Often Awesome The Series: An ALS Love Story - Episode 1

[@robertwilliams5618]

I remember watching this YEARS ago along with Kevin odonnels series. Glad it's still up. Crazy disease.

[@tiffanyjade6024]

This is an incredible documentary. Pure quality. I'm so grateful that I had an opportunity to hear Tim and Kaylan's story. Thank you. RIP Tim....

[@Factus66]

Hi I just found this series, and watched episode 1. My sister-in-law was just diagnosed with ALS, and it is so sad. My brother is devastated he is going to see his wife go through this, and I hope I can be there for him like I need to. I want to. I will! Thanks for sharing this personal journey and bringing awareness. God Bless.

[@Toxin08]

RIP. What a brave man to go through all of that. I hope we can do something about this disease soon.

[@Mitch-zr4wb]

Why so few subscribers? Going to make sure friends and family are aware of y'alls story. You're a warrior dude!

[@IAMGiftbearer]

This is very important work this man and his wife and friends did to raise awareness and punctuate the urgency needed for real solutions. I have sent links to several people to watch this series. I hope more PALS can document our disease process like this.

[@Factus66]

Hi Daniel, I saw my sister in law last Sunday with family and she was doing very well. Her attitude has been great, at least publicly. I'm sure she and her family have their moments of disbelief and sadness, but overall, she's been pretty amazing. My heart goes out to your younger brother and your family. However maddening this is on everybody involved, this has a way of enhancing all the little victories along the way which are to be cherished.

[@DannyScanlon911]

Hey Mark. Says its been 3 months ago since you posted and I can only imagine what you and your family are going through. My younger brother, too, was just recently diagnosed with ALS and thus, our family is beginning the journey. Peace be with you and your family...Hang in there.

[@InHitchWeTrust]

I watched this documentary years ago, as soon as it came out. Now, 9 years later, I am caregiver to ex-marine, who has this horrible disease. We became friends, he is wonderful guy. So many years after Tim died passed, ice bucket challenge passed, many trial studies passed, including Neurown(by brainstorm, which happened to be huge disappointed because it didn't deliver what people were hoping for, so FDA did not approve). My friend participated in part 2 of this trial. Anyway, after so many years - STILL NOTHING FOR ALS. And now I watch with horror how my friend is deteriorating. Why is it so hard to find cure or at least treatment for this monster of disease?

[@KarlyC]

I watched this episode and then the last. Its horrible how fast he deteriorated :(

[@tanpegasister3259]

Karly Coleman You don't know the half of it! My aunt has ALS and it is truly crazy, the deteriorating is very quick, and very scary.

[@zarazenegal2139]

Me too. It's insane.

[@jordangallant8656]

Karly C I know it's craZy How fast he went down hill!!! His whole story is all right here and he was extremely brave too do this.

[@jennalee5967]

I'm an amateur ALS researcher who's always been fascinated with this cruel disease since seeing the Jenifer Estess story as a child and the sporadic cases out of the complete random blue with no clear environmental/geographic connection What makes this so scientifically fascinating its a documented familial genetic lineage case, I wonder if any other of Tim's immediate family/first degree relatives have since developed ALS. Like how he was able to link cases from ancestors who had it before Lou Gehrig coined the disease or medical literature knew how to index it

[@talentfreaks]

@tanjareen Thanks, Tanjareen. It was great meeting you at the LA Web Fest. Looking forward to watching your series.

[@Chrismbrock2009]

What an amazing story and series.

[@penelopeoconnor1433]

Why isn't the government in the UK funding more research into this awful disease ? I'm aware of NHS being on its knees and desperate, but not enough is being done to eliminate, or arrest this death sentence. I really wish l knew how to raise funds and awareness to help those affected.

[@robertwilliams5618]

The government doesn't care. Look at the vaxxxnonsense

[@tayllor2900]

RIP Timmy

[@helenjellen5666]

this couple have great theeth

[@dariahughes5564]

Can anyone tell me how old he was when he had his bike accident or foot drop? NOT WHEN DIAGNOSED, but hindsight he had symptoms a year before his accident. So I'd love an age reference if y'all know. Thx in advance! ! BTW , we should all be so lucky to find love like this once in our lives.

[@blainesweet5213]

One of the best journeys that I've seen.Curious ALS carrier looking for or need a reality slap.Just 6 months now...,should I grief for my own death.

[@khananme]

Rest in peace Blaine Sweet

[@dariahughes5564]

I've watched (I think) ALL the ALS vids, and I see a pattern. Either they are super fit and athletic, or very very clumsy before getting sikk. I'm no doctor, but I wonder if researchers have studied how ALS patients were BEFORE. Maybe there's a correlation, and a bridge to a cure somewhere in there. ?? Thoughts! ???

[@catherinespark]

Yes, that does seem right. I think there are probably preliminary warning signs a few years in advance were neurological tests to be undergone, but so subtle and unobtrusive as to not be clinically worth mentioning until the big symptoms start to throw their weight around. I doubt they'll be screening for it with routine neurological tests soon because what would the knowledge that you MIGHT or might not have it do to help you whilst still asymptomatic?

[@pam164]

A friend of a friend died with this and about year before she took ill she was tired all the time and clumsy and i think this was signs that this was going to start she was 58 when she died after having it 2 years.

[@logicone5667]

I like turtles.

[@MikeCANN]

Does medical cannabis work for ALS? Haven't heard much about that like MS but you never know...

[@scottlee8498]

He " got doored?" Do they think it was intentional? Maybe i rode past a unsuspecting person as they were getting out of their car and I happened to be in the same spaces they were?

[@botanicalspotlight]

He died on my birthday );

[@deirdrefagan]

Hello, I am trying to reach someone regarding copyright permissions for text from this video series in my forthcoming book. If someone could please contact me, I would greatly appreciate it. Thank you for your time and consideration of this request.

[@pam164]

There seems to be a lot of young people dying of this far to many.

[@margaretcabral535]

The only reason Tim had a army was he was very young when he got ALS so his friends mostly college friends had not moved on with their lives yet when he was DX had Tim been DX say 10 years later he would not have had a army and would have had just his wife who would have been doing all the personal care herself is what would have happened.

[@catherinespark]

Erm, you might think that but you'd be wrong. Have you watched any of the later podcasts where you see the other 'armies' turning out for events? Nancy's Naughty Neurons (she died aged 76), Bridget's Brigade, Team Gleason etc.

[@ellaelliott4415]

I don’t think that’s true at all. I’m sorry you think that way but a lot of people have others who will stick with them no matter what, no matter their age. I hope you have people around you who care and that you’re not speaking from experience. Seriously though, that’s a horrible way to think