Autism Self-Diagnosis: Y or N?📄 🩺🤔

[@Jacin_Larkwell]

I've had doctors say they won't recommend me to further testing because I can make eye contact. Nevermind anything else, the fact that I can force myself to make eye contact (something I was forced to learn how to do as a child and even now in professional settings) was enough for them to say that I didn't need one and there was no point in even getting tested

[@tessarae9127]

Right? I spent all of middle school trying to learn / force eye contact but still feel more comfortable not making eye contact when I’m actually listening to someone 😅

[@MonochromaticBlues]

He’s right

[@lgg23039]

Lol ​@Alabious

[@Riley.-sJoy]

I make eye contact all the time🤣IM DIAGNOSED AUTISTIC-

[@megayummyrockstar]

Yes they tend to compare ppl to those who are on the lower end of the spectrum

[@laurenj6771]

I don’t even care about getting a diagnosis or diagnosing myself, just knowing there are other humans out there who think and act like me is more than enough, especially since I used to think I was the only one as a kid. I’m so grateful to your content❤

[@DrinkYourNailPolish]

Same! Personally I don't want to diagnose as I don't want to put a label on myself as sometimes I feel like I have to "live up" to that label, but just knowing that there are other ppl out there who I can relate to makes me feel so much better! ❤

[@stuartchapman5171]

People who are divergent will accept you, as someone once said to me, we can smell it on you. They know. Like you said, it's the NT that NEED the diagnosis, when it's later in life, they only see you masking with years if experience, they dont see you with your guard down or melting down, often, lol. Thats because socially you can hide away. The wirk place is another matter. You have to engage fir a set amount of hours, on a set amount of days, there's no escape. Im not alone in saying I've lost work through being divergent, nor am I alone in saying I've been judged for loosing said work. Your employer won't accept self diagnosis, and unfortunately neither will they accand accommodate you, with a diagnosis. Its a double edged sword, mask well enough of the time to get a job, but not able to do it on demand, enough to hold it down.

[@drtaverner]

Yes, the three types of diagnosis. 1. Professional diagnosis 2. Self Diagnosis 3. Peer Review. We know our own!

[@stuartchapman5171]

@drtaverner hahaha, love it, peer reveiw. It's so nuanced, the different imbalances onthe the infinite spectrums of being hunan that make up ASD and ADHD. Someone who lives with it spots it straight away. I'm always dropping hints that I know when meeting someone, They pick up and open up. It's heartening to see and increasing number of divergent minds getting a degree in this field, its obvious, as they're better placed to make diagnoses. Just like recovering addicts working in rehab. It makes perfect sense, no judgement, yet instant understanding.

[@summerdais325]

1. Sadly needed for a lot of things. Until I was diagnosed with EDS, I still had all of the symptoms and lived experiences of a patient who has EDS, but none of the understanding or resources. I was HARMED because it was missed until I was 48/49 and ended up with a dislocation so bad that I will likely need surgery to repair the damage and lessen the pain. It's genetic. I have had symptoms since my earliest weeks on this Earth. Like ASD, it was missed, and validation is important. 2. BUT, let no one misunderstand what I'm trying to say. Validation IS important for so many reasons, but you are already valid if undiagnosed/self-diagnosed. 3. And 😂 peer review ❤ yes, I love it. I had/have "radar" for eating disorders. Seems like the same applies in this "community." The value of being seen and validated by other people with ASD cannot be overstated.

[@kathyb249]

Omg! It's like you were speaking to me. I also feel like I could have written it. Hugs!!! (Virtual, non-touching, no pressure, hugs).

[@stuartchapman5171]

@summerdais325 yes too true, peer validation is equally important. You may still not get the accommodations you need from a professional diagnosis. But to be acknowledged and fit in with other divergent, a relaxed way of being you, it's empowering, comforting, reassuring.

[@adamtobin8132]

I’m almost 41. I’ve been thru this exactly. Exactly. My friends are pretty understanding. My parents can’t wrap their head around it. My mom especially and I want her to accept me for me. Masking is not an option anymore in life. I choose not too. I also choose not to feel shame from anyone.

[@resourceress7]

People need to also be aware that having an autism diagnosis in your medical records can sometimes have legal repercussions or be used against you in certain situations. For example, some countries will not let you immigrate there, or it might have repercussions if you are a parent and a child custody battle. So it might be worth trying to learn more about possibilities like that before you make the final decision to pursue a medical diagnosis. I'm a person who wants to know things for certain and in the most complete way possible. I certainly understand the appeal of wanting that certainty or official validation what you might be suspecting is true about yourself. Just be aware that there may be other factors to consider before pursuing an official evaluation that could impact you in the future.

[@idobelucy]

I came here to say the same thing! I wanted to get my official diagnosis until I found out that if it’s on your record you aren’t allowed to adopt kids 😢.

[@marleyhill34]

I don't need to adopt and I don't need to move to another country and I would be a single parent by choice if I chose to have kids. Given all my failed romantic relationships, I should absolutely not have a child with another adult. I've seen single parents get more government support than parents who hate each other but just cover it up and pretend that every thing is ok.

[@reneedevry4361]

Excellent comment. ❤️ I was given the option and chose to not get a professional diagnosis. I do not need one more strike on my medical records, especially one that can not be cured. Lack of privacy is moving faster by the year.

[@usalscorner]

I got custody of my kids AFTER getting a diagnosis, as the father, in a state that thinks the mother can do no wrong. Without one she got custody and really messed up my autistic kids...They are doing better now as adults.

[@reneedevry4361]

@@usalscorner I am very happy to hear this. Good news like this is to be cherished in a world overblown with chaos and cruelty.❤️

[@kpopfan2]

Im autistic (professionally diagnosed) and I have this thing where I can spot other autistics out in the wild so self diagnosis or professional we accept you in ❤

[@adamtobin8132]

I like who and how I am. I’m not ashamed. I’m not embarrassed. I don’t even mind telling loved ones or strangers at this point. I spent my whole life trying to fit in. It didn’t work. Maybe for 20-30 years but I promise it’s no good.

[@adamtobin8132]

The community online really helped me feel comfortable with myself and repair a lifetime of shame and low self esteem. Love the content. Thank you.

