Fibromyalgia: Living with chronic pain - BBC Stories

[@blackberry9013]

I'm in tears watching this...I'm a "fibro warrior" too. No one understands, or cares about what I go thru on a daily basis. Sending love & light to all my fibro sisters & brothers💜💜💜

[@j3npho83]

❤

[@b3rkolas235]

Even though majority of sufferers composed of women, men have more sharp pain like me.

[@Damiaait]

🙏

[@justpassingthru3186]

♥🙏🕊

[@NicolaEnergy]

Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx

[@mymanson77]

I've had fibromyalgia for 21 years and what has frustrated me most has been the medical community. I've been to specialists hoping to get referrals for the right therapies (not necessarily medications; the meds are horrible), and the blood work would come back perfect and they'd act like it was due to my 'depression'. They would not even give me the chance to explain why that is/was not the case. The pain is real; and yes depression can make things worse, or you can get depressed from living with pain 24/7, but please hear us out, take our pain seriously and guide us, help us.

[@beetrootbonanza7640]

What are the 'right therapies' you should have been referred to in your opinion?

[@oliverholberry4304]

Had???

[@rebeccagreen9240]

Amen to that I totally agree with you.I wish ppl would take it seriously.

[@molai1961]

Beetroot Bonanza : We do not know what would be right. What we know is that help, if any, will definitely NOT come from people with your attitude towards pain sufferers.

[@joannepereira5080]

Vicky Manson I agree I have it for 30 years I think I have it longer from childhood the last few years I feel every day I’m dying slowly & is getting closer I have no more fighting on me my husband & most of my family don’t really try to talk about or get informed I move to my spare room & I don’t get out of my room anymore I leave day by day every day is a fight with my mind depression & anxiety become extreme.. I become allergic & sensitive (MCS) to almost everything I can not smell anything even food & I become extremely sick become allergic so no pain pills & no inflammation meds or any depression or allergies meds or sleeping pills I take nothing the pain becomes so unbearable , the doctors they don’t even want nothing to do with me Soon’s they know they cannot prescribe any meds , they ask me why I’m there they don’t care .. I feel for you & everyone else I pray & hope soon will be better for everyone & they find a cure or they care enough to help everyone with Fibromyalgia in medical field Soft hugs 😔💜🦋

[@lightplan]

The worst thing is that most people think that "It's all in your head" or that "You're just being weak"... :'(

[@simonesimone1101]

Exactly 😭

[@hisservants8003]

I find that to be one of the worst parts of this illness. Just remember that Lupus was seen in the same way not too long ago. They were told that it was in their heads also and we all know that it's a serious disease. Hang in there.

[@blessingsoflight]

Amen. It's even harder when your family doesn't understand or believe you.

[@amerikarefugee6361]

Doctors laugh at me and disability denies me help, now I am homeless and can barely move. God help me!

[@wreconteur13]

That kind of lack of support just makes things so much worse. Occasionally, my husband will become frustrated with how I have had to change how I do things or how restrictive my limits can be now and try to pull that crap on me. I remind him that I am not now, nor have ever been some weakling. I may have a chronic illness (or four!), but I'm still a badass bitch who regularly pushes myself through pain that would knock him on his ass and keep him there! Just because I'm not as good on my feet as I used to be doesn't mean I can't stand up for myself! 😁

[@Baeoah]

Usually I am crying from the pain of being alone and isolated, with this videoI'm crying from the relief of mutual understanding and community

[@Lemi300]

Changing Tides try high dose of CBD oil.

[@sapphirepokemonfan]

Exactly how I feel right now, I’m hysterically crying

[@loveforall1]

me too... I cry all the time cause no one understand. We suffer with tears and silence. Love you all

[@janie1759]

I got it at 9 and i have 80+ more years of this disorder. Just thinking of that kills me

[@kathywilkins5546]

That is one of the worst effects of fibro, that it isolates you. You don't feel like doing much and when you do, there are limits which slow you down so you become a drag on anyone with you. You're no fun to be with. It's a lonely disease.

[@alexiameloo]

I'm crying so much right now. Only the ones who live in chronic pain can understand the struggle.

[@Jo-kh1yo]

Research fight or flight and the parasympathetic nervous system. Eating a cleaner diet and resetting the nervous system with mindfulness and meditation (5 mins per day to start). Drink pure water. Also spend more time in nature and be kinder to yourself. My symptoms dissapeared when I started doing these things... no symptoms for 13 years now, after suffering for 6 years with the condition, I also healed my interstitial cystitis at the same time, which I had had for 18 years. I have ADHD so these things are achievable for most people, if I can do it! What I have learned: The trauma response can cause the body to get stuck in fight or flight. When this happens the body cannot heal, all blood is directed to the muscles to fight or run. Cut stress out of your life, stop watching drama programs and horror movies, yes this means all soap opera`s too! Your subconscious thinks the drama is real and your body tenses up and releases adrenaline and cortisol. Cut off toxic friends, cut out as much stress as you can from your life. Learn to create healthy boundaries in your relationships. Listen to music with positive messages only. " The long-term activation of the stress response system and too much exposure to cortisol and other stress hormones can disrupt almost all the body's processes. This puts you at higher risk of many health problems". Change your environment, Reset, for better health. :)

[@Pippa.G]

I don't talk about it because it feels like nobody believes me. It actually can get quite depressing.

[@33XX33]

I believe you I got FM too

[@GeeklingNo1]

I’ve had a girl tell me to my face that I’m a liar. My dad doesn’t believe me either. BUT I got a new doctor that does believe me and that makes all the difference!

[@tanikkapadgatte2685]

💜😔💜🌷

[@shaylamccartneyshay4511]

Philly Aime I’m so sorry I wish people would think of the condition as Real Because it is !

[@shaylamccartneyshay4511]

Normal'sWayOverrated that’s great

[@Vanagons4Eva]

I've only watched about 15 seconds and I'm already annoyed that it's called "women in pain". I know this has often been characterized as a "women's disease" (which is probably why doctors still don't take it seriously) but as a man with fibromyalgia I'm already angry that the BBC managed to misscharacterize it.

[@simonesimone1101]

Me too

[@the1tigglet]

MEN have fibromyalgia at the same rates as women! The difference is men generally never report it. some men won't report it because of the stigma!

[@tennyson70]

seriosuly one of the hardest things to deal with yet, i'm 21, male and have crohns, osteoperosis and fibromyalgia and due to how long it took for doctors to diagnose all of these, most of the times all i heard was get this guy to a psychiatrist or go to a temple and do stuff like prayers and it'll. Being an athiest it was super hard for me to stay calm during all of this and a lot of times i've been doubting myself as well as to if i'm crazy and just making it up in my head. i seriously hate it whenever a doctor didn't understood the problem and simply stated i have depression or i'm crazy, once i had so much pain that i was crying in the hospital emergency section and i felt more pain while being touched, so the doctor said take me to a psychiatrist (again) and i was so pissed off as to why if they can't figure out the problem they just label the patient as a lunatic (sorry for the spelling errors, my fingers really hurt while typing so i tend to mistype more often)

[@Melissa.Garrett]

Even as a woman with fibromyalgia, that was my first thought. It’s an unfair prejudice that makes it even harder for men to be diagnosed, when it’s already a nightmare getting doctors and benefits agencies to believe you.

[@jamesm7002]

same here to be fair I mean men get this as well im in so much pain i can't even move some days so seeing that did irritate me as well it's like men with fibro are forgotten

[@2115virgo13]

Fibromyalgia for 15 years! It’s slowly killing me! Physically and mentally!

[@Left-is-right-8192]

Look up “fibromyalgia central sensitisation” on KZbin. This condition is starting to be understood. My cure came from sirpa in the uk (aka dr sarno tms in the us)

[@Deathmetalfiend]

2115 virgo 13 please my mom who is 62 is having this curse of a sickness ever since 2011 until now !! Her pain used to be un believable out of this world !! Pls any tips on how to cope with it ?!!

[@alexandrasarno6394]

Its killing my mom as well..shes at the end of her fight..I have no words..

[@NicolaEnergy]

Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx

[@JunelleThomson]

2115virgo13 I hear you darling. I can totally relate. Hugs to you 🥰

[@livcatttt]

I was diagnosed with fibromyalgia today after so many years of pain. I was told many times by doctors that there was nothing wrong with me and today was the first time someone believed me. Although i'm so relieved to know what it is, I can't help but cry thinking about how much it has affected my life already. It feels good knowing I am not alone in this battle though ❤️ Sending my love to everyone else going through this pain.

[@vickyredfern1800]

Swimming can help

[@wendyhannan2454]

I find walking in the pool very good, but I need to pace myself regarding exercises. If I over do it I’m hopelessly tired the next day. 😉

[@evebeinguniquebeingme6205]

I hate Fibromyalgia it hurts so much and I hate being judged for it by strangers who just see me and can't feel my pain, I got diagnosed at fifteen and was so relieved they believed me about the pain

[@bbcstories]

Hi Eve, Thank you for writing in. Your frustration seems to be common with so many people who suffer with the same condition. I hope you found this video useful.

