For more information on Arteriovenous Malformation (AVM), please visit, cle.clinic/2pb... Cleveland Clinic Neurosurgeon, Mark Bain, MD, describes arteriovenous malformation (AVM) symptoms and treatment options.
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@Pureshepherds Жыл бұрын
My four week old daughter is survivor of a brain AVM. Making me the proudest father in the world and especially thankful for Great Ormond Street Hospital.
@Xxbbyblue Жыл бұрын
Bless her soul :)
@hunter654438 ай бұрын
This brings me to tears that your daughter had to go through that at that age. Considering i thought i was young when i was 20 going through it. I am so happy for you and your family, have a wonderful holiday❤
@lukescrimshaw76785 ай бұрын
@@hunter65443how did you get on if don’t mind me asking.. as I currently about to have gamma knife
@mydixiewrecked3155 ай бұрын
I sit here present day an A.V.M. survivor.-two days after Christmas in 2004, I heard the vessel in my skull rupture.-it sounded identical to when the filament in a light bulb pops.-It was followed by a loud flat line tone ringing sensation in my ears. Dr.James Holssapple neurosurgeon extroidinaire did my surgery for me. He presently works out of Baltimore, respectively. Thank You University Hospital in Syracuse,NY for facilitating the surgery & residency of the doctor.
@sazzerz12345 ай бұрын
Sorry what? Was it bad? I have 2 avm in My skull and everyone's been telling me to chill? I'm.25 please respond. I'm.glad your daughter is okay
@willemh33194 жыл бұрын
i was too late for an intervention the aneurism exploded 12 years ago at51 had a very good neuro surgery i am still here and living to the max and take live full💪💪👍
@eddz3572 жыл бұрын
So happy for you
@joshmotts2486 Жыл бұрын
Thanks for sharing. A loved one had emergency and I'm here to learn about it
@__uni__ver__se__4 ай бұрын
8 I'm from india and suffering from avm ... please suggest me best treatment for avm.....is ethnol embolization worked??
@Luna-wh6tq3 ай бұрын
This is my fear. I’m sorry you experienced that but, I am happy that you made it out and are still thriving in life .
@miguelfranco77963 жыл бұрын
God bless everyone in these comments. I had one just a year ago and now I am strong and healthier than I was before. The universe kept us for a reason.
@na9oooooooor2 жыл бұрын
Are you feeling good so far?
@oscarcarillo15732 жыл бұрын
Did you get surgery
@MESSier11884 жыл бұрын
One of the nicest girls I’ve ever met passed away from this when it developed into an aneurism. Only 27. Absolutely heartbroken.
@trollkingz81184 ай бұрын
I had exactly that, surgery went well and they succeeded to glue it closed. I still have AVM but its not gonna be treated.
@TheMisstoya203 жыл бұрын
At 39 mine ruptured while getting dressed for work. I knew something was wrong but being me, I thought it was just a super bad headache. Then the nausea and back and neck pain from the bleed. Went to the ER, and stayed hospitalized for a week. Had Gamma Knife 12/5/19, so far so good. First MRI to check it is in 2 months. I'm thankful to God I'm still here! I have felt that my memory isn't as it was but no other problems. Praying for them to say I'm healed sooner than they expect!!
@SilientShadow3 жыл бұрын
Did the doctors say that you'd likely have any change to your lifespan as a result of the hemorrhage?
@rs-cw7bd Жыл бұрын
Thanks for sharing. Hope you are doing much better now!
@cosmo11cosmo219 ай бұрын
I also feel like my memory isn't what it was
@soheilaabbaszadeh72866 ай бұрын
This is exactly my experience with AVM
@lukescrimshaw76785 ай бұрын
@@soheilaabbaszadeh7286I was always suffered with headaches just thought it was down to lack off water as always done sports then in 2019 I started having bad anxiety and now n then hallucinations would come now then and then In January 2022 I had a seizure then found out I had a large AVM , which will be treaded with gamma knife
@ronglass59683 жыл бұрын
I had a right temporal AVM burst when I was 17. The splitting pain was immediate and I was vomiting from exposure to bright light. I had ~12hrs neurosurgery. Took me a few months to recover and I developed nocturnal epilepsy about 4 years later that’s reasonably well controlled. I work in a senior position in IT and am a bit of a workaholic, so balance is needed. You’d think at age 59 I’d have learned.🙂
@M64v2 жыл бұрын
Please contact with me my younger sister facing same problems in Pakistan
@dgallardo122119812 жыл бұрын
Same thing happened to be but I was 11 when it happened. 40 now
@willemh3319 Жыл бұрын
i did not feel anything just a sharp popping sound and my arm falling still phoned 911
@willemh3319 Жыл бұрын
@@M64v go to aga khan hospital karachi
@mydixiewrecked3155 ай бұрын
bless you, my brother...
@louisbollard206011 ай бұрын
I had this done 3 years ago today in the magnificent Walton hospital, Liverpool. God saved my life and since then, I’ve completed an MBA, am back to playing football, cycling and running, and I run a successful business. Don’t despair, be grateful for every day and pray for good health.
@lukescrimshaw76785 ай бұрын
Mind me asking what you had done , I’m having gamma knife currently
@mattsmith62684 жыл бұрын
Had one of these myself on 2008. Very lucky to survive. Gamma knife surgery was my treatment.
@psingh47203 жыл бұрын
I had the same treatment as you but I had a bleed in the brain how do you feel after having this treatment?
