Gosh, I don't even know how to put this into words, but Amy saved my life this week. This post comes from Mayo Clinic. Like Amy, I was diagnosed with POTS, EDS, and gastroparesis. When my doctor asked me if I wanted to try some new heart rhythm medications at home, I remembered this video, and Amy mentioning pulmonary embolism. My A-Fib can give off clots which can go to the lungs. So I said that I was not comfortable and wanted to be in the hospital. The first night, I had 5 codes include a Code Red where they had to bring the crash cart for me. I ended up having heart surgery on Tuesday. Amy literally saved my life. I really hope that this brings her family a small amount of comfort. From the bottom of my heart, thank you. My family thanks you.
@rubysparrow29753 жыл бұрын
I am so glad you are alright and I pray you'll feel better soon. Bless you for this really is what I needed to read. My surgery is today, heart also. You take care and wishing you all the best.
@Mrssarandy3 жыл бұрын
Lisa... Please let us know you're ok
@LisaOfTroy3 жыл бұрын
@@Mrssarandy My surgery was a success! Still working on ironing out all of my medical issues, taking it one day at a time. Thanks for your support, Sara!
@pennymunt1123 жыл бұрын
I hope your feeling better than you was.
@arghirrellle3 жыл бұрын
Omg!!! There should be more awareness about the treatment you had. Sounds pretty unsafe to me, especially without medical supervision. Amy's story is so said, she had so much life left:((
@Mikapikapies3 жыл бұрын
She fought so damn hard for her life and made the best of it. I did not expect her to go this soon. Rest peacefully Amy.
@danielf67503 жыл бұрын
I agree. I thought dhe was getting better mid last year and to readbthis im guttered. They say guys shouldnt cry be a man well ive cried 2hrs tonight :(
@Beachbabe453 жыл бұрын
Me either 😢
@Bekahhhxo3 жыл бұрын
Agreed :( cant stop crying
@hannah-07173 жыл бұрын
She did I’m going to miss her so much
@hannah-07173 жыл бұрын
@Bradley Walton she does have a heart of gold and is one of the most beautiful humans to enter this world. I’ll also miss her posting but at least she’s in a better place and there will be no more pain….
@disappointed_in_humanity3 жыл бұрын
I have no idea who this person is, but this video just got recommended to me by KZbin's algorithm. Now I'm sad that I've read the comments. Rest in peace Amy. May God give strength to your loved ones 😔🙏🏻
@MC-83 жыл бұрын
Same.
@leopardontheprowl3 жыл бұрын
Same.
@larajo94213 жыл бұрын
Same
@Qwazier33 жыл бұрын
Same
@iknownothing88293 жыл бұрын
Same.
@M_S_xoxo11 ай бұрын
It’s so weird to miss someone you never met. Amy has given me such strength and motivation throughout the years. And, still to this day, when I need someone to lean on, I keep coming back to her channel. ❤️ I miss you Amy!
@thecatsfriend88943 жыл бұрын
I was so happy that she posted something new till I read the title.I am simply taken aback and I haven't completely comprehended the fact that she is gone.This soul was simply too pure for this mad world.
@SkyStrife923 жыл бұрын
I was the same. I was like yay she’s feeling better than I saw the title 💔
@catherinemaddison36183 жыл бұрын
The same here I saw the notification thought that she's finally felt like uploaded (I don't follow her on social media only you tube ) then I read the title and almost cried whilst getting things ready to cook tea
@lulabeee3 жыл бұрын
The same here. I just can't believe it :( Then I read the title...
@ellajaeger67353 жыл бұрын
My hands were literally shaking and I was in complete denial. I thought that she maybe might stop YT until she's feeling better and waited and waited.... Then I read the description. It's just so f* sad. She was a huge ray of sunshine in this world
@anvina33 жыл бұрын
I was the same too. Been crying so much. Rest in peace angel. X
@GalaxiiBunnii3 жыл бұрын
KZbin randomly recommended this to me and now I'm in tears. I don't know who Amy was but I'm sorry she struggled in the last part of her life and I'm so sorry to everyone that love her. She sounded like a really strong person just from watching this 💜
@justsav03 жыл бұрын
Yes they recommended it to me too
@Dancertoffeepop24683 жыл бұрын
She was a strong woman who was always so happy and peppy even with all the different illnesses and problems that she had and went through. She's someone who would brighten everyone's days and was just an all around incredible person!!
@butterfliesandwaffles63353 жыл бұрын
How did she die? (No disrespect intended)
@00kat003 жыл бұрын
@@butterfliesandwaffles6335 I don’t think much has been said and we shouldn’t pressure anyone to say anything but I believe it was most likely related to the heart issues Amy had been having, and if you’re unfamiliar with her channel they were probably caused by her chronic illness (EDS) I’d been following her content and also from what she’s saying in this video I know she’d had a lot of health issues recently. It was very sad to hear.
@butterfliesandwaffles63353 жыл бұрын
@@00kat00 I understand. My intentions never were to pressure anyone to say the cause of death. I never meant any disrespect or harm 💜
@juliemorris85263 жыл бұрын
This is deeply saddening, she doesnt have to fight anymore she can rest in peace.
@rarediseasepatient3 жыл бұрын
This was very sad to learn tonight; I'm very sorry to her family and friends. RIP.
@michaelavanduesen3 жыл бұрын
This is how I had to talk to myself when my grandma passed away (she had an 8 year battle with colon cancer 4 times) it's never easy hearing about the death of someone, especially if they have been fighting something for such a long time. But it's always best to know that they do not have to fight anymore. They do not have to be in pain anymore. She will always be missed.
@kelseyjay37333 жыл бұрын
How’d she die?
@laurenburn95763 жыл бұрын
I keep coming back to Amy's channel in some hope that this isn't true, even months later. I've never cried for the loss of someone I had never met but amy felt like a friend. I just rewatch her old videos to pretend she is still here. I hope Amy's family are doing okay. If she had this much impact on people who never met her I can't imagine losing her as a loved one. A truly special person who I will never forget.
@333hihello4443 жыл бұрын
I cried for three days straight and never met her. She was such an incredible person, so cruel she was dealt such a brutal hand. She touched so many lives including mine.
@pennymunt1123 жыл бұрын
I feel the same I saw this video and I can’t still believe Amy lost her battle I didn’t know Amy but she had such an impact on people’s lives and helped people with the same condition 💔
@dont_harsh_my_mellow3 жыл бұрын
me too. I miss Amy.
