Autism Self-Diagnosis

[@allaboardreading]

I self-diagnosed with Asperger's Syndrome, and when I started sharing this information, people didn't seem convinced. So I pursued an official diagnosis, which took a while to figure out where to even get one, but eventually I received a diagnosis of Autism Spectrum Disorder (at age 32). Having an official diagnosis does make it easier for me to share this information, because I feel like people are less likely to discount it, but I understand the struggle as there was a period of time when I had self-diagnosed before I got an official diagnosis.

[@paxundpeace9970]

For someone with a high demand off dependency it might be helpful to get proper help and support, but for other people often adults it could turnover there life.

[@Freedashin69]

I just turned 32 and I'm going through this process now in getting a diagnosis. I've told my family and they have not responded well. They discount everything I say and just call me lazy. I just want help so I can work a job, I'm not sure why that's so bad.

[@Wiz.37083]

@@Freedashin69 I worked with my stepson and thought he was lazy... years later, I found out he had sensory issues and had been diagnosed with Asperger's...in the right environment, he was a hard worker... There are alot of people out there who will accept you as you are (and there are plenty of shallow people who won't)

[@lopadia]

A diagnosis is always preferable to self-diagnosis. However since the process of getting one is a lengthy, and in a lot of places an expensive process, I don't see the harm of self-diagnosis in this case. Great video!

[@murpheey]

@Hai Hai This idea is what makes so many autistic people go undiagnosed. A neurotypical rationalizing your traits is already annoying as fuck to begin with: “you’re not autistic cuz I do that too” just prevents people from seeking a diagnosis. Even then the cost for a confirmed diagnosis isn’t worth it for some people.

[@murpheey]

@Hai Hai Lol no 😂 I’m kinda torn because I don’t necessarily think self diagnosed people should go around telling people they have autism, but at the same time I recognize what they’re going thru.

[@PsychicFX]

I think there can be harm in self-diagnosis. A psychologist can take a more unbiased view at a certain situation. People have a tendency for fallacies like confirmation bias and selffulfilling prophecies. The fact that's an expensive and lengthy process is absolutely correct; however expensive is a (political) healthcare issue that doesn't get resolved if people self-diagnose. And lengthy depends on if you refer to the research process, because a lengthy research is not per definition bad. However long waiting time for being able to see a psychologist is absolutely frustrating and bad. In my opinion, a person who studied to diagnose knows more and is better capable at judging whether or not behaviour is on the spectrum than someone who has an assumption they, themselves, are on the spectrum. It's really prone to fall into the confirmation bias/self-fulfilling prophecy area. I understand the need for answers, to explain why you're the way you are. But I don't think self-diagnosing anything from the DSM is good move. Obviously if you have your doubts; talk to a professional and they can do their work, and if they diagnose than you have a definitive answer, but don't do it yourself. As much as you know yourself, there's a reason psychologist don't treat or diagnose themselves or anyone close them. Just to clarify, this is not saying that a person who self-diagnoses is invalid, I just think it's an incorrect move.

[@muackisaid9123]

It is very harmful. It creates stereotypes and false information. Either you have autistic traits or you are autistic.

[@elenamenendezgonalez9881]

Yap, I resonante a lot with face he autism spectrum, but am currently not able to get a diagnosis, because I would have to spend some time in for instance the capititol (Berlin) to get in contact with specialists. (I will try this summer hollydays). But for the few month that I have been using tactics, that are used with autism, I have been able to feel far better. So even if I'm not autistic, even the question of it really does help me to understand myself better.

[@mezlandia]

Self-diagnosed Aspie here... A doc at my elementary school told my mother that I had "mild pervasive developmental disorder" but not enough for intervention or to put me in Special Ed. However, I was put into speech therapy class at school, but I had no impediment. I had selective mutism, I believe. Diagnosed with ADD a few years later, then anorexia following meds (Ritalin) and picky eating (and unreasonable parents). I was intolerated by many teachers (except art, music, science teachers) all throughout my adolescent school years. I was told that I was "gifted" by so many people and not understanding why they said this when I struggled with life in general. I was given a diagnosis of Agoraphobia, after a year of 2 great physical and emotional traumas. I always felt like the odd one out, "different" and it made me depressed, as a child and into adulthood. Adults taught me that it was rude not to look at them when they spoke, and I felt unable to explain my anxieties, so I chose not to speak. My pediatritian understood autism to be severe (and a male issue) and would not send me for follow-up testing, after my school's assessment. Perhaps I would not have worsening, unmanaged symptoms and feelings because others thought that I was "just shy" or "rebelious". Learning ANY coping skills during my younger years would have been much more impactful. As an American, I feel that the lack of acceptance towards neurodiversity, access to mental healthcare, and the inability to understand one another is so detrimental to the health (and wealth) of the entire nation.

[@heedmydemands]

I hope u r doing ok

[@YoSamdySam]

Love this. You explain everything so well

[@StephanieBethany]

Thank you!

[@xtgeek]

I did research in my 50's and gave myself a self-diagnosis. Then I went and talked to the medical community to confirm my Aspergers. I got my confirmation, but still years later I am confused in social situations as before. I guess if people don't except me, that it's their loss. Great video, helpful info.

[@loverainthunder]

I'm replying to this " years later I am confused in social situations " I read Ian Ford's book. An Aspergers guide to earthlings. Read this if you want help with some social situations and understanding some Non Asd people. I see it as NTypical's are basically always LARPING. Meaning they adopt an identity in relation to the identities of the other people around them. Then they seek out and support each other's identities. As compared to ASD people, NT's are codependent. If you don't notice and somehow support their identity, they feel wounded. (LARPers are people roleplay medieval times etc.) NT's have a highly developed fantasy life that they view as reality. If you are unaware of their "persona" and therefore don't respect it they will get upset. It can be extremely hard for me at least, to discern whatever "character" or "persona" they are supposed to be. What is or isn't acceptable is dependent on their persona as well as what persona you're supposed to have. They aren't trying to be fake, they can't help but develop this identity somewhere around pre-teen, teen years. This is why they say "who do you think you are" because who you are has a direct bearing on who they are, and how they must treat you. When they say that its because they feel they shouldn't have to play whatever role they believe is the "partner" to the role you are playing. They are constantly validating, invalidating and battling for whose role has the most integrity, meaning stays in character, and is the best, according to their persona's values.

[@monogramadikt5971]

this is what makes me reluctant to even bother with an official diagnosis ? i just cant see how its going to change anything in my life at this stage. maybe if i had known what this condition was at an earlier stage i may have been able to avoid all the self destructive behaviour that ruined the chances of anything good ever staying as a static ongoing feature in my life. especially in regards to personal relationships. i have pretty much become a recluse these days and dont even try to make connections with people anymore. its just to exhausting having to contort myself into something i think resembles a normal moderate person. and even when i do, i dont think people are buying it %95 of the time anyway

[@gmlpc7132]

@@monogramadikt5971 My experiences are similar and I have also pretty much socially withdrawn. i think a diagnosis can help some people get more support, e.g. in terms of employment, but the process of even getting a diagnosis can be daunting. Private diagnosis is very expensive and may not even be recognised; diagnosis through free health care such as the NHS in the UK can take years and an autistic person may not be able to wait that long if they need support now.

[@monogramadikt5971]

@@gmlpc7132 yeah im in australia and its a similar thing here , good luck if you need gain access to legitimate mental health care workers etc. years and years ago i had to go through a long process of drug rehabilitation, i was long term homeless and in a really bad way. the waiting lists to gain access to services are years long these days, a lot of people die long before their place in the que arrives

[@gmlpc7132]

@@monogramadikt5971 Whatever is said officially about "parity of health care", psychological conditions and mental health are the poor relation of medicine. Medical staff (especially doctors) feel much more comfortable treating physical illnesses. Long delays are the norm and a cynic would say designed to discourage people from seeking help. Children might get better service because of the view that "they can be saved"; adults are generally written-off unless they are very fortunate to find supportive staff and a well-resourced service.

[@katherinehealy4208]

After taking several online quizzes, reading checklists, and watching videos such as yours, I’m pretty sure I’m on the spectrum. However, I’m 69 years old, have managed to function reasonably well over the years and have raised four children, so at this point in my life an official diagnosis is not something I will likely pursue. Thank you for your insightful videos and information.