@mattsmith62683 жыл бұрын
@@psingh4720 long time ago so memories of it are hazy. It was a pain free procedure to be honest. I had a steel helmet screwed to my skull with bolts but my head was numbed at the points so didn't feel it. I guess I felt relieved after it, but I k ow that's not the answer you want. I know a lot of tablets were involved to help with swelling and headaches after. The treatment worked as planned and I'm thankful for that. Peace ✌️
@psingh47203 жыл бұрын
@@mattsmith6268 thanks for sharing your story buddy✌
@miguelfranco77963 жыл бұрын
We are here for a reason brother.
@psingh47203 жыл бұрын
@@miguelfranco7796 amen!
@andreatxh_4 жыл бұрын
i have avm in 2014, and that year was one of the most terrifying and destructive years i've ever had
@potatoishistory42604 жыл бұрын
Then how did it go away? Surgery??
@lukescrimshaw76785 ай бұрын
What happened with it?
@aileencasey20832 жыл бұрын
I was born with an AVM in my left frontal lobe, which Iearned about when I had a seizure when I was 7. I had it operated on when I was 8, and again when I was 12. I have no side effects other than a small loss of vision at the top-right corner. Now as a 24 yr old, I really like the thought of becoming a Neurosurgeon
@MOLEGGZ74 Жыл бұрын
glad to hear your doing great,just found out my son has this at 16yr. what made you have to go back at 12yr? How have you been doing?
@aileencasey2083 Жыл бұрын
@@MOLEGGZ74 I went back for a check-up Angiogram about that age, and a small remaining piece of the AVM was found
@kieanshlider Жыл бұрын
Was there any worries about operating on it twice
@aileencasey2083 Жыл бұрын
@@kieanshlider Not that I can remember. I did lose a bit of peripheral vision though
@SonaaraBendera Жыл бұрын
do you have hemianopsia? where the right half side of your vision is gone? I have that after my AVM rupture and i kind of had the same situation as you just at age 9. what other side effects did you have if you don’t mind me asking? for example i have short/long term memory loss not as severe
@briannorth19924 жыл бұрын
I recently had AVM surgery thankful for the surgeons that saved my life.. still trying to grasp everything.
@sohailqureshi58464 жыл бұрын
From which hospital u hav consulted to?
@sohailqureshi58464 жыл бұрын
And how much u paid totally for getting well?
@briannorth19924 жыл бұрын
Sohail Qureshi Free treatment in Canada.
@juanruiz88364 жыл бұрын
7 months now nd it still scares tf outta me
@briannorth19924 жыл бұрын
1i1 Ruiz it’s been a month
@florhmx3 жыл бұрын
My mother was around 54 in 1993 when she had intracranial bleeding and was rushed to the hospital. She had complained of headaches and the local clinic told her it was migraines, prescribed phenobarbital and sent her home. She ended up fainting and having a seizure. She had that surgery that is shown in this video. My mother was hospitalized for two months and upon discharge had no means to receive physical or speech therapy, but by the grace of God she recovered! She had some instances where she would have short term memory loss, for example, she would take a bus to go to look for a job and end up lost not knowing where she was heading to or how to get back home. She says she would cry of desperation. She ended up fully recovered, but then in 2007 she had another intracranial bleeding, but this one the doctors said was not one that doctors could or would do surgery on. She was in the hospital for a couple of days and then was discharged with no major problems and went back to work. She was 66 at the time. Then recently in July of 2019, nine months after she had retired at the age of 78, she had another intracranial bleeding and was hospitalized for eleven days, also no surgery to fix the problem, just hospitalized for observation. She was in pain, her head hurt, she was alert but not coherent. She could not walk. She was in a nursing home for therapy for about 21 days -they wanted to keep her so they kept giving her laxatives so she could soil herself and they could say she was unable to be in independent living, they were scammers, Ebony Lake Nursing Home in Brownsville Texas - anyway, my mom is now completely independent, she can care for herself, cook, clean, she lives on her own, of course I check on her everyday and I am in charge of taking her grocery shopping and to the doctor's office and getting her medication, but only bc she never learned how to drive. I think that my mother could be a great case study for AVM research. She is now 79 years old, she can walk, speak, and has better memory than me sometimes! The only thing that was affected is her hearing, but she can hear, just not put the words together to make sense. I was 13 when she had her first intracranial bleeding due to AVM and I am 41 now and just now learning exactly how and why this happened to her. She often asks me why this happened to her and now thanks to your video I can show her why. Very good video.
@samuelmeghnathan15942 жыл бұрын
Hi sir my mom is now 47 and she recently got bleed this is her second bleed first was in 2017,have the problem of avm can i get your number can we talk sir..
@samuelmeghnathan15942 жыл бұрын
Hello sir your mother still have avm in her head..
@M64v2 жыл бұрын
Hi, please contact with me my younger sister facing same problems in Pakistan. Please
@dedehe7582 Жыл бұрын
God bless you and your mom!!!
@nelsonforero9288 Жыл бұрын
God bless your mother I'm glad she's doing OK I sufferer a brain Aneurysm this February had 2 surgeries thank God I'm doing better I'm 49
@chlo_childers299 ай бұрын
The kindest girl I know passed away from this 7 months ago. She was one of my friends and she was only 13 when she passed away.
