CANCER UPDATE: The Hospital Made A Mistake..

Mostly ranting about the communication side of the hospital, not the nurses who have been taking great care of me !
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[@marshmallow1000]

Never ever feel bad about sticking up for yourself, you have to be your own advocate when it comes to your health.

[@jacobsjungle5676]

100%

[@cathymumper2126]

Soooooo true!!!!!

[@everybodylovesducksauce7158]

keep calling. every hour.

[@jmel5375]

⁰00⁰⁰⁰0⁰00⁰pp⁰pp

[@spirittouchrecords2785]

why is nobody talking about GERSON THERAPY?

[@Thelordsrain]

You’re allowed to be mad, and angry and annoyed at the incompetence and lack of communication. And you still look beautiful Romee. Love to you from Australia x

[@mereej8924]

Same dear Romee, love from NZ xx

[@lilyloveslife2737]

Hi from Australia here also.....🖐

[@adriennecolantonio8628]

I’m so sorry. You should not have to be your own advocate on top of trying to heal. Be the Karen.....this is a health issue....not a Starbucks order. You’ve been more than accommodating. Hell, I’ll call for you and I’m in NY. Did they give you a reason why the sudden change in protocol? You deserve an answer.

[@Jgutin1]

If i spoke Dutch I would call from Texas!

[@teremertz]

Same from Arizona. I don’t know if they treat all of their cancer patients like this, or if it is due to her young age; perhaps there is a cultural disconnect? This makes me very, very annoyed.

[@kaiadavis100]

I was wondering the same. Going from expecting a PET scan to now having two additional months of chemo..? Huge change of plans. I hope she received some answers from the doctor!!

[@tvdsje]

@@teremertz no, it's because our hospitals are on the border of being overrun by corona patients. Doctors and nurses are much relocated to corona and unfortunately this is part of the result. Many patients (even cancer patients) have had their treatment delayed...

[@spirittouchrecords2785]

why in hell is nobody talking here about GERSON THERAPY?

[@LG-qh7jq]

Send them an email informing them that these administrative mistakes are causing you severe emotional distress and this has been affecting your mental well-being. Do not worry about being a 'Karen', this is your health, your life, and if you feel you aren't getting what you need, you have every right to speak up.

[@sarahsidney1988]

Agreed. An email is a good idea. The chances are higher that your complaint is forwarded than if you just mention smth one time to one person. As a patient the hospital has an obligation to look after your health. You are also their client/customer and as a business they should not be making these kind of mistakes.

[@heidi1651]

Having a social worker on your cancer care team can also help a lot to advocate and keep the rest of the team connected for you.

[@Missing_Xindi]

I’m so sorry you are going through this You are not being a “Karen”. You need to advocate for yourself. You need a “care” team at the hospital. I’m sorry they are being uncommunicative.

[@irishpm01]

I am so sorry - when my children were little I would be a raging beast. Now that it is me dealing with dr issues it is exhausting

[@dreamdivine256]

Oh for fuk sake give up on the Karen crap..it’s so over now.

[@Missing_Xindi]

@@dreamdivine256 That is really mean. Romee said it in the video - and it is heartwarming to see all of us tell her that is not the case. She is also in the Netherlands and they may have a different perception. Be supportive.

[@dreamdivine256]

@@Missing_Xindi umm no I wasn’t being mean..I’d never b mean to her or actually anyone who didn’t deserve it..I’m just so over people making out all Karen’s r mean..it’s kinda degrading....I only wish Romee all the best n pray for her to b cancer free.

[@alicet5123]

Karen has been made into a term to stop women from complaining.

[@pb5640]

Call the administrator of the hospital and lodge a complaint you’re not being unreasonable!

[@barbc.3093]

I'm a medically retired Oncology RN. This is NOT acceptable treatment to you, especially when your health depends on your PET scan results!

[@tracyrhymer6639]

Never be afraid to call. The first time they didn’t call you, you should have called them. They are not the ones going through this or dealing with the stress. Take your care into your own hands, nobody cares about your health as much as you.

[@reneerunyan3583]

Raise hell, the least they can do for you is take care of you and manage the details of your treatment.

[@ejwis1]

My husband has Crohn’s disease. I’ve had to stick up for him so many times as we go to the hospital. My advice to you is this don’t be afraid of being aggressive stick up for yourself because they won’t.

