Complex Regional Pain Syndrome (CRPS)

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@erikandrew1400 Жыл бұрын

My father went undiagnosed for over 15 years, but a few years ago they finally diagnosed him with CRPS. Last month they gave him KETAMINE for the first time and he started to feel better... Unfortunately, my father couldn't take the pain anymore. I buried my father a few days ago and I wish I could go back in time. To all those suffering from CRPS, please try EVERYTHING you can. We BELIEVE your pain. Don't lose hope. We love you!!

@planewalker_J Жыл бұрын

Im so sorry and honestly thats all ive wanted someone to say ever is they believe whats wrong with me. I actually made myself better by using psychedelics and stretching non stop through tons of pain for 5 years

@Gigtaxer Жыл бұрын

It’s just so hard. Thank you so much for your message of understanding.

@zenmoneyhoney Жыл бұрын

Damn bless you man 🙏🏽

@jaylaethompson Жыл бұрын

@@planewalker_JI’d reccomend looking into Spero clinic. It’s expensive (because insurance typically doesn’t cover it), but my friend with CRPS went there. Spero does many rehabilitation techniques, as well as stimulation. It’s more holistic, and I think that you need a good balance between holistic/traditional medicine. However, pharma and rare diseases is definetely a struggle (because of the cost of extensive research, they don’t openly benefit as much from it). One thing that’s incredible, is that they never gave up on her, even when she was there for nearly half a year. Before she left, she couldn’t walk without extreme pain. When she returned, she had little to no pain and returned DANCING! Though when dancing she did have pain again, she is in much better condition than when she left. And now she’s in remission. This is technically “physical therapy.” Though many companies will be skeptical of it, if you look at the patient success rate, it’s truly incredible. I’m also aware they say it’s incurable, but there’s nothing to lose. If you are able to afford it, I highly reccomend. Being able to watch her thrive is one of the best things. She also plans to go into the medical field for radiologic studies, because if her radiologist would have openly identified the CRPS in her foot, she may have been diagnosed earlier and prevented the extensive amount of pain. It was visible in her original imaging, but never spoken upon. Regardless, I truly wish you the best with your journey and I pray for you and your journey with CRPS. Because surviving truly is one of the strongest things I can imagine. You are so strong and you are not alone!

@thebrooklynpost Жыл бұрын

So sorry for your loss. I have been where your dad was. I completely get it. This is the hardest thing I’ve ever dealt with. It’s so painful. I hang on for my kids and husband. First and foremost for my Lord and Savior. I lift your family up in prayers.

@Shafe-cv5zb 5 жыл бұрын

Thank you for your work. I have had this now for 12 years from an injury from a car accident. My left arm got entangled in the steering wheel and airbag, nearly tearing it off. The good news is through education and realizing my lifes habits needed to do a 180. The right medical team, diet, medicine, rest, fortitude big time. God bless.

@donnamilligan2938 2 жыл бұрын

Check out Spero Clinic.

@erikandrew1400 Жыл бұрын

Ask your pain specialist about Ketamine treatments for CRPS. They were working for my father

@Shafe-cv5zb Жыл бұрын

@@erikandrew1400 Much thanks for your reply.

@TheJustonemore 7 жыл бұрын

My name is Tom and I Have CRPS ( the worst pain condition known to exist )and live with it every day. I cover Chronic Pain, How -to's & Reviews, News, and myths & misconceptions. I am committed to helping others living with illness.

@Wedontcareong 6 жыл бұрын

TheJustonemore how do you know you have it

@reach100subswithoutanyvide3 5 жыл бұрын

Lo Tion it’s diagnosed

@reach100subswithoutanyvide3 5 жыл бұрын

TheJustonemore my best friend has it, it’s really hard. I’m sorry

@TheJustonemore 5 жыл бұрын

Lo Tion I was diagnosed by several doctors,neurologist and pain doctors and I can say that it’s indescribably tricky. I found some great Doctors and some terrible ones the thing is that the longer I have had it the more I believe it is transmitted or directed by the brain through the blood and the skin and maybe threw bones themselves. It’s Managed by some sort of misinformation. I am a believer in mindfulness in the truth of neurological issues that are not of myself. A good pharmacist,Doctor and a even better self awareness is all that keeps us Living. (Well at least alive) If you are looking this up you might need to see a second third or fourth opinion. Much hope and Strength. The just one more.

