Often Awesome The Series: An ALS Love Story - Episode 34

[@debrakleid5752]

My dad had a last “hurrah” before he died. He had been hospitalized to do chemotherapy for his leukemia. He had been weak a lot and never wanted to get out of bed but he did that day and he was more alert that day than over the past few weeks. I knew his death was imminent and I started hospice that day and he died almost 10 hours later. This was last year.

[@patriciarossman8653]

My husband was in a coma for about 2 days, and then he had a last hurrah. End-stage liver disease after transplant. Now my friend is dying of ALS. This helps.

[@cheryljohnsonjohnson953]

we lost my precious daughter to ALS on 5/11 two years Go. she was 47 years old with three fantastic children as one of her many legacies. She died at home on her own terms. I learned so much from her through her journey. This series of stories brings me such comfort. strange though that may seem.

[@debrakleid5752]

I’m so sorry for the loss of your daughter. ALS is one of the worst conditions anyone can go through!

[@aidanmahoney]

Rest In Peace, Tim. You fought like hell, man. I hope I get to meet you on the other side.

[@Fonzi79]

When stupid things in life happens to me and i wanna complain I will always think of this awesome man and his battle . It will make me step back and think wow this isnt such a problem... Thank You Tim for sharing your story with the world. Many ppl love you for your courage and amazing human spirit!

[@paviangrunohr1504]

My mom was like that, almost kind of too good, too incredible, extraordinary for this world, so highly intelligent and caring for others, and such a great sense of humour. Those people will be missed, forever.

[@francesegan8344]

my husband has it its hell on earth for all of us xxxxxx

[@KCUARISMA]

I have never dealt with anyone with als but god bless all of you guys who are dealing with this kind of pain whether your dealing with someone or you have it. god blessnyou

[@samcruzsam]

Hi I'm from the Philippines but I've been following the story of Tim and Kaylan. I'm very sad to learn that Tim had passed. My condolences to Kaylan, his family and friends.

[@dugaldhossack7982]

I helped nurse my mother through this with my dad, big respect to you guys, I really know how hard it was much love from New Zealand

[@setmeonfire18]

My father passed away last month because of ALS. We stayed by his side right to the end. He was sick for 3 years. But take comfort in the fact that for 3 years he was never alone and had more love in 3 years then most people see in a lifetime. I miss him every minute but at least he isn't in pain. Thank you for making this to bring awareness ALS. My heart goes out to you. Tim was great man and I am so sorry for your loss.

[@jennyjenjenjen]

Thank you for this installment. I'm finding it hard to put into words what I just watched. I couldn't imagine going through ALS or being by the side of someone with ALS. Before Tim said it, I was kind of thinking the same thing... how horrible it is that his death will bring attention to it, and how much it sucks that he has to die for it to get more attention. It really is hard to come up with any other words.

[@khananme]

Totally heartbreaking. Sorry to his family and friends.

[@paviangrunohr1504]

Wonderful man. I'm deeply impressed by his intelligence and kindness and all.

[@catman8670]

He’s lucky to have this support system, without it, well, I can’t imagine 💔

[@NickanM]

I just cried my eyeballs out.

[@SCLouro]

I cried my eyeballs out :( I´m Portuguese and only recently I knew this terrible disease. I saw all the Often Awesome series and it was heartbreaking :( Tim was an amaysing person and this disease is so unfear and terrible that words can not discribe it :( I´m so sorry for the loss and my thoughts are with he´s family and friends :( He will be missed but he´s message will endure and he´s courage an example for us all.

[@soulfullatina68]

A wonderfully fitting tribute to a brave young man and the circle of family, friends and supporters that loved him.

[@CassieM31]

My grandmother had ALS i do the run here in Calgary ab every year to raise awareness and funds to find a cure. RIP Tim!

[@genisedavis527]

Tim was an incredible sweet, caring man, Continue to Rest In Paradise 🙏

[@sarahroushia2992]

my dads last week or so was VERY similar to this story, thank you for sharing this story!!!!!!! we let my dad pass still conected to his vent, we were going to make our hard deiction of taking him off the vent the day he died. god bless all of you.

[@coramcneil2263]

Thank you for sharing Tim’s story. I had no idea. I have shared this on my FB. You allowed me a look into your lives that was so personal. I thank you. He was blessed with a wonderful wife and friends! Your all amazing and so was Tim!

[@logicone5667]

I don't know you Tim but I love you.. I'm sorry you had to endure this.. Thank you to all the people who took time for the comfort of another human being.. This life is too hard and I don't know how to feel about it..