[@dccentric1575]

I think you’ll know that you’re on the spectrum if you are. Relatability to others with Aspergers is undeniable if you have it; especially after going through a lifetime of frustration with not being able to relate. The stigma attached to it is definitely scary. I agree however, get a professional diagnosis if you can but if you can’t....whose business is it anyways. You’re peace of mind is all that matters. I’m so happy to be a part of this community ❤️ (late diagnosis here, tested on the spectrum a couple of times but still seeking a professional diagnosis). God Bless All!

[@kitchentowel-g8d]

Not seeking a professional diagnosis exempts you from help that would otherwise become available. Additionally symptoms of being on the autistic spectrum aren't "one size fits all" and people usually mis diagnose due to assuming they're autistic because they're "different" Not going against anything your saying just pointing out seeking an official diagnosis should be priority in order to ensure your mental health needs are met in an acceptable manner

[@glowdoll183]

I've taken every quiz I've come across in the last few years and they always tell me that I am. Not a single one has said otherwise...All the checklists have been the same. I've also made sure I ruled out other disorders by doing the quiz for BPD etc. None of those ever fully lined up with my experience and often came back with different results every time. So at this time I'm 1000% sure I am Autistic. It just sucks that getting a professional opinion is like pulling a horses teeth, which I think would be a very hard task.

[@jerrydinsmore3010]

The same way I don't need a doctor to tell me I have a cold .. after reading, listening to people online and taking several online test and my life experiences indicates to me, I am on the spectrum .. I always knew I was different just didn't realize why...

[@LindEco_99]

Perfect comparison.

[@mbm8404]

Same here! My therapist convinced me finally but I was sure for many reasons I just didn’t want it to be true at first based on a 1970s bias about it.

[@ShadowIsMoi]

I'm terrified to self diagnosis because if I'm wrong idk what I'll do with the guilt 😭😭 but i accept others who have 💛

[@AnimaMandala]

The simple acknowledgement that you may be mistaken is all you need. Even if somewhere down the line you learn that you are officially not on the spectrum, it doesn't invalidate your experiences or reasonings now.

[@sherrypolleyauthentic172]

You’re sharing my story! I am 35 and I know I am autistic, but I can not find a diagnosis provider, who accepts Medicare! I hate that I can’t confidently say, “I am autistic.” And I don’t have that validation of a diagnosis to help me assure people about it. Family and others are very eager to say, “you’re not autistic.” As you shared, they are simply misinformed. I resonate with you a lot! Thank you for your videos. I also have a channel, but mine just shows me being crazy lol. Nice to meet you!

[@StephanieBethany]

Nice to meet you as well! ❤

[@ania5078]

Hm, I'm close to self-diagnosis. I wish I was wrong, but at the same time it would explain, why I function and process information in so much different way, than everyone who surrounds me. It's like sitting in a glass box, which separates me from others in some way. It's difficult to relate to them... I have no idea where should I seek for official diagnosis. And no one want to be stigmatised for it, including me. Especially at work or in social situations (they are difficult without stigma).

[@IndieAndy]

Hi Stephanie, really loved hearing your take on this! I also found the idea of someone saying they're autistic for attention etc to be a weird concept because of the stigma that sadly surrounds it. I think that self-dxing is valid but of course seeking the advise of a medical professional in the first instance is the best way to go for sure. Also just to add as well since we all experience things in a way that can be unique to us, it can be hard to relate or understand if you don't experience something yourself. But that's doesn't matter that their experiences aren't valid or don't deserve to be heard. You really handled this brilliantly and I haven't said this yet but LOVE the hair!!! 👍😊

[@StephanieBethany]

Thanks for sharing your thoughts! And thank you!

[@Henshingod]

@IndieAndy I think it's very possible that some individuals may see their autism diagnosis as a "get out of jail free" card, If they say or do something that goes against social norms or get called out for being rude, insensitive, selfish, or impulsive. This is more the case with mature adults who now likely have to deal with autistic children or other autistic adults, the autistic person may feel as though that their diagnosis makes them above criticism, therefore spreading it around to as many people as possible can create sympathy that they autistic person sorely craves. Unfortunately, I say this from hands-on experience. This is partly why, unlike other neurodiversity advocates, I am not willing to give up on ABA as a potential therapy.

[@cococock2418]

It;'s not a weird concept at all. Basic psychology. People see on social media people with autism, tourettes, etc getting heaps of praise and attention (and sometimes even make a living off it), so people do it. Tiktok has had a bevy of these people exposed for this very thing. I actually find the fact that you guys find it weird suspect as hell. Why is your gut reaction to deny that this happens and try to drive us away from taking a critical look at it? The "stigma" you claim the disorder has is completely non-existent on social media. You are given praise and adoration for it, not made fun of. This isn't 1934.

[@code-grammardude5974]

I have done an absurd amount of research (it's turned into an obsessive interest), I've taken 6 online quizzes (which all tell me I'm autistic), I've had a chat with a therapist, and I've watched many people share their experiences with autism. I'm pretty convinced I'm autistic. It would be a great relief to get a diagnosis so I have the peace of mind of having an answer to my life, as well as helping others understand me a little better.

[@sirfizz6518]

Thx for your openness and vulnerability. Also for actually equalizing your mic audio reasonably😊

[@cruelcumber5317]

With the whole COVID situation making things even worse, I am constantly tormented by my inability to get a proper diagnosis and being left with my self diagnosis. On one hand, I really "feel" it deep down and almost every other day I remember something I use to do or start actively noticing something I do all the time nowadays that further adds to my confidence of getting a confirmed diagnosis. On the other hand, I'm worried if it's just that I want it to be the case that I have autism and I'm getting my hopes all high only for me to get a negative diagnosis. Like, I don't want to be an anti-vaxxer and not trust the professional, but I know a negative diagnosis at this point would be crushing, let alone whenever I would actually get the proper evaluvation, and that some people have had experience with overly dismissive professionals.

[@jadenbandit1204]

Same place over here. And ive been investigating for years already. Been unprofesionally "studying" about psychology in general a lot. But i feel people would judge me because i dont present any sterotypical autism signs like "lack of empathy" "good at maths" "doesnt have friends" kind of thing. I had a psychiatrist tell a friend of mine that he cant have ADHD because hes doing good at school. That missinformation by a professional really takes away my hope. He got diagnosed with ADHD anyways by other professional. Im just scared of the unpredictable reactions and judgement, I already have a lot of that every day... I struggle every day and it would make sense if i had ASD, but i do have empathy and i dont struggle with having friends, i just struggle to socialize in forms like eye contact, distance, tone of voice, understanding peoples reasonings behind their actions, talking too much or too little etc... Im just scared to talk about it and that instantly they would dismiss my doubts and judge...

[@Evanx373]

I believe I have Asperger's. I can't afford a formal diagnosis but I was diagnosed with add and while the meds help it doesn't explain everything that's always been going on with me.

[@loverainthunder]

At this time I have no money for a diagnosis, so I have to accept self-diagnosis. Also, what's calmed my mind is seeing how educating myself on autism has helped me understand my life, as well as understand the people around me! This has been wonderful for me, and I feel more confident. It's really priceless. So, what if a doctor were to tell me I don't have autism? I understand life so much better now, that I would have to assume that I have something similar to autism or I need a second opinion.

[@StephanieBethany]

I'm so glad you've found peace and contentment in knowing!

[@clintonwalker5043]

35, this is me. Unfortunately they want $1,800- $2,500 paid out of pocket/refused all insurance. I also can't find any assistance. My friend is also aspy and we have sooo much in common

[@Mrfurball25]

I took the Aspie quiz and it says I more than likely have Aspergers. I’m not sure how much it would help me to get a professional diagnosis. Great video

[@EpicKate]

I'm so glad that you found a community that could help you more than those youtubers who didn't take notice of your comments. It strikes me as brave to jump through the hopes to know something for sure. I think it's so important to learn about how people can think differently and see the world differently so that we can love and accomodate one another better. Especially as a Christian, we should do whatever we can to make life bearable for our brothers and sisters. It must be so scary and isolating to just not know why others don't react to the world or see the world like you do. Especially in how autism in females is so often undiagnosed because women are so good at pretending. Keep up the good work. Also, I'm loving the wig!