@ava-qy9gd3 жыл бұрын
Me too! I miss her so much :(
@Undercover_Pineapple3 жыл бұрын
Same. I still think of Amy a lot and still can't believe she's gone. I don't want to believe it. It's devastating to so so many and I feel so sad for Tom and Amy's family. This is such a tragedy. 😔😔
@alyssascholes55663 жыл бұрын
The fact she was talking.... talking about the future and only some short days later she crossed the bridge... my heart is broken 🥺
@amberh35603 жыл бұрын
So sad :((( did she pass away naturally?
@happilymena32563 жыл бұрын
exactly...this breaks my heart
@PianoDiva243 жыл бұрын
@@amberh3560 I think her body finally gave in to the EDS and heart failure. :(
@amberh35603 жыл бұрын
@@PianoDiva24 Aw :((
@valentinacardona1733 жыл бұрын
Tom you are a real man who loved her and stayed by her side no matter what. You accepted her with her chronic conditions, you took care of her in every hospitalization, surgery, admission, treatment, relapse. You were her biggest support system, she felt it and she went through hell because she knew you were there at the end of every road. Not many boyfriends does that . So I am so sorry for your loss, but I really wanted to tell you, you gave her EVERYTHING and I hope that gives you peace.
@donnameyer86053 жыл бұрын
You talk as if she passed away. I’m thinking I must’ve missed something???
@missinformed233 жыл бұрын
@@donnameyer8605 she did pass away .. 💔
@susanfisher7733 жыл бұрын
I agree, Tom you were everything she ever wished for.... thank you for having such a good heart 💜
@aliciakillen19403 жыл бұрын
@@donnameyer8605 passed away on April 1st
@donnameyer86053 жыл бұрын
@@aliciakillen1940 so terribly heartbreaking. Caught me off guard. She will be missed by many.
@etzweilerl3 жыл бұрын
You know what broke me? Her dog. Seeing her dog’s face and knowing that her baby doesn’t have her anymore. I’m so happy Amy’s at peace now and that she’s no longer suffering. My thoughts go out to everyone affected by her passing but especially her friends and family.
@selmaabughazaleh95633 жыл бұрын
@Lilian Chase excuse me. The dog is a massive part of her life. She called it her baby. Doesn’t look like you really care about her family. Yes her human family are suffering but her pet is probably quite upset too. Have empathy for humans and mammals in the future. R.I.P Amy Lee Fisher.
@lucidmoon83 жыл бұрын
@Lilian Chase Her family understands the finality of her passing and they are grieving. Her dog doesn’t understand and is probably wondering where she is and why she’s not at home anymore
@KimJongUnnie3 жыл бұрын
@Lilian Chase she cared! Sociopath.
@dannijohn5041 Жыл бұрын
Over 2 years and I keep coming back to your channel. You were one of the best and you will forever be that. We all miss you Amy, and we will do forevermore 😢
@cornbread15633 жыл бұрын
I can’t even imagine how her family and Tom are feeling. I’m so sorry Amy. You are the bravest, strongest person I’ve ever seen. I’ll pray for your family.
@יפהאלצק3 жыл бұрын
Deeply sorry for your loss. She was an inspiration for many.
@andresmcjr3 жыл бұрын
Not really strong if she's dead is she
@mims11563 жыл бұрын
@@andresmcjr How can you say that? Just because she died, doesn't mean she wasn't strong. It's not her fault.
@yelhsa._.3 жыл бұрын
@@andresmcjr It sucks that your life is so miserable.
@yelhsa._.3 жыл бұрын
@@allays4559 Because that person is very unhappy with their own life.
@nursegirly32483 жыл бұрын
As a nurse who has been watching her videos for a long time I cannot say I am that surprised but I am heartbroken. She was so sick and she fought so hard. I am heart broken for Tom, his family, Amy’s family and all friends. Praying for everyone right now. I am so sorry for your loss Tom.
@AF-gd7fh3 жыл бұрын
What happened to her? I heard she had heart failure but I don't know how she got it. She was far to young! My heart breaks for her and her family.
@RoastofRump3 жыл бұрын
@@AF-gd7fh her pulmonary embolism put strain on her heart
@AF-gd7fh3 жыл бұрын
@@RoastofRump what caused the PE?
@eddienick13 жыл бұрын
@@AF-gd7fh on instagram she said she stopped a blood thinning medication i believe for her EDS brushing and her hickman line for TPN. That therefore caused a clot which developed into a PE, thus then causing a right sided heart failure due to her already weak heart. She fought it since october.
@nursegirly32483 жыл бұрын
@@AF-gd7fh I guess what other people are saying. I didn’t know specifics I just knew she had one problem after another it never stopped. Poor thing.
@Perfectlyiimperfect3 жыл бұрын
I don't even know how to process this. I've watched this video 4 times already and still trying to accept it. Everything she dealt with, she did it with grace. And still found happiness. She was my strength. My heart and prayers are with you, Tom, and her entire family. The love y'all had for each other is phenomenal.
@VanessaRRSUN3 жыл бұрын
Doesn't make any sense
@CLF1_163 жыл бұрын
@@VanessaRRSUN wdym?
@savannahcarlon70333 жыл бұрын
I watched this just a couple minutes before a 45 minute presentation I had to give and I'm still totally flabergasted. I knew vaguely what was going on and I just can't believe it.
@thinkingimpaired56633 жыл бұрын
Such a sad video, it's difficult to believe if her passing. With KZbin Amy shall live forever.
@VanessaRRSUN3 жыл бұрын
@@CLF1_16 So many youtubers dying and it's unbelievable.
@letswrithe2 жыл бұрын
i can’t believe it’s been a year, the shock of when i first found out has passed, but i’m still as sad, amy was a huge inspiration to me and i’m so saddened at her death, i hope she is dancing in paradise
@Kez_abi2 жыл бұрын
Finding out now and feeling probably how you were feeling :( ;(
@nai-lahkristasimone51612 жыл бұрын
I keep coming back too still unbelievable
@truman58382 жыл бұрын
Omg , no. I feel so silly. I just left a message asking for an update. She was so incredibly strong. A true inspiration indeed. I have health problems but nothing like hers. It really puts things into perspective. I am very fortunate. I have no right to complain about anything.
