Cause The Wave: Eddie Vedder and the EB Research Partnership

[@scotthall2191]

Ed has a heart of gold

[@scotthall2191]

Marlene McGovern Thank you. The awareness, for a heartfelt, meaningfull cause, pearl Jam, (Ed) shares with the world, will help destroy the pain, physical, and emotional, that these children have to face daily. We all Believe.........

[@scotthall2191]

Marlene McGovern children will live....

[@bananasplit_buns7270]

He does ahh why is Eddie so cute

[@JavierManno]

Mr Eddie Vedder, Everything you do, you do well. you're a very good person, God will always be with you.

[@jamesburns2724]

With the exception of being a Democrat

[@bigmuffshoegazernon6740]

True, that Eddie is a leftist, liberal, and a democrat. BUT, I truly believe that God can use anybody for his will and if you don’t believe me, look up King Cyrus in the Bible. I’m sure some of y’all will be offended by my spiritual faith in God and for that, tough crap

[@alicepal5455]

Drop the Politics Eddie is a Good Man ❤​@@jamesburns2724

[@CarlaMariaSimaoSantos-xj4or]

Mr. Eddie Vedder I got thanks you so só much for your loving help with kids with EB. My belovved beatifull nephew , a loving warrior, passed away with 6 years old. He kept on fighting and enlighting his all loved ones untill the " end" . There should be a Mr. Vedder on every country of out Planet.. Bless you and all those you love forever and ever. Thanks you so much for helping these brave beautiful warriors. Sincere loving hugs always. 🙏✨💙🦋✨

[@Kman31ca]

I came here, because I'm an Eddie Vedder fan. I'm leaving, knowing of this horrible condition, I've never heard about before. As well as a way to help. Eddie, you WOWed me with your music. You WOW me with just how good a human being you are. It's very humbling. Thank you.

[@julieinmpls]

I am proud that Jakub Tolar is Dean of my medical school. He is so hard working, passionate and genuine. And you too, Eddie Vedder!

[@roryemmons7929]

I got to work on this wonderful video with these wonderful people. We shot this in PJ's practice space. Meeting these kids was to meet someone who truly lived and took advantage of every single waking moment that they had. They were funny, lively, and you couldn't walk away without be affected by this. Mr. Vedder made this all happen. When it was time for his time on camera he said we should be shooting more stuff with Dr. Tolar because he has way more interesting things to say. Someone told him "if we don't get you into this than no one will watch it!" and then he reluctantly agreed and did fantastic on camera. My impression is that Mr. Veddar is a humble person who likes to smile and bring people joy. We set up our gear and were shooting when all of a sudden I realized the guy next to me was actually Eddie Vedder, who I listened to all through my teen years as a grunge teen. He smiled and asked quietly if everything was going well. He didn't need any attention, he just showed up and blended in to see what was happening. I wished I would have gotten a picture of me and Vedder but honestly it was enough to learn that Eddie is a person who is humble, and a passion for making things happen and has no fear of not being in the spotlight. I don't know if the kids ever listened to his music, but it didn't matter to him. He joked around with them and made them smile, and it seemed like that's all he cared about in the moment. Plus it was great to learn about this condition (also heart breaking), but meeting the kids still effects me to this day. I only got an afternoon to meet the guy, but it was enough to learn he's one in a million. Though not that he would admit it! Sometimes you meet your heroes and they exceed expectations. Also Eddie was right. Dr. Tolar was really really interesting and fascinating to talk to.

[@Katy-sh3ru]

Thank you for sharing ❤️

[@SleepFan771]

It's great that Eddie can voice these great and remarkable causes through Pearl Ja...WHO GAVE THIS A DISLIKE?!

[@achair650]

Ted Nugent made those dislikes, don't give up on humanity yet...

[@gardensofthegods]

Sometimes I think people get all confused about the like and dislike buttons and maybe if they're new to the internet maybe they think disliking it means that they don't like the disease ... ? That's the only reason I can think of .

[@N1Kki7]

You're a star Mr.Vedder.

[@guyhamel7102]

Eddy Vedder as President, that would make the WORLD great again!!! Love you Eddy from your Canadian friend!

