Amanda's Story About Huntington disease

“Let’s give them one extra push… every donation received puts us one step closer.” - Amanda Munro
For more information about Huntington disease or to donate, visit www.oneextrapush.ca. Video courtesy of Shared. Visit them at www.shared.com.

[@deeprollingriver5820]

Oh sweetheart, God bless you, your mother, and your family.

[@Rxanne28]

Amen!

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@capricorn3113]

😭😭😭 May GOD take away your pain and diseases and may you live a long happy life.

[@kdlofty]

If God existed this disease and all the others wouldn't.

[@laurabaker8832]

I completely agree with Sonya. Knowing is better than living with a constant fear of what might happen. Life is uncertain! No one is guaranteed tomorrow. Live while you can. .

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses...

[@iitzfizz]

My auntie has it and my cousins don't want to know, after seeing their mum deteriorate like that they said they would not be able to stop thinking about it. I have three cousins though so I can't help but think at least one of them has it, and 2 of them have kids, because my auntie wasn't diagnosed till her 40s we never even knew she had it, we always thought she was being clumsy and ditsy when she started with symptoms, then she had a car accident so we made her get tests that's how we found out. Either way is hell.

[@NEGAN310]

Amanda Sweetie, there's nothing worse than the fear of the unknown. You are already living in constant fear of it. Take the test. You might not have it. Then you can be happy and love your life. If you do have it. Live your life NOW. Make it as full as possible. Do your bucket list. Much Love from Sydney Australia 🇦🇺 ❤

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@christinebutler7630]

Live the bucket list, and don't have kids.

[@antzpantzz8490]

I lost my Mum - who was unable to look after myself and my identical twin when we were born due to the disease - when i was 13 and have lost 4 sisters and anephew who took his own life due to the disease. I feel your pain. It's the cruelest disease in the world. I was tested when i was around 40 yo and fortunately found i am negative. Unfortunately i lost my twin in Dec 2019 to a brain tumour. She was just 58 yo

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@alicekapolas3210]

Gosh, just learning what this is! Just learned my husband’s cousin has it. I heard it’s genetic. Should testing be done through the children of the biological parents? Like WHO should be tested?? Thank you ❤️

[@MsTr1ck]

@@alicekapolas3210children should definitely be tested & the other significant other as well, just to be sure they dont carry the gene for it. if one parent has it then it’s 50/50 for their children to have or not have it

[@antzpantzz8490]

@@alicekapolas3210 anyone who has a parent with the disease should be tested. It is a process though.....that can take a few months. They need to know you are prepared and able to handle a bad outcome, should that be the case

[@chantalsscaleisafibber]

I nursed someone with Huntington chorea and she sadly passed.She was42&had the disease for many years.

[@xxbrexx65]

My mom also had Huntingtons and my sister. Both have seen passed, for my family the disease has ended. My brother and myself don't have it. I feel if your planning on having children please get tested first. I have no children of my own due to this disease. I feel so riped off, since I don't have Huntington's. But on the bright side I didn't let it live on either. God bless you and your family.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@pettytoni1955]

God bless you. Thank you for caring enough about the next generation.

[@sonyaskogstad3849]

Get tested as you have a fifty percent chance that you don't have it and then you can have peace every day. If you test positive then go about living every day to its fullest until its onset. I have looked after a Huntington's man at a respite centre so I fully understand your hesitation in getting the test but every day to have that hanging over you is impeding your ability to be truly happy. Please for yourself get the test.

[@laurakitteridge2150]

I'm one of the two people in my family you has been tested asymptomatically. I used to think as you do, but the truth is, if I had tested negative, it might've destroyed. I'm not sure I would've have had the emotional strength to do life. I think that's why the majority of people don't get tested,

[@shericarriero6240]

Nah she said she didn't want to 🤔 are you one of those social media docs? Shut the fuck up

[@cottoncandy4486]

I remember my first patient with Huntington' s I remember it so well. I had never heard of it But it's one of the most cruelest desease's ever. Bless you for taking about it. It's hardly ever talked about.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@trishaann1616]

Your patient? Are you a medical professional?

[@cottoncandy4486]

@@trishaann1616 yes before retirement.

[@trishaann1616]

@@cottoncandy4486 I'm sorry. I'm confused. Weren't you told anything about Huntington's during your medical training?

