The Mental & Emotional Hell of Living With Chronic Pain

The mental and emotional effects of living day after day, year after year with chronic pain are very real and can a lot of times be just as bad or even worse than the actual physical pain. The inability to be WHO you want to be and do the things you love can really strain a persons identity and sense of self-worth.
Many of our clients have said one of the hardest parts of living in chronic pain is not knowing what is causing the pain, the feeling of randomness, and the resulting fear can lead to a feeling of powerlessness and is a mental emotional constant drain.
We created this video, to help those living with chronic pain, better communicate with their friends, family and loved ones, what it is they are living/going through.
If you are struggling to explain your situation, to your wife/husband, aunt/uncle, mom/father or even your child or grandchild, send them this video.
And then tell them what it is you need, it could be as simple as understanding and not being upset if you "say no" to going to the baseball game, concert or even a trip to the grocery store; it could simply be to please stop asking you "are you ok" and trust that you will tell them if there is anything you need.
To learn more click sterlingstruct...
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Sterling Structural Therapy (SST) is a new paradigm in chronic pain treatment. SST is the ONLY Fascia-based VIRTUAL therapy, that uses the principal of Chirality to correct systemic Myofascia imbalances, restoring movement, function and quality of life!
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Sterling Method is a Fascia based, big picture approach to the treatment of orthopedic & chronic pain conditions. It is THE ONLY Fascia Therapy that is highly effective WITHOUT the need for hands on treatment, allowing us to help people all over North America and all over the globe, from Wisconsin to London England to Australia to Spain to Qatar.
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[@lirasmusson5133]

I:m crying now. I:ve been in pain so long now so I don:t remember how it feels to be a normal person. I.m just so tired.

[@EllenRNPHN]

Ditto here. I feel like I’m on the inside looking out at everyone else living life. I feel dead already.

[@chrisrees7054]

Me too. Lower back pain is screwing up my life.. no one understands

[@luminatez1783]

You are not alone!

[@ayaelbrouji8456]

Me too , i had a car accident 2 years ago , since that day , i had pain in my shoulders , lower back , hips and ankles , i also quit running, painting, i don t go out with my friends anymore because of this , i spend my days lying in bed instead ... my life is nothing like i thought it would be and i m so sick of it

[@TheEpoxyExpert]

Sending Love

[@patricke8627]

Sometimes it’s not even the pain but the reality that the pain will never ever get better or leave you once and for all, and the scary morbid thought of always being in a state of disability. Then when you look outward to other peoples happy healthy lives, it can incise you to your core. “Why Me” is the mental chorus that plays in your head. “Why Me...” That is what chronic pain is.

[@shamanculture780]

Facts

[@shamanculture780]

Why turned into kill this year.

[@ohmbasa]

@@shamanculture780 I know what it feels like to have hatred for everything build up inside. It turns into a monster. Sometimes I can accept things for what they are and other times I can't. I try to think of it in terms of embracing the absurd.

[@shamanculture780]

@@ohmbasa I quickly started trying to look back on my happy life leading up to the last two years and tell myself you lived man, you already had your cjance and you did live. You put it all out there and be proud. Going foward i decided life as i love it is dead. ..but in the last three weeks my spinal stenosis and level ten Spasm finally decided to reduce. I discovered two simple but disrespected (by me) forms of pt. ICE. STATIONARY BIKING... ICEEEEE... Clam shell machine at planet fitness for Piriformis syndrome! HIELO. ICE. HIELO. ICE. BABY. I AM NOW FUNCTIONING AT 70%. AND AM NOT HAVING SUICIDAL THOUGHTS. I am still hurt though..

[@ohmbasa]

@@shamanculture780 Man I'm glad to hear that. Last few days for me have been at a 9. Woke up today feeling a little better.

[@bobobrien8968]

It’s even worse when you are not being taken seriously.

[@Life360Summit]

So sorry to hear that

[@cathimummery6873]

200 percent

[@pete5819]

1000%

[@Jeannek4493]

10000000% it just like doubles the mental anguish

[@maddynavarro77]

Agreed. It's hurtful.

[@nikkiattree65]

I have had chronic pain in my face for 35 years, it's got worse in the last 8 years. There is no cure and very little help for my condition. I find it more and more difficult to be positive.

[@Yashtcm]

I feel so useless and hopeless when my pain flares, like today. Chronic pain is like not wanting to die, but also not wanting to live anymore. :(

[@Life360Summit]

😔😔💚

[@kelviannaepperson3677]

I know I feel the same when I'm down

[@88Enigma88.]

Exactly 😔🙄

[@worldview730]

There is a good way out, just search your inner core for the answer (maybe only God knows)

[@RainHavok1111]

My own best friend is giving me shit because I'm in too much pain to talk in the phone. Do u deal with this? It literally hurts to speak.

[@Highlander9740]

Chronic pain ruins your life especially when you know that there is no hope for it to ever get better. The depression and anxiety that comes with it is hell.

[@jacolewatson7199]

i swear , everytime i have a little pain my mind haves 1000 thoughts and cause my anxiety to tear me down and stress

[@MlkOfTheS1ren]

​@@jacolewatson7199how are you?

[@shawnmcanthony5724]

Well what helps me at isiah 33:24 soon no one will say i am sick in jehovah gods new world here on earth like in the garden it was jehovah gods original purpose for mankind. Thats a fact speak with one of Jehovah's witness to find out more.

[@briansinger4313]

30 years for me as well. I feel as if nobody cares or wants to hear about my many problems, doctors included. I just want to crawl into a hole and die. ​@@runeskyttsing9089

[@briansinger4313]

​@@runeskyttsing9089I seriously hope that you are feeling a little better.

[@MegpieB]

Thank you so much for this:) im crying so bad tonight and have been isolating myself because so many don’t understand

[@Life360Summit]

😔

[@Tinyteacher1111]

I understand! I’m doing the same thing, and it’s affected my entire life and relationships. It’s been 17 years. 😢 It’s day by day, but it never goes away. I wish there was a group for support. I’m so isolated, and this video is spot on!!!

[@jackie9867]

I have been isolating for almost 5 years. Noone understands.

[@Tinyteacher1111]

@@jackie9867 I do! Geez! I don’t even want to go to the grocery store, so I have my groceries delivered. I can’t seem to get out the door!

[@lauraann4014]

This explains everything that has been my life for 18 years now, I don’t know how I have not lost my sanity. I live in the U.K.

[@macintoshimann9892]

My back is so wrecked its hard to even breathe. You can’t even imagine the torment of living like this. Please be patient with ppl suffering from pain

[@scottytaco]

I wish science could just fix these sort of issues. I hate being, and seeing other people in chronic pain.