[@d-204]

How can anyone thumb down something so inspiring and hear felt?

[@franciegibbs1404]

wondering that, too. people with no hearts?

[@lucimarsouza8201]

Eddie Vedder!!! I love you more.. What a beautiful attitude.👏👏👏❤️

[@tejodcruz]

Made my donation, thanks for supporting and standing by such strong people, Eddie. Empowers us all to do something greater.

[@SpreadingLoveHereNow]

Thank you Eddie for all you do and your huge heart. Your compassion, integrity and love are really changing the world.

[@billyb8306]

eddie vedder is such an amazing human being

[@thatcrazywrestlingmom6144]

My son is a Senior in HS and plans to become a Genetic Engineer. This is a perfect example of why he's choosing that path. ❤️

[@gardensofthegods]

Just curious wondering if your son still plans to be a genetic engineer .

[@brandonriddett9783]

Eddie smacks himself in the head with a book, “ can I try?” Eddie,” nooo! Eddie your a diamond to helping make awareness on EB, thank you

[@jamesburns2724]

You’re a good man Ed.

[@Marlenebirkebaek1]

OH my God - Eddie you really are an angel with a heart of gold!

[@champagne2413]

God bless. Thank you Mr. Vedder :-)

[@Joeysutube1]

God Bless you Eddie! Thanks for using that most renowned voice and your presence to help change the world!

[@VelvetGal5]

After watching this video about EB, I used the link that Pearl Jam provided & just donated some money for EB Research. I truly empathize with all the individuals in this video & worldwide who are battling, dealing, & living with EB each day. They are such strong, inspirational, admirable, courageous, brave, enlightening, wise, & full of heart individuals. These strong individuals all have my respect. I've been a longtime fan & supporter of Pearl Jam & Eddie Vedder. I've always admired & respected Eddie Vedder, not only for his music, but the passion, compassion, awareness, & empathy Eddie has for other humans, living souls, the environment, & the world. Eddie is openminded, curious, & is always caring to learn more about the world & putting a spotlight on people, issues, causes, & things that need more awareness. Thank you, Eddie Vedder & Pearl Jam for your EB Research Partnership & for this video. I hope the EB Research organization reach their $5 million goal. I send warm gentle hugs, healing, positive thoughts, & better & happier days for all the individuals battling, dealing, & living with EB.

[@SweetChinMusics44]

I love Ed so much. This is amazing. I almost cried. God bless these people and God bless Eddie Vedder ❤

[@ClauGutierrezY]

I've got vitiligo and most of the times it plays nasty mind tricks on people with this condition, and sometimes i even complain about it even when it is just cosmetical. May God help this people to find their way to healthiness and may he helps us to appreciate what we have whereas we have it.

[@jeff7764]

Eddie and the band are just amazing with all their charities 😍

[@edstoned]

Just amazing the awareness Eddie brings to us in the Jamily.

[@NandaRoxNUShould2]

"I'll ride the wave where it takes me. I'll hold the pain, release me."

[@djtorchio]

Eddie . . . Besides a serious Pearl Jam follower, as I age along with Eddie this guy shows more and more compassion every year. Besides being such a gifted musician, he and guys like Bono of U2 are so admirable to transcend their own successful lives and direct their attention and use their notoriety for wonderful, humane, and (often) misunderstood social issues. Thanks for your humanitarian efforts Eddie!

[@gardensofthegods]

I know I'm only 7 years too late but don't be fooled by U2 ... I used to think Bono and The Edge were great also and saw them in concert in the early 80s but don't be fooled by them as they are really quite the privileged once and don't take no for an answer when they want something like a piece of land that is supposed to be like a sanctuary but they want their mansions built on it ... in Malibu and a little bit of research goes a long way of how they spent years fighting so that they could have that chunk of land which was a land reserve but hey they just had to have houses there because they're ... well , they are rich rock stars . I never felt the same towards them again after the digging and research I did

[@cosmovedder1354]

They need $5million, the same price as 1 Military Drone, or 3.5 Tomahawk Missles. "Priorities"

[@CEMahan]

Amen! It's insane what our government spends on weapons to kill with.....yet they don't spend a dime so they can kill for free!