@skp4nda549 Жыл бұрын
I had an avm and my gf got home just in time to find me having a seizure in the bed and got me to the hospital just in time to diagnose and treat the rupture with surgery. Am still recovering and trying my best to stay positive everyday
@skp4nda549 Жыл бұрын
24 during fthe time of stroke. My symptoms were loss of hand eyes coordination and weakness on one side of the body
@shanebembridge89156 ай бұрын
That's happened to me twice now only 2 weeks ago was my second and went to my local hospital with a headache and got told to go home I was over tired lol hour and half later had a seizure
@lukescrimshaw76785 ай бұрын
@@shanebembridge8915I started to have seizures at the age off 33 , found out due to 6cm avm .. how you doing and what’s your next step with yours if don’t mind me asking?
@damafabela5 жыл бұрын
Words cannot express the sorry you have experienced. When my son at 2 started experiencing a severe headache I immediately took him to the E.R. My experience as a RN was probably the only reason I took action quickly. Original symptom is severe headache. My son is 15 now. Surgeon said if the bleed would have happened as an adult he may not have survived.
@catfevermolly4 жыл бұрын
I was only 13 years when I had a stroke. Now I'm 27 years.
@PeanutButter00043 жыл бұрын
I was 4 when I had a seizure. I am now 16 and luckily the doctors prevented it from rupturing.
@cynthiasandoval52083 жыл бұрын
My son is 1 month old and has it
@willemh33193 ай бұрын
lived with it till i was 51 then it burst with a loud bang never headache now hemiplegic partly vision loss and my left side but still myself livefull out with sarcasm in my chair still being THE father and ❤️husband to my sweet wife 🙏🙏❤️❤️
@Oregon-p4w Жыл бұрын
My AVM presented at age 40. In my youth I was always known as the "super crazy girl with the greatest fun ideas"...and I followed through with these ideas with no hesitation or fear. My AVM was pressured against (what the Doc's said) the "impulse control" part of the brain. It was huge... 7cm, a bomb long overdue. Looking back I ignored so many symptoms: nausea after extreme physical exertion and also, what I can only best explain as, "holding a globe of magnetic force energy" in my hands when I was quiet and serene. One day I felt nauseous in the company of my mom. She said I was green. She asked me what the cat's name was (it was there with us) - I said "this is a cat?" Off to the hospital and then kidnapped to Neurosurgery group, etc. and so forth. After surgery It took years (4-5 I guess) to fully recover. I explain my progressive recovery like - a train hit my head, then a MAC truck, then a thug with a baseball bat , and on and on. I had trouble completing sentences, trouble with remembering. But I'm 15 years post surgery and now I'm that not-so-crazy gal with the best ideas. I didn't die and I am so grateful for that everyday.
@lukescrimshaw76785 ай бұрын
What treatment was it you had if don’t mind me asking.. glad your doing well
@marksmith-po7wl4 жыл бұрын
Ive read about alot of different diseases and genetic disorders but this here? This is the craziest thing ive ever seen.. the way your arteries and veins just tangle up the way that they do.. its scary.
@lukescrimshaw76785 ай бұрын
Horrible going to sleep with it ticking in your brain and now knowing what it is
@ChristoWhat4 жыл бұрын
Mine ruptured may 7th 2020 while in the shower. Was my first ever headache and felt like my skull was splitting in half. Passed out and roommates found me. Brought into ER where they ran every year under the sun before looking at my head. Where I had an emergency brain surgery and they got the hemorrhage. Left with left side weakness, I spent 37 days in the hospital and rehab and went back several weeks later to have the AVM removed. That surgery did NOT go as well. It's supposed to be a4 hour surgery. Turned into 4 angiograms and basically 3 seperate surgeries. Totaling 17 hours under anesthesia. It's been a rough 8 weeks. Mine was 8x6mm
@qasimalishakir3 жыл бұрын
This happened to while in the shower too, I had surgery 4 weeks ago and have right arm weakness and speech difficulty... how r u doing now, plz tell me i want to know... i hope you are living ur life as normal and it was before this happened to you...
@eddz3572 жыл бұрын
My birthday is on the 7th and I have an avm and I’m so scared and keep crying everyday.
@lukescrimshaw76785 ай бұрын
@@qasimalishakirhope you guys are doing well.. I found out last year I have a 6cm front right temple lope AVM and having gamma knife .. I found out due to a sezuire last year
@benedictfishy12184 жыл бұрын
My dad suffered from an AVM when he was in his late 20s, I'm not sure the exact age, but he had to undergo 2 surgeries because after the first one, a blood vessel ruptured and he bled into his brain. He's alive at 60, but suffers from poor balance on uneasy surfaces and feeling nauseous in the morning.
@sohailqureshi58464 жыл бұрын
From which hospital, Location?
@BoyligoTV5 ай бұрын
At 16 yrs old I was diagnosed of having large pronto-parietal AVM, It was discovered since i had a series of convulsions before. Last 2018 I had started my embolization procedure until last 2020 during my supposedly last procedure my doctor told me that my AVM ruptured and I had to proceed to emergency craniotomy to stop the bleeding. Thankfully I didn't die and fast forward to this day I'm still alive though I'm hemiplegic.
@dirtywater21713 жыл бұрын
I suffered a bleed on the brain from on AVM in 2015, when I was 17. I had a five year follow-up MRI this January and unfortunately, another AVM has formed. Lucky me. Thankfully it's been caught before it could be the same amount of seriousness as last time, but having to have surgery to stop this again is honestly just a punch to my gut.
