Ask the Experts - CIDP Session

[@brockmckraken]

If anyone gets severe coldness in the lower legs/feet/toes, you can use disposable toe warmers. Even in warm/nice weather, my toes can get freezing cold and these help.

[@eileenschmigel2654]

love question and answers thank you!

[@avinashdhingwaal7099]

My mother suffering from CIDP and GBS

[@Muglyother]

I'm sorry to hear, I was just diagnosed as well and am learning about it and its treatments. Some say plant based diets are important changes to one's normal diet.

[@DhakalG]

what is the differences between CIDP/AIDP varient

[@lyndasullivan9278]

Exactly what is DADS and how does it differ from CDIP? I’m so confused right now

[@rafaeldiaz91]

What about "Rituximab"

[@rafaeldiaz91]

It was a miricle cure for me!

[@markosborn8671]

What are the tests that should be done to diagnose CIDP. My neurologists just stuck some silver electrodes on me and sent electric shock and from the results " diagnosed" me with CIDP

[@nettamericana7318]

Spinal tap will show high levels of protein

[@brockmckraken]

An EMG test, is all it took to diagnose my CIDP as well. Of course it was obvious from my symptoms anyway. Typically if you have nerve issues, you'll barely feel the shocks, by the time he got to my ankles, I didn't feel anything.

[@rafaeldiaz91]

IVIG NEVER WORKED ON ME!

[@Bullish2024]

There are several points you have to take under consideration . 1. what is your diagnose 2. how were you tested for it 3. Did you ever read your test results. 4.How long did you have the symptoms before you were finally diagnosed 5. How long were you prescribed the IVIG infusion for and What was the dosing amount 6. Do you have other Diagnoses and Drugs you are going through .6. In my experience not all the neurologist are exactly on point with there diagnosing and prescribing IVIG and related diagnoses .

[@aitorg.4256]

agradeceria se tradujera al castellano, es una información muy interesante

[@carmensantaella5116]

Eso mismo digo yo, yo que he vivido este infierno por casi 25anos pero pa lante

[@Muglyother]

Is there a potential link from having many vaccinations and cidp? Thanks.

[@veenamvani]

Sound is very low I am a CIDP patient from India since 2013 I am dependent on IVIG Is it safe take IVIG during COVId 19

[@therealbigfoot3076]

Yes, covid is a scam.. 99.8 survival rate

[@aitorg.4256]

algunos casos de cidp con el tiempo remiten , a que suele ser debido?