a day that goes by that I'm NOT IN PAIN. Migraines and Depression have taken over my life. The Pain is REAL !

[@MrSirwolf2001]

Wow! This looks like what I would write. I also am a male and have had to deal with Veterans Administration doctors. To make matters worse, I have a pre-existing Osteo Arthritis in both knees and was also younger than the standard onset age.

[@mduwe7120]

Great info ty

[@vijayarodrigo]

Took me also 15 years to get diagnosed. I was a primary school teacher for 31 years. Retired 14 years ago

[@glynnisthomas9165]

God bless you. I know you are suffering. I too have no "good"days . All the talk about flare ups used to really confuse me, I thought maybe I had something other than Fibro and they missed it. But now I see I am not the only one. This is really hard. I admire you a great deal for your determination. God bless you and your family.

[@lucyb7929]

I have had fibromyalgia for 30 years and soldiered through ,working the whole time, and raising a family. Now it has gotten much, much worse just in the past year. I can hardly walk some days and the pain is EVERYWHERE including behind my eyes. It is so depressing and hard to explain to others what I am going through. A specialist finally made the diagnosis on me but since there is nothing to be done besides dealing with it and using pain meds, I am happy to see that light is being shed on this illness. I truly hope that places like the Fibromyalgia Clinic at UCLA and also the Mayo Clinic who are working on fibro and monitoring people, a break through will be coming in the future.

[@KT-gl8zp]

Omg you deserve a medal for having all these chronic illnesses and still making videos and being a Mum! I’m in the early days of fibro and no way I’d be able to do that, lucky my son doesn’t mind having toast for dinner sometimes 😂

[@WendyHannan-pt7ez]

It must be so hard, having kids with fibromyalgia, I’m very grateful I developed this illness in my early 70s. It would be hard for the kids watching a parent go through this. I’m pretty sure these kids will turn out to be kind caring adults.

[@kanefulghum4911]

Thank you so much for sharing your story. As a Fibro sufferer, it so encouraging to hear others talk about what I’m going through and to know that I’m not alone and that is not “just in my head.” I am excited about following your KZbin channel to gain more knowledge and tips to help manage this disease. Thank you for being willing to share your story.

[@kit-katxoxo1254]

I am also fibro warrior diagnosed at only 16 but suffering since I was 8💜 and have recently been in so much pain that I'm being sick 😭but I am still pushing through and I'm determined to go to uni and get my art degree! We just need people to be more open minded and kind! Stay strong my fellow warriors💜

[@Aimee_Esther]

Sending you prayers!

[@JustineCooksVegan]

Aw I love this comment! I feel I’m in the same boat ❤️

[@elainemaldonado2932]

Thinking back I was very young too,it stopped came back after a car accident 21 yrs ago

[@jamiecollins5012]

I’ve been told sometimes fibromyalgia lightens up n you don’t have flare ups for a while. I’m 46. I’m starting not to believe it. I’m sorry. I hope you have times of peace. It scares me for this to get worse.

[@WendyHannan-pt7ez]

Your post was 3 years ago, I hope you’re doing better today. And people show you the kindness you deserve.🤷🏼‍♀️

[@drgnslyr8169]

Green tea is something that has been helpful for me. Particularly matcha green tea. It is very healthy in many ways, but it is very anti inflammatory. It always helps take the edge off for me. Hopefully it could be helpful for some of you too. Stay strong, and remember God can teach you many great things through hard times!

[@moonhwi3754]

This is my 7th year with fibro it started with chronic neck pain and as the stress increased my pain spread wider and it got worse. Now I’m 17 and I’m going through tertiary education and I love studying from home. I only got diagnosed at 15 and this past year I’ve finally figured out how to manage my pain and live like a normal teenager. But the journey has only really just began and I don’t expect this to ever go away... people like you give me hope and I just wanna say that I’m grateful for your sharing. Thank you for helping me not feel alone :)

[@kathiejohns1418]

Thank you!I thought I was the only one dealing with a multitude of different health problems!

[@valerierodriguez9972]

The dr I have seen 3 times in about 3 years, all he says is lose weight. No meds no treatment no nothing. I asked him about working his answer was “ you should keep working you need a purpose in your life”. Work has never been my purpose in life my family is my purpose. Thank you for sharing your story. I feel validated.

[@Aimee_Esther]

I think you need a new doctor my friend! You 100% can have purpose in life without work. I do! 😊

[@hannahcross6119]

She barely scratched the surface of fibro symptoms, (probably so that the video is not too long), there are about 200 symptoms of fibro when you break them down. Knowing the symptoms can help you figure out if you have fibro or if you have something else, for example hypersensitivity to light and noise are symptoms of fibro but not (as far as I'm aware) common in the other conditions that the doctor has to rule out in order to reach a diagnosis. I have had fibro for 8 years and it is a horrific and debilitating disability. I really applaud the energy she brings to her videos.

[@FrostInFreezer]

Its so difficult to know how bad your pain is, when you are always in pain. It really hit me, when one day a familymember was rushed to the hospital for pain in her chest. When I asked her to describe what was wrong, that made her worried enough to get hospitalised. She described a pain in her chest. that I have everyday, just worse.