[@cosmovedder1354]

C.E. Mahan Personally I'm beginning to wonder if the U.S, is really "broke". I'm thinking they just say that so they can raise taxes and throw more cash into the "Black Budget". It's kinda like when I was in high school and I would ask my dad for money(like $20-$50) and he would say"sorry, can't I'm broke"meanwhile there's thousands in his bank account for a rainy day. We are the kids and the government officials are the parents.

[@CEMahan]

Agreed! :)

[@jnthemyst]

Eddies worth over 80 million..why doesn't he give them the 5 million? He can afford it.

[@cosmovedder1354]

jnthemyst That is a very good question. Although I am sure he has given an abundance of cash to multiple charities over the years. If he is really currently worth over 80mil, why not kick in the 5mil. Then again maybe he has already given millions to this charity, and they need 5mil more.

[@justine957]

Sono arrivata qui come molti altri , da fan di Eddie . Non ero minimamente a conoscenza di questa malattia , visualizzato questo video mi sono informata leggendo alcuni articoli ...e quello che ho letto mi ha resa arrabbiata , spaventata ma sopratutto addolorata . Come qualcun altro ha scritto , i capi di diverse nazioni spendono più per gli armamenti di guerra che per la salute dei suoi connazionali , o per quelle persone che vivono per strada ( altra causa di cui ho letto che Eddie si interessa) per i motivi più diversi ... e come alcuno ha già scritto questa E' UNA VERGOGNA . Qualcuno potrebbe dire che è facile per Mr Vedder con fama e denaro occuparsi di queste cause ... ma non è così ! Utilizzare finalmente uno stato di grazie in cui si è per sostenere tutto ciò, è davvero lodevole e troppo pochi lo fanno !! Siamo in tanti suoi fans ...credo si possa parlare di un paio di milioni in tutto il mondo....e basterebbe che ognuno di noi versasse pochi euro o qualsiasi altra valuta al mese per aiutare questa ricerca In bocca al lupo ai ricercatori e speriamo riescano nel loro intento

[@charlyman699]

God bless you Eddy. We need for humans like you.

[@allfortheebchildren6561]

My cousin Quinn had EB as seen in my profile picture. She was the youngest person in the U.S to get a bone marrow transplant. She had the worst kind of EB (Junctional Epidermolysis Bullosa Hertlitz) and died before her first birthday at eight months old. She formed two types on pneumonia in her lungs at seven to eight months and got put on a ventilator, the doctors then found three more types after she died. Her bandage changes were gruesome and extremely painful as most people with EB know. But after about three hours of changing bandages, she would give you a heartwarming smile that would keep you going thought the day. So when you have a bad day or feel like nobody out there understands or feels your pain remember that there was a baby out there who felt so much more but covered it with a smile!

[@Sonofapizzaman1]

That little man is hilarious! What an amazing attitude. It makes me embarrassed that I complain about the little day-to-day stuff

[@PhillipeKnippel]

Eddie Vedder is the MAN!

[@nanettefabros6237]

First I have heard of the disease. Hope putting a spotlight can bring some significant funds to help!

[@angelikabertrand4045]

My tetralogy of falot with interrupted aorta, plus chronic heart failure now at age 58, was and or is no cake walk. But seeing these young, gracious kiddos dealing with EB is A HEREOS PROJECT@ i could never in my mind phantom what pain they have to endure every day. Thank you PARENTS FOR YOUR STRENGTH AND RESILIENCE.

[@masonbanfield2195]

Eddie is awesome hope this can bring more awareness

[@gabrielborgesmartins6053]

That's touching. Goob vibes from Brasil.

[@manoelamachado3014]

Oh my God, that's why I just love him. Great and beautiful attitude.

[@yasmimcorreia4687]

God bless you Eddie.

[@lisacastrodias]

You are a great man Eddie! Love U!

[@sunavila]

A google search says the Jennifer Innes has passed away on November 30, 2018. Rest in peace.