[@StephanieBethany]

Thank you so much!! ❤

[@SailorYuki]

I'm self diagnosed and I'm trying to get a formal diagnosis. My referrals have all been turned down due to "your journal doesn't state that you are autistic, therefore we can't go forward with an evaluation" and "we don't accept referrals from doctors" or "you don't belong to our clinic". The last one from the actual clinic I have belonged to for 25+ years! Apparently I live in the wrong zip code. Utgh. The clinic is 10 min away.

[@nppn2782]

Self-diagnose is very important to me. I explain why isn't a bad things as nobody get harm because I self-diagnosed myself but I get positive feedbacks. I'm stuck actually. I had so many therapy sessions since 17 with my therapist and he actually suspected that I have autism and directed me a professional but she said because I could make eye contact and etc she didn't even take a loo about it and just gave me antidepressants and adhd med(I'm glad about it). But with a lot of research I'm pretty sure I'm autistic but again I can't go to a different professional for a few reason. 1. My country(Turkey) isn't very bright about this kind of topics. People wouldn't look me same. 2. I am 19 currently in law school if I get a diagnose later in my career it will bring a lot of trouble. Like I said people wouldn't look at me as their lawyer for example. I wouldn't be able to apply to exam in order to become diplomat. 3. In my family I am the "perfect golden child." with good grades. They won't believe me. I tried. They even don't think I have adhd even though I have a diagnose on it and I have an autistic uncle who also has mental retardation so they just say I'm not like him 4. Financial. 5. Time 6. Trouble for adopting. One of my dream is being a foster parent and a diagnose would make it impossible. So For now I won't get a diagnose. If the conditions change I would try

[@JD96893]

Bit of an old video, but what she says really resonates with me. I am almost sure i am on the spectrum. I also completely agree with you regarding self diagnosis, it has really helped understand myself better and take care of my mental health better. But i really want to share it with others and have them actually believe me. I don't have a lot of self confidence, and trying to tell someone something personal when all my life I've been dismissed and told that x thing cant be true, it is really hard. Without an official diagnosis making excuses for something is difficult and the stigma/fear of not being believed is a big factor. Thankfully i'm self employed, but i still feel like getting a diagnosis could help me get the help and accommodations i need. The problem is i don't have money to seek a diagnosis, and there isn't anyone in my area(near or far) that diagnoses Autism in adults. Even if i do find a way, there is always the fear of being rejected. After all, I've managed well enough for the past 25 years.

[@Tealinia]

I heard that one of the major reasons those who are diagnosed and dislike those who self-diagnose, is because self-diagnosed people are "trying to take away resources." Well, we literally cannot access any of those resources without a diagnosis, so that argument is just dumb. I took on a self-diagnosis. I'm not looking for any resources, (for Pete's sake, I've gone my whole life without them, I certainly don't need them now). For me, the idea that I may be autistic is an explanation. It's the "ah-ha" moment that told me, "You're not a freak of nature, you're just autistic." And if people hate me for that, then so be it. I'm not responsible for their happiness. I'm responsible for my own happiness. And knowing that there's and explanation for everything that was "wrong" with me makes me happy.

[@83lulube]

My husband recently suggested that I might have it and I also said "no way, impossible". I look back at childhood and realize it's very possible. I do have diagnosed ADHD. Pretty sure I have both.

[@jaded9087]

Tell you the truth . I have both . I cant tell wgere my asd begins and my adhd finishes. They have many over lapping traits . You may just have a higher level of inattentive type of adhd and that still feels alot like asd. Im combination type adhd but on the high end of the scale of inattentive type. If you had been assessed with adhd , they should of done a recommendation for further assessment needed for and a list of . In my ASD assessment, thats where they listed i should be assessed for adhd , autorty processing disorder and dyslexia. On top i did a MMPI that rulled out any personallity disorders

[@mireillepoirier9688]

I have always known something about me was different, I just didn't know my experiences had a name. I attributed my socially awkward traits as shyness, my food sensitivities as allergies, my spiky academic performance as just being selective about what I wanted to learn, my lack of motor skills as being clumsy, my sensitivity to light being migraine related, my sensitivity to smells being allergies too, and a plethora of other things, such as social anxiety and depression. I didn't realise that put all together, it's ASD. I am self-diagnosed, but am seeking an official diagnosis in case I need adaptations and accommodations for school and work. Thanks for this video. I've disclosed to some people what I suspect and they've been supportive, but I've had one friend basically dismiss me saying that self diagnosis isn't valid and I shouldn't accept it. This makes me feel accepted and let's me feel like I'm not crazy!

[@matttalksbeer1474]

I believe i'm on the spectrum, my father had autism (he passed away 3 years ago) and also my 2 year old son was just diagnosed by a neurologist as having autism. I have a difficult time looking people in the eyes when speaking to them, I also will tap my feet as away to self sooth, i'm also very socially awkward, I often don't know when it's time for me to speak and when it's time for me to just stop talking and listen.

[@thatonemessyartist1760]

I am currently self-diagnosed, but my physiatrist has agreed that that I exhibit a lot of autistic traits, and now I’m going to be tested for autism. There’s a really long waiting time to get tested, but I’m fairly sure I have it, so I’m excited to have an official diagnosis!

[@misense-ationallife3581]

I follow you on KZbin and a few others and all of you have been a Godsend. There’s too much misinformation out there from those who don’t have it and because Gods putting this on my heart and I know and feel that this is my calling, I’m currently taking the steps to become an autism activist and start my own Chanel. My son was diagnosed 5 months ago and in my researching I realized that I myself was as well and as they say “ my life made sense”. I also realized then too that he’s not the only one and most likely all 6 of mine have ASD. I would love more insight as to how to get started and what better way, than to ask you! I was told by a psychologist that I do have autistic traits but I’m still proceeding with formal diagnosis so that I will be taken seriously because I have so much to share and my life experiences and I know this is my life’s purpose. Your channel as been a blessing to me, thank you

[@themindseyecmh]

First of all thanks for your video. I'm not diagnosed with autism, in fact autism never even crossed my mind until a little over a year ago, because of my son.... all the 'Autistic traits he was showing were all traits I have or had when I was little, so it got me thinking....I started researching and talking to some autistic people I know, and so must resonated with me... some people i reached out to actually thought i was autistic and was suprised i wasnt diagnosed... come to find out my mom was supposed to have me tested when i was little, but she didn't...in my heart of hearts I believe I'm on the spectrum, so much I read or hear from other autistic people makes so much sense and explains so much about me, but like you, I'm hesitant to claim it just on a self diagnosis, because I don't want to be misleading.....at the same time, though I'm pursuing a diagnosis....it is a very difficult process

[@n1fffan]

I started suspecting I might be autistic when I was in my 20s, although I had family members that suspected it when I was in my teens, when I started researching it and noticing plenty of stuff I was finding sounded like me. At some point, I took the AQ test, and it told me I was likely an aspie. even with all that, I kept doing more research, started watching aspie tubers, and started hearing more and more things that I seemed to fit over time. I'm 33 now, and am pretty convinced that yeah, I'm probably on the spectrum, but do not have the resources to get an official diagnosis, and am kind of not sure where to go from here, have had people tell me it's not worth it, and vexxed as to why I spent most of my school years in special ed, I saw a therapist for years as a kid, and yet it was never considered by professionals afaik

[@RisaPlays]

It took me 10 years of inconsistent research on almost every possible mental health diagnosis I could read about before I finally settled on adhd and autism as relating to me the most. Even 5 years later, I'll still go back over things to reassess multiple times with why I accepted one thing but eliminated another. I'm pretty damn certain of my self assessment. I just have to be as accurate as possible, or I'm not satisfied I've done enough research and self reflection. A psychiatrist officially diagnosed me with adhd but said he was not qualified to diagnose autism. It's a lot harder to find someone willing and able to diagnose me with autism, so I'm stuck with self diagnosis. I'm certain. The only thing that concerns me is being taken seriously if I tell someone it's self diagnosis.

