Doctors Told Me To Stay 6FT Away From My Sister | BORN DIFFERENT

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INSEPARABLE SISTERS Alexis and Georgia were both born with cystic fibrosis (CF) - a genetic condition that causes excess mucus to build up in their lungs. For the first nine years of Alexis' life, doctors were unable to diagnose her, but when her younger sister Georgia was born, genetic testing had been updated to detect CF at birth. It was then that doctors gave the girls' parents grim news: at that time, because she had gone untreated for the first nine years of her life, Alexis was predicted to have a maximum life expectancy of 18 years old. Alexis' dad has since told her that hearing this "broke his heart". But it was not only the sisters' prognosis that the family had to deal with - doctors also advised that the sisters "stay 6ft apart from each other at all times" in order to minimise infection risk between the two. The family jointly decided that this would not be possible, but to this day, Alexis and Georgia understand the risks. Alexis told truly: "We've both had times where we could barely breathe" and the sisters have spent months in hospital between them. As a result, they do stay away from each other when one of them is sick - this, combined with improving treatments and a new life changing drug, has meant Alexis has outlived doctors expectations, having just turned 25. Georgia is hoping to start the new drug soon and the two are now able to turn their attention to their future together: "We are capable of being able to live a long and healthy life."
Follow Alexis:
/ lexschul
/ lexschul
Follow Georgia:
/ georgias..spam1
/ georgia._.457
Videographer: Carlos de Varona
Producers: Kim Nguyen, Tom Buckman, Courtney Buabeng
Editor: Vanessa Nascimento
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00:00 Intro
0:23 Meet Alexis And Her Daily Routine Living With CF
1:37 Alexis And Her Sisters Diagnosis
3:04 Doctors Told Alexis And Her Sister To Stay 6FT Apart
4:14 Alexis Shares Her Story On Social Media
5:59 My CF Didn't Stop Me Finding Love
7:24 Outro

[@truly-channel]

If you enjoyed watching Alexis and Georgia's story, we have more amazing Born Different stories here: kzbin.info/aero/PLUkdT9ljJ1cbFTk10utsTb-RGsujT5bG4

[@thehoop74]

One is bad enough but to have 2 of your babies with it must be heartbreaking!!!!! Prayers to all of them!

[@cindyhoomalu1566]

It is a genetic disease, so many families have more than one child with it. I know of one family that has 3 children, all of them are girls and all of them have CF. I am 46, and was diagnosed at 2 years. I do have an older sister, and she does not have CF.

[@garyjaycat]

When I was 12, my classmate with CF passed away. This was back in 2007. I remember hearing that she was once hospitalized because her lung collapsed. It's amazing how far treatment has advanced for CF since then!

[@elsagreen1476]

When I was the same age and found out about this disease, it was a children's disease, with people living to 15 years old, tops. Now, 20 years later, things have advanced so much!

[@astralfaeriequeen]

The people leaving negative comments on the video really don't get these women are fighting for their lives everyday... But, the boyfriend is so sweet.

[@SamaiyaMiller-lol]

Ya

[@ravenc4912]

I didn't see any negative comments what are you talking about?

[@ravenc4912]

Sometimes in life there is negative that's life you have to learn how to with the negative too. But I don't see negative comments

[@B-I-G-N-A-S-T-Y]

No one is being negative.

[@SamaiyaMiller-lol]

@@B-I-G-N-A-S-T-Y actually on there instagram and tictok

[@sarahbysea]

My sister was born with CF and also wasn't diagnosed until he was 9 years old. They said she would like to 18, and she lived to 33. With new medications the future for CF patients looks even more hopeful. Thank you for sharing your story.

[@darlenehoward2340]

​@@ChelseaAnn94her comment clearly said her sister lived to be 33, even though her life expectancy was younger. Unfortunately, that means she has passed away.

[@-youtalkingtome]

⁠@@ChelseaAnn94”she lived to 33” - what about that comment makes you think that she is still alive? You would think with all that these people are going through, you could at least take time to read a post correctly.

[@portiasmith6445]

​@@darlenehoward2340i can't find the comment which sister passed?

[@carolfink3991]

Thank you for telling this story because I have c.f. and I am 51 year old and everyone's c.f. is different.

[@MandyAliens]

No one understands how hard it is to have a lung condition or infection . It is physically and mentally draining . For parents watching their children who have these infections is just heart breaking . May you both live life to the fullest and may you both live a long healthy life god bless ❤

[@cindyhoomalu1566]

I have always told parents that it is probably harder on them than it is for their kids that have CF. Then I became a mom (my child does NOT have CF), but I feel like my heart bleeds when he has to go through anything that is difficult!

