♡ Day in the Life: Hospital Evening Routine! + What is Draining? | Amy Lee Fisher ♡

[@averybelle1301]

I still can’t believe she’s gone...

[@Jenna18527]

WAIT WHAT SHES DEAD!!!!

[@anywayhereswonderwall7303]

@@Jenna18527 yes.

[@kimsordyl]

@@anywayhereswonderwall7303 that's so sad, I've just started watching her videos. What was she suffering from?

[@kirstenornelas881]

@@kimsordyl gasteroparsesis/Ehlers Danlos and POTS. My oldest child has a confirmed dx of the first one, we are still fighting after 18 years to transition to tube feeds and finally now that she can no longer maintain weight and her bloods are showing many deficiencies this will hopefully be the decision made Monday at our next follow up. They suspect EDS with proof of imaging showing connective tissue damage to several organs and there sure symptoms pointing to pots as well. It has been a long scary journey with dozens of hospital visits, procedures and surgeries and still they keep pushing to Avoid the GJ but we are keeping a log of everything ingested during a day and it will go a very long way to proving there’s nowhere near enough nutrition/ pain and bloating with spasms of the digestive system and vomiting/Reflux. My daughter and I used to watch Amy consistently as she gave us hope that we could one day at the very least get all dx confirmed and start the proper treatments as she is currently very medically understandable.

[@alexflores3136]

What happened?

[@zenahyosef7477]

the amount of strength you have is unbelievable ❤

[@addiecleckler3087]

j

[@emilyunderhill8158]

I miss her so much but I’m thankful she isn’t hurting anymore

[@sarahjohnson9193]

A+ blood doner here!! Hope you are feeling better after 2 units ..

[@tximeleta35]

It,s like get back to the Life. I am receptor. Thank you for donate👍

[@margaretgarcia131]

Hey there I'm at work now I will be there for the call at your house at the same time

[@Mia-em5is]

Sarah Johnson I have a bladder like I could give my blood to everybody but only certain types of people can give it to me

[@katiepeterson2306]

Make sure you watch the ADs to help Tom and Amy's family with any costs coming up from her passing!

[@DoYouHaveCRPS]

Watching ads doesn’t do anything. You want them to get 5 cents from an ad? How much have YOU donated?

[@unusedsn]

You're amazing. Just the fact you are kind enough to satisfy everyone's curiosity despite everything and with a smile, no less, is just wonderful. :)

[@hayleywhiting2843]

Id be so scared of having tubes sticking out of me, im clumsy enough to walk into walls and get my piercings caught and ripped frequently

[@Ellie_9597]

Those are my exact thoughts😂😂

[@meghanm.6231]

That’s always what I thought to, I never imagined myself even having surgery much less having tubes.. now I have a abdominal dialysis catheter about 12 inches lol.. life can change forever in a matter of minutes, never get to comfy..

[@margaretgarcia131]

Hey there I'm interested in your ad and was interested in your

[@jills1980]

ME TOO

[@atomictartar]

You get used to it and start to work with that. I was scared of needles and ended up very sick to the point I was numb to this kind of stuff.

[@macycapon1256]

Can you feel it when you stomach contents is coming out?

[@hopearmstrong.x]

not really

[@elizabethsheehan3747]

I can

[@Kate.Murray]

Eli sheenhan do you have the same thing she does?

[@kaitlynlubinsky1675]

when i was on suction at the hospital with it, i did because it wasn’t just like doing it with a syringe and it was very odd

[@Sandra-gh8fi]

I'm A+ too and also a blood donor! It makes me so happy the fact that I can help people who needs blood infusions like you

[@fionamorel]

I was complaining to a friend about my severe nut allergies and Celiac the other day... That's... like nothing. At least I CAN eat. You have to go through so much, honey, and you're so strong. You are an inspiration. Bless. 💜🙏

[@pizzapartytime1826]

Don’t worry it’s ok! We all have our own struggles! Don’t feel bad.

