These People Are Turning To Stone | BORN DIFFERENT

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In this Born Different special, we meet individuals living with fibrodysplasia ossificans progressiva (FOP) - an extremely rare condition which causes muscle tissues and tendons to be replaced by bone.
Producer: Tom Buckman
Editor: Riya Manek
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[@beckyjo8745]

That is such a horrible disease. So cruel. But I'm glad they are handling it the way they are they are STRONG individuals. Makes things alot of people complain about seem very trivial. Hope that clinical trial medicine works and they can get a little relief.

[@alastairgreen2077]

a lot. Two words.

[@Steve-yh4xb]

​@@alastairgreen2077you do realize that could be a typo , sometimes when I type massages really fast I also make mistakes. Does not mean I can't spell.

[@Wisepati]

Our country needs to make sure that there is funding for people with conditions such as this because they clearly cannot work and they need the care. All the time I hear people saying they are supporting life, but they turn their backs on people with disabilities because they are already born.. we need to do a lot better in the USA.

[@Tezah89]

Couldn’t have said it better 😔

[@dianegrinder2425]

Yea its called social security income.

[@Tezah89]

@@dianegrinder2425 do you know anything about social security?

[@dianegrinder2425]

@@Tezah89 yes I do.

[@Unknown-ub1ey]

USA supports and funds War

[@caraevans2609]

I was born with a physical disability and use a manual wheelchair to get around. I struggle with anxiety, depression and agoraphobia issues that is not directly related to my being born disabled. I absolutely admire everyone interviewed in this video and it really helped put things in perspective for me. I’m so glad you all have amazing supportive families and I just wish nothing but the best for the future.

[@Isa1972ish]

I wish you a the blessings in the world. Keep being strong. You are important and an inspiration

[@BBYCohete]

No te rindas ❤️‍🩹 eres fuerte y podrás salir adelante. Te mando un abrazo.

[@brenmanock]

I have fibromyalgia and have had symptoms since childhood. Of course they said it was all in my head. I have soo much to be thankful for. Blessings

[@amandamiller6995]

People with disabilities have pretty much the same desires to feel love, and want to be recognized for the unique people in this world as anyone else! I am a person who has birth defects myself so I have never known any other way to live. I hope each one of these people gets their chances to enjoy their own time here with dignity sharing it amongst the people they love. Great video about a rare medical condition. Warmest regards from Greensboro, NC USA

[@elissamorales2149]

This amazing people show us that no matter what the issue is we can be thankfull and happy. 🙏🏻❤️

[@sheenagriffith2635]

All these people are so strong, inspiring. They make you appreciate simple things we take for granted everyday. I hope a cure is discovered as soon as possible. I wish them all a great life and love.

[@emilynicole4918]

My best friend Stephanie had this condition. She died Jan 2nd 2018. She was 26. I miss her. She just had her birthday a few days ago Ely reminds me of how I was with Stephanie. When I was around her I did most things to help her. You do anything for your best friend, but yes the stares are the worse but I must say Stephanie never cared. She just lived in the moment.

[@betikene93]

RIP🙌💗

[@janysmahoney1271]

Did she die of complications t this affliction or from something else?

[@emilynicole4918]

@@janysmahoney1271 she really died from this.

[@shadowsinmymind9]

Joey is absolutely right. Your disability shouldn't stop you from your goals. I too have a disease and when I'm in a flare up I need to use the bathroom many times a day. I can't control it or hold it in. But I don't let that stop me from going out and enjoying life

[@adamdavis5383]

What do you have? If you don’t mind me asking I have one too.

[@shadowsinmymind9]

@@adamdavis5383 I have ulcerative colitis which is a type of auto- immune disease. It's similar to Krohn's disease. There is currently no cure but doctors are working on it. It mostly affects my intestines and colon and causes ulcers in there so it can be painful half the time. And its pretty embarrassing to go to the bathroom all time and to not be able to hold it in for more than 5 minutes. 10 if im lucky. For most people they can't eat certain foods such as gluten or it causes them pain in their belly and makes them go bathroom. For some people the pain and such is caused by too much stress and not certain foods.

[@Rebecca_Bailey]

I was literally just about to guess what you have as I have the same condition, as soon as you mentioned going to the bathroom multiple times a day and not being able to hold it in, I knew immediately what you was talking about, I also have ulcerative colitis and it can be a pain sometimes especially when I don't know when I'm going to flare up. If I'm going out I can't just go anywhere, I need somewhere with a public toilet just in case I need to go, I'm not really supposed to stress out either because that's one of my triggers, but having anxiety over an accident happening doesn't help either

[@shadowsinmymind9]

@@Rebecca_Bailey my flare ups are also caused by dealing with too much stress. And I definitely know about the whole going out and making sure that there's a bathroom nearby. When im in a flare up I'll always carry period pads, baby wipes, small plastic bags meant for babies diapers that I use to put trash in, a regular plastic bag to put dirty clothes in, and a pair or two of underwear in my purse or bag. I also keep a pair of pants in my cars trunk and I carry around a jacket so that i can wear it around my waist in case of an occasional accident. Gotta stay prepared in case the worst happens. It's a disease that's embarrassing to talk about, but people are starting to slowly become aware of U.C. and Krohn's disease. I usually keep it to myself though as there's many people that don't fully understand and then they could make rude comments such as " oh, now you're just making excuses, you can't be experiencing this symptom that many times" or "You should try *whatever* to try and heal/cure yourself."

