Avascular Necrosis Q&A with Dr. Julius Oni

[@elvinalmazar6541]

I was diagnosed with AVN in 2019 and had hip replacement before year ends. The doctor informed me that there will will be pain but tolerable or minimal and i agree with him ....I have observed that whenever i seat, my knee must not be higher than my hips or else there is pain when getting up. Hope that others will not suffer this ailment .....take care of your health.

[@jasmineyvette5135]

Praying for everyone going through this 🙏🏽

[@kylewilliam9477]

I have to have both my hips replaced due to this disease and have to disagree with 50% of this! My symptoms were similar to sciatica down my right leg forcing doctors to put the treatment in my lower back. Too late when it came to being diagnosed it was my hips causing the issues and have to have my left hip replaced as it’s got advanced osteoarthritis from me compensating my weight on that side for so long. I’m only 35 years old too, never had steroids or a an alcohol problem so anyone reading, please make sure you get your doctors to do a full examination, rather than rely on symptoms! Doctors are now trying to claim the cause is due to alcohol consumption which is absolutely ridiculous!

[@_allatt2]

Omg. I am so sorry. Me to. But the doctors overdosed my with steroids as a kid. That’s why I got it. But there are many ways. I also have both hips knees and left arm. I take a lot of pain medication

[@bert5655]

Oh my god I can't believe what I just read as it could have been written by me! I'm 35 too and need both hips replaced starting with the left due to compensating when walking! However, I believe mine is due to alcohol, despite not being an alcoholic, I did drink spirits straight without mixers. Anyway, how was your surgery? I'm due for my first soon. Nervous, scared and still cannot f*cking believe this is happening to me at 35!

[@deebrooks9488]

​@@_allatt2Hi, can I ask the symptoms in your arm and what the treatment can be. Thank you

[@shivanshshukla989]

Hey can we connect? I've AVN too (bilateral)..

[@charanpatnam2497]

I am diagnosed with AVN both hips stage 2, i have a history of alcohol and took steriod for a week or 2 during covid. Now the point is i see lot of drunkards just lying outside the beer garden or wine shops and do drink continuously and doesnt even know what is AVN. I wonder how liver and kidneys are still fine ,while this stupid hip joint gone crazy which is rare 😢

[@gabrielehanne580]

May I help you come up with novel treatment ideas ?

[@bibhassaha143]

Please help

[@Royaltallest_tech]

Good day. I am Ayodeji, a 20 years old boy, 6.4ft still schooling and I have been diagnosed as sickle cell patient since 1 year old. Early Last year, my doctor's discovered I have AVN of the left hip, I couldn't stand and use of crutches was recommended for non weight bearing , it helps a lot. I have been having pain and some discomfort in my ankle late last year but I was diagnosed of right talar AVN few months ago. Mobility of the ankle is quite difficult when walking especially when climbing stairs but no measures have been made. I was told not to bear weight on it which is not possible because I have hip AVN on the other leg and I am a student. I am in your inbox to seek your advice and guidance as regards your professionalism in the field. Thanks doctor

[@JohnsHopkinsMedicine]

Hi, Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication. If you would like to request an appointment at one of our hospitals, please go here: www.hopkinsmedicine.org/international/patients/appointments/index.html.

[@LindaSang-xq2wh]

I'm sorry you go through what you go through in going through avn now on both

[@LindaRyan-lg6lo]

What if you have a vascular necrosis? Also, because of lupus, and you cannot get insurance for another year. How can you possibly survive without any blood flow to your help? I am in so much pain. I could literally blow my head off. And I don't think I can live like this until November 2024. There's anybody out there that has any suggestions.

[@jeffreyl5151]

can high cholesterol be a contributing factor?

[@_allatt2]

Please I have AVN. I’m 45 I got this disease when I was 17 and had a severe asthma attack. I was hospitalized for 2 months The whole time being given large doses of steroids. A year later my left arm locked up. That was the first replacement. In 1998. Over the years I have had both hips and both knees replaced. My left arm currently has no elbow or humor bone. Because of so many surgeries and a infectious cadaver bone. Please I am so desperate. No doctors want to deal with it. Someone anymore who can relate or give me some guidance. Please I’m not going to make it

[@JohnsHopkinsMedicine]

Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication. If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.

[@abdulnabi135]

@@JohnsHopkinsMedicine sir i am from PAKISTAN last year my hip joint broke and dr put 3 screws in my hip.Few days ago they checkedy mew Xray and they advised my to walk an hour a day because AVN started.I am walking an hour a day but i am worried about replacement that can be happened please tell me about AVN recovery procedure please😑

[@bibhassaha143]

Sir, according to MRI I have AVN of femoral head. Stage 2b..I have little pain.. what should I do to lead a normal life? Please advise sir.

[@_allatt2]

@@abdulnabi135 I got this disease when I was only 17 years old. The doctor s overdosed me with prednisone because I had a really bad asthma attack. I had my elbow replaced when I was 19 years old. I have had both hips replaced several times. And both knees. I’m 46 years old and I have no elbow or humar bone 🦴 in my body. AVN only gets worse. Never gets better. I will never live the way I should at this age. I have use of 1 arm and 1 leg. I’m sorry you have this. If you need any advice. I can help you. I wish I could post pictures of my floppy arm and 1 leg that is 5 inches shorter than my other

[@_allatt2]

@@bibhassaha143 you’re quite lucky.

[@Mesotomayor]

Al dr. Desde hace tiempo note oscurecerse mi piel a la altura de mis clavículas, al principio no le hice caso. Con el tiempo he notado adormecimiento más en mi brazo derecho. No tengo ni dolor ni movimiento limitado. Puedo enviar fotos para que pueda verificar. Me llamo Marcos vivo en Miami, tengo 51 años mido 1.69 m y peso 71 kg.

[@jadenrhoden4709]

Can post collapse (end stage) of hip due to avn be considered and emergancy? Or when would it require an emergancy surgery?

[@JohnsHopkinsMedicine]

Hi, thank you for reaching out to us. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication. If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.

[@jasmineyvette5135]

😮😮

[@MeganGrant-s9j]

Hernandez Sharon Harris Jennifer Robinson Maria

[@Salomgoozoo5]

Seriously painful disease 😢