[@cottoncandy4486]

It was while I was in training, I learnt about it.

[@NancyJSimpson]

Oh, Amanda, darling precious girl. You are so brave and your dad is a total hero. And, your mom... there are no words. I wonder about this. HD has robbed your joy and every day it haunts you in a thousand ways. The fear lives with you, the big what if. If you got tested what would you have to lose? There is a 50% chance you lucked out and you can live without the fear. If you do have it nothing really has changed because you already have the fear with you every day. It seems that having the test is only a win for you. Just something to think about. You are magnificent.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@christinebutler7630]

And if you don't have it, you can live your life, have a family if you want one. If you do have it, having kids would be immoral . If you do have it, you know you have only a short time to do your.bucket list. If you do have it, you have a window of time to plan for how you make your exit.

[@madeleine7411]

Amanda, there could be no more eloquent plea than yours. I will donate and God bless your family and you.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@paulapaula1236]

My mother also has huntingtons disease and I even remember my nan (her mum) havin it when I was growing up. Seeing how much my mum has changed is heartbreaking and I watched this vid in tears because I totally understand how u and ur family feel. No God in this world to give out diseases like that to My mum...to YOUR mum it's just not fair.

[@kathrynoneill5862]

I'm so sorry for you and your mom.

[@tassiegirl1991]

I can’t imagine what you are going through, my thoughts go to you and your family with hope that a cure will be found before too long.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@aricmackenthun47]

I am really so very sorry for what your mother has to go through. I really wish you and your family nothing but the very best.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@cw4608]

I am sorry you have these fears. Fear of the unknown is a horrible thing to deal with.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@geztinsdale]

good luck Amanda, what ever route you take. Been in your shoes and took the test, thankfully it was negative but completely understand why others elect not to...

[@lindajakub624]

You have a wonderful family. The disease is terrible but you still are blessed.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@marywolters3612]

My heart goes out to you.

[@janetpapst4985]

My Mother died from Huntington’s. Many of her relatives also had this disease. My sister has Huntington’s it is surprising how many people don’t know about it. It changed my Mother completely. Having to live with the possibility of it being passed on is hard and worrying that my children may inherited too.

[@hollyirisdrucker2201]

Amanda, God bless your mom and you and your family.

[@irmajgarcia6009]

Rebuke and break the generation curse of this disease. It stopped with your mom. It will not touch you or your children. 🙏🙏

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@leesher1845]

Such a tragedy. It’s amazing how we’re able to send men to the moon, but we can’t find cures for so many different diseases. Science is so complicated and complex.

[@shericarriero6240]

The meds are much more profitable than the cure..just like cancer and almost all other diseases..

[@MyCold1]

the problem is its in every gene in your body, its irreversible.

[@MyCold1]

There won't be a cure as it is within every gene so you can't make that better, its like saying we can "cure" downs syndrome, you can't

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@pettytoni1955]

Please take the test. You need peace of mind that you're not, hopefully, passing this down to future children. And if you don't have it, you are FREE.😊 Bless you.

[@comethazin6500]

Honestly no family deserves to go through this , this disease is just so depressing just to see your loved one slowly losing their mind and can’t do normal things and the fact that they can’t even express their emotions on what’s even going on it just slowly takes over their brain without even knowing and all of a sudden they speak less and do less things and the fact seeing them suffer and cant even do anything but help feed them until it’s their time to go and the fact that this disease is hereditary makes their kids not even want to have kids because their afraid they will have it and passing it down to their kids and make them go through the same thing just passing it down generations which is to fucking depressing to deal with making them lose their minds killing their mental health having them paranoid thinking they have the disease until they get tested and find out but no one wants to find out that they have it or not it’s just to much to think about like what kind of fucking world do we live in my mom had HD at a way to fucking early age it was just way to fucking soon and the fact that I had to see her go through it at a very young age (10 years old) and my siblings which are older we had no idea what it was we didn’t think much of it because we were still kids but now that we are matured and grown up we realize that she was showing so much symptoms it was so sad because no one knew her family passed down HD and the fact that we went through that none of us want kids so they have to go through what we went through it’s just way to depressing to go through honestly I really do hope there is a cure for it no one deserves to go through this.

[@Christian_Girl120]

This is a terrible disease. Years ago we had two women with it. One was 32 and the other 45. It was heartbreaking.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@shawnmcanthony5724]

@@marieholmes7765 good for you.

