Breathing Muscle Training for Charcot-Marie-Tooth / PowerBreathe

Hi! My name is Bethany Meloche. I am a writer who also makes videos about living with CMT. I hope you'll subscribe and join me on the journey :-)
Instagram: @bethanymeloche
Facebook: / bethanymelocheauthor
Website: www.bethanymelo...
learn more about CMT: www.cmtausa.org
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[@davidgraham4915]

Thank you so much for doing these videos. Please let us know how it goes with the training. For me, the encouraging results comes with the yearly pulmonary tests showing that there is no decrease in lung function. A positive direction would be amazing of course, but I am happy at least with maintaining what I have... Keep up the good fight!!!

[@LoveJadeyAlwayz]

Can you show us your actually using it? I’m trying to learn

[@SmileyVideography]

Thanks for sharing so How did it end up? Was it helpful. i am experiencing shorten breath these days. And i am thinking to buy sth like that.

[@oakland7474]

Thank you so much for this video. I've had cmt all my life but it took control in my late 20s. My mother has this as well she has been fighting breathing problems for last few years. Now in the last year I've started having problems breathing ive had sleep apnea for the last 4 years but now every day has been more of a struggle. I've went through all different tests on heart and stomach but I'm fairly positive I have the same problem you have so I'm heading to a lung doctor. Please send out a new video or let us know if this is working with the machine im praying it is. Im worried what is next up for me if it doesn't work thanks so much

[@kilopatra30]

Did this work for you?

[@johnarnita9053]

Did it work well long term?

[@MrJagdeep78]

Keep up the training you will notice the difference

[@ridiculousbeats]

Great stuff, Bethany!

[@BethanyMeloche]

Thank you my friend!

[@Gingerforlifeeee]

Can you do a video of your hands and what it looks like picking things up, using the remote, your phone etc. please?

[@BethanyMeloche]

Hi there! I can add that to my list of video ideas, but if I film it, so I understand: what information are you specifically looking for/what are you trying to learn?

[@Gingerforlifeeee]

@@BethanyMeloche Well, I have CMT too 🙂 see, I do not have the equipment to record myself but I wanted to show a friend what it’s like two pick things up, push buttons on the remote, hold the phone and type. Things like that.

[@Gingerforlifeeee]

@@BethanyMeloche Your hands are pretty identical to mine so I figured if you’re willing you are the perfect candidate to record a “what it’s like” I so I can show my friend 😌

[@theHerdingFox]

Don't feel bad about using it. I'm sure like dumbbells it's made to increase the strength of athletes and then they found out that it can also help people with breathing/lung diseases. You can find a lot of videos where people using this device during training. kzbin.info/www/bejne/gInPnaKKeL6WgpI or kzbin.info/www/bejne/iX_JfoquirKjaKc I have asthma and I use it while doing my morning stretching and 2 times during the day while doing other chores like ironing or sweeping the floor.

[@thereddytoons8055]

Did it work?

[@kayswayofflow8064]

Good video.

[@JoannaGoldfinch_Pilates]

So in the end you are breathing in through the mouth, whereas there is loads of studies showing that mouth breathing is not beneficial for the human body, in many ways including face muscles atrophy . So I just struggle to understand how come it's good for you. Should breathing in through the nose be more beneficial for you?