[@Katy-sh3ru]

😔❤️

[@danemonk2892]

This is one of the most horrific diseases ever. So sad. Thanks Eddie! If you have money to donate, this is an awesome cause.

[@jasonkeith9317]

Way to go Eddie!!!

[@CharlieESly]

First thing I've heard about EB. Eddie is amazing for helping to raise awareness, and the EB sufferers are absolute heroes. I hope enough money is raised to help get rid of this skin condition. Keep fighting!

[@adams4240]

Same here, first I'd heard of it too.

[@shayq5463]

Right on, PJ. Total rockstars. In the...non-literal sense, too.

[@leslie8888]

God bless you all. May you find peace and relief from of your pain. Have found a cause that I must follow and do my best to help in any way possible. What beautiful souls!

[@danielteran23]

Eres el mejor Eddie, no hay comparación, te queremos demasiado viejo 😢💘🌹

[@LuKs14]

Keep on rocking, Ed.

[@yegorjr]

Eddie, you are the man! your attitude is increible ! that God lights you for long time to continue to make your music and do the well! Man, i'm sure that your place is guarantee in history and heaven as well. thanks so much to shared with us all you done to show the right way being trough the your lyrics or acts like this! greetins from Brazil! take care man!

[@chrisesquerra8930]

Good job Eddie, god bless you...good luck 😀✌️

[@billybees3796]

That was heartbreaking, I remember as a young kid having a really gnarly poison ivy on my face everywhere and getting into the car before air condition was on and it was hell.I could never fathom what these tough kids go through. I still remember that feeling,people with EB feel that everyday. God bless you all!

[@cristianolimadeoliveira3510]

Thank you Eddie

[@angiebeck592]

Thank you for the awareness, Ive never heard about this before.

[@mywave000]

That's cool that Eddie Vedder gets involved in stuff like this.

[@connieyates7272]

Thank you for this message!

[@rockandcomedy]

Hi I have a friend with EB and I was watching a Documentary called unnatural selection where they are trying to help people by editing genes with CRISPR and CAS-9 I have CP myself and I don't think it can help my condition but it might people with EB I hope it helps in some way I will donate at the site as well. Thank you so much

[@ZachJames]

Bless these kids hearts. Everyone give.

[@thec.e.oofbasedindustries8013]

We need to put more funding into genetic research like this so we can prevent these conditions from affecting future generations. Great to see someone like Eddie doing this

[@Iwtbaf]

I’m crying right now this is got to be cured

[@Jusamused2]

How could ANYONE see this and not be moved to help....?

[@heatherzettlemoyer2412]

God Bless you! Peace

[@cchertv]

Lets donate !!! Because ... we need to help those that we can ...

[@sheldon6248]

Eddie and his wife jill do amazing work for this horrible skin disorder. I use to surf with eddie way back before pearl jam, i always knew he was gonna do something big but i never imagined what hes achieved yet im not surprised. A beautiful human being making a difference 😊❤️.

[@the_grunge_legends]

Ed is amazing....

[@johnhart5557]

Well done Ed use your power for good. The force returned.

[@ElJuanpix1]

Excelente campaña Eddie, tengo una prima que sufre de esta enfermedad y se perfectamente lo que significa convivir con ella, felicito tu labor de querer ayudar en conjunto con los doctores! Saludos desde Chile.

[@MANISOBA]

Gran ser humano Eddie Vedder en conjunto con toda estas personas que se preocupan por la condición de estos hermosos angeles, Eddie Vedder, siempre gran ejemplo en mi vida y asi sera por siempre 🤘🤘

[@felipefunky]

Hail to the brave children and a Great man

[@bmsthrowingsticks1778]

and i complain about pimples -.-

[@itskatrinabebe]

So sweet

[@firvedamodels]

Ed perfect ...given tô fly. Congratulations..

[@beckymcnutt3605]

Great video I have EB also I’m still living for 50 months ❤🎉😊

[@sydneywoitowicz7755]

he’s perfect

[@Sk8terSa5mH20]

that song in the background is what Eddie was strumming in another video of him writing in his house.