[@constancedenchy9801]

There's only a need for a diagnosis IF you want or need assistance. If your life is functioning well, just accept youre an Aspie and it creates a social disconnect. Once you accept that life gets so.much easier. What my life has taught me: avoid tests, avoid labels, & stay out of the system

[@truthnow76truthnow94]

I agree!

[@citygurl0105]

Question.... Are you self employed?

[@mlr4524]

Most of the "resources" are average people talking down to high functioning, high IQ adults (from what I've thus far observed).

[@BlackPeony]

Your perspective is so conforting for me. I am a 25 year old and have documented on this topic and got to the conclusion that I most probably am autistic and/or ADHD (inatentive type) because I have many traits of both, even though I kind of am very scared about these labels since I do not want to be rejected by friends if they find out. When I finally decided to talk to my mom about it describing the traits and how they relate to me she told me that autism and ADHD do not exist. In my country, I never heard of an adult diagnosed with this and a lot of people have very narrow minded ideas of what autism is (e.g. kids who make loud noises and can't be reasoned with/talked to).

[@shaesmith2831]

I use to be extremely against self diagnosis for basically anything mental health wise. I use to think “it was disrespectful for those of use who have ACTUALLY been diagnosed”. Then I met my partner. He’s never been diagnosed officially, but he definitely has ASD. I was lucky I was diagnosed quickly and at a young age. We’re currently trying to arrange my partner getting a test and it’s such a pain. So yeah, self diagnosis can be extremely helpful especially when getting a professional diagnosis can be a pain in the arse the get

[@ezzie_aus]

I chose not to get a formal diagnosis at 32 after discussing it in depth with my doctor. Where I live, I would need to report it to the government to keep my driver’s licence (and sit an expensive test despite being autistic at 18 when I passed my driver’s test), I would be barred from adopting or fostering children (which are my only options to become a parent), would need capacity hearings for any major medical decisions I need to make AND would be barred from immigration to a LOT of countries. In the end, the costs far outweigh the benefits based on where I am in life right now.

[@stillnotstill]

SO IMPORTANT

[@tris5602]

I got diagnosed with ADHD at 29, a year after my self-disgnosis. Having been right about my hunch the first time (even though some people insisted that I would have been diagnosed in childhood 🙄), I am confident in my self-diagnosis of autism. Dual diagnosis explains a number of things, including the fact that I didn't get diagnosed with either condition in childhood. I have always felt that I was a person of extremes, and AuDHD is a pretty concise explanation for why I feel that way. They mask each other and sometimes, when I'm extremely unlucky, they exacerbate each other. I finally make sense to myself, so it's enough for me.

[@jrr2045]

Where I live, there is no way for a autistic adult with average or higher intelligence and an ability to work, to get access to being diagnosed. Unless you have extremely high, 24/7 needs for living assistance, you're considered normal enough to work and pay taxes, and that somehow means you should be fine. I know two people who self diagnosed or more accurately: have enough self insight that they could identify their autism. I think we should respect that.

[@TheWilliamHoganExperience]

Self diagnosis is the first and biggest step. Formal / professional diagnosis is just a way to confirm and legitamize it in the eyes of skeptics. In the end, I sought and recieved a formal diagnosis so that I could "prove" I was autistic and have a better chance of being believed - But it's not required. If you watch videos by Taylor and other autistic creators and identify with what they relate, you're not nuerotypical. It's as simple as that.

[@passaggioalivello]

Self-diagnosis is good and totally valid, but I rather calls it self-awareness.

[@MomontheSpectrum]

I really love this perspective. I feel like that is a really fitting description. Thank you for sharing this!

[@epicsmiley3598]

Not really

[@NorthLoftier]

True. Some people might fake it, and others will genuinely notice it in themselves. Autistic people will mostly obsess over what interests them, and always have to finish what they start! That led me to obsess over autism. I know and understand I'm autistic now, after a week of being in complete isolation of thinking and research.

[@rlopez18m]

@@NorthLoftieryeah then add ADHD and get distracted and can’t finish what I start then getting totally overwhelmed and then give up.

[@OrangeEnjoyer]

Self awareness that you might be autistic can be very validating for you as a person and can feel great, but I do think that some people who are still undiagnosed yet still identify can play a really risky game if they do share this online and with their friends. They may not truly know if they are autistic because what they may be experiencing could be an interaction of different traumas, factors or life experiences leading to a misdiagnosis, or it could be a different diagnosis entirely. I just don’t think it’s very safe to diagnose yourself using the internet and broadcast it but if it’s enough for you, that’s great, but it may not be great for other people.

[@jonmars9559]

Self diagnosis is enough for me. I was 55 when I finally realized I was on the spectrum and it answered a lifetime of questions. I have something I can work with now that I never had before. I watched my nephew go through the ringer with psychologists with one misdiagnosis after another. I have nothing to prove to any professional. I just want to better understand my autism, make peace with the things I cannot change and unravel a lifetime of associated trauma that I can potentially heal from. I have to admit, I have little trust in professionals though I wouldn't mind being surprised.

[@MomontheSpectrum]

I can relate to a lot of what you are saying. I don't feel like I need to prove anything to anyone. I'm just so glad I have information to help better understand myself and the stressful things in my past that most likely resulted from me (and those around me) not understanding myself. And also, like you said, make peace with things I cannot change. Definitely challenging but I'd much rather have the knowledge that I have now than live without it.

[@Rutabega_NG]

52 and same.

[@dimpsthealien333]

YES!!! MY THOUGHTS EXACTLY!!!❤

[@idaroseen9279]

I personally would say no. I don’t think you can claim to have autism I would however say that you 100% can say that you suspect that you have autism. But I can also see way people do that.

[@srldwg]

​@@idaroseen9279Not claiming. Identifying with.

[@RCola1217]

Self diagnosed my ADHD about 5 years ago or so, but started suspecting before then. Got the official doagnosis about three years ago. I have recently started researching symptoms of ADHD along with autismn. This journey is playing out very similar to how I felt when I started reading about ADHD in women and realizing so many similarities. Going to play this one much faster, because ibspent nearly a decade agonizing over saying I had ADHD because no one would believe me. Not with this. I am getting an official diagnosis as soon as my next appointment with my psychiatrist, and discussing it at the next appointment with my therapist. This explains even more than just the ADHD has.