[@GodzHarleyGirlStudio]

@@bbcstories YES!!!!! I *HATE* hearing, "Well ya look alright!" Ughhhh!!

[@techtechreviews6306]

Try drinking 6 glasses of fresh organic carrot juice every day for 30 days, with some flaxseed and oats scattered throughout the day, and see what happens ! 😁

[@deannasanto3656]

I was diagnosed at 15 as well, honestly its just so difficult to see my classmates achieving so much when some days i need others to open my water bottle.

[@corrinnegarfield2460]

EVE! God Bless you! How long had you been having symptoms before DX? I was 15 in 1980. Diagnosed in 88. But my ENTIRE LIFE , Docs believed my mothers accounts and observations and mine as i got older. I think I have it easy not having concious memory of not having pain. My spirit just went with it. But if u had life without pain prior, its Devastating. but my life had no time I missed ALOT of school. But graduated and did 1 yr College. Had 3 kids, 5 yrs apart took care of a lot more. Still do. Lol. At its worst, its worse than uncomfort or pain. But i just keep moving. Then... Soon as i feel i can pass out, im down. I like to be up at dawn. And crash shortly after dark. I sleep 6 to 8 hrs, when i open my eyes, i say GET UP. From the day in 88 when i just had my girst baby, and this Doc who was from Harvard University and was a participant in a ten yr study on FIBROMYOCITIS later changed to Fibromyalgia, and just Covering for my doc who was at a conference on the same. told me what it was I was his first patient after the study ended he saw and i had Fibromyocitis.. ! Blew my mind! Rheumatologist who confirmed it , told me " its not going to kill you. But there will be times you wish you were dead.. And i laughed... I never wished it, but felt like it quite often.. Lol

[@redsorgum]

I’m one of those few men that have it. I’ve had it for around fifteen or so years. Mine has gotten worse as I’ve gotten older. Because I have no choice, I’m still working at a job that’s fiscally demanding, and of course, I eventually get punished for over working myself. Fibromyalgia, the gift that keeps on giving.....

[@eldiablo4616]

we have same story bro , it got worse as I got older .Im suffering this pain since I was a child

[@redsorgum]

Rodney Unajan Hang in there, and don’t give up. Life must go on, we need to do our best to mange the pain. Peace to you.......

[@Cougarsamurai]

I'm with you Bro - but keep going - I need to know I'm not the only man suffering. :)

[@Left-is-right-8192]

Me too. Look up “fibromyalgia central sensitisation” on KZbin. This condition is starting to be understood. My cure came from sirpa in the uk (aka dr sarno tms in the us)

[@joanmcgilton5148]

Redsorgum my husband has fibromyalgia Sometimes he wakes up saying it feels like someone is pulling his arms off

[@editthisthot4302]

My Fiancé has Fibromyalgia.. he felt so much pain.. He had to leave examinations because of it.. one day he told me we should just be friends.. I knew fibromyalgia causes behavioural changes and he was distancing himself in order to keep me away from getting hurt.. but I will always love him.. Through thick and thin

[@sweetspacesessions9813]

Aren't you just amazing! I had fibro when I met my current partner 3 years ago. I was in the thick of it. The pain also made me develop bipolar symptoms. He stuck with me through it despite me emphatically asking "are you sure?!" and his love and support helped me immeasurable. We are still together to this day and I am out of pain and out of mental health issues. Both you and him and any partner that stays I have utter respect for

[@tanikkapadgatte2685]

💜

[@TheLoveweaver]

@@sweetspacesessions9813 that's so awesome! You have a wonderful partner. How have you overcome your pain?

[@sweetspacesessions9813]

@@TheLoveweaver I do feel very fortunate to have him in my life. In terms of getting better, I did so many different things. From exploring many different forms of exercise, seeing a naturopath about my gut and cleaning my gut and diet - there were foods that were making it worse. Focused on how I wanted to feel and just started getting curious on what would help me to get better. It has been a tough journey! Really exhausting and at many points I wanted to give up. I am so greatful to be where I am now.

[@TheLoveweaver]

@@sweetspacesessions9813 oh, okay! Thank you for responding so quickly. I really appreciate it. I wish you continued health & happiness! 🤗

[@amandarjames7001]

Fibro has absolutely wrecked my life...

[@samuelaubrey2612]

thc oil or CBD will help with the pain

[@florence1395]

Samuel Aubrey it didn’t help me either. I actually felt sick with the taste.

[@sapphirepokemonfan]

It’s the THC that helps me

[@jamiem5364]

@@sapphirepokemonfan same here!

[@TheDevilWearsPrada.0]

Amanda R James sameeee

[@StoneLegion]

I have a loved one Diagnosed with Fibro. The downside her specialist said it was the worst he has come across to date this was a few years back but a bit discouraging. Some of her family and friends don't think she has it others say it's in her head even doctors who said she should see a therapist and her own father forcing her to get a physiological check at the hospital. Either way to give you an idea of her condition she uses forarm crutches on a good day. Most the time she needs to be pushed in a wheelchair we don't have money for a scooter, etc. On a bad day shes in her bed pretty much crying in her own way sometimes her entire body is flailing around when shes having a really bad attack I mean what you see in the movies when someone just got kicked as hard as possible in the unmentionables. Sometimes her feet and hands mostly the tips will go so dark they are more black then blue. She spend a lot of time in bed not getting any sleep just to have a couple hours of energy. Even then sometimes her brain is so foggy she can't think at all and a lot of times can't even recall what happen the night before when this happens. It's one the hardest things I have witnessed and I love her so much and plan to be at her side till I die. I'm her full time caregiver. I really hate my country because they treat the disabled like crap we are over 50% under the poverty they give not even a cent for Caregiving yet she could have 4+ Hours of PSW Service but not if a loved one does it. We live a hard life financially and because of the disability. She has taken so many types of drugs, etc she has some that help but she had a lot of reactions to others. We be lucky to get some fruit and vegetables in our diets the government tells us to go to the food bank that is what their for. Gives you an idea what kind of place Canada really is when it comes to the Disabled. They make the Disability Support programs like their temporary to help get you back to work yet not everyone can. To make things worse she was becoming a Teacher in Uni 2nd year when this all struck her. Guess what she wanted to do? She wanted to help children with developmental issues and she was already an teacher assistant for it. She is one the most postie people I have ever met. I'm Sorry those with Fibro this might been a bit hard for you to read. This was more for those outside of Fibro who don't really know what it's like for someone who suffers on the more extreme side of things. It's made me really angry for others who have Disabilities in Canada to stand up for them and fight for them. A lot of times on my spare time I spend it helping others. It's really change my prospective and next time you come across someone with a disability don't just look the other way ignoring them thinking that would be rude pretending they don't exist. Instead think of how their day to day life must be. Do they get enough food? Are they being helped enough? Etc. It's time we stop ignoring people with Disabilities even more so those with invisible disabilities.

[@Annmarie123ize]

Kane Hart -

[@Annmarie123ize]

Hi I understand I have severe fibromyalgia and ME. I got a scooter from the mobility trusts web site, Email them about my condition and detail of my finances they gave me a beautiful scooter worth £3000 it took me about 8 months to proof I need it by email then they sent a occupational Therapist to come and assess me and then I got it in a week. It was a great blessing to me can only use it on a good part of the day.

[@cheri6360]

Annmarie123ize that’s awesome they helped you out with a Scooter!

[@cheri6360]

Kane Hart - Let's Plays I’m sorry to hear what you all go thru on a daily basis. I say “you all” because even tho you don’t suffer with fibromyalgia you care for someone who has it so you know exactly what it is like. I hope one day the scientists will find something to help us. I am Tired of being tired and tired of being in pain.

[@joannepereira5080]

Kane Hart - Let's Plays 😭God bless you ...We need so much more people like you in this world 😰I wish I could post your comment everywhere I stop social media long time could handle any more I cannot stop crying what you wrote just touched me .. Thank You........ xxx💜

[@mc_180]

Chronic pain is a type of ongoing pain that can be similar to the aches and exhaustion you might experience with the flu or after an intense workout. It can also come in flares that make you feel like you've been hit by a car. However, chronic pain is often invisible to others, making it difficult for people to understand how someone can feel this way all the time. This is often why I try to Escape into books or video games, whatever little distractions keep me from thinking about my chronic pain.

[@larssonmaria8090]

Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

[@rosannaanisi4642]

I’m positive I have this , haven’t been diagnosed yet but it’s been constant and began 4 months ago. Hurts all over even getting out of bed .

[@Ethericrose]

I've had the disease since a small child, along with EDS- Ehlers Danlos Syndrome. Don't give up on trying to get a diagnosis. Change doctors if need be. No one took my pain seriously until I was 43 years. I'm now 54. All those years, I could have been supported. Not even my parents believed me. They would state..."Stop moaning you're a hypochondriac, and it's growing pains that all.

[@LarissaCadorin]

Do you feel a lot of pain after exercise because of EDS? Does fibromyalgia get worse? greetings

[@lumberlikwidator8863]

@@LarissaCadorin Absolutely I do. I’ve given up golfing, tennis, swimming, bowling, you name it. I just try to do some walking when I’m well enough and weather permits.