[@chermc8467]

Ppp

[@ninahorn]

I haven’t watched the whole video yet as it’s only been up for a minute but Romee you are totally rocking that wig!

[@artvelcro]

I was in the medical profession for 42 years. The fastest results is to go straight to the top ( hospital administration ), with a written (certified) letter that someone has to sign for , with your detailed events leading up to your letter. In my opinion, that usually gets the fastest results cause administrator don't want the bad press. Bad press=fewer patients=less $$$.

[@kx8031]

Or they need to do their jobs. Some jobs needs to be exposed and from their management needs to revamp their polices and customer service.

[@Conceptcreator]

honestly, I think anyone would be pissed. It had to be annoying, even more so when it is a serious matter like this!

[@chupkar1]

I agree 🙏🏾

[@katiesfarmhouse]

I'm beginning to think this whole "Karen" thing is just another weapon to use against women....You were in no way aggressive or unpleasant. Just assertive- 100% appropriate. Your truly so pretty, so lovely, & so brave. I'm an old lady, & I can assure you that this will all be behind you before too long & you'll be even stronger & sweeter!

[@conor7187]

"I don't want to be a Karen" 😂 Trust me, this isn't a Karen type of concern. You're completely right

[@Goateduzi]

Big facts. Lol she’s funny for thinking she was going to be a Karen tho.

[@julieannemichelle]

I agree, you shouldn’t have to go through this. It’s so unfair.

[@lilyem97]

Right when you said you looked like shit in this video I was just thinking about how nice you looked. :( I hope you do start to feel better and I hope you start getting some better care from your health professionals!

[@dot4464]

Exactly. She looks amazing.

[@timmcvicker5775]

Unfortunately, this seems to be a universal problem.

[@arosewillbloom]

I'm sorry girl. That's so not professional for a hospital to do. You still look beautiful by the way!!

[@woodchuck8017]

Romee, you're not a Karen. You're just trying to take care of yourself.

[@alquinn8576]

+1, it's not being a Karen when it's life-saving treatment on the line

[@mscanadianbakin]

I would be beyond frustrated too. .And why on earth is someone asking if youve gained weight ?

[@marieel3225]

Romee, my boyfriend had a rare type of lymphoma and he is officially cancer free and in remission today. Wanted to share to inspire you to keep fighting. It is possible

[@christyb7455]

Congratulations!!❤🥳

[@marieel3225]

@@christyb7455 thank you! I have never had better news in my entire life. He is only 27

[@kimstone4914]

❤❤❤

[@christyb7455]

@@marieel3225 You're so welcome!! He's so young, I wish you and him both a long happy life❤

[@jahanmq5959]

A big congratulations!! I am 27 as well, about to donmy 3rd chemo!! So I have hope! Thankyou so much for sharing!! ♥️♥️♥️♥️

[@HoliTalksAboutStuff]