@fern43033 жыл бұрын
I had mine at 16 and I have to get mri every 5 months for the next 5 years
@Butterflyshar73 жыл бұрын
Geee that's not fun 🤕🤯 how are you doing now? I am so so worry I got mine mri results I am 34 with a lot a lot of sintoms How are you doing after those years? Is it back? Or you completely heal?
@the39babytooke712 жыл бұрын
U had surgery?
@japan-exploring2 жыл бұрын
@@Butterflyshar7 my brother is 31 and he got 1st AVM attack... Kindly tell me do u have done surgery or not
@mydixiewrecked3155 ай бұрын
Please remember friend,-what doesn't kill us, only makes us stronger-after i sustained mine i hopped off of the operating room table and yelled out at the top of my lungs "Hey Life,You Hit Like A Little Girl."
@chloejones19034 жыл бұрын
I was 16 when I had an AVM. Im 24 now, it still gives me nightmares.
@MyTelevision80604 жыл бұрын
Me too. I was 16, in 1980, when I had my AVM craniotomy. You should join this group: facebook.com/groups/aneurysmavm/
@catfevermolly4 жыл бұрын
I was 13 year old when I had an stroke. I’m 27 year now. I still can’t open my right hand.
@chloejones19034 жыл бұрын
@@catfevermolly i have a drop in the leftside of my face still from the AVM
@Lovindan14 жыл бұрын
It’s so scary to think there’s others out there that to this day couldn’t recover fully I was 15 when I had an avm , was paralyzed from my left side down from the surgery for like a month until thank Jesus I can walk and use both my hands it’s truly a nightmare! I’m 17 atm
@chloejones19034 жыл бұрын
@@Lovindan1 i deaf in my left ear and a small droop in my face. Otherwise im a healthy 24 yr old
@ashacheema38665 жыл бұрын
My son died from this in April this year. He had a severe bleed, then fell unconscious. He died pretty quickly. He just turned 19
@mrazizul1825 жыл бұрын
im sorry for your lost.my friend's daughter had the same problem.just passed away today..she is just 6y old😢
@ashacheema38665 жыл бұрын
Mr Azizul Thank you. So sorry for them. I know the pain they are in.
@fatimainassabrina71365 жыл бұрын
Hope they rest in peace now and people that she or he left may God give them the peace, my most condolences.. :( My brother is also still 6 yo, he had a severe headache last week. They did a resection this Friday.
@frontspring15 жыл бұрын
I'm sorry🚶♂️💩💩💩💩
@catfevermolly4 жыл бұрын
I'm so sorry to here that. I too almost died because of my bleed. I'm stay in the hospital for 110 days.
@Gomez-gz4xp4 ай бұрын
My first AVM ruptured at 11 years old on new years 2011. I almost didn't make it since I was minutes from being declared deceased when drs were able to get my heart beating and the pressure stabilized. I had another AVM removal in 2019. It's not a medical problem to take lightly, it can turn fatal if not treated in time.
@fjaril57vlinder702 жыл бұрын
Waiting for an operation to remove an avm which was found last August in my head after a bleeding. Still recovering, feeling dizzy and having problems with balance. I hope I will feel a lot better after the operation.
@mydixiewrecked3155 ай бұрын
stay strong, my friend. you've got this. peace,love and light...sincerily: an AVM survivor. '2004🌅
@catfevermolly5 жыл бұрын
I had a stroke when I was only 13 years old, now I am 27 year old
@raymcdonalds52094 жыл бұрын
Did you completely recover or are you disabled now?
@catfevermolly4 жыл бұрын
@@raymcdonalds5209I'm disabled. I still can't open my right hand and my right leg is little floppy. I still driving and going to school.
@supra92184 жыл бұрын
Thank god that you survived
@catfevermolly4 жыл бұрын
@@supra9218 Thank you.
@Water70004 жыл бұрын
I had the stroke when I was 12 and now it affects my left side. I can walk now but my left hand not much of useful anymore. And the surgery affects my peripheral vision so I was told now to drive a vehicle.
@9999titanium3 жыл бұрын
I've had needle headaches of and on for a few years in the right side of my head. Recently felt like blacking out at work and developed double vision then got a headache a few days after the double vision that felt like my skull was splitting in two. Went to the er found out I have a 2.5 cm AVM in the right thalamus. They said the best treatment is gamma knife. I thank Jesus no major damage happened.
@lukescrimshaw76785 ай бұрын
How the gamma knife treatment go?
@sksmm14 жыл бұрын
Had my 1st avm at 18 1994.25 yrs later blood leaked from the 1st surgery Going through it all over again☹️ god still don’t want me yet.
@briannorth19924 жыл бұрын
sandy mason Wow!
@MeganZopf3 жыл бұрын
My father was born with a few of these AVM's. For years, he was diagnosed with epilepsy and was given Dilantin to help control the seizures. Shortly after he retired around 1996, he had a severe seizure which put him in the hospital. At that time, modern technology being available, the doctors were able to diagnose him with the correct diagnosis which was a seizure disorder that was the result from the AVM's. I took him to Boston where I met his Dr there and we were told the AVM's were way to big to surgically remove and my father was told the only thing they could do was either go up the groin and use the glue or metal coils. I believe he had the coils and unfortunately within the year he ended up having a massive stroke which he never recovered from. He died shortly after. I am glad there is more help now and ways to properly diagnose someone.
@Alan___C3 жыл бұрын
I am so sorry for your loss. My brother just had his second surgery for his avm. I hope we find a cure for this one day.