[@teremertz]

Yep! When I am sick with a cold or flu, it is hard for me to identify it at all because I live everyday in sickness and pain :/

[@Countriesbabe46]

Hi I just wanted to say I'm new to watching your videos and they help me a lot I've got epilepsy, fibromyalgia, scoliosis and cancer I'm in a lot of pain all the time

[@WendyHannan-pt7ez]

Oh my that’s a lot to deal with, so sorry 💜

[@theskyisonfire]

I'm 14 and I was diagnosed last year. I don't get it as bad as some people do but like when it hit..... It really really hits. A few nights ago I stayed up all night crying because I had horrible horrible stomach pain and like a month ago I stayed up all night because of my hand. Lately my dizzyness had been acting up. Basically I'm just really glad that I finally have someone I can watch on KZbin that understands. Thank you 😊❤️

[@sandragruhle6288]

Talk to your doctor about generic Lyrica.

[@WendyHannan-pt7ez]

Finding the right meds is difficult as there are many and many have side effects, I’ve tried a heap of them, the one I tolerate is ,Tramadol 100mg three times a day. It really takes the edge off the pain. Good luck to you. 💜

[@isabellaoconnor7374]

Such a good vibe! Subscribed straight away 💜 It is so comforting to hear other people talk about chronic pain and not hear the words ' it's all in your head!'

[@Aimee_Esther]

Right!? I feel like everyone thinks and "invisible illness" means a made up illness. Your pain is real, my friend!

[@brandijade2910]

I am glad I found your channel!♥️ I’m not sure if you already said it, but fibromyalgia is essentially a dysfunction of your CNS. The pain is so bad because your nerves are overreacting to everything. It sucks because it’s all over the body. Also a functional doctor who will test EVERYTHING (from a cellular level) is so so important. Try searching for a dr who specializes in mitochondria function. Healing your cells and what’s going on in the body is #1 to feeling better. Hope that helps xoxo

[@sejalshah3954]

Hi Brandi. I have been suffering from fibromyalgia pain for 4 years. I would really appreciate it if you could reply to me what has helped your pain in terms of the mitochondria function. Have you used any vitamins or anything else that has reduced the pain? Thanks so much!!💜🙏

[@brandijade2910]

@@sejalshah3954 my energy production was a mess and I have to take a lot of CoQ10 & B vitamins. Turmeric and probiotics helps with the pain and inflammation, but honestly what has been helping me lately has been cannabis and trauma work (sounds weird) but there is a great book called Healing Back Pain by Dr. sarno which focuses on TMS and gives insight into how that kind of work can help pain.

[@sejalshah3954]

@@brandijade2910 HI Brandi. Thanks for responding to me so quickly. I have tried Cannabis about a year ago. I might try it again soon. I also have a license for medical marijuana. I have used a tiny bit sparingly if the pain becomes intolerable. I think I will try Cannabis again and see if that can control some of the pain. Otherwise, I am on Lyrica which helps a lot in general. I have also used the turmeric on and off. I think what I will do is try some of these things consistently and see what happens. Once again, thanks so much for your response.💕🙏

[@Dionysus_Athena]

@@sejalshah3954 don’t bother with cannabis it’s merely masking the pain. Depending on your mindset you want to go psychedelics in particular DMT and Psilocybin Mushrooms. These two amazing medicines create new neuropathic pathways. They heal the brain. A good psychologist to work you through new pain processing. Exercise is a big one. TRT as what also causes more pain is low testosterone and high oestrogen. Vitamin infusions. Those alone work wonders.

[@sejalshah3954]

@@Dionysus_Athena Thank you for your response.🙏

[@nanidogmomstevens6386]

Thanks, Aimee, I’m 70 and I will say, tho I’m happy to know I’m not imagining, the pain all over on some days coupled with arthritis, gets so bad I want to cry. My husband is great support. Be blest.☦️👩🏻‍🦳🇺🇸ohio

[@carollizc]

For me, exercise is really important. Not only does it help physically, it's essential for keeping me in an even mental keel. The key is, as you say, not to overdo it - not something I'm good at. The next thing is going to sound a little weird, but bear with me. I'm 63, and I spend as much time around young people as I possibly can. I like to know what they're thinking, about music, movies, etc, but also life in general. It challenges how I see the world, and keeps me from getting stuck in my own thought patterns. It would be so easy to sit back and think that "I'm old, and I'm in pain, and I'm going to be grumpy ." Uh, NO. As I exercise to remain as flexible physically as I can, so I have to keep my mind flexible. People my own age tend not to have the new ideas that keep me excited about life. That excitement keeps me going on the bad days.

[@faustine494]

Loved the treatment part of this video, thank you for sharing! ❤️

[@Aimee_Esther]

❤❤

[@lisafriedrichs4123]

So I have been diagnosed with fibromyalgia and that was last year. I was going through a very bad patch mentally at the time and it didn't help that one of my doctors said "I think you are just making yourself sick". I feel that I have been suffering since I was a child (I am 38 now) and I don't want to be labelled as a hypochondriac. And this doctor just reminded me of how that felt. I also have an underactive thyroid. Thank you for you video

[@girlbossm8952]

Thanks for sharing your story! Living with chronic illness definitely isn’t easy. Stay strong!! You are beautiful!❤️❤️

[@Aimee_Esther]

It is so hard! But we gotta stick together 😊

[@wendysmith8298]

My fibromyalgia gives me light and noise sensitivities and the background music is killing me. 😂Your videos are amazing. I am enjoying them so much.

