Arteriovenous Malformations

[@angelicsweeney1374]

I just had an AVM ruptured. 3 head surgeries and a stroke. 2 ppl that flew in before me died. I’m learning to walk again and I had a feeding tube for almost 1 year. I am 43 years old now and have to learn everything all over again

[@kerryvarner76]

It’s been 2 years since your comment. How’s your recovery been?

[@KatJ3st]

I knew this guy would HATE the Aruba trial!!!

[@anastasiostsogkas]

Very comprehensive speech!

[@karenwilliams978]

High flow AVMs never stop growing?

[@Dream-qy9ir]

Got an arteriovenous malformation in my prefrontal cortex left side.. in 3rd grade my neurosurgeon told my mother it can't rupture on its own.. I am 23 now and haven't been to neurosurgeon since that time in 3rd grade.

[@vernelldrechsel4449]

Avastin stopped all of my bleeding, you just have to watch blood thickness! We stopped when I was at 17.9 hgl, in the meantime I had leukemia and it stopped that also!!!

[@mac-ju5ot]

I pray Dr Patel can fix mine. I'm worried it's not too big but it's in a bad place I e had two seizures

[@brianloftus4919]

Thank you for this video. I didn't realize it was a disease.

[@inanutshell8185]

My mother has AVM and Chairi malformation, for AVM doctors have advised to go for embolization followed by Gama knife and for Chairi malformation needs to be operated. She is 47 . We still not sure what to do

[@lisarice4402]

Noorsaba Khan - I pray for your mother and her recovery, as she will need it. (I was born with a Chiari malformation that has remained untreated my entire life (I am 49 right now). The headaches never stop, it seems. (I really, really hope your mother gets medical help with this). When I was 5 1/2 months along in the only pregnancy I could carry full term, I was pushed and landed hard on the small of my back. My daughter was born with an AVM in her right leg, a vitamin K deficiency and a cavernous hemangioma (benign tumor in her right foot) as a result of what happened to me. She became an amputee and walks very well with her prosthetic. It makes me wonder now, even after all of the scans she had, if there is a possibility she has a Chiari.)

[@DeddySafari-iv2dx]

I have an avm for 15 years, im 50 Year now can you help me

[@hanezelmellidaborling2542]

Have this one too...on the fundus of the uterus now :( Im pregnant now I was advised to undergo monthly ultrasound to monitor my AVmal

[@user-1234gbhfavd]

Bad video of this lecture, why is it focused on viewing the doctor while missing some important information!

[@heidistinton721]

Ps I'm 59yrs,and no treatment my answer as odds to live are higher without treatment.

[@karenwilliams978]

Same here.

[@namartasharma5098]

i lost my soulmate 2 mnths ago.he was only 27 we were planning to getting married doctor said 95 percent chance to succsefull surgery but after surgery they said only 1 percent i lpst him😭

[@Sanskruti_com]

Brain me tha avm?

[@heidistinton721]

Ps UK did not even x-ray all of me to find out if I had more avms

[@heidistinton721]

Would help me as I'm alone ,unfazed for,and ill.

[@humanbeing524]

Hi Heidi. My sister has an AVM too. I don't know your situation but I understand from my sister's experience that AVM surgery may be too risky for some patients depending on the location of the AVM and health of the patient. We are also waiting in the U.S. to see if she's a good candidate for this surgery.

[@heidistinton721]

I deleted my texts as lost my trust here to.uk don,t care about older people like me as they give me 50 50 odds yet I know that I'm not well enough for Neuro surgery and what's the point as they cannot take out my from back of my eye my avm

[@heidistinton721]

And I do not think it's worth my risk for to let them clamp my burst blood vessels,so as they denighed showing me ,my scans and yet they wanted more plus angio gram later.as I'm 60yrs in July,I not risk myself as I'm ill ECT plus 1st haemorrgh took my one eye sight so now only got one eye sight left.they never tell you all either yet I remember fistula in one letter at start of my journey.ps hope your sister okay.x

[@heidistinton721]

UK does not care for us older people,were guinea pigs who stop being guinea pigs and than were left out in cold and ignored.uk cannot take out my avm

[@angelicsweeney1374]

I flat lined and they had to revive me. I am currently on a wheelchair. I have to do therapy daily

[@Sanskruti_com]

My son is 4 yrs old and he is having an avm in right hand..pls help me pls tell me best treatment options

[@heidistinton721]

UK behind in Neuro and other countries care more about they patients.

[@heidistinton721]

So I stopped going and I do not trust UK Neuro hospital and they surgeons and I'm 59yrs but no longer they guinea pig.we who have this do have some brain cells ,us older people and I'm not going to be one of the many older people who die in London Neuro hospitals,I refuse to be a guinea pig plus UK Neuro stinks on they care with us older people and especially us older ones who refuse to be guinea pigs.i know 2nd haemorrgh in the now or future as I still have high blood pressure which goes up and down plus avm

[@Zenheizer]

Well one can certainly tell, that you already had your hemorrhagic stroke

[@heidistinton721]

UK does not care.