[@ishraqyasin]

This made me cry! Even though the pain is there, it really makes such a huge difference to actually know that there is a name for what is wrong with you. To know that there are other people like you out there! After years in pain, I was diagnosed earlier this year. To all of you living with this condition, I feel your pain, literally❤

[@Humanhell666]

Sometimes I Dont leave the house for days or for a week. Longest time is 17 days.

[@girlwiththebraidsinherhair2516]

I adopted a couple small dogs from the rescue center to encourage me to go out. Sometimes I manage to take them for a walk 5 consecutive days, other days I just manage to take them just very short walks around the block. But then on other days I can't manage to take them out at all. The longest I have ever had not taking them out is 6 days. But I did my research before I got them to make sure I chose a breed that did not need much exercise was happy to spend time inside and was not noisy or yappy. They are also great company and are happy to lay with me and snuggle when I am feeling low. Plus because I need to feed them, clean up after them and generally take care of them it makes me get out of bed everyday and keep moving even if I don't actually take them out for exercise. I understand that not everyone is in a position to own a dog ( I am very fortunate to live in a ground floor apartment with a garden) but it has deffinetly helped me. I used to have a cat before I had the dogs and even that helped as having a little fury thing to cuddle up to and talk to was very therapeutic.

[@justpassingthru3186]

I thought I was the only one. 😟♥🙏🕊

[@deloresm7494]

I wish I could stay home, I have to work as waitress, it's killing me, but I have no money, and it's cold outside cannot live in car in Canada.

[@NicolaEnergy]

Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx

[@LoCals2024]

Xoxox

[@keepingitreal.5539]

I have fibromyalgia 15 years and I find the more movement , the worse my pain is without question.

[@RedSpiralHandTV]

Yeah, that was a hard lesson for me when I came down with it 22 years ago. I was super active physically. The idea that doing something physical would put me in bed for several days was pretty tough to cope with. This is inflammation all over your body, including the nerves and brain which explains the brain fog. anything you can do to reduce inflammation (diet, fasting, herbs, low carbs) can help.

[@talker51292]

ME TOO!!!

[@RedSpiralHandTV]

@David And you are an expert? I have an academic background in public health, epidemiology and medical research. I think that it may serve you better to keep an open mind because the truth is that there is more we do not know than what we do know about the mechanics of these kinds of illnesses.

[@corrinnegarfield2460]

Perhaps thats due to under developed muscles and atrophy. When your muscles hurt, they compensate, using wrong muscle for the wrong action. Hirt muscle gets used less and less and another gets burdened. To awaken them and reduce pain, u have to tolerate an increase of pain temporarily to retrain muscle groups to do the work they are intended to do. Its greuling but worth t he mental energy you put in and if maitained, it could be years if u would have to do it again.

[@GeeklingNo1]

I have the same problem most of the time. Don’t take this as me trying to fix you, you might’ve tried it already, but have you tried yoga? I don’t do the meditation part, just the stretches and I try to limit how much I do it but I did find that the stretching was a lot better for my pain. Dunno If it would help you or not :/ Just got someone asking me if I’d tried cutting foods out of my diet like they knew what i was going through so plz don’t think I’m trying to ‘fix you’. Just wanna offer some help :)

[@daisbumflea9070]

It's that awful point you find yourself too that's like: "everything in my body is screaming at me to lay down" but deep down you know you're still going to wake up feeling the same way. Only you'll lay staring at the ceiling, becoming increasingly frustrated at the fact you WANT and NEED to get things done, but can't. Constant limbo

[@Cougarsamurai]

Best description Ive heard is that it's like having a migraine all over your body.

[@siobhanvictorian3669]

Cougarsamurai I was diagnosed with fibro and now with CRPS. What you wrote about it being a migraine all over, is exactly what I have said... Only with being on fire.

[@teresaronga3530]

Worst sometimes!

[@njay3029]

yes or a pain similar to tooth ache

[@marymcsherry1965]

@@siobhanvictorian3669 It's chronic regional pain syndrome

[@lindasaultz5098]

My body feels like it's turning inside out the pain is so bad

[@baggerchicforever2687]

I've become a hermit. .I've gotten to the point where I don't even want to get my meds from the pharmacy because just getting dressed and getting in a car to get there is a challenge. .she's talking about movement and I understand the importance of moving as much as you can but for some of us it's almost impossible. .when I over do it I'm down for days. .I'd rather do as little as possible and not feel as bad pain wise even if that means sitting or laying on my couch or bed. ..I watch a lot of fybromyalgia videos from all different kinds of people and I do believe that when your young you can accomplish more as far as movement and exercise but when you're my age, I'm 61 it's way more harder. .I remember when I first started noticing that my body was not functioning like it should and I would have aches and pains and fatigue along with little tell tell signs. ..it wasn't until after my last child at 31 and I was never the same. .yrs went by and I ignored and pushed through things that I guess I shouldn't have but I had never heard of fybromyalgia at that time It wasn't till I hit 50 that my body just said that's it. .your done. ..a couple yrs later I went to the dr and was diagnosed with fybromyalgia put on vicadin and my world changed. .I could once again be myself at least half way. .I could take walks ,go shopping, vacation, work, cook and yes enjoy sex and most of all breath normally until the war on drugs. .they took away my pain meds and tried to feed me depression meds and alot of other poison pills that I refuse to take. ..I am on gabapentin but want to get off them as well. .so now I can't hardly walk through my house without feeling like I need an oxygen machine and once again I'm on the couch. .don't get me wrong. .when I get mad at this horrible disease I get up and wash clothes. .wash dishes mop the floor and do little odds and ends knowing I'll be down again for 3 or 4 days But like we all do. .we get up and try again knowing what the outcome will be. .unless you have a truly empath with lots of understanding and empathy for a partner or family members then they do not understand. .there's no way they can unless they are walking in your shoes. ..this rant was not to say that the younger women and men that have fybromyalgia aren't in pain and suffering. .I'm only saying do whatever you can right now because I do believe it gets worse the older you get. ..at least thats the way it was for me. .

[@realtinobrien2140]

My dad is 50, he's had it since he was 20 and he says it's gotton slightly better for him. He goes swimming often. There was a time where he was wheelchair/bed bound, depressed, put on morphine.. but I think it's proof that it can improve for some people. I'm 18 and I may have fibro but I'm not diagnosed.. whatever I have I hope it gets better as I find ways to manage it and cope

[@gigiweakley5198]

I've also become a hermit, I'm just overwhelmed by the most simple things

[@trishaferrand1395]

Hello Baggerchic, I am also in my sixties, and I have have the same kind of fibro experience, becoming a hermit, and neighbors, acquaintances and friends thinking I am being difficult or antisocial. And saying to myself exactly the same thing: "I feel like I've been run over by a mac truck. " Mac truck, Mac truck, Mac truck. This has been my best description for all over body pain, since, like, forever. Except that it comes and goes, not constant, not predictable. Like getting hit by a mac truck, there is this ridiculous feeling of being "surprised." Some days I can feel good enogh to forget that I have limitations, and so overdo it and go down again for days. Pain meds are not a fix and not a "high." Pain meds make pain more bearable. If your doctor took away your best pain meds I suggest you keep shopping for another doctor who can understand that you have an illness not an addiction. If anyone will look past the headlines and hype about the opioid "crisis" they will learn that the crisis is about ILLEGAL acquisition of meds, or not taking doses as specified by the doctor. I "fired" several doctors until I did my research and found one with extensive experience with HIV patients. I thought he would have more compassion, experience and knowledge, and I was right. Although I have tried and still use various "complementary" pain management techniques, he understands that Vicodin is the best RX available for my condition as of right now. I wish for you to have better success in the future in getting the help you need and deserve.

[@florence1395]

Trisha Ferrand well said, I’m a long-standing sufferer. At least we aren’t alone. Gentle hugs 🤗 x

[@lucysweeney8347]

@@realtinobrien2140 Thank you for posting Realtin.It is one day at a time for you and your Dad and indeed all of us with fibromyalgia.I know of a woman who has fibro.and recently her teenage daughter has developed it also.It must be so hard on parents to experience this happening in their own child.I find it helpful to try to remember what my sister,who is a specialist says..'The body wants to heal itself'..the body is always trying hard to heal itself.Finally..the kindest people I have met have suffered in the past.I would never have developed empathy without having gone through this.Being able to support one another is a priceless gift in its own right.Gra mor.

[@ShadowMan66]

I've suffered CFS/ME for 26 years, it wrecked a professional sporting career at age 26 and also any advancement in my chosen working profession. At times I have almost given up but for raising a daughter by myself as a solo father so I know how people here feel as fibromyalgia has much in common with CFS/ME. Chronic pain has been a major part of my problems along with bone crushing fatigue. I have about 2 good hours in me per day. Shattered is not enough of a word. Much love and care from NSW Australia.

[@hisservants8003]

May the Lord comfort and bless you! I can't imagine what you must deal with. There are a lot of us out there in pain and barely able to function. Something has caused these diseases to multiply. God Bless and stay strong.

