Cervical Dystonia Treated with DTR ends 40 Years of Suffering

[@gaylecheung3087]

This is amazing you got to do a paper on this and send it to the medical journal to be publish

[@DrBenSutterEugene]

Gayle, I published this case in a book chapter I wrote. You can download the whole chapter in a PDF for under 40 bucks if your interested. Believe me when I say the scientific community is not interested in publishing. You would not believe the politics involved. BTW, I make no money on the chapter whether or not the chapter is purchased. I wrote it up for the patients to guide the doctors! The book Chapter reviews 4 cases, This one (Cervical Dystonia), Meniere's Disease, Trigeminal Neuralgia, and Phantom Bite. If you are interested I can send you the link

[@ae_berlin5632]

@@DrBenSutterEugene Yes, please, I am interested in a link, thank you!

[@DrBenSutterEugene]

www.researchgate.net/profile/Ben-Sutter/publications@@ae_berlin5632

[@DrBenSutterEugene]

@@ae_berlin5632 www.researchgate.net/publication/334836925_Complex_Medical_Diagnoses_With_an_Underlying_Dental_Etiology_Case_Reviews

[@alisonderrick1067]

@@DrBenSutterEugene wow thank you ❤God bless you for writing this chapter!!

[@jenniebee1978]

I just got diagnosed with this I am in Michigan willing to travel but am poor please help

[@dimsumm9933]

My story is almost similar im suffring something like this from laast 18 years its getting worse now im having severe depression and stress because of this im from michigan what do you suggest to go where and what type of doc should i see thank you so much

[@DrBenSutterEugene]

I dont know any dentists that are certified in Michigan. There is one in WI

[@dimsumm9933]

Oh ok thank you for your reply

[@beastndanite1217]

My mother has cervical dystonia and nothing is working. We live in pa . what are some ways we can go about getting her in here and trying this out? I hate seeing her like this!!

[@DrBenSutterEugene]

Call the office and lets schedule a phone consult. That would be first step.

[@douglaspatterson8848]

thank you for this video. i am wondering show she is doing now and if the treatment stuck or if she still has dystonia. i have it and am looking for help. i am deciding if i should get a splint of some kind or an alf or try your method. any information about how she is doing is much appreciated. thank you.

[@DrBenSutterEugene]

+Douglas Patterson She is doing fine....She is noticing continued healing. She has spent 40 years in a pathologic position (much like and alarm clock that has been wound too tight). It takes a while sometimes. I continue to follow her and the changes in the bite remain stable!

[@youonlylyve]

I hate this fucking disease it made me depressed and now i just rot in my basement and hoping i dont wake up tommorow

[@penelopemay6379]

what is the best treatment for myoclonus dystonia? I have head shaking/shaking/jerking? do u think cutting the nerves around my neck would work n stop the movements? i would rather that than DBS.

[@2koolaree]

penelope May - Penelope- do not even think about cutting the nerves in your neck. There still is not enough science to prove its effectiveness and its soooo permanent. Botulinum toxin A is the only treatment today, for most forms of Dystonia, that is proven to be successful in correcting Dystonia, in my case Cervical.

[@susandoll3187]

Don't let them cut the nerves. This is one of the primitive, early treatments, and it will be the biggest mistake of your life.

[@desperado77760]

what is DTR? Do you believe TMJ problems are the root cause of cervical dystonia?

[@DrBenSutterEugene]

DTR stands for Disclusion Time Reduction. In the cervical dystonia cases I have treated (two) there has been an underlying dental component that when corrected the symptoms improved. That is not to say these people are cured. Gary Demerjian in CA has seen similar things but he uses splints...DTR is different in the sense it requires objective measurement of several aspects of treatment and it is a splintless therapy. TMJ issues are a contributing factor for sure, IMHO.

[@desperado77760]

thanks. I'm searching. What city/state are you in?