[@defective1331]

i was late diagnosed with ASD. i never thought i had autism and never said i had autism. i never thought that i wanted autism either. i never suspected that i had it. i just went through life being different than everyone else and getting yelled at for not talking loudly. i was made fun of for my posture and looking timid because i always looked down. i was bullied by kids in school and adults later in life because they thought i was weak. people always asked why i was nervous. but i was daydreaming inside and not living in the moment. i had no time to be nervous. people read my facial expressions wrongly. or i had no idea how to express my emotions outwards. i still do not. people think i am angry now and yet i am emotionless because of my psychiatric medications. i cannot read peoples faces and tell what they feel. vise versa. you cannot read my face and tell what i feel either. my face lies to everyone.

[@AnimaMandala]

I am a self-diagnosed individual. And yes, I did a fair amount of long-term research before reaching that conclusion. My parents even considered it when I was younger. I get there's always the possibility I'm wrong, but it also gives me that sense of peace. I get not everybody is going to understand or believe that. Just recently someone replied to my comment on another video that self-diagnosis is nonsense, and nobody on the spectrum would be so "egotistical" as to diagnose themselves with anything. It didn't feel good to read, but they said it with such certainty that it came off as a dismissive generalization rather than a true understanding of the complexities of the spectrum. So thank you, for speaking up as an officially diagnosed individual who has identified as autistic for themselves.

[@n1fffan]

I honestly hate saying I'm "self-diagnosed". it actually feels icky to me. I'm 32 and while many people that know me have suggested I am autistic, I have never liked out and out saying it because I don't know. Most of the time, I just mention instead that I have EDD (Emotional Dysregulation Disorder), as that is something I have been diagnosed with, but the lingering idea still remains

[@Kattynow18]

I have researched. Read books. Done courses. Work with autistic kids and have forms in for my daughter. But I have self diagnosed myself because it all makes sense to me now. Why I felt so different and never fitted it. Since my self diagnosis I see the world different I change how I do things and feel as tho a weight has been lifted x

[@cradicalcompassion]

I self-diagnosed, and I feel like no one takes me seriously because of that and the fact that I can't fluently explain it to others in the moment. I've been planning to create my own KZbin channel so I can get my voice out to the people I've been trying to & those who have been trying to understand me and can't. I feel like I'd get a lot of hate for creating a channel about autism without an official dx, but I've been trying and failing at finding someone who even can dx me, so I feel like fuck it - I'm gonna do what I do, speak my truth, and I'll get the dx when I can afford to or find that opportunity.

[@StephanieBethany]

Yeah it's so difficult to try to explain it on the spot! Hope the best for you!

[@Michelle-kw8dc]

Thank you so much for this video. I'm trying to pursue a diagnosis, but the way you described this in-between state is so true. It's painful, trying to make sense of your past and what to expect from your future in "maybe" and "probably".

[@benediktornhjaltason7948]

I'm 39 and made the initial discovery 5 months ago and have been deep in the rabbit hole ever since. I'm getting an official assessment in about a month. So at the moment I'm self diagnosed with complete certainty. I've gotten a lot of resistance from the people around me, and it's annoying and I feel like they have no clue how deep and extensive this experience has been for me and the totality of why I've concluded the way I have. I don't think they understand the extent of my rabbit hole'ing in general. I'm a professional rabbit holer 😅 It's like the people around me my entire life where like: - What? You're still listening to that song? - What? You're still eating that? - What? You're still into that stuff? Also the people around me after I tell them I'm convinced I'm autistic: - You might not be autistic though - Don't feel bad if it turns out you're not autistic! - Oh there so many people turning to the internet searching for explanations for themselves these days. I've concluded that I shouldn't expect others to understand much at this stage, and it's OK.

[@maggierestivo5256]

Self-diagnosed....at age 60. Saw the video of Chloe Hayden first...and began to sob....because I was looking at myself. Found your videos next...and it made more and more sense. From the books I am reading, yes, it is expensive...so at this point, self-diagnosis is where I am at. I saw one of your videos recently and...again, started to cry...because I also would hide in my parents' coat closet, and rub my face on my mother's fur coat! I loved the pressure of all of those coats.[Edited to add...Forgive me! I had a "senior moment." The mention of the fur coat was made in a *book* I am reading now, "Making Sense : A Guide to Sensory Issues" by Rachel S. Schneider, M.A., MHC (Sensory World : TX : 2015), on p.2. The author mentioned that she "...incessantly rubbed my face and arms against my grandma's mink coats..." and I mistakenly thought I had heard it from you. Again, my apologies.] I am adopted...but found my biological sister 2 years ago, and, yes, a relative was autistic. (He may have been a level 3, I am not sure.) I think I could be called an Asperger's. I am actually finding that it is helping my self-esteem rise, because I am discovering just how well I have coped, and how far I have come. I have told very few people, mostly my husband (and, yes, I was afraid he would just think I was being dramatic) and a few friends....but...the stigma does not bother me. I have come out as bisexual, and a Wiccan, so I think this is just one more thing on my multi-faceted plate. Perhaps someday, I may get a diagnosis, but, for now? I am content to watch you and a few others I trust, and to do as much reading as I can (and join a few support groups on Facebook). Many thanks for your videos; you do great work!!!

[@kaden6149]

I really enjoyed your video and agree with most of the views you shared! My one problem with self-diagnosis is when many younger people become interested in these mental disorder issues and begin to wonder if they fall into any of the categories. And there is nothing inherently wrong with wondering and questioning this. With many communities I am in, (the primary being furry as exemplified by my profile picture) being unique and special is glorified to a dangerous degree. I agree that everyone is special in their own way, but when surrounded by this mindset, many younger people have it put into them that they need to belong to some special group and turn it into one of their defining characteristics. Most of this time, this results in the person placing themselves somewhere along the LGBT+ spectrum. But other times it results in the person claiming mental illness. Now to wrap up my problem after all that explaining. My problem is that when younger people try to self diagnose, with an unhealthy degree of individualism in their head, they more often than not subject themselves to confirmation bias because of their desire to belong, and this results in an innaccurate self-diagnosis that then leads to the person trying to fit the part so that they can fall in line even more with their diagnosis. I absolutely realize how complex I made this all seem, and wish I had a better way of expressing it. This also seems like a more specific instance, but I see it happening consistently across the communities I am active in. From people making their autism part of their name, to a main point of their bio being how much they fit in on the autism spectrum. (This does not irritate me for officially diagnosed people, or people who I know have done substantial, objective research.) I fully accept that this might exclusively be a "fandom" problem, but it is a problem with self-diagnosis nonetheless. Apologies for any incoherency in my comment.

[@StephanieBethany]

Can definitely understand your perspective and it is something to take into consideration. I have seen some people who jump around to different mental illnesses and conditions, etc., because they're going through being a teenager, which is definitely rough, and they might have one or two of those, but it's like they make it their entire identity - kind of like a new "clique."

[@idea1407]

Try being in your 50's and realizing that all your struggles and feelings of not belonging are because of you're autistic because when you were young the label or even the science didn't exist. Self diagnosis is the best option for me.

[@tink5337]

As a currently self-identified adult, I have a few things to point out that I think are very important. When one does this, they need to do a LOT of research. I have seen someone who self-diagnosed incorrectly with little research. So unfortunately that does happen. The reason I call myself "self-identified" is because I identify with all of the research I've done, but I do not consider myself "diagnosed" and will not until it's professional. This is to help me speak for myself and my experience without accidentally speaking for the whole community in case I'm wrong. I want a professional diagnosis, but I can't afford it right now.