[@vagabondsentinel]

As someone who was diagnosed in their mid thirties, it was very difficult getting a professional diagnosis, and a few years later, I honestly wish I wouldn't have. There are advantages, yes, but there are drawbacks, too, and for me, long term, the benefits did not outweigh the costs. Your self-diagnosis is valid, and if it's enough for you, don't feel like you need to get a professional one, too. (If you want to, absolutely go ahead, of course, but do your research, too! My insurance did not cover mine, even though I called them in advance and they said they did. Make sure you check out laws that only pertain to people with diagnosed autism in your area, too, because there are some places with some very concerning laws still on the books, and some even still enforce those laws.)

[@ReyOfLight]

I was nearing 37 when I finally (after about 10 years of suspecting) took some online tests for autism after feeling a strong need to find out. What made me do it? Re-watching the Divergent trilogy and recognizing myself so much in the main character, Tris, who just didn't fit in in her society because she's Divergent. That trilogy just woke me up. All tests I took came back very strongly indicating that I am autistic, and when I told my boyfriend, his response was to send me an autistic meme and welcoming me to the autistic life 😂 He had known since the first time he chatted with me! I'm yet to get formally evaluated, but I will try to get it one day because of the support systems available, that are locked behind that wall of formal diagnose. But for daily life, just the self awareness and taking steps to make life less overwhelming like wearing noise canceling earbuds with or without listening to music, or wearing Calmer earbuds when out on errands, and not feeling like an idiot when wearing sunglasses indoors on a cloudy day if needing to, just helps so much! One of the online tests I took back in 2022 when I got self diagnosed, was something like NT would score below 17 if I remember it right, and many on the spectrum would score around 20 or above, I scored 34 😅 Oops...

[@theloudpetite]

I am self-diagnosed / aware that I am autistic and have slowly learned to support my needs for example, I am very sensitive to noise and this has always caused anxiety. I sleep so much better now wearing Loops and when I am out in public. If only I knew this growing up 😅. Before self-diagnosing, I thought, well I’ll have to deal with this anxiety and discomfort for the rest of my life. I am also a high-masker and always felt like a chameleon and couldn’t be myself. I’ve been missed diagnosed in the past with anxiety and depression. There are definitely repercussions too, for example immigrating to Australia is a NO if you’re officially diagnosed. Also, even if you’ve been driving in Australia for 10 years, as an autistic person without killing anyone on the road, legally you must declare your diagnosis, get medically accessed, deal with barriers and this cost money. The system doesn’t always work for us.

[@kalt1976]

I use the term self-realization. And it is valid, which has even been proven with research- diagnosed and self realized score the same.

[@ruthanneluvsvacuuming6653]

I’m not autistic but I appreciate your videos because I have some of the same or similar enough challenges to gain something from them ✨ Thank You So Much 🥰

[@chibbyranjo]

I had to wait a long time to be assessed before my diagnosis. That waiting time actually gave me the time to come to terms with the idea that I was autistic, so it was no surprise when it eventually happened. Validating yourself is really important, but I also understand well how being validated with others is also really helpful for people. I was diagnosed five years ago, but I’m still fighting to get recognised by social care and government agencies so I can get the support I need, despite having a bit of official paper. Keep that in mind

[@thev0idnati0n]

This was a question weighing on my mind, simply because I'm acknowledging that certain diagnoses I had never added up. I did my own research, and, this video really validates my autism. Thank you.

[@mendicantcrow]

This ❤. I currently can't afford a full psychiatric diagnosis, and there's no one in my part of Canada who diagnoses adult women. I'd have to go online, and there's limited people that offer that. My doctor is very supportive, and explained that with the pre-testing I've done and the evidence from my therapy sessions, she is putting it on my medical that I'm Autistic. It's not an official diagnosis and can't be used for insurance or disability, but she was hoping it would give me some peace and language to communicate with people in my life.

[@letsallgoforawalk]

If Ive done more studying on how to diagnose autism than any Dr I can access then...hey that speaks for itself. Yes I am autistic.

[@lisawise4204]

I’m a self-diagnosed autistic adult who TRIED to get a professional diagnosis and was told I was “too high functioning” to be autistic. 🤦‍♀️. No just really good at masking since I’d had 23 years of experience by then. Unless I fjnd myself in a situation where I need documentation of my disability, I’m ok with knowing there is a word to describe how I am and a community of people who “get” me, even if I don’t have an official diagnosis. Realizing this was life-changing.

[@jasminegreen1687]

I took A LOT of tests and I wish self-diagnosis was enough for me honestly. But, my brain doesn’t do well with “what if’s” and I NEED to have an official diagnosis. But, even when I do get that official diagnosis, my brain still won’t be happy. Hopefully I have answers in a couple weeks!

[@phoenixc7245]

I started suspecting I was on the spectrum at 15. Did like 6 months of research because my friends kept telling me they thought I was on the spectrum. I came to the conclusion that I was in fact on the spectrum. Well, they left my ass when I told them and my therapist thinks I have both ADHD and autism. That alone is enough for me. And you are absolutely right that it is an "if you kbow you know" situation.

[@mattsmith1318]

Thank you! I was diagnosed with ADHD and ODD in 1991 at 4 years old. We moved when I was 13 and I decided I was going to grow up and for 23 years I just tried to fit in. I knew that I knew for sure this past week. I've been out of work for a couple months now and I've never been able to hold a job longer than 2 years. I told my parents last night that I'm not normal. I'm not okay. And then I need help. I am just starting my journey to find a therapist, hopefully get diagnosed, get me some help, and ultimately un-mask and discover who I am.. Wish Me Luck 🤞 ❤✌😳😊😜😎

[@NorthLoftier]

What you're doing is just something so kind and beautiful. Thank you for sharing information regarding this matter. ❤ I self-diagnosed autism after about 2 weeks of never-ending questioning and research. Reading other autistics' stories and experiences made me realize how much I relate to them. It's like you finally found your species and the people you actually and genuinely can relate to. Although experiencing life is very frustrating, I'm glad I'm who I am.