[@MoniixMoreiira]

Really? Im sensitive too and I didn't know that it was related with fibro

[@JonasAnandaKristiansson]

@@MoniixMoreiira It CAN be, it is "overly sensitive" in this case, so much that it affects you all the time, everyday ( if one has fibro that is ). This is not the "common" sensitivity, just to make sure you don't self diagnose too fast and think you might have this shit show of an illness :D

[@KT-gl8zp]

Same! 😂

[@devonquinn5119]

Loved you’re video, it was really helpful I just recently got diagnosised myself and it took months for them to find out what was wrong with me I went to every doctor and took every test you can think of just like you did and its nice knowing people who have the same chronic illness so you can hear their story and talk to them.. Thank you so much♥️

[@a.christian1078]

Thank you for your videos, Aimee! I resonate a lot with your story. I was diagnosed with FM/CFS by a regular MD and with mitochondrial dysfunction by an integrative medicine physician. I wonder if you've ever been tested for food sensitivities, toxic metals and/or mycotoxins (mold). In my case all three tests were positive. Unfortunately IV detox therapy (Myers' cocktail + glutathione) is quite expensive and not covered by insurance but it lowered 3 of the 6 toxic metals I have in my body. I also had a biological dentist replace the mercury fillings and remove the teeth that had root canals. I just started EMDR therapy for PTSD (trauma + stuffing my emotions + blaming myself for everything bad that happened in my life = a recipe for autoimmune disease) and hopefully I'll start treatment for leaky gut syndrome soon. Keep up the good work, Aimee! You are so brave to open up like this and for choosing to be a mom in spite of everything. I know it's not easy to keep that smile on your face. I wish you the best of luck in finding the root cause & treating your conditions!

[@Truerealism747]

What's confusing is me causes severe muscle pain so is fybromyalgia cfs and you mention autoimmune

[@MsChronicChronicles]

Was feeling down was officially diagnosed after literally seven years plus trying to get answers I felt like there has to be a good youtuber on line thank you 🙏 and today..... and the last two days .. migraines..

[@Aimee_Esther]

Ugh. Migraines!!! They are the wooooorst! I did just post a video about my natural migraine treatment. I'm also trying out a new medication my dr recommended (i usually get so sick on migraine meds....) BUT this one seems to be working! I am going to try it out a bit longer and if it works I'll share soon! Praying it does!!!

[@mysweetangels6259]

Wow you’re such a strong person first video and I am gonna subscribe

[@latasharoddan7202]

Thank you for sharing your story with us. I'm a mother of 2. I have been diagnosed with sjogrens which is an autoimmune disorder and I also have fibromyalgia and neuralgia, PCOS, depression and anxiety. I have been on meds and it has been helpful. But when I don't take meds or get enough rest for a few days I have the worst flairs. God bless everyone.

[@larssonmaria8090]

Hi I’ve been living with fibromyalgia 😢😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

[@SF-yh2ot]

You’re probably the strongest person I’ve ever seen❤️❤️

[@Aimee_Esther]

Not even close but you are so sweet! :) Thank you!

[@pameehanson3866]

I use to share with my Dr. when he asks me how are your feeling? I say my hair hurts and he then understands it’s a bad day😢 I was diagnosed over 25 yrs ago when it was thought to be in your head. Had to find a Dr who specializes in Fibro. Thankfully now Dr.’s are educated about it and often I can get approval to get treatments from other specialist. The issue that has helped was a sleep study and I have sleep Apnea and it has brought some relief and I do have better days. Thanks for sharing

[@lifewithfibro553]

Fellow fibro warrior. Was diagnosed a year ago and am determined to bring awarness. Loved this video and what you're doing with your channel!

[@Aimee_Esther]

You got this!

[@lifewithfibro553]

@@Aimee_Esther thank you!

[@gingerself3165]

Hey Aimee, I have had Fibro since age 18 sooooo like over 20 years. I also have super bad migraines for now 15 years. In hope to help maybe just alittle. After 15 years I found my own DX that then my PCP and neuro agreed. I have left side Occipital Neuralgia. The only way to get relief is an injection into the greater occipital nerve. It numbs the nerve for about 3 month at a time. I have to say I love that injection. Its given me part of my life back. Just a possible tip!

[@Luv2782]

You are SO inspiring! I’m getting married this next week while trying to get through a bad flare up (I was recently diagnosed with fibromyalgia & cfs-fatigue has been to the extreme as well as pain and brain fog) and really want to be able to become a mom in the future! I’m so glad I came across your video. Now following 🌷

[@Aimee_Esther]

You got this! Keep fighting my friend!