[@ashleystratford8036]

It’s actually incredible how happy and outgoing you are despite your situation!

[@rhiannondeveraux2378]

Working on a gastro ward I deal with a lot of the things you do (but other other people, not myself) And I just want to say how well you describe and explain everything. I also come across a lot of patients who have no desire to learn how to do these things themselves and I think it's amazing how you just get on with it and own it like a boss! Sending you love ❤

[@GuruAce]

I love how positive you are about everything. I use a vent to sleep at night and hated so much. Watching your videos beings me hope in life 🌼

[@debracoder1856]

I also admire your strength,i also am going through alot.tubes i have are for different medical reasons and are subcutaneous.2 months post op on 14th surgery and pain is still intense,glad to have found you on youtube,your smile makes me push forward to heal

[@pastellove1023]

You are so strong Amy, you are so amazing and show me strength to fight any illness!

[@Chanhee]

Whenever I feel sick I wish I had one of those suction syringes for my stomach idk if that weird

[@elena-zq8hn]

Ohh yes I totally understand u, especially if u have emetophobia :(

[@SweetTikTokLife]

Elena yessss!

[@CloudySunflowerfield]

No that’s not weird I was thinking the exact same thing lol.

[@britain..r]

@@elena-zq8hn I have it but my own doesn’t bother me??? Does that make sense also if it’s just like a baby or toddler it won’t reallly bother me??? Is it just me

[@elena-zq8hn]

@@britain..r i guess there r different types bcs some guys feel incredible disgusted by vomit (ofc its not nice but yk what i mean) and the others are incredible scared of throwing up itself like the action not the puke. And so maybe ur phobia includes just adults(?) throwing up nothing wrong with it

[@breannafairris4195]

How can you move your hand with that iv?! Every time I get an iv my hand is so sore and I have no use of it and I’m so scared of needles omg

[@amandaanderson8254]

Very educational on the draining. Thank u for sharing. Hope you and Tom have a Happy New year!

[@griffindoorgirl]

I miss this girls vlogs so much. She was my fave KZbinr ❤ xx

[@LostInWonderland05]

Interesting how many of the same things she does were the same type of things we did for our prematurely born twins in the NICU. They were born at 27 weeks so They had a underdeveloped digestion system and also had to drain fluids and were on a pic line Iv for their nutrition. Luckily they just needed time to grow and are now healthy 1 year olds. ❤️

[@studentnursesav1661]

I work in the NICU and this is like literally the same thing! Very interesting!

[@LostInWonderland05]

Ella_Potato _12 I’m glad she’s doing well! Preemies are the so strong 💪

[@sophs.things7390]

Liz I was born at 28 weeks xx

[@fah06]

I was born at 27 weeks too!

[@chuckfriedlein2720]

@@LostInWonderland05 K

[@DemonSister6]

This video would help anyone that has an eating disorder for sure because a feeding tube is required and if anyone gets nauseous while they have another tube that way they know exactly how to properly clean it out

[@francisluciasilva7258]

May god be with you at all times, you remind me of my daughter Jackqueline, I lost her at age 27 from Lupus and epilepsy! I admire you so much, dont ever give up, in this earth, our life is temporary but in heaven is forever! And I am sure you have a beautiful house in Heaven! Take care of yourself!

[@chloejones2601]

She passed away in 2021 😢

[@maddiehook8326]

Those anti-nausea meds are literally apart of my daily life. I love them they make my like 1000000000x times easier

[@lindshasnochill3728]

That's a big mood. I have to take anti nausea medications every day due to Pancreas issues.

[@chaoticyank5772]

They are a blessing. My husband suffers from stomach and intestinal issues and they help out so much.