[@augustsnowfall5189]

🤗 back to you...also from NSW Australia🐨

[@DMac-uv1bl]

I feel the exact same hopefully you found some sort of recovery. Has anything helped you? my doctor wants to put me on Cymbalta and I’m hesitant but I’m probably going to start it soon

[@ShadowMan66]

@@DMac-uv1bl Cymbalta didn't help me nor did heaps of other antidepressants. I've tried everything, guess for now I'll have to live with it. Thanks for your comment :)

[@ShadowMan66]

@@hisservants8003 Thanks God Bless You!

[@gigiweakley5198]

I was diagnosed with fibromyalgia 18 years ago (my last pregnancy ) after a very difficult and sad pregnancy with my twins, I had a epidural with my twins first one I had with 4 births...my spinal cord was punctured which ended up leaving me paralyzed from my neck down for 3 days. I never quite felt the same afterwards , I started having a lot of stomach issues then found out when I went back for my 6 week check up that I had ( cervical )cancerous cells, which came from hpv( human papillomavirus ) to have a cone biopsy . I guess my son was about 8 months old when I started having severe pain in my hands and wrists so bad it would wake me up from sleep, it felt like I had tight hair bands wrapped around my wrist cutting off circulation and my hands and wrists would swell up, turn purple and I had severe throbbing pain. I was told it was carpal tunnel syndrome, then the pain started going all through my body. I thought I was losing my mind, finally I was diagnosed with fibromyalgia, it has steadily gotten worse and the older I get the more severe it gets. I have IBS and digestive issues, copd, asthma, the fibromyalgia has made me hypersensitive to touch sound smells , I have fibro fog, memory loss, it's affected my vision which is already bad since childhood, my hearing, my speech. I used to love to write and had beautiful handwriting now I'm lucky if I can even scribble my name let alone remember it and just like this text I've had to go over it time after time because I can't see and can't even speak complete sentences without sounding like I don't understand my own language. I can't and don't even want to have conversations with people anymore because it's hard and it tires me so easily. I have no attention span, fibromyalgia has robbed me of my life. I get so frustrated because people look at you like you're lying and say you don't look sick, it makes me so damn angry . I can't even walk straight most days because I'm so weak and in so much pain, I've also become extremely clusmy and have no core balance. I have CFS on top of it all, mornings are the worst part of the day for me it takes every ounce of everything I have to get out of bed because I'm in so much pain I can barely walk and I wake up so confused, don't even know where I am and what's going on like I've woken up from a terrifying nightmare. I just pray for a cure before I get any worse, older or die . So to anyone with fibromyalgia. I completely understand and you're not alone. We should all unite together for support and strength because only we understand ......SENDING OUT LOVE AND BLESSINGS TO ALL THE FIBRO WARRIORS 😍😘🤩

[@dannielleforsyth1369]

I'm so fed up of people that don't believe that someone has this It can't be seen. If we could see this Physically there would be so much more understanding. My mum has this and she manages her pain. I'm very proud of her because she does so well considering she's always in pain.

[@djdarq6311]

Oh but it is not invisible I assure you. That's a common lie. There's plenty of visual proof.

[@Teapotdaisy]

I've recently been diagnosed with fibromyalgia...the pain is very real! It's intense and constant. There are many many conditions that cannot be seen which people expect are real........FIBROMYALGIA IS REAL, WE DO NOT IMAGINE IT PEOPLE....

[@bazghabiya8957]

U should use wheatgrass juice it does miracle work for fibro patients

[@ltee2261]

And we don't moan about it like others do because we are so used to it I didn't know everyone else didn't feel pain everyday. never thought about it to me it was normal 😢

[@justpassingthru3186]

Exercise? When IF I can drag myself up to complete one task in a day, I'm so worn out, and riddled with pain, I'm done, and can't move anymore. Like a big pile of bricks on top of me. When I do get a little energy to do something, I have to do things that need to be done. I don't have people to do anything for me.

[@brokendreamchaser399]

Hey how are you still holding on?

[@brokendreamchaser399]

I also dont have people to look out for me the constant fatique and pain kills me everyday dont even know if i have fybro . But pain in my body long time and chronic fatigue

[@loubee8873]

I’ve suffered from fibromyalgia for 11 years now. I was only 20 when the symptoms started and now at 31 I feel like I’m 91. Currently sat in agony as my knees have seized up for no apparent reason 😭.

[@tanikkapadgatte2685]

💜🌷💜

[@stutimishra1178]

I have had fibromyalgia when I was 11 and life has been so difficult . I can't even put it into words .

[@hakaquusanguusha5360]

I don't know if it's fibromyolgia or myofacial pain but i have this kind of pain since i was around that age now the pain is mostly left side i hope we recover for the power of allah (god)

[@lymarie1974]

Shuti... I am with you love... began this painful journey at age 10 and now I’m 46. All we can do is take it day by day. I’m glad your still here to fight. Love from Texas ❤️

[@ezion593k]

@@lymarie1974 36 suffering from chronic pain? wow what do you do with ur life? i' m 21 and i'm student but a lot of times i cant focus on school stuff beacuse of the pain, its so difficult

[@lymarie1974]

@@ezion593k just do one thing at a time. Try to focus on one small goal. I know it’s hard.

[@labeekitchen1980]

@@ezion593k yeah same i'm student everyday i face these pain in my upper part neck shoulders......what should i do to get rid of!

[@nf8498]

I have fibromyalgia. I'm 22, and barely have a social life anymore. I had to leave school and can't find work that wont make the pain worse or unmanageable. I hate this

[@hisservants8003]

I'm so sorry so many of you young people have this!

[@blairthompsonrdnld2616]

no ok I developed my symptoms at age 20 but didn’t get diagnosed until 2017. I’m 26 now. I also don’t have much of a life. It’s so hard 😞

[@hisservants8003]

Blair Thompson Yes, i completely understand. it took many, many years for me to be diagnosed. I’m much older than you, but I know people your age with Fibro. Hang in there! And stay away from any pain killers. They only make it worse. Try working on your diet and keep moving. Essential oils are very helpful for me. I use frankincense and myrrh for muscle pain and doeterra mitomax and their deep blue rub. Good luck and God Bless. ❤️🙏

[@blairthompsonrdnld2616]

Hisservant S thank you!! I use medical marijuana and it helps me. I also use cupping as well. It helps with my tight muscles. I’m so glad essential oils helps you 💖. I think essential oils can be so helpful. I don’t take any pain killers, they don’t really help the problem. Sending you lots of positive vibes. We aren’t alone 💖

[@kallangwaveproduction4514]

Same here, I interrupted my studies in University because of this. And I can’t even plan for the future because working or studying long-term takes so much resolve, fatigue and pain. I don’t know what the future holds...

[@prachi161985]

Yeah! It's really hard to deal with pain and other problems that come along with it like fatigue, mood swings, depression.the much more difficult part is how to explain this to others around us. People see this as an excuse and never understand and sometimes they even say that you have gone mad and pain is an excuse. God bless us all those who suffer this condition

[@mandapanda5539]

When jess started explaining how some people doesn't believe it's real brought me back to all those doctors that said the same thing. Long story short hearing something relatable makes me cry out of happiness knowing I'm not alone.

[@patriciaroysdon9540]

I have had this crap since the 1980's. It has gotten worse over time. The sense of the quality of pain changes too. Rug burn, sun burn under the skin, electrical prickles, deep aches, rubbed with steel wool, sudden stabs of pain..these are some of the sensations I feel. The mental/emotional mix is another mess entirely. Hate it. It has limited my life possibilities.

[@tanikkapadgatte2685]

The same 💜😔💜

[@DdotRay86]

My girlfriend has this and it's honestly the most cruel thing you can imagine. At least cancer kills you, this vicious disease let's you just live out a miserable life in almost constant pain. Bless her she stays positive and together we find the joy we can in life but this really does prove there is no God.

[@traciebecker6669]

It doesn't prove there is no God. I would read up on the topic of God and suffering a great deal more. If anything it proves that there is an enemy, a Satan who will use anything and everything to attack us, including our bodies, our health. Satan exists to kill and destroy. He is in his last time of having any control and is very angry over it. If he can steal your soul from having trust in the living Creator he will. Don't let him. God will be with you through your suffering if you let Him. I have severe chronic pain and fatigue. I know what your girlfriend is suffering. I have a genetic crippling neuromuscular disease called CMT in addition to Fibromyalgia ♡ I pray you find peace and healing.

[@joannepereira5080]

Tracie Becker 😢I Thank You I need it to read today your comment really touched my heart & my soul God bless Xx Love & Light 💜✨✨

[@traciebecker6669]

@@joannepereira5080 I'm so grateful to hear this, so thankful I gave you something good that I can still help someone, even though I am stuck in my home because of a crippled body. You gave me a sweet gift of words that encourage me also. If I can help someone else it gives me renewed purpose! I have 4 grown kids and many grandkids and I want to inspire them to keep persevering and not to lose hope in an often dark world. Their Dad died on Father's day 2018. We had divorced in 1992. Their was some years estrangement that took many years to be healed so they felt they lost him again and way too soon. I couldn't be with my kids for that except through words and I don't know if it was enough. I have a son who has really struggled! But you gave me hope to keep encouraging people. If I can just help 1 person have hope for 1 day it is all worth it. God is still working miracles through everyone of us so we must keep persevering. Praise God!! Much love and many blessings to you dear and Thank you ♡

[@justpassingthru3186]

@@traciebecker6669... Praying for you and your family. ♥🙏🕊

[@traciebecker6669]

@@justpassingthru3186 Thank you, that's always a good thing to have prayer. It gives hope.