[@thevirtualjim]

I find self-diagnosis to be a fine starting point, but not an end point. Yes its hard to find a place/people who is an expert in the field to be able to properly test you. I know money can be a thing too, but all insurance has to cover mental health now in the same ways as they do for primary care. The drawback to self-diagnosis is that without official documentation you dont get access to any resources or help in school or the workplace. As i was looking for a place to get tested (took a year to find one!) i did some online quizzes and read stuff and it seemed like I am on the spectrum, but I didn't know for sure and I wanted to get testing to confirm. It also wasn't until that confirmation that i felt like i had learned something about myself as to an explanation as to why my life was as it had been. It really was a 'ah this explains so much!' type moment for me. I also always agree with the idea that 'A physician who treats himself has a fool for a patient". Even a medical professional should go to someone else for testing and diagnosis of anything. BTW in catching up with your videos, it is interesting seeing all the changes to your hairstyle and color :)

[@glowdoll183]

I've been researching for two years after my last major burnout I had a breakdown. I felt something was wrong and I confided in my grandmother who told me they wanted to test me in kindergarden after I was diagnosed with ADHD. She refused as my guardian at the time because she felt it was a trap. She felt like they were just trying to label me as a young black child. Now I'm an adult that clearly has Autism with no support. I've struggled with keeping jobs, having friends and just functioning in society daily. My family agrees that I am but don't really want me to be officially labeled as such. They just don't want my life to be any harder than it is but I know I need medical support.

[@MalharetasLair]

I self-diagnosed with Asperger's. Why? Because where I live ASD is a diagnosis given only to children, and there's absolutely no support after that either. No therapy, no tutoring, no treatment, nothing. And the moment you turn 18, you're suddenly not on the spectrum anymore, you have schizophrenia instead! And won't be able to get a job at all. Aaaaand can be sent off to a mental institution against your will because of it. (remember, ASD 'doesn't exist' there either so...) What fun, right? Which is why I think self-diagnosis can be no less valid than an official one, seeing as not everyone lives in a country where it is even possible to be officially diagnosed and disregarding that, most of us who get a diagnosis in an adulthood (it obviously implies that these cases are lvls 1 to maaaybe(?) 2 seeing as they weren't detected earlier) come to the realisation that them being on the spectrum is a possibility first anyway, which is then followed by the pursuit of 'making it official' so to speak :D I know I'm generalising wildly, but I feel like I may be onto something here...🧐 And in my experience, if you're on the spectrum, you most likely just *know* you are. You relate to the experiences other aspies and auties have (all hail the interwebs!) and probably feel like you've somehow always been different anyway. I've described this difference as my personal horizon being about 3 degrees off from everyone else's and having to consciously compensate for that in every decision made and interaction had. Only now I know why and it is such a tremendous relief, honestly. Anyhow, thank you for making this video! When people share their experiences or just talk about ASD traits and struggles or even its existence in general, It really helps a lot! P.S. The video's more than a year old... Talk about being late to the party lol

[@Giancarlo_1997]

Hi Stephanie, I'm getting my neuropsychological evaluation and autism assessment this Tuesday coming I'm really excited because I've like you researched for like 3 months and I finally found a great psychologist that can do everything all evaluation and testing that I need I am one of those that does want the diagnosis on autism as well as my ADHD she's evaluating and testing for everything so yeah

[@StephanieBethany]

Awesome!! Hope all goes well in your evaluation and assessment!

[@masterpys2693]

The events that gave me the idea of possibly having Asperger's syndrome or being on the spectrum are feeling like I don't function normally inside (though I realize I try to do what others would do) , having an autistic child, having my spouse telling me constantly that I don't seem to be like other people... Just the little things that got me thinking. I don't think I'm able to get a professional diagnosis, at least in the near future, but I'm knowing more and more about the spectrum and it would help my child a lot to have someone understand him. For me personally, I'm not fully convinced I have Asperger's syndrome but I also can't say that I'm absolutely not probably on the spectrum. It's like standing at the door, one foot in one foot out. Thank you for this video about the topic of self-diagnose.

[@mrpieceofwork]

I suspect I am on the spectrum and as such have taken a few online test, which have "confirmed" my suspicions, yet two of my family members, who happen to both be RN's, and a former GF, were/are adamant that what's "wrong" with me is PTSD. I believe they all just don't want to have to think about me having something with such a stigma attached to it, and/or they've all been conditioned to think in terms of people they've met who have a higher degree of and more debilitating form of autism. It's frustrating... but I must persevere. Thanks to you and other KZbinrs, I definitely feel I am not alone in the "struggle", nor just some crazy person pretending to be OK LOL So, thank you!

[@CyraGetsFit]

I THINK I'm an Aspie too. I've taken several of the online tests available. The Cat-Q, the AQ, the Aspie-Quiz and Raads... (I think). I am very high on all of them. This year for me has been all about discovering how I work differently that so many others. It sounds like its about 1 in ever 50 to 190 people are Autistic. Due to no job from the world bug and an emotional breakdown in about June of this year, I haven't been working and I've been seeing a psychologist. (I am on Medicade) And I just started seeing a psychiatrist as well. Through them, I will be getting diagnosed.

[@helmaschine1885]

I'm a woman and I recently got officially diagnosed in my 20s, and I completely disagree with it. The psychologists and psychiatrists just kept saying I was weird for not being happy about being evaluated. Why should I be HAPPY when I know I don't have it? Nothing i or my family said could change their minds. I do not see anything of the criteria in myself. I have exhuastion issues which in my late teens led me to no longer liking eye contact. Apparently thats all it takes. So yeah, I'm considering having ,my medical journal wiped clean.

[@leigholding1397]

I've gone from Autistic to high functioning Autistic, neurodivergent, now ive found dyslexia and exclusive functioning . Went to a Autistic specialist and they wrote me off cause I made eye contact, yet I grew out of it, and got smacked at school for not looking at teachers in the eye in the 80s

[@DjPrespley]

I'm currently on the path to getting myself an official diagnosis, one of my main concern is confusing traits with mental health symptoms or Giftedness (which I haven't got diagnosed either) which is rather similar

[@davidwing8879]

I am EXTREMELY reluctant to self diagnose, but the more I listen to videos by people like you and others who discuss autism traits, I can't help but feel they are describing me. So, yeah, it kinda sucks, because I really don't wanna be that guy that claims to be autistic when i'm not. I have been noticing things more often like taking people literally when they were clearly not being serious and noticing small noises that others don't. I don't know. I think i might ask my primary care doctor about it the next time I'm there.

[@joemacy2776]

I am officially diagnosed, but I was diagnosed at a very young age (three years old to be precise). However, I understand that getting diagnosed with autism as an adult is a lot more difficult than getting diagnosed as a kid. That being said, I personally do still believe that self-diagnosis of autism is risky in the same way that self-diagnosis of any other condition is risky. I definitely think people should be careful about claiming that they are autistic without an official diagnosis. I don't think it's good to have people out there who are claiming that they are autistic but really aren't.

[@shadowwing2064]

People too often compare a self-diagnosis with medical conditions. But you will never know your body as well as your mind - especially since it affects your WHOLE life. And I researched the subject for... well... years, actually, talked to many autistic people in person and online. So I can tell with 98% accuracy that I'm on the spectrum. Then there is the issue of doctors not taking you seriously, especially if you cope "too" well, or... simply are a woman. I can't count the stories from autistic people who told me they had to fight for a diagnosis because they were told such ridiculous things like: Women can't be autistic - You're married and have kids, you can't be autistic - you hold eye contact and do smalltalk, you can't be autistic.... and similar things. And those came from PROFESSIONALS! So yeah... The thought of not even be referred to someone to get a diagnosis, just because they have no clue about the subject... or even worse, to be referred, then have to wait for years (which can happen) and THEN not getting a diagnosis because I'm already 30 and have gone through tons of shit that taught me how to mask and cope really well... TOO well... And on top of that the fact that I don't even have ANY benefits from the diagnosis (apart from a piece of paper that tells me that I have problems, which I KNOW I have, thank you very much)... I simply don't see a point in getting one. I know I have those problem, I can cope with them quite well since I know about autism and WHERE those problems actually come from... And IF I tell people about it, no one has ever asked me if it's an official diagnosis, so I keep quiet about that.