[@knoodleminecraftmore8094]

I'm so sorry for your loss. ASL is become a lot more known to people now. Thank you so much for this, Lots of love from the Sanders family in New York

[@TNPGMarkoh]

ALS*

[@knoodleminecraftmore8094]

Sorry

[@WhiteMatrix2006]

It is currently 11:45pm right now on 12/11/12 and I just watched from Episode 1 to this Episode 34 before going to bed. What an incredibly powerful informational series. Watching what Tim went through was such an eye opener. Before this series I had no idea what ALS was/is. I was in tears on some of these episodes and that says a lot since I'm not a very emotional person. This series will stay with me for the rest of my life. Thank you so very much for this series. -Billy-

[@msinfield]

An absolutely amazing series about an inspiring man. RIP good sir.

[@VelvetGal5]

Thank you for recording & sharing Tim & Kaylan's story with us. This video series often brought some tears to my eyes. You have enlightened, educated, & touched our hearts & minds with the sharing of Tim's battle with ALS. I hope someday there is a cure for ALS. ALS is so devastasting. Tim was blessed with many caring, strong, supportive, loving friends, wife, etc. With this series, Tim will never be forgotten.

[@poprokk]

what love is shown in all of these videos.

[@TrixtyEdits]

So heartbreaking, but so courageous. My sister MaryAnn was diagnosed with ALS in 2016 she's a true warrior. I pray for strength for each and every person / family that's having a hard time coping with this horrible disease. #FindACureForALSSomeoneILoveNeedsACure

[@sp8s1979]

17th October 1996 I said to my mother I will see you tomorrow, 500 am Friday the 18th I was woken by the phone, I heard my sister scream, it was my dad on the phone ringing to say mum had gone, I know how these guys felt. Fuck ALS MND

[@TurboEmily]

I cried, for the first time in 5 years I cried. Thank you and my condolences

[@cgvalle11]

You will see him again! I hope to meet you in paradise Tim! ❤❤❤

[@debrakleid5752]

ALs is so awful. As an RT (respiratory therapist) I’ve had patients with ALS and I was close to one of them. She was finally able to go home from the hospital but she died a short time later. I was also a medic as well so I’ve seen a lot between the 2 and now I’m disabled due to several conditions such as POTS and CVID. The CVID has me at risk for severe infections such as pneumonia, sepsis, and GI infections. I’ve come close to dying a few times especially when I was septic the first time and spent a month in the hospital for it and when I had a massive DVT and PE’s requiring dangerous surgeries. I’m in the hospital quite a bit and I hate it. My last pneumonia was a few weeks ago and I refused to go to the hospital because I’ve been admitted for every pneumonia since February 2016 when all of the pneumonia’s started with one being at the end of July of this year and then I got pneumonia again within 3 months. I have had the pneumonia vaccine but due to my CVID vaccines are not nearly as affective like it is with everyone else. I’m immunocompramised due to it and I get monthly IVIG at the cancer center. I hate it as it tends to make me sick. If I ever need chemo and cancer runs heavy on both sides of my family, I have a Hugh chance of dying since chemo lowers our white counts which helps us fight infections as well as our IGG which mine is also too low so chemo would take out my white counts and I already am low with IGG. Not much left to fight infections. I’m glad he was able to be home so he could die at home. It’s important to a lot of people!

[@zacharyharward7762]

I miss you Tim. I’ve never stopped thinking about. you and I never will.

[@melaninproud2383]

RIP Tim so brave!

[@funkyflights]

Good-bye's suck .... sad when life ends... we all have to face it one day... it's never easy... RIP soldier Tim ... you faced it with bravery and courage... It's very cool you had such good friends around you...

[@FastAndUgly]

Played your song one last time tonight Tim. I thought of you and put everything in it. I hope you enjoyed it.

[@krisjutras2028]

I'm currently taking care of a Vietnam Vet w/ ALS. it's the most heart wrenching disease I've ever witnessed. Very sad and scarey. :(

[@jayshiinee]

They need to find a cure this is horrible rip you wonderful human

[@hongjidai9949]

Tim was a hero

[@juanitahoy4515]

My brother sent this series to me and the family to let us know what we should be expecting as he was diagnosed with ALS. I pray that the lord makes our lives available for him on his journey. Tim and Kaylan were fighters and I pray my brother will be. This story made me cry, thank you lord for all their friends and family who held his hand.

[@bridget5180]

Juanita Hoy how is your brother doing?

[@felinefaerie2095]

Tim died 8/23/11, after a courageous life.

[@PaulDevlin01]

RIP man :( You will be missed alot

[@patriciacurnutt7669]

Sorry to hear this he's with God now you will see him again in heaven God bless you all.