[@marieholmes7765]

@@shawnmcanthony5724 his a good doctor

[@thornbird6768]

I have liver failure and have recently been in hospital , while in hospital there was a 36 year old bed ridden woman , she couldn't talk , eat , walk , threw her arms and legs around uncontrollably and made noises occasionally. I had never heard of Huntingtons and asked a nurse what was wrong with her , nurse told me she has Huntington Disease . 36 years old and life over , I cried 😢 , this is the saddest and most heartbreaking thing I have ever seen. She is a regular visitor to the hospital and the medical staff do their best to make her comfortable. Knowing she will die way too young with no cure is awful 😢 I can't help thinking it would be a happy release for her if she slipped away in her sleep .

[@canadasweetie]

If she’s not able to live her life to the fullest, because in the back of her mind, she’s thinking she may have that disease it might suit her better to get the testing done know one way or another and that way she can live your life to the fullest. It would probably be best for her if she found out.

[@ethelhoose1196]

I was a CNA and worked with people with Huntington's it is a sad desease

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@rickboer7715]

It was tough for you to share your story and I commend you for your courage

[@vickimarlene4905]

It’s the most terrible disease. I have nursed people with HD. So so sad. My heart goes out to you. I don’t know it’d I’d want to know if I had the disease by testing.

[@lauraruth6358]

I watched my Uncle Bill die of this terrible disease. Turned into a person I didn’t even know! His son, my cousin got the disease and when he found out his daughter got HD. He shot himself!!!!!!! His daughter, Selena died of HD at the age of 20. It is truly a terrible, horrible disease!!!!!!!!!!!

[@deanieuhrig1349]

If you get married you should be tested because you have 50% of giving it to them if you do not want children then it doesn’t matter

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@crystalzastrocky8347]

My daughters grandfather died from this at 45

[@76DEEZNUTZ]

Take the test. I have it. My mom, grandpa died from it. Don't hold back. It's real. All my five brothers have it.. they all get SSI or dssi or what ever u call it. I don't. It's been 11 yrs IV been trying to get ssi or some help. Nothing

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@KIRKSHINTATURNIPSEED]

You should not take the test unless you have adequate life insurance Once you do if you are trying to get life insurance you will be denied/ my mom has als

[@shericarriero6240]

I took care of a beautiful woman who lost everything including family over Huntington disease and it was heartbreaking to see let alone experience. I'm sooo sorry young lady ❤ that put her in the Buffalo psychiatric center which is a state hospital. Wrong place for this disease

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@happytripclub1941]

God bless you Dear. ❤

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@mariejoy8598]

It's 5 years later. How is Amanda?

[@jayalexander9033]

I'm so sorry 😞

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@jeannezimmerman7034]

Its a terrible disease. I saw it in a family members sister. Very tough. I understand this sweet woman's fear.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@dianeostertag244]

This was 3yrs ago. I still hope you dont have hd. So sorry your mom has to go through this. Its so heartbreaking

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@ramasa-meremammakikitchen3818]

My Mother also got died because of this bad disease,in a very bad condition. Her brother has also this disease. And I think from the past few days,I am also noticing some symptoms in me.

[@katytaylor681]

Is there any update about Amanda? So sad hearing this video.

[@HighFashionQueen]

We never know the future, I understand you want to live your life not knowing. Love❤️

[@debst4975]

🙏❤️

[@trishaann1616]

This breaks my heart. Idk if I'd be strong enough to get tested young but wouldn't you have to so you would know if kids of your own is an option?

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@trishaann1616]

@@marieholmes7765 Please give me details... Age... When you tested pos.... When you did whatever it was ... And how long ago?... I hate sounding so nosey I'm just really interested.

[@petercrockford936]

I was thinking the other day that probably the best solution for HD would be touse CRISPR to introduce a stop condon mutation to the HTT gene and cause truncation of the gene with mRNA decay. I got this idea while researching about Laron Syndrome, which is caused by pathogenic stop condom and frameshift mutations to the GHR gene. Of course, the HTT gene is still essential to life, so the trick would be to make the mutation heterozygous. That would reduce protein levels by 50% to normal levels. I think that this is the sole solution because I honestly don't think that pharmaceutical approaches will work for many reasons. Someone should forward this to researchers.