[@cellogirl11rw55]

I have had a lot of trouble with nausea and vomiting due to my PCOS, and migraines. PPI's, acid reducers, Zofran, and Phenergan all failed to provide adequate relief. So, my migraine specialist at the University of Washington Headache Clinic suggested drinking Mountain Dew, or another sugared lemon-lime soda with caffeine in it when I felt nauseous. This sounded odd coming from a doctor, but, the Headache Clinic did a study in 2017, which concluded, among other things, that those who did not respond well to the medications I tried often got relief from caffeine and the different types of sugar in lemon-lime soda. Now, I drink some when I feel sick, and it takes away the nausea completely.

[@daschasolovieva9724]

Zofran (mine is 8 mg) is just my holy grail, when I am having the gastric issues. The drops I used before are not allowed in Germany anymore and I throw normal tablets up, so Zofran is just the biggest relief 💕

[@cellogirl11rw55]

@@daschasolovieva9724 Were they simethicone gas drops? For me, those work better than 8mg of Zofran when my stomach is upset, and they don't give me any side effects or interact with my medications.

[@KatrinaKatrinaHolland]

You inspire me so much and hope you're doing alright! Happy New Years!!!

[@kimberlygonzalez8393]

You are a warrior, the optimism you have in the circumstances is worthy of admiration. In spite of all your still smiling❤

[@Chanhee]

I started donating blood after watching your videos. I just turned 18 so now I can go to centers and actually do it. Here in the USA you actually get paid to donate so it pays for the 20 minute commute

[@cellogirl11rw55]

I'm in the USA, and I was not paid when I donated blood. The agency I went to only paid those who donated blood components because that can take hours.

[@Chanhee]

cellogirl11RW Go to a different establishment then geez

[@chrisbecker4412]

You can get paid for plasma. Blood centers aren't allowed to pay for it, because it's such a regulated, and volunteered process.

[@itsmetee89]

@Ella_Potato _12 I felt the same way. I'm always on the receiving end of the blood transfusions. I even signed up to be an organ donor when I turned 18 but with having lupus & liver disease I can't.

[@coppertop1029]

Im in the USA and donate plasma & platelets. The Red Cross doesn’t pay us but it’s well worth it to me cause I know it can help save lives. I’m AB+

[@lisamoulton2540]

I miss you Amy 😇😇 RIP. My ❤ goes out to you Tom.

[@estefanybaltazar8369]

Thank you for sharing your day with us.

[@nyancatnatalie]

Her whole life comnected to tubes and machinery. She took it like a champ. Rest in peace Amy.

[@gothafloxacin]

I used to have a mini button feeding tube and it was so convenient. The old one I had got ripped out!

[@queencamerontv4832]

She really was a fighter ❤

[@madamepokemontrainer9246]

I’ve been chronically ill for three years now and I had NO IDEA you could seal the barf bags like that. I feel like a spazz. XD I would put them in a zip-lock.

[@hanraye9]

Thank you so much for making these videos! They’re so informative and are such an interesting window into your life. You’re so strong! 💞

[@virn4699]

Its crazy cause as a nurse I deal with similar tubes like pegs and jtubes but it’s amazing to see you do all those things yourself. Literally so inspiring to watch

[@Katelovessoup]

So glad you’re feeling better now!! Hugs & love from Canada ❤️

[@ariahynes7760]

Hope you’re infusion gives you some more energy and gets you feeling a little better.

[@peytonblackerby9067]

So sorry your last few days of the year are stuck in the hospital! Just so you know, you are an inspiration. I have chronic pancreatitis and a support group that I'm in for my chronic pancreatitis has many people who also have gastroparesis. I can't imagine what it's like. I'm sick and vomiting daily and in pain, but I don't do all of the feeding tube and draining stuff, or at least I haven't had to so far. Keep your chin up and stay positive! I love that you vlog to keep yourself busy. Happy New year's beautiful!

[@ac-ry1ml]

So cool you do a lot of your own stuff. How many days do you usually stay in for? Btw my blood was just so low and I had to get it up again and I feel a bit better already, stil not complete but I feel you girl. All the stuff we’re suffering through plus anemia, makes energy so low. Keep going love you

[@phoebegeorgina8254]

Rest in peace x

[@BigLug716]

Wow . After watching this video , it makes me realize how much some of us complain. You have such streanth and will.