Romee, i understand how you feel with hospital miscommunication, While i personally aren't going through any medical conditions. My father passed in 2018, and what we were told then really effected the whole experience in a way that i'll never forget. On March 31st my dad went to urgent care due to issues breathing, They did some scans and came back and said that he has been diagnosed with lung cancer, and that he needed to be transferred to the hospital that same night, i got a phone call from my mom saying that he'd been diagnosed with cancer and i couldn't contain myself. I started bawling and bawling, While i was crying my eyes out she handed the phone over to my dad where he said "hunter, you know that i'll be alright, these doctors know what their doing, your coming to the hospital and your gonna see me and everything is going to be alright" I said "Alright dad, i'll see you when we get there". My mom had told me to pack some clothes while she was headed home to get us, We took showers and got ready, She was hoping to get home before they transferred him to the hospital. My dad being my dad tried talking them out of taking him then and was hoping they'd let him stay until we got there. He called my mom and told her they were transferring him now. So, when my mom got home we drove to the hospital and he'd beat us before we got there. As we walked onto the floor we listened to maybe hear him talking, we heard him cough and immediately knew where he was. I walked into his room and gave him the biggest hug i've ever given him. After that it was around 12:00 Midnight on Apr 1st. I remember telling my dad "i wish this was an april fools joke" But it clearly wasn't. On the morning of the 1st, we learned that he didn't have cancer and that the other hospital misread the scans, And we were told that he'd only need IV antibiotics for about 2 days and that he'd be on his way out. 2 days go by and he's still in the hospital. The doctor ordered a tissue graft? to grab tissue from his lungs to make sure there wasn't any cancer in there. When he came back from that he was tired, slept most of the time.. didn't really eat much and was restless alot. On the night of Apr. 4rd we went home and took shower's got cleaned up and planned on heading back to the hospital first thing in the morning. As we were 4 miles from the hospital we got a call from my dad, and he sounded congested, nervous, freaking out saying "You need to come get me out of here" "I cant breath help me!" "hurry please!!!" he was acting this way due to a lack of oxygen and choking on his own blood because of the tissue removal they did a day prior. When we walked into his room, he was sitting on the side of his bed, with his IV pulled out. Blood all over the floor, The emergency call light blinking, and noone in sight. After trying to calm him down it just kept getting worst. a nurse from the ICU came in a shoved a suction tube down his nose to try to pull all the old blood out of his throat and lungs, He obviously reacted horrible to that and due to that they had to put him to sleep with some drugs (that i'm not sure of the name) The nurse said that he was going to the ICU with her. So, we started packing out stuff to move to the ICU with him. I've never been through so much stress in my life at this point. After my dad sat in the ICU asleep for a few hours. he woke up and my older brother came in and they ate a birthday cake from my older brother's daughters birthday. That night everything was going great and the ICU nurse said that he might be able to go back to a normal room. So, with us feeling fairly confident that he'd be alright under the care of the ICU staff and nurses, we decided to go home because we had been at the hospital for 3 days without showers. So, we go home get showers get a bite to eat and go to bed. We get a call at 12 midnight saying that he had tried to get out of bed and fell on the floor, and we were told that he layed in the floor for.......... 30 MINUTES, without oxygen... 30 FUCKING MINUTES. and someone SOMEHOW didn't hear the machine alarms going off, or the fall at all. So, we headed back up there as soon as we got that call and sure enough they put him on the ventilator. we stayed awake waiting to hear something from the doctor about what the hell happend, and where to go from here. The doctor said that they wanted to try to stop the bleeding that occurred due to the past biopsy's. They took him back and came out about 30-45 minutes later and found nothing, said that everything "looked okay" and was hoping the bleeding would stop. Well, it did for alittle while, but after a day we noticed a bright blood look coming up his vent tube, and we knew that it wasn't old blood due to it being a light color. So, they wanted to go in 1 more time to try to fix everything. At 4:45PM on April 13th they called him back. We went into the cafeteria and i tried to eat something, i had eaten a subway sub and headed back up to his room to see if they'd heard anything. They said they hadn't, and i was still hungry so i decided to go back and grab another sub, i went back to the ICU and when i walked into his room my mom was at the door and said "he's not going to make it"... And i cannot express the shear... shock... disbelief... feeling that the world is crumbling beneath you feeling i've ever had. Trying to hold on composure long enough to say my final goodbye's to my dad who had been my best friend forever, he started teaching my how to work on things when i was 4 years old, he started teaching me how to make fires, teaching me how to cut the grass, weedwack and all the essentials that you need to know in life, and no matter what words i'd used in that moment, it would've never put all that he's given me into the proper light. the moments when they were unhooking the vent, essentially his lifeline, there's a feeling that comes with that, that is so.... crazy? indescribable? its just a feeling that you only have 2 times in your life. on one hand i was happy that he wouldn't be suffering anymore, but on the other hand the thought of never being able to talk to him again really started to set in. I tried my best to not cry around him before he passed. But, it was the hardest thing i've had todo. Then he took his final breaths and that was it.... if you read the whole thing, thank you to the bottom of my heart. It felt good to be able to explain this story, even if noone sees it. It's nice to get some of the anger from the event off my chest. Thank you!

[@jahanmq5959]

May your beautiful father rest in peace. ♥️♥️♥️ I hope you are doing well. May god bless you 🌹🌹!

[@HoliTalksAboutStuff]

@@jahanmq5959 Thank you so much! Its gotten alittle better, but it'll never be the same without him around the house.