[@loniwilliams82]

I'm 41. I didn't know or have a clue till my dad said he thought he was a year ago. I gaslit him till I went down the rabbit hole. I wrote him a letter I apologized and I realized I was masking. I took my mask off and now $hit hit the fan. Now I'm trying to control the aftermath. Mask off was a whole lot but it needed to be done as I was indoctrinated. If in fact you're autistic and in a group you need to fit in. You comply. ❣️ I did everything to match social standards. I love you Taylor. I cry on your videos. But I'm happy.

[@loniwilliams82]

How in the world can someone so pretty and intelligent struggle? We hide it. 😢

[@TheKjoy85]

It is a big challenge in the greater Seattle area to find qualified doctors who can diagnose autism in adults. Especially if you are trying to find someone who takes your insurance, because paying out of pocket is expensive. I was good with a self-diagnosis and so is my family. Two years ago, I was assigned to a different psychiatrist and as we talked about what I was being treated for he asked if anyone had mentioned me being autistic. I told him that we had wondered about it, but that nobody could or would confirm it. He told me that it wasn't within the scope of his job at that clinic to test for and diagnose autism, but as a clinician who had worked with autistic kids in the past, he was fairly sure that I was autistic. He also put me on a new medication that has made a huge difference for me. My primary care provider has accepted this diagnosis and we've moved forward from there.

[@saml4004]

Professionally diagnosed since Feb this year at 34 years old. Still grapple daily with imposter syndrome and whether to tell people….. I thought a professional test and diagnosis would help me feel less like a fraud, but I still find that’s something I struggle with especially when some people say “well I don’t think you’re really autistic”….🙄

[@dimpsthealien333]

Thank you! I feel so much better now that I have a SELF diagnosis. I feel like I finally found my place. Doctors have let me down countless times. I will not waste more time and money on people who don't know me like i know me. ❤

[@maddiejoy6619]

My husband and his group of friends decided to take an ASD test together online and they all scored on the spectrum (a couple are already "officially" diagnosed)... I feel like the fact that they decided a fun group social activity would be to take Autism tests says a lot already 🤣. I'm so glad my husband has a little neurodivergent community.

[@Lotusblume.8]

I’m 56 and have self diagnosed but no one else believes me. My psychiatrist said I’m not because I have good eye skills and my neurologist says it’s just that I have classical migraines and to “hold off on the autism part.” People think I’m just trying to be special. I’m 56 and it’s not something I go around telling people about. Just my family and I’m getting major pushback. I’m getting assessed this month.

[@MomontheSpectrum]

Someone shared this with me and it might be helpful to you: “In our experience at the University of Washington Autism Center, many professionals are not informed about the variety of ways that autism can appear, and often doubt an autistic person’s accurate self- diagnosis. In contrast, inaccurate self-diagnosis of autism appears to be uncommon. We believe that if you have carefully researched the topic and strongly resonate with the experience of the autistic community, you are probably autistic.”

[@Lucien234-i2z]

As a nurse, it is not a enough!! Autism-like symptoms could be related to other conditions such a PTSD, Social anxiety, brain trauma, ADHD so please do not diagnose yourself.

[@michaelanthony279]

I think, maybe, we all have those “hyper-aware” eyes (this is a compliment. I’ve heard since I as a kid I have “really nice eyes”-but I think people struggled to describe what they were actually seeing in me). Thank you for having this site. You are really, really helpful.

[@aynarilzrah6532]

Thank you for your videos sweetie it's helping more people than you think ,wish you all the best ❤

[@MomontheSpectrum]

Thanks so much for taking the time to comment! Please let me know if there are any additional resources I can provide or questions I can try to answer for you.

[@-AnnaAnna-]

Thank you for this video! I am currently in the process of trying to get diagnosed, but apparently "I just have anxiety". Most of the professionals aren't familiar with masking, which really sucks!! I just wish there was more awareness for autism! ∞

[@tamersmusiclol]

frrr sameee I am trying to get discharged from CAMHS so that I can go get assessed without them

[@ferntheinkling]

Yeah my psychiatrist said my brother wasn’t autistic because he had a good vocabulary 💀 I’m pretty sure he is cause he has even more symptoms than I do. I don’t think my brother really cares at the moment (he’s 12) but I would like a professional diagnosis (I’m 19).

[@tamersmusiclol]

@@ferntheinkling its called a spectrum for a reason like some may have good vocab and some may not but gl with ur assessment hope u find the answers u need

[@jellylemonade1655]

@@ferntheinkling i read books when i was younger and ide say i have a good vocabulary but that doesnt make me not autistic. some "professionals" dont understand which makes it so much harder for the actual autistic people

[@ferntheinkling]

@@jellylemonade1655 yeah. He’s had a big vocab since he was little. I think it’s just because he’s the youngest of four and has always hung around older people. My mom told me that’s what the psychiatrist said it sounded like bs to me. I think she wants to get us all tested at some point, especially him.

[@charleennoellejanssen8113]

Thanks for this video! We only have about one or two clinics which offers diagnoses but they're mostly full and the waiting lists are often closed. So, self dx is the only possibility here and I'm glad you reinforced that ❤

[@TheCloverAffiliate12]

Funny how this short popped up after I had just posted a comment about my imposter syndrome around self-diagnosis. I'm getting evaluated in a few months (for autism and ADHD), so I think I'm really just hoping the person evaluating me sees what I see. Thanks for all that you do ❤

[@FringePrincess]

❤ I get this.

[@feistsorcerer2251]

Even if they don't, those of us in those communities do accept you. Hopefully you can get the resources you need but even if you don't you still have a place in community.