[@sierra1414]

I’m literally so proud how far u have become. Idk if I could be this strong, but seeing you still til this day getting the days go by faster, and getting better everyday is a blessing and a gift from god❤️🙏🏾 idk if there’s a cure for it or treatment that will get better to eat solid foods but keep up the work sweethearts ❤️🎁

[@fluffideer1066]

you are such an inspiration 🧡 also aa i love your shirt here!

[@reflexion1]

You’re so calm. I have gone through health stuff the last four months and I still freak out when I get IVIG. Tips?!?

[@breannarg]

I can’t put my pain patch low because I use a heating pad, I tend to keep it on my chests. And that helps a lot with it staying! Depending on what patch and which company that made it 🙌🏻

[@lozano7811]

You remind me of the movie 5 feet apart and ita so cute.

[@5p674]

It's hard to believe that your body has to go through so much because you look so healthy! And beautiful.

[@ruuchiruu553]

I'm blood type A+ too!! Poor baby! I offer you prayers. I wish you the best girly. Thank you for sharing. It's very informative.

[@lilybotts1579]

When you drain can you feel it internally?

[@amyleefisher52]

Lily Botts kind of like you can feel a suction feeling and then relief, like my nausea is better and also the pressure xx

[@lilybotts1579]

@@amyleefisher52 in USA love you 😍😍😍 Hoping you have a healthy & happy New year

[@made_to_melt]

I cant imagine what you go through. I have very mild gastroparesis and when it is being a bitch, my life feels like hell. God Bless you

[@BriannahHoward]

She will be forever remembered ❤️

[@JustMe-rn5xm]

You are so brave!!! Like seriously I respect the way you deal all this shit so much after watching just a couple of videos

[@ellamarie4221]

OML I LOVE HER SHIRT!!!!!

[@ellamarie4221]

Also I have to take the Zofran that goes under my tongue and dissolves

[@vilmaroldan2696]

Today I learned something I couldn’t understand when my brother had to do that thx for the info I’ve been inspired

[@chynaovercash2304]

I know I’m on an older video but my cousin had the same button feeding tube and we would use a baby diaper/ nappie for his gastric drainage. Now I know you wouldn’t want to walk around with that in public but maybe as you sleep or while your home it could help with nausea

[@aesthetic_life6587]

You are amazing. Tom is amazing. The things he does to take care of his sweetie are amazing. Thank you for sharing your life. I feel sorry for myself at times because i have multiple autoimmune diseases but compared to your difficulties,i am blessed. You are inspirational.

[@mariakalocaova2959]

girl, i don’t know what to say! I admire you a lot!!!! You are amazing! get well soon and keep uploading new videos for us who moaning about everything that is not even important. Get well soon and never give up. I an sending you a big big hug 👍.

[@rachelslover6280]

I love your nails!! You're such a strong woman and you inspire me. Thank you

[@Trekkifulshay]

For my daughter when I vent from her G, I use an open syringe because she has so much air and the stomach contents bubbles up and I throw it away. She learned to burp recently which is amazing with how much air we vent from her tummy every day.

[@finaafrina2251]

I'm happy when you happy..wow so strong♡

[@monicawatkins2874]

I really appreciate how positive you are in your videos . you're very inspiring . thank you for sharing about your life . hope you had a good new years .

[@katielunsford]

I’ve had to do units of blood and the iron infusions which it’s called ferritin. Love your Hogwarts t shirt. I had a jg tube for about five years, but I don’t have it anymore. Now, with my scars, it looks like I have multiple belly buttons. Your explanation on draining was perfect. I have my vomit bags literally stashed everywhere- every room in my house (of course I’m with my parents), every car, friends cars, every purse, etc. I kinda wish I could still vent or drain when I get nauseated. I will have to tell you that struggling with my stomach problems and having my tube feeds only which I struggled to ever pump all I needed. I was and am very nutrient deficient that I continue to work on- especially my iron and red blood cells.