[@MandyAliens]

@@cindyhoomalu1566 yes I have a rare fungal infection in my lungs and it made my Mother out of her mind and was emotionally and mentally draining I couldn’t imagine if one of my kids had to go though it I wouldn’t have been able to keep myself together. God bless all mothers 💪🏻🙏❤️

[@katherinemurphy2762]

I have asthma, another type of lung disease, and when it's at its worst, it is debilitating and scary.

[@cindyhoomalu1566]

@@MandyAliens oh my goodness! I can remember when I was in middle school I had a fungal infection. It was aspergillus, and I think that is the closest I’ve been to death with CF. Honestly I’ve been very fortunate with the disease, but I still just thought I wouldn’t live past my 20’s. I turn 47 next month, and I’ve been lucky with my health. I’m so glad you made it through!!! 💜

[@MandyAliens]

@@cindyhoomalu1566 I had the same infection!!!!! Do they know how you got it ? I’m sorry that happened to you especially as a kid that must have been so scary . it literally gave me ptsd I almost died . And thank you so much ! I’m also glad you’re still fighting here and sharing your story! Not many people know about this unfortunately.

[@MisSummerSweetie]

I had a friend with CF. She wasn’t expected to live more than a few days. She made it to 19.

[@ShatteredRippleBooks]

It's disgusting that people leave negative comments. These women are so brave I'd be terrified if I had this illness. I have bladder pain syndrome and that drastically affects my life so I can understand how hard it is to live with a life changing illness. It's not easy atal!

[@namsyl2093]

Those with hateful comments are compared to a drowning boat.

[@anitagodin3973]

🙏

[@pwillis7732]

Trolls are disgusting 🤮

[@r.r911]

"Built in best friend...." omg got me teary. Wonderful, strong, and beautiful sisters. ❤️

[@PixieStitchs]

I had a childhood friend with cf... i still remember playing with her and having a blast... she had a lovely, fiery spirit. We moved a state away, and unfortunately, i got word of her passing when we were both around 11 or 12 years old. I'm so happy to see these awesome sisters getting to live more of their lives, and thriving. Hopefully, treatments continue to improve!

[@hollyhal1254]

I went to school with a boy with CF. He was considerably younger than I, his older sister was just a year behind me. We went to a very small school where everybody knew everybody. This was back in the 70’s. He passed away in June of 1981 at the age of fourteen. He was such a fighter. RIP Chad.

[@Elianalivinglife]

My cousin had CF she made it to 23 years old, she was on the lung transplant list.

[@suestayton3482]

I truly appreciate your video. My youngest daughter passed from CF 11 years ago when she was 23. I still advocate and fundraise for CF. Hugs to you both!

[@bellememorie]

I send you and your daughter's loved ones my condolences. I'm so sorry for the loss of your daughter. 💜

[@elizabeth3405]

Watched a cousin suffer with CF in the mid to late 80’s 😢 so grateful there are new technologies for those currently diagnosed. Much love beautiful ladies ❤

[@TheLauratkd]

I thought you were fraternal twins at first 😯 I wish the girls very best 🥰

[@rshabbir7]

God almighty ..being an asthma patient I was under the nebuliser couple of times ..looking what they are doing each and every day make me so blessed! Kudos to them …they are warriors

[@misjuiceefroot]

My very young coworker died from CF. She had small children and a husband. It was so bad that she had surgeries every year or two and she had a tracheotomy. She died very suddenly. Such a sweet, resilient young woman. RIP

[@katemurphy5773]

So proud of their strength and their bond with each other. I hate that you get negative comments on TikTok! Just remember there are far more loving people out here than there are a$$es. God bless you in your life's journey! ❤

[@SoulfullySophia]

❤❤❤❤ so proud of you girls!!! I had a cousin that passed from cystic fibrosis at 21.😢 I’m amazed at how the life expectancy has improved so much!!! May you love long healthy lives 🥰

[@ricecakejohnson]

There are some hateful people in this world, like how can you leave negative comments to someone's struggles SMH!!!!!

[@coolbreeze3338]

I tell you what, they both very cute,an have a beautiful smile,so keep showing it off, don't let sickness stop y'all from showing it off, an I pray that one day they find a cure,so y'all an the other people living with the same sickness, live a better life...