[@jahanmq5959]

@@HoliTalksAboutStuff :( ofcourse especially when he was such a great model for you! I have learned fo appreciate my parents and I see them as my angels! They are looking after me so well even though I known they are sad deep inside for what I got diagnosed with (cancer) at such a young age (27). So I cant imagine not having my angels around in the house. I believe when we all die we will re-unite with our families. Although you might not believe, I really hope that what I believe in is true. As there are too many people suffering, there must some sorr of heaven for us humans. Anyways.. sorry for blabbing on.. I really wish you a long life filled with happiness :). You will get married and create your own family and pass down everything your dad taught you. And one more thing, you yourself is 50% your dad (in terms if genetics/DNA) sooooo in a scientific or factual way he is still in the house with you love.

[@nancybeveridgetaylor3256]

I read through your whole post. Thank you for sharing your experiences. I am a retired health care worker. I was a Hospice case manager for years. The treatment that your father and your family endured was utterly unacceptable. I am so sorry for the trauma that all of you experienced. Bless you. If you feel that you want to, your local Hospice (if you live near one) usually have post loss grief counseling and support groups that can be really helpful for processing grief and some have counseling that directly deal with traumatic and sudden and unexpected death as well. A lot of Hospices offer those services at no or very low cost. ❤

[@HoliTalksAboutStuff]

@@nancybeveridgetaylor3256 Thank you so much, for taking the time to read this. We had looked into counseling but hadn't went as far as doing it. Looking back id say it was one thing we needed. But, while we're not completely healed. And quite frankly I don't think I ever will be. I certainly feel better than I did 3 years ago. Thank you for your kind words, it means so much!

[@Doesntmatter20]

I think that this is unacceptable ... I do have a lot of patience: especially with doctors and all but this is just stressful!

[@sch728]

That’s so inconsiderate. Doctor’s offices and hospitals should be the most compassionate, considerate and prompt people. I enjoy your videos. You have such a great attitude and perseverance about you. I hope there next couple of months goes by quickly and your next pet scan comes out clean. Hang in there! ❤️

[@nancyjackson8886]

As a nurse stories like this drives me crazy. No patient should have to go through that. She’s right, her life is difficult enough she shouldn’t have to go through this kind of stress. My heart really goes out to her.

[@jillbecker8651]

I so agree Nancy...another retired nurse...

[@cathycrochet7767]

I'm a patient and sometimes certain hospital systems are continually failing us as patients, like she said, she is not the only one who struggles extra because of the poor communication. Thanks to good nurses who help us through.

[@dont_harsh_my_mellow]

I agree. I'm a patient. I had to beg and almost cry over the phone for people to take me seriously. I'm always dismissed as anxiety. But you don't know if something is actually wrong with you or not without testing. I went to ER with neck pain one time. Doc and nurses said it was anxiety. Forced me to take lorazepam. Scan comes back...turns out it's a sprain or pulled muscle. Wow.

[@joudialhomsi5647]

I'm praying for u young lady

[@margauxperochon452]

Romee, is it possible for you to find another hospital? It’s good to have a second opinion, if you can afford maybe it would be good to switch hospitals...and it’s another subject but you don’t look swollen at all, on the opposite you look very pretty (and the wig looks so good on you ♥️)

[@jackienaiditch7965]

i felt my blood pressure rising, just hearing about what the hospital put you through! You absolutely shouldn't have to deal with all that in addition to the cancer. It's shameful. Also, I hope someone gave you a good explanation about that huge change in plans (from a PET scan to more chemo). That's a very big deal, and you deserve some answers. You're entitled to vent, be angry, sad, whatever. I sure would be, and I'm a hell of a lot older than you. I was blown over by the kindness of strangers, sending you those cards and gifts. It gives me hope for humanity, as we all are going through our own version of these difficult times.

[@jessicaandis4494]

Advocate for yourself and your health care. The doctor should be giving you a written out plan of care for you to agree to.

[@emaiser]

Unfortunately, that’s a universal issue. I had to be my mom’s advocate when she had breast cancer. I was a only a teenager and it was infuriating to deal with her medical team but I’m glad she didn’t have to stress about anything and she could focus on herself

[@samuelsmum100]

Never apologise about wanting information about your treatment your health is at risk do you have every right yo be annoyed

[@lolaglm]

I literally was admiring how beautiful you are when you said that you didn't look good it made me so sad. You are beautiful please never doubt of that

[@signsfrombeyond4863]

I know! That's exactly what I was thinking. I always notice how she has a perfect nose and beautiful complexion. It's sad how women are trained to only focus on the perceived flaws instead of all the beautiful things about ourselves.