[@Jeannek4493]

❤❤I’m here with you. We’re in the depths of hell

[@speedythecat07]

I’m 53. Had a near fatal truck accident when I was 20 yrs old. I have literally had head to toe moderate to severe pain every second of my life since 1989. Wouldn’t even know where to start telling you what it’s been like. I feel like I can’t relate to anyone on earth. I get up every day and do what I can. Some days it’s not much, some days I overachieve and that creates this scenario where everyone looks at you like faking it when you can’t do those things. I’ve lost a wife, 2 kids, and all of my friends. Nobody wants to deal with me, heck I don’t want to deal with me. I can’t deal with doctors anymore. I’ve been passed around and misjudged by way too many. I walk nearly every day and I’m proud of that, but don’t think every step isn’t painful, because it is. Again, “oh if he can do that he could work” *sigh*... I’m a basket case. Family and friends judge me daily and don’t have a clue. I suffered the first 18 years medicine free by my own ignorant choice. Then however many years of oxy, dilaudid, etc. Pain dr got shut down. The current pain dr I have is anti-pill bigtime. I asked if I could try cannabis, and shockingly he agreed. I’m into the 3rd year. It’s amazing for PTSD, it does not take my pain away, but it gives me a mental disconnect so I can cope. My problem with it is I’m type II diabetic, and the munchies are killing me. I’m reluctant to tell the doctor because if I lose my card, I’ll have nothing to help me cope. I can beat the munchies but it’s extremely difficult and causes me more stress. I starve myself for days/weeks/months and then I revert back to eating everything in sight. There are other drawbacks but nothing too terrible except the price is astronomical. Because I was young and dumb, and didn’t want a handout, by the time I filed for disability I was no longer eligible because it was more than 5 yrs since I had worked at that time. Got a lawyer, he confirmed. Haven’t had a paycheck of any kind since 1996. Have been with wife #2 for 25 years and thankfully she has a good job, but that also made it where we don’t qualify for any help. She pays over $1000 per month for my health insurance. $400+ per month for cannabis. We don’t have much of a life due to all this. Everyone looks down on me, the pain gets worse every year and I’m down to 4 hours of broken sleep per night. It truly is a living hell. Why I’m still here I don’t know. I’ve contemplated suicide since 1989. I don’t even have the confidence to pull it off. I know there’s little kids in cancer hospitals so I just act like I’m ok because it’s easier then talking to people who view me as worthless. I don’t want sympathy, I just want to be left alone. Anything happens to my wife who is also in poor health, I’ll be living under a bridge somewhere. So there’s that to look forward to. I laugh everything off, because otherwise I’d cry and behind closed doors I’ve done my share of that for a grown man. My life is about fear and suffering, and apologizing constantly for what I’m unable to do. Hope this doesn’t upset anyone, I wish everyone the best.

[@eriksxo]

Thank you for sharing this man. Im 20 and recently had my life changed by an eye injury. Reading your story is helping me try to tough it out through my own struggles.

[@jonathankargbo9864]

Just believe God sir it will be well

[@boblesser1305]

I feel your pain bro. I know what hell is as I'm living it too. People can disappoint, but a dog will always be there for you. Get a dog if you can and watch your life change.

[@rodiquart]

Thank you for writing this. I've been having a hard time and needed this, you've helped me so much. I promise to look at my life differently now.

[@ilavalolipop]

I resonate with your story, and I want to say thank you for sharing the honest truth of your life. There are many parts I connect with, feeling judged by others, running out of money to do literally anything because I can't work and the medical costs are so high, the fear of losing my husband who is the only person that understands me and supports me. We really aren't alone... even though it feels like that every single day. My wish is that we can let go of other people judgements. People who live free of this hell should have no power over those of us suffering. I also pray that we can see our own worth and the value of our lives in every small moment of happiness, every beautiful little thing we get to see, every laugh or smile. They prove that we struggle on for a good reason. And we matter. ❤ I wish you the best. Even if you don't get better, I still wish you the best, that the small joys keep finding you from time to time.

[@shawndayvis6169]

It should be a crime for a doctor to accuse anybody seeking HELP for pain of drug-seeking !!!!!! Where do they get off !!!!????

[@Healthyhealings]

This discussion can be had til WE are blue in the face! Others WILL NEVER UNDERSTAND!!! That includes Doctors, mothers, fathers, brothers, sisters, husbands, wifes or strangers for that matter!!! At this point, it’s like clapping with one hand! I’m so over it all

[@chrisrees7054]

Just because pain doesn't show up on an x-ray or because no one can see your pain doesn't mean it isn't real. It's real, very real.

[@arjanbogaers8003]

It is so real, that a physical evidence of it is not possible.

[@elizabethmcleod246]

@@arjanbogaers8003Nerves cannot be imaged.

[@rosefenton3005]

The living for years with chronic pain and sensitivity and being disabled is no joke! It’s worse too when family do not believe you. I still did not know after all the years of much suffering that fibromyalgia can affect so many different areas of the body, Even your eyes, due to the nerves and weak muscles. Your limbs and particularly your neck and shoulders. As I now have bladder problems too, imam now thinking is all this part of these illnesses? Shooting nerve pains are common too with irritation, Unable even to take blood pressure as you cannot tolerate the extreme pain if the b.p. Machine is taken on the upper arm. Incan only bear it on the wrist. Drs wont accept that.

[@CatalinaFOIA]

I couldn't imagine not having an explanation in the form of CT's and MRI's.

[@christopherleubner6633]

The worst part is when you cannot get a clear disgnosis of what is causing your pain and they pretty much say you are crazy..😢

[@selaxlife7621]

Welcome to the club..... seek Jesus Christ....he will hear u out and will listen to u....but I know what ur going thru....believe me.

[@hdv6]

​@@selaxlife7621JC has nothing to do with his pain. S. Tu pid

[@luandsandy]

U are the first person that I’ve found that actually understands what I’m going through. It makes u feel so alone bc people don’t understand what u really go through

[@Life360Summit]

🙏

[@DesertRose63]

... over 3 decades. The days spent sobbing . Loosing ANOTHER day of life. Most people can count how many bad days they've had. We remember the handful of good days.

[@lynnepaquette4124]

the worst thing is losing good close friends because sometimes you can't hide it so they take care of you but it goes on-so they get fed up and leave you. I understand but i just wish i could live like them. I scream sometimes in public the pain gets so bad. I'm this close to an attempt i just cannot cope and never felt so alone in the fact that I cannot cope or hide it.

[@jordynhooker3440]

i’m 15 and have chronic pain, along with other chronic illnesses. i’m always in pain non-stop, thank you for this video.

[@justtryingtobebetter6032]

I literally cannot handle it anymore,I’m in so much pain,I’ve been to so many doctors,everytime they give me medicine,it never improves and I’m so tired

[@Cheerio_Plays]

Don’t let anyone tell you you’re too young to have this issue. I began having my myositis problems at 15/-16 and nobody believed me or understood or could diagnose me until I was 27. I’m 29, and I have my CK levels under control MOSTLY. Still have awful days but I know what my problem is, so I am not as insane or insecure anymore. Keep looking for solutions, keep getting blood tests, keep looking for solutions. It tooks dozens of doctors to help me and even now it’s never gonna be 100% But at 15 you’re going to take a lot bullshit from ignorant people who don’t understand, keep looking for solutions and ignore them God bless, good luck

[@Cheerio_Plays]

@@justtryingtobebetter6032 keep looking marvel. It may not ever get back to normal but you may find some solutions to keep loving forward. God help yoi

[@greatestever8976]

They might have injured you as a baby/child. I believe they gave me a spinal tap at birth and that's why I've had chronic back pain and illnesses all my life until I quit working, quit driving and sold or gave away everything. I'm 44, destitute, & spend most of my days in bed just waiting to die. Keep trying to have fun and enjoy each day as best as you can.

[@shawndayvis6169]

@Greatest Ever ....I drink vodka everyday and I quit 10 yrs ago but the doctors keep accusing me of drug seeking...if I was truly drug seeking , I would go to a drug dealer (much cheaper on the streets anyways) but I wasn't drug seeking, I was seeking help that never came

[@allthefluff]

Chronic pain is like a false alarm that won't turn off!!! I've been living with chronic pain for 23 years!!!! It's horrendous to cope with!!!

[@hdv6]

24/7 ? Neuropathic ?