@Nice-vf5lt2 жыл бұрын
What happens
@sky-hv4zo2 жыл бұрын
Same I love her cane back forgot how she died was it eds
@wifemomteacherlife76483 жыл бұрын
Oh god. I’m so sorry. Tom, you were such a wonderful partner and I pray that you feel overwhelmed with love from all of us who loved Amy and you. This is such devastating news. 😞
@hollyrichardson62183 жыл бұрын
“Grief, I’ve learned, is really just love. It’s all the love you want to give but cannot. All of that unspent love gathers up in the corner of your eyes, the lump in your throat, and in that hollow part of your chest. Grief is just love with no place to go.” RIP Amy ❤️
@j.w.83763 жыл бұрын
So beautiful ♥️
@nicole_beaumont3 жыл бұрын
❤️
@susanfisher7733 жыл бұрын
Well put..... it leaves you empty inside .
@heidiho51793 жыл бұрын
That’s amazing
@trudibaby973 жыл бұрын
I found this quote after my dad died, it is just sooo true 🥺😭
@deborahfanshaw85203 жыл бұрын
I can't believe what I am watching. I am totally heartbroken for your loss. She is, was and always will be a true warrior. RIP Amy xxx
@Reproductions933 жыл бұрын
It's been a month since she passed away, but I keep coming to her chanel. I feel like I lost a friend. Her chanel was sooo helpful to me, she did so much. R.I.P angel.
@georgiaplummer74833 жыл бұрын
I’m the same. She was an incredible person ❤️
@lyt67323 жыл бұрын
me too
@sandrajeffery70053 жыл бұрын
@@lyt6732 same here just been crying on and off not sure if that a bad thing but still watching amy videos still feel connected to her even now she passed on , keep on thinking hope that you know she had no pain in the end ri.p amz gone too soon, too young
@barbaracerra3 жыл бұрын
Me too. I keep coming back looking for her.
@dannyleeds11323 жыл бұрын
Me too I check every day as I always used too . I just wish I could donate some money to a charity or foundation in her name . I’m hoping that Tom in time may have the strength to do this . Her death has made such an impact on my life and her life impacted my life too !!
@camilatbk3 жыл бұрын
She was and still is one of those bright lights we come across in life now and then...
@ariannaliveslife55663 жыл бұрын
She fought until the end. Amy will be missed by so many people that she surrounding herself with
@babybluecheeks3 жыл бұрын
Can we please all support one another? I can not stop crying, Amy was such a light, she didn't deserve this. I know how stupid I sound but we have lost an amazing, beautiful, strong, fun loving women, I can say that I'm truly devastated.
@ayeshashuja14303 жыл бұрын
I can't stop crying, she was truly an amazing soul. rest easy.
@babybluecheeks3 жыл бұрын
@@ayeshashuja1430 I'm truly devastated, I can not believe that Amy is gone 💔. Amy was a beautiful light in the dark, she always made me smile, I will always remember her love of Harry Potter lol. My heart breaks for Tom. Imagine how much we all love Amy, and now Tom.
@ayeshashuja14303 жыл бұрын
@@babybluecheeks she was the strongest person and I pray for her and her loved ones
@babybluecheeks3 жыл бұрын
@@ayeshashuja1430 my heart is broken 💔
@buffya80123 жыл бұрын
You don’t sound stupid at all,My heart dropped and then broke and I currently can’t stop crying...nobody deserves death but especially Amy after she fought so hard to live...the world lost another beautiful strong woman who died far too young
@estefanybaltazar8369 Жыл бұрын
Hope Tom is ok during these holidays. I still think of Amy.
@candicespringchief87 Жыл бұрын
Me2 I miss Amy so much her spunky personality ❤
@Pop-cune8 ай бұрын
Me too ❤
@taranadon47506 күн бұрын
I'm here re-watching videos years later ❤ she touched so many people. I hope Tom is doing okay and has moved on in the sense of finding love again. I know Amy would want him happy and thriving in every aspect of his life ❤
@aristokat13443 жыл бұрын
I am sitting in the bathroom broken down crying after yet another hopeless doctors appointment that failed to help me and my chronic illnesses I saw this video posted when I first woke up, and I still cannot comprehend it I wish I could think of the perfect words to say, but all I can think of is thank you. You are the reason I discovered my POTS and HEDS diagnosis The strength you have shown over the years keeps me strong when I feel like I can’t be anymore Even though you are no longer here, you’re still helping me and many others, and you always will We all have such a powerful angel watching over us now, and you are no longer a prisoner to the pain of your body Thank you so much for everything you have done, thank you so much for being you, brave, strong, compassionate regardless of all you’ve experienced Although we never got the chance to know one another, I feel deeply connected to you and will be forever grateful to always have you in my heart
@breephoenix1113 жыл бұрын
🙏🦋 keep fighting on honey xx
@J4Y983 жыл бұрын
Lovely but sad words! Keep your chin up an keep fightin 🦸♀️
@mariannesharp74673 жыл бұрын
i totally understand
@ellisesanchez-garci72163 жыл бұрын
I just wanted to comment incase you get to see this Tom ! Just know that if it wasn’t for Amy spreading so much awareness for EDS I would have never been diagnosed! Because of her videos I set off on my journey in the UK to get help and I was diagnosed with hEDS and I’m currently getting tested for POTS. I have watched every single one of Amy’s videos from her very first and I am so heart broken . I have cried a lot but I just want to reach out and say how much love I am sending your way! I am so so sorry for your loss !
@monicalewis74263 жыл бұрын
@Ellise I completely relate. Watching Amy's video's helped me to get my daughter properly diagnosed with Postural orthostatic tachycardia syndrome too!!! She was my medical advocate without truly knowing. She helped me solve my daughter's medical mystery 🙌🏽💜 I will forever remember her✝️🫂
@AlanaLuppy3 жыл бұрын
I will forever be grateful for Amy’s fierce advocacy and education 🧡
@breephoenix1113 жыл бұрын
Maybe leave a comment to Tom on his Instagram
@chronically_kirsty50363 жыл бұрын
Me three!!
@lisaszebralife57723 жыл бұрын
Love and hugs from a fellow EDS zebra ❤xxx
@maddietillem67783 жыл бұрын
I can't believe I'm reading this. She was trying so hard to keep a brave face. I hope Amy knew how much she's helped so many people and knew how much we love her, whether she uploads or not. She was so strong. Sending so much love to you Tom and to the rest of the family.
@0FreakShow0 Жыл бұрын
Amy's still remember even today. I hope heaven exists and you're pain free.