[@lotussong1]

This reminds me of my mom and me. We both have a somewhat rare lung condition called bronchiectasis. My mom found out in her 20s, but I recently found out at 42. There’s no cure, but it’s manageable. We also use nebulizers as well. Best wishes for these sisters!🙂

[@Jhogg333]

My 2 boys were diagnosed with CF when they were 11 and 12. Both were negative at birth and still have only semi high sweat tests. Drs r saying they have a rare form. Neither of them use Puffers on a regualr basis and I think we r blessed because of that. What you girls are doing is amazing! And don't ever listen to the trolls... they r jealous. You are both amazing and wonderful poeple for spreading awareness about this awful disease. But it's come so far in the last couple of decades that I'm SURE if everyone helps spread the word that it will continue to help with the progress. Don't ever stop being you!💜

[@DJChrisOTM]

Thank you young ladies for sharing your stories. As a person with CF myself, it’s good to see others who are persevering in the midst of CF.

[@boudicacelticwarrior1481]

GOD bless them both

[@laurenschenck5355]

Poor things so sad and heartbreaking and I appreciate them sharing their story and so strong and amazing inspiring and unbelievable women and blessings angels and so proud of them ❤❤❤❤❤❤❤❤❤❤❤❤

[@prinzezze]

I've never seen a vest like that! I didn't know those existed. I used to follow Claire Wineland who died from CF she was only 20 years old. Hope medication and treatment will continue getting better!

[@MadeaNH]

The Cystic Fibrosis Foundation is one of the best organizations in the country. Generally, 85% of monies collected goes straight those in need and to research unlike a lot of other organizations/charities are lucky if 15% goes to the charity or organization and not “administrative” fees.

[@snuff2023]

Thanks for sharing THATS DISGUSTING that most money going to charities doesn't even go for what they say.

[@MadeaNH]

@@snuff2023 when ever I get asked to donate to any charity, either in person or on the phone, I stop the person from going on their spiel and ask them one question. I tell them if they can’t answer it, I’m walking away or hanging up. The question is, “what percentage of money collected goes directly to the charity, organization, research etc.?”. If they can’t answer it, I’m done.

[@shanabenjamin8945]

Such an amazing family! Keep going ladies! Love from South Africa:)

[@jengsci8268]

Thank you for posting this, informative. All the people that have things going on with them (not just CF) that bravely post and explain about their situations is nothing less than heroic. People can be so judgmental and intolerant of things they don't understand. I have been guilty of it myself in some situations. I am better now about that. Having more information is key to help prevent these things.

[@rachelroussey7048]

Beautiful, strong, smart, resilient ladies!! 🙌🏻💪🏻🫶🏻❤️ Lots of love and prayers for you both to have as long, happy, healthy lives as possible!! 🙏🏻🙏🏻❤️❤️❤️

[@chica6865]

You two ladies are soo strong🌺🌹

[@user-sq8gn6uq4r]

You both are strong women who are bravely sharing your journey with CF. That can't be an easy thing, especially with the negative reactions some people have. I'm glad you helping spread awareness and thru your videos helping others and there family members who also have CF.

[@zchoicez]

Wish u guys the best in life! Stay healthy, happy and strong!❤❤

[@nota-lent]

I don't get what negative comments people has to say about them 🤔 people really be picking at anything, they look good

[@EsmeraldaWolfsbane7777]

good?🤔

[@Creole164]

What bad comments?

[@MandyAliens]

@@EsmeraldaWolfsbane7777leave them alone . People are so miserable I swear .

[@tonitwitty9529]

They said they get bad comments on social media ​@@Creole164

[@B-I-G-N-A-S-T-Y]

No one is leaving negative comments

[@ernzer-cardeiramartine7229]

You girls look like twins and you're so sweet to each other. You share ab strong bond aby together you manage your CF pretty good. Keep on continuing

[@susanwills4723]

I am so glad you are helping people understand your condition. I am very sorry you both have it. Will pray for you all and hope some day there is a miracle for you both. God bless you 💯💯💯💯💯💯💯💯💯💯🥰🥰🥰🥰🥰🥰🥰🥰🥰👏👏👏👏👏👏😊

[@melissawilson0221]

You are a miracle both of you. Thank you for educating people

[@LaurieHeatherGoldstein]

Beautiful family! God bless.

[@YinkuscoocoojStar]

You two are so strong and beautiful, thank you for enlightening us and giving us a view of your life. Wish you both the best

[@berthagreen1620]

You girls rock. Keep spreading your word to help others. Ignore the naysayers, they’re so darn perfect aren’t they.

[@nellieryen4019]

Beautiful brave girls! Love that you’re bringing awareness to 😅cf and other lung conditions . Rock on beautiful souls ! Oh n stay tight ,6ft is too far!

[@bonnieholt3135]

My cousin was born with CF in 1978. He lived to be only 8 years old. I am so glad to see how far treatments have come. Back when he was alive Children's hospital had a CF wing, now they no longer have that. My cousin had to have his back slapped everyday, now they have the vest. My friend's daughter also has CF and is doing well.