[@louburnett6782]

Possible triggering for suicidal thoughts, only read if can cope. When I was young and before the pain, I could never imagine wanting life to end, but now, after 25 years of constant pain - I can see a future, not yet or now, but at some point where I just want the pain to stop. I am not saying I would instigate anything, but just giving up and wanting to sleep - yep. Pain is exhausting in so many ways. I send ❤ to all affected.

[@truffiethestreamer]

I was a victim of a crime I'll never get justice for. I'm in pain, but I'm trying to stay hopeful despite the world feeling like it is against me. I'm 26.

[@arjanbogaers8003]

Usually trauma is associated with one or more traumatic events. But 16 years of spinal pain has traumatized me,and continues to do so. It is the confining, agonizing, yet ultimately liberating portal through which we become. It is a death-in-life, the dragon that i, as the hero, face, tame, listen to, and in so doing i receive his deep secrets. It is a nonlife, rendering me useless, until i cross the threshold and revalidate myself, not by what i do but by who i am. And so, when the quest for doing differently is exhausted, the quest for being different begins. My body aches, every moment of the day, i crack like a seed and all the insides come out. A terrible germination.

[@thelovewitch3607]

This is THE most spot on video I have ever seen about chronic pain. I’m sobbing.

[@connie3174]

I did too.

[@HastyBanana]

I've been living with awful back pain for 15 years now. I'm losing my personality. I don't enjoy my hobbies anymore. I can't get any form of good sleep and it's impossible to explain the constant torment to someone that's never experienced it.

[@nyx3967]

Exactly. It's like trying to describe a colour to someone who was born with no vision (another realm of hell) Unless someone has experienced it they just cannot understand 😔

[@supernataralgirl7644]

I'm 17 and I have been dealing with chronic pain for 4 years and the fact that I'm so young is the hardest part because no one believes me and tells me I'm just lazy or out of shape even tho I have to wear a series of different braces every day so it will be bearable. I'm so glad it's not just me going through this hell

[@arjunkoshal9117]

God bless you. I know the suffering. You can reach us all out. 🙏🏻

[@swetabajracharya3284]

You arenot lazy you are not out of shape. Ive been in chronic pain for 10 years it has been coming and going. And ppl will never stop judging you for your pain. Its frustrating how you even have to make ppl believe you are in pain when you are suffering so much. I just stopped explaining myslf. Those that support you will be thr for you, those that think you are just being lazy will always think that way. Its their problem not yours. Only you can understand yourself the best.so believe in yourself take one day at a time. Rest when you must, and love yourself. ❣️

[@connie3174]

It breaks my heart to hear you say this. I'm so sorry you're having to battle your pain and those around you. You're in my thoughts, and I hope some day you can have a pain free existence. 🤗

[@dingleberryjones09]

16 yrs old here with rheumatoid arthritis and degenerative disc disease, i feel you. proud of you for making it this far🖤 keep going ❗️

[@SuzanneDeniseB]

💙💙💙

[@theoffgridhomestead5793]

the thing that bothers me is how bad I feel today is gonna be my good day next year...Living with severe case of A.S. gets to the point you think more about death then life....

[@sweetpea3795]

It's also bad when other people especially a family member doesn't understand, it is hell to live with chronic pain and you don't feel normal anymore because you can't do what you want to do.

[@ember-brandt]

I've been crying in my bed that I rarely ever leave anymore and I'm so tired of feeling like a goddamn burden on my parents or to my ex-husband whenever I ask for something because it hurts to move and being accused of overdramatizing or even making it all the fuck up. It's been 11 years and I've been feeling s*icidal again. People say they want to help you, but they don't. The truth is, people get tired of you being sick. Well, imagine how we f*cking feel. I can't even begin to describe the overwhelming validation and relief I feel when I hear other people actually _getting_ it.

[@cellini051]

Thank you for validating exactly how I feel. I'm 21 and I've had severe chronic pain in my abdomen for three years. I tore a muscle there and it has never been the same. The pain has completely taken over my life and I can't do anything that I used to enjoy doing. I've been to many doctors and specialists but no one can figure out what's wrong with me. I feel so helpless and depressed, and I fear that I will never be the same again. And no one takes me seriously because I'm so young. I'm so sorry to anyone who is also going through debilitating chronic pain and feel like they have no way out. It is the worst feeling in the world and I wouldn't wish it on anyone.

[@TheosT123]

Hey man I feel for you. If you don’t mind me asking how did you tear a muscle? Is that what caused and is causing the severe pain? It’s not easy I know. We all have something that ails us and trying to get the right mindset is hard sometimes but we just gotta fight. It’s scary to think these things will last forever but things usually get better even if it takes more time than normal. I wish you the best.

[@tiaragainey9040]

Did u check and see if u had a hernia

[@katyt.3418]

Hi, I’m so sorry to hear this. I’m 29 and have been in pain for 9 years since I was 20. Not to scare you! You could totally find out what’s wrong eventually and get better, I have seen that! I just want you to know you’re not alone and docs used to dismiss me for being too young to be in that much pain. Drug seeking when I wouldn’t even mention drugs, just that I wanted my life back! I have CRPS in my feet and frozen shoulder rn, it sucks. TbhI hate it when people suggest a diagnosis, but I just have to say CRPS usually starts with some sort of injury, and then never fully recovers. I got CRPS on my feet from tendinitis, I used to run cross country, I miss running dearly. Just a suggestion because it took them 8yrs to diagnose me properly. I got a ton of relief from Ketamine infusions for CRPS, but they’re crazy expensive and idk if I’ll be able to keep it up. Just wanted to reach out and let you know you’re not the only 20 something in pain, it’s so hard because we’re supposed to be getting our life underway. The misdiagnosis hurt me for many years. I hope you’re at least doing better now, I wouldn’t wish what I’ve been through on anyone.

[@kesidremel9174]

I have chronic abdominal pain, my diagnosis was ACNES (anterior cutaneous nerve entrapment syndrome). It took me I think two years or so to get diagnosed. Look into nerve entrapment and "carnett's test" if you haven't. I hope you find some relief! I am currently feeling burning and stabbing in my abdomen, and I'm just 25 and have had this since 20, so I feel for you.

[@goodvibesgray3821]

Ask your dr to send you to a rheumatologist! I hope you got help. I have lived with pain for so many years i just thought it was normal until now it got so bad I had to tell my dr and now waiting for results for Rheumatoid arthritis. How are you doing now?

[@noshot5793]

Ive been a hard working man all my life. Disabled now and only 42 yrs old. Pain is so bad its criminal. You 100% hit the nail on the head. Its even worse when you refuse to be a slave to opiates, you physically and mentally can not hide from it. For everyone out there in the same boat... I'm praying for you friend.

[@Livinglife595]

People would be shocked if they knew how much pain I’m in when I’m just standing chatting to them pretending I’m ok. It’s just that I have no choice

[@Life360Summit]

So sorry to hear that

[@Livinglife595]

@@Life360Summit ❤️

[@ZFern9390]

I hear ya

[@Ndfourlife]

@@Livinglife595So true. I’m talking to people and faking my happy expressions. Inside I’m in complete torture.

[@BMCLegacy]

Thank you for voicing our thoughts. And to everyone here, you are not alone. I won't give up if you don't. I need you. All of you❤

[@Life360Summit]

🙏

[@varsharangwani8416]

I can totally relate to this , but i fear to even share this . People might look at me differently, they might see this as a call for sympathy. And some might even say that i should stop wining about my pain. All i want is for people to i understand that i don't choose to live like this. I am living a certain way not being who i actually am and that bothers me every minute every second more than the pain itself. The only motivation i have is listening to my doctors ,try my best to come out of this loop and one day i ll be me again. :)

[@worldview730]

One day you will not let others influence what you think and surrender your self to true change

[@bubblezovlove7213]

Yeah there are so many mental facets to it all. I've had all that crap too with people thinking it isn't real... My life if two hours a day stood up. Its been like that since I was 25. I'm 47 now.... and a doctor had the nerve to say to my face AFTER 16 YEARS of fentanyl patches that "its not all about pills you know". I asked if she'd read my file and she said "pssssh well thats a lot of stuff isn't it" and this is my life....