[@annamaibaum2295]

I was just diagnosed with fibro and it's incredibly releaving and scary at the same time. I'm 21 and I've barely lived. Now I have no idea how I'm supposed to have a normal job one day. I'm currently in rehab trying to lean how to live with the pain. If anyone is in a similiar situation feel free to reach out and we can be there for each other

[@CatherineDumdum-h4g]

I'm 19 I just got diagnosed. I have played tennis my whole life and am training to be a chemist where we have labs for hours on end standing. It's been terrible. Idk how to deal with this tbh I feel dejected especially because fibro has struck me when I'm so young. I'm sorry you feel my pain. I hope you're doing goof

[@TTVZicaZachh]

My mom literally died to this illness, She had no will to want to live due to this illness. Thank you for posting this! because my mom never moved due to this!

[@Senura101]

Poor souls 😞 How horrible and painful it must be . Hope they become healthy and happy again . May the triple gem bless you all ❤️

[@Sylkenwolf]

Thanks, love. Blessed be

[@mariavictoriadiazcharte6611]

Gracias, thanks😘

[@B_Mama_Reads]

Senura Kaduwela thank you for your warm thoughts and blessings. But what some people don’t understand is that fibromyalgia can’t be cured. You will never get better from fibromyalgia. You can only manage pain and try to live as happy of a life as possible :-)

[@maddyescobar222]

Imagine having bipolar 1 disorder and fibromyalgia, lol my whole family thinks im crazy , and not a single person believes me, and yes i am tired, i am cranky all the time, im depressed.

[@chelseakatie02]

You aren't crazy 💓 they dont understand you and that's ok.....

[@chelseaward9841]

I have bi polar and fibro as well!! It’s hell.

[@sweetspacesessions9813]

I no longer have fibro or bipolar, but for a few months, my fibro got so bad that my depression turned into bipolar. I can certainly empathise. I found that loving all facets of myself during the highs and lows helped. I hope you have some people who can love and respect you as you are. If not, I am sure there is a community out there who can.

[@Puzzlingitout]

It's easy when you have a mental health issue for them to discount anything else you say. I was misdiagnoised as having bipolar (turns out I have aspergers) and pretty much anything I brought up it was 'lets increase your meds' and God forbid you have emotions and then they assume its signially another breakdown.

[@diamonddaisy223]

I hope you are hanging in there. I'm also bipolar and have fibromyalgia. Sending you virtual hugs

[@michaelsmith2733]

Well I am a 70 yr. old male and I was diagnosed with it a couple of yrs. ago. I also have arthritis, heart disease and being tested for cancer. This video was very helpful, because I feel a little more sane now knowing this stuff is real and it REALLY HURTS. I feel like someone is beating me with a baseball bat. I can't sleep anymore because I Can't get settled down, there is no comfortable position to get in. Thanks for the video, I don't feel so alone now.

[@suzannearsenault3342]

Oh no Mickael, you're not alone.. Sending you a gental hug.

[@labyrinthgirl17]

I know when I started dealing with fibromyalgia. I was 13 and had just started to experience the pain of puberty. Then everything began to hurt and ache, things began to burn and feel like every muscle was tearing itself apart. I went from being somewhat active and doing things, like walking or biking, to laying down on the floor and hoping for some relief from the constant pain. I'm 31 and, even with medication and physical therapy, I'm still in near constant agony. I hope some day there is a cure for all of us suffering from this, because this is a personal hell.

[@yusufali7461]

Go bless you good health ameen

[@seemorebeer2848]

W

[@seemorebeer2848]

Sorry to pee on everyone’s fireworks here(IM A MAN BTW)but I’ve had Fibromyalgia for nine years now. It came on following a kidney transplant then gas gangrene/sepsis/stroke/ type 2 myocardial infarction and several weeks on ITU/HDU then a ward. Men get this too unfortunately !

[@markrenton5791]

I just wonder. So is more pain when you walk then sites still? I have to stand up because then is less pain and walk around ,but not to long then its foot pain.

[@labyrinthgirl17]

I would say the most pain I feel is when I have to stand still, like trying to stand and cook at the stovetop, or waiting in line for meds, stuff like that. Basically, everything from my lower back down to my ankles feels like it is seizing up and there have been a few times where I ended up sitting on the floor because I literally couldn't stand anymore.

[@annria_95]

I was diagnosed with ' fibro - demon ' when I was 17 and trust me, my life kind of plummeted deep down to hell. A body so weak and painfully torturing that I fell into deep depression, anxiety and had to quit my degree. 7 years have passed and my parents still don't believe this exists and want me to do more, more and more. I get so exhausted sometimes when I lie down to sleep, I wake up after 10 - 12 hours of deathly sleep. This condition is a sort of disability - a hidden slow poison working your body down like crazy and it is INVISIBLE !!! I want to overcome this crap.

[@NickanM]

My heart goes out to every fibro sufferer. I have severe arthritis and the pain is hellish on and off, but at least I don't have the add on "bonuses" that fibromyalgia gives its sufferers. ☹

[@sora-jp2om]

i can't express how comforting this video is. my pain began when i was 11 and worsened over the years and i went from being on the track and field team, volleyball team, student council, chess club and debate club to having to drop all of my sports teams and barely being able to go into school as most days my pain wouldn't allow me to even get out of bed. this then led me into a very dark mental place and feeling isolated and hopeless and as my mental health declined the more the doctors i saw questioned my pain despite it pre dating my mental health struggles. it took me 5 years of going to countless doctor before i got my diagnosis on my first visit to a specialist and i remember my mother and i sitting together in complete shock at finally having an answer. i remember getting home and crying in relief of finally having a diagnosis while then dealing with the knowledge that i didn't really get any answers and i now had to slowly work on it. thankfully in the nearly two years since my diagnosis i've met others with fibro and have slowly become more active and feel much better mentally and have more of a handle on my pain. it is incredibly comforting to hear other people's stories and to see i am not alone so thank you, and to anyone reading this who feels alone, there are others going through the same thing who would be glad to help if you reached out, you can find a support system ♡ believe me.

[@thomaselizabeth662]

Fibromyalgia is a serious and recurring disease which can't be cured through drugs or injections by the Nigeria doctors but the best way to deal with fibromyalgia is by taking natural herbs medicine for it and is only few Nigeria doctors that know about this herbal medicine from Dr Ojiezele.. I have read about Dr Ojiezele the great herbalist doctor from Nigeria who can cure disease with his powerful herbal medicine. for the people suffering from the following diseases, Herpes, Cancer,weLupus, Arthritis, Also, HSV1 and HSV2, Hepatitis, Diabetes, Hps,Infections ETC should contact him for his herbal medicine because i am a living testimony and i was cured of fibromyalgia . , i sent him what he requested and he sent me his medicine which i took for 2 weeks and today when i went for test i was tested fibromyalgia negative. you can reach him through his email : ( [e-mail]) or whatsapp number : [phone] will help you out faster and reliable..

[@thomaselizabeth662]

Contact Dr Ojiezele herbal home

[@clairebishop9835]

It took years to get my diagnosis thanks to a GP who believed me and sent me for referral. A Dr in the same practice told me outright that he didn’t believe Fibro was a real condition … sending love to you all.

[@jaxwells1]

I've just lost my beloved job of 15 years because of my fibro. Retired through ill health at 55 because I need to walk with a stick, can't carry stuff, can't cope with stairs etc etc Now I'm having to apply for benefits to live on and pay my rent. Every day my pain takes me to a dark place that makes me feel life isn't worth living anymore. No one really cares because they don't see whats wrong with me. I'm all alone, and fibro has stolen my life.

[@jaxwells1]

@Anne Hedonia my heart goes out to you. I wish YT had private messages too so we could communicate. Your email made me both happy and sad, happy to know someone cares but sad for all you have been through. Gentlest hugs and much love. x

[@jaxwells1]

@Anne Hedonia thank you, and much love to you too my friend. x

[@beaullahlothbrok374]

Jehovah God cares for you ....Very much JW.ORG

[@morrisdonald8795]

..I am so happy, Now! I'm finally free from the damn shit! Penis enlargement. I can't just believe I'm totally cured at last! If you need my assistance kindly email [e-mail]

[@leahdwyer549]

I’m 16, I’ve been diagnosed with fibromyalgia a few months ago. I had to stop my passion of trapeze due to fatigue, lack of strength but mainly tender points. When I told my doctor about all of my symptoms, she laughed and sent me home telling me I’m a hypochondriac. I lived on overdoses of painkillers for months. I find school difficult due to fibro fog, I have lost friends since I don’t have enough energy to talk. No one understands the extent of pain and everything else I go through. Even my best friend kept telling me I’m not in pain and I am looking for attention. I have overdone myself almost every day over the Christmas and I can even move anymore. I am sick and tired of people telling me that I’m only young and to get over myself but I won’t let this condition destroy my life I have so much to live and experience

[@JodBronson]

*I hope some of you will see this message. I started to have Chronic Pains since I was 9 years old. I am 17 now, finally battling with Chronic Pains, Fatigue, Headaches, EMF Sensitivities, Plantar Fasciitis, Unknown Illness, ++++ Etc... Recently, I discovered that there is a * clear link * between Fibromyalgia + EMF Sensitivities + Plantar Fasciitis, due to lack of Iodine. Because of " Iodine Deficiency ", somehow our body behave this way, due to lack of it. If you see this message, please check into " Iodine Deficiency ", because it saved my life. Now most of my symptoms I described above is gone!*

[@jilligain3409]

Google or do a YT search on the FM/a blood test. It’s a blood test used to diagnose fibro. There’s a clinic out in California trying to get a trial going to test a possible treatment. Maybe some good news coming I hope!