[@coraldell3091]

Well it may have to be you , that does that, forward the CRISPR idea.. I am sure that this is not a option at this point in time . Unfortunately.

[@chadgilmore5046]

It’s like a slow death sentence that you can’t stop…….

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@visionvixxen]

🙏🙏🙏

[@stacyklein2411]

My mother had this too 😭

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@shesheshe9389]

oh dear heart...it is robbing you of every morsel of joy...I pray you NEVER get it..I pray for your peace...

[@nancysoworowski891]

Praying for you 🙏

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@laurie113]

My father had ALS. He chose to die at his own time. I hope you and your mom have that choice as well.

[@nancybelli]

Its one of the hardest diseases I've ve ever known, I hope that all of those who can get genetic testing, please try not to allow another soul to have to suffer, that or prayers for a cure.

[@TheTekkenhead]

You have it. its 50/50 chance to developing symptoms

[@bernieoconnell5515]

My God what a rotten person you are.

[@chadgilmore5046]

I would be so scared to go and get tested for it knowing their is a %50 chance I could be diagnosed with it….She must be living her life in fear 24/7.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@judydenio3179]

My friends mother had it, she and her sister died from it, her daughter and her three children have it. Where can one donate?

[@margaridabras9281]

❤❤❤❤❤❤

[@vikaschaturvedi1666]

Please recommend medicine I want to for my husband

[@MyCold1]

Ask your doctor.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@marievickers7848]

Please go get tested - you could be clear! Then you can relax and enjoy your life.

[@wheatstonebridge]

Poor thing.

[@tracymcgrath1192]

Rip

[@chrishanson7652]

The only way to end HD, is to not have children....Please stop if you are risk................I am sorry, but I have a child with HD.

[@coraldell3091]

Hi Chris, I'm sorry about your child with jhd, I have a child with jhd as well. Just to explain , to others and yourself there is a test done in utro. It's called Chorionic Villus sampling ( cvs ) not and option for everyone. But halts HD in its tracks. One thing about science it doesn't give up. ❤

[@chrishanson7652]

@@coraldell3091 This was not available at at that time and my wife lied..............so I do this alone. but like I said if its in the family dont have children it is horrible. My daughter has HD and she cannot cope and either can I considering I was there when Beverly passed from the disease.....t

[@georgen9755]

neuro degenerative disorder called HD , cedar Brooklyn facility care , me transcribing the told retold signs and symptoms of the neurologists , just me

[@cookiekilgore7021]

Is Skip's Generations

[@coraldell3091]

Hi Cookie, do you mean does HD skip a generations. No it doesn't, to my knowledge.

[@marioncannon9924]

She'd be better to get tested then she could have a life one way or the other. If positive do everything you can now. If negative plan for your future. Otherwise you're just living with this fear hanging over you, stopping you from doing anything

[@nancyhill6184]

Get tested, you’re ruining your everyday life by worrying and stressing. You may not have it at all.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses..

[@marieholmes7765]

#driyaremoses

[@jimmycrackkorn1596]

Where is God? Why does God allow this to happen? (for no reason) Where is God????!!!!

[@pettytoni1955]

God said there would be plague and pestilence. I don't understand it, but I'm not God. I can do my best to love and help others and to pray. That's all I can do. Bless you.

[@coraldell3091]

Jimmy.... Get a piece of paper write god on it . Stand in front of a mirror with paper read word. 😂🎉 🐕.

[@jenniferbowie2773]

You should do Otto see if your going to roll the dice on having kids! Just saying

[@alfayomega9142]

Put your life in God hands and pray to him everyday, He is good and will give you peace and healt if you believe.

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@omega36001]

what would Jesus do? What did He instruct us to do?

[@purebride8600]