[@roberthancock2563]

It's pure Hell everyday for me. You're so right about everything you've said.

[@jrbryant2000]

I’ve been crying nonstop after watching this video. My fiancé walked out me because I was so irritable, depressed and anxious for the past few months, and I’ve said some things to her that i wish I could take back. I tried everything I could to get rid of the pain, physically and emotionally. I was wondering why I was in such a depressed and angry state. I’ve never been so angry and depressed in my life. I used to play basketball 5-6 days a week. After my injury, I struggled just going to the courts to shoot around. I got a steroid injection & I felt good for about a month and a half, then the pain returned. I was so frustrated & I felt so hopeless. I started eating like shit & I couldn’t exercise like I wanted to. Still at the time, i didn’t know why i was feeling these emotions. My fiancé tried to stick by my side but it was too much for her to handle. Now that I’ve lost weight & I feel almost no pain, I’m trying to get her back. I pray for anybody that’s going through this because I know exactly what you’re going through. You aren’t alone.

[@Louise-jl2eh]

Going through very similar situation. It's absolutely awful.

[@cardonadarlene4650]

❤

[@Jahjah717]

❤

[@fozziethebigbear]

Similar situation.

[@malwaysfine]

Don't get her back!

[@5lives1love]

I am 23 years old and I have arthritis. Lately the pain has become unbearable, at the point that I cannot even sleep bc the pain keeps waking me up at night. It's heartbreaking :')

[@hollyharvey1986]

Heating pad and Voltaren gel.. it helps you somewhat if you can relax the area and its muscles to bare it

[@mikkovalle7944]

I feel you. 24 years in constant pain. I cant even breathe without feeling like I am getting stabbed in ribs. My eds was diagnosed as arthritis initially and I ate wrong medication for 6 years which caused me constant migraine. How I am still sane is almost miraculous

[@5lives1love]

@@hollyharvey1986 thank u, will try it 💖

[@5lives1love]

@@mikkovalle7944 don't forget you are really strong for enduring this, let's keeps our hopes up and wait for the best, hope you can start feeling better soon 💖 in 2 weeks I will be visiting a doctor which does Chinese medical treatments to cure chronical diseases, he supposedly has cured people with arthritis before, I used to be really sceptical to these kind of things but tbh I am desperate and want to try anything than can save me. In a few Weeks I will let you know how it went 🩷 please take care of yourself.

[@cdbndbnd102]

Try carnivore diet

[@witchmorrow]

this is how I feel. I'm like an alien looking around at all these happy people just living their lives while I'm on the outside, always aware of my twisted up body, my foot which is in constant agony, just pretending to have a good time, half-listening but so aware of the agony. Since I was 20 years old. I'm now 33, it has robbed my entire youth from me and I don't really have any hope that things will ever change. My life is just medical appointment after medical appointment. It's a never-ending hell and my life is passing me by. I have no hope.

[@giovannaprice3181]

I’m so sorry. I relate 😢❤

[@christinepearson9449]

I’ve been dealing with fibromyalgia and chronic fatigue syndrome 4:34 for years now, idk how to live without being in pain. My family doesn’t understand how I can be in so much pain all the time and all I can do is cry in bed because moving is to excruciating. My friends think I’m making it all up so I don’t have to leave my house. My mental status is fragile and no one cares!!!

[@alisaandersen8441]

Have you been tested for Ehlers Danlos? Just wondering because many ppl are diagnosed with only fibromyalgia, when they also have Ehlers Danlos

[@laserlobotomy]

Look into Mast cell activation syndrome, mold exposure, and tick borne illnesses. Fibromyalgia is just a catch all term for pain doctors do not care to understand.

[@scooterbts]

I have been in multifaceted chronic pain for pretty much my entire life of 56 years as I was born with a birth defect which then has caused so many other issues. Have had 40 surgeries, now have a 51 degree scoliosis curve, degenerative arthritis of the spine, hands and shoulders and more. I am at the point now where, since Congress decided opioids cannot be given to people with chronic pain I have been suffering more than ever. I have been through every treatment, psychological, CBT, physical therapy, occupational therapy, acupuncture, TENS unit, you name it I have tried it. Nothing works. It is the hardest thing in the world to keep going every single day living in severe pain. No one understands this unless you live it!!!!!!!

[@FullTimePatient37]

So sorry to hear 😞 I understand.. I've tried all and they gradually get less effective.. I also tried medical CBD..I honestly want life to end.

[@RandyH524]

I'm trapped in this personal hell

[@mrguy1141]

Hey there cellmate, how long you been in?

[@defyzx6817]

@@mrguy1141 I’m 22 and been in pain for 2 years, I can’t walk for a week out of every month, sometimes two weeks. I had a body count of 60, went to gym every day, and drove a boosted 300zx, now I just wanna die

[@mrguy1141]

@@defyzx6817 you described my situation though I've only had the pain reach the point of chronic pain about a year ago, I'm 20 and I have pain in my feet, knees, lower, and upper back. It's hell, I already had isolated myself prior to achieving chronic pain

[@RandyH524]

@@mrguy1141 7 years.

[@defyzx6817]

@@mrguy1141 I don’t tell anyone this, but I’m trying my own method, fuck psychical therapy, all those gay ass books don’t do shit besides more pain. I am going to take large doses of deer antler velvet with IGF-1 and other growth factors, so I can regenerate some of the disc, along with new blood vessel formations. There are study’s of this being successful but it’s very rare.

[@Jennifer-di4nl]

There is a scene in the last Twilight movie when Bella is transforming into a vampire on the table. That scene is what it's like in our heads 24/7. Whoever directed that scene knew what pain was like. Thank you for advocating for us ❤

[@jancollins6602]

Chronic pain is the thief that steals your joy

[@chroniccollectivesupport]

Thank you so much for your empathy and compassion. ❤

[@Life360Summit]

🙏

[@mitchellbailey4906]

There is alot I can't do anymore because of my chronic pain. It really sucks. I'm glad I at least have decent pain management for it.

[@pamela4843]

This is great...unless your family tells you you have no pain and you're lying about your doctors agreeing with you, and you're lying about having FMLA. I have identified my pain as my little devil and it's the one having a bad day or pissy. When I tried a chiropractor I was asked what I expected from the appointments & said "a divorce from the 25 yr of pain"

[@snowflake7266]

It’s like living trapped inside of your body and you can’t feel free but you do want it so bad - to be free

[@leonardus6791]

I cried, yes I did... It feels like dying. Yet I remain active as much as possible, despite the pain, preferably outside in nature, my garden, my paradise for all living things. Property value fades and I clean up, too many material things around me. Just give it away, money also loses some of its value. As long as I have enough I don't want to add anything. It liberates, it gives space. And I (as a baby boomer WW-2) have put a stop to my anxiously keeping abreast of this crazy world. My insides are starting to protest more and more strongly against all that information violence in which human lives have no value whatsoever. Rigidly deleted all my sources of information. It is negative mental food. Writing this down already gives me some relief, but my body is full of physical pain that makes me feel like I am going to die. I search and find nourishing sources, but it takes time to let go of the consuming, even obsessive need to "stay informed" of the rapid developments. To leave the sword of Damocles hanging by a thread. A difficult task, both mentally and physically. I keep looking for my strength. Thanks to everyone who gave me a strong push in the right direction. I hug you all deeply and sincerely

[@sandi6818]

This is so true. I was diagnosed with Fibromyalgia, the intimate shitshow of chronic pain. Drs don’t seem to really care. No offense. But our healthcare system as a whole is dismissive of chronic pain. Do you do teleheath? I have changed as a person because of chronic pain.