[@travelwell6049]

I like the meme sort of things I see on PInterest like top 10 things not to say to someone with Fibromyalgia. Or other more sarcastic ones that you can print off and give people, so they know it’s not just you saying something.

[@jenniferrobinson2000]

It's the worse pain ever like being run over mac truck,then it backing up running over you again!!!

[@baggerchicforever2687]

jenniferrobinson2000 That's me. .and then trying to move around like that you feel like your body weighs 2 tons. .seriously. .it's like its all you can do to drag one leg in front of the other and hope you make it to wherever you're going That's my experience. .so all this exercise that they keep telling us to do. ..well maybe for some, but I believe it depends on the severity of your fybromyalgia. ..everybody is different with different pain and pain levels. .some people can still hold down a job. ..I couldn't work 5 minutes and I would drop right there. .. I never really had the severe burning. .I do have it on the back of my head and that's bad because you can't even lay on a pillow but that comes and goes. .my feet burn more than anything And hands ache alot. .just holding a cell phone for to long and I suffer for days But I do understand how you feel. .you're not alone

[@hisservants8003]

Burning feet,fatigue, stabbing pain, itching, daily migraines etc. It never ends. Moving is good but true light exercise leaves me unable to move. I tried PT for the back pain and it caused more pain than it helped. They gave up on me and were genuinely sorry it didn't work.

[@TheLilmissmusiclover]

I’m so glad I was recommended this video. I’m 21 now, and have had fibro since 18. And I used to be a dancer and it’s so hard not being able to do what I loved most as much as before and having trouble even walking many days. I felt so ashamed of it and hid it from everyone, but recently came forward through KZbin when I was feeling really emotional about it. I shared the video with friends/family so they understand and so that hopefully if anyone else has a chronic pain disorder they won’t feel alone. 💗

[@mshipman33ify]

My mom had fibromyalgia (now passed away) I have fibromyalgia (diagnosed 33 years) ago and now my 22 year old son has fibromyalgia. Fibromyalgia has been around since the 1800's~you would Think the medical community would have SOME IDEAS by now!

[@M4R3B34R]

Thank you for this

[@moonfairy74]

It is so relieving to see that I am not the only one going through this pain. I think the most effective thing that helps me get through my days are having a sense of humor. I am lucky to have kids that get me when I am down and out and also love to join me in the humor of the situation because I know if I take life too serious, I would not survive this illness. I hope that someday I will be able to find a mate that will love me and accept me for who I am.

[@Alipotamus]

I had a fabulous sense of humor. I was witty and made others laugh. Now, 50 years of INCREASING pain has made every waking moment hell. Nothing is funny.

[@belleve5709]

It steals life and joy from all who suffer and those young kids who will start to suffer soon. I live in US and they have really started listening but, theres no help out there,but pain meds. Which they don't give. There is someone for everyone, my sons pray daily for mates. Vitamins d and b are very important. And anyway you can get rest. Even when sleep is not to be found

[@fortyfiveseventy]

I was diagnosed with Fibromyalgia in Middle School. Chronic pain, nausea and dizziness, almost 24/7. It's unbearable and the worst part is my periods tend to "blow out" all at once and its extremely humiliating. It's like I crapped my pants. I get severe anxiety whenever I try to leave the house.

[@kid-ava]

this video makes me feel so seen. especially when she says like "you could be completely, absolutely fine one minute and then all of a sudden you can't walk" so relatable 💔

[@alexandriamitchell2851]

Fellow fibromyalgia patient here. 10 years and still going

[@FierceGinger]

I was diagnosed when I was 11. I fell on my back in a garage on a part where the concrete was broken and half was raised up about 3 inches and that's when it triggered mine. Unfortunately it's also hereditary, my grandmother has it, her son (my uncle) got it, skipped my mom, skipped my older sister and got me. I'm now 25 and still living with this invisible illness. I move around like an old woman and I would get up and have to walk around groaning I'd jokingly say I'm too old for this until one day it dawned on me, I'm too young for this. To make matters worse I look young to everyone, I look 16 or 18 at the most to everyone, so I appear 16, I'm legally 25, yet I have the body of a 90 year old. It's very confusing to be 3 different ages. I hate not being taken seriously and this makes matters worse. I can't stand when people say it's in your head, if they lived in any of our bodies for even one hour they'd want to kill themselves. We're not weak because of our pain, but we're actually stronger for still trying to live and be active with the pain plaguing our bodies on a daily basis. I told my mom I had a low pain intolerance but she reminded me that I actually have a high pain intolerance because if anyone felt the pain I was in at that moment they'd be on the floor crying and screaming. It really helped me put my pain into perspective. When I was diagnosed I asked my dad if there was a cure or for how long I'd have it, he didn't hold back and told me the truth, that this was something I would have to deal with the rest of my life, but when I was in pain, to take the medications I needed right away instead of letting it build and build until I was in agony. By telling me these things simply I didn't build any fanciful hopes of not being in pain, but instead of how to manage it. I had and still have a good support system. Find you one as well, and know you are strong for enduring this pain, the days of major weakness that you can hardly move an inch without being out of breath and feeling as though someone has taken all the blood from your body and is trying to drag you down through the center of the earth. You're doing well. I've tried to explain what Fibromyalgia is to others and failed in the past, or simply said I have it and they're like, oh I'm sorry but you can tell they have no idea what that is. You wish they could grasp what that means for you. Then one day I figured out how to explain it. The cold. You know how the weather effects us greatly, especially the cold. So when a normal person gets cold, their muscles contract and tighten, (I show them by tightening my fist) but then when they warm up, their muscles loosen and that's it (release fist slowly) (Now tighten your fist again) when someone with Fibro gets cold, their muscles contract, and tighten, now you've warmed up, (keep your fist held tight and try to let it go but resist and strain against from clenching your fist) Our brain says to let go, but the muscles don't receive that message, and confuses the brain, causing pain in our muscles that won't listen and vice versa. This is the best way I can explain it. When I've had people do this with their fists to show how painful it is you can see a lightbulb go off in their heads and they get it, just that small idea of what it means to have a chronic pain disorder that effects every muscle in your body.

[@nurnightz3275]

The real pain is when you are with someone that dont get you at all , and all they think were you fakin it .

[@ladytn3052]

I'm crying right now as I'm viewing this. I've had this ailment for 7 years now, not a day without pain. I still work as a preschool teacher, but it's getting harder and harder for me.

[@thisisjmx]

I don't have fybro, but I've lived with harsh pain my whole life and I'm 36. It will continue to progress in my right leg too, due to my disability. It's a horrible thing to live with. I hope these movent sessions help them. J.

[@amandamusic80]

Bawling after the intro. This is the most accurate anything I have ever seen on this!!! Thank you, thank you for this!!!!! Diagnosed 8 months after 2 years and a nervous break down.

[@cynmo444]

It’s so painful and depressing! One day you can be fine and two days after can’t even get up from bed. I have cardio issues and fibromyalgia. The struggle is REAL! 😪

[@Aurora-Rose01]

Hi I'm just wondering do you get heart palpitations with fibro? I've been trying to get answers from my doctors...not able to really help.

[@lilylily9272]

Thank you so much for sharing your stories. Just received diagnosis, although had this pain for 7 years on-off. Couldn’t dare to see doctor in case he says “ it’s in your head”. But decided to see doctor today so that I have a “ NAME” for this pain so I don’t have to keep explaining why I my muscles hurt. Allah is so merciful. ❤ All praises to God. At least I live in an era, where I have “ NAME” for this pain.

[@Jay-ki1go]

Love this video, I'm 16 and have been living with fibro for as long as I can remember. I wish I could go to school and see people but it takes control of my life. Slowly I'm trying to get better but stress doesn't help at all but stress is a very common thing for me. I just feel unlucky

[@maireaddeane2680]

I was diagnosed at age of 5yrs old im.now 33 and i cant explain how far ive come.. i can work ok only so many hours but ive come a long way.. ive even joined a gym which gives me so much more energy.. never left fibro define who u are.. fibro has been my life but it will never take my life anymore.. love to u all 💪💜

[@ChristineIngham-wi8ry]

Thank you ladies for managing to verbalise what our pain feels like. I couldn't for the life of me explain mine.