Every promise true, yet conditional on verses one and two, which are OUR part... Psalm 91 1He that dwells in the secret place of the most High shall abide under the shadow of the Almighty. 2I will say of the LORD, He is my refuge and my fortress: my God; in him will I trust. 3Surely he shall deliver you from the snare of the fowler, and from the noisome pestilence. 4He shall cover you with his feathers, and under his wings shall you trust: his truth shall be your shield and buckler. 5You shall not be afraid for the terror by night; nor for the arrow that flies by day; 6Nor for the pestilence that walks in darkness; nor for the destruction that wastes at noonday. 7A thousand shall fall at your side, and ten thousand at your right hand; but it shall not come near you. 8Only with your eyes shall you behold and see the reward of the wicked. 9Because you have made the LORD, which is my refuge, even the most High, your habitation; 10There shall no evil befall you, neither shall any plague come near your dwelling. 11For he shall give his angels charge over you, to keep you in all your ways. 12They shall bear you up in their hands, lest you dash your foot against a stone. 13You shall tread on the lion and adder: the young lion and the dragon shall you trample under feet. 14Because he has set his love on me, therefore will I deliver him: I will set him on high, because he has known my name. 15He shall call on me, and I will answer him: I will be with him in trouble; I will deliver him, and honor him. 16With long life will I satisfy him, and show him my salvation. You can trust Jesus 💟

[@MyCold1]

so you believe on a fictional book, just like the Koran and other religious books who's followers say their religion is the only true one. wouldn't you want to die as you would get to see your made up God.

[@jimmythegreek3542]

Hang in there. God has a plan.

[@heatherkay1610]

If there was a God why is this lady going through hell

[@jimmythegreek3542]

@@heatherkay1610 roll over and ask your father

[@heatherkay1610]

@@jimmythegreek3542 🖕

[@jimmythegreek3542]

@@heatherkay1610 thanks for proving my point. Now back to the trailer park dummy.

[@heatherkay1610]

@@jimmythegreek3542 you sound like a typical fake "Christian".

[@benkalinowski5834]

I have it to my dad died at 64 and now I have it I did the gene test and I was positive I went to my neuragist apt first time and he said I was twitching and asshole canceled my license They also told my dad was twitchy and they canceled his license he lived for 60 I feel like I'm gonna dye at 50 I'm 44 I may end my self I was a huge car guy and now I can't even drive a car if you test positive don't get the test done he was a cold no heart butthole My dad told me to never get the test because you would have a license and he was right I had a list of 100 symptoms and the only one was for twitchy corea

[@remowilliams2428]

How can I share the hope if I know actual management of this genetic disease has an answer you have yet to hear. My family is too he'd by Huntington's my wife, and me with autism. I thank God for the curse of my autism. It is internationally recognized and featured in an acclaimed documentary. I am even on the cover page. I have managed my extreme savant hyper unstable intelligence and today I have evolved into one of the most peculiar cases of it, in the world to date. I have extended life UT I am loosing my battle. You need to hear how we lived this long functioning. It is the only hope and it is not what you would expect. Heck I am on KZbin and Vimeo AND the winner of the 2016 Hoboken International Film Festival best documentary... but the FDA does what

[@lusty611]

I pray to the Lord you don’t get it. May Gods bless your mother and your family

[@MyCold1]

What I don't understand with the religious lot is you all pray that you don't die, but if you believe in God why are you bothered as I guess you think you will meet God...

[@lusty611]

@@MyCold1 maybe try faith instead of hate

[@marieholmes7765]

I got cured permanently with dr iyaremoses herbal medicine #driyaremoses.

[@coraldell3091]

​@@MyCold1 Yes I agree, in actually fact I would rather there kept there religious beliefs out of comments all together. I get over, the I will pray for you an all the lectures on lordy lordy stories. Just to make them look like good little people. 😂

[@coraldell3091]

​@@lusty611 Maybe try the truth instead of some fanciful belief, that others not agree with.

[@magdavanderlith925]

Please if you dont test dont have children as you yourself see and feel how devistating it is for the children.

[@omega36001]

WWJD?

[@mov1ngforward]

"Hover over me God, remind me you're there. Hover over me." ~ Saint Theresa of Avila ~ 🙏❤ “You pay God a compliment by asking great things of Him.” ~ St. Teresa of Avila ~ 🙏❤

[@cookiekilgore7021]

😂 my mother and my brother died from Huntington's chorea

[@beverleycumming1876]

Find out..move your dream plans ahead…

[@jenniferbowie2773]

Stop having childrem

[@coraldell3091]

Oh yeah, easy for someone to speak like this... Maybe stop commenting. Do you have children yourself ms Jenniferbowie ?

[@janetpapst4985]

My Mother died from Huntington’s. Many of her relatives also had this disease. My sister has Huntington’s it is surprising how many people don’t know about it. It changed my Mother completely. Having to live with the possibility of it being passed on is hard and worrying that my children may inherited too.