@ilonabakes72903 жыл бұрын
I can't believe what I'm seeing. I just can't believe it. A few days ago I went to check Amy's instagram and was happy to read that she was doing alright. And now this ... I can't fully comprehend it. Amy fought like a true superhero. I told her story to my friends and family, because I found her so extraordinary. She was such an inspiration. It almost feels like I lost a best friend, but I'm sure she is happy now, looking over Tom and the family. Free from all the tubes and constant pain. Rest in peace sweet Amy, I will remember you forever ❤
@allycat8243 жыл бұрын
I know :( I was so hopeful that her heart would get better
@Mkayscales3 жыл бұрын
I too checked in an commented on her last pic, saying she gives me strength. ...I don't know if she was able to read it.. I feel sick how upset she is in this ...
@ayellessnuffelhoek3 жыл бұрын
Same here. I am so shocked!
@allieking20863 жыл бұрын
SAME!!! i haven’t been watching her videos as often as i was, but i just checked her IG and this channel like a month ago, and now i’m heaetbroken
@mariannesharp74673 жыл бұрын
i feel the same. i thought about her and saw her post yesterday. i will never forget her fight
@Jlynne33233 жыл бұрын
Oh my gosh, please no. Amy, we’ve never met but you have seen me through SO many long days, nights, weeks, months battling my EDS. I feel like you’re a close, dear friend, a family member really. My heart is broken for you, Tom. And for the whole family. I can’t believe this is true. 😓🙏
@Beachbabe453 жыл бұрын
I can’t believe it either 😢
@MagicHippy3 жыл бұрын
Same here ...can't believe...😔....she is still with us but in another form...Rest in Peace.
@makeupqueen1303 жыл бұрын
This is terrible. I've been wondering if she was ok
@MagicHippy3 жыл бұрын
@@makeupqueen130i was waiting for her video. ..but not this one🙏😔
@maqsoodch28183 жыл бұрын
@@MagicHippy yah i also witig but not in this way i will ask q abut her last night and I am very shocked to know about her deth and today...................... oh Good
@dreammaster4953 жыл бұрын
my heart stopped when I saw the title. absolutely heartbreaking
@danielledriffill-shelmidin20982 жыл бұрын
She bought a home, found the love of her life and was vulnerable to so many people she barely knew at all that she has had such an impact on, her loss no doubt has hit an emotional note for so many people. We love you Amy Lee and we will never forget. 💕
@krirt133 жыл бұрын
I just can't believe it. I've been watching Amy for years, I really did not think she would die. I'm so sorry.
@marciefostermom75643 жыл бұрын
My 12 year old daughter and I started watching Amy's channel when my daughter first started getting sick. Amy has answered so many questions for us and truly feels like a part of our family. Our hearts are broken. We are sending love and prayers for Tom and Amy's entire family. Amy made a huge impact on so many lives and she will be truly, truly missed.
@AnnetteAnne3 жыл бұрын
I was so scared about this ever since I've heard about her last hospital stays. I am heartbroken. Please accept my deepest sincere condolences. She will be forever missed and never forgotten, you may be sure of that. My thoughts and prayers go to Amy's family, friends and everyone blessed by knowing her.
@alexishillo45552 жыл бұрын
kzbin.info/www/bejne/hH7SiGtnmqZleqs
@Alluska2 жыл бұрын
I'm still watching her old videos.. She had such an impact and helped a lot of people. It is odd to miss a person I never met but that just shows how many hearts she touched ❤️🙁 Sending loads of love to her family and all of her followers ❤️
@lizzywallis9913 жыл бұрын
As a nurse who spent her nursing student years and first year of her career watching Amy's videos, I am so heartbroken. I am so sorry for your loss Tom and to Amy's family as well. She was such an amazing girl who made such an impact on so many people. Rest easy Amy
@allycrowe90873 жыл бұрын
I’m am RN too Lizzy and I was blown away by Amy’s skill and courage! Xx
@jessbroster34603 жыл бұрын
I never met Amy. She didn't know me. But her positive attitude through life touched me so deeply that I'm completely devastated at her passing. I'm so sorry Tom. She was an amazing person.
@indispanna3 жыл бұрын
i haven't checked in for years and this has just popped into my recommended and its safe to say in heart broken
@Scintillate9 Жыл бұрын
I remembered Amy today-by sheer coincidence it’s the 2nd anniversary of her passing. I watched her videos for years and her death still doesn’t feel real to me. Amy has been so helpful in understanding my body and my conditions and learning how to live with them. I hope wherever she is now, she is loved. May her memory be a blessing.
@lilmissoopsie85373 жыл бұрын
I am so incredibly sorry! Amy was a huge inspiration and will so missed. Thinking of Tom and her family and friends. Heart broken ❤
@zelialoana39863 жыл бұрын
I think it's the first time ever I cry over the death of someone I didnt know in person, I just can't stop crying, I'm so sad, her videos use to help like no other did. I hope she rest in peace.
@CNae033 жыл бұрын
Me to 🥺😞 I can't stop crying
@SarasCorner143 жыл бұрын
Me too.. I saw this and just started crying instantly
@larissa_77293 жыл бұрын
Same 😭
@MyName-bi4pt3 жыл бұрын
Me too. This is the first person I have followed that has passed away. It’s a very strange feeling, crying for someone I’ve never met. I’m going to miss her so much. 😞
@katrobbx30203 жыл бұрын
This has genuinely been the hardest😓
@magicallyham71663 жыл бұрын
she was one of my comfort people. she’s gonna be so greatly missed.
@callitayaya3 жыл бұрын
Me too 😥
@uwunuzzlewuzzle20743 жыл бұрын
Me too, she helped me come to terms with needing an ng tube and having POTS. 💔
@leticiarodrigues22223 жыл бұрын
for me too. the first video I watched was for the recommendation of youtube. I don't have any health problems like she did, but I started to follow her anyway, because she transmitted a very good energy to me. she was (and continues to be) a very beautiful soul and I am really sad about her leaving.