[@zubiahina2909]

With lots of love to all.. I am also suffering with the condition, don't remember since when but diagnosed 7 years back... I know its very difficult but possible to live as normal as others.. I am a physician, a mother of 2(one of which is CF)... Taking care of home and outside affairs.. I am sharing this to encourage all of us.. I know it hurts, it hurts alot, people say you are a dr and you take analgesics.. But at times I can't help it as I want to show myself as good and strong as people and family think of me....the thing helps most is to count your blessings.. ❤️

[@tousifk3138]

Ur a physician and u have this condition

[@toriladybird511]

I so fed up with people mocking it. As the new "bad back'" however I did get a diagnosis from a consultant. I was just grateful to find I was not cuckoo.

[@Cariad247]

It's such a debilitating condition, yet the sufferers i hear from and speak too, are some of the most lovely people imaginable. I've had fibro 8 yrs, and my condition is getting worse. But hearing from people like this, gives me hope.

[@GodzHarleyGirlStudio]

YES IT DOES FEEL LIKE THIS!! I have it and hate.it. Thanks for making people more aware! Mine came through major serious stress.

[@magentaangel5531]

I would be bed bound for days if I started moving like that. When the pain hits there is no mind over matter for me, it is truly excruciating and nothing takes it away...

[@ginawebb3697]

32yrs plus of fibromyalgia oh my the pain is excruciating. I've said many times to GPs family work. Imagine being trampled on buy elephants or run over by a 30ton truck back and torch then having yiur body wired upto a lorry battery and keep being zapped by the constant current. Burning water trickling on yiur body thousands of ants crawling up and down . Then seizing up like you have concrete inbyiur body so so drained fatigue you can just struggle a sentence together that's if fibro fog let's you remember a sentence and who yiu are. It's so scary at times. Now I just live with it. At time crying with the pain the pain if even clothes on me and even a bed sheet. I'm freezing I'm burning pounding headache but still just holding down a job ir I'll go insane and I need the money as I rented private home. I live to see my grandson I cry many times as I can't do daily things with him I've learnt now not to punish myself and my young grandson understands my pain he goes there a car space nanny with the wheelchair that will help you nearer the shop or use yiyr stick nanny to passage ball itsvok we can play that way. 💙 i liv for my grandson and son but oh my yo be pain free would be like winning the lottery. Bless you all. I'm bearly 59 i hope one day there's a cure. Xx

[@jidibrai1]

My fibromyalgia came on in my late 50’s. Getting medical help is like I’m talking in English but the doctors don’t understand English. They just order tests after looking at you for months and years. To me it has many symptoms. My opinion is my nerves are screaming from the tiniest movement. Like snapping your fingers hard and the nerves are raw. The pain is creepy, it is severe and I can envision the nerves, vessels, muscle and skin being damaged from the movement like I’m crushing and tearing my internal nerves, muscles, and pretty much everything inside. I am stiff and my ankles, legs, hips, elbows etc., and it’s sporadic. I can’t stand or walk when I wake up with pain, cramping, stiffness and I kind of shuffle for awhile in the mornings. If I sit too long everything kicks in and I can hardly get up and move because I’m so stiff. I just turned 63 and can’t believe I will have this forever. I’m sick of it! It’s embarrassing when I’m in public. I hope I didn’t pass it on to my children.

[@DIDBooks-n-Research]

Our Fibro was caused by the sever trauma to us in childhood. We have DID and seems most that do have Fibro. Where finding that the vagus nerve seems to be the main cause of Fibro. If the vagus nerve is affected it causes so many many issues. IBS, ANXIETY, INSOMNIA, FIBRO, DEGURATIVE DISEASE. ETC. Keep up the fight and hugs to all who suffer from Fibro and illnesses like this.

[@asmartistenthusiast3469]

I can't even begin to imagine how painful this is while giving birth.

[@エストラダカイラ]

Fibromyalgia tends to worsen during your period so i can't imagine either 😭

[@thedarklord1569]

I'm pretty sure most people with this disease don't even bother having children.

[@chelseakatie02]

@@エストラダカイラ I had no idea this explains so much!

[@worthyisthelamb7]

All I did was scream out "my back!" It was so painfull and the nurses just ignored me not giving me anything not even a hot pack and the doctor only just walked in right before my daughter was arriving. Luckily the labour was only 3 and a half hours though and she came out half asleep!

[@ltee2261]

Periods are worse than birth sometimes or just as sore for me. Even other day when my Raynaud's flared up I told my mum if rather give birth than feel that pain coming in from the cold 😢

[@FIBROMOM]

Remember no one knows your body better than you do! 💯Sending l💜ve out to my spoonies 💜💜💜

[@billiwalaghar]

I am so glad you made this video. I am in years watching as I can feel exactly how the ladies are describing it. Till now I knew the pain but not the name. Thank you for letting me know what I'm going through. Thank you. God bless you

[@marieclark4609]

Yes thank you for sharing this I wish more people would understand about fibromyalgia affects your whole life that makes you not be able to sleep people think you're crazy sometimes it's so bad it makes you cry it makes me depressed that makes you want to give up on life altogether at times when the pain is so bad you don't think you can take it another day

[@hisservants8003]

Been there. God Bless!

[@cherylfoster4182]

I’m in the US and would love to find a program like this. I feel so isolated and misunderstood. I’ve been going through this after a MVA in 2010 I suffered from whiplash. About two years later I noticed this “strange” pain during a massage. Fatigue is overwhelming at times.

[@JmenChristpas]

Not being the mom you wanted to be for your children 😭 so true. Had me cry like a baby.

[@gallen2101]

This is the most challenging painful experiences I've ever had. It is Real and Debilitating. Suicide will cross the mind of the most "normal " of us!

[@oo6112]

I'm ready for the suffering to end. 20 years I've fought and I'm soooo tired. We should have rights to choose if we want to live or die. I've tried everything my life has completely fallen apart. I can barely take care of my son. No cure no temporary relief I get no help of any kind. Just in agony everyday of my life. The suffering is unbearable it's complete agony and I'm forced to live like this.

[@gallen2101]

​@oo6112 how are you doing now hun , I hope there is relief, another doctor diagnosed me with PMR. Please look into this I got some help via steroidal therapy ❤

[@kelseyumble4150]

Watching this helped so much! I’m in pain everyday…and it just effects my days so much! Thank you for the video!

[@astrochaos]

Absolutely in tears. I keep watching this for comfort. I wish more people could understand what we go thru. I just feel like I’m dying 24/7 or that it would be better for me to not be here as the life I was working towards is now forever out of reach. I can’t stop grieving. How do you get to that acceptance. I haven’t achieved it yet...

[@wow-dw7gh]

me neither. I don't know how to feel about the rest of my life

[@astrochaos]

I don’t know either... sending big gentle hugs

[@wow-dw7gh]

@@astrochaos gentle hugs back!

[@n.n.5286]

Occasionally I watch videos like this just to remind myself that there are people out there who are going through much worse situation than I am

[@amyhernandez7371]

This helped me get a better understanding of my dads pain! 😩❤️

[@MatthewsLife]

It took almost five years to get my diagnosis

[@neeliepariz261]

This is My Life... The best documentary of fybromialgia...👍🏻

[@greeneyesshow]

I’ve had it 23 yrs. Thank you for this. There’s got to be something we are missing in our bodies!! Prayers for all you beautiful ladies 🙏🏼🙏🏼🙏🏼🙏🏼 Mine was triggered by spinal meningitis!!

[@JodBronson]

*I hope you will see this message. I started to have Chronic Pains since I was 9 years old. I am 17 now, finally battling with Chronic Pains, Fatigue, Headaches, EMF Sensitivities, Plantar Fasciitis, Unknown Illness, ++++ Etc... Recently, I discovered that there is a * clear link * between Fibromyalgia + EMF Sensitivities + Plantar Fasciitis, due to lack of Iodine. Because of " Iodine Deficiency ", somehow our body behave this way, due to lack of it. If you see this message, please check into " Iodine Deficiency ", because it saved my life. Now most of my symptoms I described above is gone!*

[@katiejohnson8534]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@katiejohnson8534]

4 years ago I was diagnosed with FIBROYALGIA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FIBROYALGIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FIBROYALGIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from FIBROYALGIA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone]. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@Cayvii]

i was diagnosed earlier this year at 22 years old. It has changed my life, and not in a good way. I don't think I can ever work a full-time job because of the pain and fatigue that I experience on a daily basis. I'm terrified of having children because what kind of mother would I be if I can't stay awake the entire day and have constant pain? My family doesn't understand my pain, and it is frustrating and heartbreaking to just be considered 'lazy' or 'weak' because I am in pain, but there is no logical reason as to why. I wouldn't wish this on anyone.