@reach100subswithoutanyvide3 5 жыл бұрын

TheJustonemore It’s really good of you to be doing this, recently I’ve been raising awareness in my school for CRPS and have gone far enough to start fundraising. Last year on January 10th my best friend was diagnosed and it’s people like you who are supporting her on a road to recovery ❤️❤️❤️ thank you

@beautifulibra 3 жыл бұрын

I have this and it’s the worst pain out there. The pain never goes away. When you have a day without it-your can’t help but think when is the pain going to Creep up on me

@Truerealism747 2 жыл бұрын

Where have you got it thanks

@GenevieveElmer 7 жыл бұрын

I've been to so many "psychosocial" therapists and I have to say, I've never felt less helped by anyone. Instead of trying to relieve my pain, they wanted to talk about how it was never EVER going to get better and how I had to live with that. Getting better is what keeps me going Day to day. Somehow a therapist taking that away seems like a bad idea. I hate the biopsychosocial approach. Fix my pain and my psychosocial problems disappear.

@mimih5889 5 жыл бұрын

Hope you found a way, my cousin was recently diagnosed after a broken wrist. She's not doing well and I feel so sad for her

@xxrainbowskyatnightxxxx4680 5 жыл бұрын

same here my NHS is terrible!

@JoBlakeLisbon 5 жыл бұрын

Bio-psycho-social is nonsense. It's a cop out because we have no effective drugs to treat chronic pain or nerve injury. In the future, when we actually understand pain - and this may be fifty or so years away at this point - we'll look back at the psycho-social approach as we now look at leeching. Yes - there is a logic to it - does it address the real problem - not at all. Does it make it worse - probably.

@nathancresswell794 5 жыл бұрын

For those suffering ive found CBD oil helps with all the symptoms of CRPS, i think the worst symptom of CRPS is the depression it causes, depression is a terrible mental health illness combined with the physical illness its even worse. There are facebook groups to help discuss treatment options and our illness.

@AngelStars101 4 жыл бұрын

Don't lose hope. Everything and every phenomenon in this universe is reproducible. If something goes out of balance, it can always be reversed. There is a cure out there yet to be discovered

@customizedtrainingservices2079 Жыл бұрын

Almost 30 years ago I broke my left wrist. I developed, what they called at the time, Reflex Sympathetic Dystrophy. My wrist and had became very swollen, were grey in color and extremely painful. When the doctor removed the cast, I passed out from the pain. He sent me directly to the pain clinic. There they injected me with a nerve blocker. After several injections my pain subsided. I went to therapy for 12 months to restore the range of motion in my wrist. I has not bothered me since. I sympathize with those who have endured this condition for years. Recently, I somehow developed compartment syndrome in my left calf. I had to have an emergency four compartment faciotomy during which they made two long incisions in my calf to relieve the pressure. I was in extreme pain for several weeks. I am now, after weeks of wound care, am on the mend. I am wondering if the two conditions are related. Thank you for the excellent video.

@rachelannsmart3710 Жыл бұрын

Any time you see the words psychological support as a treatment option, you know you are in for a world of hurt.

@eegs25 12 жыл бұрын

I suggest suffers look towards studies by Moseley and Butler into graded motor imagery and mirror therapy. The evidence suggests that these techniques do reduce pain and can help to resolve other symptoms by correcting limb representation in the homunculus cortex. Explain Pain and Managing your pain are two texts that can be very helpful in understanding why chronic pain syndromes occur and provide strategies that aim to return normal function.

@evamarie2842 5 жыл бұрын

Mirror therapy and intensive physical therapy helped me greatly. I developed CRPS in my left hand after an ulnar fracture post fall from my bicycle. I had to search for a therapist familiar with CRPS and appropriate treatment modalities, Worth the effort. After a 5 month absence, I was able to return to work. I am not 100% but pain and disability is no longer the primary thought each day.

@Tampogo4us 11 жыл бұрын

i just want to walk normal again

@bandicootcollector 7 жыл бұрын

Me too, brother. I want the other kids to stop harassing me for being different.

@jlaina 6 жыл бұрын

Kenneth Noland awww I'm so sorry. But at least you can walk, I'm currently not healed.

@xxrainbowskyatnightxxxx4680 5 жыл бұрын

same...

@xxrainbowskyatnightxxxx4680 5 жыл бұрын

i cant walk at all my feet are turned inwards...