[@lisadavie5819]

Shes naturally beautiful, one of those lucky woman who Dont need to even try. x

[@signsfrombeyond4863]

@@lisadavie5819 It makes me cry. I hope she can get through this and have the rest of her beautiful life ahead of her.

[@gigglesandhugs5690]

you are correct this is not the time to have the extra stress. However with medical stuff you have to be your own advocate and this is the time to be a "karen" this is your life and your decisions not theirs. You are a client paying for a service and deserve to be heard.

[@BethC458]

I was just thinking how pretty you look. I’m sorry you’ve hit the “wall”. I hope it passes soon. 💕💕💕

[@depresso_whentheresnocoffe5877]

I thought the same😂 I think, that your hair looks really great!😍

[@dalhousiekid]

Complain to the state health board as I had to once, in writing. It went on the doctor's record.

[@goranadzino5723]

You became so dear to my heart! Love from Bosnia..

[@shradhabatra1158]

You're the strongest person I have come across! And everysingle day I think about you and when you don't upload I feel concerned! But you're so so positive. I really wish I could give you a very tight hug and tell you it will be okay soon. You're so so strong that I know you'll get through and we're with you standing there to support you Love you so much from Indiaaa❤ Stay strong and we'll get through thissss very sooooon💚💚💚

[@CarilynnSuzanne]

Such a beautiful and warm message! 🌸🌷🌺

[@cynthiamccafferty5652]

I Love watching you. You are so positive and absolutely adorable. Stay strong, you got this! Cindy- CT USA

[@marjodegoeijuiterwijk8925]

Romee, misschien een ander ziekenhuis? Ik weet niet waar je heen gaat maar dit is super slecht. Juist bij jou moeten ze er bovenop zitten. Wees alsjeblieft ook zelf wat assertiever, niet wachten tot zes uur. Gewoon om vier uur bellen, zit ze maar achter de vodden. Lieve groeten puit Gorinchem.

[@oskarshamn67]

You are right to be mad at the hospital who cannot give you the answers they promised! And you look great in that wig!

[@Lilybet1316]

That’s awful to make you worry and feel confused on top of dealing with Covid and cancer and everything. We support you and you are NOT overreacting you deserve better care! 💪🏻

[@sahanaraghuram3275]

Hi Romee! So sorry to read this happened to you. Take care ❤

[@xristinas2767]

Girl you have to find a doctor. Pay for a outside the hospital appointment with a doctor who you can trust and who collaborate with the hospital. If it is possible in your place (i am from Greece) please do it.

[@Dysfuctional101]

I completely agree. Always better to have a second opinion.

[@neusribasmoll]

I wish you the best, Romee. You are so strong!

[@Dreamer-by4nk]

Call the doctor. Get the home phone and call. Shame on them. And don’t feel bad. Go girl!

[@violetvallance2062]

I had a fat Face too when I had chemo. I looked like a hamster with stuffed jowls. Once the steroids stop you get your real self back. Hugs xx

[@joannsmith3589]

You're not a Karen... I am sick and tired of that new label to demonize women... as if we did not have enough of those labels, as women, to carry around... you're not being racists. they are simply not doing their jobs...

[@colleenrichardson5339]

Never feel bad for standing up for yourself, baby girl 🤍🤍🤍

[@gailwright4326]

Your English is perfect. You are so patient. You look absolutely beautiful. Sorry you are going through this.

[@shetlandsheep3081]

‘Karen” is often just a misogynistic slur to shut women up from ever standing up and speaking out. Never apologise for advocating for your polite and patient requests about your treatment. Your situation is unacceptable because it’s not one that they can’t quickly and easily remedy - it would be different if it was something trivial, or something very hard to solve - it is neither. Having been through cancer and chemo, generally things went smoothly, but there have been one or two occasions where the medics really ballsed up badly, it does happen and they need to know that, not in a nasty way but respectfully and clearly, so that they don’t mess up for other patients, esp as some of their patients might not be as articulate, so you are their advocate too. Sending much love and solidarity x

[@tasharae215]

girl don't ever ever worry about being like this to the doctors. this is your life they are jepordizing. you do what you need to do! Love from Louisiana

[@lambulance]

This is a sweet comment and I fully agree. Hello from Seattle! :)

[@marogers01]

I’ve been through this with a couple of family members, and advocating for yourself sadly is a full-time job. One thing that might help is if you can designate a friend or family member as a medical fiduciary who can make calls regarding your treatment on your behalf. (I’m in the United States, but hopefully you have something similar where you are.)