[@thistree9028]

I have fibromyalgia too. Recently, I saw a Utube video on thiamine deficiency in fibromyalgia patients. I ordered some, it’s inexpensive and it is helping me. You have to start slow. I feel abandoned by traditional medicine. I also eat organic and did find green drinks like barley juice powder give energy. If I take to much though the energy turns into anxiety. But the thiamine is calming. I cleaned a lot and was actually really sore (not all fibromyalgia pain but real normal muscle pain which felt good or hopeful) I think there is something in this treatment. I know it’s not a placebo effect-I long burnt out on being hopeful trying this and that. I hope this is helpful. The vid is by Elliot -I forget last name off hand -but is very interesting as he explains the dysfunctional processing path ways in fibromyalgia of this nutrient and it’s importance in pain regulation. A search for ‘thiamine for fibromyalgia Elliot’ should bring it up..

[@sandi6818]

@@thistree9028 Thank you. I’m doing ok right now but I go through periods of flares. I just started a new job and I’m on my feet a lot and I’m pretty sore when I get off work. I’m not sure how long I’ll be able to do this. I will definitely try this treatment! This is something I haven’t tried. I’ve spent probably thousands on supplements and vitamins, home treatments and naturopathic medications etc. It’s so hard dealing with this condition. Traditional drs. just don’t understand this. I do think Long Covid research is helping get more funding and more attention for this condition though.

[@VisciousMatt]

I think it's a case of " if you can't see it, then it doesn't exist" . If you had a broken leg, at least it could be fixed. There's also a huge correlation between physical health and mental health ( and the reverse). If you have issues with both, which are ,Def, closely linked, what the heck do you do then. You're already in unbearable pain, but, Noone believes you,and, if you fall into a deep depression,it could be just enough to push you over the edge. You lose the ability to think rationally, and, before you know it, it seems like a great idea not to be here, AT ALL.

[@EC-yd9yv]

@@VisciousMatt much love n care from fellow sufferer 20 years now...I def get it. Wishing you the best, we are mighty warriors indeed!! 🙏💙

[@lesleysears9808]

Hi Sandy, I too live with day to day severe chronic pain. It wakes me up in the morning and keeps me up at night. I am a registered nurse who had to stop working at 59 because I cannot get out of bed on half of the days. I have fibromyalgia and lupus with Sjogrens Syndrome. Wishing you well.

[@Jeannek4493]

Thank you so much for this. It made me cry because it was so incredibly validating. I often feel like I have to tell people over and over how bad it is, both mentally and physically and they’re like “I know” but they don’t. The ones who get it don’t say “I know” to me, they just listen and are there and actually see me

[@honestlythetruth6664]

When I was 19 I was in a car accident, hit by a drunk driver. I broke my neck. Ever since then I have lived with this pain. Day in day out, every moment. I try so much to distract my self. But it mentally exhausting just to do day to day things. I'm always mindfully aware it's there. I'm 25, is this how it's gonna be forever? Will I have to face this for the rest if my life? This is my biggest fear, there is no escape. My doctors do listen, they don't think the pain is there. They say I'm fine, they send me to physical therapy and they teach me to "work through the pain" but they don't understand what it's like. No one takes me seriously no one is listening to me. I just want to feel like I did. I'm so young, my whole life is still ahead of me, and I'm so tired. I'm scared of my future, and growing old, because if it hurts THIS MUCH NOW what is is gonna be like when I'm 50?

[@SpeedSyko]

Worse. It exhausts you for so many years and finally when 3 top surgeons from 3 different locations tell you, you just have to live with it. It wrecked me. Now it being your neck, I would think that you could get surgical help? I don’t want you to have to go through life like me. I’m 45 and I’m not trying to be mean, I’m just not sugar coating it. I’m a hopeless case, please keep searching for an answer, your too young. I also have sever ptsd along with being crushed and shot multiple times. I shouldn’t be alive and I wish I wasn’t. I live a lie. No one likes complainers. They start running you out. Even if they don’t try to. It’s a lonely life. Please keep trying. If your gut tells you this dr is a money grabber, listen. It’s probably true. I hate seeing anyone go through a miserable life. Good luck, fight!

[@greatestever8976]

The epidemic is that they aren't treating people with pain like they desperately need. My step brother had terrible back pain from abuse he suffered as a child & couldn't get his pills so he killed himself. My roommate has chronic pain after a botched surgery but they refuse to raise his pain meds a measly 5 mg. They are making him go thru all sorts of invasive procedures and putting him on other meds with bad side effects. It appears the drs just want him dead. I have fibromyalgia and became destitute looking for help with my pain. Now I spend most of my days in bed but also trying to support my roommate. Thank goodness for the help I get my from sister. It's a wicked world we're living in, that's for sure. No matter what, dont let them take away your joy, laughter, or love.

[@memorieswithamber]

Are you paralyzed now? Is it nerve pain?

[@tropicmanic]

2 decades of physical mental emotional torture thank youuu 😢

[@candydatu]

All I can say is THANK YOU. Thank you for saying all I want to say to my family and friends but can't say because I know they won't understand and I know that it's not their fault that they don't. Thank you.

[@KellyBell1]

I was injured badly and permanently from my daughters breach delivery. Excruciating pain from many injuries. Pelvic ring injury that also caused damage with sacrum, si joints, lower vertebrae, sciatic nerve damage and many other muscle, ligament damage. Been stuck with the pain from it all for 29 years now. I have no life. I battle this pain around the clock. It NEVER STOPS horribly throbbing, aching , burning. I hardly ever leave the house because I never feel up to it. Who wants to go out when you’re in pain? Exactly. In all these years I have never found a way to somehow live better. Pain can take you down when it’s beyond a certain level and it a constant battle trying to get it to a tolerable level….then I don’t have much time and it starts all over again trying to beat the pain back down. Basically, my life is a nightmarish living hell. There aren’t enough things in place for people who suffer with physical pain in their bodies. It would help mentally just to be able to talk to someone who can relate. My PC doctor just doesn’t “get it”. The only reason I made it to the appointment in the first place was because I started 8 hours ahead of my appointment time trying to get the pain down so I could show up. I had to re-schedule many appointments! You can’t manage heavy pain in some kind of timely fashion 🤷🏼‍♀️🥴or atleast, I have never been able to. She wrote in my Visit Summary that I “seemed nervous and anxious”!! 😮 Well, I wasn’t nervous or anxious, I was HURTING and couldn’t wait to go home AND I have never been able to discuss everything I need to in their 15 minute session!! I don’t know which problems to put first, leave off until next time and also, it’s quite obvious that she doesn’t really like people, sits with her arms crossed and frowns the entire time. I have a hard time opening up to this kind of person even if they were just a next door neighbor. I’m just FRUSTRATED with MY LIFE. Period. No future except more of the same. They can’t solve or cure my pain problems. I’m just STUCK in permanent pain mode until I’m dead. Sorry for the vent. I don’t have anyone to talk to. Thank you for posting this video!