@lukescrimshaw76785 ай бұрын
@@Alan___Cwhat surgery did he have if don’t mind me asking? I’m having gamma knife
@rebeccam17133 жыл бұрын
I had this at age 12 - came home from school with a terrible headache and couldn't move my neck without a lot of pain. The next thing I remember I had woken up in the hospital missing half my vision, the right side of my body not fully moving, and having to start math over from 1 plus 1. I have 6 significant disabilities now but I did finish college.
@johnklus Жыл бұрын
AVM survivor here as well. I accidentally discovered my AVM at 24 and did gamma knife radiation for it. It ended up obliterating my grade 4 AVM. It's crazy how rare this condition is. Most of the views and comments on this video are people who discovered their AVM, it's crazy.
@priyankasoni1538 Жыл бұрын
hello ..have u any side effects of gama knife?
@johnklus Жыл бұрын
@@priyankasoni1538 hello, luckily I did not have side effects from gamma knife. I was informed on the potential side effects. I had a higher risk of side effects. I would gather a good amount of opinions from doctors before making a decision.
@lukescrimshaw76785 ай бұрын
How big was your AVM? I’ve just had gamma knife , told having it again in 6months .. how long did it take to shrink yiurs?
@johnklus5 ай бұрын
@@lukescrimshaw7678 Mine was about 3.6 centimeters. Took 3 years to shrink. Please do your due diligence in picking a neurosurgeon. Get multiple opinions until you feel comfortable. Take care.
@lukescrimshaw76785 ай бұрын
@@johnkluscrazy! How did you come across yours? I had a seizure at 33. Yeah I’ve seen 4 neurosurgeons across uk now in London .. mines 6cm so two stages off gamm knife! Hope you have the all clear now and now side effects and live a normal life mate
@asias.93302 ай бұрын
My younger sister died on April 15, 2024 during surgery. She had brain avm. She was only 39 years old. I am heartbroken. 💔😭
@Laurie-ginale2 ай бұрын
😢😢😢 I m so sorry for U I have this disease 😢😢😢 I'm affraid because it getting worse day after day
@asias.93302 ай бұрын
@@Laurie-ginale I hope everything will be fine, take care, good health. I have an aneurysm, I'm worried..
@Laurie-ginale2 ай бұрын
@@asias.9330 Be strong girl I can Feel u I have 2 aneurisms plus AVM I enjoy life and embrace my disease ! Love upon you 😍
@derekyoung8312Ай бұрын
Sorry for your loss
@kadewhitts0594 жыл бұрын
I had an avm which exploded 4 months ago and I’ve already made a full recovery
@onehandjede4 жыл бұрын
I just recently had an avm rupture last month. I am recovering well and i have my next surgery to remove it next month
@onehandjede4 жыл бұрын
Where was it located?
@briannorth19924 жыл бұрын
Mine ruptured July 12 2020, went for surgery July 29. Now I am recovering.. happy you’re doing well.
@charlesmolina6524 жыл бұрын
My wife is suffering from this condition right now, she's is the hospital. The thing is, she's pregnant and can't undergo the procedure. The doctor said it would best if she would undergo coiling rather having a surgery. The price for coiling an AVM is too expensive. It's too hard for us .. we don't have enough money for it. Besides, I am thinking about the health of our child too... It's really hard
@sohailqureshi58464 жыл бұрын
@@charlesmolina652 What price they r saying?
@SilientShadow3 жыл бұрын
I was one month away from being done with a 6 year enlistment in the Army. I have no memory of this incident, but one weekend I started hemorrhaging from an AVM in my brain. It was around Monday when one of my friends realized something must be wrong because he hadn't heard from me since Friday night (we usually play pc games online on the weekends). It was Tuesday when my parents called for a police health and wellness check in the city where I was living, and they found me lying on the floor of the room I was renting. My parents were told multiple times that it was likely that I would die. Those two or three weeks I have no memory of. When I actually began to recover and was able to check out of the hospital, I had kind of lost all of my memory. I vaguely knew who my parents were, but didn't really remember them and was under some kind of hazy impression that they were adopting me. In a picture that my parents took of me on the first night out of the hospital, I'm staring back at the camera like I'm surrounded by strangers. I still have some lingering side effects, like disorientation on my right side and poor short-term memory. Hopefully I'll be able to get military medical disability and go back to my regular civilian life soon.
@lukescrimshaw76785 ай бұрын
Hope your well? Love to hear more as just found out I have an AVM
@SilientShadow5 ай бұрын
@@lukescrimshaw7678 Where is it? How'd you find out?
@lukescrimshaw76785 ай бұрын
@@SilientShadowmine in the right front temple lope.. I found it due to having a seizure last year at work, signs were there long before that happen! I’ve had one gamma knife and waiting on it again as had to be staged! Lucky not bleed like yours! So did you have open brain surgery for the bleed and then they removed the AVM totally?
@SilientShadow5 ай бұрын
@@lukescrimshaw7678 Mine is a Grade 4, on my left side. I've had 3 rounds of Gamma Knife. It's been going on 2 years since my gamma got finished, had some seizures since due to the calcified area. Now I'm on keppra, which is handling it well. I haven't had an mri in a while, so I'm not sure what it's currently at, but they say it's gone down to a Grade 2 now. I'm supposed to have a consultation with a neurosurgeon, but I'm not sure if I like the idea of open surgery.
@SilientShadow5 ай бұрын
@@lukescrimshaw7678 Are you on keppra?
