Lichen Planus Webcast with Dr. James Sciubba

[@DorisMcGill-g7h]

I have had both oral and topical lichen planus for over 6 years. My skin has stopped itching, but is spotted all over and my mouth is awful. It flares up so badly that I cannot eat. I have gone from 179 lbs to 125 lbs. I’m miserable most of the time. Been on high doses of prednisone and many other medications. Often having a bad reaction to some. Seen several dermatologist including one at Duke and many dentist, an oral specialist . No clear answers to why I’m sick or how to best treat it. I’m often depressed and don’t know how to care for my mouth. Almost on a completely liquid diet. NEED HELP😢

[@frankliudds]

Glad to see Dr. Sciubba in this webcast! I was a dental resident when Dr. Sciubba was Director of our dental program at Long Island Jewish Hospital back in 1996....He really is the best!

[@CathyS_Bx]

Here are mild, bland, unflavored toothpastes that have helped me: Cleure and OraNurse. I also use the TEPE Special Care Soft-Bristle Toothbrush, Post-Surgery Toothbrush for Sensitive Teeth and Gums and have a new one sent to me from Amazon every month.

[@wj2260]

This is so helpful and i wish i had watched this video earlier!!

[@brittnijangrow]

Does it tend to get worse? Have you ever seen it go away and not come back if it was drug induced?

[@bnecktr]

I had that personally. Olp disappeared after i could manage with Life stress