[@DrBenSutterEugene]

Eugene, OR

[@lindajarvis6120]

@@DrBenSutterEugeneCervical dystonia has nothing to do with teeth problems. I have had CD since 2000 and my teeth didn't cause it or effected my teeth or jaw in any way.

[@DrBenSutterEugene]

@@lindajarvis6120 that is great for you, I have numerous patients that would disagree with you, so would Jeff Brown and Gary Demerjian. PDL neural pathways go right through the reticular formation which governs posture. The teeth are not the sole responsible party no, but they are a player in the game. There are several contributing factors and a search of the literature reveals no single etiology. Thanks for your comment

[@BB-uz8pn]

Hey there! I live in Oregon. I have no idea how to get checked for tmj though I do show some of the symptoms and have dystonia and I don’t know how to get checked for a possible link between the two. What should I do? How much would a consultation be? Thanks!

[@DrBenSutterEugene]

1 hour consult with me and diagnostics scan 250.00

[@テキサス塾]

I think I have focal dystonia. I play tennis, and when I try to hit forehand my left arm (I'm lefty) would start strange movement. Also, it happens when I hit serve, even golf. But It doesn't happen with backhand stroke. When I hit right handed golf, no problem at all. This symptom started about 35 years ago and very slowly it's getting worse and worse. These days, sometimes I cannot control my left hand when writing on a board on the wall(I'm a teacher). Do you think you can help me? or do you know any doctor do this treatment in Texas? How long does it take and how much is it for the complete treatment? Thank you

[@DrBenSutterEugene]

Where in Texas are you?

[@テキサス塾]

@@DrBenSutterEugene Plano( north of Dallas)

[@DrBenSutterEugene]

@@テキサス塾 Peter Barnett, DMD, FCNO 5944 W Parker Rd Suite 500 Plano, TX 75093 USA [phone]

[@テキサス塾]

@@DrBenSutterEugene Thank you so much. Does he do same treatment for focal dystonia?

[@amulchiluveru211]

Hi, I’m from India and my dad diagnosed with Cervical Dystonia and his head started moving to right side. Here everyone is suggesting to go with the Botox injection. Any way to get rid of this, need help

[@DrBenSutterEugene]

Many dentists in India can do this, here is a list. www.digitalocclusionseminars.com/india.html

[@amulchiluveru211]

@@DrBenSutterEugene Thank You so much Sir for the response

[@ThePointofThePen]

I need help! I have Cervical Dystonia and TMJ

[@DrBenSutterEugene]

call the office, I am happy to see you or refer to someone close to you if there is one.

[@db2623]

I'm 23 and suffering with Cervical dystonia. I was actually going to move to oregon but i'm living in arizona for the moment, do you know of any doctors here that can help me right now? How much would this cost? I'm desperate

[@DrBenSutterEugene]

Currently there are no DTR trained doctors in AZ. Most of these patients have an underlying Dental Occlusion that needs to be corrected. Most of medicine has not connected the dots unfortunately. You need a computer to "see" it. I have another video that is coming out as soon as I can splice it all together. Occlusion is not the only player in the CD game, but it is a major player for sure. CD cases are extremely complex, and take at least a year, but in my experience 50% reduction in pain/symptoms is achievable. Hope that helps. You can call the office and I am happy to talk to you. Out of office until next week. 541-683-7500

[@lindajarvis6120]