@margaretpeterson3071 4 жыл бұрын

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

@ThomasStroble-MIInjuryLawyers 11 жыл бұрын

This video does a good job of using an animation to demonstrate how CPRS works.

@TheJustonemore 7 жыл бұрын

It is a Great start but like anything to do with Pain it has exceptions, Blood cells have been shown to carry these signals. S Pain is complex

@xxrainbowskyatnightxxxx4680 5 жыл бұрын

i have CRPS as a 12 year old xhild this effects my day to day life i am in a wheel chair and my NHS is terrible i have been like this since November and its july right now and treatment as just been starting .... i loose my concentration easily and my education becomes low.... i cannot do what a 12 year old ahould be doing! 😭

@doctorsexo420 3 жыл бұрын

R u doing alright now mate?

@겜승 2 жыл бұрын

I hope you always cheer up.

@dougvorwald1673 2 жыл бұрын

This has changed my life

@roachmilk666 6 жыл бұрын

I’ve been diagnosed with CRPS for 4+ years and I’m glad I’ve found this video

@margaretpeterson3071 4 жыл бұрын

@rontegtmeyer8293 5 жыл бұрын

Have RSD CRPS for over 20 years every think that as been is true have been doing all and there is still more to do. This is hell to live with but we keep going👍😳😍

@RikiSmiley 11 жыл бұрын

Surgery? That is a no-no for CRPS patients!

@theekaa7705 4 жыл бұрын

I would never do surgery for it.

@ExMachina70 6 жыл бұрын

Such a nice cold video of everything these people going through. Under treatment options I suspected the voice to say: A shot gun to the head, hand grenade, dynamite, or cyanide capsule.

@lotusliz 5 жыл бұрын

Every CRPS patient has my sympathy. To see those patients suffering from their illness.... Seems like there is no justice or God in this world

@azramedar3535 2 жыл бұрын

Yves ..you ste rigth . why..... and nothing somethome help😢😢😢

@doogleticker5183 7 ай бұрын

I think your thoughts are accurate.

@sonjam314 2 жыл бұрын

It took me 2 years of thinking I was losing my mind to be Dx. I was a nurse and had a severe knee injury. The orthopedic doctor said my knee would never be the same but it would be much better than it was at the time. As the strange swelling appeared and what felt like millions of fire ants attacking me I realized it definitely wasn’t in my head and begged for answers no one could give me. Finally I meet a neurologist that knew in an instant what was happening to me and my journey with a diagnosis began 8 years ago. We think I actually had it 10 years ago. Soon after diagnosis I had a severe bout of kidney stones followed by emergency surgery and it went from my legs throughout my body. Thank God I don’t have any organ involved that we know of. This isn’t just a burning skin issue like some might think. I had what felt like crushing pain in my legs and then like someone lit me on fire at the same time. I truly dreamed of how I could amputate my own legs and stay alive to be taken to the hospital. I swallowed handfuls of pills just needing the pain to stop. I couldn’t think or move most of the time. I ended up quickly getting a pain pump and I get 3 drugs through it 24/7, Bupivacaine, dilaudid and Prialt. Though it has helped my life is nothing like it was. I have lost so much mobility and gained so much weight and it just keeps declining. With my Dr’s permission I started experimenting with thc (it’s legal both medicinally and now recreationally in my state. I found low dose thc gummies actually help me. It doesn’t take the pain away but it alters it in a way I can better handle it. I got of my Neurontin, valuim and Norco going this route. But, I’m still on a decline and we are now looking into a stimulater as my joints and back become worse and more painful. I can stand for only very short moments and rely on my wheeled Walker and electric wheelchair to get around. I have also become very sensitive to certain noises, loudness and pitches of some voices. A baby crying makes me want to rip my ears off!!!! When 3 or more of our adult children get together they try to over talk each other and I seriously have to leave the room. I am so blessed to have a wonderful husband that has stood by my side through thick and thin and I seriously couldn’t have made it this far without him!!!!! God Bless all our warriors 💙❤️💙❤️💙❤️💙

@user-wb2yv7ll9d 2 жыл бұрын

Thanks you for sharing your story. Much love to you ❤

@user-dianejcml Жыл бұрын

Thank you for sharing this. Your journey with this has been hard. You are not alone those of us who have it understand the devastation. Sending you love and healing light ❤️

@1RadicalOne 13 жыл бұрын

This reminds me of something I had noticed. Why does nucleus have exactly zero videos on topics related to the brain, when they have such excellent ones on others?