[@Jaque1961]

​@@shadowsinmymind9Chrons

[@maryross4488]

This is tragic for each one of these people. It's so sad yet they are so strong and do whatever they can a d they stay so positive and happy. Something I have learnt from this most defies to put a smile on my face every day and stop complaining about my depression. I really hope there will be a cure of some sort to eliminate the pain and the bones from going so hard. Xxx

[@goldenhaze6880]

His friend is such a nice lady very caring and beautyful

[@isabeladiniz4680]

the world is such an unfair place sometimes... what a cruel disease

[@timhankins6884]

Yo brother lol you made me self Audit and I am ashamed of whining and moning.I love your spirit and I'm extremely impressed with you and your perseverance. I love you brother and 🙏 for you and those that support you.

[@Wifeofasoldiermomto5andgrandma]

These people are so strong yes they may half to depend on people to help them but their not letting fop stop them from doing what they want in life stay strong and enjoy life as it comes.

[@ShiaMajer]

Thank you for this video. I teared up when I saw Joey editing videos in such a condition. I am a trans woman who's redirecting my channel to be more business focused because I want more trans people to understand we are more than just a gender label and we all deserve to have hope and love and careers, I struggle a bit because it's hard to record my daily business life when I am already so so so busy with different business meetings. Watching this video has boosted my patience for what I am doing with my career and channel. Ppl with FOP are truly the fighters and I admire these ppl.

[@kathygarren5845]

My great nephew has this .

[@ShiaMajer]

@@kathygarren5845 I can only imagine how hard it is for them, sending all my love and I hope one day they will have more experimental medical treatments.

[@PlainJaneWay]

Good luck on your redirection on your channel

[@kathygarren5845]

Thank you

[@ShiaMajer]

@@PlainJaneWay thank you

[@eunaekim9216]

Their bodies are stuck in one position, but they never got stuck in self-pity!

[@BossQueen]

God bless them all. I have a incurable skin condition. This video makes me more humble about complaining tho, thank u.🌻

[@VocallyYours3]

Wow I couldn’t imagine this happening to me or any of my friends and family. 💕

[@tiffanijordan45]

I pray God continues blessing you all because all of you deserve everything beautiful God has for you keep loving an enjoy life you guys are amazing!!!

[@67CURTISluciene]

Such strength of character shows us exactly how we should be, Born Different Special and SUPERBE

[@deborahaicklen2343]

Amazing people that keep on going🙏❤

[@visionvixxen]

Prayers. Jesus don’t let this continue to happen to these lovely souls.

[@judithculley280]

Go for it Joey! You are amazing. Love and best wishes from Australia xx

[@antwondunn7063]

You all are so strong with your disability stay strong#hashtag disabled warriors be inspirational God bless you all

[@tonysaldzna2226]

Strong woman and an inspiration to a lot of of us. I wish you the best.

[@gailbarrett9834]

What beautiful amazing people! So strong wonderful attitude ❤️❤️

[@empressdougla]

Wow what a brave man..sorry you have to live with this disease. Love from St.Lucia

[@phoenixhires4685]

They misdiagnosed her and amputated her arm unnecessarily? Wow. That is heartbreaking

[@janysmahoney1271]

Hopefully she dued f malpractice etc cos thats awful an negligent from medics. Money won't make up f losing arm but hopefully it'll help make life more easier f het

[@tsambikasabineiakovidis7755]

15:55 at least she's lucky to be rich... what a beautiful house!!!

[@annnee6818]

Nature is an ahole I'm sorry. Really inspirational how strong they are I doubt I would be

[@janysmahoney1271]

U all have supportive network an long may they continue. Never give up an keep u beautiful spirit /smiles as u face each days challenges

[@Paws4It]

You are an inspiration, you have such a good attitude.

[@Sistatiph]

Even tho he has this illness what a handsome guy! ❤ I saw a FOP documentary her name is Lucia.

[@David-u6v7m]

I can relate to these brave people better than most. My dear mother had fop.my father could not walk from birth as well. They fought so hard to have a life together and even had me their son.my mother died at 51 years old in 1972. I wish she had lived to see her 3 grandsons she'd have been so happy. My father did live to see two of the 3 grandsons. Their grit and determination carried them through along with rock solid faith in christ.praise God he gave me such precious parents I'm so grateful I had them. They taught to never give up and trust jesus implicitly with everything. May a cure be found soon to help such brave people I earnestly pray. God be with you all.deus vault

[@fay-amieaspen6046]

I thought having Fibromyalgia was painful and debilitating enough, but this is just awful !