[@melissamcwilliams92]

Just watched your video. Thank you for sharing. I havent been diagnosed with fibromyalgia yet but have taken so many test that my dr says it looks like it. Previous to it, maybe a 2 and half year prior I was diagnosed with pvc issues in my heart. Had a ablation done for it too. But with this unofficial diagnosis of fibromyalgia I have lots of extreme pain even parts where I had to quick my cna job because there were so many issues. Had to go to a lighter job. Also to go back a bit, I have extreme fatigue, my sleeping patterns are chaotic, I have chronic migraines (cluster too), my hands, arms, feet fall asleep so much, lots of leg charlie horses and cramps. Idk if it deals to but I have stomach issues when it comes to eating, either over thirsty or not thirsty..just to name things. I go to my 1st sleep study consultation next week and idk what to think of it. What does it actually help prove? It's so frustrating because though I have dealt with my weight for years prior to heart issues I was running, last official run was at 9 miles, and exercising, biking, able to work extra hours as a cna without issues. Now I feel like whatever this is, to part of me away and I feel lost. I know it's in front of camera but u look calm for all your going through. Apologies for the amount of words [lol], God Bless and have a good day 😀!

[@Aimee_Esther]

I LOVE all the words ;) Thanks for sharing your story! I totally understand that frustration... It is so hard living with something like this but no one understanding and not knowing yourself what is really wrong. You are AMAZING! keep fighting and keep me updated on all things in your life! YOU GOT THIS!

[@margaretnorvell9555]

You are amazing to overcome these conditions.

[@meeprosemeep7320]

Thank you for making these videos. I just got diagnosed with fibromyalgia, and it is great to learn more about it and to know I'm not alone.

[@wendyhannan2454]

Your not alone 😉 watching these videos and reading the comments help. Good luck.

[@jessicacollins8049]

Extremely helpful. Ive been ill for a long time and my doctor said it was in my head. Everything was normal. Im so tired and so ill. I had to quit working too. No doctor has helped me and no doctor will. Im so lost and confused

[@jamiecollins5012]

I was diagnosed a month n a half ago. Symptoms for two years. They have me on a lot of pain medication and I’m on Savella. I understand your pain. I wake up screaming almost every night. It feels like someone literally is stabbing me in my left ribs. It’s excruciating. My husband gets so upset bc he can’t help me. (I also have a non union st fusion in my left ankle(permanent broken ankle) so I wear a brace. I don’t walk long distances.) I take my 10/325 hydrocodone n my gabapentin and about a half hour later I can barely go back to sleep. Yesterday I slept 12 hours. Today I feel like I’m glued to my bed. Thank you for your video. I’m on a waiting list to see a specialist. I pray for good days. They are few and far between. But every good day I take full advantage bc I know tomorrow I’m in trouble. Hugs from Pennsylvania.

[@flashgord2007]

HEY I LOVE YOUR VIDEO YOUR THE 100%BEST AT EXPLAINING EVERYTHING ON POINT I'M A DJ AND MUSIC PERFORMER SUFFER FROM THIS AND 4 RELATED CHRONIC CONDITION AND FIND EVEN DOING WHAT I DO WITH THESE CONDITIONS ,EVEN MAKING DJ VIDEOS THIS WOULD BE NICE TO GET OTHERS THAT HAVE IT TOGETHER .GODBLESS

[@RT-wm3wb]

I have had fibro for a year and I still am trying to learn about it because doctors don't know anything. I struggle a lot and just found your channel! I hope I get some ideas from you 🥰.

[@barbaramiles8580]

Hi my name is Bobbi.Thank you for sharing your story.I can relate with everything you have shared.I have all the semtoms you have decribed. And also was very confused about witch one was bothering me that day . I was just about to go crazy trying to make scenes of it all. I saw so many doctors. My doctors gave me some tools to work with. Therapy heat heating pads exercise eating right. So today I rest I get exercise. I try to do all the things that I was told for each individual pain. But sometimes all I need is to rest and listen to my inner self about feeling better. I'm so happy that I know what's wrong and how I can treat these awful diseases . They all seem to intertwine with each other and are so confusing.

[@rosalindscotton5629]

I noticed that you said that you have endometriosis. The endometriosis is what's causing you to have severe pain during your period. I had endometriosis for years and didn't know it until I tried to have a baby. The doctor informed me that I had endometriosis. Long story short I was not able to have children. Eventually I had to have a hysterectomy. Once I had the hysterectomy the endometriosis and the pain went away. I don't miss my period and I definitely don't miss the pain that went along with it. Best decision I ever made was to have a hysterectomy. Now, that I'm older I'm suffering from muscle spasms all over my body. I started watching your channel to see if possibly it could be fibromyalgia but it's not, it's just muscle spasms. I enjoyed watching your video, very informative.

[@spoorthigiri1964]

Hi very helpful...I have most of the symptoms and not getting answers is really frustrating!!!! Thank you I finally feel relieved

[@taichi-ondemand1979]

I have alot more people coming to my classes regarding fibromyalgia, and CFS. Hence I decided to do something about it and work with them on first improving their sleep patten, then showing how to reduce pain around the body, including migraines/headaches, toothache .... It has helped them to reduce medication intake, and improve confidence.🙏☯️🙏

[@mammon-sama884]

Somehow having fibromyalgia has also kept me in mild regression and I feel like an eternal child. It's honestly in a good way though. I feel like I am the youngest friend in my group even with younger friends.

[@janeenmccoy4610]

You are heaven sent !! 🙌❤❤❤

[@lametron]

I feel like maybe 2 days out of each week I feel great compared to my flare up times everything still hurts but it is barable. Other days agony.

