Bionical Emas - Together Caring for Rare Disease

To successfully deliver life-changing medicines, it is crucial that patients are treated as equal partners in the planning and delivery of clinical development. Bionical Emas are working with patient advocacy groups to ensure patients' voices are heard and that trials and programmes are specifically tailored to the needs of each rare disease community.
To watch the full programme, please visit raredisease.org.uk/careforrare
Rare Disease UK is the official organiser of Rare Disease Day in the UK. It is a campaign run by the charity Genetic Alliance UK, the largest alliance of organisations supporting everyone affected by genetic, rare and undiagnosed conditions in the UK.
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