[@mindyschocolate]

No independence and no privacy. I can’t imagine living like that.

[@EMOTIONBIGLIFE]

These are heros, real heros.

[@Shy.0]

Ely is so sweet❤

[@carolanngelderbloem3209]

Beautiful people ❤

[@DOCTRJ]

Your both amazing 🤠😎👍🌻🕊️🏞️☕🍻

[@purplebutterfly7257]

Carly‘s boyfriend has now put himself in a position of caregiver for a long long time now.

[@akinolaopeyemiodunayo9871]

Please someone explain what cause this disease,this is too scary we need awareness for it

[@Jeonkookie0T7]

I hope they are all okay and doing great

[@claudiarobinson587]

My best friend in high school had ra and was in a wheelchair. She died many years ago. I have ms and fibro and ra and pots and more. I live in pain. 😊

[@sarahpirkle9476]

That must be so awful do Deal with everyday I can't imagine, I hope they get better soon, I hope they have meds for it,

[@Katarina-yq2qo]

There is no cure for fop

[@kehidupankanada]

😢❤ We cant blame em' because of the disability. Fate has made its nature. Let hope to pray that the symptom subsided itself & lead like normal people 🙏 .

[@bridgetsanders1905]

👍🏾🥳👍🏾🥳👍🏾 Enjoy life to the fullest god have the purpose for everybody including you💙

[@zmusp]

Should link the creators socials give them some promotion!

[@janiceyoung7273]

God bless you and your family.

[@imeumana8451]

This is so sad God!!!❣️❣️

[@karolinak828]

Jesus Bless them😔 🙏🏻❤️

[@Nailsnailsnailsallday]

I can’t have children but if my child had f.o.p I would love and care show the whole world to them And I would love to adopt any child and if they have a disability you just want to have a stable haven of love and safety I think these wonderful strong people are just making And to be stuck in your own body to me courses extreme anxiety

[@lislenz670]

This probably sounds stupid but can FOP people get hip/knee replacements or not because of the extra trauma to the body?

[@islayardley]

Not as far as im aware. From my understanding the more an fop sufferer gets injured, the more bone grows in that area.

[@alittleinfppanda]

Yeah, sadly the surgery itself would cause more bone growth.

[@mk4985]

He’s so cute!

[@jazstar7681]

❤

[@Cheryl-lyn85]

❤️ 💙 💜 💖 💗

[@langtryvlogme]

I'd just call it a life and proceed to rest. A life limited to being helped by others, ins't a life worth living.

[@SweetCountryGul]

God Bless You

[@Nailsnailsnailsallday]

He is very handsome For me a disability is something out of control but it doesn’t define you I hope all there dreams and wishes come true plus I am a big alien whistle blower veiwer I know everything and trust me They have machine s and medication to completely cure this I hope they will just be honest and let these amazing people feel free

[@lisacolledge7624]

I'd like to say, in the nicest way possible, that you make me feel like a useless piece of garbage. If YOU can smile and have the drive you do, I am elated for you. I think for me, it's back to the Yellow Pages for psychologists! Finally, here's all the ❤️ and 🗽 to you, all that the world has to offer. xx

[@deborahg2407]

Heartbreaking.

[@adnan.adi786]

I am From Pakistan my 9 years daughter is a FOP patient 😢

[@marcushokkanen9211]

People with that syndrome is only frozen peoples who cant move their arms.

[@Muqadaskhan869]

👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍

[@MariaLopez-er8xm]

This plus EB should be cured COMON we’re in 2023

[@claudianeymour63]

God have mercy on him

[@ashiecloud]

BONE not STONE. That's offensive

[@hermanwhite2598]

You are so beautiful

[@janysmahoney1271]

I feel bad f u all , 1 of worst afflictions t endure..like eva; t have no sensation in u relevant organs/limbs etc T WANT t move but not b able 2 must b mentally /emotionally upsetting

[@nullacht1532]

💕😞💕

[@viktoriiavyshnevetska4141]

She is Turning to stone

[@stefanmeyer8744]

The guy with Fibrodysplasia try weed please

[@TOFAINNAIJA]

ok, why is this womans jeans pulled u so dam high over her waist??????

[@roxannd8536]

Unbelievable. That's what you take from all of this? Where's your empathy?

[@patriciaanzelc5386]

Maybe you need to put a sock in it!

[@janysmahoney1271]

Because with everything she has t deal with, self VANITY is the least the on her mind. Try an learn from the challenges faced instead of what their wearing, its not a fashion show

[@hectorramos9242]

What’s his Instagram dude is hella cool

[@tianaboyd9932]

He's not a bad looking guy