[@Andearea]

PLEAAAASE write to the hospital’s CEO! You should absolutely NOT be worrying about ANY of this. My husband wrote to the CEO of our hospital regarding an issue we had, and OMGGG the service we got ... people (staff) need to be held accountable for the roles that they are responsible for, and sometimes they have to be micromanaged unfortunately. Sounds like some of the staff need to be poked with a cattle prod. Pretty sad:(

[@cherieknopf8536]

Don’t feel bad being your own advocate. You’re doing exactly what you should do and hopefully things will turn around with them being more responsive to you.

[@Dysfuctional101]

Just started watching but wanted to say first... hope youre ok girl! Hugs from Ireland ☘

[@jessicadavey1607]

There is no excuse for the failings you have had in your care. I hope you get some answers soon. Make a formal complaint also because this isn't like they left a full stop off in a letter, this is literally concerning your life! Sending you love x

[@ilonahiemstra1147]

Hoi Romee. Ik ben zelf verpleegkundige dus ik weet hoe dingen gaan en ik snap dat dit soort dingen kunnen gebeuren. Maar je moet dit echt met je arts bespreken, aangeven wat er gebeurd is en hoeveel last je hiervan gehad hebt. Je zegt dat je geen Karen wil zijn en dat de wereld niet om jou draait, maar Romee, jouw wereld draait wel hierom! Het is te belangrijk! In een tijd waarin alles al zo onzeker is is goede communicatie en waar mogelijk duidelijkheid verschaffen zo vreselijk belangrijk! Dus zie je zelf niet als Karen maar kom voor jezelf op waar nodig (al hoop ik dat dit niet meer nodig is!) en bespreek dit ook na met je dokter. Wat je zegt, je hebt al meer dan genoeg om je zorgen en druk over te maken en dit heb je echt niet nodig! Heel veel sterkte en zet m op!!

[@MR-sx3od]

You deserve so much better. Is there anyone who can be a patient advocate for you?

[@ineshadr9070]

That really sucks! When I was going through my treatment (in Belgium) , I get a list with all the upcoming treatments for 2 months. I can imaging how stressfull it is that you don't get any look into what is gonna happen next. Really shame on that hospital, they doing it totally the wrong way. Don't let them shove you off! Btw, Romee, your hair looks very nice on you.

[@francessheldrick1563]

I'm sorry your going through this. It's okay to be mad I would be to. Takecare. 🙏🙏🙏🙏🥰🥰🥰

[@babiesbytheshore7816]

Been there.... it puts soooo much stress on a patient when they wait to hear from their doctor or anyone in that department with an update. So sorry you are dealing with this... keep calling them abs get an answer .. you deserve a response.

[@jahanmq5959]

Me too, i am traumatised when I think about how the hospital inwent to treated me.

[@Susancshell]

Im so sorry sweetie. You are beautiful. Unfortunately this is how cancer treatment goes... lots of waiting, no communication, no answers. My son and I have both undergone cancer treatment in the last 2 years. It sucks and you have every right to be upset, angry and frustrated. Do something special for yourself and reach out to your friends and family for support. Sending good thoughts, prayers and hugs!

[@KayaMarissa]

wow, you're so strong Romee. keep your head up, everything will be ok. better times are ahead

[@cliffs5810]

They didn't have the guts to tell you that you were not done with chemo. That's sad!

[@mandiac1532]

Medical staff sometimes are very lazy and need to do better!!! I work at a hospital and I see this a lot!!!! This is people’s lives and to be treated like ur a number and not a human is sooo unacceptable!!!! Especially going through what ur going thru. Little more compassion would be nice!!!! Stay strong beautiful!!!!!

[@karbear26]

I’m sorry the communication between the hospital is poor! I’m sorry you had to wait for a week and a half to find out no pet scan and 2 more rounds of chemo! I can see how that can really mess with you mentally!! You had all these things you want to do and more chemo is messing with it! Hope the next 2 months goes by quickly for you and your pet scan then shows lots of improvement! Your wig looks really nice don’t worry about the swelling you don’t look fat!

[@herbertgoldstein1156]

I would recommend to really do pressure on the Hospital and if they dont communicate with you, then change the Hospital if possible. Oh and i would also consider to maybe get somebody to help you with all the appointment stuff, treatment plan etc. So you dont have all this stress and you know that there is somebody taking care of it. Stress is really bad and can worsen the health condition of a person especially when the person is allready sick so its no shame when you get help in this sense! I wish you all the best!