[@dixiemerchant1052]

Hi! I’m loving your videos. The reason is in recent years I’ve developed chronic, debilitating back pain from a few back conditions and it has been very hard for me to deal with it mentally. The amount of life change is downright shocking and I wasn’t prepared for such radical shifts in every area of my life. I have no relief as yet and do no take opioids. At times things seem pretty hopeless and I knew I needed to witness how others are dealing with such upheaval. You have so much going on that I feel you are a good role model and certainly you are motivational.

[@dixiemerchant1052]

PS I would take opioids if they’d work for me:)

[@Aimee_Esther]

So sorry you are dealing with this. I want to do a whole series on my channel soon about chronic pain and mental health. It is just so hard to deal with mentally! You got this, my friend. We are in this together! :)

[@heartstringsbylisa]

Thank you for sharing your story. I haven't been diagnosed but I have MANY of the symptoms. Back over the winter I had a two week long episode of pain that just about took me down. It started with what I can only explain as..My SKIN hurt. My skin in many places was just SORE to the touch. Then I woke up one morning and my fingers were swollen and the joints hurt a lot. Over those two weeks the pain moved somewhat. I had a point where I couldn't raise either arm higher than my waist. I couldn't put on my own coat. Getting dressed was almost impossible. Over the two weeks it moved from hands to arms, shoulders, neck. Since then I find myself with no energy at all. My legs are rather weak and I just have an overall feeling of no energy. After looking up fibromyalgia I found that these symptoms and many I've had over the years, fit. Migraines, sleep troubles, stomach/digestion problems, brain fog, just an over all "fuzzyheaded" feeling. I'm 53.

[@ladyanne8139]

Sweet girl you and others so very young is tough. But you seem to be on top of your health... It's very important you take good care of you... God Loves you...💜💚

[@theavanrensburg8196]

You are telling my story in your video! I was diagnosed in 2007 but it was not as bad as now, I’m 72 now. In 2020 I was out of the blue diagnosed with heart failure. I think there’s a definite link between FM and cardio problems. I’ve been on Yelate for years and it did help with the pain, but it seems to not really help me anymore. I have two more symptoms that you didn’t mention, I am extremely sensitive to bright light and I suffer with sweating, always patting dry my face. It’s such a embarrassing symptom. Thinking of you all with FM.

[@kcaspian531]

I was just diagnosed the other day and I’m trying to learn all I came, thanks for posting

[@Aimee_Esther]

You got this!

[@Tzamahairo]

So you basically are a superhero ^^ amazing!

[@nanettesteward8774]

Hi I just wanted to add a couple things to your treatment list, that I have found that help me. A book called Fibromyalgia and Myofascial pain, it's a big book and good read, to help us understand this better. Yin and Restorative Yoga is AAAAMMMMAAAZING! for us! Even if it's only 10-20 minutes. I sleep so much better. These two types of Yoga practices have been mentioned in several books I have read. 😊 Loved your video! Thank you!

[@dawnmahaney]

I have the same...big knot in upper left trap muscle and extreme migraines. Lots of pains in neck, back, legs etc and severe fatigue always. Been going through this for many years and finally my doc is ruling things out to diagnose fibro. I also suffer from nausea...feel so sick a lot.

[@laptakyrenia8264]

You sound exactly like me,,i just been diagnosed with fibro a few days ago,,

[@sidney8983]

I am 16. I have myofascial pain syndrome which goes hands and hand with fibromyalgia. I recommend trying dry needling. I have tried many different things and dry needling is the only thing help me at the time. I don't get it done anymore because my condition has worsened. As long you aren't scared of needle I would recommend giving it a tried. it is like acupuncture but the needle are place base on muscle unlike acupuncture which is based on energy.

[@Aimee_Esther]

Sounds awesome! Im pregnant right now, but maybe after my baby comes ill look into this! Thanks!!

[@sandylipscomb7003]

YOU ARE TELLING MY STORY!!!

[@anaavila5525]

Thank you so much for sharing your story, I hope you get better soon. I also have fibromyalgia and I have been struggling for months with pain everywhere.

[@Aimee_Esther]

Hope you find relief soon!

[@anaavila5525]

Thank you!

[@teresabrecht9195]

Thank you for your video! My daughter, Sarah was finally diagnosed w/ it in 2019. She is 16 yrs old right now. She started getting pain right after starting her period in 7th grade. Everything you talk about she has experienced! Especially brain fog and that really interferes w/ school! So she is so stressed!!!!

[@bubbakittle6999]

I'm glad she was able to get a diagnosis and that so much more information is available now. I started having trouble with it as a teenager. Since tests looked fine and they couldn't find anything wrong with me, the doctor told me, right in front of my mother, that my only problem was that I hated school. He was basically telling her I was taking it. I was devastated. I knew how bad I was feeling and how sick I was. It was hard enough living with that and now I was being treated like a liar. This was approximately 25 years ago. So much has changed since then. I'm glad I finally got an official diagnosis and we're working on managing the pain as much as possible.

[@AbbiWinslow]

This is really eye-opening! You are helping so many people!

[@Aimee_Esther]

Thanks girl! :)

[@VanessaIrene._]

8:22 symptoms

[@sadi3kins]

This is so reassuring to hear...this is the journey I'm going through right now, step for step. I started going to doctors about 7 years ago, all my scans looked fine, and finally I had to quit my job as an equine specialist because I just couldn't work anymore. I'm hopefully getting tested for pots soon as well, my neurologist and my cardiologist are competing.

