Bindi Irwin talks about her debilitating endometriosis diagnosis | GMA

The conservationist opens up for the first time on TV about her experience living in pain before finding out about her condition after going through a surgery earlier this year.
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#bindiirwin #endometriosis #gma #abcnews

[@stephmartin1148]

Bless her!!! I have Endometriosis and PCOS!! I get it!! The pain can be debilitating for some!! Prayers for all you warriors!! 🙏🏼❤️

[@apalmer3472]

Advocate for yourself. I begged for a hysterectomy. Took me a failed ablation and several years of mini procedures of removing scar tissue. Doctors kept dismissing me. I’m to young. It’s “NATURAL”…BS. Finally found a GYN who acknowledged me and understood my pain. Proud to be a hystersista!

[@lindaa2437]

It is so sad that it took so long for Bindi to receive a proper diagnosis. She suffered so long needlessly. Thank you to Bindi and GMA for shining a light on this painful medical condition.

[@triciad4100]

What Bindi says about the validation that comes with a diagnosis is so true! So often women are told they're just being "hysterical" so they should just get over it, and it's not just limited to reproductive issues. I spent my whole life knowing there was something that made me different, but I was told I was just depressed and should suck it up. It wasn't until about a year ago that I was diagnosed with ADHD and realized I'm probably also autistic (they very often go together). If I'd been a boy I'd probably have been diagnosed in elementary school. It took such a weight off my shoulders to know that the "wrong" behaviors I'd been blamed for my whole life weren't all my fault for not trying hard enough. I'm so happy for Bindi that she's finally out of pain and that she's paying it forward to other women who may also have been ignored and dismissed.

[@blueskysailing]

So happy for you Bindi. You have been so brave. Your dad would be so proud of you. You have such a beautiful family! God bless you!

[@andiburt1886]

I’m so happy to see awareness of endometriosis growing! Such a big part of the problem is how much people don’t know what it is or what the signs are. Since my own diagnosis and excision surgery, I’ve had so many conversations with so many people explaining and educating because people shouldn’t have to search for a decade to get answers. That said, it’s a real bummer that even in news stories like this there are factual errors-for example, endometriosis is not when cells in the uterine lining grow outside of the uterus, they are actually a separate and distinct type of cell that can even grow in bodies that have never had a uterus. Conversations around endometriosis also tend to focus completely on fertility and the female reproductive system, but endometrial lesions spread throughout the body causing a massive range of symptoms from digestive problems to nerve damage and chronic, daily pain.

[@marieldavison5121]

So many women go through the same trauma of being told after much exploratory tests that there is nothing detectably wrong ~ it's unintentional medical gaslighting and it can be traumatizing. We need better detection tools so women don't have to suffer ~ thank you for sharing Bindi.

[@John-B69692]

So many of us remember and miss your dad, Bindi.. He would be so proud of you.

[@eeb9177]

Im so glad bindi is sharing her story, bc womens reproductive problems are not shared enough with not many people having much knowledge of it. I had my period every day for almost a yr and it was so scary during the process of trying to find answers with so many tests that made me think the worst. Im 32 with no children yet that i planned on having within the next 5 yrs after i finished college this yr, so the thought of maybe never being able to have kids was nerve wracking. I ended up having many uterine polyps that were hidden, had a d&c and hysterscopy and it still took 4 months for the problem to clear up when my dr told me a month. We all know our bodies best, dont settle for unanswered questions!

[@frankcastle4435]

Did everything work out for you 🙏?

[@stacyscooby8488]

Bindi you are amazing person sending Love to you and your family.

[@slvrbullet22]

awe man.. Im so glad she got answers and treatment. That is so painful.

[@barbarakane9275]

Good Luck Bindi get well soon Love to you and your family

[@taryngutierrez9139]

LOVE YOU BINDI YOU ARE A TRUE WARRIOR!!!😘

[@feoltmanns7624]

Oh sweet Bindi, bless your heart.

[@amandajean3379]

I’m so glad she’s sharing her story. It took over 22 years for me to finally have the diagnosis. My doctors kept brushing it off as “heavy cycle”

[@sherrie6492]

Way back in the 1968 , i had one ovary removed. Huge cyst. No trouble with a drawb out diagnosis. My GYN knew exactly what was wrong. I find it strange that so many women have issues getting an answer these days .

[@carolgimenez5169]

Shes so beautiful ❤

[@Elssa1]

Thank you very much, Bindi, for talking about this. I needed a lot of surgery for this condition in my 30s.