@astrofrk4 жыл бұрын
I had the gamma knife eight months ago. I guess it prevented a full rupture but it has left me epileptic with memory loss and hallucinations. I suppose it saved my life but with a trade-off.
@catfevermolly4 жыл бұрын
I had the gamma knife twice but didn't remove my AVM 100%.
@MyTelevision80604 жыл бұрын
facebook.com/groups/aneurysmavm/
@astrofrk4 жыл бұрын
@@catfevermolly I thought they did.
@catfevermolly4 жыл бұрын
John Sparks yes, I did go to gamma knife twice but the doctor didn’t lock my head and miss 3 area of my brain. Gamma knife remove about 90%. My dad told me. But I’m so grateful I’m alive. This is 2006 years when this happen. The doctor took 10 hours surgery and another 5 hours and finally no more bleed.
@catfevermolly4 жыл бұрын
Frederic Reinecke thank you for the link. I just join the brain support.
@AlperKARAOGLAN9 ай бұрын
very beneficial visual creative for public👌👍
@fern43033 жыл бұрын
Had mine done in Boston when I was 16 and everything has been ok sense.I’m 17 now
@lukescrimshaw76785 ай бұрын
Have what done if don’t mind me asking
@Achipiorachiarco6 ай бұрын
When you fall asleep first in sleepover:
@lukescrimshaw76785 ай бұрын
Always fell asleep 😅
@denaimullet8427 Жыл бұрын
My mom had just turned 50 near the end of 2006. It was almost Christmas. She went to work and came out of a meeting, laughing with another coworker. They said everything stopped. Her eyes glazed over and she dropped. There was no brain activity and we spent one night in the hospital keeping her stabilized because she wanted to be an organ donor. I miss her. She never got to meet my kids.
@tonyleach83613 жыл бұрын
I’ve experienced one and I actually am in the hospital at the time of commenting this for the avm in my brain
@lukescrimshaw76785 ай бұрын
How you doing now? And what treatment did you have?
@tonyleach83615 ай бұрын
@@lukescrimshaw7678 I’m doing good. I went for the cyber knife option for a variety of reasons and gotta say, I like that option more
@kitkat6952 жыл бұрын
Love u all , u make it look so simple
@sircsaira11 ай бұрын
my child died because of avm, undetected for 13 years, .. bleeding occurs, she has been for hours in the bathroom, we brought her to the hospital, a neurosurgery was needed, she passed away after two days at ACE Medical Center at Tacloban City, Phillippines. Half a million pesos or 10k US dollar was our hospital bill.
@princessdonina3 жыл бұрын
I undergo a surgery last 2017 and now I'm recovering they remove my scull to remove the AV malformation blood clot
@FishFlipProductions1 Жыл бұрын
Mine was completely an incidental find when they took an mri of my neck, checking out my swollen lymphnodes. I was told I had an 85% chance of is exploding at anytime. 4 months before my wedding. I was 27. So grateful it never exploded!
@priyankasoni1538 Жыл бұрын
hwa u now.... and hws they calculate risk of exploding.?
@FishFlipProductions1 Жыл бұрын
@@priyankasoni1538 I'm good now. No issues. He was gaging by the size and my age and the risk gets higher the older you get.
@lukescrimshaw76785 ай бұрын
What treatment did you have?
@FishFlipProductions15 ай бұрын
I'm good now. They surgically removed the whole thing and I believe put a stint in. I can't remember what equation he used to come up with 85%. I know it was based on my age and the size. I remember him saying the chances of exploding grows the older you get.
@esthersherin68522 жыл бұрын
Im 21 and diagnosed with right temporal AVM ... its really painful and i had a seizure... im referred to consult radiology.. hope things turn out well
@lukescrimshaw76785 ай бұрын
How you getting on?
@lukescrimshaw76785 ай бұрын
Sounds like mines the same …
@Tw1lightfalz3 жыл бұрын
When i was 10 I once had to have brain surgery because of a AVM I’m not sure if it was because of me being born 8 weeks early. Throughout my life that avm got closer and closer building up pressure and one day it bursted causing internal bleeding on the brain i had a stroke on half my body but it wasn’t normal I don’t think one half shakes uncontrollably and the other side is unable to feel temperature I had 1 half and half surgery 1 was to clamp the arteries feeding the clot and the second was to remove it i think the stroke happened after the 1st surgery. Nowadays i just finished both my therapies OT and PT and got off my meds im still delayed at doing some activities and still trying my best!! (I’m 12 now)
@pp-wo9zk3 жыл бұрын
Hey, I was 6 weeks early and I basically had the same experience! (although mine wasn’t diagnosed until it burst) I’m still recovering but I’m very happy you did! It gives me hope. I’m still doing PT, OT, and speech therapy, but thank you for sharing!
@lukescrimshaw76785 ай бұрын
Hope your doing well
@derekyoung8312Ай бұрын
Just recovering from surgery three weeks ago. Mine was on the cerebellum causing balance issues which was thought to be vertigo.
@lookingglass5813 Жыл бұрын
What's percentage complications after gamma treatment
@pouyajabbarisani3 жыл бұрын
Can you make a video about facial AVMs and their treatments and risks, please?
@fousiafousi36953 жыл бұрын
I was also a left temporal avm patient. I was being operated in 2018 at the age of 17
@aliyahviel3 жыл бұрын
hey i was also diagnosed with left temporal avm just last month and i'm only 19 years old. How do u feel now after ur surgery?