@morganbertolino2 жыл бұрын
I've been following her story for years. As someone with a chronic health condition she was such an inspiration and I always loved seeing how positive she was. I know I didn't know her in real life but I broke down when I learned she passed. She was such an inspiration to me and it was like having a friend from far away. We all miss her so much. I still cry when watching her videos. I just hope you know that she inspired other people with chronic illness to be the best they can be, even when it seems impossible
@Julia_F_i_r2 жыл бұрын
I agree, I feel like I have lost a very very special and close friend, but she didn’t even know about my existence 😊 I come back here often too, rewatch some of her lovely lovely videos, and maybe to hear from Ellie or Tom, but i think it’s still difficult for them to talk about Amy, or maybe they don’t even want to, and i respect that.. But I hope one day they will share videos or pics of Amy’s funeral, or the place where she is resting, I really would like to see that, cause i grieve for her, like i said, it feels like I have lost one of my very good close friends... Maybe i am being selfish though, but i am just trying to be honest. Amy shared with us a huge part of her life, I would like to see the last “chapter”... but maybe it sounds rude, that’s not my intent at all.. 😢😢
@alexishillo45552 жыл бұрын
kzbin.info/www/bejne/hH7SiGtnmqZleqs
@ericleaver8036 Жыл бұрын
@@Julia_F_i_r amy is at fremantle cemetery under a marble bench in the water garden western australia
@Julia_F_i_r Жыл бұрын
@@ericleaver8036 thank you for the info! ❤️ i am on the other side of the world 😊 have you been there?
@ericleaver8036 Жыл бұрын
@@Julia_F_i_r yes
@TenilleMeridethxo3 жыл бұрын
I am so shattered by this I’ve been watching Amy for years and this has me in shock. Rest in Peace Amy. No longer will you suffer and we will all love you and miss you🤍
@slappedbylegal3 жыл бұрын
I don't know who this person is, just got it randomly recommended, but I give my condolences to everyone who knew and loved Amy. Rest in peace.
@SuperSuperNova3 жыл бұрын
Jesus you and this other person has the same exact comment 🤨
@aisham_043 жыл бұрын
wait did the girl in the video die?? i literally just got this in my recommendations...
@daniellevanacker3 жыл бұрын
@@aisham_04 same.... is this the last video she filmed??!?
@imkeh.76593 жыл бұрын
@@aisham_04 yes, she sadly passed away.
@imkeh.76593 жыл бұрын
@@daniellevanacker i guess so. In the describtion, Tom wrote a message about it
@miariley83013 жыл бұрын
So heartbreaking knowing she died 4 days after this video and she obviously was aware it could happen but had no clue it would be that day and moment. I’m so glad she made this video, for her friends and family, and her followers
@dsant603 жыл бұрын
She died in January 2021 but in the video she said it was the 28th of March that she was making this video....probably in 2020?
@lauriemccormack66453 жыл бұрын
@@dsant60 she died April 1st
@lucyyy9053 жыл бұрын
@@dsant60 dates are reversed in australia/UK
@ameliarose473 жыл бұрын
Thank you for this comment thread because I was extremely confused.
@jennvanhoesen3013 жыл бұрын
@@dsant60 No, only in America do we read dates by Month Day Year. She passed on April 1 2021
@sierradanielleAK3 жыл бұрын
Who would dislike this video? I’m at a loss. I just found out she passed away. I’m so sorry for your loss to her boyfriend and family.
@sweetlikeqrande13843 жыл бұрын
It’s so sad 😞 I miss her it’s like she was my best friend. But when did she pass away Fly high 🕊🕊❤️
@Eggdroplet3 жыл бұрын
I just figured out too literally crying its so sad
@eirameadows2413 жыл бұрын
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@fmj19783 жыл бұрын
@@eirameadows241 invest in not being a piece of shit so you understand this isn’t the place to go on about crypto currency on the video of a woman who lost her life fighting a hard battle
@Simplyxabs71283 жыл бұрын
@@sweetlikeqrande1384 she passed away on April 1st
@jstaf19793 жыл бұрын
I am shook. I have followed Amy for so many years. She's struggled so hard for so long. The only comfort I take from this is... she doesn't have to fight anymore. No tubes. No heart problems. She's free. RIP, sweet girl 💔💞
@Emmy-zw9zn3 жыл бұрын
“Our lives aren’t measured in years, they are measured in the lives we’ve touched”. Amy has inspired and helped so many people, even when it wasn’t easy for her. We love you Amy, and may you rest in peace.
@Tasumi_Ashiru3 жыл бұрын
💜💜
@dianetina3 жыл бұрын
I’m devastated. I can’t imagine what Tom and her family and friends are going through . She was an angel on earth and now she’s a bigger angel , pain free . I would love for Tom , when he’s ready , to do a video telling us about her last few months . It may take him a while . I really wasn’t expecting this . I missed her so much . I love you angel .
@breephoenix1113 жыл бұрын
I have read her sister may be posting something
@SuperCsokiii3 жыл бұрын
Yes I was thinking about this! Tom played such a huge part in Amy's life and tbh I would love to hear more from him in the future. How he is and etc. I know that he might not like the idea but we care about him as well. We cannot be thankful enough for how he helped Amy through thick and thin. And maybe in the future, because he knows so much already he can continue keeping Amy's legacy alive and educate so many others.
@allieking20863 жыл бұрын
i wasn’t expecting this at all either ::-(
@imogenlaci-mai Жыл бұрын
I came back to Amy's channel for the first time since her passing... Still think of her channels a ton!
@chronically_cls3 жыл бұрын
I am old enough to be Amy's mom, but it was only because of her that I received my EDS diagnosis last year. I was at the point where I didn't care about actually getting diagnosed, but afterward, I realized how important it was. I'm sending all my love and thoughts to her family & friends. Rest In Peace, Amy.
@rarediseasepatient3 жыл бұрын
I'm also an older person to have found EDS & comorbid diagnoses after research including younger people's videos, like hers, and sadly, others who have since passed. RIP.
@laurencronly89183 жыл бұрын
I’m devastated I actually can’t comprehend this... I can’t imagine how Tom and her family are feeling
@jordiflower3 жыл бұрын
Me too...
@MalaNi763 жыл бұрын
It’s not fair. She suffered so much and yet she helped and touched so many lives. Even though she was only 24 when she died, she is a legend. Unforgettable soul, Rest In Peace beautiful Amy.
@Hannah-hv5pc9 ай бұрын
I watched a video of Amy's last night for the first time without realizing that she had passed away. She inspired me and made me realize that I could handle what comes my way and my much easier condition is manageable and within my control and quite manageable. What a remarkable young woman. She continues to inspire after her death. Please, never remove these videos from KZbin. Her legacy is amazing and her light is still shining. Love to all her family and friends.