[@llgraffman]

Hi Romee! I've been following your journey for a little while and first and foremost I want to celebrate you and your strength through all the things you have faced on your treatment journey. Patients like you are the reason why I loved working in a hematology/oncology office for three years. I am currently in nursing school and want to be an oncology nurse when I get my RN! Your resiliency, as well as so many of the young Hodgkin's patients I have gotten to know over the years, inspires me so much. I know people throw the word "inspirational" a lot at people experiencing cancer - but I assure you it's not a cliche, it's the truth. Now, onto the scheduling component - I am SO frustrated for your sake. I don't know how it works in the Netherlands, but in the US we have dedicated schedulers and care coordinators that work alongside nursing staff and doctors/providers to create a patient's treatment schedule. Unfortunately, as there are so many moving parts in the puzzle of cancer treatment, sometimes less organized offices can miss things and screw up a schedule, which totally sucks. Or, you just may have gotten the wrong nurse or scheduler at the time who may not be the best workers (there are definitely nurses you want to have on your team, and others that may make way more mistakes or are less hard-working). My advice to you - am not sure if there is a patient advocacy department in your hospital (we have them in the US) but I would call them and tell them all the times the hospital screwed up your schedule or did not communicate properly. Just because they are oncologists, or nurses, does not mean they are infallible and always do things correctly for the patient. It should NOT be your responsibility to do this whatsoever. Hopefully, by you voicing your frustrations and calling them, and holding them accountable, this won't happen in the future. Either for you, or any future patients who may have a similar experience you have. I am thinking of you, sending good vibes, and hope this second course of chemo shows some response. LauraLee

[@Karenklutz]

Vent, sweetie!

[@sarahmian5264]

Wish you lot of patient courage for your chimo next 3 days..

[@maria_tsamadou]

girl you were on my recommended , I my self suffering from cancer for the last 4 yrs , you are allowed to have these feelings but remember, take a minute to breathe and then back to fight this with smile even if you don't feel it . You will remember all these as a bad dream soon . Sending lots of good vibes to you from Greece

[@lilianacastillo4663]

The waiting, the agony, the anxiety of not feeling cared for being a cancer patient...not fair and not something you should be tracking but instead be guided!!

[@commonsense354]

I'm so sorry you have this stress on top of everything else. You are not a 'Karen'. You are a human being who has every right to be kept up to date about your care. I hope communication will be better for you going forward! Praying for you🙏

[@loraleepooley3669]

I’m so sorry they’re putting you through this! I hope the communication with the hospital improves. Love and prayers to you💕

[@lettermansgirl90]

Honey, I’m sorry. This is inexcusable. There in no excuse for that. Absolutely none. I don’t even know what else to say.🤯 Always thinking about you❤️🇨🇦

[@Cactus_Reef]

Like and subscribe to this beautiful girl. Let’s get her subscriber count over 100k and show her we are with her on this difficult journey ❤️ love you Romee...you are not a Karen. Keep fighting 👊🏻

[@kairek5039]

Unfortunately have had a few occasions when doctors have made a 'mistake' or forgotten things here in the NL as well. I don't know whether it's because they're overworked but it never happened in my own country. I'm a very patient and understanding person but have learned to be much more pushy and aggressive in this country (I do love it here though). Sorry you're going through this, hope you get the care that you deserve!

[@fashonlover857]

Me too, my experience with doctors in NL has been terrible (sadly), so i understand as well

[@shirazjudeh507]

Your Amazing and Beautiful! LOVE YOU !!

[@karrysmith9336]

I'm so sorry you ate dealing with this mess. I would have unleashed on them for real!

[@L3dprinting]

There's nothing wrong with your face don't worry it's temporary it's not forever you will get through this sorry your going through this un-necessarily... 🙏😔😤💔💗💝❤️🧡💛💚💙💜

[@cynthialudford42]

Girl. My 80 year old father is having the same issue with his oncologist. He’s had to wait in excess of two weeks for pet scan and biopsy results. You have to be tough and advocate for yourself. Do not lose your resolve. You have rights too!

