Alport Syndrome: What You Need to Know - Anjay Rastogi, MD, PhD | UCLA CORE Kidney Program

UCLA nephrologist Anjay Rastogi, MD, talks about Alport syndrome, a genetic condition characterized by progressive loss of kidney function. Learn more at: uclahealth.org/core-kidney/

[@andreawindell8508]

thank you so much this was the best explanation I've ever come across for this disease.

[@sobiatariq2317]

very informative and explained in a vwry easy manner..thanku

[@gassanr1]

Got it been transplant now 19 years doing well but yes I’ve got it all hearing loss and eye sight problems as well

[@MahavirBafna01]

I got this problem too But my hearing loss is improving now from 62% to 53%

[@MahavirBafna01]

Did you wear lens or specs

[@katsgood1189]

Thank you

[@MahavirBafna01]

Sir i am suffering by alport syndrome since childhood I am 19 now I had by kidney transplant 1.6 years ago Is there any medicine available for alports syndrome😢😢

[@joao65br]

Hello, I'm from Brazil, I also have this syndrome, in my country there are very few studies on the disease and treatments, I would like to know if there is any type of modern treatment in the USA?

[@sivasankarnallapati]

Useful

[@HZV1911.]

I have alport i am 41, having 3 biopsy. This is interesting video. My gfr is now 19, can i little bit delay dialysis?

[@jessli369]

@2:06 says things become leaky and unstructured...does that mean things everywhere or just in the kidneys?

[@naglastuden39]

Wherever there is collagen. The inner ear and the retina.

[@harshitatalkad1716]

For more information, please join us for the Virtual UCLA CORE Kidney Health Conference on March 21st, 2021 from 11am-12pm PST! This event is free, virtual, global, and open to the public. This conference is focused on bringing you the very latest research information about the management of kidney disease at UCLA Health. Topics include COVID-19 and its impact, treating diverse communities, home dialysis, donation, transplantation, patient stories and much more. Please register by visiting the UCLA CORE Kidney Program website!