[@ShirleyM_Anne]

I'm old... 68😮-- just this year was made aware, after watching the Temple Grandin movie... it just makes my whole life fit into place and now so great not to have to mask anymore..🙋👍

[@susannelynette2089]

This just popped up on my KZbin feed just now - and was so perfectly timed - because I kid you not, before yesterday’s amazing workshop with you and that wonderful group of fellow neuro-divergent souls, I found myself once again doubting the obvious - and actually did another spin with the online tests you share in your guide - each of which just keep patiently producing the same answer to my little doubting brain - over and over again - “Yes, you are, and have always been, AUTISTIC!” … 😉

[@allen0088]

You're pretty, waking up to that face everyday would be a blessing

[@CheekieCharlie]

I call it pre diagnosed haha. I only figured it out a year or two ago and it takes way longer to get a diagnosis than that haha

[@FranklyTheyCallMeFrankie]

Who needs a human professional when you have that adorable little ginger professional to diagnose you 🐱 good job kitty! Your “pet me now” face says it all 🤣😊

[@smerdopsis6092]

For real, loving an animal who readily accepts your love is one of the most healing things

[@mooshiewoosh1534]

Self diagnosis is not only valid, but can be essential to navigating your needs when the system fails you. Autism is so deeply misunderstood even by professionals that it is not uncommon to go through an assessment and still be told you are not autistic because the assessor is either ill informed or reading your ability to mask as an indicator you are not autistic. If you have a lot of trauma, you may also be denied a diagnosis despite being autistic. On top of that, because of the stigma, autism is regarded by some as a “last resort” diagnosis and some professionals prefer to use incorrect labels like anxiety or OCD to explain away symptoms instead of giving an autism diagnosis. But as you said, if you know, you know. Autism isn’t a fun label we slap on without critical thinking. It is a huge revelation to understanding a deeply misunderstood part of ourselves and a step towards getting the support we have so desperately needed for so long. Self diagnosis is valid. And if you have gone through the assessment process only to be told you “aren’t autistic enough”, you can always get assessed again by a professional who listens to you and understands you better, with different results.

[@lindseycassella3015]

I didn't start suspecting I was autistic until I was 40. I was in a weird transition period and the medication I was on heightened all my senses. I thought it was just the medication for such a long time until I thought back about what I was like as a child prior to medication. I had gotten an OCD diagnosis at 12 after I had a meltdown and threatened self harm in front of my parents telling me to take a shower. I rewrote my notes for school over and over. I lined up my pencils in a gradiant and did ritualistic things to help me remember. I was a "picky eater" and complained about the texture of foods and did a lot of stimming. I had forgotten this because as I was treating my "OCD" and anxiety I noticed more ADHD symptoms and got an adult diagnosis of that in my 30's. When I completely got off meds because of the unbearable side effects I became infatuated with photography and picture frames. I abandoned everything else in my life to fixate on it. I got really invested in photo editing and gifting everyone in my life picture collages. This is something I liked before but this was a whole new level. I finally got back on SSRI and the more ADHD traits came out. That being said im getting an autism evaluation but I think it's really amazing that this community had been so accepting of self diagnosis being valid. It's weird to look back on your childhood and all your "weird quirks" in a completely different light.

[@lovelyamethyst]

I actually went through this process last year. I was diagnosed with ADHD and broad autistic phenotype. They didn’t want to diagnose me with ASD because I had developed coping skills. I’m 32. And a woman. So of course I’ve developed coping skills and masking skills. Otherwise, I’d be homeless. But, they basically told me I wasn’t disabled enough to have ASD. My primary doctor disagreed with that and changed the diagnosis, so I am diagnosed with Autism. But it was incredibly frustrating because I KNOW I’m autistic. And even my older sister has started pointing out things that very obviously pointed to it when I was a child. Like… refusing to eat anything besides hash browns and perfectly cooked over medium eggs (the white could NOT be runny) every single day. For almost two years. Or having full blown meltdowns at the thought of someone I didn’t know being in my personal space. Or at not being allowed to sit by my coat. Or the fact that I struggled to interact with kids my age at school, but got along with the teachers. And many, many other things. A lot of them still struggles for me now. We really need better processes for diagnosing adults.

[@AmeliaEarhart537]

I'm 15 and a girl and autistic but similar to how you were, sometimes I ate the same foods for days and I ate crackers (and later chips) with melted cheese almost every day for I think about two years even though it wasn't my favorite food (I'm really burnt out on them now). I had huge meltdowns over tiny things. I do really enjoy being friends with kids but I prefer being friends with adults. When I was one and a half I would scream at the top of my lungs if anyone else was on the same aisle that I was on at a store because I didn't want them there. And a lot of other things too. Obviously 15-year-olds aren't adults but I do wish it was easier for adults to get diagnosed. It doesn't make sense that it's harder. People seem to care more about kids than adults. It's ridiculous.

[@lovelyamethyst]

@@AmeliaEarhart537 Even as a teenager, I had already developed coping skills. Which is normal for girls. Our meltdowns and behavior are often not looked at as symptoms, but as poor behavior. And girls tend to be forced to correct their behavior even when it feels impossible because of it. We’re generally forced to be social even if we don’t feel comfortable being social. So, we end up developing coping and masking skills. I have quite a few safe foods. And a lot of the time, they’re not my favorite thing. But when I feel overwhelmed by flavors or types of food or too many choices, I often go for toast. Sometimes plain. Sometimes with just the teeniest bit of butter cause too much makes it soggy. Sometimes with peanut butter or avocado. Or eggs. But I don’t trust anyone else to make the eggs correctly. Even as a kid, I learned how to make eggs because my mom didn’t always get the white part right. And then I couldn’t eat them. Tomatoes are another safe food for me. Or certain fruits. Then there’s the fact that I don’t understand sarcasm. Or many forms of teasing. So, I generally respond to sarcastic remarks seriously. The same with teasing. Or teasing will really upset me because I process it as the person being serious. And I totally get what you mean about people being in the same aisle of the grocery store. I never liked being in public because there were just too many people. My parents had their own mental health issues which kept them from noticing how different I was. But, I never had a normal first word. I didn’t talk at all until I was about 3. And when I started talking, I started talking in full sentences. I also taught myself to read by the time I was 5. Words just clicked for me. Even as part of my evaluation, my iq for language and words was extremely high. On the other hand, I didn’t learn to tie my shoes until I was 8. I just didn’t get it. And there were and are many other symptoms. Like eye contact makes me deeply, deeply uncomfortable. Even with people I know. Even with my husband. So, being told, “You’re not affected or disabled enough for an ASD diagnosis.” is just insane. Especially based on the fact that we KNOW autism often has different symptoms for girls and that it’s very common for girls to develop masking/coping skills. There needs to be an assessment process tailored to teens/adults. And symptoms mostly exclusive to girls should be considered as well.