[@kellyparaski4262]

Ugh so awful the horrible communication I’ve been dealing with similar circumstances lately & I feel your frustration but literally I love watching you, you’re so strong and just amazing!!!!! I know you got this and sucks you have to do two more months but it’ll pass and pray you get good results w your pet scan!!!

[@foxylady9110]

Just a little bit longer, you can do this...❤️

[@martinescincotti5385]

IDK why the whole Karen thing has gotten so outta control? So all women have to be "good little girls and shut up?" I get it when a real "Karen" thinks she's an exception to the rules but you are so far from a "Karen"! Be the squeaky wheel! Be loud! Get mad! They are totally out of line and they are making you feel worse when it's their job to make you feel better! As a former cancer patient I vividly recall how hellish it is to wait for test results and you deserve to receive the care you are 100% entitled to without having to jump thru hoops to call and cry and have them lie and hang up or put you on hold. Not okay! If this continues please get someone to help make calls for you because they need to be harassed and held accountable! Hang in there! I love your videos and you are so fun to watch - it's amazing how you make entertainment from life intensities. You are a hard worker and uniquely creative and you will succeed in anything you put your mind to! Thanks for showing the gifts/cards! It's great to see you smile and open your gifts!

[@bcabmac]

You GOT to be after them!! Don't feel guilty. This is your life and letting things go can be devastating and cause suffinf for you. I'm praying for you.

[@L3dprinting]

What hospital are you with? I will demand in a nice way that you get the treatment you are entitled to this is your life there messing with... Its not OK! Stay strong and stick. Up for your rights, loving sharing your journey, strength will guide you xxx my thoughts are with you xxx

[@irenetaylor3228]

Romee your such a champ you so much remind me of my wonderful niece, she is not doing well right now but still fighting. God bless.

[@jahanmq5959]

God bless indeed.

[@devynlooloo]

She's unhappy with how she looks while I'm over here sooo jealous of her skin!! 😱 It's so flawless.

[@schewitt1977]

I'm sorry you have been going through this.

[@JCResDoc94]

*☼ so bad.* nice work w the self advocacy tho. mad props. gr8 vid.

[@ameliaairhead2692]

that sounds really frustrating romee - no wonder having a cry isn't working. sometimes you can just get too p*ssed off to cry properly and then crying in the first place only makes you more p*ssed off and it turns into this big p*ssed off cycle. which is totally understandable when you are being messed around so much. what an absolute pain in the arse it all sounds like.

[@kx8031]

I love listening to you speak in your native language. You speak English so well. I love your nail color as well. Keep advocating for yourself. Sorry you have to go through this.

[@erikak8187]

I don’t know how you do it. School and treatment at the same time. I wouldn’t be able to handle school. You really are a warrior and resziliant, and a fighter. Beyond inspirational.

[@assi4433]

Hi precious you are definitely not a Karen I'm in Scotland and my husband had bloods done last October to check all is well after having bladder cancer and bladder removal still waiting on results and due full scan in march but we dont see it happening makes us so angry we know covid is really bad but its people's lifes they are playing with so you shout as loud as you can and stay your positive beautiful self always in our thoughts

[@rheamehra9728]

hey, I live in the netherlands... this has happened to me so many times. it caused me so so much distress I can't even tell you. Please speak up, especially as a dutch person, please stand up for us! I feel so sorry for you girl

[@helenaaumenta4704]

Call them! Keep calling them! Every day! Can you change doctors? It’s ridiculous that you are having to do this!!!!! You deserve so much better!!!

[@janicemichaloski3319]

Hi there I'm sorry you are dealing with all of that hang in there girl I'm wishing you well❤️

[@elenaivanova5029]

Change the doctor. !!!! You deserve all the attention in the world. If they are on your place or their daughter then they will understand . What goes around comes around! And the reason is they to learn their lesson.

[@annalg8346]

As a nurse student from the hospital you go to, its really really bad to see that they didn't inform you better or communicated such (hard) info in a terrible, unpersonal way. During my internship in that hospital, I often found that doctors usually forget such important calls with patients outside the hospital or with family. Anyway, I hope you feel better soon and that the chemo is easy on you❤

[@Dysfuctional101]

Wow. I have experienced this,my friend had cancer, I went to all the appointments. The nurses gave 110% every day worked so hard and were so caring. The doctors and consultants?....they messed up everything and never remembered my friends name or anything about her ..and never called. Thank you for the job you do! Hugs from Ireland ☘