@CoffeeShopOfHorror3 жыл бұрын
Oh my god... this is so sad, I feel so shocked and sorry for her family and loved ones. She'll be missed so much. Rest in peace Amy ♡ you were amazing
@patriciaruth28943 жыл бұрын
Amy was a true inspiration to anyone suffering from a chronic illness. She will be missed but will not be forgotten. My deepest sympathy to Tom and her family. RIP Amy
@braceforthestorm45263 жыл бұрын
Feels like I lost a best friend, even though I don't know Amy personally. Much love to Tom & the family.
@Siobhan353 жыл бұрын
Me too! That’s I think! 😭
@daniellemoolman18573 жыл бұрын
Me to i can't believe it 😩😭
@meslzr13 жыл бұрын
Feel the same way, I love her videos . Also my thoughts with Tom and her family
@pennymunt1123 жыл бұрын
@@daniellemoolman1857 same I saw the video and thought aww finally Amy is out of hospital and she did the video for her followers a few days before she passed which made it more sad. I don’t have the health issues that Amy had but I do have health issues so I can relate and when I read the footnote that Tom wrote that hit me hard just goes to show how life is so precious.
@larissa_77293 жыл бұрын
Same! I’m 😭 so sad this is awful 😢 omg prayers for her family and friends 🙏❤️
@Noora_Spruce3 жыл бұрын
Can't believe its been 5 months....The video her sister posted today was great. Can't believe its true...Sending lots of love and strenght to the Family and all subscribers
@sarahmorgan56613 жыл бұрын
What’s hers sisters channel?
@Noora_Spruce3 жыл бұрын
@@sarahmorgan5661 she posted it here. She does not have one herself.....i think
@justgymnasticsgymnasticgir16803 жыл бұрын
For a second I was confused and thought someone had hacked Amy's account...then realized what had happened and went and watched the forever and always video again and then watched the one her sister posted and I still can't believe it...it was only 28th March in her last video nd gone on 1st April just so so sad...R.I.P Amy xo
@Noora_Spruce3 жыл бұрын
@@justgymnasticsgymnasticgir1680 yeah, Amy was such a kind and happy human with so much to see and do. Still to this day it seems like a lie. Cant imagine what her families are going through
@justgymnasticsgymnasticgir16803 жыл бұрын
Yep she definitely was. I loved her goofy side always made me smile 😃
@SS04313 жыл бұрын
My heart feels heavy and saddened by this news. I am so sorry for your loss, Tom. I'm sorry to Amy's family and friends. She built a beautiful community here, she educated so many people, advocated for those with invisible illness and she is and always will be such a blessing and gift to us all. I will miss seeing her videos, positivity, and beautiful spirit. Rest easy Amy, we love you ❤️
@LittleLovely3943 жыл бұрын
Beautifully said
@SS04313 жыл бұрын
@@LittleLovely394 thank you ❤️ I found myself in tears over this news. Though I never met Amy, she was a huge role model and had a great impact on me. It feels like losing a good friend.
@hexenkueche1233 жыл бұрын
@@SS0431 thanks for your words 🤝🏽!!! R.I.P.😢 lovley Amy💝 You will be there everytime in our💭❤!!!
@cannonball63722 жыл бұрын
Well if she didn’t believe that Jesus Christ died and shed his blood for her sins then she’s will not go to heaven and she made it very clear in the past she didn’t believe in stuff like that. I just hope she had a change of heart before she died otherwise Amy’s in hell right now. Sad but it’s the truth when things like this happen it should encourage other people to really think about the destination of their souls after death as we are not guaranteed tomorrow !! Place your faith Christ death as atonement for your sins so that u can have full assurance that you will go to heaven !! (Romans 3:23-26, Ephesians 2:8-9)
@FaRivera3 жыл бұрын
I'm terribly shocked and extremedly sad, I've been following her since 2 years ago, all her struggles, joys and sadness, sending strenght to Tom, family and friends of Amy, it is an incomesurable loss. Rest in peace, Amy.
@comfortablynumb55973 жыл бұрын
"To live in hearts we leave behind is not to die." -Thomas Campbell RIP Amy
@Amanda-sf1pw3 жыл бұрын
I just came across her channel and saw a comment mentioning that she passed away. I immediately came to this video and my heart just aches for her and everyone she made an impact on. she seemed like the most amazing young woman who didn't deserve to go through all these problems. I'm so so sorry for your loss...
@alexishillo45552 жыл бұрын
kzbin.info/www/bejne/hH7SiGtnmqZleqs
@annevauclair3043 Жыл бұрын
😢
@SweetTacos3 жыл бұрын
I can't believe what I'm seeing right now... My heart is breaking for Tom, Ellie, her parents, friends, and other subscribers who loved her so much. I know she can rest easy now and is no longer in pain, but this hurts so much. We will always love you Amy
@vaniacallista293 жыл бұрын
I feel so sad. Amy u are an Angel right now. You know everyone loves you, right? RIP My beautiful angel.
@nidoqueef44533 жыл бұрын
My chronic conditions aren’t life-threatening, but they do make life difficult and painful. I always told myself that if Amy could do it with a smile on her face, so could I. I’m devastated by this news.
@hostilewerewolf4053 жыл бұрын
keep pushing, for her. for yourself. i believe in you, have a good day. :)
@andressaloiola86693 жыл бұрын
Me 2 :((
@nidoqueef44533 жыл бұрын
@@hostilewerewolf405 Thank you 💛
@behappy54193 жыл бұрын
I am from India axe wooned think positive live life do whatever you want
@rosehill95373 жыл бұрын
I feel ya. My hearts broken. She was inspiring. Now we push on with her spirit in mind. From a fellow chronic illness fighter
@SaraNerys2 жыл бұрын
Been thinking about Amy a lot lately. I didn’t know her in real life, but I felt like I did. I miss her accent and her laugh and her Harry Potter fandom. She was a special person.
@EllaJane19923 жыл бұрын
If Tom, Ellie or any member of her family or Toms family’s sees this, I don’t know if anyone else will agree but I feel like it’s appropriate that everyone who enjoyed and loved her and her videos can help with funeral costs or something as a thank you for raising so much awareness and positivity even though she really struggled - maybe a donation page for the people who kept her alive - just a kind thought at this very sad time for everyone ❤️
@fourofhearts3 жыл бұрын
yes! like a GoFundMe page or something along those lines!