[@hishamhaffi3552]

U.r Amazing strong girl dear🥰🥰🤩experianced this for 4 years...god bless u always

[@digitalcassette5]

I just joined your channel and you are so good at explaining everything and so strong for going thru what u do. Wishing you a great happy new year !

[@didaniki]

I subscribed exactly today, I feel happy to see u being so strong and happy in your videos...Lots of love from Brazil 😍. You are so beautiful. I started watching your vídeos last week and I can feel you positivity

[@lexifowee1369]

Are they not able to hook your tube up to suction to have it drain constantly so you don’t have to manually do it?

[@amyleefisher52]

Lexi Fowee they could do yes but it’s bad to constantly drain because your getting rid of vital fluids it can cause dehydration and electrolyte Inbalamce so you have to be careful xx

[@englishrose1122]

Hi Amy, when did you get your diagnosis? I’ve looked back in your previous videos but if you could give me a clue where to start I’d love to hear your story about this condition which looks awful for you. I admire your enthusiasm for life despite all this lot. Xxxx

[@suzieplaysss6593]

“My little button” lol love that

[@julierigby3653]

Praying for you to get better

[@hamiltrashhamgelica4013]

Bro. I have allergie induced athsma, (i dont rlly know much about it because im 12 and i dont get sick that often) and I've gone to the hospital a few times for a low breathing level and VERY minor pneumonia. The longest I've stayed in the hospital is 3 days and had a whole mental breakdown. I dont get how you (and many others) do it. Real respect for all the sick people out there.👏👏👏

[@Sorryimlate_233]

You would be an amazing nurse! Definitely persue your dreams of being a phlebotomist. Youd be so great!

[@marmarmanuel198]

I take a similar anti nausea dissolvable tablet for my vertigo it works wonders once u get past the chalky feel and weird taste it leaves!

[@portomobile5923]

Hi.. i just came randomly across your videos and.... you are just an amazing woman. God bless you😌

[@AngelOfTheNorth007]

Does draining/venting hurt? How many times a day do you have to do that? I suffer from lots of bloating too. Since I've had my gallbladder removed I'm finding there is loads of foods I can't eat. I can't have any fat in my diet. I can only have decafe tea and coffee.

[@Boring_Life444]

M BAMS doctor ...you r brave girl.u handle situations very gracefully..

[@Nicole-lh5hr]

Oh please... Rolls. Girl you are beautiful!

[@sweetpotatobabie9647]

I know this kinda random but seeing you wearing that hogwarts shirt reminded me of the last time I was in the hospital and I wouldn’t take my hogwarts shirt off lol

[@margaretmayberry7766]

You might as well be put on the pay roll lol they don't really need the nurses with you . My goodness I thought I had alot going on with LATE STAGE AIDS , it's nothing compared to your routine . But alot of it is familiar God bless you my dear one

[@lc3069]

I hope you're getting all the love and support you need x

[@margaretmayberry7766]

@@lc3069 thank you

[@Mandy-do3wg]

I'm sorry to hear that. I have Hep C myself and its definitely not easy but nothing compared to this woman. I'm curious to know what you go through with last stage AIDS though if you feel like sharing.

[@margaretmayberry7766]

@@Mandy-do3wg well I was diagnosed in 1989 and at that time I was on drugs pretty heavy. I used for about 20 some years I've been clean for 30 yrs but I put my body through alot, so I'm pretty sick now . I too have hep c . Most of my organs are barely hanging on I have cold real bad and my kidneys are shot so I'm pretty ill

[@Mandy-do3wg]

@@margaretmayberry7766 aww I'm so sorry to hear that. Im also a recovering addict so I understand. I hope you're able to recover to a point you're comfortable.