[@kimtodd1803]

I have cystic fibrosis. I am in family.. how does siblings who has cf both have cf, how does it work? Yall are both inspirational!! I used afflovest. I found love of my life. I am 48. These sisters are above beyond inspirational young ladies and supporting each others builds best bond stay strong and conquer world

[@Jaminatakaba]

The chances are 1 in 4 with carriers to have a child with each pregnancy.

[@ameliesayshola8854]

I knew a girl in high school who had this. I believe she is still alive. She played sports in high school and seemed to live a normal life. I do remember she coughed and cleared her throat a lot in class and I never thought much about it until I learned she had CF.

[@katakanacristatus8123]

Hugs and love to this family

[@tw8464]

Thank you to these amazing women and to all the medical folks and researchers and people building awareness of cystic fibrosis. Hopefully treatments and medications will continue to improve and more funding directed to research. I don't know if people who've never had lung issues really understand what it's like to go through it, so the more awareness and empathy, the better.

[@bluejem1315]

They are beautiful and brave I wish them the best in life .

[@dianebryant4684]

Beautiful young women. They both are miracles in my eyes. ❤❤❤. I appreciate the awareness they are putting out there to the public. Only ignorant people make stupid statements about others, PURE IGNORANCE!

[@dzhorselover]

Beautiful story

[@eleanorjordan6351]

Thank you for sharing your story. My God bless both of you and keep you strong and safe. ❤😊

[@PatriciaPageMosaicArtsCrafts]

What awesome young ladies, live long and prosper 🙌 ✨️❤

[@stevenmifsud7496]

All IV got to say is I myself agree 💯 percent well done ladies keep up with what you are both doing you both when my blessing

[@CatherineWayland]

I am shocked that you guys get negative comments. You're educating people about the condition and also being so positive about your own situations. I just wish that people would take the time to understand the severity of your condition and stop the ineffectual advice and criticism. Thank you for this video.

[@deborahb7284]

Good show. It's good see you use the vests. I worked with a man and he and his wife had to exercise their girls lungs by by patting them with their hands. They had three out of four daughters with CF.

[@moniquejohnson2465]

They are beauties...bless them

[@lindasplace2727]

Awe ❤ you both have an amazing positive attitude 😊

[@aileenquiroz4453]

Thank you for educating us. I can’t imagine someone being so ignorant that they feel the need to hurt your feelings.

[@Beatleslover3]

God Bless them both!

[@LivingDeadGirl_096]

Both u girls are amazing! Keeping doing what your doing as it’s clearly working and F the haters ❤

[@worldbiggestgeek9366]

Incredible amazing sisters, who are very strong 😇😇😇😇

[@aliciarobertson4979]

Both these young ladies are doing a brilliant job of remaining positive and educating others about this dreadful disease… 💔…. and I hope that they will remain as healthy as possible for a very long time. 😊

[@corennakhieu5483]

I pray they live long, healthy lives. 🙏🏽

[@user-nz8pn7qm1g]

I just watched your video and you and your sister are very inspiring!!

[@LindaBahlmann-wl6qu]

Good for you! Happy life to y’all !❤❤❤❤ for yourfamily

[@rebeccamyott7041]

Bless you both.🙏🏻🙏🏻🙏🏻🙏🏻❤

[@YeshuaKingMessiah]

Huge strides have been made in CF tx Those vests are awesome! Instead of cupping Wow mindblowing

[@plantadelbosque]

In elementary for a brief period I had a classmate with this condition I moved cities and lost contact with all these kids. To this day, decades later, I still wonder if she (and her younger sister, who had the same condition but more extreme) is doing okay. there wasn't much treatment in the 90's for this back home, so even my kid self knew there wasn't much to do. I hope things have improved since then

[@nopenope9118]

I work for a local pizza chain in Indiana and we hold a CF fundraiser across all our stores every year. Our founders know a family with multiple CF children, so I’m glad we’re able to do even just a little to help fund research. Also, her boyfriend looks a little bit like Ryan Gosling, which I love for her.

[@msjones6335]

They look so much alike....The thumbnail looks like twins

[@muhammaddaniyalrashid9463]

Wish them good health!

[@elizabethd.7662]

Those leaving negative comments probably just more education about the disease. The girls should continue incorporating info and day in the life content to the tic tok.Nice job ladies!

[@willowzampino9932]

Missing you here with us Georgia love from NJ!

