ketamine for CRPS case study part 1

[@marcorlewicz8953]

Dr Prager, my name is Dr. Orlewicz. I just started my ketamine infusion clinic in Detroit. Seeing good results so far. Thank you for your insight.

[@chronicpaincoalition]

In our clinic we use 10% ketamine cream, together with palmitoylethanolamide; I responded also with a video of one of pour patients suffering from CRPS for 13 years, were the swollen red-bluish shining painful feet turned nearly normal in 2 months based on this regime. Delighted to share the video!

[@nfbconnect]

I have CRPS/RSD in both feet and ankles, both hands, both wrists, right arm, right side of lower spine, and lower part of my face. It came on in 2019 - I had been doing trauma recovery work after a diagnosis of chronic PTSD in 2017 (DV Survivor) and I got a virus that caused pneumonia. I have autoimmune diseases and my mother has MS, which might be why I ended up with a multi system inflammatory response that damaged nerves. While trying to see doctor after doctor for these issues which included many neurological symptoms, I stubbed my toe one day and thought I broke it. It wasn’t broken but I woke up a few days later and I couldn’t walk. All the symptoms were present in my foot. Doctors didn’t know what it was so kept passing me around. It started spreading. 6 months later I couldn’t walk without a walker, I couldn’t work, I lost everything including housing. I was homeless with no one to help at 34. I worked in public health and I knew how to navigate the medical system but these doctors were biased, irresponsible and negligible and I started having panic attacks just sitting in a waiting room. I fought so hard to continue living, it took nearly a year to get the diagnosis and insurance coverage for three months of functional rehab. Spaulding in Medford saved my life. After 6 months of walking on a treadmill for even just 5 mins 1x day, incorporating meditation, biofeedback, medical marijuana, and finding the right medications (never an opioid), I can walk again but I still struggle to fully function. I want to be able to get back to work. I have my first ketamine infusion tomorrow. I am beyond excited and hope this helps me.

[@divinespark408]

Did it help?? 9:03

[@attheranch873]

I have CRPS that’s in remission. It was caused by a compound fracture in my wrist. The surgeon who fixed it ended up diagnosing it. I went to my regular doctor for treatment and what he said was “what do you want me to do?“. SMH!!! After three months it went into remission by itself. I didn’t expect that, it really surprise me. Good thing it did, because I couldn’t get any help for it. A physical therapist with a PhD in physical therapy told me if it went into remission then it wasn’t CRPS.! I wanted to slap him. He wasn’t experienced in it so he shouldn’t have said that. I find it remarkable how many medical professionals suck at their jobs.

[@jimmydrums9]

My wife was diagnosed 16 months ago. She's seen 8 specialists with no luck. Hers started with spinal stenosis. We are currently looking for ketamine infusions. My biggest question is the difference between the coma process of infusion, vs. the shorter outpatient treatments. Hers is very severe. I'm concerned she should have a longer infusion than just a 4 hour infusion for a few days.

[@ginaforte7530]

crps is not hereditary its caused by a trama

[@speekiespeech]

I'm so glad this worked for her. I have tried everything and nothing works. I tried a Ketamine infusion and topped breathing... I'm throwing up and nauseous all of the time and I'm starting to pass out from pain and Kaiser does nothing. Please please help find a cure for this.

[@graciemac795]

Hello. I have the same symptoms as you. Please ask your doctor about the Medtronic PTM pain infusion pump. They can give you all sorts of pain medication in that machine and it helps a lot!!!!

[@graciemac795]

Another thing I highly suggest: ask your doctor for zofran dissolving tablets. This is probably the strongest nausea medication. It helps me so much. Make sure it's the type to dissolve- That works best for nausea.

[@MICHELLE-gu2qc]

I have spinal damage including spinal cord compression to C4 to C7. I had L4 to S2 laminectomy with fusion, L4 stage 2 spondylolisthesis which was reduced to half a grade. I had Golden Staph (MRSA) complications. I have arachnoiditis I have tried everything. I am about to be admitted for a 5 day infusion, main problems are in spinal cord, body temp issues, burning pain ( feels like acid to most of my body), and neurological problems. Has anyone had success in doing resets- the pain is intractable non stop pain.

[@JennMartinello]

Does insurance cover this since they don't prescribe pain meds anymore? I can't take this anymore! Ruptured right FHL tendon, left foot has so many injuries to even list. Right shoulder SLAP tear II, left shoulder to be diagnosed. CRPS II I had SLAP surgery that failed and have been stuck in bed since that fateful day everything ended for me 11/11/2021 at work I fell on my back. No one has helped me no one! Her story is like mine everything hurts. Workers comp destroyed me and I never got an MRI till recent months so I have been stuck this way for years. I can't use crutches or anything, not even a wheelchair due to a pectoral muscle tear and God knows what else was destroyed that day. I just can't believe no one helps us! 💔 I need help. I'm 39 and am now homebound and it is not fair! The best years of my life because no one will operate letting me degenerate. It's killing me the isolation.