[@Shaun126]

I totally get it. I have a lot of self doubt still since my lightbulb moment where everything started to just finally make sense. I actually don’t want to be autistic at all... I feel horrible that I might never be normal and I’ve wasted all these years hiding who I am to be normal. I wish I was diagnosed young maybe I would have had the resources I needed to be more successful in life and could have finished my college degree and be able to live my life without wasting so much time and energy trying to fit in only to fail and keep losing friends to my “rude and stubborn” occasional outbursts where soon after I would run off meltdown and often NSSI usually punching a wall or hitting my legs or face and pulling hair all behavior I would forget that it even happened when the bruises fade or sit in denial I’m not sure... either way I have something serious going on and can finally admit I need help which for me was extremely hard. I’m definitely getting a diagnosis though I’m concerned how long it’s going to take with all the stuff I’m hearing. My poor husband needs answers about my meltdowns and my inability to communicate how I am feeling to him when Im getting worked up(I figured out I need to write it down when I can because my verbal vomit doesn’t make any sense when I’m worked up), my inability to listen to him when he speaks and I need to learn coping strategies before I make the relationship any more damaged for the both of us. I’ve taken a variety of paid and unpaid assessments online, I’ve probably watched 200 ASD videos(mostly female but several male as well), read at least 100 articles/blogs and read thousands FB posts and responses from diagnosed people since this started. I finally built up my courage to tell my mother I thought for sure she would for sure tell me I was being unreasonable or something but when I told her she actually pointed out she’s been thinking both my father and I have ASD for a long time now why she never said anything who knows maybe she did and I didn’t listen... maybe she was worried Id get mad so maybe that’s why. I now have a 2 fold reason why I need to seek a doctor diagnosis. One for the confirmation myself because I will always have doubt and feel fraudulent without it. Two because without it I highly doubt my stubborn father will seek help at all or will get a diagnosis himself and he is really struggling right now.

[@selisa86]

Thanks for this video. I agree that pursuing a diagnosis is ideal. Right now I'm in the self-diagnosis / family doctor "diagnosis" situation, so although I feel that I have that confirmation, it's still hard for me to tell many people outside of my family and closest friends because I expect that some will have the reaction of, "what? You couldn't have autism. Why would you think that?" or even, "your doctor doesn't know what she's talking about..." I have had a couple reactions like that from relatives already, so it's made me hesitant to share with anyone outside of my closer circle. Eventually, I hope to seek a diagnosis, but it's not possible at the moment. So for now, it's research, working on things as much as I can, and hoping that the people around me will understand when I can't do certain things. Which brings me to a question. I'm experiencing something right now that is affecting my confidence in my abilities because of a lack of understanding with a family member. Most of my immediate family understand my situation and limitations, but still a few can't see why I struggle in certain areas. Especially with the Execute Function Initiation (when you talked about that in your earlier video, I realized that that is the one I struggle with the most as well. I always said that I struggled with time management, but now I understand it in a more detailed way). Basically, right now I'm struggling to make it to a doctor's appointment (with scheduling, problems sleeping, anxiety and difficulty feeling "mentally prepared" for the visit and other issues that are adding up for me right now). So I wasn't able to make the appointment and have rescheduled it for a week later and am working up to making it to that one. What the family member in question doesn't understand is that I'm not just choosing not to go. There are times when there are too many things in the way, that I need to try again another day. And then there are times where it's easier to work through things, and I'm able to go to the appointment. It varies. And since I face the same difficulties, every single time, it wears on me. So I have to choose my battles, and either defer (not simply for avoidance, but because it's not practical right now) or fight through it and get to the other side. That is a victory, even if it took me a few tries to get there. When someone expresses doubt in me, or annoyance with my limitations, it's like they are speaking my defeat. I already have self-defeating tendencies, so when someone I'm close to expresses that, it crushes any confidence I might have. Have you experienced this? If so, what do you do to try to counter it or work back to believing in yourself and the fact that you're trying to work through things even if it's different than how most people do it? I'm not sure how to explain it to my family member, because it's something that is hard to understand for those who haven't been through it. 😒😔

[@StephanieBethany]

For me, making one victory, even if it's really small, tends to help restore my confidence that I am capable of doing things. It doesn't even have to be related to the task that seems impossible. It's just a reminder that even though I failed and feel down, I am still able. Of course it's harder when people are jerks about it, and unfortunately, some people are going to be that way. I know its hurtful and you might have to work towards blowing off their ignorance. Even with a diagnosis, it's possible they wont quite get it purely because they dont experience it.

[@fredo_credo5689]

the problem is, in many places around the world, autism is still "hard to spot" for therapist, especially in adults and people who show more of the "feminine" autistic traits. so yeah ofc people will self diagnose first before they set out for a doctor, especially since many people (like myself) are afraid of failure and afraid of making a mistake, so I would want to be sure before I go to a doctor

[@Kay_The_Coffee_Weirdo]

I'm almost certain that I have autism. I'm 33, and never been diagnosed. It's so hard to find people who understand autism in women, and autism in women is such a varying condition that it's hard to even say that there's even any real information on autism in women.

[@lotus9138]

i really relate to what you said in the beginning about believe the stigmas and there for didn't wanna be diagnosed or even look at the possibility of me having autism. I've now excepted that it's very probable that I have asd me and my mom are now trying to get me tested. I'm already in therapy by the national mental health care institute in the Netherlands were I live. I've suggest it to my therapist before but it got shot down. But my mom and I have come to the conclusion that it's better for me to atleast get tested because here I will be able to get some benefits with a diagnosis even if very minimal. It's just I'd like to think I'm pretty high functioning but that's just because I have a lot of introspection into myself and can deal with my emotions and work through things pretty good now. But I've realized I can't work fulltime maybe a few hours a week but thats it and I also can't go to school anymore. It's not that I really can't but it will put so such stress and pressure on me that I can't really handle. I and my mental health will suffer immensely if I do. And I've decided that that isn't the way i wanna live my life. I only get one I don't wanna spend it unhappy, depressed and anxiety written my whole life so I'm not doing that.

[@yesno1698]

I can relate to a lot of comments that have been made. My story is I was diagnosed as an adult, by a psychologist, and it felt like my life and my experiences finally made sense. I had had my suspicions for years, after talking with a lot of people on the spectrum and finding so much common ground with them that I never had with others. But, the psychologist and I agreed between ourselves not to put that diagnosis in print on my record. Why? Because of the stigma surrounding autism. Because I was training to become a medical professional, and I felt the stigma would constitute a risk that my suitability to work in medicine might be questioned. A lot of neurotypical people see a diagnosis and Assume things, often stereotypical and negative things, without taking into account that autism is a spectrum and we all are different individuals even if we have the same diagnosis.

[@wetboy72]

Having struggled with all my life, (47 years). I am currently waiting for my assessment appointment. I have been through all the screening processes. Back in April, a psychiatrist noted that it needs to be ratified by a specialist. My therapist has also noticed the traits.

[@StephanieBethany]

Hope all goes well with your assessment appointment!

[@wetboy72]

Thanks for the response.

[@nikolateslaize]

I think self diagnosis is valid. I am self diagnosed. Why I think is valid? There are countries (like mine) experts are not educated enough to diagnose an adult or level 1 autism. Also some people can't afford to get a diagnosis or live in a very remote places. And as you and others said, no one wants to get attention with a stigmatised disorder so why bother to self diagnose? I don't publicly claim that I am autistic but after I learned my life changed. Now I can regulate my sensory overloads. I learned that I have meltdowns and not exorcisms :D Also I can be myself more. I tried so hard to fit in society, I've been bullied not knowing why. Now everything is clear as a beautiful blue sky. But if I had an opportunity I would definitely get an official diagnose.

[@heedmydemands]

I've been obsessively doing tests online, reading checklists and watching many videos and reading about autism. I follow a lot of autistic creators and watch and listen to podcasts too. I identify with so much but I feel still a bit unsure. I wish I could just get checked out but I really can't afford to spend the money and there's no public option where I live so I can't even get on a list for an assessment. Anyway I'm an adult, with 2 kids and a husband, I work from home. I don't want anything, just to be reassured that I'm correct, I want to fit in for once.

[@mountainrose12]

Thank you so much for this video!!!

[@mayalua1]

I think I have autism. I wish I could get a diagnostic from a professional, but I can't afford it... I'm poor and living on a difficult country... I'm still not sure if I have, but I can relate so much it scares me

[@astraaijajansone49]

I didn't expect this to happen but I can get adjustments in my job even being self-diagnised. The waiting list is sooo long. Soon it will be 2 years since I am on the waiting list. But luckily there are open people who can listen and understand and arange things for me. My strugles now are - what should I answer if they (on my assessment for diagnosis) would ask me the same thing what my GP asked "Why do you need diagnosis? What particular help do you expect?"