[@giovannaprice3181]

Could you try to get a zoom appointment so that you don’t have to spend so long in preparation and getting out this has been a godsend for me

[@KellyBell1]

@@giovannaprice3181I’m sorry that I just saw your reply. Can you tell me how this has helped you more specifically? I just want the heavy nerve pain to STOP throbbing.

[@mikekaren2128]

Chronic Pain is exhausting, too and the reality of not engaging in meaningful work or fun activities with family and friends is deeply disappointing. 😢

[@Brobro37372]

it's so hard. Life becomes so boring and depression makes the pain even worse.

[@jimbossemi-customs3129]

5 neck surgeries, with root nerve damage at C5. Was told the nerve would regenerate within a year, never did. I knock myself out at night with a drug cocktail just to get away from the pain, usually at 630 pm. Because I'm exhausted from the pain. Then drugs wear off between 230-3 am, sit on the end of my bed wondering how I am going to get through another day. First Percocet of the day kicks in about 30 minutes later and I get a burst of feeling positive. Last about 1.5 hours, the rest of the Percs throughout the day doesn't hit like the first one, and cannot wait to be asleep again. Rinse and repeat, for 11 years now. 60 and in great shape besides the pain. I no longer live, I exist.

[@ZFern9390]

I have found out recently that I have advanced arthritis of my c1 and C2. The pain is awful. Is this a life sentence?

[@CatalinaFOIA]

I never thought when I was 19 and my left leg was going numb and I couldn't stand up straight anymore that I would be in pain, severe pain, for the rest of my life. I'm almost 44 now; this life has been SO LONG. 1:32 chronic pain causes my appetite to DISAPPEAR. No one understands this UNLESS you have it- by the time you have it it is too late.

[@sylvainleger6026]

She is so right I can't believe I love this person

[@thatgirl5703]

I was diagnosed with Lupus and EDS 5 years ago. The chronic random daily pain, especially in the morning, is brutal. I went from being a dancer and cross country runner to bedridden. I handle the pain better than most, but it's robbed me of my self confidence which is an unexplainable loss.

[@DivineLightPaladin]

I'm so tired of being called lazy because of how exhausted being in pain all the time is

[@Sue906]

Only one person in my family gets me & understands the reality of flares & pain.I have fibromyalgia & lupus.I am almost 65 now and have really struggled with horrific pain.Being on low income doesn't help at all.Thank you for your channel and this video, it helps.

[@andreathompson-bg4hl]

I wake up in pain. I scream in pain multiple times a day. My arm just wants to curl up beside my body like a dead cockroach's limb. I can't work, play my music, draw, write, roller skate, play billards, sew, drive. What can I do. This used to be my life and now I have no life. I might as well just die.

[@77advisor]

I can totally relate and often feel so isolated because only a couple I know understand. It leads to many episodes of depression.

[@sandraklatt7610]

Thank you so much for validating my feelings. I have lived with this for 10 years and yes the worst part of it is not being the wife you want to be the daughter you want to be the sister you want to be, the mother and the grandmother you want to be etc.. I live in my pajamas, almost every day because it’s too uncomfortable to wear clothes lying down. I never know from one day to the next if it’s going to be level three pain or level eight and above. No one can understand it unless they’ve lived it. My whole life changed when the pain started, and it never stopped. I had to stop teaching kindergarten and be tested and poked and prodded and biopsied and sent to the lab and scanned and sent to so many specialists and treated like a lab rat for years and still no clear diagnosis for all the widespread inflammation. For anyone that reads this, I understand. The fear and anxiety is awful because you slowly lose your independence and you don’t know what’s coming next and you feel like a hamster on a wheel just trying to keep up with daily activities like showering and washing your hair and doing your nails and feeling like a human being. My heart goes out to you. I have so much gratitude that my husband has stuck by me and is a complete prince. I highly recommend talking with a pain therapist or a life coach. I also used to think that meditation was silly because I didn’t understand it and boy I understand it now. Guided meditations and hypnotic meditations really work. I’ve had to go through so many different drugs trying to figure it all out and having so many side effects and still on pain medication that made my hair brittle my skin and my eyes dry and has made me exhausted. I have seven grandchildren and having been a kindergarten teacher you can imagine how much I want to do with them and I just can’t. I push myself to the max when they are around and I forget my pain but I pay when they leave sometimes per days sometimes for weeks. My father is now gone into assisted-living this year which just turned my world upside down because I want to be with him all the time. I push myself to try and get there once a week, but wish I could be there every day and FaceTime with him during the week and send him mail. No one could possibly understand how difficult this all is and it is definitely almost worse emotionally even though the physical pain is horrible.

[@skylerbeauchamp4641]

This video is everything I wish I could say to people who don’t understand especially since I’m 17 and just got diagnosed with degenerative disc disease and facet arthropathy but everyone has been saying it can’t be that bad when I literally can not get out of bed most days.

[@connie3174]

Oh my love, I'm struggling over here with the same thing, but at 40 years old. You must share this with your friends and family. I came here today through desperation, as a way to help my family understand. Because we look healthy on the outside for the most part, it's hard for people to see what lies beneath. Please get yourself to a good pain management Dr. You're too young to be suffering with that much untreated pain. Sending you much love. Remember that the universe is forging our path. Even if it's hard for us to understand. 🤗

[@Cla-ev1xp]

Take each day as it comes. Not everyone wants to accept that you are in so much pain at 17 years old. Some of them just love you too much to accept it. My best friend not only did not want to believe me, "she" was in denial about it, because it was just too horrible. She didn't want that for me, she was very sad. There can be many reasons for it, please don't take it personally. It isn't you! It is definitely them!

[@dingleberryjones09]

same :/ i’m 15 with rheumatoid arthritis and degenerative disc disease. it’s hell.

[@katyt.3418]

I’m so sorry you’re dealing with this so young. I’m 29 and have been in pain 9 years about. If Anything, I wish people would be more understanding, and just continue to be there for us. Be our friend, our family again without all the distance and judgement. I know how you feel. I hope you find something that helps!

[@VisciousMatt]

@@dingleberryjones09 I'm SO SORRY. 15?? Just beginning your life.Im 53,and, since 36,have suffered from Psoriatic Arthritis, DDD and D Joint Disease. There's not room on the page for everything else,but, keep going,love? At 15, there's a good chance that they will find,if not a cure, a way to better manage these illnesses/ pain. Chronic pain,the effects it has on your mental and physical condition should never be underestimated. I can't believe I'm saying this ( IM SORRY) but, exercise , physical therapy, in a warm pool,( where you are weightless) as much as you can,while you can. I WISH I had pushed myself,while I was able to!! I HATE people who say that,but,moving,while you can,even a little,is key to staying mobile. My Rheumatologist has been PREACHING that ,for 17 years. NOW, I can't move,but,at your age, don't give up, not yet?You still have your whole life ahead of you.If you HATE me,I'll understand,but, if I had gone to Phys Therapy,while I could bend ( a little), maybe I'd still have my family, with me?of course, it may still have turned out this way? After 17 years, I haven't HARMED any Dr's,YET. That,in itself, is a minor miracle.I HAVE, however, requested a Rheumatologist who has a Rheumalogical disease?? I would be more inclined to take the advice of a Dr who suffers,like we do, on an hourly basis??

[@Slothz_]

I have EDS and Right now im in so much pain and I'm in pain every day 24/7 and I will be in pain for the rest of my life and I'm only 15.... I have so much life and pain left. Chronic pain is a prison physically and mentally...

[@sierrajacobs3219]

I have EDS too. I can relate to this. Sending love

[@mrmedicinal]

Prison. Absolutely. In solitary confinement.