[@daisbumflea9070]

This video has been so incredibly relieving that I want to reach out with my own story. As long as I can remember , and also how it started, was with restless leg syndrome. Crying at 3 am when I was like 7... At 15, I found my Ill mother's medicine drawer and took some tramadol and it was so weird like I didn't REALIZE I was IN pain (because I assumed everybody felt the same) until those synthetic opioids stopped my legs from cramping and kicking. It was like God had came down from the Heavens and unfortunately that was the biggest curse I ever suffered as I became an opiate addict. I'm now 29 and it's in my shoulder blades the worst and everywhere else. I've also made the tin Man reference. Yet when I'm having a good day, people assume I'm fine, not realizing it took three hours of sobbing and writhing under a duvet to even move. I'm yet to be treated, but my addiction issues have made things worse. I'm just so relieved I'm not going mad and love these girls for sharing ♥️

[@Jo-kh1yo]

Magnesium citrate helps with leg cramps, which are often a sign of magnesium deficiency.

[@jenniferholden3575]

Ladies thank you, I’ve had this damn condition for over 20 years and the fact that it’s being recognised as a thing is such a relief! Mine started after having a miscarriage, you are given a D&C after and its was assumed that I had had a reaction to the muscle relaxant medication given during the operation. It was like I had been put in a concrete body suit that was too small with barbed wire, fireworks and cold water running down my legs. Then the fatigue comes to play, a very unwelcome visitor, my brain cells decided to depart to the degree that I couldn’t remember my DOB!

[@katiejohnson8534]

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@katiejohnson8534]

4 years ago I was diagnosed with FIBROYALGIA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FIBROYALGIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FIBROYALGIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from FIBROYALGIA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone]. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@makeupbytashaxo]

I’m 21 and only a month or two ago I was diagnosed with Fibromyalgia. My DR is a twat and isn’t offering anything other than the diagnosis, and some days it’s really hard

[@annaalicea5552]

According to the specialist who diagnose me said I have the highest level of fibromyalgia. I even had quemó in the beginning, because the pain was so horrible. I could not stand the touch of my bed on my skin or for no one to touch me. I would scream when those awful pains hit different parts of my body. Many people cannot understand that horrible pain we go thru. Twice I was wheelchair bound but got back up. A week ago I got a pain in my chest I hardly could not breath I went into the ER my pressure was high, in the blood work it showed my potassium had fallen and also I had a blood clog in my chest. Right away they gave me morphing and other meds and had a CT scan done looking for a blood clog in my chest. That came out normal but kept me in the hospital for more checkup they wanted to rule out a heart attack. Thank God it wasn’t a heart attack but it was the fibromyalgia mimicking a heart attack. I live everyday with pain some are so bad I’m bed bound. Thank God for my husband who try’s to look after me. I know God can heal me just I have to patient cuz it’s not in my time but in His. I’ll pray for all who’s battling this sickness.

[@emilyb2237]

Thank you to these ladies for raising awareness and explaining what I feel daily xxx

[@katiejohnson8534]

4 years ago I was diagnosed with FIBROYALGIA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FIBROYALGIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FIBROYALGIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from FIBROYALGIA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone]. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@blank8739]

I was diagnosed with fibromyalgia at seventeen. The flare ups would occur at even the slightest bit of exertion, making me a very inactive individual for years. I’m trying to build up my body and it’s a really tough uphill battle. It’s excruciating sometimes, but I’m gradually starting to build up my strength and power through it. I’m nineteen (now almost twenty) and I am tired of my fibromyalgia controlling my body and my daily life. I won’t let it win.

[@samii65]

I've been dealing with cfs & fm for 20 years, the pain gets sooo bad, and most medications I'm allergic too. Even the weight of clothes can cause pain, or the water pressure in the shower hurts. I try to keep moving. My most saddest thing is I cant babysit my young grandchildren. Id love to babysit or take them out, but i cant. Im missing out. Now im dx with costochondritis too, ouch some more. I wouldn't wish this on anyone

[@lumberlikwidator8863]

I’ve been battling ankylosing spondylitis for nearly forty years, and fibromyalgia for the past ten or so. This year of 2024 has been my worst ever so far as physical pain is concerned. Any doctor who makes light of my pain- you’ve all heard that “it’s in your head, you’re overweight, you don’t exercise enough, everyone with an autoimmune disorder automatically thinks he’s got fibromyalgia”-gets fired immediately and replaced with a human being. I know this video is five years old, but I wish all of you ladies the very best in compassion and care from your medicos and your loved ones. God bless and keep all of you. Rest well tonight, and feel free and light on your feet tomorrow!

[@zhayes6373]

Prayer to all who fight this never give .Keep moving. love yourself even on your low day. You and only you know what you feel its not in our head's. Be a warrior in your own rite... love Z

[@nadineefleck]

I have it since 17 years now and I wish that more people would try to unerstand what we are ging through. It is so lonely when it hits you.

[@listrassitumeang6953]

I can't live my life after diagnosed that I have fybromialgia. I can't take this. I lost my spirit. 😭

[@florence1395]

Listra S Situmeang You must live your life! You have too learn to adapt!..........Please don’t give up, you are a fibromyalgia warrior, I’ve had it for decades now, it’s ruined so much, but made me stronger in other ways...........stay strong my friend, gentle hugs 🤗

[@listrassitumeang6953]

@@florence1395 thank you!

[@maplelassuk]

Fleur , you say it perfectly! It is to be conquered...we are warriors indeed! Learning to adapt means accepting you have it, it's not the worst thing as I would hate to lose my sight and be free of pain! Then you start to adapt and work out what is best for you...and feel proud of every little task you do in a day, even getting up and washing your face is an accomplishment. Little movements help ...the more we lie the stiffer and more sore you feel. I found mild antidepressants a huge help to get out of that hole and then keep your mind happier...then you can do a little more and so it goes on. Don't give up Listra....you're part of an Army!! Xxx

[@listrassitumeang6953]

@@maplelassuk thank you mam. It means so much to me. Keep your health mam 🙂

[@maplelassuk]

Listra S Situmeang 💕💕🤗

[@rakayabarre9528]

I was 15 when my symptoms started. Diagnosed at 22 with EDS and Fibromyalgia. 25 now and struggling with optic nerve deterioration, an ever growing area on my back that is numb to touch but feels like sunburn 24/7 and unable to raise my arms or legs for more than 5 seconds. I wish more people understood these conditions.

[@ozemoyanathaniel1779]

That's so sad to hear you are still suffering from this same situation. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation, He can also help cure yours permanently

[@HerRoyalMelanin]

I have fibromyalgia and it was refreshing to see people I can relate too. I try to avoid talking about my condition because it sounds like an exaggeration. The pain feels like acid is running through my veins and I am getting stabbed repeatedly. It has been extremely difficult to attend my university lectures and I can barely make it out of bed. To do the simplest of tasks such as cooking and cleaning has been extremely hard, people can't understand how it feels to be in pain 24/7. I have felt so alone, depressed and have had low moods, I am also stressing about the lessons that I have missed at university and how to start and finish my assignments. There is nothing to prepare you for the multiple panic attacks, migraines, nausea, dizziness, feeling weak and drained etc.

[@teremertz]

Cleopatra Mackenzie yes, I feel like I am being stabbed as well. The worst is my left hip joint and knee. It feels like someone has a knife and is trying to pry the hip joint apart.

[@HerRoyalMelanin]

@@teremertz How long have you been dealing with fibromyalgia and do you have any advice for coping with the pain?

[@teremertz]

Cleopatra Mackenzie I am 37 now and have suffered from fibromyalgia since about 15. For me pain management is key. I have been on low doses of tramadol for nine years. Tramadol has been the only thing to temporarily alleviate the pain. I never miss a dose. It’s not ideal and I don’t like depending on medications, but I would be bedridden without them. I take vitamins b, d, e, magnesium and more every day as well. I am in pain and extreme fatigue everyday, but I choose to live as much life as I can. I feel worse the older I get. Do you have a good doctor? That is key to taking back control of your health and your life.

[@HerRoyalMelanin]

@@teremertz I just wrote you a long paragraph and deleted it by mistake. I honestly cannot deal with life.

[@HerRoyalMelanin]

​@@teremertz This is the third time that I am writing this to you, my computer has decided to make life harder for me. Firstly, I am in total disbelief, I am sorry that you have suffered for a long period of time. I heard that Fibromyalgia is a long term condition but I didn't want to believe that I would be ill for the rest of my life. I have tried pain management, the physiotherapist saw me once and told me to do exercises every day and gave me a booklet of someone else's experiences with Fibromyalgia to read. I can barely hug someone without feeling like they are crushing my bones, it's the same when people touch my skin, it's like their hands are made of fire. The first medication I was given was Amitriptyline, it didn't help with the pain at all but it did help me to sleep like a baby each night. I was told to stop taking Amitriptyline 2-3 days ago and was given Pregabal instead. I know the medication takes time to work but I am losing the will to live every day, the pain is unbearable and I feel like running into the traffic. Unfortunately, I have not been able to sleep at all after I stopped taking the Amitriptyline. It's torture and a constant joke at our expense. I m meeting with a new rheumatologist today, I hope something can be done

[@indigoblue4791]

I've been suffering from CFS and fibro for nearly 20 years. I was absolutely staggered that 1 in 20 people are in chronic pain. That is incredible and difficult to imagine in real terms. Sending love and light to all those amazing people who get through every day ready to start another. 💗🌈💗🌈💗

[@anthonykevin3683]

#drisibor alternative herbal treatment cured me completely from fibromyalgia pain , Doctor Isibor herbal supplements works