@dsrrellgriffith11614 жыл бұрын
I was an avid cyclist most of my life, about 7 years ago my feet were going numb a little. Then it was hard to lift my leg over my bike tube, so i went to doctor. He said it was arthritis, and that was it. It got worse, i saw another doctor and he said my gait was off, He ordered a MRI of my brain and spine, but Kaiser hospital made me wait for 1st MRI. I got my first MRI, now they gave me a neurologist who ordered another MRI with dye. Kaiser then made me wait again on list for MRI, i pleaded with the doctor to get it now. I was getting worse, so i called the MRI office to get me in now. The MRI office said if anybody cancelled they would call me, they never called. I ended up in emergency DYING, they finally gave me MRI. They put me in ambulance to Los Angeles Kaiser, cause Kaiser in San Diego could not operate immediately. Now i am crippled for life from the waist down, always pain standing and numbness from waist down. They ruined my life
@willfields29293 жыл бұрын
I hate to hear that, god bless you!
@Butterflyshar73 жыл бұрын
Oh my God so sorry to hear this,I almost did not make my MRI for th cost I paid,my boss offer me to pay what ever the insurance does not cover,My MRI came with AVM results so sad
@tonyleach83613 жыл бұрын
Man. I am glad I looked it up since I had one this previous month and a half and I wanted to know mor about it
@andrewchapman85753 жыл бұрын
Fun thing is AVMs can start again and form again after on is removed. It happened to me. I am missing about 1/4th of my brain from an AVM removal and now am going through things again with a new all be it smaller one that has formed.
@marao9305 жыл бұрын
Hello from Brazil
@havanadaurcy1321 Жыл бұрын
Can AVM's cause stroke? I just read a person who will for the sake of this question remain anonymous and he said a small hole was detected post stroke, is that AVM
@lukescrimshaw76785 ай бұрын
Yes
@MrYugiohCollecter2 жыл бұрын
Got a small avm they discovered from am MRI but doctors told me it's very small and nothing to be concerned of
@priyankasoni1538 Жыл бұрын
what is size of avm?
@lukescrimshaw76785 ай бұрын
How you discover it
@robertchen17802 жыл бұрын
Had this at 24 and stay in icu for 3 months bad headache vomit once a week and now I'm just in despair and active seizures
@lukescrimshaw76785 ай бұрын
What treatment did you have? Did yours bleed? I found mine due to a seizure and going to have gamma knife as deep and big
@mattdemo63874 жыл бұрын
I literally.... woke up from the dead after my avm and the doctors thought it was fucking crazy🤯 There was no more brain activity so they pulled the plug, and then I woke up like the actor from "Kickin It Old School" 😂 Then that chunk of brain got removed and didn't affect my intelligence in the lites. But I think it's all the bong hit and magic mushroom I took on a daily basis 😂👌
@haseebahmad9477 Жыл бұрын
Shame on u..
@kingsleyshowhorses28293 жыл бұрын
I had one in2018 at 35, due to other medical issues surgery wasn't an option and just had to wait and see if I would survive. I don't remember any of it but seemingly my mother didn't leave my side the whole month and then I just woke up oneday.
@drbashiranjam44332 жыл бұрын
Good information
@user-bf4js8yc4c Жыл бұрын
I have an AVM in my spinal cord... In Israel it is suggested to go to surgery by Professor Lawton.. What do you think?
@lukescrimshaw76785 ай бұрын
Does anyone know how long it takes for gamma knife to start shrinking the AVM?
@qaisarqureshi53948 ай бұрын
What does parietal lobe curvilinear hyperdense area 1.8-0.5 extend towards superior sagittal sinus means with vascular malformation?
@mridusmitadeka4669 Жыл бұрын
My son died in 2 years 8 months 7 days due to bleeding (AVM) in the brain.
@pp-wo9zk3 жыл бұрын
Hey, I had one on the 1st of April of this year (2021)! I’m still recovering obviously, but I’m either getting the gamma knife or just leaving it alone and hoping it goes away. I got out of the hospital in July and I’m doing physical, occupational, and speech/language therapy. It’s good to see that I’m not the only one! The place that was affected was the speech section of my brain, and I got rushed to the hospital in about an hour. (I was in a place where we have a lot of traffic at night, and we would’ve been about 30 minutes away from the hospital without traffic) I was in that hospital for about 3 months and then we moved to a very credible hospital up in DC (children’s national) where I stayed for like a month? A month and a half? I’m glad (and not so glad) too see that there’re people with experiences like mine! It helps when you can commiserate with someone who had the same thing or close to the same thing as you. I was 14 when it happened and I had my birthday in the hospital, and needless to say it was one of if not the worst birthday parties I have had given the circumstances. I had a drain in my head to stop the blood over-pressuring my skull and brain for about 3 weeks. I still can’t walk really well, I can’t talk very well, and I have trouble remembering things. I still have a whole lot of blood in my brain, but whatever that’s besides the point. I’m getting surgery done in September but I don’t know if I’m getting the radiation therapy, putting a coil in, or letting it heal naturally. Side note, my sister saved my life. She is trained in first aid, and she recognized the signs of a stroke which is what they taught her in her highschool gym/health class that year. I had a stroke which is what she immediately recognized, and then once we got to the hospital they realized it was an AVM rupture. I cannot stress this enough, thank you big sis and thank you school system for saving my life.