[@RainHavok1111]

It sure is honey. Ive been dealing with this since I was 11. I'm 42 now &its very hard .you need at least 1 thing to hold onto to give h strength.

[@Slothz_]

@@RainHavok1111 thank you so much for making me feel not so small in this large world. I believe I was the same age you where when I started to notice it, I know it will get somewhat better because the longer I have it, the more I will learn about what helps me. Thank you

[@Slidehhy]

​@@Slothz_how are you now bro

[@gabriellenichole3445]

Thank you for your understanding. I am so angry all the time. I’ve lost time and I can’t even deal with my own home. I don’t want to burden everyone but I’m so tired of not being able to do things on my own and never having help.

[@Grateful4Grace777]

CPTSD, Cancer PTSD and survivors guilt Plus: Chronic pain and illnesses!!! I'm so over this place.

[@ilavalolipop]

Made me cry instantly, because this hits the nail on the head. I don't get to make choices based on what I "want" to do anymore. After 9 years of not getting to behave how I want, it's like watching the real you die. That person is inside, but they don't get to act in the real world anymore. Only the person suffering in pain gets to be present. And the heartbreak is your friends and loved ones saying they still care about you no matter what, even if you don't show up to events or hang out or answer the phone, because you can't... but you WANT to. But you can't, because the pain will bring you to your knees if you do.

[@HUGEFLYINGWHALE]

This

[@sandraklatt7610]

Exactly…and I keep asking Why?

[@alaskablue8934]

Thank you so much for this video. I’m 23 now and have incessantly headache for 3 years now. I don’t know how I can live with it for longer. I haven’t done school and couldn’t study or work, because I’m in pain every second. I’m just so tired, depressed and anxious. In this speech you give people like me a voice that they to tired and hopeless to use. I try everyday to think that I’m gonna be okay. Thank you so much❤

[@francesholliday5427]

@alaskablue8934 I'm trying to cope with daily migraine. I'm sorry this has happened to you. If you like biographies, you may enjoy a book called 'All in my Head' by Paula Kamen.

[@alaskablue8934]

@@francesholliday5427 hello:) thank you for your message. I’m really sorry too that you are dealing with it too everyday. It’s just really so terrible to live in a body like that. Thank you for that biography. I will look for it :) I can recommend the novel blindfold by Siri Hustvedt there is a part that’s about a woman that is dealing with migraine. I don’t know many novels that contribute a illness like that so much.

[@francesholliday5427]

@@alaskablue8934 Hi, Thank you for your message too. I will also look that book up, I have read other novels of hers, but did not know about that one. Just yesterday I found an article/interviews with both that authour and the one I mentioned to you. I'm going to read it later when I have a bit more time and can concentrate. I can pass it on if you like. I have another fiction novel on my to read list called The Pain of Pleasure by Amy Grace Lloyd, so that is one more novel that is based around migraines. I guess the good thing is I may have missed out on how good those books are, if I did not have migraines, as I may not have been drawn to them. I'm wishing you a good day, with whatever small pleasures you can find. I do feel more isolated among my immediate family, friends, community etc as I am the only one with daily headache. I do have one friend with chronic migraines but envy him in that at least he has some days off! But I can remind myself that there are fellow sufferers around the world going through the same thing, and it is good to be able to say hi!

[@lindasvihlikova1061]

Exactly... The fear of "what will be the next" is debilitating... I m living with chronic pain for 10 years...lets be strong.. Love to all who are reading this 🌼 lets continue to fight!

[@Jeannek4493]

I also can’t stand having someone thinking I’m going to “get fixed” or “cured”, it doesn’t help. It doesn’t help at all

[@hdv6]

By doing Tai-Chi ?

[@DangerousDevilOfficial]

I was in a sever work accident in 2007. Where I nearly ☠️‘d. I had multiple broken and fractured discs in my neck, back and had other substantial injuries. Not long after the accident, it seems to have triggered severe Fybromyalgia and CFS in my body. Have lived with severe, debilitating pain 24 hours a day, 7 days a week nearly ever since. I have had well over a dozen surgeries. And my pain is as bad as it has ever been. It is hard to cope and honestly to even go on many days… I have not found anything that works more than just a little bit. Taking hardcore meds to try and “control the pain”. But they are only band aides that barely help at all… 😢😢😢

[@Life360Summit]

So sorry to hear this 🙏

[@DangerousDevilOfficial]

@@Life360Summit I am in an extremely bad flare up as I write this.

[@Turtledove34]

Once again back to this video. People trying to diagnose me again. They ask me what's wrong. So long able bodied people telling me what to do with my body

[@PinkPanther70]

I went to buy a ball of yarn today. I had to leave after standing a long time waiting to pay, but told the shop lady I'll be back a bit later. About an hour later, I went back (after going home just to sit down for a while) but I ended up back in line having to wait for everyone else in the shop to get help, because they thought they were there before me. To buy this yarn would have taken under a minute. My pain was eating me up and again, I left empty handed and in tears. The old fart in front of me in line, the one who absolutely insisted that she had to get help, not only to buy yarn, but also for her miserable old pattern, well I hope and wish the very worst of pain for you too. You deserve it! That's what pain does, it makes you HATE other people and it makes you hate your life and yourself. I've really had enough today. It's been 12 hours since I came home and I'm still crying. I've had chronic pain for 30 years, but the past year and a half, has been so miserable that I can't remember the last time I actually was happy to wake up in the morning. It's a curse from the devil this pain thing.

[@makemyvideodotcom4423]

How are you today?

[@nerdynaomi7]

For all my fellow chronic pain brave knights out there, I am with you. You are NOT alone. You are understood. You can still find joy in life. And even if it doesn't feel like you're living a full life, your life IS meaningful. You are beautiful, valuable, strong, and worthy of love, care, and acceptance. You are not a burden, and you deserve love, not pity.

[@cindyelam9509]

Thank you for this, pain every second of every minute of every hour of every day of every week of every month of every year for 10 + years, I was very athletic, had many hobbies loved seeing and doing with friends..loved helping people..I've been in a mental and physical prison..watching people live their lives and do things they love with the people they love..I pray for each of you watching this that you receive healing in the name of Jesus

[@Life360Summit]

🙏

[@charinagel5690]

Thank you. This is so difficult. Unbearable chronic pain. I've been in a state of fear. This is me.

[@kazzyd63northeast72]

I’ve had chronic pain for the last 12 years, with debilitating degenerative arthritis of the hip,spine,neck,knees and elbow. Now a diagnosis of ME/CFS it’s soul destroying, and my life has changed so much! 😢

[@ZFern9390]

What part of your spine? I've just been told I have arthritis of my occipital and C1 and C2 and I've been extreme pain for a while. Is this a life sentence?

[@kazzyd63northeast72]

@@ZFern9390 it’s my lumbar spine near my coccyx, and I’ve had a ACDF -2 metal cages in my neck x

[@kazzyd63northeast72]

@@ZFern9390 it is something that is degenerative yes. Mine has got much much worse over time x

[@mbm8404]

I have so much chronic pain and PTSD from 30 years in the military and it’s practically my identity now. If I was somehow miraculously healed I’d be terrified. I don’t know who I am anymore if not for all of the pain. I can’t even leave the house without having a panic attack from all the pain and over stimulation…😖

[@Life360Summit]

So sorry to hear that 😔

[@Yoshoggutha]

I have a similar issue with the over stimulation and the panic attacks from the pain. I'm only 38 and it feels like my life is over.

[@namansharma1875]

Just try to believe and feel that it can miraculously get healed and rather getting terrified just thanks God....keep believing...God will heal you🕉️

[@roberttapp5907]

I’ve had 38 years of horrible pain and very few understand.

