Biomarkers and the IDDB: 2021Symposium

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Dupuytren Research Group

Dupuytren Research Group

Күн бұрын

Пікірлер: 9
@agile5849
@agile5849 3 жыл бұрын
Hi Doctor Eaton. I had a NEEDLE APONEUROTOMY performed by you twice in Jupiter. Each time it was successful and alleviated my contractures. After you retired, I sought out another hand specialist and was encouraged to try Xiaflex. This was a miserable experience with a lot of pain, poor result and a recurrence in less than a year. I wish you were still performing the procedure because I am confidant that you would be able to help me as you did before. I am now contemplating surgery but I know that once I take that step I will no longer be a candidate for aponeurotomy. Thank you for your tireless and unselfish dedication to finding a cure.
@hkmmos659
@hkmmos659 3 жыл бұрын
Great video ! Very important topic, and points out the lack of data !
@ruthadams7803
@ruthadams7803 3 жыл бұрын
Thank you for your work, also for recording and making this public. Very interesting. I’ve a family history, and in past ten years enzyme, radiography and this year surgery. There’s research currently underway here in NSW Australia looking at effectiveness of ray treatment ( began about three years ago I think).
@duplife
@duplife 3 жыл бұрын
Charlie, great lecture! Thanks for new insights and inspirations! Bert
@ivarbrouwer197
@ivarbrouwer197 3 жыл бұрын
Thnx for your research, good work! Thin cords VS broad undefined cords: in my case, the broad undefined coward came young, as an effect of a physical trauma, maybe starting out as simple scar tissue. The thin cords came recent, with nodes and had no cause I could trace back. (I’m below 50 and only my mothers side has reported Dupuytren’s, contractures are limited and not disabling so far)
@kathrynnunnink8138
@kathrynnunnink8138 3 жыл бұрын
What is the difference between dupuytrens curvature & rheumatoid arthritis curvatures?
@kathrynnunnink8138
@kathrynnunnink8138 3 жыл бұрын
What are knuckle nodules?
@miked2301
@miked2301 3 жыл бұрын
Been thinking about DAO’s (Decentralized Autonomous Organization) for rare disease research. Using incentives as motivation for organizing large groups of like minded folks who want to accomplish shared aims. We are stronger together.
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