d B I was diagnosed with cervical dystonia at the age of 54 but had suffered with my neck caving in on my right side and my friends would ofter asked (while driving) what I was looking at because my head was always turned to the left but my eyes were focused on the road. I actually told I had carpal tunnel which could lead to the neck area. This was BS. I lived with this problem for several years before I was diagnosed with CD in 2007. Most people start with medicine at first because it is cheaper then the next step which is Botox A treatments. The cost of the Botox depends on the amount they use. My problem was so advanced I had to start with the Max witch is (I believe) is 360 mg. Each bottle was around $500.00 each It takes 3 for me and were injected every 3 months. I also take 4 different meds as well. I am now doing the shots every 4 months and trying to stretch it out every 5 months but my doctor said she will take me in for the shots if I feel I can't make it through the months. I get around 10 shots directly into the muscles around my neck, and I won't lie to you it is painful. Some doctors use a machine to find the right muscle and the needles are larger but my doctor knows by feel where the muscles are so no big needles. I may be able in time to stretch it out every 6 months but have been advised that may be my time limit. The cause of CD is not really known but was explained to me is that there are nerves in the brain that will attach to other nerves that causes this problem. The worse scenario would be to have the nerve clipped, which means a trip to the nearest Mayo Clinic to have this done BUT the nerve could attach somewhere else. If you go to a neurosurgeon he would be able to tell you more and I believe there would be a doctor that can start you on the right track. If you have insurance the doctor will need permission from them to start the shots or they won't pay and MAKE SURE YOU CHECK IF THE DOCTOR IS IN YOUR INSURANCE NETWORK. If not they may only 60% of the cost. If you want to talk more about this you can reach me by e-mail at [e-mail] and I will give you my number to call if need be. CD is very painful in it self but believe me you will find comfort soon after the procedures. Keep in mine I had this at least 7 years before diagnosed you may be luckier if haven't had it very long. I will help as much as I can through my experience.

[@triplee2681]

@@lindajarvis6120 hello i do have same issue but i haven’t diagnose yet that because im just having sign and symptoms of cervical dystonia for about been 2months from now i know that all of the symptoms of cd are i do experienced it for about 2months so im very very scared that i might have it and despite of having symptoms of cd i do have other health problems as well. so my anxiety is so heightened im just very scare and exhausted all of this. life is unfair

[@rishabhshah4854]

My father is suffering from cervical dystonia since 7-8 months tried botox but did not work not sure if the doctor really injected botox can you help please

[@DrBenSutterEugene]

call the office 541-683-7500, we could set up a consult.

[@amulchiluveru211]

Hi @rishab, how is your father doing now? How he is getting treated now?

[@rishabhshah4854]

@@amulchiluveru211 hey he just underwent DBS surgery last week so far he is doing fine. The programming can take some time to get correct configuration with favourable results. Tried botox thrice but they did not work

[@fepebenito4480]

Whom and HOW ,what will I do to consult you.What clinic please help

[@DrBenSutterEugene]

Call the office 541 683 7500. Where are you located?

[@alansparrow5605]

What does DTR stand for?

[@DrBenSutterEugene]

Disclusion Time Reduction

[@tobalhenriquez8233]

What is DTR? I need it

[@vannessasedillo7102]

I'm not dignose yet with this but I have a feeling now I'm scared 💔I been suffering for 4years with neck pain head pain I found out I have tmj a month ago and they want to do orthodontist and braces but my neck hurts really bad 😞ugh I wish u was in Austin

[@DrBenSutterEugene]

is Houston too far?

[@vannessasedillo7102]

@@DrBenSutterEugene kinda not what your location and how much because I'm suffering and nobody knows it I really need help life been passing me by I been stuck at home for 4years suffering with all kinds of problems tmj neck spasm head bumps nerve problems bowels stomach I'm suffering and I'm getting weaker well how I feel every thing hurts and I'm only 21 😞💔

[@DrBenSutterEugene]

@@vannessasedillo7102 call the office tomorrow and lets set up a time to talk. It would help if I had more information.

[@vannessasedillo7102]

@@DrBenSutterEugene what's the number?

[@DrBenSutterEugene]

@@vannessasedillo7102 541-683-7500 M - Th 8-5pm PST

[@karakohle-nc6wc]

❤

[@ulvikazimi8583]

Hi

[@عادلالرشيدي-د2و]

Please can any one translate to arabic

[@ad_9251]

لقيت علاج ؟

[@ulvikazimi8583]

Pro