[@Nwladylaura369]

Ha - I have 30 + years on ya! No point in getting a professional diagnosis since there is no one to do it and no services in my area. It just affirms my life experiences as being on the spectrum.

[@NiagraOfficial]

I know that I know that I know. I did exactly what you did and am currently looking for a psychiatrist because I won't feel comfortable talking about until I have an official diagnosis. My family would just make fun. As they did the last time ai brought it up. Which I find funny almost because it is ignorant. My parents think autism is strictly rainman or worse things. My moms half sister has 2 little girls who are autistic so I'm guessing it may come from my moms side. I had some major things that were NOT NORMAL from the time i was a baby that I was told about and have videos of. My parents thought it was normal for a 2 year old to get angry and instead of cry, go sit against the wall and slam his head into it rocking. I have MDD, GAD, PTSD, OCD, and ADHD diagnosed. I also have arthritis as a 23 year old and ankylosing spondylitis (though we actually think its lupus based on certain rashes) Ive always known. My gf and her mom with a psychology degree said they had mentioned it but didnt want to say anything because they didnt know if Id get offended.

[@johncane4507]

I didn’t know till last April. I make much more sense now 🤔

[@SuperiorRobyn]

Yes, leaning about the autism symptoms in women makes me feel seen and validated. It explains sooo many of my struggles that others just don’t seem to understand

[@pineapplesky1]

i only started suspecting earlier this year. i had always thought i wasnt on the spectrum based on autistic males. then i looked into it and it was as if i finally, after all these decades, found something that just intuitively felt 100% right and explained my entire life. i took an online test which confirmed my self diagnosis. however, i would still like a professional one due to 2 close women ive confided in, automatically dismissing that i am due to my high masking ability. also ive heard how much harder (and expensive) it is to diagnose autistic females… TY for this vid tho. Much appreciated 🙏🏻☀️

[@wafflenerfy]

Within the past year i started wondering if I was on spectrum, and the more I learn, the more I have the "if you know, you know". That was good enough for me. But then I caught one of your shorts about meltdowns vs shutdowns and I had a 😳😳moment. What you described sounded like what I've assumed were unusual panic attacks and an anxiety disorder that my health care team and I can't seem to get under control. So now I'm very interested in getting tested. If this could explain why I feel the way I feel, maybe we could finally figure out how to manage it!

[@mykittenisaferociousnugget]

I've had panic attacks (a lot) and I recently found out that there is a high chance I'm autistic. My panic attacks could potentially be more fear-related meltdowns due to anxiety, or often for me seem to be releases after shutdowns. Could explain why for me, I get more panic attacks when lots of little things are adding up, but if I'm feeling good and not bothered by many things I don't get them as much, while for "normal" panic attacks, it would most likely be random (occasionally getting them more in stressful situations). Glad I could find someone who kind of relates!

[@johnbillings5260]

I figured it out when I didn't have to wonder why people were acting odd while others seem baffled by their actions. I didn't know the word "stim", but I knew what it meant and why it was done even if it differed from mine. I have always felt some sort of connection from a distance when this happened and wondered why it was so hard for others to see. Then I had my "Oh" moment/period.

[@noonghazi]

You're a blessing.. Thank you so much for sharing this. It's very comforting 💕

[@Karenhypnotic]

I was discussing this with my husband and he suggested that an official diagnosis might not be a good idea because I am my daughters guardian who is disabled and in Illinois one disabled person cannot care for another disabled person and therefore I would not be able to be her guardian and possibly not be able to be her paid caregiver. So I’m not sure if this is some thing that I should pursue or not.

[@Nwladylaura369]

Do not do it! Just know it for yourself and continue to care for your child.

[@melissawalsh8760]

If getting a professional diagnosis would do more harm than good, then don't get one.

[@DS-zo8xs]

My evaluation is in 10 months. I'll be almost 29 by that time. I've had a suspicion since I was 14.

[@ANGEL_BOB_YT]

Self-diagnosis is valid but most people don't know anything about themselves they are not professionals

[@PsychicRenegadeTarot]

I self diagnosed… but I am thinking for validation and to explain it further to loved ones I will need a professional to agree.

[@demondaddy328]

I self diagnosed around 29 and have considered going for a professional diagnosis. When I mentioned to my GP that “I think I’m autistic, it makes a lot of sense to me and gives me comfort” he said (verbatim) “you shouldn’t say that about yourself. There’s nothing wrong with you. We always have great conversations and you’re just quirky.” I explained to him that I didn’t think there was anything wrong with being autistic and used the analogy that when I was a child I became very sick and didn’t understand why. Then I was diagnosed as a type one diabetic. Suddenly I understood my body’s needs and had resources to take care of myself properly. I told him I felt the same way about being autistic. I grew up thinking something was wrong with me and that I would just never know what it was and why my brain worked the way it did. Allowing myself to self diagnose as autistic opened up my world to resources (specifically other autistic adults sharing their stories) and it gave me an understanding of “why I am the way I am” in a world that never made sense to me. Still, he stated it wasn’t necessary for me to be “diagnosed” with something that I explained to him “wasn’t a bad thing,” and therefore I feel that self diagnosing is sufficient not only for myself, but for so many other high-masking individuals who aren’t taken seriously.

[@partyinthecloudkingdom]

self diagnosis is how i got my adult diagnosis. most people who realize theyre autistic as adults dont have support requirements that would require caretaking or much accessibility tools at work or school (i certainly rarely use them) but it does open up pathways for support within the community and understanding how yo self regulate your symptoms better

[@evolutiontail5697]

Her voice is so soothing

[@MomontheSpectrum]

aww thanks! 🤗

[@Mushroom321-]

Yes!!!!😮😊

[@hufflepuff2325]

I self diagnosed because sadly my family doesn't have the money for a real diagnosis at the time but when I told my brother, he started going off about how I "don't seem autistic" and I think what it really was is that a lot of the boxes I have checked, are things that we are similar in. But I've been researching heavily for around a year now, taken notes and my mom even put learning about it in my science class (homeschool is awesome). I firmly believe I'm autistic and sometimes I have to remind myself that no, I'm not faking and that this is something I've done for many years and on some cases my whole life. The same thing goes for ADHD with me

[@hufflepuff2325]

@Alabious thanks but I'd rather stay Autistic

[@Aviendaspearsister]

I don’t talk to the people any more who needed me to get a professional diagnosis. If you need that then I don’t want to be around you.