[@Aimee_Esther]

Yes i totally understand that. I felt crazy when all my tests would come back "normal" but i was so sick. We are in this together my friend!! ❤❤

[@erdncgurel3489]

well i am also coping with fibromyalgia and chronic migraine, what i can say exercises help a lot especially swimming. Besides the steam room and sauna are very useful. Sauna is very popular in our culture and easy to access. I am also taking L-carnitine for fatigue and it helps my chronic fatigue syndrome and provides better concentration cos I have to work.

[@Aimee_Esther]

So glad you have found some helpful things! Thanks for sharing!

[@doily6134]

Low dose naltrexone is best treatment for fybro. Thanks for sharing your story. I have had fybro since before they knew what it was. I’m sorry you have so much illness. Hang in there and keep smiling. You are a beautiful soul.

[@KidCity1985]

Savella worked best for me.

[@ishantyadav3885]

Savella is lyrica?

[@EC-yd9yv]

Going gluten free , low to no sugar, same with dairy... Def pacing. Have been helpful for this survivor. Have severe fibro,spinal arthritis etc . 20+ years 🌹✨🙏

[@wendyhannan2454]

I’m glad you found out what triggers your pain, I believe your right. I’ve had fibromyalgia for the last 10 years, only diagnosed six months ago. I’m celiac so no gluten, if I accidentally get glutened when eating out, my pain is worse. I don’t do well with too much dairy, I now believe my pain escalates when eating sugar. I think my diet and the weather 🤷‍♀️ has a lot to do with the intensity of my fibromyalgia pain. So from today my diet needs to change, no sugar no diary.

[@salsa_soccer6147]

I know I am really late but I just got diagnosed with fibromyalgia as a 15 year old and am trying to deal with it in school. Do you have any tips?

[@gracebrown3293]

I'm 14 and have just found Iut I have fibromyalgia so if you do ever find ways for dealing with it at school please let me know

[@charmainemarchand5970]

Stop eating sugar. When I did 80% of my symptoms went away. Also walk to improve sleep. Sugar disturbs sleep and white carbs.

[@salsa_soccer6147]

@@charmainemarchand5970 thank you so so much

[@Julie30004]

My doctor just told me I have fibro. This video made me feel better

[@AdrienneS1970]

Have you seen a neurologist for the headaches? I've had Fibromyalgia for 13 years. Just found out last year I have Occipital Neuralgia (caused by extreme neck and shoulder tightness). Dry needling (not acupuncture) was done to me by a physical therapist in the neurology department and it was the best thing i ever did. Seriously neck and shoulders so tight you could hear them popping when I got a massage. My first time I got up from the table feeling nauseous and a little dizzy. An hour later, the neck and shoulder pain was gone. Now the Fibromyalgia wasn't gone.....but the dry needling helped so much with the neck and shoulder muscles. I don't know if that can be done everywhere because Covid-19 hit and i wasn't able to get back in to see them again yet. Was curious, I don't know if i missed it or not, but were you in a car accident or anything that triggered your Fibro?

[@Aimee_Esther]

Yes i hace had migranes since i was a teenager and saw many neurologist, got MRIs, and all the tests. Everything came back normal..

[@Aimee_Esther]

And no car accident or anything like that

[@BeverleyButterfly]

This was such a good video so informative and you explained everything so well! I have fibromyalgia and share a lot on my channel about it because sharing our experiences helps others feel less alone xx

[@Aimee_Esther]

Ooh i need to go see your fibro videos!! It really helps to hear others experiences!

[@JPD33]

Beverly butterfly

[@hadi-3783.]

I also have fibromylgia, vitamin d deficiency, breast cysts, pcos....... 😢😢

[@cassiecoleman1227]

Thank you! Your video makes me feel like I’m not crazy! I’m so frustrated with doctors and figuring out what’s wrong with me! Did you see a specialist to help figure all of this out?

[@freddiefred3964]

I was diagnosed 34 yrs ago with fibromyalgia , I learned men are in the minority of having it, I have had a lot of pain over the years, as I have gotten older it seems worse. If I don't get sleep I can't function, I have med to help me with that, stress makes it worse, good luck to all of us. ( I too have fatigue esp when stressed.

[@Aimee_Esther]

Dang, so sorry you have to deal with this too! Praying you find something to give you some relief!

[@delmar5652]

I have fibromyalgia and dipression so the doctor send me Cymbalta for both and my fibromyalgia stages has gone much less to the point I only have it like 2 to 3 times a year, but when happen it can last 2 weeks of constant pain from head to toe, but for me that is better than before, also in the past I had and accindent roll over and tha is when I stated with fibro, the dr. said that when you soffer a bad accident after a while you get fibromyalgia.So I am glad I am better for now. I hope you get better and also I when to a psychiatry session that also help. God bless you and your family. Happy holidays !!!