@Tasumi_Ashiru3 жыл бұрын
agree 100%
@sandrajeffery70053 жыл бұрын
@@Tasumi_Ashiru done a just giving page i could post the link on here if helps at all will help amys family out r.i.p gone too soon always be missed your legacy live on forever sleep tight
@EllaJane19923 жыл бұрын
@@sandrajeffery7005 yes please!!
@sandrajeffery70053 жыл бұрын
@@EllaJane1992 there a go fund me page for amys family hopefully helps them with everything this last thing they need right now is worrying about funeral costs we need raise as muchas can for them so can give amy a great send off
@zarachloerocks24183 жыл бұрын
This is absolutely heartbreaking. She fought with everything in her. She is now the brightest star in the sky shining down on her family, Tom & all her friends 🤍
@carriemartinez-schmidt92053 жыл бұрын
I’m absolutely in shock. It’s just so unfair. She was always so strong throughout everything. There just aren’t any words.
@breannayopp17383 жыл бұрын
Some times I come back here just to see Amy’s beautiful face. It’s crazy that someone we’ve never met could make such an impact on all of our lives. She truly was loved by many.
@alexishillo45552 жыл бұрын
kzbin.info/www/bejne/hH7SiGtnmqZleqs
@itskika27273 жыл бұрын
Sending love to Tom and everyone who loved Amy. This really is a sad day. She'll be remembered for a long long time, Im sure ♡♡
@rainee26663 жыл бұрын
I have a milder form of EDS, and I remember that when I found Amy’s channel I was happy to see that I wasn’t alone in my struggle. This illness is rare/unheard of, yet incurable and very straining on patients. I’m so devastated to learn of Amy’s passing, as she was someone that I looked up to dearly. EDS was a big part of Amy’s life, but it did not define her. Rest in paradise, you will be dearly missed.
@Mrs.Fezziwig3 жыл бұрын
I have Classical EDS. This breaks my heart because at one point the doctors thought I had Vascular EDS, it was terrifying. Amy really was an ambassador for us all as well as an inspiration. 💔
@uwunuzzlewuzzle20743 жыл бұрын
My mum is likely to have EDS and I was telling her information about it, all learned from Amy. She helped so many people and shell always hold a place in my heart, rest in peace.
@d3adm3mori3s93 жыл бұрын
@@uwunuzzlewuzzle2074 I hope everything goes okay with your Mum ❤
@uwunuzzlewuzzle20743 жыл бұрын
@@d3adm3mori3s9 thank you ❤
@breab3793 жыл бұрын
I have just been diagnosed with EDS, know that you're not alone
@shawneymelton50473 жыл бұрын
I'm so incredibly sorry. I didn't know her personal just from the videos but the impact she made is everlasting. It was evident how much she loved you Tom and her whole family. My heart is breaking. There is no words that can help at this time. I know that.
@anneschmidt95872 жыл бұрын
I watched her for years and just rewatched a couple videos. She lived her life to the fullest extent she could, and she didn't have to. I miss her. I wonder how Tom is.
@cheyannekillin92663 жыл бұрын
Holy shit. After I saw that she'd been able to get out of the hospital for a while, I really had hope that she would recover enough for her deserved long, happy life. I never expected to be typing this message. To Amy, thank you for the lasting effect that your work and your presence will have, and has already had, in helping so many members of this community finally reach a diagnosis. I hope you're somewhere beautiful, pain-free, and finally resting in the peace and comfort that you deserve. I know we've never met, but as someone who's watched your videos late into the night on bad pain and nausea days, it feels like I've lost a close friend. Thank you for being a friend. To Tom, Ellie, and the rest of the Fisher family, I am so deeply, unbelievably sorry for your loss. I cannot imagine the pain you must be feeling, and I hope you're able to find peace and joy again. Sending you all love and support I can muster from the USA.
@YaminaHsaini3 жыл бұрын
Amy.. You were such an inspiration to me... I felt so lonely when I was diagnosed with gastroparesis and then I find you. You motivated me to also start my KZbin channel to spread awareness. I’m now so broken and couldn’t stop to cry when I heard about what happened now... You will forever be in our hearts. Rest In Peace 💔💔
@monicalewis74263 жыл бұрын
Stay strong Yamina. Amy showed the good and bad. Her personal day to day medical stress of living with a chronic illness 🙌🏽 But, she also lived her life 100% as often as she could on her good day's 💜.
@xEmeraldCityx3 жыл бұрын
As sad as I am to hear the news of her passing, I cannot help but be relieved that she is finally able to rest peacefully, and her family and friends can finally breathe a deep breath I am sure they have been holding for the past many months. No more pain, no more stress, no more tubes, no more hospitals, no more emergencies. As devastating as her passing is, I cannot help but be happy to see how many lives she has touched and how many wonderful memories she has created- as evidenced in these very comments. She has done more during her life than many of us dared to even think about doing in ours. Look around and see how many of us have followed her journey, been inspired by her strength and wisdom, and have been brought together by her selflessness and passion for life. She didn't have to share her struggles, but she did, and she opened our eyes. She didn't have to dare to dream, but she did, and she touched our hearts. She didn't have to fight so hard just to connect with us, but she did, and she changed our world for the better. We would all rather have her back, but let it be a small bit of comfort knowing that she will forever live on in our hearts and minds. Sending love from Washington State, USA.
@Alluska6 ай бұрын
Still after 3 years this makes me cry.. I miss her videos and little updates on how she's doing.. I hope her family and people close to her have had the chance to heal and grieve Amy ❤
@jadeshortt7233 жыл бұрын
I cannot believe this as a long time viewer, I’m sending love to all the family & everyone who knows Amy. R.I.p ❤️
@DanEvil66663 жыл бұрын
@@peace9368 "It is with great sadness that I have to announce that Amy passed away last week" Description
@jadeshortt7233 жыл бұрын
Tom states in the description that Amy has passed away.
@dfl19743 жыл бұрын
I know it says she passed January, I think it's suppose to say April 4th because she commented to some people on Instagram in late March
@neen423 жыл бұрын
@@dfl1974 most of the world posts day/month/year
@dfl19743 жыл бұрын
@@neen42 Oh ok. I'm in the USA and we put the month first. Thank you for clarifying that for me. That's why so many was confused. We put the dates different. R.I.P AMY
@martyna19613 жыл бұрын
She popped up in my recommended about this time last year. I watched her sometimes to see if she was ok and for motivation to fight my mental illness. She taught me to be grateful because it could always be worse and helped me see the brighter side to things. I am sending all my love to her family and friends. She was so brave and I am so sorry about this heartbreaking news. May she finally rest.