[@TRXST.ISSUES]

Super useful video for aspies / neurodivergents / HSPs / Highly Sensitive People … I agree with your sentiments on using aspie as a term however. 💪 Hopefully KZbin catches on to how great your channel is

[@alexskywalker5478]

Im 27, I realized I was Autistic at 21. I can't find an autism diagnostic for adults that also takes my insurance. They either do adults but not my insurance, or they do my insurance and only children. It's so frustrating trying to get a professional diagnosis with this neverending loop.

[@Plattjud]

I got my diagnosis as an adult. So far, I've had two therapists quit on me because they say my needs are higher than what they can provide. I suffer from a lot of anxiety and sensory issues. I wish that I could find a psychiatrist and therapist that can help me with my symptoms. Most therapists don't know how to treat ASD. Sometimes I feel hopeless because I don't have the right of health care providers that would understand. I see a nurse practitioner, and when I see him, he rumbles and rumbles during our session, and I feel like gagging. I wish that I could find someone who is qualified to treat me. My family has a hard time understanding my symptoms, especially my husband, and then after masking for so long, a shutdown arrives, and it can last over a week. During that week, I need a lot of space and time to recover, and I can't hardly talk to anyone. I am not able to drive because of vertigo. My therapist just quit on me, and she let me know via the front desk. Her name is Paige, and she didn't have the decency to give me any notice. I don't know where to look for sources. I feel lost 😞

[@TheAncientAmbassador]

Thanks for putting this message out there! 🥰💛

[@TRXST.ISSUES]

Your channel will blow up this year, keep up the great work, you’re doing phenomenally 💪🙏🔥😎

[@MomontheSpectrum]

Thank youuuuuuuu

[@vanillablossom]

Only recently I started thinking more about being autistic. I never could relate to my peers at school, I loved learning and the routine, but not my peers, didn't want spend time with them, hated group settings and couldn't navigate them. I was bullied as a kid, so even as older teen or young adult avoiding my peers was normal to me. Having troubles in group setting? Oh, I'm just not used. At times I felt like that's not all, that between the others and me is thick glass wall, but couldn't say, why. As about ten years ago I read about autism, it somewhat did fit, but also not really - as they were mostly describing non verbal, severe cases. And autism was (is?) perceived as male dysfunction only. As I told someone I may be on the spectrum, they told me they don't think so - and I believed them, after all most of the times I get sarcasm, I don't think I'm that picky of an eater, sooo... I'm normal, right? But then the pandemic hit, lockdown, and even after that my friendships aren't the same. The contact lessened and I kinda forgot how to talk with people. I realized I was copying them, more of less aware of it at the time, it was actually one of my coping strategies to fit in, to somehow express my sympathy towards some. And there was one person I thought I'm about to lose - and I don't wanna that. I was talking close friend and venting how difficult and confusing social things are, how am I supposed to know what the other person thinks, that they have this magic ability to say / do something before I think I need it, I don't even know what I feel most of the times! and the friend told be they aren't a professional, but I do sound autistic to them. Since then I carefully dip my toes in ponds of knowledge about autism, googling every now and then how normal is this or that for an autist / nd person. I did some tests and they say I'm high functioning, masking a lot etc. Still, I'm not sure when / if I'll get diagnosed. It costs and I'm not in the situation rn to spend money. Many in my country still believe mental health doesn't exist / isn't important / only crazy people visit psych profis and so on. Autism is recognized, when you are diagnosed as toddler and non verbal. I'm not comfortable when talking to strangers. I could easily run into someone who'll dismiss me. I'm "well" functioning, after all. I have higher education, not a dropout, there's no way I could be autistic, right? /s

[@Vandalynn]

For me its a bit frustrating because i definitely have ADHD but have about half of the autism traits that ADHD doesnt already cover. Specifically my social skills suck even though ive figured out how to function at work.

[@louisasmiles]

For anyone in the UK, a diagnosis was amazing for me. I come under the 2010 disability act. Im legally protected. Been amazing. Get it official if you can

[@piiinkDeluxe]

I am also 31 and i think i might be on the spectrum. I hesitate to get a professional diagnosis because it can create obstacles in other areas in life. I might ask my therapist about it though.

[@acelibrarian]

If you're in the US, you have zero legal obligation to share anything about your diagnosis. No one can give you grief for what they don't know about. Share it when it helps you, refrain when it might hurt you.

[@piiinkDeluxe]

@@acelibrarian usually, those things are private in Germany (where I live) as well. But some professions are an exception. I want to apply at the police for example, they will ask your entire medical history. (Because you will be an employee of the government when you successfully completed the training. And that comes with lifelong benefits (best health insurance, they have it really hard to terminate your position, really good pay, including benefits for the family etc.) that's why they check you this intensly.

[@shelbybutler9714]

At age 50, I am on the fence regarding an "official" diagnosis. I fear that it would hurt me more at work than it is worth, because I work in Finance. A "disability" still has a stigma. Self diagnosis has provided me with so much closure and peace of mind, though. Thank you for your channel!

[@Opal5674]

The only thing i worry about is that disorders and things become trendy. In early 2000s everyone was saying they were bipolar or had OCD. If everyone's neurodivergent then no one is.

[@TRXST.ISSUES]

Hopefully the engagement / comments helps push the video - once you’re rolling with a healthy snowball of peeps things will continue to take off.

[@jadegoble2972]

Im 32 years old. And im now just realizing i may have adhd and now possibly asd. And my 11 year old daughter

[@jamie2397]

My psychiatrist literally just said exactly this to me.

