Sad to go home multiple times early on. I had the same experience with doctors and hospitals.
@tamermikhail24884 жыл бұрын
You are an amazing survivor. Keep up the good work
@hananhopevanholst67734 жыл бұрын
Thank you Tamer! Hope you are keeping well.
@Lalarukhrana3 жыл бұрын
Im 13 years old and I also have this
@MichaelMerritt Жыл бұрын
Doctor's need to have some humility and actually listen to their patients. Kills me the hoops this woman went through to get a real diagnosis when she was being so proactive. Nearly died.
@stephaniehobbs4146 ай бұрын
i went to 4 different hospitals before i was taken seriously 2 years ago i just got to where i can walk with a walker then April 1st woke up and and I was in worse shape now im sitting at home in massive pain mouth drooling at my wits end
@Lalarukhrana3 жыл бұрын
I'm 13 years old and I also have this
@nickf90242 жыл бұрын
I have GBS or GBS like syndrome from the covid vaccine. They are giving me IVIG but I'm sure if it is a varient like this one
@juanangul333710 ай бұрын
How's your recovering looking like
@DaveLongakit-q2m20 күн бұрын
My wife now have amsan 1month she admited ospital in two weeks she walk but have pain
@Thevwmethod3 ай бұрын
You saying "Anxiety" speaks volumes ... how about having GBS and Autonomic Dysreflexia Combined 15 years ago then have having Doctor's saying Anxiety why having autonomic attacks ... I had 3 days in hospital when all that was needed was a BM ... Walk in pain or not is the only thing you can do with GBS
@nexussmart85722 жыл бұрын
Caould you plz tell me your age when you were suffering from gbs and how long you were on ventilator(months)?
@hananhopevanholst6773 Жыл бұрын
Sorry for this late reply. I was in ICU for 2.5 months on a ventilator. Then a few more weeks in hospital, then 3 months in rehab. A total of 7 months. I was 48 years old.
@qudsiamalik45388 ай бұрын
My doughter is 8 years and she is suffering (AMSAN) Please dear please guide me what should I do for her reloef I see Dr But please you also guide me
@ciaranh59076 ай бұрын
@@qudsiamalik4538 go to the hospital
@Vktechmarathi16 күн бұрын
My son suffer from atypical gbs type aman he not able to speak and swollinng ability you have also this symptoms please reply i am from india .
@krishnanth7004 Жыл бұрын
I have this motor axonal polyneuropathy . How to treat?
@leaveittolefty11 ай бұрын
anxiety anxiety anxiety. sooooo tired of hearing women (mainly) diagnosed and dismissed💀
@SamiUllah-ei8ym Жыл бұрын
Plz help me I'm gbs patient
@hananhopevanholst6773 Жыл бұрын
What country are you in? I can direct you to support groups. We are here to help!
@thedimitrimikehub11 күн бұрын
@@hananhopevanholst6773 hey mam i am also gbs patient tell me what to do can i get you contact no to talk about my condition
@nancykaur3241 Жыл бұрын
Please help me I am very poor from India I have same problem
@nancykaur3241 Жыл бұрын
I have poor motor exonal neuropathy I am very poor please help me I have two kids but I am on the bed so I cannot pay money for treatment