[@CherokeeChief.]

Bless her and her family… 😢

[@melissaroberge715]

Im glad she has some relief from it I was born with it and struggle with it everyday of my life even though I have a 9 year old son. They took 8 lbs of endometriosis out of me when I was 14 and was told it never really goes away it just hides and pops up whenever. I've dealt with it for 35 almost 36 years and it doesn't get any better

[@colleenholland-bt2cc]

My daughter is suffering endometriosis. Single working mom of 3. They have taken every organ you can take to try and stop it. Multiple surgeries. No female parts left yet she bleeds bad. She's suffering horribly and there's no help for her. Boss bullies her gives her hardest tasks then said too many bathroom breaks. Weight limits lowes doesn't care do it or lose job. God if anyone sees this and knows of help ??? 😢

[@stephmartin1148]

Oh my goodness prayers for your sweet daughter!! 🙏🏼 I am SO sorry!! I have Endometriosis and PCOS but have not had anything removed yet. I just live in pain lots!! I am scheduled for a partial hysterectomy in Dec.

[@AllisonLansberry]

I was bleeding horribly. Turned out to be an 8lb fibroid. A uterine hysterectomy solved the issue.

[@audhdgamer]

My mum has endo and she had multiple surgeries. The only thing that helped her was changing her diet. Eating no meat (red meat) in particular helped. She has no more pain! Hopefully this is helps ❤

[@lorir4896]

Awww Bindi❤.

[@MiMi-ce3ss]

I had it and it was horrific. Hysterectomy was final outcome

[@AllisonLansberry]

Pregnancy kept My endometriosis at bay & at 44 I had a fibroid the size of a 8 lb baby. I had a hysterectomy & haven't had any gynaecological problems since. I'm 73. I used Evening Primrose oil for peri & menopause symptoms. It's very effective. I have heard it can be useful for other female issues 😊

[@Popunkwillneverdie]

Prayers out to you bindi ❤❤❤❤

[@emilyake9689]

I siffer witb Endometriosis for years. Its excruciating And debilitating. It's more difficult when you tell people you're in pain and they say " toughen up ,it's normal". But you know it's not. I'm glad she got the help she was looking for.

[@violaharris7299]

You have shown us how to be strong and survive❤

[@DCXCoorexDakarCoore]

I grew up on steve Irwin. 😢 Glad she is doing well ‼️❤️

[@ShonaWetini]

We love you, 💘 💘 bindi irwin..🎉🎉. SINCERELY frm,, NEW zealand......

[@TheMormonSorceress]

Those doctors are lucky Steve was dead, I can see the guy arguing with the doctor about not taking their daughter seriously with how much he loves his daughter.

[@luvsignlang]

So sad that this is still going on. I had an awesome gyn in 1990 who was willing to do the surgery because he suspected I had it. 8 years later when I had symptoms again a different gyn told me if I had not had a previous surgery with the confirmed diagnosis, he would not have done the second surgery. First surgery was one one side of surgery. Sadly it returned and the other side had it. Both sides were treated and I was able to get pregnant with a beautiful son. Just makes me sad that women are still having to fight to have this diagnosis even be considered.

[@SandraBugler-vq6co]

It's extremely difficult trying to make an employer believe there is something wrong with you. I was born in the wrong ag, 1950. From early on I suffered severely, not being diagnosed until the 80's and they still didn't know much about it. It was a fertility specialist who diagnosed me and did the first surgery. I adopted two children with my husband. I didn't get real relief until I went through the change. Although unlucky enough to have endometriosis girls now have options we weren't given back in the day.

[@Djennie.TheBroker]

Never stop advocating for your own health. Nobody knows your body more than you do. My 22 year old daughter got her diagnosis after she sought, not a 2nd, but a 7th opinions. Pelvic ultrasound, pelvic scan, pelvic MRI; none showed endometriosis yet she had all the symptoms, including excruciating pain. It’s like they didn’t believe her because she was young. Endometriosis is not necessarily an older women’s disease. She’s been fighting it for so long, that she developed a functional neurological disorder (FND). It’s so debilitating, she had to stop studying, working and driving. It’s been over a year now. Only when they cut her opened that they saw it. And only now they’re admitting that the endometriosis is a direct cause of her FND. It took 9 years before one doctor believed her. That’s 9 years of suffering and being dismissed. She just had surgery exactly a week ago. It was extensive and she’s still in pain but Bindi’s story make us very hopeful. I hope my daughter gets her life back 🎗️

[@tammybowler]

It got so bad for me that I only stopped bleeding for a month every six months. They did an endometrial ablation. The next step would be a hysterectomy if it ever comes back. Thank goodness they help her at this young age.