@AmyNDarko3 жыл бұрын
I'm devastated for Tom and all of Amys family. She has always been such an inspiration to the community. We love you Amy. Rest in Peace.
@joannesaltfleet20713 жыл бұрын
Yet another example of how life isn't fair seeing how young she is!
@chanlaiching36153 жыл бұрын
上到天堂!沒有痛苦!1路好走!看到你好 勇敢堅強
@SuperSuperNova3 жыл бұрын
@@chanlaiching3615 they wrote, she is in heaven. No pain. She is so brave and strong
@enyasavory45753 жыл бұрын
Watching this again months later. she fought so hard to stay alive. I think about her every day and try my best for her.
@alexishillo45552 жыл бұрын
kzbin.info/www/bejne/hH7SiGtnmqZleqs
@wiktoriamarianna3 жыл бұрын
I am completely shocked. I remember watching her videos, vlogs and her house tour.. She was such a strong and stunning young woman. Although I don't know her personally, I can say that I'll miss her for sure. Rest in peace, Amy. ❤️🦋
@lucreziarosini95103 жыл бұрын
My mum found Amy's KZbin channel in 2019 while fighting a very rare intestinal motility disease and showed me her videos. My mum didn't understand English so I used to translate what Amy was saying. We were getting so much strength and hope from her videos, we were feeling less alone in that horrible situation. My mum sadly passed away last January due to sepsis and heart failure and I am still heartbroken as she was my everything and we fought for her life until the end. And now, finding out about Amy passing is literally breaking me apart as I think how this life is so unfair😔😔😔 R.I.P. Amy, you are a warrior and an example for everyone 🙏 my condolences to her boyfriend, family and friends, I know the pain you are going through💔💔💔💔
@kristinccha3 жыл бұрын
So sorry for your loss.. Thank you for sharing. I lost my daughter a couple of months ago from lung failure of an unknown reason . She was 3. I know your pain and I'm sorry
@codirennke11093 жыл бұрын
I'm so sorry for your loss 💗
@breephoenix1113 жыл бұрын
Sending you lots of virtual hugs honey xx 🙏🦋💛
@breephoenix1113 жыл бұрын
@@kristinccha I'm so sorry for the loss of your little girl 💕💕💕💕🌸🙏
@itsfaithkay3 жыл бұрын
Sending you so much love and light. So sorry for your loss💔🙏🏾.
@kizzagaming65233 жыл бұрын
This actually crushed me, I just assumed she was going to recover. Condolences, she was an actual gem. Sorry Tom
@danawalker-berry10523 жыл бұрын
I didn’t realise how much I’d miss Amy. She really made a huge impact on my life. She taught me to be strong and she taught me to keep going, keep fighting. I’m not religious but I truly feel like she was a blessing on this earth. She has done great things. May she rest peacefully.
@alexishillo45552 жыл бұрын
kzbin.info/www/bejne/hH7SiGtnmqZleqs
@DMZlover163 жыл бұрын
I feel like I lost a friend..... I'm so sorry to her family and to you Tom. I wish I could give you all a hug... she will be so severely missed and she is and always will be so deeply loved and she will never be forgotten.
@elenamaretto3 жыл бұрын
When I was homeless 2 years ago I found Amy on youtube and her strength and attitude towards life really helped me get through so much. I was waiting for months praying for her even though I live thousands of miles away and have never met her in person. She's such a beautiful soul and always will be. I believe in reincarnation, so wherever she is now I'm sure she's spreading so much light and peace to others, because she did that for me. I am so sorry for your loss.
@nellieolesonfan3 жыл бұрын
She fought until the end. She is free from pain, even tho that isn’t comforting for you guys. Her family. My thoughts are with y’all. ❤️
@valeriagarciaramirez84932 жыл бұрын
I come back to her channel often, i miss her and sometimes can't believe is not here anymore.
@Its_me--Boo_Radley3 жыл бұрын
My sincere sympathies to Tom and to Amy's family and friends. Amy was such a warrior. Despite all her challenges, she still found so much joy in life. I will miss seeing her smiling face, her Vlogmas posts with all her little Harry Potter figurines, her dressing up for outtings to sporting events, hanging out with Tom in bed, making silly rhymes, her outfits of the day ... and so much more. 🤍
@sieltte3 жыл бұрын
I am so very sorry for your loss. I am doctor in Australia, and came across Amy's story and was struck by her openness and honesty. She has helped me understand my patients' journey and experience.
@lexicamacho99043 жыл бұрын
“I’ll see you when I can” 😞💔💔 rest in beautiful paradise Amy. We love you dearly
@gothicRaven163 жыл бұрын
😿😿😿 it’s still hard for me to even deal with ugh this hit me hard 💔💔💔💔💔💔💔💔
@medic21055 Жыл бұрын
Tonight (Dec 21, 2023) I was telling my boyfriend about Amy, I’m not sure even sure why. I came back to watch this. Amy- you are remembered, and missed, and loved.
@clairedevlin29363 жыл бұрын
I’m deeply saddened to hear that Amy has sadly passed away rest in peace now Amy. You don’t have to fight no more. Be the angel that you truly are
@orsolyamihalyfi41973 жыл бұрын
Amy really changed the way I see life now. She was the reason I learned not to whine about my little problems, because there are people who literally suffer every day. She was such a light, an angel. Rest in peace! And thank you!
@imibongomxokozeli94083 жыл бұрын
As a person who suffers from a chronic illness, Amy pushed me through some of my toughest nights in hospital, watching her and seeing her positive outlook on life made me believe that there is more to life than what we are going through on a daily basis, you will be missed Amy. Thank you for sharing your beautiful journey until your last days. I love you, all the way from South Africa
@lisaszebralife57723 жыл бұрын
Fellow chronic illness warrior here ! Sending love 💘x
@kristy39113 жыл бұрын
I’m in complete shock....I knew she was having a horrible time but my brain just wouldn’t let me think it would get to this point. Rest In Peace Beautiful
@sophiegrace7733 жыл бұрын
same i always just kind of find her videos and watch them but i never realised it would get to this ):
@An__-3 жыл бұрын
Same. I would come by periodically to look for updates. I knew she had been having a bad spell but didn't realize it involved heart failure and emboli. I wonder if these were caused by issues separate to the EDS or complications from life things involved with EDS (surgeries, tubes, etc.)? It's heartbreaking and unfair that this was her lot.