@k8lynmae 2 жыл бұрын

Someone said I have this after telling them my pain issues. I’m not sure this is what I have. At times I feel more soon than I should abs to the extreme. A raindrop landing softly on my nose initially does not hurt but then within seconds and minutes the pain escalates to a full blown migraine and even with nausea and vomiting. Once my mum lightly touched the small of my back to get my attention. I instantly fell to the mall floor and for the next 4 months had extreme back pain. Once mum walking past me and to top of her sandals very gently touched my left big toe. Initially all good then bam, extreme pain for several years as my toe went through many changes and ended in my toenail coming off. Leading up to that my toe had a big bump in it. It felt line someone was drilling into the center of my toenail. Sometimes it felt like my toe was in a vice also. Sometimes I accidentally touch the hot glass oven when getting food out. Even though the contact was less than a second so normally no pain or damage, my skin blisters up as if the contact was 10-15 seconds. Once my sister was using a hair iron straightener on my hair. She gently hit me with it on my head. Yeah she’s a brat haha. Oh the pain escalated alright. It felt like there was an axe in my head and my head split wide open and deep. After I have a blood test it feels like the syringe is still on my arm and air being blown into my arm. Such an odd sensation. Those are a few examples of many. I always thought it was my body warning me against people who hurt me and are toxic to me.

@thedumbprogrammer123 Жыл бұрын

Could brain surgery work where you intentionally cut out the pain center of the brain. I'm sure it's a complex procedure but might be worth it if one is suicidal. You will feel no pain after that... That has its own set of limitations but they pale in comparison to the initial disease. God luck.

@CosmoArabia 3 жыл бұрын

I have complex pain syndrome since 15 years and it is worse now I am on lots of medication like Gabapentin 800mg 4 times a day Tramadol 200mg 4 times a day NOVO GESIC 650mg 4 times a day Amitriptyline 200mg one time a day Vimovo 500mg 2 times a day Nerve blocks once a month Ketamine infusion every two weeks Is there is a way to stop this madness

@gerrie6498 Жыл бұрын

Does your ketamine only last 2 weeks. I had in hospital, but very same morning on discharge pain was back . 🙏🏻🙏🏻🙏🏻. Does ketamine work for you

@CosmoArabia Жыл бұрын

@@gerrie6498 I take Ketamine every two weeks along with other medication at home like Gabapentin 800mg 4 times a day Tramadol 200mg 4 times a day Novo Gesic 650 mg 4 times a day Vimovo 500/20 2 times a day Mylan Lansoprazol 30mg once Amitriptyline 100mg at night time Duloxetine 30mg once a day So it’s lots of medication in order for me to have a relief and even with that the ketamine doesn’t work always sometimes it does not work specially when it’s too cold or too hot outside I effected by the weather

@papichulohoy 3 жыл бұрын

Cant believe how ingnorant/uneducated the medical industry is about this problem that has been prevalent in so many...how nice the video says treatments are etc... it's just a cop-out to bill insurances and make them feel they took care of the problem, Not to mention how Pain management always assume someones an addict when they ask for certain meds they're familiar with.

@kendramooremusic 3 жыл бұрын

I have crps in shoulder does it ever get better

@jkraai77 11 жыл бұрын

I'm going to start Ketamine treatments here in few weeks. Want away to lower my pain levels so I can maybe have a baby someday. I'm 36 my time is running out. I am hoping it works. I don't wanna have a pain pill addicted child. I would just rather not be a Mother.

@rsdno 5 жыл бұрын

Hi I have had RSD since 1968 Dxed and the few people that have gone into remission or fine were mothers while pregnant I was a male RN but have known more people online then could be counted

@wheatstonebridge 3 жыл бұрын

Are you sure? I mean, why risk it? It seems like a bad idea. You'd put yourself at a crazy high risk of further damage.

@Mdatyrservice7 3 жыл бұрын

My mom has been suffering with this and all the doctors have done is put her on medication besides that is their anything else I do to ease the pain?