[@fckyafeelingz4064]

Totally agree

[@Codyline]

Damn it's like listening to my own story. :D Bit late to the convo, but I still wanna add... Dr. Russel Barkley (the leading expert on ADHD) has mentioned that some family members of autistic/adhd people might have some traits but also not have "the full blown disorder". _If_ I remember correctly all the parts of the brain have the same difference, expect for the cerebellum. (Not to say that only one member can have the disorder(s), but that this can also happen.) So even if you don't "qualify" for a diagnosis, you could still have some of the issues and any advice (or whatever you get with a self-diagnosis) will still help. I think this is the source: yt/M8dLiH1LFx8, or maybe part one GyZtYzFq4WY. (Apologies if this has been covered before, I'm kinda new here. Very happy to find your channel btw, keep up the good work. :) )

[@kendalliv8566]

When people would make jokes I always thought ppl were fake laughing. I never thought they were funny🤭

[@HotaruTomoe0106]

So, I'm gonna unload here. First off, I've spent many many years thinking something was wrong with me and going on bouts of research trying to "what was wrong". Secondly, it's glaringly obvious to me that I need therapy in order to work through and find healthy coping mechanisms. I have quite a bit of trauma that hasn't been addressed in a healthy way. So, because of these factors, I know it's going to be even more of a hurdle to be diagnosed on the spectrum. Upon doing some research, I found out that there's some similarities in the way autistic people and people who endured trauma behave. And, to add on top of that, people on the spectrum are far more likely to endure socially based trauma. About 8 or so years ago, in passing, I casually wondered to myself if I was autistic. But honestly, at that time, I didn't do research into it much... at least.. not for myself. Fast forward years later: I started participating in a discord server which had quite a few autistic individuals... And, well, they basically tell me that they think I'm probably on the spectrum. At first, I was like... "Nah, I don't think I am." But, I've taken quite a few screening tests recently and each one of them scores me above the threshold, or, "Fairly Prominent Autism Symptoms". In addition to taking these tests, I did more reading and listening to those on the spectrum. And I find myself thinking back on things I did in my past and in a way it almost feels like this words makes some sense. Does it explain everything? No. But, in a way, it feels like it fills in the gaps because these patterns seem to go back to early childhood for me. But here's the crux in getting a diagnosis. I was in crisis the other day and reached out to a therapist. During this session, I mentioned that I have this tendency to research things like this... and that I suspect I'm on the spectrum. She basically told me that I was doing too much research. But research is instinctual. When I feel something is wrong or missing, my first instinct is literally to research online and see if there's anyone else who feels similarly. Then, if I find what I think may fit that's when I seek out another one's viewpoint. It's not just the autistic spectrum, I've treated this way... but things like OCD and Depression. I'm only officially diagnosed with one of these, but I cannot deny the fact that I have symptoms of the other. And in fact, some days.. the one I'm not officially diagnosed with is the one that causes the most distress. But, here comes the self doubt. What if I don't actually have this? What if i'm just pretending? After all, no professional diagnosed me, so how can I know for sure? But isn't that thinking faulty? Aren't professionals human, too, and prone to making mistakes? This is quite a delicate topic, because on one hand, people against self diagnosis might have that stance due to believing that someone who is "mentally ill or disordered" can't truly know on their own whats wrong. This narrative can be used to discredit someone's voice. While on the flip side, someone might advocate for self-diagnosis, because they went through all the "proper channels" but ended up getting the wrong answers. Because after all, the ones publicly trusted to give the right answers aren't infallible. I have typed quite the essay. If someone made it this far: Thank you.

[@ellies6563]

Oh yes, the self doubt! What if I’m just making all this up? And the need to research and fully understand something. I know it all so well. When my daughter got diagnosed the clinician said “like mother, like daughter” I think the self doubt is something you just have to live with, maybe part of our personalities. But a diagnosis may help you reassure yourself. Wishing you the best of luck, be kind to yourself 🤗

[@andromedasmoons3647]

painfully relatable

[@cherylbell8875]

Thank you for this video.

[@carlillingworth88]

I'm self diagnosed. Have been for a few years now, folleing a old friend mentioning it. Due to a lot of complications but also because I learned to accept myself after doing loads of research and relating with autistic people so much more than neurotypicals, I self identified and didn't see much point in getting diagnosed after that. But now I'm starting to struggle with certain responsibilities and balancing things so I am now in the process of being assessed by a specialist who is autistic herself and she's already fairly certain I'm on the spectrum. I think it's already unpleasant being excluded by society, and then when you do find where you belong, some of those people in that community exclude you. Being autistic often makes you a victim of prejudice, so to be autistic and prejudiced towards others just because they don't have an official diagnosis, seems rather hypocritical. For this reason, as well how difficult it can be to get diagnosed, I have no problem with it as long as it's genuine. The fakes usually get spotted anyway, like you said. Why would you even fake something like that?

[@FirstmaninRome]

Certainly without KZbin aspie videos I would have never went to seek a diagnosis. There is stigma, and lack of understanding that seems insurmountable. It amazes me how many people, even in UK where diagnosis is Free, that don't want to get diagnosed. In many cases these are clearly rather professional people, clearly with asperger's that just aren't interested in thinking about it. It is somewhat more understandable when struggling people, particularly in the us, just can't see how it would be helpful to them to be diagnosed. This is video is dead on stephanie.

[@StephanieBethany]

Yeah, I've been hearing a lot of people terrified of people "finding out" that they have autism, which I find really sad.

[@damnrapunzel8130]

I am currently in a similar situation that you were prior to getting a diagnosis. I saw a therapist who then suggested that I may be on the spectrum, and I was given a few questionnaires to fill in before they decided if they should give me a full face to face assessment. I have now been waiting over a year for my assessment because I live in the UK and am on an NHS waiting list, which is very long (due to the government doing their best to slowly dismantle our healthcare system) and keep watching videos from KZbinrs and relating a lot, but don't really feel like I can interact properly in the community until I have an official diagnosis from a doctor.

[@monogramadikt5971]

im nearly 50 and im pretty much self diagnosed, other people spotted it in me years ago, eventually i randomly stumbled across some of the online diagnostic tests which all strongly suggested i do have aspergers, after that i began to research it more and everything i read was mirroring my whole lifes experiences. i basically went under the radar my whole life even though i knew there was something deeply different about my way of percieving the world, it basically crippled me all the way through life and now at this late stage with all the damage done, im not even sure its worth going through all the various loopholes to get the "professional" tests administered.. anyway,, this year seems to be the straw that has broken the camels back, ive retreated from the world more than ever and not sure if i have the energy or will to claw my way back to the neurotypical landscape, having to wear that mask is just to fucking draining, im worn out

[@TruthCeeker333]

I think I am ready to self diagnose. The last psychologist I went to kept me going back without any testing and kept giving me alternative reasons other than ASD. Been married for 25 years and my wife out of desperation ordered a book for relationships between nurotypicals and Aspergers. She has been doing the research herself this last month and is convinced I have Aspergers. She suspected I was autistic back in 1994 and I have considered it as well but was confused by my MBTI type INTJ. Guess I need to dig back into this and find the traits that are specific to ASD. Thanks 🙏.

[@esmeraldagarcia1095]

I want to be diagnosed. But I have no means of it with out having to pay. 😥

[@TheDakimba]

I'm self-dx and will always advise "probably". I'm all about accuracy and never wanting to intentionally give inaccurate info so even tho in my mind I'm 99.9% convinced I won't say "I'm autistic" until/unless I'm officially dx as such. I will say aspie in an identity way tho, like "we aspies are researchers, typically, so think the likelihood of someone flippantly coming to the conclusion that they must be on the spectrum without being on it would be extremely low". Agree unlike with other dxs, if you think you are autistic, you probably are.

[@Discordia3052]

I understand this so much, last year I stumbled across autism as a potential link to some of my rbfbs, same as you at first I dismissed it because I didn't fit what Id been taught it was, but as I found out more about the female presentation it explained sooo much of my whole existence. I had been trying to find the time (and courage) between University assignments to go and try the NHS for an official diagnosis right before the lockdown hit and now I feel like I'd be adding strain to some Dr for something not urgent. So I guess for now I'm stuck with self diagnosis.