[@nagiakhundov9021]

Dear Dr, i have ulnar nerve pain,(6 years ago was cut the dorsal branch ulnar nerve and opening site of it, seriously paining when touches anything to my wrist -->ulnar site) what i have to do?? help doctor told me you may get stellate ganglione block, but may you get horner sendrome after procedure, i fear to go it....))

[@lotusbloom7750]

What dosage of ketamine iv do you administer. Thanks

[@just888another888ide]

Thank u for this information, as well as all the info in the comments left below....

[@urgatorb8]

Ketamine infusions didn’t do anything for my CRPS but they did lower my bank account.

[@TheJray16]

I have RSD and it sucks. Getting nerve blocks every 2 weeks and those cause back pain in the nerve I get them in on either my right side or left side of my back. Those blocks I get in my sympathetic nerve that goes from my back to my feet and ankles.

[@reneepenningtonroy]

CRPS is NOT hereditary ...it is caused by trauma

[@genericamerican7574]

It is both. I have it and I gasped when my mom said she might have fibromyalgia which is disputed to be a mild manifest of it.

[@velvet6187]

Yes,nerve trauma.not psychological trauma,educate yourself

[@dhebert111]

Uh-oh, The kind Doctor almost George Bush'd that metaphor about, "Give a man a fish..."

[@iloveservicedogs104]

Hi I have been desperate to try to find a place that does ketamine infusion or or ketamine, therapy in a hospital setting and then also takes insurance. Is there anyway that I can come to your center for help I'm really not sure how I'm going to find the money to do it but I will somehow I need my life back ? I live a completely across the country but I am desperate absolutely desperate for help. I'm legally blind and user a guide dog. I am already with pallet of care and have use pain patches and pain pills along with cervical injections and spinal injections. Do you do this to generation crush cervical nerves as well as fibromyalgia and severe neuropathy most of my pain is neuropathic. My pain has recently become so bad I'm basically bedridden I was only able to get up and walk around . I'm already on disability it don't work I can't afford thousands and thousands of dollars for ketamine treatment that's offered here. Nor do I find the current facility in my state very reputable there is sole for money organization. If anyone else reading this can help me and knows of a facility that does this and takes insurance please let me know open toe by one doctor that there's someone up in New Jersey that does inpatient treatment of ketamine but nobody knew his name if someone could help me please let me know

[@sabaproperties8248]

You should try the Florida spine institute, dr Hanna is excellent and he accept lots of insurance. Good luck

[@crythisbloodforme]

@boogiebuddy01 Yes, i've done a lot of ketamine myself, as well as my friends, and we all notice a 2 week 'afterglow' which completely gets rid off all depression symptoms. its great

[@karennuzman5891]

I have CRPS I have it in both feet the right side is worst its now going up my leg. I swell so bad I cant walk cause I cant bend my ankle to walk I get nerve blocks every two to three weeks with very little help I sleep with feet elevated every night with ice im on pain meds and cant find a doctor to help me im located in salt lake city utah any suggestions im long term disabilied. I also have a stimulator implanted in my back. Please help

[@MICHELLE-gu2qc]

I dont have CRPS but arachnoiditis with fibro and further spine damage which syptoms can be similar to your condition. I would join a facebook support page for CRPS they are often very helpful and a good one will have a list of healthcare professionals, pain clinics etc. I know finding a doctor willing to do ketamine infusion is hard. I would research online CRPS specialist or a nuerologist that point you in the right direction. I am being admitted for 5 day ketamine infusion on 30 Nov, if you want I can message on any pro's and con's. I wish the very best luck in relief.

[@melindahuff3685]

Please look up Dr. Getson on KZbin and watch his videos. STOP using ice!

[@elizabethschmidt637]

I have CRPS. In my case, it is hereditary... which i can't stand it... so it flares up if i dont take care of it

[@jraslevin]

OMG mine started with a fractured sesamoid bone in my foot too, as well as a dislocated big toe... the hell continues 9 years later...

[@kapplej]

@camnpog You are misinformed. Google the following (among others) Pharmacodynamic profiles of ketamine (R)- and (S)- with 5-day inpatient infusion for the treatment of complex regional pain syndrome. Outpatient intravenous ketamine for the treatment of complex regional pain syndrome: a double-blind placebo controlled study. A pilot open-label study of the efficacy of subanesthetic isomeric S(+)-ketamine in refractory CRPS patients.

[@stevenewinghead]

thats darleene

[@stevenewinghead]

she nuts