@RossIsFine 5 жыл бұрын

I have CRPS across my entire left arm. After my surgery to remove lymph nodes for biopsy in left armpit. Now I cannot use my left arm without extreme pain! It gets swollen red purple color

@oliviaortiz5989 5 жыл бұрын

I know the feeling😢😥

@margaretpeterson3071 4 жыл бұрын

@olchevy7983 2 жыл бұрын

I have delt with this hell pain for ONLY the longest week in my life, all new to me. It's down my left arm, in my elbow and forearm. It's from an old nerve injury 25 years ago whereas my arm was pinned under the beam of a trailer house that fell across my chest , nearly crushing me in half. I feel like my arm is being twisted and ripped from my body. I feel like I'm in a nightmare. I have gotten very little sleep and when I do it's very short interrupted by a painful awakings. My ER visit 6 days ago did not know what was wrong but thankfully got me a bottle of weak pain pills that seems to help numb the pain briefly but is wearing off quicker each day. Im down to just a few pills and it's Christmas Eve. I'm sad, scared and tired both mentally and physically. Only the last 2 days have I realized what I may be dealing with. I've lost some simple movements in my arm at the elbow and thumb to finger movement. I tried playing my guitar with no power to do so. I'm reaching out to anything to help but see there is very little cures or successful treatments. I hope that nobody I know ever has to experience this.

@user-dianejcml Жыл бұрын

I hope things have gotten better for you since Christmas...

@thatgirlwhousedtohavereall5549 Жыл бұрын

Methadone

@dianecrockett3905 19 күн бұрын

sorry for your pain and abandonment. Seems like this is a good place to meet other Diana's. I have had pain since I was 18, then more after childbirth in 1990, 93. But the post op pain med showed me that opiates could manage my pain more than any other meds. I do also take 3600 mg Gabapentin/day and 16 to 20 mg per Day of Tizanidine. These are crucial to have, to mitigate this pain. I fainted, gently hit the concrete and my legs hyper-extended. 💥 Crack! Went my tibia, fibula. After the surgery, I'd been home about 2 months and certain times of the year I noticed that my apartment got really warm, (I think because of my neighbors around have cozy heaters going)who are insulating and the outside Temp was very cold. Those warm days have set off Dysautonomia, or POTS. All of those factors plus I already was diagnosed with EDS, SFN, PM, OA, DDD, FM, just a couple weeks after the fracture surgery I started to develop CRPS. But not One of the 15 doctors who have seen me in the past year, have recognized the symptoms of CRPS, in me! I'm always the one who figures out What I have, and right after, too late to Nip it in the early stages, so do a few docs. But usually it's just me. I mistook it for Peripheral Neuropathy' and my Neurologist backed away from my cAse as if I had leprosy. He did an EMG that was inconclusive but he also only screened me for SJOGREN's and lupus! I think he knew it was bad and he just didn't want to be involved. Is that a case for Malpractice? I lost over a year of potential treatment and the Peripheral Neuropathy went thru first my right, then left foot. Then, exactly a year later, It started in my hands and had been raging for a year. My hands are ruined! I was a very good artist, a great Mother, wife, (he left me because he wanted someone more "Active", but she quit being fun after their baby came! He's 13 now, and he's 64.) and I was not able to find another partner to take his place. I still look ok, I just have all these conditions plus way too much skin. prayers for All of you guys.x💕

@infinitegh0st879 6 жыл бұрын

I have CRPS I had it ever since I was born

@MO-bx1yx 6 жыл бұрын

Awesome . Thank you. 🤗❤️

@nucleusmedicalmedia 13 жыл бұрын

@coolmani1209 Thank you. May the awesomeness pervade your sympathetic nervous system.

@jolierose6301 6 жыл бұрын

I have crps 😩

@margaretpeterson3071 4 жыл бұрын

@kendramooremusic 3 жыл бұрын

It sucks

@theerzombie8295 3 жыл бұрын

Same ✋😫

@infinitegh0st879 5 жыл бұрын

I have CRPS. It got so bad I couldn’t even move and anything that touched my leg it hurts. I’m doing a little bit better but I’m still hurting.

@margaretpeterson3071 4 жыл бұрын

@madhatter2863 3 жыл бұрын

Have you thought about a spinal cord stimulator? I have had rsd since 2002 in my left hand arm and shoulder 🔥🥶 Hope you find some relief I know it’s very hard . I definitely know what your feeling so sorry. Wish you the best of luck !

@meme9460 Жыл бұрын

@@margaretpeterson3071 Hi how could this dct help.? Im interested I have excruciating pain everyday😢

@cecilialorenzo5942 5 жыл бұрын

Please help me understand how surgery can help this condition. Having ankle surgery is why this whole nightmare began!