[@quorrakai]

I was diagnosed with Fibro in February 2020 after undetermined pain in my lower body. Blood work normal. It's in my hips, legs, calves, feet and sometimes buttocks. Nothing above the waist but they still think it's fibromyalgia. I feel like im in a steady state of muscle soreness like a ran a marathon or something. I don't have headaches but fatigue is a daily problem. I also have Crohn's Disease but it's been in remission for many years. My Naturopathic physician put me on Low Dose Naltrexone and it has worked great! Took the aches and pains down significantly. I feel more pain during my period which is definitely hormones. Every day is completely different pain wise.....is this common with others? I have been very healthy all my life then boom got sick and diagnosed with this within a year.

[@alexmyoga]

Thank you for sharing ❤ some things I find useful are yin yoga (fascial release in a mindful way) and cbd oil put topically when it’s just one area, it’s just temporary but it’s really the o ly thing that takes pain away from me

[@elainemaldonado2932]

I noticed a stress and emotional situations I lost my grandson 1 month and 1/2 ago and ever since the burial I've been feeling so down my body and insomnia fatigue body pain headache neck upper body hips depression anxiety medication for depression next week I start physical therapy and the following mental health therapy I pray A lot too helps me out

[@Monique-fu6rw]

Hello thanks for this video!!! I recently got diagnosed with fibromyalgia but I was just wondering do you ever experience pelvic pain with it as well.. like when your not in your period???

[@Monique-fu6rw]

On**

[@megumigrace5891]

I do

[@cathyxox3999]

How do you sleep when you cannot sleep even with sleeping pills

[@sherylturnerturner1352]

Over 30 years of fibro(car accident I never recovered from) and then diagnosis 2 years later with Lupus. 62 now and not doing well.

[@Freesoul54]

My life was before severe /ME and after. Ambitious , sporty , perfectionist& driven. Was famous for juggling 100 balls at same time. On top of the world . After emergency c-section With a baby ended up in wheelchair! Yes it is all in your head, you have depression etc after 3 year of different diagnosis like MS etc told me you have FM/ME. I cried atleast knew am not crazy. I know now that I burnt myself & my body out. I lost my career as pharm D. Still no one understand & gets me. Still do too much for my family . This year became 50, and DT2 as well due to reduced mobility . My cortisol has been x20 normal levels and that makes it difficult to lose belly fat. If I could live in deserted island , with no responsibilities and no one to expect too much of me, I would feel better. I am never pain free even with fentanyl patches , SSRIs etc .

[@mysteryamidst2812]

I feeeeel u

[@meggiemoo3291]

Thank you for this video! I’ve been having full body pains for 4 months now. I hope you see this. Does your body pain ever feel like you are on fire? I have a bunch of burning pain all over my body and it hurts really bad. I also have hashimotos, SIBO, MTHFR gene mutation, chronic migraines and neck pain, Pcos and mild POTS. I struggle with anxiety and depression. But I can’t find anything about burning pain all over the body. 😭

[@Aimee_Esther]

My cheeks feel like they are on fire a lot, but not much of the rest of my body. I'm in a lot of pain but I wouldn't say it's a burning pain, more of an aching pain for me. I'll chat about this in my LIVE Q+A Tonight (replay of this live will be on my channel on thursday) and I'll see if anyone who is there live has any advice for you!

[@meggiemoo3291]

Aimee Esther Thank you for replying!! What time do you go live?!

[@AthenaCreamer]

Burning can be peripheral neuropathy

[@wendyhannan2454]

I’ve had burning pain in my knees and lower legs for years, I too have fibromyalgia I also have pins and needles in my hands and feet. I agree the burning could come from peripheral neuropathy, as I’ve had knee injuries.

[@LVAngelradio]

Just started the video and want to say. Ppl RARELY only have Fibromyalgia!! We normally have many other chronic illnesses. Im a Fibromite and have too many other conditions. I have PCOS & endometriosis as well. Not to get into the rest unprompted 😄

[@taichi-ondemand1979]

I really enjoyed this video,very forthright.

[@tunydd7775]

Thank you for your video as now finally I know that my stomach aches are a symptom.

[@Telyourstories]

Thank you for sharing ❤

[@angela3063]

I am having a really bad flare up right now. Over the past several months I have been in so much pain all over pain. I have to walk buildings at my job I don't think I can some days. I have been spending so much time in bed because I am exhausted and in so much pain. I too have issues with sensitivity to meds.. I haven't had a flare up this bad for a long time.

[@larssonmaria8090]

Hi I’ve been living with fibromyalgia 😢😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

[@hellenbriggs1875]

I'm in process of testing. I have crohn's disease and IBS. For the last year I've suffered swollen hands, fingers swollen wrists, elbows, shoulders, back, knees my ankles, feet toes bottom of feet and can't walk. Have so much pain in all these I've mentioned. I take sleeping tablets every nyt. I got hospitalized with really bad chest pain. It felt like plurisy. I'm begging my consultant to help me . As I take injections for my crohn's two different ones. I'm just ready to give up. I live on cocodamol. I just want the pain to go away.x

[@BertitoCreativeWorld]

God bless you! You are beautiful and strong I hope you feel better 🙌

[@shareejacobs6434]

I have been diagnosed with it and have the pain only on the left side of my body from the top of my head to my feet. I have all these symptoms as well. IBS, headaches, achey nerve like pain on my left side, memory and focus problems, joint pain, sleep problems, sounds irritate me, I also have vitiligo only on my right leg. I used to have horrible periods when younger....much pain! Those are just some of the symptoms of off the top of my head. I wish there was a clearer explanation of what’s wrong with me. God bless you!🙏💕🙂

[@mysteryamidst2812]

I know it's so confusing because when we say that our symptoms are confusing doctors r like oh it's just in ur head

[@shareejacobs6434]

@@mysteryamidst2812 🙏🙏🙏💕

[@mysteryamidst2812]

@@shareejacobs6434 how r u?