[@kellywilliams5088]

It's incredibly amazing that medical research has been able to extend the life of people with CF. It used to be late teens or early twenties. There is also the possibility of a lung transplant. These ladies are awesome! ❤

[@wintersprite]

I first learned about Cystic Fibrosis in the early 2000s when I was in high school. I read the book “Alex: The Life of A Child” (my mom had two copies). I decided to write about CF for one of my Biology class papers. I also follow The Frey Life on YT. While, it has inconsistencies, I love the movie Five Feet Apart too.

[@laurie2355]

You girls are so lovely ❤

[@sandraclaxton8531]

I think your both very courageous young women, keep your chin up. From Australia

[@PatriciaMartinez-kn6ud]

I'm glad they've got each other and supportive family and Trifecta available to them! I discoverered a female who wasn't able to get certain medications due to financial reasons and at one time attempted suicide,Because of this thry took her off transplant and she had to begin again and wait a year to even qualify.Her lungs were like at 20 or 30% functioning,In the end she k ew she'd die before getting a transplant because they took it away from her so she gave up and went to hospice because she felt she had no rights help or say si in her medically choices and felt that at least with hospice he would have some say so in her care with her time left and died like a month or 2 later. It was A very Sad and tragic story But I'm glad she at least had hospice.

[@darleneachille491]

I am convinced that some people are human devils, like how could you say anything mean to them? Makes me very sad!!!🥹

[@trishannbell5508]

What kind of human being can even think anything negative about to a beautiful woman who has this disease? OR ANY DISEASE??? THATS HORRIFIC. WE LOVE YOU BOTH, YOU TWO ARE STRONG, GORGEOUS (INSIDE AND OUT)!!!!!!

[@michelledawn7446]

I am not close to anyone with CF but I do know of one girl I went to school with. She is still going strong.

[@user-sz2iz8yh3i]

How could anyone leave a negative comments ?? I think these girls are too beautiful inside and out so there are too many haters. Life is too short not to be around the people you love, so i understand their decisions.

[@jenniferg749]

You are both beautiful and amazing. ♥️

[@kiwisweetheart71]

You young ladies are beautiful. I hope, one day soon, scientists discover a cure for CF, not just a treatment.

[@sandyseibelhager7131]

The Frey sisters also both have CF one has now had a lung transplant and the other was put on the list but then trikafta came out changed everything

[@Wheelztotheworld]

Beautiful people

[@jadebirk5957]

I can't imagine how the pandemic was for them 😢 it was hard for everyone, but already living that way everyday

[@deborahbarlow4309]

My younger sister has this. She has the nebulizer and the vest. She also has scoliosis, she had a very dangerous correction surgery and she took it WONDERFUL! The funny thing is, my younger brother also has it, but milder. They've never been told to keep apart nor apart from us.

[@dollsNcats]

A girl I work with who just had a baby , her baby was born with CF :( ! That’s so hard

[@MangoPanic]

It's fascinating how much variety there seems to be in how fast/serious the disease progresses. I remember watching Claire Wineland before she died, and she had breathing tubes in her late teens. I'm glad to see that these girls seem to be able to live relatively normal lives despite their condition.

[@Anniekitty1016]

I scrolled until I found her name. I knew she'd show up eventually. She was inspired and I miss her all the time

[@MangoPanic]

@@Anniekitty1016 She was such a wonderful soul. She really inspires me every day, even all these years later 🥺

[@the_Tigro]

Reminds me of the movie "5 Feet Apart" 😭😭😭💔

[@PxbiPxndxs]

Thats what I was thinking 😭😭😭

[@CreativepreneurJourney]

There is a lot learn about this illness.

[@charlymoses]

Congrats beautiful warriors women. I like a lot your positive things.

[@karinagomez9831]

People's level of ignorance baffle me... wth!?! I'm so sorry for the negativity you ladies are some real ones and have my respect 🙏🤍 my heart goes out their parents ❤ what is their social media I would love to support

[@nytekeeper6861]

Every single person that leaves nasty troll comments on their videos needs to step on a LEGO. While barefoot.

[@Inconcvable77]

I am glad that they are bringing awareness to this; however, there is also a fairly new medication that CF people can take that makes it so they no longer have to do all of these things. KZbinr @StephiLee has CF and documented her journey, although she started using Tryptophan (I believe it is what it is called, but watching the video will explain more) a few years ago. I followed her prior to her using it, and the changes in her quality of life since taking it are astronomical; even her life expectancy has extended exponentially.

[@DJChrisOTM]

Treatment varies depending on the CF mutation they have.

[@aviswerl6372]

The tik tok comments are so illiterate... Some humans are mean for no reason... Praying you guys have a long and healthy life ahead...

[@Kaxxonxbox]

So glad they have each other ❤

[@michellefrancis2083]

The both of you looks like twin you both are beautiful