[@gardenroom65]

My Dad died of MND in 2005. RIP ❤

[@100jenmar]

One of the most powerful pieces of film I have ever seen! What a thoroughly awesome, incredible group of people. While I did not know Tim in some ways I feel- through the Often Awesome Series - that he was a friend of mine. People like Tim, Catie, Micah and Kaylan make the world a better place. It's so important that we continue to spread awareness, and I for one will do everything I can to do that. Fuck ALS!

[@catman8670]

Why must one suffer so much, for so long, when there’s no cure! ❤️

[@catman8670]

I would choose the same medication used on death row prisoners!💔

[@imho2278]

​@@catman8670nitrogen doesn't work quickly. Get phenobarb from the vet.

[@SeanMatt]

I'm going through the entire series of this, it really shows the struggle that he and all other ALS sufferers go through. I really hope a cure for it is found. On another note, using The American Dollar was a good music choice, they fit well.

[@27amandam]

Thank you for posting. I'm so sorry for your loss.

[@kk88425]

really made me cry after watching this :(

[@Kjfsparky]

I'm 35 and my mom has it not to much time left for her and it hard as hell thanks cause I no what to expect in the end I hope I get my moment 😀

[@satcfountainhead]

Thank you. Thank you so much.

[@belgiumgirl8970]

you fought that fight with strength, dignity and courage big guy. Now go play that guitar and dance like there’s no tomorrow big guy❤️🙏

[@danceworks7234]

i'm sorry for your loss

[@Blue364229]

I know tom maxwell, and the whole band. Jay widenhouse lives near me and has been friend with my family for years. It means a lot that Tom would be in the video.

[@Loofyisflying]

R.I.P no more words ...

[@elainebird58]

How sad..Rip ..Rock and roll on son

[@goolia0475]

Stephen Hawking does not have MS. He would have brain/spinal lesions with MS, being that disabled. There are NO lesions with ALS. His EMG would have showed typical findings of ALS. Without the ventilator, he would die. Sometimes ALS progresses slow. Doctors don't know why this is. Very few people with ALS make it to the 10+ year point, but a few do. With a ventilator, people can live for a long time with ALS, but most choose to not vent. It's a personal decision about quality of life.

[@stephaniemccord6100]

What a terrible disease. It's good to know he didn't pass alone.

[@omaopa6923]

RIP Tim 🙏🏻

[@leabaltrenas7205]

Me Too,these Poor People, I saw Robins Wish about Robin Williams and his wife went through,With Lewys Body Dementia and Parkinsons, It was so sad. 💙🌹💙🌹💙🌹💙🌹

[@heidzdilla]

Saddest episode. :(

[@haithamalharthy2852]

The most heartbreaking vid ever

[@jeaniecoudriet6201]

Only people who have watched a loved one die from this knows how bad this disease is! Not a day goes by that I miss and think of my Grandpa! I really hope soon a cure comes! Cause watching my Grandpa die, no other disease is as cruel as this one in my book!

[@dorothyfry3319]

My sweet Grandmother had it. It was heartbreaking for me as a child to watch my precious Grandmother suffer with this horrible disease.

[@minnietorres8570]

Thank you for sharing your story and you where bless to cherish each moment I also thought I would document my uncles story but didn't have time just few pictures he was diagnose may 2013 and passaway aug 27 2013 not giving me time to do so. But I spend every minute ,second, with uncle luie all the way till his last breath. I miss him every day but I guess The Lord took him before he couldn't do anything for himself. He pray every nite to take him before he depended on living with machines .

[@rubyfowler509]

Almost the exact thing happned to my aunt

[@sarahroushia2992]

my dad died at 57 from ALS, May 4th 2012

[@logicone5667]

Sarah Roushia I hate to ask this but in his case was it ALS via Heredity? I know it's fucked up but I am having health issues that are soooooo minor in comparison to anything like ALS and I brought them onto myself.. I worry about death. What are you doing to prepare if it was heredity?

[@amberlynn8591]

My gosh, this is fucked up, Tim said it best. God bless!

[@innertube54]

God bless all the persons who made this video possible.... This needs to be introduced to a news/TV special group like FOX or another organization to be SHOWN to the thousands of persons in America who know little or nothing about amyotrophic lateral sclerosis better known as A L S............... including the neurologists who SHOULD know more than they do. Thank you Tim, wherever you are for agreeing to to this ;( - :)

[@shakeystearoom]

Nicely done.

[@gdubs8367]

WOW!! VERY POWERFUL....