[@catherinecummins2847]

If you know, you KNOW!🥰

[@chengershuni313]

You're absolutley right - Self diagnoses are totally acceptable within the Autistic community for as long as I remember - Starting in the 1990s, within Autism Network International, Autreat, etc. Continueing into the 2000s, within Aspies For Freedom, Autscape, the Autistic Self Advocacy Network etc. And up to the present time. Although, as some Autistics prefer to say - it is self identification, rather than "diagnosis".

[@MomontheSpectrum]

You are the second one to mention “self identification” or “self awareness.” I love it!

[@AnnoyingNewsletters]

Didn't see wrong planet mentioned

[@genio2509]

I never thought of that until I was chatting with my cousin about how one of hos friends was slightly autistic, he was kind of close to me, and I never realized that. That got me thinking and researching autism signs (symptoms?), and I feel I may be just a tiny bit. (I'm currently 16) But once I was working with my parents, when the music started to annoy me, like it came from everywhere and felt a bit dizzy. When I explained that to them the jokingly said, You now believe yourself to be autistic?, and as a bit annoyed of the music I just said yes without much thought, and they got mad at me because I shouldn't be saying that.

[@RebelleRed]

Thanks! I self dx with ADHD and was able to get a professional dx pretty easy but I have definitely run into problems getting assessed for ASD. I grew up in a very dysfunctional and deceptive family and being adopted I have an inking my parents knew but just never told me.

[@sayusayme7729]

In the process, but self diagnosis would definitely fit. Thank you

[@andreagriffiths3512]

Yup. The ‘professional’ I went to (age 40 and life completely collapsing) told me I couldn’t be because I was female and could talk. Likewise he said I had agoraphobia because I didn’t like shopping. I paid $500 to Mr Clinical Psychologist and told him he was an idiot. In hindsight I should have waved all the online results that clearly said something was going on.

[@Amara262]

It's nice to have this reinforced. There is only 2 psychologist where I live and it seems practically impossible to even get on their waitlist, nevermind get an appointment. I would really love an official diagnosis, but I don't know if it will ever happen for me.

[@jeffisawesomer]

I self diagnosed with cerebral palsy at 14. It’s really hard to get that diagnosis because doctors aren’t willing to help people like me.

[@Journeytobarzakh]

We’re very good at masking. It’s hard to get a diagnosis nowadays. My GP sent out a questionnaire and now you have to meet certain points and requirements to get a diagnosis. It can take years to receive one

[@mrdgenerate]

People want the diagnosis to "validate" what is essentially a new "quirky personality trait" they get to show off and its disgusting.

[@Jadedjade2000]

#actuallyautistic #letautismbeautism #trauma

[@foreverwander0320]

Oh wow… this makes me want to cry. I’m 41 and this year my husband lovingly presented me with some information on adult autism. I had never considered it because of my own pre-conceived notions but as I began to research it felt like all the disparate “quirks” and struggles and “inadequacies” of my life suddenly came into focus. Every test I took, every symptom I read about, felt so familiar. There was a reason! And terms for things I could nev put into words! Hyperfixarion, masking, stimming, dermatimania, time blindness, naivety, sleep issues…. On and on. Everyday life, social interactions, stimuli, expectations… things that always seemed harder for me than others in a way I couldn’t explain… there was a reason! I don’t have the money right now-or any time soon-to pay for a specialist who can give me a diagnosis. My primary doctor and a counselor I saw for a while both agree that I likely have some neurodivergence going on. But without formal diagnosis I’ve felt that it would be wrong to talk about it with anyone or seek support. This makes me feel so seen! Thank you

[@PercivalBlakeney]

Hi there, I feel it my duty to make a suggestion. You might want to go along to meetings of AA (NA, GA…&c. &c.). M. Scott Peck says it's a whole lot cheaper than regular therapy and in many cases just as effective. There's no secret to it, you just show up. Best of luck (and just had my diagnosis for ADHD… you are not alone. 😉). 🌷😁❤️

[@TRXST.ISSUES]

These shorts totally need to be on TikTok!

[@MomontheSpectrum]

I knowww but I’m trying to do less social media. I got off totally in sept 2020 and it was awesome. I snowball into it and don’t come out of it. Super appreciate the support though.

[@TRXST.ISSUES]

@@MomontheSpectrum 100% understandable, it can be a distraction! I did similarly in 2020, anytime!

[@veronicawalsh1841]

I have a 23yr old daughter that I feel is on the autism spectrum. And I also have a 33yr old son with Autism. He was diagnosed through the school system at age 4yrs old. He was more severe. Now I'm learning that my daughter was good at masking. I never saw the red flags on her. Its so much harder and more expensive as an adult.

[@mimialways22]

I got diagnosed with different types of mood disorders, personality disorder, suicidal tendencies before my ADHD late-diagnosis. Diagnosis from a trained specialist is expensive as fuck. The mainstream medical establishment doesn’t train professionals to detect autism in adults the way they train them to detect mood disorders and personality disorder that gets covered by insurance. Decided to self-diagnose as ASD in order to make sense of my executive function challenges and sensory processing challenges along with undiagnosed learning disability of potential hyperlexia and poor working memory (plus I found out my biological mother was in special ed in the late 70s/early 80s, undiagnosed learning disability, in her own world of restricted interests that no one else would find interesting, attention deficit and very socially inept worse than me) Once I found out my mother’s history in special ed then this was clear to me to be undiagnosed autism!!! The psychiatric, behavioral health and mainstream education system failed us or failed to recognize us. I had speculations of my myself being on the spectrum 5 years ago, but once I heard my mother’s history, I accepted my own self-diagnosis.

[@keyc.1109]

I am going to fall on the "needing a professional diagnosis to convince those close to me" side. I am pretty sure I have ASD because my ADHD diagnosis doesn't cover all my issues and ASD does, unless there is some obscure mental illness that I wouldn't have heard about on my own. But my husband is hard set on there is no way I have ASD.

[@Lady_Elizabeth_Brenner]

I am 16. I think I might be on the spectrum, but my parents are antivaxxers and they think an unvaccinated kid couldn't possibly be on the autism spectrum. I am doing extensive research now, and will try to get an official diagnosis when I'm 18.