[@jennifercollins772]

Thank You. Sitting in the hospital yet again. We would never make animals suffer the way we let humans. Don’t get me wrong I love animals but I at least want to treated as well as one. We would never ask animals to live through this suffering.

[@marketrader1972]

I agree completely...it is unbelievable that we have to go to Switzerland to be put to sleep.

[@shawnmcanthony5724]

Chronic pain has become my best friend it is always there😂😂😂 ( just to cope i try to have a sense of humour) 😢😢🙄🙄

[@Kellz58]

I miss who I used to be, before this pain took over my life. It never let's up. Ever.

[@inkychick5959]

The worst part for me along side the pain and everything its taken away from me ie; my life my business , my social side of life, the worst part for me is people saying well YOU LOOK OK!!! Please do one if you dont want to understand please do not judge or assume bcos thats not fair! Lots of love to all who are suffering i feel you xxxx

[@EC-yd9yv]

💙🙏

[@giovannaprice3181]

I am so sorry. I completely understand it as I’m into my third decade of debilitating chronic pain. Everyone always complimented me because I was thin and attractive. At least you look good. It was no compliment. But now that I am nearly 60 I miss looking good. So try to at least enjoy that while it lasts because you become very invisible to doctors and other people when you get older. Take care

[@mcmitchellpropertiesllc6058]

Let's all get each other emails etc, who in what state and have like some type of big shindig. We talk, relate, bring on da food, music whatever. Pick a spot in each general area where everybody can get too. We can video it etc it'll be fun for us and get our stories, laughs, cries, etc. We need something to look forward to ya know, we all miss a lot of stuff w our friends family so we can be our own lil family. Bring the person that supports you the most and let's do this thing. Peace n luv.

[@RichieLetLoose]

What a great description of my life. I have shared this to members of my family, I know they try but they cannot truly understand.

[@Life360Summit]

🙏🙏🙏

[@Tinyteacher1111]

Mine don’t even try. They’ve just deserted me.

[@VisciousMatt]

@@Tinyteacher1111 I feel that way too! ( I'm alone,in the US,which is where my estranged husband and I chose to raise our family)Family are in the UK. My son ( 18 ) collapsed on the sofa today, saying, ohh, I feel awful!!! I made him tea with honey,and, said, Imagine your TODAY,multiplied by 1,000? Thats my BEST day,out of 365,every year.

[@VisciousMatt]

@@Tinyteacher1111 I THINK that people ( even family) get " fed up " listening to " the pain shared". You can't help it, I can't either. It consumes your whole life. Noone,other than another chronic pain sufferer,can,possibly " GET IT". I'm sure that they love you,but, it's impossible for them to comprehend how all consuming CONSTANT, never ending pain is?? I'm sure that they love you.

[@meltheartist1147]

No one can ever understand unless they live through what we do. 😞

[@Davidsavage8008]

Exactly. Finally somebody knows what exactly what I've been going through. Multiple back injuries have destroyed my life. Thank you for your research and understanding... It helps knowing somebody understands.

[@Life360Summit]

🙏🙏

[@JoeInFresno]

That is such a real description

[@elliereppe9021]

This captured my feelings perfectly, I just started crying. God i wish I could just make it go away even for one day. I’m only 15 I should still be able to run around and walk with my friends and play all the sports I used to love I just wish I could be normal I just wanna be able to go on my feet again, I was such a active kid why can’t I still play soccer why can’t I still walk down the stairs. It hurts so much why can’t it go away I want it to go away I wish it could go away why does it have to hurt so much to walk why do I have to live like this the pain is forever and that’s the only thing I can be sure of

[@disizanewme]

Going on 7 years in this nightmare! I have watched a few videos that described me and made me cry, but I ended up bawling from this video! Thanks for sharing this video, because for some reason it just makes me feel a little better hearing that someone understands!

[@abelwritesmusic]

I've been trapped in emotional pain for 19 years, and physical pain for 13 years. I wish MAID were available in my country.

[@SpeedSyko]

I don’t relate with someone who hasn’t been through it. So dr’s tell you there bs and haven’t walked our walk. Your right. So I’m listening. I’ve had dr’s tell me the most ridicules things. The commenters, help me more, because they relate. Years of dr’s I don’t go anymore.

[@melaniedavis6751]

So validating 😢. Trapped in a “personal hell” and yes, “the mental shit show,” for 23 years.

[@HarveyMyers]

30 years for me. The first 12 were so destructive. I have overcome parts of it in phases in a story that would blow you away. In truth, recent successes involve the pandemic and cancer both providing a benefit in the most ironi. Of stories.... Being a musician helped me recover my self-confidence as well.

[@asmik3738]

Oh just listening to this makes so sense , why I became anxious , hopeless and fear of unknown , what I couldn’t explain how I reached here this makes sense to me now , though I m doing better but it took so long to get there

[@celtglen]

Thank you for validating my hell for 30 years. Oddly enough I took myself off of all but one medication for pain as well as the antidepressants the Docs were trying to get to work. I began nutritionally to treat my inflammation..I dropped 40 pounds NO EXERCISE --hell, I couldn't even use a recumbent bike. Well after the inflammation began to subside and the weight came off...I now exercise daily. Three years later I still take only one medication a day. A big positive change after 30 years taking on average - 5 medications a day.

[@tylerpool5464]

That gives me hope. Im on a lot and I swear it's made the pain much worse

[@arclight545]

In 2000 I took one really bad step. I fell and fractured my spine. I have lived with chronic pain for more than 20yrs. I have had every form of pain management that there is. From epidural to RFAs. I've even spent 60days in in patient rehab for pain. My VA therapist believes I have PTSD from the waves of pain I experience. I'm 54 yrs old and feel like my life is over. That my life will revolve around what ever the next proceedure is. My life has been radically altered. My health is wrecked, my wife left, my marriage has ended. I've lost virtually everything

[@khalidsaifullahbanday2841]

Of physical pain you could only wish for one thing,that it should stop.In the Face of Pain there are no Heroes.

[@carlwesleychannel]

Pain started in nov 2011 and still to this day it still the pain is still there if not even worse. 😢 talk about emotional pain..depression/sadness/dark deep thoughts! I HATE it!!! 🤕🤧

[@nitalightell336]

I know what you mean! I have diabetes and nerve pain in my feet and toes. I'm about ready to ask to have my right big toe amputated. I can't take it any longer 😭💔

[@bennycreemers]

Hey guys, good luck. Nita try alpha lipoic acid also called vitamin B17 against peripheral neuropathy (nerve pain in extremities) 600mg-1800mg. Daily coconut oil for sugar imbalance

[@bennycreemers]

For the nerve pain itself, CBD/THC helps and there is a non-opioid painkiller gabapentine that block the pain signals. Treat yourself right

[@dianahalwaysseekingbrown407]

@@nitalightell336 so sry honey. I have horrific rls it even gets in my arms sometimes so I can only imagine what you go through. Godspeed friend

[@Tinyteacher1111]

Mine started in 2003, when I got saline breast implants. I was lied to by the medical profession, until an angel mentioned this to me, and I was so sick I could hardly get them removed. I did, but I’m still suffering, but not as bad. I’m sure I would have been dead of lymphoma by now.

[@MT-kq7wi]

My chronic pain makes me want to jump off the edge of a cliff and pray for a swift death.

[@shawnam1023]

Thank you so much for making this 💙 As someone who has some sort of pain 24/7 this really resonates with me. It's so hard to stop living your life and doing what you love. It's so hard to feel so hopeless and misunderstood.