[@michaelyoungstrom9412]

My Mom had endometriosis. She's still alive as well as my Dad. Both parents birthed my older sister...then I came along as a miracle child😂 My parents had great doctors. This was in the 80s when my sister and I were born❤

[@donlosey9979]

My wife has this and it's a legit pain in the ass definitely for her but to me and her daughter as well

[@sunshinerobinson1123]

😢😢😢😢😍😍😍WOW!!

[@ciaxyzxyz4897]

I also have endometriosis but the doctor said it’s normal which for me is not because I have extreme pain from time to time; I wanted this to be removed; this has ben in my body for so many years

[@blueskysailing]

I hope you will find relief like Bindi did. You need to find the right doctor who will listen. I know it isn't easy. I have had similar problems.

[@mwandikay]

Endometriosis is NOT normal, find yourself another Dr who will listen to you. You're entitled to a second, third, fourth, umpteenth opinion ❤

[@ciaxyzxyz4897]

@@blueskysailing the problem is , I’m in a foreign country and I can only afford the public health insurance, probably I might go home and have this done in my doctor because she knew what she’s doing; thank you 🙏

[@ciaxyzxyz4897]

@@mwandikay yes, you’re definitely right; the problem is I can only afford the public health insurance clinic, it is too expensive to go to a private doctor in this foreign country; my next appointment is more than a month waiting even though, I went to the emergency to seek immediate medical help, so sad their health care system here is not very helpful and very devastating to know that I can’t get help right away

[@ninagilliam9568]

It is NOT normal. Find another doctor!

[@fallonparks1883]

Have that

[@jtspivey]

Tattoo love

[@TopperPenquin]

In general, your Father is in Heaven. Go and see your Grandpa for he is the "Lord of my Lord" 2U.

[@lindaliebenthal2576]

Are you planning on having a other baby.

[@bugloverspiderlover8490]

I don’t think she can,the main treatment for this is essentially a spay.

[@jimcarson2977]

'' spay '' is word used for animals, not humans @@bugloverspiderlover8490

[@TopperPenquin]

Just remember that your hormones after child birth will be doing backflips. Just be aware of this a recognise that with mental discipline you will be in command of you... cause you are a Irwin.

[@d.a.candhousewifeblues]

Seriously? Many women have this condition. Your not special and this should not be on the news when this world is in so much chaos and there are more important newsworthy topics.

[@TopperPenquin]

Allow the most beautiful woman on this planet to speak. ❤

[@stephmartin1148]

There are many things going on in the world!! Our bodies are important!! Her telling her story is helping other women to maybe recognize what could be going on with their body and get help!! Having endometriosis can be debilitating for some women depending on which stage!! I have endometriosis and PCOS!!

[@NessyPerth]

Obviously it’s not something you’ve ever had to deal with. Because if you had, you would be applauding every time someone bought this issue to the media. More media attention = more public awareness = more pressure on government = more funding for research = more effective treatments.

[@audhdgamer]

The pain is very excruciating. She is raising awareness because a lot of women who have Endo are often dismissed or are told it’s all in “their head” - many women do not get diagnosed or receive treatment until years later. This is great she has shared her story as it’ll help many women to seek answers.

[@cuteangel7898]

Good grief. She is acting as if she had stage IV breast cancer or a heart attack. Endometriosis affects millions of women world wide. I am one of those! I guess "pain" truly is relative. I guess she wants to stay relevant.

[@Lisa-hu4ot]

How compassionate of you. I’m sure there are different levels of severity, don’t minimize the pain she was in. Heartless

[@brittanyb7212]

I suffered in tremendous pain for 6 years. Bindi’s story was the push that I needed to fight for my own surgery. I had it 4 days ago and was officially diagnosed with Stage 3 endometriosis. I was also asked by my doctor how I lived with that much pain. I am beyond grateful for Bindi for sharing her story.

[@TopperPenquin]

Bindi is just so beautiful and I am sure that this is a worthy cause for her to fight for.

[@TopperPenquin]

I guess I Mae just have her Bach... DA.

[@stephmartin1148]

There are different stages of endometriosis. So the pain level can be debilitating for some!! My dr also told me some women that may have it microscopically can have severe pain while some women that have the highest stage may have no pain! Each persons body differently.

[@NicholleChristineEdwards]

Been there. God bless

[@jtspivey]

Tattoo love