[@lucasferreirabarros8086]

Você é gigante Eddie! Meu sonho é ir num show seu ou do PJ, um dia o realizo!

[@Rui_Teixeira_Valente]

Responsabilidade de quem, sabe o que é, hoje! Tks ed

[@josephmiller1941]

And how can you donate without a link?

[@AnettaPizag]

ebresearch.org

[@flor.1288]

really? you can post a comment here, yet you can't type in pearl jam eb research in google?

[@0utlawjase1]

Great video

[@vitor_miranda79]

Great Eddie!

[@cicciwankenobi6242]

I bet all of the thumbs down this video came from someone who drank 5 Pumkin Ales.. 8 Budlights, and a shot. Cause that's me right now... I hit the thumbs down by accident.. my heart really goes out to those kids. I can't even imagine the struggles they have to deal with on a daily basis. Take a step back and take it all in from time to time.

[@LADTAGEx]

Anyone know what song is playing in the background? Its just soo soothing

[@Defluo388311]

its Eddie Vedder - Without You

[@izabeladantas4953]

Without you, from Ukulele songs

[@stephengerman9975]

Give it a listen! It's an absolutely beautiful song, and Ed's voice is just, well, amazing as usual.

[@robsonkelvin2194]

Normal vindo do Eddie ele é simplesmente o Eddie

[@trustenbaker8766]

Gawd I'm just guted watching this!

[@billfrater1948]

Nice one Eddie.

[@MarkWestscoutingmaniac]

Please consider helping...........! I wish oh I wish that the US and ALL other countries would invest WAY MORE money in medical research. We must invest in medical research because we could greatly improve peoples lives and to develop more effective treatments that aren't just more or less "band-aids" that do not treat the underlying issues.

[@Kman31ca]

Yeah, if 1/10 of the amount of money was spent on medical research, compared to military research. We could really make some amazing progress in the lives of children and sick ppl around the globe.

[@Monifessler-x8h]

You have to help the poor little bunnies, but as is always the case, the disease doesn't occur as often as, for example, type 2 diabetes, so the pharmaceutical industry does very little or nothing because they can't make any money from it the poor children! I suffered from type 1 diabetes as a child, but I was able to be helped by injecting insulin because type 1 diabetes is an autoimmune disease! This makes me sad and speechless that so little is done about rare diseases and yet they have money to do research! Luckily, there are also artists like Eddie Vedder and his wife who support the sick children! Respect 👍

[@niedjaribeiro979]

Não queria partir dessa vida sem ao menos apertar a sua mão 😍

[@Rbzombie302]

Ed is an awesome man! But not as awesome as these people afflicted with diseases such as Eb. Keep fighting!

[@jonathanmarshall4820]

Eddie I love you man. Being straight I just tell The Man when I can't take it anymore I cry jesus help me out, I'm no good I just Dont want to suffer!

[@kikoredog]

if it works to fix EB, can it fix stuff like Eczema and Psriosis?....they are what i have :(

[@hhh417]

For Gods sake bubble wrap and send round the clock protection from the navy seals for ed. We need him forever in this world

[@jayvids4u]

ya the government can bail out banks but not fund something like this that would make to much sense

[@TheBluesamp]

ed is awesome

[@jeff7764]

Ed is the fucking man!

[@GiPelegrini]

😍❤❤❤❤😙👏

[@tk5676]

😊 👾 🍀

[@kirstinetermansen8360]

I thought, of gel,,,, as a heavy creme, would be Nice then badages

[@Shuriken009]

I didn't like that the fact that he would only mention US citizen infected

[@BluegrassAndLimestone]

Oh shut up.

[@davidgilfillan1934]

Hello Frank, I really understand what you mean (so as opposed to telling you to shut up like the moron above did) however... I'll like to respectfully suggest that I think the intended context of the Dr's statement was more in terms of providing a statistical illustration or metaphor to the seriousness of 'the situation' than insinuating a lack of care for anyone outside of the US. All the best.

[@ozkrhills9624]

Eddie...You are the one !!!!... Hahahaha......

[@clfarmgate]

They need 5 mill. Ed’s worth 80 mil......