[@RivalNightmare22]

thank you

[@atheistleftcomment1807]

oh, man... I am just sitting, staring at the screen where I stopped watching, after he said he was agnostic. I never knew him but he would be my kind of guy. What a horrible, HORRIBLE disease als is. Another reason why I don't believe in imaginary sky daddy, if he existed he would never allow people suffer like that. If he did....he is the most cruel being ever existed and I don't want to have anything to do with that kind of God.

[@susangreen3002]

Atheist LeftComment I pray you turn to Jesus Christ he doesn't let horrible things happen. He was without sin and he was crucified for all our sins there is no greater love then that

[@kk88425]

it's the respiratory infection caused his death right?

[@jamiejohnson3886]

You are now free

[@dyrfo6743]

feeling sad my father suffering now what can I do

[@kgsved]

Our dad died of ALS too, although the coroner put down on his death certificate, death by probable cardiac arrest, and didn't mention his ALS. He was a veteran, and the VA had diagnosed him. However, because the coroner but cardiac arrest on his death certificate, the VA honchos refused to give my mom the Army's death benefit. We appealed, but they still refused. The heart is the last muscle to go, so yes, he had cardiac arrest, but it was the ALS that caused it. My mom is on a fixed income and lives below the poverty line.

[@talentfreaks]

That is horrible. We will share your story with our community. Hopefully someone can help out in this situation. Thanks for sharing with us.

[@kgsved]

AllAcesMedia Thank you

[@talentfreaks]

kgsved email us your contact info, we have some people that want to help.

[@talentfreaks]

kgsved allacesmeida at gmail dot com

[@NilleMr20]

kgsved a lot of vetarans has ALS. VA honchos` going to hell..

[@BlondeRockChick]

A central line goes into an artery not a vein.

[@TNPGMarkoh]

Wow, so sad how it turned out like this.

[@catman8670]

Death can be a big relief!❤️

[@jennyjenjenjen]

@ryuhaya1 different type of ALS I do believe.

[@harlonda40]

🙏

[@TheInSaNiTyyyyyyy]

@ryuhaya1 im sorry, this video is too sad to make jokes. hes just rich enough to get the best doctors

[@Zeuspwns]

@mcfusion69 Onion cutting Ninjas, they seem to be everywhere

[@RaisingHellAgain]

I hope he changed his mind about the after life before he died...so many with ALS say they don't believe there is anything after death somebody needs to start telling them the real truth I'd rather have blind faith than to end up in hell....somebody should have talked to him prior to death

[@atheistleftcomment1807]

swampmammytheone I would rather end up in hell than have blind Faith. Even if he existed ( which is idiotic idea, and I know he doesn't), I don't want to have anything to do with such a cruel god.

[@ivysourir5381]

It lacks good taste to leave these kind of comments here. Go make your religious propaganda elsewhere, and respect the memory of an amazing man. This is not your preaching pedestal.

[@talentfreaks]

@TheApang11 I don't believe in damnation.

[@TheInSaNiTyyyyyyy]

@ryuhaya1 hes the master of space and time

[@ryuhaya1]

How the hell does Stephen Hawking age 70 survive for this long with ALS?

[@imho2278]

Vent, private nurse, eye gaze computer, medications.

[@The391956]

Stephen Hawking probley has M.S. and was miss dx is what must have happened

[@whitezombie93]

@TheApang11 damnation

[@coleraintwp.ohio.policeeye4630]

ALS SUCK'S!!!!!!!!!!!!!!!!!!!!!

[@oliwalsh1]

@ryuhaya1 money.

[@tmarie1318]

I am sorry he had to suffer this way. But I'm sick and tired of people blaming God about what happens on this devilish earth. Yes these things aren't pleasant but God has promised that this world will not be in hell for long. He isn't a God who wanted us to suffer in the first place. We only suffer because of the sin Adam and Eve started. And our punishment is death. But if you believe in Jesus and that He is Lord and that He died for our sins and rose on the third day just so we could have a chance at eternal life with Him, you will be saved. I had to say this because so many people blame God for everything and that is exactly what the devil wants us to do to steer us away from God. People should know that. Study the bible and know His word.

[@cheryljohnsonjohnson953]

we lost my precious daughter to ALS on 5/11 two years Go. she was 47 years old with three fantastic children as one of her many legacies. She died at home on her own terms. I learned so much from her through her journey. This series of stories brings me such comfort. strange though that may seem.

[@heidzdilla]

Saddest episode. :(

[@Kjfsparky]

I'm 35 and my mom has it not to much time left for her and it hard as hell thanks cause I no what to expect in the end I hope I get my moment 😀