[@Rchelsee59]

I’m so glad I subscribed when your video randomly showed up in my suggested videos. Love you lots! ❤️❤️

[@chiara.buona6138]

You are such a fantastic girl! Love your videos! I am a nurse and i understand what means to live with chronic illness! Kisses from italy😘😘😘

[@justbeingnavaiah9639]

You inspire me everyday. Thanks to you I watch you almost everyday while I’m in the hospital which I’m in now. I totally for got I have TPN and a G-tube just like you and that is why you are my big inspiration. ❤️❤️

[@eduardopadilla5505]

We are warriors Amy keep doing the best for you!

[@m.o.n.ithebestmoni9467]

hope you feel better

[@jessicawinners2087]

When you drain can you feel your stomach contents being sucked out? Very curious. I'm a new nurse and I always wonder if patients with g tubes can feel things like when he check for residual

[@igot2picklesheyheyhey566]

I'm anemic as well from digestive issues, the medication I take doesn't allow me to absorb nutrients like I should. I get regular fareheme infusions.

[@sophiak2179]

I understood the stack of puke bags 😂 I just got surgery and had a bunch near me I ain’t something bad, and have puked a couple of times, my stomach gets as hard as a rock. I break into a cold sweat. And I start to puke

[@debraann9512]

OMGoodness I have had blood given for low hemoglobin. I still have low hemoglobin and the don't know why it's low.🌹🌹🌹

[@atomictartar]

This made me remember of how one year ago I would drain my pancreas drainage, hope you're doing well.

[@RainCheck797]

Im going in for for my GJ tube in 2 days! It will be nice to get reliefe for once.

[@커밋개구리-z4l]

I wish we could do a group chat to keep ourselves positive about our illness and just meet

[@Chanhee]

커밋개구리 POOR 커밋 IN UR PFP D:

[@thingsthatneverwere]

I enjoyed this video, it helped me understand what you are going through. plus you rock that Hogwarts t-shirt :)

[@harliewintermyer9345]

My younger sister has the same button, she’s had it since birth so almost 15 years

[@paytenvollberg5852]

When I was little I kinda had what u have I had a feeding tube I had to get blood transfusion not to long ago I had liver transplant when I was 9

[@felianasafitri9814]

haiii aku dari Indonesia aku suka semangat mu dan kebahagian mu dalam keaadaan apapun, semoga tuhan selalu memberi mu kesembuhan dari hari ke hari..

[@beckyrules887]

Here in the US when you’re in a hospital, usually the nurses take over and do most of the care-providing the TPN, the meds, administering them, etc. Is this just different where you live, or do you specifically ask to do and set up everything yourself because it’s so normal to you? I’ll graduate with my RN in May so I’m interested in all of this you educate! Happy new year 😊

[@amyleefisher52]

Rebecca Westphal for me personally I like to do all my meds and TPN etc just because it’s my normal and I do it at home and I want to keep my independence etc when I’m in hospital. Hope that makes sense ❤️

[@beckyrules887]

Amy Lee Fisher thanks for the reply! That’s what I assumed. It’s great they let you keep your independence and do it all your way!

[@miisha_24]

Hope you are during alright. You're such a cute and positive person! c: ♥

[@breannafairris4195]

Girl how can you do anything with a hand with an iv in it? When I get an iv, my hand is so sore I can barely move if

[@macheteprincess2245]

Same! I got hospitalized for anemia and they didnt do anything besides iv fluids, it was hell moving my hand bc the tube was so heavy and im quite weak lol

[@macheteprincess2245]

Eventually im gonna need a tube like she has. If it helps im ready now

[@emmamitchell4631]

Happy new year I’m not quite sure how easy recovery is what’s going on but sending my best wishes get well soon❤️

[@candicesun3544]

Thank u so much for your videos Amy!

[@LDubb26ky]

Lots of love to you!

[@lauraconnolly4253]

U inspire me so much 🥰🥰🥰