@pp-wo9zk3 жыл бұрын
tl;dr worst april fools joke ever
@JENNI_With_An_I3 жыл бұрын
i have a stroke at 23 from this condition my right arm locked up and i have a seizure then my arm locked up my avm ruptured at 2:00am in the morning lucky my mom was in the room with me when it deciced to rupture
@mariacortez5931 Жыл бұрын
My is not treatable because the doctor said it is in a place that is very dangerous to operate!
@lukescrimshaw76785 ай бұрын
Same that’s where gamma knife comes in …
@trina90112 жыл бұрын
I was 27 when I had surgery. I had some kind of a stroke and I was admitted to hospital. In the surgery a had a bleed. It's been 4 years and I still have numbness in my right hand but it still works. I play call of duty haha and my brain still works
@meditationmamaoraciones2 жыл бұрын
My constant headache s and other weird health issues they only treat my headache s I'm scared I have 4 boys and no family support is that all they can do for me really I stopped going to doctor felt like nothing really done and also now I have no insurance NC sucks just truth especially for my mental health issues also
@Famops_Unregularly Жыл бұрын
Pov: you search AVM you meant animation vs minecraft:
@MPG-ub5ke3 жыл бұрын
Dr Mark Bain. Lol at first glance I thought his name was Dr Brain!
@rebeccabecca13086 ай бұрын
I had 2nd and 3rd option, hemorrhaging on brain for over 45 mins because i didn't want to lose my hair 😅
@jessli3694 жыл бұрын
Do they cause what feels like a bug chewing out if the eye and then a sudden severe headache? I tried to go to the ER a few days ago when it happened but didn't make it there. I saw my regular doc who refused a ct/mri saying it was "just a headache" I know it was not. Upon sitting up I felt a pop in my head then excuciating pain. It's gone now but I fear it return and could be worse when it does. I wish my doctors would order an MRI or ct :(
@criseydagomez86703 жыл бұрын
I have had 10 or 11 surgeries towards or open head surgeries, I dont know why they keep coming
@cupkvp3 жыл бұрын
I have AVM and in my area I’m having hard time to see a neurosurgeon the first one I went to see just has me with random testing and I’m in pain feeling dizzy to a point I can’t drive my children helping get out of bed it’s been horrible my left arm weak heart beats with anxiety Im worried & scared no doctor helping me get the treatments I’m going have a stroke
@danielaalfaro37502 жыл бұрын
Please look for help soon your kids needs you and you could die because of this.
@Anonymous-uz4pg10 ай бұрын
Mine burst at 8 barely survived lost my left peripherals and got epilepsy n I think a little slower
@joannestark30232 жыл бұрын
Friend's 8-month-old daughter passed and she had one of these. It was found at autopsy and there was no reason to suspect she even had one. They also found evidence it had bled previously. So sad.
@lukescrimshaw76785 ай бұрын
Dr says were born with them🤷♂️ I always suffered with headaches but always played sports etc then at 33 collapsed with a seizure
@KD-bw1rh Жыл бұрын
Hi, guys. A close friend just had an AVM and now she has stroke like symptoms. Does anyone else know this situation? Thanks
@fornaxwastaken Жыл бұрын
now we have alan becker to support avm
@resonate6067 Жыл бұрын
How can one catch AVM before the aneurism eruption? My boyfriend has this in 2021 - very scary. Now I wanted to check if I have it
@clevelandclinic Жыл бұрын
Thank you for your message. We cannot answer medical questions on this page, but you may be able to get an answer on our FAQs page. cle.clinic/3kdjXDV
@lukescrimshaw76785 ай бұрын
Go for a brain scan?
@israelorona81694 жыл бұрын
I have an Avm grade 5
@zahidbaloch7251 Жыл бұрын
My brother died due to brain stem avm
@Laurie_ginale Жыл бұрын
😢😭 I'm so sorry
@leeknow95311 ай бұрын
@@Laurie_ginale its not your fault
@lukescrimshaw76785 ай бұрын
How do people feel knowing they have a bomb in there brain that could go off at any time!!? Mine worse at bed time when it’s quite
@asma9783 жыл бұрын
C'est ou s'il vous plaît ?
@govindapprasad437511 ай бұрын
Please help me my brother brean hemrege
@NandaniPerera-wn1sm7 ай бұрын
Thuwaalata paalaster pamanaaee dammaa a unaata te. Paanawaa cathaawa naada maga dehaa àhanawa
@ajaj-tp8tr3 жыл бұрын
how to early detect avm?
@lukescrimshaw76785 ай бұрын
Mine at 33 just had a sezuire one day! 6cm avm and always played football etc
@1TimeScratchUserАй бұрын
I’m here because of Alan Becker’s Animation vs Minecraft series
@fousies5 жыл бұрын
Will at CT scan see this?
@Zdaga214 жыл бұрын
Dena no , mr will see
@queenneal39834 жыл бұрын
Yes. That's how I found out... #Facts
@Cheeseandcrackers8884 жыл бұрын
Thats how mine was diagnosed
@wolfimator3 жыл бұрын
I got treated with the 2nd type...
@elizabethhluna9151 Жыл бұрын
Wait this ain’t Animation vs Minecraft!
@dhalia52 жыл бұрын
Woah!!!
@StacyHill-k9kКүн бұрын
Buck Stravenue
@rashadayrit1394 Жыл бұрын
I sesrched alen Animation vs Anim wth 💀💀
@noobyplayz28402 жыл бұрын
Animation vs minecraft
@saadjan46713 жыл бұрын
Hi plz rapliy me
@ZelOrLun3 жыл бұрын
I wanted to watch Animstions vs Minecraft and i get this....