@gregbisesi9966 5 жыл бұрын

Cecilia Lorenzo It does not help the condition. Surgery was the initial cause of my wife’s CRPS. After a year She had to have her little toe amputated on the affected foot due to the deformity from the severe neuropathy, she was almost unable to walk or wear a shoe. The pain just moved higher up the foot from the surgical site. Avoid surgery at all costs.

@gregbisesi9966 5 жыл бұрын

Ann Lynn Very good article. A lot of validity to it. We totally endorse Neridronate infusions. we have been blessed with the means to get this treatment in Italy, and we are so close to remission. As specified in the article, the best results come for those in CRPS 1. My wife was in early stage 2 a year ago when we went for treatment. In consultation with Italian physicians we just got back 3 weeks ago from our second round of treatment and have already improved the pain and burning. We feel that remission is around the corner. Her ability of barely being able to walk a half a mile 1 year ago to the 6 mile trail hike we did last weeks a testament to the positive efficacy of this drug that we need to get approved here in the US. I’ll spare you all of my FDA rant that I’ve posted on other videos. This drug along with diet, exercise, proper supplementation, and other rehabilitation treatments will bring my wife back to the athlete that she was before her foot injury and subsequent debilitation of CRPS for the last three years.

@rsdno 5 жыл бұрын

I was a blue baby born breech and intersex ,I would cry from pain father always said I was acting out ,different things work for different people ,Doctors gave me what worked from 1968 until about 2020 ,I have had so many trials ,I thought at 65 I could rest ?

@Csozombie 4 жыл бұрын

holy crap if somebody get the this disease, that is a real hell world.

@cellarcoat 12 жыл бұрын

The ONLY option in the Western Hemisphere to treat RSD/CRPS without prescription drugs and/or surgeries is Dr. D'Amato in Rhode Island. I just got back and was ecstatic to find that I was in the 80% of the affected population that responds to his treatment.

@vijayviji3196 4 жыл бұрын

Iam use zeptol CR 300 tablate cps prblm

@withmanyvideosxd1millionsu116 5 жыл бұрын

Treatment of CRPS Most people who diagnosed with it: "Suicide is Badass"

@Theanushaway 3 жыл бұрын

@fenty savage get lost

@blackl1steddrums 3 жыл бұрын

If you're suffering from chronic pain look up "The mind body prescription" by Dr. Sarno, or "The great pain deception" by Steve Ozanich. LOOK INTO IT

@jefferyslavena2610 5 жыл бұрын

I just wanna use my hand again 😔😭

@margaretpeterson3071 4 жыл бұрын

@barrowscasper12 13 жыл бұрын

@camcolerul1 because it wouldnt really fix it and it could bring new troubels like em... when u have an infection in that area after the nerves are cut through your body wouldnt response and it could get worse over time

@eegs25 12 жыл бұрын

*homunculus in the cortex

@rachelhansen3694 2 жыл бұрын

Why didn't they include Stellate Ganglion Block as a solution?

@solar0wind 2 жыл бұрын

Isn't this a type of nerve block? I think they mentioned nerve blocks.

@Katie-vy5rd 4 ай бұрын

Have you had this treatment? And if so, did you find relief? Thanks I'm advance

@NoName-qw4ch 5 жыл бұрын

My mom has crps..

@bukjakobs50 Жыл бұрын

This ruined my marriage. My wife gave up on everything because of her suffering. There is nothing i can do

@maryevans1979 8 ай бұрын

This is terrible...I have been living with it for more than a year now and it is NOT possible to describe the pain I'm in, I understand your wife. I'm considering this treatment I heard about in Italy they seem to have great results for patients, tell your wife to not lose hope!!!

13 жыл бұрын

thnx :)

@unknown644 6 жыл бұрын

I have crps and osteorithritis through my toe being broke when I was 18 I'm now 25 why does it feel like the NHS do not help send u to all these places they send you and do nothing and the pain just gets worse!

@garyfulcher2227 6 жыл бұрын

I totally agree,the NHS don’t seem to know a lot about this condition. My daughter got this in her knee after a small op.She was in a wheelchair in the end,because of pain.She was 13 and went to Great Ormand street hospital for intense physio therapy and thank god is ok now.It seems early diagnosis is the key.But if not a lot of doctor’s know about it,then that is impossible.There needs to be a lot more awareness.

@margaretpeterson3071 4 жыл бұрын