[@beccab2151]

I just wanna know how to get doctors to take me seriously and look into it

[@perlaacosta229]

I had a very stressful event that happened about 3 weeks ago. I have been through a lot of stress. The following day I woke up extremely sore. At first I thought It was my bones but days later the pain got so bad wearing a cotton sweater hurt my skin. Then I discovered it was all my muscles that hurt. I haven't been to the doctor. I'm entering my 4th week of this pain. Been in bed day and night . Any advice? I'm getting very scared by now because is not going away. Yesterday I felt better but today everything hurts again.

[@Aimee_Esther]

Oh I am so sorry you are dealing with this. My advice is to see a doctor and/or therapist as soon as you can! Good luck my friend!

[@bethjohnson2407]

I have this nightmare as well. I have every symptom you mention here. I have bad pain to hun. My entire back hurts. My belly is always sick and bloating and gas

[@Blue-iv5fv]

can someone please tell me if the pain is constant? I think this might be what i am going through. but for me the symptoms (almost all checked out) last for some days and then i go back to being okay-ish (like back to normal pain in some places) for a bit. then it comes back again. the intervals are not regular and there are no triggers that i can point out. when i feel okay it's really hard to believe that i was in that amount of pain, but for like 12- 24 hours after the pain goes away my body still feels like shit as if i ran a marathon holding a baby elephant. my doctor said it's depression and that is why you feel the pain. but i have had depression (undiagnosed) for years and had physical pain because of that too but this feels different

[@sabinabegum697]

Alot of people are uneducated regarding fibromyalgia I didn't know what it was until I was diagnosed with it and I'm still learning about the condition however perhaps bring it up with your doctor of all the symptoms your getting keep a log of all your pains etc and if that gp is not helpful change your doctor and get another opinion! Don't give up!

[@kelseymeyer7381]

I have Fibro/CFS and Hashimotos. Thanks for your video!!

[@Aimee_Esther]

Love meeting others who understand!

[@LifeOnHoth]

Chronic fatiuge part of FM has never been taken seriously here before I started to demand. But I can't have CFS label, because previous GAD label. It's like - impossible to get rid of that label. For 10 years undiagnosed FM caused my anxiety to be uncontrollable. Been 2 years soon since I had any major anxiety. The problem when living with that label and no control of the anxiety for so long is that u don't know what's normal and not. I have concluded that the little anxiety and depression I feel is now normal consequence of the FM. :). I could continue oversharing, but I don't feel like it right now. But my point is - docs many times don't have bad intentions hehe. They just fail to see things in front of them because of tunnel vision and lack of metrics. And with FM they get it the other way around (talking about anxiety) so many times.

[@gulpedits6413]

have you tried acupuncture & foam rolling?

[@ellensmith3154]

My first time here...i have fibro to the extreme am almost 60...i have had fibro for 15ish years and it just gets worse...i see pain management docs reumos and the whole thing...i said this cause i just don't know what else to do...thoughts on where else i should look?...

[@quaqua6917]

I've been had it since 2006 and I wouldn't put this illness on my worse enemy. God bless you!

[@quorrakai]

Try low dose Naltrexone. It is a life saver for my fibromyalgia. Been on it since the end of March 2020. It regulates the immune system. Helped my pain immensely. I go to a Naturopathic physician and they can prescribe it through compounding pharmacies. Oh and no side effects except for insomnia at first. It's a often overlooked yet very effective drug for Fibromyalgia. Good luck!

[@hannahrichins8845]

Hi! Thanks so much for this video. I am sooo grateful for it!! I got diagnosed with fibromyalgia back in December and boy, it has been an adventure! 😂 Thanks for sharing your experience and everything you know! I might have missed it--but I was wondering if you could share the Mayo Clinic video about fibromyalgia/CFS being tied together? Thanks again!

[@Aimee_Esther]

kzbin.info/www/bejne/g3yXiqKKdtGlbdU

[@AthenaCreamer]

I had 2 miscarriages. I have MTHFR so can’t absorb folic acid. I will be praying for your baby.

[@Aimee_Esther]

I'm so sorry about your miscarriages. I've had a few too 😓 but now 30 weeks pregnant with my 3rd child! There is hope ❤️❤️

[@AliciaGilbert180]

So good to hear I'm not crazy when it comes to medication and side effects. I can't take ACE inhibitors, BETA blockers, Bactrim, certain pain medicine because I get all the side effects, even the uncommon side effects.

[@faridaaali6170]

I have this disease rheumatoid arthritis blood pressure depression high cholesterol ear nose problem tinitis burning mouth syndrome kidney problem vitamin defence gall stone few other disease I been dionoigsed with all these illness I always feel unwell . I have digestive issue heartburn. I'm tired of always getting different disease illness

[@Aimee_Esther]

Living with multiple chronic illnesses is SO hard! Hoping you find some relief soon!