[@_..kit.._]

being diagnosed with depression anxiety and add ive been a huge advocate for nit self diagnosing. but now im think i have autism and a lot of people on the spectrum say self diagnosis is valid. im having a really hard time self diagnosing when i said for so long i dont like it. the reason i really dont want to go get a diagnosis is bc ive heard a lot that once ur diagnosed professionally that authorities with discriminate against me for just my diagnosis. im already poor, native american, lgbtq+, and have mental disorders so i try to keep the impact of my rights protected even if ik its not right and dont like it. im just really scared that ill say confidently that i have autism when i really dont and i end up invalidating people actually on tge spectrum

[@psychiccrocodile3679]

I tried to get a diagnosis. Got a fake one "social pragmatic communication disorder" along with ADHD and SPD. She even said when you were younger you would have qualified for an autism diagnosis. She agreed the diagnosis could even be excluding autistic people who don't seem autistic enough. So frustrating! I know I'm autistic

[@StephanieBethany]

Oh my goodness a LOT of people think the new social pragmatic communication disorder is such BS. I got a preliminary diagnosis of that from my primary care doctor. Dont know if he did that to be able to refer me for further analysis or it was just what he thought I had.

[@nottrash9034]

Bigger issue is no right to health care. Then even if you have a diagnosis, it's not like the autism community is without toxicity. I've seen plenty of people scrutinize someone's official diagnosis gatekeeping over their keyboards. Then again, I also saw a bunch of diagnosed people get run out of an autism facebook group because a vocal portion of the self-dx members really hated it when people would talk about covert narcissism and felt like "narcissism" isn't a real thing and only exists to gaslight autistic people. So many different factors at play. I know people who weren't official diagnosed, and later on got diagnosed. I know some people who have a new thing or online test every week and cycled to autism as their condition of the week and immediately use it to excuse social transgressions. Hard to make a one-size fits all statement.

[@josephhendersin3751]

Joseph Hendersin I have met people that are self diagnosed with autism and ptsd and they were flat out told no they don’t from other friends who have relatives with ASD. Self diagnoses is very dangerous and unless you see district similarities between yourself and others on the spectrum than I would not recommend it at all and if you do self diagnose I would recommend getting in touch with a professional as soon as possible

[@philsaspiezone]

I diagnosed myself in 1992 but I wasn't saying back then I had Asperger syndrome and about that time onwards I done my research and the aspie quiz suggested I am likely an aspie. I had my diagnosis on June 26th 2003.

[@Ignasimp]

As someone who thinks I might have aspergers there are two things that bother me. The first one is that going to a specialist is definitelly getting out of my comfort zone, and I'm willing to do that for those things I feel I'm obligated to do, but not with things I have doubts about doing. And the second thing is that I don't trust specialists in this fields (psychology, neurology...). There are so many bad professionals with so little scientific understanding I just can't trust them. I have the feeling that if I went to several different specialists some of them would say I have aspergers and some that I don't. There are also some things I don't think make much more sense about autism and aspergers. If it's really a spectrum were is the line drawn? Are individuals on the spectrum clearly differentiated from those who aren't (is it a spectrum inside the autism cathegory) or is it a spectrum that goes from neurotipical to severe autism? I would need to know all of this before I get diagnosed to know if I can trust it.

[@Elisa-uj6nx]

I am 20 and since I've learned about autism I felt like everything about it resonated soooo much with me. I've gathered some information and now I know where I could get a diagnosis, how much it would cost etc.. but still it would be kind of hard to do it without telling anyone, and I feel like nobody would understand and (as you said) it would seem as if I was trying to get attentions. My family and my friends have always kind of seen me as the strange one (because of my interests, my ways of interacting with others..), how can I tell them without feeling like I'm pretending? I thought that it would have been enough for me to know that I might have Aspergers, but to be honest letting others know would make things so much easier..

[@cindya9572]

Maybe it would help to choose a video or a few that explain what you want to tell your family and friends and have them watch, and you could answer their questions? I know that has helped me when I can't find the words to say, a video can say it so much better than I can.

[@nottrash9034]

It's valid unless it isn't. Confusing? Yes.

[@gotobassmsn]

Please share those recourses that you found, for those who don't know these community support?

[@StephanieBethany]

The best resources I found were through local area autism groups on Facebook. I would search Facebook for your local area and "autism" and see if there are any facebook groups in your area. They tend to know about doctors, programs, etc. that aren't easy to find through search online

[@Oceanaryia]

I'm self diagnosed... my whole life i knew i was different and i thought i might be autistic for many years as did my mom, but i didn't want to admit that so for years i just ignored those feelings, recently i started studing what autism and aspergers is and feel i have found my people and so many of my behaviors make since now when i apply that i have the autistic brain... itd be nice to have an official diagnosis but at the same time i feel I'm 100 percent sure I'm autistic so y go threw all that and pay all that money to get a confirmation in something i already know to be a fact!

[@viennadesou6546]

Considering that one of the characteristics of autistics is that we are very literal, it only makes sense that we would feel slightly uncomfortable taking on the label without the official diagnosis. It feels like a form of dishonesty; which is an aspect of interacting with neurotypicals I'm sure we've all been hurt by. I've never had a diagnosis. I've been looking at autism since 2013 when it was first suggested that I might be on the spectrum. Since then I've had it suggested to me on 3 separate occasions by those that work with or have family members that are also on the spectrum. I've been on a wait list for nearly 2 years, and have saved up for the diagnosis because it's ridiculously expensive and my insurance won't cover it. So long as attempting to get a diagnosis is this convoluted, I'm not going to guilt myself over self diagnosing. I figured those who have lived with autistics and worked with them for years might be a good enough authority for me to go by. Although I was hesitant about it to begin with, the more I studied the more I realized I was looking into a mirror, and the more my life made sense. I'm sure I'll get diagnosed some day but I'm not going to wait until then to accept myself as part of this community.

[@faust594]

I think I’m autistic and I’ve watched all your videos and samdy Sam ones.

[@mares3841]

💛

[@turtleanton6539]

I feel it is normal to research yourseöf before official diagniss

[@auralplex]

Let’s get diagnosed for something that you cannot change - huh???

[@1articoli]

I think that the Autism-Spectrum Quotient test developed by Simon Baron-Cohen of Cambridge University is a good indication that you are likely (or not) to be on the spectrum. It might be best to take it several times over a period of a few months. Why? Because you might answer slightly agree or slightly disagree to several of the questions. Whether you slightly agree or slightly disagree might depend on how you feel or recollect your past on any given day. Therefore, it might be best to take it several times if you've given either of those answers to more than a handful of the 50 questions asked. If you still score above the threshold 32 each time, chances are pretty good that you're on the spectrum. I've taken it 4 or 5 times and have always scored between 32 and 35.

[@1articoli]

@Alice and Rachel’s Angel Forever What was your score? They will only rule out Asperger's if you score less than 26.

[@1articoli]

@Alice and Rachel’s Angel Forever Hmm. Odd that you would get those scores and then be diagnosed.

[@mothercoyote351]

I ❤️ur hair. I want to die my hair that color. I would have never thought that I may be autistic but after my son's were diagnosed w/autism I've been doing extensive research on it & I myself can resenate w/signed & symptoms. I'm having my doctor screen me for it cuz I feel like I'm the guilty one who passed it to them

[@simplyvince1744]

I'm currently self diagnosed. Mostly because I'm 19 and still on my parents insurance. It's not like I can just go see someone without them finding out (same reason I haven't dealt with being anxious and depressed and such). Also, I have looked it up and there's only one autism specialist near me who accepts adults. I'm willing to bet he only takes those who have already been diagnosed. So for now, I'm just sort of dealing with not knowing for sure and not being able to really talk about it.

[@StephanieBethany]

I can definitely understand where you're coming from. If your situation changes or you want an official diagnosis (and I mean you should probably consider looking into the other mental health aspects) dont just assume that doctor wont take you - it's worth the call to ask!